Pub Date : 2025-01-10DOI: 10.1016/j.pecinn.2025.100372
Alain D. Starke , Jutta Dierkes , Gülen Arslan Lied , Gloria A.B. Kasangu , Christoph Trattner
Objective
To develop a research agenda to investigate the effectiveness of AI-tailored advice to support healthier home cooking. It aims to support healthier food choice in the context of hypertension, allergies, and sustainable diets.
Methods
We describe an agenda that has been formed between 2019 and 2022, through multiple rejected grant applications to the Research Council of Norway. We focus on the case of tailored recipe advice for individuals, formulating research questions and methods for three topics: “Acceptance of Personalized Food Advice”, “Algorithm and Interface AI: App Development”, and “Nutrition Modeling & Clinical Trials”. The overall methodology focuses on mitigating health issues among individuals with hypertension.
Conclusion
The design of AI to support healthier home cooking should tap into computational principles, as well as (psychological) theories of behavioral change. The effectiveness of an AI-driven home cooking app can be evaluated in a clinical trial akin to ‘regular’ dietary intervention studies.
Innovation
The development of a research agenda requires an integrated effort between scientists from different domains, during both the development and writeup of ideas. The proposed project is innovative, as most food technology and AI approaches have yet to be tested in proper trials on changes in eating habits.
{"title":"Supporting healthier food choices through AI-tailored advice: A research agenda","authors":"Alain D. Starke , Jutta Dierkes , Gülen Arslan Lied , Gloria A.B. Kasangu , Christoph Trattner","doi":"10.1016/j.pecinn.2025.100372","DOIUrl":"10.1016/j.pecinn.2025.100372","url":null,"abstract":"<div><h3>Objective</h3><div>To develop a research agenda to investigate the effectiveness of AI-tailored advice to support healthier home cooking. It aims to support healthier food choice in the context of hypertension, allergies, and sustainable diets.</div></div><div><h3>Methods</h3><div>We describe an agenda that has been formed between 2019 and 2022, through multiple rejected grant applications to the Research Council of Norway. We focus on the case of tailored recipe advice for individuals, formulating research questions and methods for three topics: “Acceptance of Personalized Food Advice”, “Algorithm and Interface AI: App Development”, and “Nutrition Modeling & Clinical Trials”. The overall methodology focuses on mitigating health issues among individuals with hypertension.</div></div><div><h3>Conclusion</h3><div>The design of AI to support healthier home cooking should tap into computational principles, as well as (psychological) theories of behavioral change. The effectiveness of an AI-driven home cooking app can be evaluated in a clinical trial akin to ‘regular’ dietary intervention studies.</div></div><div><h3>Innovation</h3><div>The development of a research agenda requires an integrated effort between scientists from different domains, during both the development and writeup of ideas. The proposed project is innovative, as most food technology and AI approaches have yet to be tested in proper trials on changes in eating habits.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100372"},"PeriodicalIF":0.0,"publicationDate":"2025-01-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11786099/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143082501","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-12-29DOI: 10.1016/j.pecinn.2024.100367
Masahiko Kita
Objective
To evaluate the medical information available on the Web in Japanese to patients undergoing splenectomy.
Methods
Japanese websites on splenectomy were identified by conducting a search on two Internet search engines. Scales were used to score readability, quality, understandability, and actionability. Correlation coefficients for the scale scores were calculated.
Results
31 Japanese websites were included in the analysis. “The increased lifetime risk of infection post-splenectomy” and “the requirement to carry a patient card or another form of identification indicating post-splenectomy” was mentioned in 90.3 % (28/31) and 3.2 % (1/31) of websites, respectively. The mean (±standard deviation) grade on the Japanese Readability was 9.8 (±0.9). The actionability of 22 websites was less than 30 %. Positive correlations were found between readability and DISCERN scores (γ = 0.37; 95 % confidence interval [CI], 0.01 to 0.64, p < 0.05) and between content score and actionability (γ = 0.49; 95 %CI, 0.07 to 0.69, p < 0.05).
Conclusions
Japanese information on websites available to patients undergoing splenectomy was insufficient. The dissemination of information on specific infection prevention measures is needed but must be available at an appropriate readability level.
Innovation
Creating patient education materials using content score items may promote splenectomy patients coping infection prevention behaviors in Japan.
