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Assessing Public Reason Approaches to Conscientious Objection in Healthcare 评估医疗保健领域良心拒绝的公共理由方法
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-11 DOI: 10.1017/s0963180124000112
Doug McConnell
Sometimes healthcare professionals conscientiously refuse to treat patients despite the patient requesting legal, medically indicated treatments within the professionals’ remit. Recently, there has been a proliferation of views using the concept of public reason to specify which conscientious refusals of treatment should be accommodated. Four such views are critically assessed, namely, those of Robert Card, Massimo Reichlin, David Scott, and Doug McConnell. This paper argues that McConnell’s view has advantages over the other approaches because it combines the requirement that healthcare professionals publicly justify the grounds of their conscientious refusals of treatment with the requirement that those grounds align with minimally decent healthcare. This relatively restrictive approach accommodates conscientious refusals from minimally decent healthcare professionals while still protecting good healthcare, the independence of the healthcare professions, and the fiduciary relationships.
有时,尽管病人要求在专业人员的职权范围内进行合法的、有医学指征的治疗,但医护专业人员还是会出于良心拒绝治疗病人。近来,利用公共理性概念来明确哪些出于良心拒绝治疗的行为应予以照顾的观点层出不穷。本文对罗伯特-卡德(Robert Card)、马西莫-赖克林(Massimo Reichlin)、戴维-斯科特(David Scott)和道格-麦康奈尔(Doug McConnell)的四种观点进行了批判性评估。本文认为,麦康奈尔的观点与其他观点相比具有优势,因为它既要求医护人员公开说明他们出于良心拒绝治疗的理由,又要求这些理由符合最低限度的体面医疗。这种限制性相对较强的方法既能满足最低限度体面的医疗保健专业人员出于良心拒绝治疗的要求,又能保护良好的医疗保健、医疗保健专业的独立性以及信托关系。
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引用次数: 0
Adolescent OCD Patient and Caregiver Perspectives on Identity, Authenticity, and Normalcy in Potential Deep Brain Stimulation Treatment 青少年强迫症患者和护理人员对潜在脑深部刺激治疗中的身份、真实性和正常性的看法
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-11 DOI: 10.1017/s0963180124000203
Jared N. Smith, Natalie Dorfman, Meghan Hurley, Ilona Cenolli, Kristin Kostick-Quenet, Eric A. Storch, Gabriel Lázaro-Muñoz, Jennifer Blumenthal-Barby
The ongoing debate within neuroethics concerning the degree to which neuromodulation such as deep brain stimulation (DBS) changes the personality, identity, and agency (PIA) of patients has paid relatively little attention to the perspectives of prospective patients. Even less attention has been given to pediatric populations. To understand patients’ views about identity changes due to DBS in obsessive-compulsive disorder (OCD), the authors conducted and analyzed semistructured interviews with adolescent patients with OCD and their parents/caregivers. Patients were asked about projected impacts to PIA generally due to DBS. All patient respondents and half of caregivers reported that DBS would impact patient self-identity in significant ways. For example, many patients expressed how DBS could positively impact identity by allowing them to explore their identities free from OCD. Others voiced concerns that DBS-related resolution of OCD might negatively impact patient agency and authenticity. Half of patients expressed that DBS may positively facilitate social access through relieving symptoms, while half indicated that DBS could increase social stigma. These views give insights into how to approach decision-making and informed consent if DBS for OCD becomes available for adolescents. They also offer insights into adolescent experiences of disability identity and “normalcy” in the context of OCD.
