Pub Date : 2025-12-01Epub Date: 2025-09-22DOI: 10.1016/j.pecinn.2025.100432
Marte-Marie Wallander Karlsen , Kari Sørensen , Berit Hofset Larsen , Lena Günterberg Heyn , Jennifer Gerwing
Introduction
Video recording vulnerable situations in healthcare practice raises ethical challenges that require addressing throughout the research process. Such challenges are linked to protecting research participants and assessing when and how using video recordings is appropriate.
Aim
This article aims to present methodological and ethical considerations inherent in video recording vulnerable participants and to offer future researchers concrete guidance and inspiration as to how they might assess these aspects of their own planned video research.
Results and discussion
As a group of researchers who have used video recordings to collect data of patients in vulnerable situations, we reflect upon our own methodological and ethical choices against the backdrop of other research studies and ethical guidelines.
Conclusion
Video recordings provide a unique opportunity to observe human interaction and to understand more about how we relate to each other. This article contributes to knowledge regarding empirically and ethically sound practice. We have demonstrated how methodological and ethical considerations are intertwined and should be treated as such.
Innovation
There are no existing guidelines or tools specifically for conducting and reporting qualitative studies using video recording that link the ethical considerations to the methodological choices. This article could provide a point of departure for establishing a reflective tool.
{"title":"Video recording as a data collection method in vulnerable populations - methodological and ethical considerations","authors":"Marte-Marie Wallander Karlsen , Kari Sørensen , Berit Hofset Larsen , Lena Günterberg Heyn , Jennifer Gerwing","doi":"10.1016/j.pecinn.2025.100432","DOIUrl":"10.1016/j.pecinn.2025.100432","url":null,"abstract":"<div><h3>Introduction</h3><div>Video recording vulnerable situations in healthcare practice raises ethical challenges that require addressing throughout the research process. Such challenges are linked to protecting research participants and assessing when and how using video recordings is appropriate.</div></div><div><h3>Aim</h3><div>This article aims to present methodological and ethical considerations inherent in video recording vulnerable participants and to offer future researchers concrete guidance and inspiration as to how they might assess these aspects of their own planned video research.</div></div><div><h3>Results and discussion</h3><div>As a group of researchers who have used video recordings to collect data of patients in vulnerable situations, we reflect upon our own methodological and ethical choices against the backdrop of other research studies and ethical guidelines.</div></div><div><h3>Conclusion</h3><div>Video recordings provide a unique opportunity to observe human interaction and to understand more about how we relate to each other. This article contributes to knowledge regarding empirically and ethically sound practice. We have demonstrated how methodological and ethical considerations are intertwined and should be treated as such.</div></div><div><h3>Innovation</h3><div>There are no existing guidelines or tools specifically for conducting and reporting qualitative studies using video recording that link the ethical considerations to the methodological choices. This article could provide a point of departure for establishing a reflective tool.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100432"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145265879","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-12-01Epub Date: 2025-06-06DOI: 10.1016/j.pecinn.2025.100408
Michael Soh , Dolores Mullikin , Steven J. Durning , Jerusalem Merkebu
Objective
This study explores how, if at all, engaged curiosity - a genuine, emotionally engaged interest in learning more about the complexity of another's particular emotional perspective - emerges in the clinical reasoning process and its relationship with contextual factors and clinical reasoning performance.
Methods
Think-alouds transcripts from nineteen physicians in internal medicine from three military training facilities were thematically analyzed for instances of engaged curiosity and examined through the lens of contextual factors and clinical reasoning performance.
Results
Our findings indicate that engaged curiosity can be likened to placeholders that physicians employ early on to “bookmark” sources of patient concern. These sources, or hot spots, deserve follow up, particularly when cognitive resources are unavailable to “attend” to a deeper understanding of the patient's experience.
Conclusion
Engaged curiosity provides a unique lens for better understanding the relationship between empathy and clinical reasoning and warrants further research on its impact on the patient and their care.
Innovation
Engaged curiosity could serve as a novel way to train physicians to think and engage more empathically with their patients.