{"title":"Evaluation of information available on the web to patients undergoing splenectomy in Japan","authors":"Masahiko Kita","doi":"10.1016/j.pecinn.2024.100367","DOIUrl":"10.1016/j.pecinn.2024.100367","url":null,"abstract":"<div><h3>Objective</h3><div>To evaluate the medical information available on the Web in Japanese to patients undergoing splenectomy.</div></div><div><h3>Methods</h3><div>Japanese websites on splenectomy were identified by conducting a search on two Internet search engines. Scales were used to score readability, quality, understandability, and actionability. Correlation coefficients for the scale scores were calculated.</div></div><div><h3>Results</h3><div>31 Japanese websites were included in the analysis. “The increased lifetime risk of infection post-splenectomy” and “the requirement to carry a patient card or another form of identification indicating post-splenectomy” was mentioned in 90.3 % (28/31) and 3.2 % (1/31) of websites, respectively. The mean (±standard deviation) grade on the Japanese Readability was 9.8 (±0.9). The actionability of 22 websites was less than 30 %. Positive correlations were found between readability and DISCERN scores (<em>γ</em> = 0.37; 95 % confidence interval [CI], 0.01 to 0.64, <em>p</em> < 0.05) and between content score and actionability (<em>γ</em> = 0.49; 95 %CI, 0.07 to 0.69, <em>p</em> < 0.05).</div></div><div><h3>Conclusions</h3><div>Japanese information on websites available to patients undergoing splenectomy was insufficient. The dissemination of information on specific infection prevention measures is needed but must be available at an appropriate readability level.</div></div><div><h3>Innovation</h3><div>Creating patient education materials using content score items may promote splenectomy patients coping infection prevention behaviors in Japan.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100367"},"PeriodicalIF":0.0,"publicationDate":"2024-12-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143168606","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-12-28DOI: 10.1016/j.pecinn.2024.100371
Michelle A. Stage , Mackenzie M. Creamer , Mollie A. Ruben
In the rapidly evolving field of healthcare research, Artificial Intelligence (AI) and conversational models like ChatGPT (Conversational Generative Pre-trained Transformer) offer promising tools for data analysis. The aim of this study was to: 1) apply ChatGPT methodology alongside human coding to analyze qualitative health services feedback, and 2) examine healthcare experiences among lesbian, gay, bisexual, transgender, and queer (LGBTQ+) patients (N = 41) to inform future intervention. The hybrid approach facilitated the identification of themes related to affirming care practices, provider education, communicative challenges and successes, and environmental cues. While ChatGPT accelerated the coding process, human oversight remained crucial for ensuring data integrity and context accuracy. This hybrid method promises significant improvements in analyzing patient feedback, providing actionable insights that could enhance patient-provider interactions and care for diverse populations.
Innovation: This study is the first to combine ChatGPT with human coding for rapid thematic analysis of LGBTQ+ patient primary care experiences.
{"title":"“Having providers who are trained and have empathy is life-saving”: Improving primary care communication through thematic analysis with ChatGPT and human expertise","authors":"Michelle A. Stage , Mackenzie M. Creamer , Mollie A. Ruben","doi":"10.1016/j.pecinn.2024.100371","DOIUrl":"10.1016/j.pecinn.2024.100371","url":null,"abstract":"<div><div>In the rapidly evolving field of healthcare research, Artificial Intelligence (AI) and conversational models like ChatGPT (Conversational Generative Pre-trained Transformer) offer promising tools for data analysis. The aim of this study was to: 1) apply ChatGPT methodology alongside human coding to analyze qualitative health services feedback, and 2) examine healthcare experiences among lesbian, gay, bisexual, transgender, and queer (LGBTQ+) patients (<em>N</em> = 41) to inform future intervention. The hybrid approach facilitated the identification of themes related to affirming care practices, provider education, communicative challenges and successes, and environmental cues. While ChatGPT accelerated the coding process, human oversight remained crucial for ensuring data integrity and context accuracy. This hybrid method promises significant improvements in analyzing patient feedback, providing actionable insights that could enhance patient-provider interactions and care for diverse populations.</div><div>Innovation: This study is the first to combine ChatGPT with human coding for rapid thematic analysis of LGBTQ+ patient primary care experiences.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100371"},"PeriodicalIF":0.0,"publicationDate":"2024-12-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11758403/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143048962","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-12-26DOI: 10.1016/j.pecinn.2024.100369
Yvan Leanza , Noelia Burdeus-Domingo , Kossigan Kokou-Kpolou , François René De Cotret
Objective
In the context of the public health emergency response to the COVID-19 pandemic in Quebec in 2020, remote public service interpreting has become, within a few days, an essential practice for maintaining services to migrants and allophone refugees, a particularly vulnerable population. This study aimed to measure the impact of two training courses on remote collaboration for mediated consultations developed for healthcare workers and untrained interpreters.