神经伦理学界一直在讨论深部脑刺激(DBS)等神经调控技术在多大程度上改变了患者的人格、身份和代理权(PIA),但对未来患者的观点关注相对较少。对儿科人群的关注就更少了。为了了解强迫症(OCD)患者对 DBS 引起的身份变化的看法,作者对患有强迫症的青少年患者及其父母/监护人进行了半结构式访谈,并对访谈内容进行了分析。患者被问及 DBS 一般会对 PIA 产生哪些影响。所有受访患者和半数护理人员都表示,DBS 会对患者的自我认同产生重大影响。例如,许多患者表示,DBS 可以让他们摆脱强迫症,探索自己的身份,从而对身份认同产生积极影响。其他人则表示担心,与 DBS 相关的强迫症解决方案可能会对患者的自主性和真实性产生负面影响。半数患者表示,DBS 可以通过缓解症状积极促进社交,而半数患者表示 DBS 可能会增加社会耻辱感。这些观点让我们了解到,如果青少年可以使用 DBS 治疗强迫症,该如何做出决策和获得知情同意。他们还对青少年在强迫症背景下对残疾身份和 "正常性 "的体验提出了见解。
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引用次数: 0
Ethical and Equitable Digital Health Research: Ensuring Self-Determination in Data Governance for Racialized Communities 道德与公平的数字健康研究:确保种族化社区在数据管理中的自决权
IF 1.8 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-03 DOI: 10.1017/s096318012400015x
Mozharul Islam, Arafaat A. Valiani, Ranjan Datta, Mohammad Chowdhury, Tanvir C. Turin
Recent studies highlight the need for ethical and equitable digital health research that protects the rights and interests of racialized communities. We argue for practices in digital health that promote data self-determination for these communities, especially in data collection and management. We suggest that researchers partner with racialized communities to curate data that reflects their wellness understandings and health priorities, and respects their consent over data use for policy and other outcomes. These data governance approach honors and builds on Indigenous Data Sovereignty (IDS) decolonial scholarship by Indigenous and non-indigenous researchers and its adaptations to health research involving racialized communities from former European colonies in the global South. We discuss strategies to practice equity, diversity, inclusion, accessibility and decolonization (EDIAD) principles in digital health. We draw upon and adapt the concept of Precision Health Equity (PHE) to emphasize models of data sharing that are co-defined by racialized communities and researchers, and stress their shared governance and stewardship of data that is generated from digital health research. This paper contributes to an emerging research on equity issues in digital health and reducing health, institutional, and technological disparities. It also promotes the self-determination of racialized peoples through ethical data management.
最近的研究突出表明,有必要开展合乎道德和公平的数字健康研究,以保护种族化群体的权益。我们主张在数字健康领域采取促进这些群体数据自决的做法,尤其是在数据收集和管理方面。我们建议研究人员与种族化社群合作,收集能反映他们对健康的理解和健康优先事项的数据,并尊重他们对数据用于政策和其他成果的同意。这些数据管理方法尊重并借鉴了土著和非土著研究人员的 "土著数据主权"(Indigenous Data Sovereignty,IDS)非殖民地学术研究,并将其应用于涉及全球南部前欧洲殖民地种族化社区的健康研究。我们讨论了在数字健康领域践行公平、多样性、包容性、无障碍和非殖民化(EDIAD)原则的策略。我们借鉴并调整了 "精准健康公平"(PRE)的概念,强调了由种族化社区和研究人员共同定义的数据共享模式,并强调了他们对数字健康研究产生的数据的共同治理和管理。本文为新兴的数字健康公平问题研究以及减少健康、机构和技术差距做出了贡献。它还通过合乎道德的数据管理促进了种族化民族的自决。
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引用次数: 0
Welfare, Abortion, and Organ Donation: A Reply to the Restrictivist. 福利、堕胎和器官捐赠:给限制主义者的答复》。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-01 Epub Date: 2023-04-14 DOI: 10.1017/S0963180123000208
Emily Carroll, Parker Crutchfield