{"title":"Engaged curiosity: “Hot spots” for clinical reasoning in complex patient encounters","authors":"Michael Soh , Dolores Mullikin , Steven J. Durning , Jerusalem Merkebu","doi":"10.1016/j.pecinn.2025.100408","DOIUrl":"10.1016/j.pecinn.2025.100408","url":null,"abstract":"<div><h3>Objective</h3><div>This study explores how, if at all, engaged curiosity - a genuine, emotionally engaged interest in learning more about the complexity of another's particular emotional perspective - emerges in the clinical reasoning process and its relationship with contextual factors and clinical reasoning performance.</div></div><div><h3>Methods</h3><div>Think-alouds transcripts from nineteen physicians in internal medicine from three military training facilities were thematically analyzed for instances of engaged curiosity and examined through the lens of contextual factors and clinical reasoning performance.</div></div><div><h3>Results</h3><div>Our findings indicate that engaged curiosity can be likened to placeholders that physicians employ early on to “bookmark” sources of patient concern. These sources, or hot spots, deserve follow up, particularly when cognitive resources are unavailable to “attend” to a deeper understanding of the patient's experience.</div></div><div><h3>Conclusion</h3><div>Engaged curiosity provides a unique lens for better understanding the relationship between empathy and clinical reasoning and warrants further research on its impact on the patient and their care.</div></div><div><h3>Innovation</h3><div>Engaged curiosity could serve as a novel way to train physicians to think and engage more empathically with their patients.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100408"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144254654","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-12-01Epub Date: 2025-08-14DOI: 10.1016/j.pecinn.2025.100422
Zeba Khan , Piper Scott-Fiddler , Sarah Munro
Objective
Despite being a basic right of all individuals, many newcomer youth in Canada face challenges in accessing sexual and reproductive health (SRH), including contraception care. Settlement service providers are a trusted source for newcomers in the community, and we explored their role in supporting equitable access to SRH.
Methods
We conducted an integrated knowledge translation (IKT) intervention involving two workshops and the development of an infographic to explore the barriers and opportunities for settlement service organizations to participate in the SRH care pathway for newcomer youth.
Results
SRH and contraception topics arise when youth access other services, such as violence prevention and mental health programming. Lack of training and resources limits their ability to support youth. Workshop participants expressed interest in training and resources and identified opportunities to strengthen the referral pathways to support youth's access to SRH.
Conclusion
Providing resources and training can bolster settlement service providers' awareness of newcomer youth's SRH needs and improve their capacity to support them with information.
Innovation
Our work identified settlement service providers as important in strengthening the SRH care pathway for newcomer youth. We demonstrated the need and opportunity to reach newcomer youth with SRH information by providing training and resources to settlement service providers.
{"title":"How can community-based organizations be involved in the contraception care pathway for newcomer youth? Results of knowledge translation workshops","authors":"Zeba Khan , Piper Scott-Fiddler , Sarah Munro","doi":"10.1016/j.pecinn.2025.100422","DOIUrl":"10.1016/j.pecinn.2025.100422","url":null,"abstract":"<div><h3>Objective</h3><div>Despite being a basic right of all individuals, many newcomer youth in Canada face challenges in accessing sexual and reproductive health (SRH), including contraception care. Settlement service providers are a trusted source for newcomers in the community, and we explored their role in supporting equitable access to SRH.</div></div><div><h3>Methods</h3><div>We conducted an integrated knowledge translation (IKT) intervention involving two workshops and the development of an infographic to explore the barriers and opportunities for settlement service organizations to participate in the SRH care pathway for newcomer youth.</div></div><div><h3>Results</h3><div>SRH and contraception topics arise when youth access other services, such as violence prevention and mental health programming. Lack of training and resources limits their ability to support youth. Workshop participants expressed interest in training and resources and identified opportunities to strengthen the referral pathways to support youth's access to SRH.</div></div><div><h3>Conclusion</h3><div>Providing resources and training can bolster settlement service providers' awareness of newcomer youth's SRH needs and improve their capacity to support them with information.</div></div><div><h3>Innovation</h3><div>Our work identified settlement service providers as important in strengthening the SRH care pathway for newcomer youth. We demonstrated the need and opportunity to reach newcomer youth with SRH information by providing training and resources to settlement service providers.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100422"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144890932","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-12-01Epub Date: 2025-06-24DOI: 10.1016/j.pecinn.2025.100413
Isabel Hamm , Kerstin Dittmer , Frank Vitinius , David Reinert , Marc Hoemberg , Remo Kamm-Thonwart , Rainer Misgeld , Theresia Krieger
Objectives
The study aimed to (1) gain a comprehensive, multi-perspective understanding of the preparation, transmission and follow-up of Breaking Bad News (BBN) in pediatric oncology, and (2) to develop and weigh recommendations for BBN in pediatric oncology.