Methods
A total of 79 healthcare workers and 65 untrained interpreters from the province of Quebec were recruited. They completed the trainings, offered as webinars, and answered the two scales (knowledge and self-efficacy) of the Questionnaire de connaissances sur l'interprétation de service publique à distance [Remote Public Service Interpreting Knowledge Questionnaire]. The study employed paired t-tests to assess the effectiveness of both webinars.
Results
Findings reveal a positive impact immediately after completion and at a three-month follow-up. However, there was no significant enhancement in interpreters' self-efficacy over the medium term.
Conclusion
Given their modality (remote) and duration (30 min for healthcare workers and three hours for interpreters), the training courses are both effective and practical to implement.
Innovation
This study innovatively promotes interprofessional collaboration in public service interpreting and explores online training's potential to enhance both individual and collective efficacy in the field.
{"title":"Training healthcare workers and untrained interpreters in remote collaboration amidst COVID-19","authors":"Yvan Leanza , Noelia Burdeus-Domingo , Kossigan Kokou-Kpolou , François René De Cotret","doi":"10.1016/j.pecinn.2024.100369","DOIUrl":"10.1016/j.pecinn.2024.100369","url":null,"abstract":"<div><h3>Objective</h3><div>In the context of the public health emergency response to the COVID-19 pandemic in Quebec in 2020, remote public service interpreting has become, within a few days, an essential practice for maintaining services to migrants and allophone refugees, a particularly vulnerable population. This study aimed to measure the impact of two training courses on remote collaboration for mediated consultations developed for healthcare workers and untrained interpreters.</div></div><div><h3>Methods</h3><div>A total of 79 healthcare workers and 65 untrained interpreters from the province of Quebec were recruited. They completed the trainings, offered as webinars, and answered the two scales (knowledge and self-efficacy) of the <em>Questionnaire de connaissances sur l'interprétation de service publique à distance</em> [Remote Public Service Interpreting Knowledge Questionnaire]. The study employed paired <em>t</em>-tests to assess the effectiveness of both webinars.</div></div><div><h3>Results</h3><div>Findings reveal a positive impact immediately after completion and at a three-month follow-up. However, there was no significant enhancement in interpreters' self-efficacy over the medium term.</div></div><div><h3>Conclusion</h3><div>Given their modality (remote) and duration (30 min for healthcare workers and three hours for interpreters), the training courses are both effective and practical to implement.</div></div><div><h3>Innovation</h3><div>This study innovatively promotes interprofessional collaboration in public service interpreting and explores online training's potential to enhance both individual and collective efficacy in the field.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100369"},"PeriodicalIF":0.0,"publicationDate":"2024-12-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11750570/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143025863","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-12-25DOI: 10.1016/j.pecinn.2024.100370
Carolyn R. Ahlers-Schmidt , Christy Schunn , Ashley M. Hervey , Maria Torres
Objectives
Safe Sleep Community Baby Showers (CBS) provide group education to reduce risk factors of sudden unexpected infant death (SUID). Based on CBS success, Safe Sleep Crib Clinics were developed to provide individual education. This study assessed Crib Clinic outcomes and differences in Crib Clinics compared to CBSs.
Methods
Certified Safe Sleep Instructors facilitated CBSs and/or Crib Clinics in their communities and collected participant data related to safe sleep, tobacco avoidance and breastfeeding. Crib Clinic data was compared pre- to post-test; post-test results were compared between Crib Clinics and CBSs.
Results
Crib Clinic attendees exhibited significant increases in intention to have infant follow safe sleep recommendations, avoid secondhand smoke and breastfeed (all p < 0.001). Significant differences between Crib Clinic and CBS participants related to marital status, language, tobacco, education and insurance (all p < 0.01). CBS and Crib Clinic participants differed on items related to sleep environment, breastfeeding and tobacco (all p = 0.05).