We argued in a recent issue of this journal that if abortion is restricted,1 then there are parallel obligations for parents to donate body parts to their children. The strength of this obligation to donate is proportional to the strength of the abortion restrictions. If abortion is never permissible, then a parent must always donate any organ if they are a match. If abortion is sometimes permissible and sometimes not, then organ donation is sometimes obligatory and sometimes not. Our argument was based on the following ideas: (a) that a fetus has full moral status, (b) that parents have special obligations to their offspring, fetus or not, and (c) that this special obligation is to protect them. The result is the conclusion that abortion restrictivists cannot also consistently deny that organ donation should be compulsory.

我们在本刊最近一期的文章中提出,如果限制堕胎,1 那么父母就同时有义务将身体器官捐献给子女。这种捐赠义务的强度与堕胎限制的强度成正比。如果永远不允许堕胎,那么父母就必须捐赠任何匹配的器官。如果堕胎有时允许,有时不允许,那么器官捐赠有时是义务,有时不是。我们的论点基于以下观点:(a) 胎儿具有完全的道德地位,(b) 父母对其后代(无论是否为胎儿)负有特殊义务,(c) 这种特殊义务就是保护他们。结果得出的结论是,限制堕胎论者也不能始终否认器官捐赠应该是强制性的。
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引用次数: 0
On Matti Häyry's "Exit Duty Generator". 关于 Matti Häyry 的 "退出义务生成器"。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-01 Epub Date: 2023-03-24 DOI: 10.1017/S0963180123000142
Karim Akerma

Matti Häyry presents a new ethical theory that he calls "conflict-responsive need-based negative utilitarianism."1 In this commentary, I present my critical observations on his main points against the more general background of utilitarianism and theories of value.

马蒂-海瑞(Matti Häyry)提出了一种新的伦理学理论,他称之为 "冲突反应型基于需求的消极功利主义 "1 。在这篇评论中,我将以功利主义和价值理论为更广泛的背景,对他的主要观点提出批评意见。
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引用次数: 0
Strategic Ambiguity: The Pragmatic Utopianism of Daniel Callahan's "Bioethics as a Discipline". 战略模糊性:丹尼尔-卡拉汉 "作为一门学科的生命伦理学 "的实用乌托邦主义。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-01 Epub Date: 2023-08-22 DOI: 10.1017/S0963180123000440
Mathias Schütz

This article highlights the continuing relevance of a classic bioethical text, "Bioethics as a Discipline," published by the Hastings Center's cofounder Daniel Callahan in 1973. Connecting the text's programmatic recommendations with later reflections and interventions Callahan wrote about the development of bioethics illuminates how the vision Callahan established and the reality this vision helped create were interrelated-just not in the way Callahan had hoped for. Although this portrait relies on an individual perception of the development of bioethics, it might nevertheless, through its unique linkage of different bioethical temporalities, contribute to a broader reassessment of what bioethics became and why.

本文强调了黑斯廷斯中心共同创始人丹尼尔-卡拉汉于 1973 年出版的经典生物伦理学著作《作为一门学科的生物伦理学》的持续相关性。将该文的纲领性建议与卡拉汉后来撰写的关于生命伦理学发展的思考和干预联系起来,揭示了卡拉汉所确立的愿景与这一愿景所帮助创造的现实是如何相互关联的--只是并非以卡拉汉所希望的方式。尽管这幅肖像依赖于对生命伦理学发展的个人看法,但它通过将不同的生命伦理学时空独特地联系起来,可能有助于对生命伦理学的发展及其原因进行更广泛的重新评估。
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引用次数: 0
The Picture Theory of Disability. 残疾的图画理论
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-01 Epub Date: 2023-04-05 DOI: 10.1017/S0963180123000154
Steven J Firth

The leading models of disability struggle to fully encompass all aspects of "disability." This difficulty arises, the author argues, because the models fundamentally misunderstand the nature of disability. Current theoretical approaches to disability can be understood as "nounal," in that they understand disability as a thing that is caused or embodied. In contrast, this paper presents an adverbial perspective on disability, which shows that disability is experienced as a personally irremediable impediment to daily-living tasks or goals-like-ours. The picture theory of disability technically constitutes a species of relational approach because its analysis references the interplay between an individual and their environment; it differs from other relational accounts, however, by interpreting disability as a certain kind of negative experience-rather than a function of that relationship. This purely descriptive theory makes no normative claims about disability and operates as both a mechanism for the evaluation of the experience of disability and a heuristic device for the proper interpretation of disability. When disability is reframed in this way, the theory offers a particularist perspective which shows if, when, where, and how disability is experienced.

主要的残疾模型很难完全涵盖 "残疾 "的各个方面。作者认为,之所以出现这种困难,是因为这些模式从根本上误解了残疾的本质。目前关于残疾的理论方法可以理解为 "名词性 "的,因为它们将残疾理解为一种造成或体现的事物。与此相反,本文从副词的角度阐述了残疾,表明残疾是日常生活任务或类似于我们的目标所遇到的无法弥补的个人障碍。从技术上讲,残疾图景理论构成了一种关系论方法,因为它的分析提到了个人与环境之间的相互作用;然而,它与其他关系论的不同之处在于,它将残疾解释为某种负面体验--而不是这种关系的功能。这种纯粹的描述性理论不对残疾做出任何规范性主张,既是评估残疾体验的机制,也是正确解释残疾的启发式工具。当以这种方式重构残疾问题时,该理论提供了一种特殊主义视角,显示了是否、何时、何地以及如何经历残疾。
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引用次数: 0
Applying the Peter Parker Principle to Healthcare. 将彼得-帕克原则应用于医疗保健。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-01 Epub Date: 2022-12-16 DOI: 10.1017/S0963180122000275
James E Stahl, William A Nelson