Methods
A mixed-methods Participatory Group Delphi (PGD) study was conducted to develop recommendations for the preparation, transmission, and follow-up of BBN. Practice-based evidence (PBE) was collected from four groups (N = 14 organizations) with different BBN experiences: (1) patient and family representatives, (2) healthcare providers, (3) psychosocial supporters, and (4) health services researchers.
Results
The PGD process (16 interviews, three focus group discussions and two surveys) resulted in 166 recommendations (preparation: 55; transmission: 45; follow-up: 66).
Conclusion
The PGD approach provided a structured framework for collecting PBE and developing, refining and consolidating recommendations on BBN in pediatric oncology. Involving all affected by BBN was crucial for addressing the complexity of BBN in the recommendations. The mixed-methods design enhanced the reliability and practical applicability of the recommendations.
Innovation
To our knowledge, no prior research in pediatric oncology has systematically integrated existing PBE into a structured set of recommendations in Germany. This study introduces a novel PGD process in this field in Germany, incorporating three key innovations: (1) a participatory methodology ensuring active stakeholder engagement, (2) a uniquely diverse expert panel including those affected by pediatric cancer, and (3) a systematic, iterative recommendation development approach rooted in PBE. This methodology results in a Delphi process that diverges significantly from classical approaches, offering a collaborative and structured framework for evidence synthesis.
目的本研究旨在(1)全面、多角度地了解儿科肿瘤学突发坏消息(Breaking Bad News, BBN)的准备、传播和随访;(2)制定和权衡儿科肿瘤学中BBN的建议。方法采用混合方法参与组德尔菲(PGD)研究,对BBN的制备、传播和随访提出建议。基于实践的证据(PBE)来自四组(N = 14个组织),他们具有不同的BBN经验:(1)患者和家属代表,(2)医疗保健提供者,(3)社会心理支持者,(4)卫生服务研究人员。PGD过程(16次访谈,3次焦点小组讨论和2次调查)产生166条建议(准备:55;传输:45;追问:66)。结论PGD方法为收集PBE和制定、完善和巩固儿科肿瘤学BBN建议提供了一个结构化框架。让所有受BBN影响的人参与进来,对于在建议中处理BBN的复杂性至关重要。混合方法的设计提高了建议的可靠性和实用性。据我们所知,在德国还没有儿科肿瘤学的研究将现有的PBE系统地整合到一套结构化的建议中。本研究在德国该领域引入了一种新颖的PGD流程,包括三个关键创新:(1)确保利益相关者积极参与的参与式方法,(2)包括儿童癌症患者在内的独特多样化专家小组,以及(3)基于PBE的系统,迭代的建议开发方法。这种方法产生的德尔菲过程与经典方法有很大的不同,为证据合成提供了一个协作和结构化的框架。
{"title":"Developing multi-perspective practice-based evidence theses for breaking bad news in the German pediatric oncology: A participatory group Delphi study","authors":"Isabel Hamm , Kerstin Dittmer , Frank Vitinius , David Reinert , Marc Hoemberg , Remo Kamm-Thonwart , Rainer Misgeld , Theresia Krieger","doi":"10.1016/j.pecinn.2025.100413","DOIUrl":"10.1016/j.pecinn.2025.100413","url":null,"abstract":"<div><h3>Objectives</h3><div>The study aimed to (1) gain a comprehensive, multi-perspective understanding of the preparation, transmission and follow-up of Breaking Bad News (BBN) in pediatric oncology, and (2) to develop and weigh recommendations for BBN in pediatric oncology.</div></div><div><h3>Methods</h3><div>A mixed-methods Participatory Group Delphi (PGD) study was conducted to develop recommendations for the preparation, transmission, and follow-up of BBN. Practice-based evidence (PBE) was collected from four groups (<em>N</em> = 14 organizations) with different BBN experiences: (1) patient and family representatives, (2) healthcare providers, (3) psychosocial supporters, and (4) health services researchers.</div></div><div><h3>Results</h3><div>The PGD process (16 interviews, three focus group discussions and two surveys) resulted in 166 recommendations (preparation: 55; transmission: 45; follow-up: 66).