Conclusions
Overall Crib Clinics appear to be effective in increasing knowledge, intentions and confidence related to safe sleep, tobacco avoidance and breastfeeding. Crib Clinics may offer flexibility (e.g., time, format) that increases accessibility to safe sleep education for families.
Innovation
Results suggest the ability to shift education delivery method based on group size was important in both rural and urban settings.
{"title":"Safe sleep crib clinics: Promoting risk reduction strategies for sudden unexpected infant death","authors":"Carolyn R. Ahlers-Schmidt , Christy Schunn , Ashley M. Hervey , Maria Torres","doi":"10.1016/j.pecinn.2024.100370","DOIUrl":"10.1016/j.pecinn.2024.100370","url":null,"abstract":"<div><h3>Objectives</h3><div>Safe Sleep Community Baby Showers (CBS) provide group education to reduce risk factors of sudden unexpected infant death (SUID). Based on CBS success, Safe Sleep Crib Clinics were developed to provide individual education. This study assessed Crib Clinic outcomes and differences in Crib Clinics compared to CBSs.</div></div><div><h3>Methods</h3><div>Certified Safe Sleep Instructors facilitated CBSs and/or Crib Clinics in their communities and collected participant data related to safe sleep, tobacco avoidance and breastfeeding. Crib Clinic data was compared pre- to post-test; post-test results were compared between Crib Clinics and CBSs.</div></div><div><h3>Results</h3><div>Crib Clinic attendees exhibited significant increases in intention to have infant follow safe sleep recommendations, avoid secondhand smoke and breastfeed (all <em>p</em> < 0.001). Significant differences between Crib Clinic and CBS participants related to marital status, language, tobacco, education and insurance (all <em>p</em> < 0.01). CBS and Crib Clinic participants differed on items related to sleep environment, breastfeeding and tobacco (all <em>p</em> = 0.05).</div></div><div><h3>Conclusions</h3><div>Overall Crib Clinics appear to be effective in increasing knowledge, intentions and confidence related to safe sleep, tobacco avoidance and breastfeeding. Crib Clinics may offer flexibility (e.g., time, format) that increases accessibility to safe sleep education for families.</div></div><div><h3>Innovation</h3><div>Results suggest the ability to shift education delivery method based on group size was important in both rural and urban settings.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100370"},"PeriodicalIF":0.0,"publicationDate":"2024-12-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11750555/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143025858","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-12-25DOI: 10.1016/j.pecinn.2024.100366
Rose L. Molina , Kasey Bellegarde , Meghan Long , Maria Bazan , Rachel Moyal-Smith , Ami Karlage , Karen Schoenherr , Lauren Spigel , Amanda DiMeo , Yessamin Pazos Herencia , Saugata Chakraborty , Jeanne-Marie Guise , Asaf Bitton
Background
Engaging patients in quality improvement and innovation projects is increasingly important, yet challenges persist with involving patients who speak languages other than English. This article presents design activities our team used to engage Spanish-speaking patients and cultural brokers.
Objective
To develop a clinician communication tool to enhance patient trust in pregnancy care clinicians, especially among minoritized populations who face language and cultural barriers, using human-centered design (HCD).
Patient involvement and innovation
We centered end-user experiences, including clinicians, Spanish-speaking patients, and Spanish-speaking cultural brokers, in our design process through multiple feedback sessions and modalities.
Methods
We used a HCD process to understand the problem, co-design a tool, and prepare for testing of a clinician tool. Design activities included a critical literature review, user interviews, design principles, solution sketching, rapid cycle feedback with subject matter experts, and field experience with pregnancy clinicians.
Results
We innovated on a widely used clinical communication tool, the Four Habits Model, and developed the Five Habits for Pregnancy Care to support pregnancy care clinicians in building trust by bridging cultural and language differences. We added an equity-focused habit “Pause and Reflect” to bookend the Four Habits. We refined the tool to meet different needs across pregnancy care visits based on feedback from 7 clinicians.
Discussion
We applied equity principles in a HCD process to understand a problem, co-design a tool, and prepare for testing by engaging with patients and cultural brokers in Spanish. Balancing the differing approaches for designers and researchers yielded important insights for enhancing equitable processes and outcomes in healthcare improvement.
Practical value
Communication tools designed with and for minoritized populations are critical for improving trust in all patient-clinician dyads during pregnancy care.