The role of power in healthcare can raise many ethical challenges. Power is ownership, whether given, ceded, or taken of another person's autonomy. When a person has power over someone else, they can control or strongly influence the decision-making freedom of that person. From the principalist perspective1,2 of healthcare ethics, denying a person their freedom to choose, should only occur when justifying conditions related to beneficence and nonmaleficence are sufficiently satisfied. In healthcare, it is rare to be able to identify situations where paternalism is justified. However, experience suggests that abusive power in healthcare is used too frequently without justifying criteria.

权力在医疗保健中的作用会引发许多伦理挑战。权力是所有权,无论是给予、让渡还是剥夺他人的自主权。当一个人对他人拥有权力时,他就可以控制或强烈影响他人的决策自由。从医疗保健伦理学的主体论角度1,2 来看,只有在充分满足了与 "有利 "和 "无弊 "相关的合理条件时,才可以剥夺一个人的选择自由。在医疗保健领域,很少能找到家长式作风合理的情况。然而,经验表明,在医疗保健领域,滥用权力的情况过于频繁,而且没有正当的标准。
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引用次数: 0
What's Wrong with Restrictivism? 限制主义有什么问题?
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-01 DOI: 10.1017/S0963180124000033
William M Simkulet

Emily Carroll and Parker Crutchfield propose a new inconsistency argument against abortion restrictivism. In response, I raised several objections to their argument. Recently Carroll and Crutchfield have replied and seem to be under the impression that I'm a restrictivist. This is puzzling, since my criticism of their view included a very thinly veiled, but purposely more charitable, anti-restrictivist inconsistency argument. In this response, I explain how Carroll and Crutchfield mischaracterize my position and that of the restrictivist.

Emily Carroll 和 Parker Crutchfield 针对堕胎限制主义提出了一个新的不一致论点。对此,我对他们的论点提出了一些反对意见。最近,卡罗尔和克拉奇菲尔德做出了回复,他们似乎认为我是限制堕胎论者。这令人费解,因为我对他们观点的批评包括一个非常含蓄、但故意更友好的反限制主义不一致论点。在这篇回应中,我将解释卡罗尔和克拉奇菲尔德是如何错误地描述我和限制论者的立场的。
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引用次数: 0
Exit Duty Generator. 出口值班发电机。
IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-04-01 Epub Date: 2023-02-17 DOI: 10.1017/S096318012300004X
Matti Häyry

This article presents a revised version of negative utilitarianism. Previous versions have relied on a hedonistic theory of value and stated that suffering should be minimized. The traditional rebuttal is that the doctrine in this form morally requires us to end all sentient life. To avoid this, a need-based theory of value is introduced. The frustration of the needs not to suffer and not to have one's autonomy dwarfed should, prima facie, be decreased. When decreasing the need frustration of some would increase the need frustration of others, the case is deferred and a fuller ethical analysis is conducted. The author's perceptions on murder, extinction, the right to die, antinatalism, veganism, and abortion are used to reach a reflective equilibrium. The new theory is then applied to consumerism, material growth, and power relations. The main finding is that the burden of proof should be on those who promote the status quo.

本文提出了消极功利主义的修订版。以前的版本依赖于享乐主义的价值理论,并指出应尽量减少痛苦。传统的反驳意见认为,这种形式的学说在道德上要求我们终结所有有生命的生命。为了避免这种情况,我们引入了基于需求的价值理论。从表面上看,不受苦和不被矮化的需求的挫折感应该减少。如果减少一些人的需求挫折会增加另一些人的需求挫折,那么就应该推迟处理,并进行更全面的伦理分析。作者通过对谋杀、灭绝、死亡权、反生育主义、素食主义和堕胎等问题的认识,达成了一种反思性的平衡。然后将新理论应用于消费主义、物质增长和权力关系。主要发现是,举证责任应由推动现状的人承担。
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引用次数: 0
期刊
Cambridge Quarterly of Healthcare Ethics
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