</div></div><div><h3>Conclusion</h3><div>The PGD approach provided a structured framework for collecting PBE and developing, refining and consolidating recommendations on BBN in pediatric oncology. Involving all affected by BBN was crucial for addressing the complexity of BBN in the recommendations. The mixed-methods design enhanced the reliability and practical applicability of the recommendations.</div></div><div><h3>Innovation</h3><div>To our knowledge, no prior research in pediatric oncology has systematically integrated existing PBE into a structured set of recommendations in Germany. This study introduces a novel PGD process in this field in Germany, incorporating three key innovations: (1) a participatory methodology ensuring active stakeholder engagement, (2) a uniquely diverse expert panel including those affected by pediatric cancer, and (3) a systematic, iterative recommendation development approach rooted in PBE. This methodology results in a Delphi process that diverges significantly from classical approaches, offering a collaborative and structured framework for evidence synthesis.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100413"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144522411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-12-01Epub Date: 2025-06-24DOI: 10.1016/j.pecinn.2025.100412
Stephanie K. Kukora , Kerry Ryan , Haoyang Yan , Rachel Clarke , Cynthia Arslanian-Engoren , Kenneth Pituch
Objective
To develop a clinical, bedside intervention with peer parent narratives to help parents understand the shared decision-making (SDM) process, their role in the decision, and other parents' considerations in this context.
Patient involvement
To ensure that the intervention reflected parents' needs, we identified eight parents who had faced a tracheostomy decision for their child and were willing to talk about their experiences on a video recording. Half of the parents had chosen tracheostomy; some children of parents making either choice had died. We included parents of diverse racial backgrounds whose children had different diagnoses. Parent interviews, along with an explanation of SDM for parents, were edited into a 17-min video guided by iterative feedback from parents and clinicians. Additional parents of children with tracheostomies then viewed the video and shared perceptions about acceptability.
Methods
After an iterative process of developing the video in partnership with parents, we piloted the video with 18 parents in 16 online interviews (two were couples) who were not part of video development but had faced a tracheostomy decision for their child within the last three years. Participants were asked about their experiences, viewed the video, and provided verbal feedback and reflection on the acceptability of the video and its anticipated clinical use. Interviews were transcribed and qualitatively analyzed, focusing on feedback.
Results
Parents who viewed the video provided generally favorable feedback, describing the video as “helpful,” and appreciating the diversity of the cases represented and the perspectives offered. They felt that it could empower parents to ask questions and voice their opinions to the medical team. Parents noted feeling a connection to the emotions expressed by the parents in the video and felt it would help parents facing these decisions to feel less alone.
Discussion/practical value
Video education focusing on parents' perspectives may help support the SDM process for pediatric tracheostomy and complement other strategies to support parent engagement. Similar approaches may be valuable in explaining SDM to patients or families facing other serious decisions.