{"title":"Leveraging human centered design to enhance clinician communication during pregnancy care: Overcoming language barriers with Spanish-speaking patients","authors":"Rose L. Molina , Kasey Bellegarde , Meghan Long , Maria Bazan , Rachel Moyal-Smith , Ami Karlage , Karen Schoenherr , Lauren Spigel , Amanda DiMeo , Yessamin Pazos Herencia , Saugata Chakraborty , Jeanne-Marie Guise , Asaf Bitton","doi":"10.1016/j.pecinn.2024.100366","DOIUrl":"10.1016/j.pecinn.2024.100366","url":null,"abstract":"<div><h3>Background</h3><div>Engaging patients in quality improvement and innovation projects is increasingly important, yet challenges persist with involving patients who speak languages other than English. This article presents design activities our team used to engage Spanish-speaking patients and cultural brokers.</div></div><div><h3>Objective</h3><div>To develop a clinician communication tool to enhance patient trust in pregnancy care clinicians, especially among minoritized populations who face language and cultural barriers, using human-centered design (HCD).</div></div><div><h3>Patient involvement and innovation</h3><div>We centered end-user experiences, including clinicians, Spanish-speaking patients, and Spanish-speaking cultural brokers, in our design process through multiple feedback sessions and modalities.</div></div><div><h3>Methods</h3><div>We used a HCD process to understand the problem, co-design a tool, and prepare for testing of a clinician tool. Design activities included a critical literature review, user interviews, design principles, solution sketching, rapid cycle feedback with subject matter experts, and field experience with pregnancy clinicians.</div></div><div><h3>Results</h3><div>We innovated on a widely used clinical communication tool, the Four Habits Model, and developed the Five Habits for Pregnancy Care to support pregnancy care clinicians in building trust by bridging cultural and language differences. We added an equity-focused habit “Pause and Reflect” to bookend the Four Habits. We refined the tool to meet different needs across pregnancy care visits based on feedback from 7 clinicians.</div></div><div><h3>Discussion</h3><div>We applied equity principles in a HCD process to understand a problem, co-design a tool, and prepare for testing by engaging with patients and cultural brokers in Spanish. Balancing the differing approaches for designers and researchers yielded important insights for enhancing equitable processes and outcomes in healthcare improvement.</div></div><div><h3>Practical value</h3><div>Communication tools designed with and for minoritized populations are critical for improving trust in all patient-clinician dyads during pregnancy care.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100366"},"PeriodicalIF":0.0,"publicationDate":"2024-12-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11750560/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143025852","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-12-24DOI: 10.1016/j.pecinn.2024.100368
Emily J. Tetzlaff , Kristina-Marie T. Janetos , Katie E. Wagar , Farah Mourad , Melissa Gorman , Victor Gallant , Glen P. Kenny
Objectives
Heat-health communication initiatives are a key public health protection strategy. Therefore, understanding the potential challenges that all Canadians and specific groups, such as those facing literacy barriers and non-native language speakers, may experience in accessing or interpreting information, is critical.
Methods
This study reviewed and evaluated the language availability, readability, suitability, and comprehensibility of heat-related webpages and online resources (n = 417) published on public health authority websites in Canada (n = 73). Six validated readability scales and a comprehensibility instrument were used.
Results
Most content was presented in English (90 %); however, only 7 % of the online resources were available in more than one language. The average reading grade level of the content (grade 8) exceeded the recommended level (grade 6), and only 22 % of the content was deemed superior for suitability and comprehensibility.
Conclusions
Our study evaluating web-based materials about extreme heat published by Canadian health authorities provides evidence that the current language availability, readability, suitability, and comprehensibility may be limiting the capacity for members of the public to discern key messaging.
Innovation
To ensure all Canadians can access and interpret information related to heat-health protection, public health authorities may consider translating their materials into additional languages and incorporating a readability evaluation to improve public understanding.
{"title":"Assessing the language availability, readability, suitability and comprehensibility of heat-health messaging content on health authority webpages and online resources in Canada","authors":"Emily J. Tetzlaff , Kristina-Marie T. Janetos , Katie E. Wagar , Farah Mourad , Melissa Gorman , Victor Gallant , Glen P. Kenny","doi":"10.1016/j.pecinn.2024.100368","DOIUrl":"10.1016/j.pecinn.2024.100368","url":null,"abstract":"<div><h3>Objectives</h3><div>Heat-health communication initiatives are a key public health protection strategy. Therefore, understanding the potential challenges that all Canadians and specific groups, such as those facing literacy barriers and non-native language speakers, may experience in accessing or interpreting information, is critical.</div></div><div><h3>Methods</h3><div>This study reviewed and evaluated the language availability, readability, suitability, and comprehensibility of heat-related webpages and online resources (<em>n</em> = 417) published on public health authority websites in Canada (<em>n</em> = 73). Six validated readability scales and a comprehensibility instrument were used.</div></div><div><h3>Results</h3><div>Most content was presented in English (90 %); however, only 7 % of the online resources were available in more than one language. The average reading grade level of the content (grade 8) exceeded the recommended level (grade 6), and only 22 % of the content was deemed superior for suitability and comprehensibility.</div></div><div><h3>Conclusions</h3><div>Our study evaluating web-based materials about extreme heat published by Canadian health authorities provides evidence that the current language availability, readability, suitability, and comprehensibility may be limiting the capacity for members of the public to discern key messaging.</div></div><div><h3>Innovation</h3><div>To ensure all Canadians can access and interpret information related to heat-health protection, public health authorities may consider translating their materials into additional languages and incorporating a readability evaluation to improve public understanding.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100368"},"PeriodicalIF":0.0,"publicationDate":"2024-12-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11786110/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143082499","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-12-20DOI: 10.1016/j.pecinn.2024.100365
Jacqueline M. Wilson , Oyinda Obigbesan , Elena Lopatina , Karen M. Benzies
Objective
To compare direct, non-medical out-of-pocket expenditures (OOPE) between mothers receiving Alberta Family Integrated Care (FICare™) versus standard care (SC) during their infant's neonatal intensive care unit (NICU) admission and explore factors influencing spending extremes.
Methods
In this exploratory, concurrent mixed-methods sub-study, we compared mother-reported OOPE from Alberta FICare™ and SC parent journals. We thematically analyzed hand-written notes from 30 journals with the highest and lowest 5 % of OOPE.
Results
There was no difference in total direct, non-medical OOPE between Alberta FICare™ (n = 194) and SC (n = 132) groups (U = 12,679.50, p = 0.882). Compared to mothers receiving SC, mothers receiving Alberta FICare™ reported spending less for parking (U = 970.00, p < 0.001) and more for food (U = 14,857.50, p = 0.014) and lodging (U = 15,160.00, p < 0.001). Spending extremes related to travel and proximity of the NICU to their home.
Conclusion
Total family financial burden was similar between groups; there were differences in spending categories. Supports to offset OOPE, particularly for families living distant to the NICU or facing transportation challenges, would reduce financial burden and could enhance family-integrated care.
Innovation
This novel analysis describes mother-reported OOPEs and strategies to mitigate financial barriers to family integrated care.
目的:比较接受艾伯塔省家庭综合护理(FICare™)与标准护理(SC)的母亲在婴儿入住新生儿重症监护病房(NICU)期间的直接非医疗自付费用(OOPE),并探讨影响极端支出的因素。方法:在这个探索性的、并行的混合方法子研究中,我们比较了Alberta FICare™和SC家长期刊中母亲报告的OOPE。我们对30种期刊的手写笔记进行了主题分析,这些期刊的OOPE最高和最低的5%。结果:Alberta FICare™(n = 194)组与SC (n = 132)组直接非医疗OOPE总发生率无差异(U = 12,679.50, p = 0.882)。与接受SC的母亲相比,接受Alberta FICare™的母亲在停车(U = 970.00, p U = 14,857.50, p = 0.014)和住宿(U = 15,160.00, p)方面的支出更少;在消费类别上存在差异。支持抵消OOPE,特别是对居住在离新生儿重症监护室很远或面临交通挑战的家庭,将减轻经济负担,并可以加强家庭综合护理。创新:这一新颖的分析描述了母亲报告的oops和策略,以减轻家庭综合护理的经济障碍。