{"title":"Development and acceptability testing of a tracheostomy decision support video for parents","authors":"Stephanie K. Kukora , Kerry Ryan , Haoyang Yan , Rachel Clarke , Cynthia Arslanian-Engoren , Kenneth Pituch","doi":"10.1016/j.pecinn.2025.100412","DOIUrl":"10.1016/j.pecinn.2025.100412","url":null,"abstract":"<div><h3>Objective</h3><div>To develop a clinical, bedside intervention with peer parent narratives to help parents understand the shared decision-making (SDM) process, their role in the decision, and other parents' considerations in this context.</div></div><div><h3>Patient involvement</h3><div>To ensure that the intervention reflected parents' needs, we identified eight parents who had faced a tracheostomy decision for their child and were willing to talk about their experiences on a video recording. Half of the parents had chosen tracheostomy; some children of parents making either choice had died. We included parents of diverse racial backgrounds whose children had different diagnoses. Parent interviews, along with an explanation of SDM for parents, were edited into a 17-min video guided by iterative feedback from parents and clinicians. Additional parents of children with tracheostomies then viewed the video and shared perceptions about acceptability.</div></div><div><h3>Methods</h3><div>After an iterative process of developing the video in partnership with parents, we piloted the video with 18 parents in 16 online interviews (two were couples) who were not part of video development but had faced a tracheostomy decision for their child within the last three years. Participants were asked about their experiences, viewed the video, and provided verbal feedback and reflection on the acceptability of the video and its anticipated clinical use. Interviews were transcribed and qualitatively analyzed, focusing on feedback.</div></div><div><h3>Results</h3><div>Parents who viewed the video provided generally favorable feedback, describing the video as “helpful,” and appreciating the diversity of the cases represented and the perspectives offered. They felt that it could empower parents to ask questions and voice their opinions to the medical team. Parents noted feeling a connection to the emotions expressed by the parents in the video and felt it would help parents facing these decisions to feel less alone.</div></div><div><h3>Discussion/practical value</h3><div>Video education focusing on parents' perspectives may help support the SDM process for pediatric tracheostomy and complement other strategies to support parent engagement. Similar approaches may be valuable in explaining SDM to patients or families facing other serious decisions.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100412"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144534829","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-12-01Epub Date: 2025-06-27DOI: 10.1016/j.pecinn.2025.100416
Authors: Lana Kluit , Annechien Beumer , Coen A.M. van Bennekom , Angela G.E.M. de Boer , Astrid de Wind
Background
Clinical Work-Integrating Care (CWIC) brings important attention to issues emerging from the interrelationship between health and work. Yet, for various reasons, CWIC is not routinely delivered in clinical healthcare. This study focuses on why medical specialists do or do not provide CWIC, applying a reasoned action approach.
Objective
To examine the associations between attitude, perceived norm, and perceived behavioral control with the provision of CWIC.
Methods
A cross-sectional survey was distributed to Dutch medical specialists. Multivariable regression analysis was used to investigate the associations between attitude, perceived norm, and perceived behavioral control on the ability to provide CWIC with the frequency of actual CWIC provision.
Results
In total, 160 medical specialists completed the survey. The sample consisted of 12 surgical specialists (8 %), 113 non-surgical specialists (71 %), and 35 rehabilitation specialists (22 %). After adjustment for confounders, a favorable attitude was significantly associated with providing CWIC (p < .01), while perceived norm and perceived control were not (p = .74 and p = .85, respectively).
Conclusions
Medical specialists who expressed a favorable attitude towards addressing work during consultations were more likely to provide CWIC. Thus, addressing specialists' attitudes is an important element to implementing CWIC.
{"title":"The association between attitude, perceived norm, and perceived behavioral control with the provision of Clinical Work-Integrating Care: A reasoned action approach","authors":"Authors: Lana Kluit , Annechien Beumer , Coen A.M. van Bennekom , Angela G.E.M. de Boer , Astrid de Wind","doi":"10.1016/j.pecinn.2025.100416","DOIUrl":"10.1016/j.pecinn.2025.100416","url":null,"abstract":"<div><h3>Background</h3><div>Clinical Work-Integrating Care (CWIC) brings important attention to issues emerging from the interrelationship between health and work. Yet, for various reasons, CWIC is not routinely delivered in clinical healthcare. This study focuses on why medical specialists do or do not provide CWIC, applying a reasoned action approach.</div></div><div><h3>Objective</h3><div>To examine the associations between attitude, perceived norm, and perceived behavioral control with the provision of CWIC.</div></div><div><h3>Methods</h3><div>A cross-sectional survey was distributed to Dutch medical specialists. Multivariable regression analysis was used to investigate the associations between attitude, perceived norm, and perceived behavioral control on the ability to provide CWIC with the frequency of actual CWIC provision.</div></div><div><h3>Results</h3><div>In total, 160 medical specialists completed the survey. The sample consisted of 12 surgical specialists (8 %), 113 non-surgical specialists (71 %), and 35 rehabilitation specialists (22 %). After adjustment for confounders, a favorable attitude was significantly associated with providing CWIC (<em>p</em> < .01), while perceived norm and perceived control were not (<em>p</em> = .74 and <em>p</em> = .85, respectively).</div></div><div><h3>Conclusions</h3><div>Medical specialists who expressed a favorable attitude towards addressing work during consultations were more likely to provide CWIC. Thus, addressing specialists' attitudes is an important element to implementing CWIC.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100416"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144563783","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
YouTube short videos constitute a key informational resource for individuals at high risk of sexually transmitted infections (STIs). We conducted a quality assessment of short videos about syphilis intended for the general public in Japan.