{"title":"Direct, non-medical out-of-pocket expenditures for mothers of moderate or late preterm infants in a level II NICU: Comparison of Alberta Family Integrated Care versus standard care","authors":"Jacqueline M. Wilson , Oyinda Obigbesan , Elena Lopatina , Karen M. Benzies","doi":"10.1016/j.pecinn.2024.100365","DOIUrl":"10.1016/j.pecinn.2024.100365","url":null,"abstract":"<div><h3>Objective</h3><div>To compare direct, non-medical out-of-pocket expenditures (OOPE) between mothers receiving Alberta Family Integrated Care (FICare™) versus standard care (SC) during their infant's neonatal intensive care unit (NICU) admission and explore factors influencing spending extremes.</div></div><div><h3>Methods</h3><div>In this exploratory, concurrent mixed-methods sub-study, we compared mother-reported OOPE from Alberta FICare™ and SC parent journals. We thematically analyzed hand-written notes from 30 journals with the highest and lowest 5 % of OOPE.</div></div><div><h3>Results</h3><div>There was no difference in total direct, non-medical OOPE between Alberta FICare™ (<em>n</em> = 194) and SC (<em>n</em> = 132) groups (<em>U</em> = 12,679.50, <em>p</em> = 0.882). Compared to mothers receiving SC, mothers receiving Alberta FICare™ reported spending less for parking (<em>U</em> = 970.00, <em>p</em> < 0.001) and more for food (<em>U</em> = 14,857.50, <em>p =</em> 0.014) and lodging (<em>U</em> = 15,160.00, <em>p</em> < 0.001). Spending extremes related to travel and proximity of the NICU to their home.</div></div><div><h3>Conclusion</h3><div>Total family financial burden was similar between groups; there were differences in spending categories. Supports to offset OOPE, particularly for families living distant to the NICU or facing transportation challenges, would reduce financial burden and could enhance family-integrated care.</div></div><div><h3>Innovation</h3><div>This novel analysis describes mother-reported OOPEs and strategies to mitigate financial barriers to family integrated care.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100365"},"PeriodicalIF":0.0,"publicationDate":"2024-12-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11732068/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142985709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Culturally appropriate educational materials are necessary to improve health literacy among Indigenous populations. However, practically no such materials have been cross-culturally adapted and validated for Indigenous peoples based on compliance with efficacy components.
Objective
To perform a cross-cultural adaptation and validation of audiovisual educational materials for adult patients with rheumatoid arthritis belonging to Indigenous communities in Chiapas, Mexico.
Methods
Mixed-methods study consisting of three phases: 1) Spanish–Tzotzil translation and cross-cultural adaptation of seven previously designed and validated audiovisual educational materials; 2) qualitative validation; and 3) quantitative validation based on the efficacy components (attraction, understanding, induction to action, involvement, and acceptance). The information collected during the validation phases was recorded and transcribed for content analysis.
Results
A total of 31 patients with rheumatoid arthritis participated in the study. Patients had a mean age of 49 years, ≥5 years since disease onset, low adherence to pharmacological treatment (<20%), and a high level of illiteracy (>80%). After three versions of the educational material, where elements of cultural identification were added, the efficacy components increased significantly to reach scores higher than 90%. This suggests that culturally-adapted materials could promote greater patient participation in treatment.
Conclusion
This study shows the importance of cross-cultural adaptation in the design and validation of audiovisual educational materials for Indigenous populations; this aspect should be considered when implementing educational strategies for patients with chronic diseases.
Innovation
First educational audiovisual material translated and adapted from Spanish to Tzotzil, with a cultural sensitivity approach to achieve educational goals and improve therapeutic adherence.
{"title":"Cross cultural adaptation and validation of audiovisual educational material for use in indigenous patients with rheumatoid arthritis","authors":"Joana Aguilar-Castillo , Ingris Peláez-Ballestas , José-Luis Montiel-Hernández , Cairo Toledano-Jaimes , Mario-Alberto Garza-Elizondo , David Zepeda-González , Diana-Lizbeth Gómez-Galicia","doi":"10.1016/j.pecinn.2024.100363","DOIUrl":"10.1016/j.pecinn.2024.100363","url":null,"abstract":"<div><h3>Background</h3><div>Culturally appropriate educational materials are necessary to improve health literacy among Indigenous populations. However, practically no such materials have been cross-culturally adapted and validated for Indigenous peoples based on compliance with efficacy components.</div></div><div><h3>Objective</h3><div>To perform a cross-cultural adaptation and validation of audiovisual educational materials for adult patients with rheumatoid arthritis belonging to Indigenous communities in Chiapas, Mexico.</div></div><div><h3>Methods</h3><div>Mixed-methods study consisting of three phases: 1) Spanish–Tzotzil translation and cross-cultural adaptation of seven previously designed and validated audiovisual educational materials; 2) qualitative validation; and 3) quantitative validation based on the efficacy components (attraction, understanding, induction to action, involvement, and acceptance). The information collected during the validation phases was recorded and transcribed for content analysis.</div></div><div><h3>Results</h3><div>A total of 31 patients with rheumatoid arthritis participated in the study. Patients had a mean age of 49 years, ≥5 years since disease onset, low adherence to pharmacological treatment (<20%), and a high level of illiteracy (>80%). After three versions of the educational material, where elements of cultural identification were added, the efficacy components increased significantly to reach scores higher than 90%. This suggests that culturally-adapted materials could promote greater patient participation in treatment.</div></div><div><h3>Conclusion</h3><div>This study shows the importance of cross-cultural adaptation in the design and validation of audiovisual educational materials for Indigenous populations; this aspect should be considered when implementing educational strategies for patients with chronic diseases.</div></div><div><h3>Innovation</h3><div>First educational audiovisual material translated and adapted from Spanish to Tzotzil, with a cultural sensitivity approach to achieve educational goals and improve therapeutic adherence.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100363"},"PeriodicalIF":0.0,"publicationDate":"2024-12-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11732553/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142985696","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-12-18DOI: 10.1016/j.pecinn.2024.100364
Joseph W. Lanario , Drew Davies , Lucy Cartwright , Michael E. Hyland , Matthew Masoli
Objective
To assess the feasibility and acceptability of adapting a psychoeducation course (Body Reprogramming) for severe asthma and finding suggestions for improvement.
Methods
Severe asthma patients were recruited from a single centre and enrolled in an online group-based course. Each course consisted of four sessions: introduction to BR, stress, exercise, and diet. Participants were asked to complete questionnaires assessing HRQoL, mood, asthma and extra-pulmonary symptoms, pre/post course. Those who attended two or more sessions were invited to provide feedback in interviews.
Results
Twenty-eight participants took part in one of the five courses. Thirteen (46 %) attended all four sessions and were sent post-course questionnaires, eight participants (62 %) returned them. Twelve participants provided post course feedback, Themes included: The course as a time to reflect, Appreciation of the group-format, Impact of pre-existing knowledge on enjoyment of the course and Areas of improvement. Maintaining course size, clarification of the course aims and methods were identified as areas of improvement by participants.
Conclusion
An educational course focused on managing extra-pulmonary symptoms is feasible and of perceived benefit to patients with severe asthma.
Innovation
BR could be incorporated into a rehab programme for patients with severe asthma with significant extrapulmonary symptoms.
{"title":"A lifestyle educational course as an adjunct to biologic administration in patients with severe asthma: A feasibility study","authors":"Joseph W. Lanario , Drew Davies , Lucy Cartwright , Michael E. Hyland , Matthew Masoli","doi":"10.1016/j.pecinn.2024.100364","DOIUrl":"10.1016/j.pecinn.2024.100364","url":null,"abstract":"<div><h3>Objective</h3><div>To assess the feasibility and acceptability of adapting a psychoeducation course (Body Reprogramming) for severe asthma and finding suggestions for improvement.</div></div><div><h3>Methods</h3><div>Severe asthma patients were recruited from a single centre and enrolled in an online group-based course. Each course consisted of four sessions: introduction to BR, stress, exercise, and diet. Participants were asked to complete questionnaires assessing HRQoL, mood, asthma and extra-pulmonary symptoms, pre/post course. Those who attended two or more sessions were invited to provide feedback in interviews.</div></div><div><h3>Results</h3><div>Twenty-eight participants took part in one of the five courses. Thirteen (46 %) attended all four sessions and were sent post-course questionnaires, eight participants (62 %) returned them. Twelve participants provided post course feedback, Themes included: The course as a time to reflect, Appreciation of the group-format, Impact of pre-existing knowledge on enjoyment of the course and Areas of improvement. Maintaining course size, clarification of the course aims and methods were identified as areas of improvement by participants.</div></div><div><h3>Conclusion</h3><div>An educational course focused on managing extra-pulmonary symptoms is feasible and of perceived benefit to patients with severe asthma.</div></div><div><h3>Innovation</h3><div>BR could be incorporated into a rehab programme for patients with severe asthma with significant extrapulmonary symptoms.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100364"},"PeriodicalIF":0.0,"publicationDate":"2024-12-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11733048/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143017461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}