Methods
In October 2024, a comprehensive sample of YouTube short videos on syphilis was retrieved using keywords frequently used to search for information on the disease. mDISCERN criteria were employed to assess the reliability of the information in the 72 videos selected for analysis. Reflexive thematic analysis was used to qualitatively examine misinformation embedded within the videos.
Results
The mean mDISCERN score of the videos was 2.0 (SD 0.9) and 80 % of the videos did not meet the reliability criteria. One in five videos potentially hindered audience engagement in health behaviors by inducing fear of the disease, reinforcing stigma and insensitivity toward high-risk individuals, and punitively portraying those infected. Some of these messages originated from healthcare professionals, indicating their potential role in reinforcing such biases.
Conclusion
YouTube short videos can support syphilis awareness and prevention, but difficulties with information reliability and lack of quality are common. Stigmatizing content may hinder health-seeking behaviors. Enhancing the quality and sensitivity of messages, particularly those from healthcare professionals, is essential to maximize their public health impact.
Innovation
This study is among the first to analyze YouTube short videos about STIs, combining qualitative and quantitative methods to assess misinformation.
{"title":"Hidden misinformation in YouTube short videos on syphilis: A mixed-methods study","authors":"Emi Furukawa , Tsuyoshi Okuhara , Shinya Ito , Ritsuko Shirabe , Hiroko Okada , Takahiro Kiuchi","doi":"10.1016/j.pecinn.2025.100428","DOIUrl":"10.1016/j.pecinn.2025.100428","url":null,"abstract":"<div><h3>Objective</h3><div>YouTube short videos constitute a key informational resource for individuals at high risk of sexually transmitted infections (STIs). We conducted a quality assessment of short videos about syphilis intended for the general public in Japan.</div></div><div><h3>Methods</h3><div>In October 2024, a comprehensive sample of YouTube short videos on syphilis was retrieved using keywords frequently used to search for information on the disease. mDISCERN criteria were employed to assess the reliability of the information in the 72 videos selected for analysis. Reflexive thematic analysis was used to qualitatively examine misinformation embedded within the videos.</div></div><div><h3>Results</h3><div>The mean mDISCERN score of the videos was 2.0 (SD 0.9) and 80 % of the videos did not meet the reliability criteria. One in five videos potentially hindered audience engagement in health behaviors by inducing fear of the disease, reinforcing stigma and insensitivity toward high-risk individuals, and punitively portraying those infected. Some of these messages originated from healthcare professionals, indicating their potential role in reinforcing such biases.</div></div><div><h3>Conclusion</h3><div>YouTube short videos can support syphilis awareness and prevention, but difficulties with information reliability and lack of quality are common. Stigmatizing content may hinder health-seeking behaviors. Enhancing the quality and sensitivity of messages, particularly those from healthcare professionals, is essential to maximize their public health impact.</div></div><div><h3>Innovation</h3><div>This study is among the first to analyze YouTube short videos about STIs, combining qualitative and quantitative methods to assess misinformation.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100428"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145018845","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-12-01Epub Date: 2025-07-08DOI: 10.1016/j.pecinn.2025.100419
Caitlin M. Prentice , Anna Aanesen , Amalie Kirkedelen Syverstad , Torun M. Vatne , Krister W. Fjermestad
Objective
This study examines parent-sibling communication during a manual-based group intervention (SIBS) that aims to improve communication quality and well-being for siblings of children with a chronic disorder diagnosis.
Methods
Audio recordings and transcripts of 20 parent-sibling conversations were analyzed using the manual-based tool Verona Coding Definition of Emotional Sequences (VR-CoDES). We measured siblings' negative expressions and parental responses, focusing on how parents applied the SIBS target behaviours of listening, exploring and validating responses.
Results
Siblings raised topics such as heritability of the chronic disorder, differential treatment, and instances of violence and temper tantrums. Siblings' negative expressions were 53 % cues (implicit expressions) and 47 % concerns (explicit expressions). Parents provided space in 74 % of the responses to cues and concerns, meaning they gave space for further disclosure. Within these responses, parents applied the SIBS target behaviours, including exploration (59 %), validation (33 %), and listening (8 %).
Conclusion
Parents mainly provided space and used a warm tone when responding to siblings in the SIBS sessions. Responses included a higher proportion of validation responses and a lower proportion of listening responses compared with previous studies.
Innovation
Parents and siblings of children with chronic disorders face unique challenges that can negatively impact the quality of parent-sibling communication and psychological adjustment in siblings. This study contributes new insight into how parents and siblings communicate in an intervention setting, and how characteristics of the intervention may influence the quality of this communication.
{"title":"Communication quality between parents and siblings of children with chronic disorders","authors":"Caitlin M. Prentice , Anna Aanesen , Amalie Kirkedelen Syverstad , Torun M. Vatne , Krister W. Fjermestad","doi":"10.1016/j.pecinn.2025.100419","DOIUrl":"10.1016/j.pecinn.2025.100419","url":null,"abstract":"<div><h3>Objective</h3><div>This study examines parent-sibling communication during a manual-based group intervention (SIBS) that aims to improve communication quality and well-being for siblings of children with a chronic disorder diagnosis.</div></div><div><h3>Methods</h3><div>Audio recordings and transcripts of 20 parent-sibling conversations were analyzed using the manual-based tool Verona Coding Definition of Emotional Sequences (VR-CoDES). We measured siblings' negative expressions and parental responses, focusing on how parents applied the SIBS target behaviours of listening, exploring and validating responses.</div></div><div><h3>Results</h3><div>Siblings raised topics such as heritability of the chronic disorder, differential treatment, and instances of violence and temper tantrums. Siblings' negative expressions were 53 % cues (implicit expressions) and 47 % concerns (explicit expressions). Parents provided space in 74 % of the responses to cues and concerns, meaning they gave space for further disclosure. Within these responses, parents applied the SIBS target behaviours, including exploration (59 %), validation (33 %), and listening (8 %).</div></div><div><h3>Conclusion</h3><div>Parents mainly provided space and used a warm tone when responding to siblings in the SIBS sessions. Responses included a higher proportion of validation responses and a lower proportion of listening responses compared with previous studies.</div></div><div><h3>Innovation</h3><div>Parents and siblings of children with chronic disorders face unique challenges that can negatively impact the quality of parent-sibling communication and psychological adjustment in siblings. This study contributes new insight into how parents and siblings communicate in an intervention setting, and how characteristics of the intervention may influence the quality of this communication.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100419"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144655730","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-12-01Epub Date: 2025-08-22DOI: 10.1016/j.pecinn.2025.100423
M.A. van Helvoort , K.J.A. van Dijsseldonk , B. Post
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Pub Date : 2025-12-01Epub Date: 2025-10-06DOI: 10.1016/j.pecinn.2025.100439
Fabio Guolo , Francesca Riccardi , Paola Del Sette , Cecilia Perrone , Paola Minetto , Andrea Todiere , Filippo Ballerini , Carola Riva , Michele Cea , Roberto Massimo Lemoli , Gabriella Biffa , Elena Sarcletti
Objectives
Patients with hematologic malignancies face a unique illness trajectory that contributes to high distress. Physician-patient communication can enhance well-being, therapeutic alliance, and adherence; however, its impact in hematology remains underexplored. We investigate the satisfaction of people with leukemia and lymphoma regarding the communication of healthcare providers and their perceived support, and their effects on distress.
Methods
In this cross-sectional, observational study, 54 individuals with leukemia and lymphoma completed a questionnaire assessing their perceived support, communication, and distress. We conducted correlation and regression analyses to assess how healthcare worker–patient communication and perceived support relate to distress.
Results
We found moderate to high distress in more than 60 % of patients. Main results revealed that distress was related to the perception of having received adequate information from healthcare providers, β = −0.20, p = .046, along with emotional, β = 0.66, p < .001, and practical problems, β = 0.28, p = .006.
Conclusions
Findings highlight healthcare providers' role in reducing distress by addressing patients' informational needs, underscoring the necessity of targeted communication training.
Innovation
This study pioneers evidence in hematology, demonstrating how patient-centered communication and tailored strategies effectively support patients' well-being in unpredictable trajectories.
目的血液学恶性肿瘤患者面临着独特的疾病轨迹,这导致了患者的高度焦虑。医患沟通可以提高幸福感、治疗联盟和依从性;然而,其对血液学的影响仍未得到充分探索。我们调查了白血病和淋巴瘤患者对医疗保健提供者的沟通和他们的感知支持的满意度,以及他们对痛苦的影响。方法在这项横断面观察性研究中,54名白血病和淋巴瘤患者完成了一份问卷,评估他们感知到的支持、沟通和痛苦。我们进行了相关和回归分析,以评估医护人员-患者沟通和感知支持如何与痛苦相关。结果我们发现60%以上的患者有中度到高度的痛苦。主要结果显示,痛苦与从医疗保健提供者那里获得足够信息的感觉有关,β = - 0.20, p = 0.046,以及情感问题,β = 0.66, p < 001,和实际问题,β = 0.28, p = 0.006。结论:研究结果强调了医疗保健提供者通过满足患者的信息需求来减少痛苦的作用,强调了有针对性的沟通培训的必要性。创新:这项研究在血液学领域开创了先机,展示了以患者为中心的沟通和量身定制的策略如何在不可预测的轨迹中有效地支持患者的健康。
{"title":"The protective role of HCWs communication for the distress of newly diagnosed people with leukemia and lymphoma","authors":"Fabio Guolo , Francesca Riccardi , Paola Del Sette , Cecilia Perrone , Paola Minetto , Andrea Todiere , Filippo Ballerini , Carola Riva , Michele Cea , Roberto Massimo Lemoli , Gabriella Biffa , Elena Sarcletti","doi":"10.1016/j.pecinn.2025.100439","DOIUrl":"10.1016/j.pecinn.2025.100439","url":null,"abstract":"<div><h3>Objectives</h3><div>Patients with hematologic malignancies face a unique illness trajectory that contributes to high distress. Physician-patient communication can enhance well-being, therapeutic alliance, and adherence; however, its impact in hematology remains underexplored. We investigate the satisfaction of people with leukemia and lymphoma regarding the communication of healthcare providers and their perceived support, and their effects on distress.</div></div><div><h3>Methods</h3><div>In this cross-sectional, observational study, 54 individuals with leukemia and lymphoma completed a questionnaire assessing their perceived support, communication, and distress. We conducted correlation and regression analyses to assess how healthcare worker–patient communication and perceived support relate to distress.</div></div><div><h3>Results</h3><div>We found moderate to high distress in more than 60 % of patients. Main results revealed that distress was related to the perception of having received adequate information from healthcare providers, <em>β</em> = −0.20, <em>p</em> = .046, along with emotional, <em>β</em> = 0.66, <em>p</em> < .001, and practical problems, <em>β</em> = 0.28, <em>p</em> = .006.</div></div><div><h3>Conclusions</h3><div>Findings highlight healthcare providers' role in reducing distress by addressing patients' informational needs, underscoring the necessity of targeted communication training.</div></div><div><h3>Innovation</h3><div>This study pioneers evidence in hematology, demonstrating how patient-centered communication and tailored strategies effectively support patients' well-being in unpredictable trajectories.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100439"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145265878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}