PEC innovation最新文献

{"title":"Leveraging human centered design to enhance clinician communication during pregnancy care: Overcoming language barriers with Spanish-speaking patients","authors":"Rose L. Molina ,&nbsp;Kasey Bellegarde ,&nbsp;Meghan Long ,&nbsp;Maria Bazan ,&nbsp;Rachel Moyal-Smith ,&nbsp;Ami Karlage ,&nbsp;Karen Schoenherr ,&nbsp;Lauren Spigel ,&nbsp;Amanda DiMeo ,&nbsp;Yessamin Pazos Herencia ,&nbsp;Saugata Chakraborty ,&nbsp;Jeanne-Marie Guise ,&nbsp;Asaf Bitton","doi":"10.1016/j.pecinn.2024.100366","DOIUrl":"10.1016/j.pecinn.2024.100366","url":null,"abstract":"<div><h3>Background</h3><div>Engaging patients in quality improvement and innovation projects is increasingly important, yet challenges persist with involving patients who speak languages other than English. This article presents design activities our team used to engage Spanish-speaking patients and cultural brokers.</div></div><div><h3>Objective</h3><div>To develop a clinician communication tool to enhance patient trust in pregnancy care clinicians, especially among minoritized populations who face language and cultural barriers, using human-centered design (HCD).</div></div><div><h3>Patient involvement and innovation</h3><div>We centered end-user experiences, including clinicians, Spanish-speaking patients, and Spanish-speaking cultural brokers, in our design process through multiple feedback sessions and modalities.</div></div><div><h3>Methods</h3><div>We used a HCD process to understand the problem, co-design a tool, and prepare for testing of a clinician tool. Design activities included a critical literature review, user interviews, design principles, solution sketching, rapid cycle feedback with subject matter experts, and field experience with pregnancy clinicians.</div></div><div><h3>Results</h3><div>We innovated on a widely used clinical communication tool, the Four Habits Model, and developed the Five Habits for Pregnancy Care to support pregnancy care clinicians in building trust by bridging cultural and language differences. We added an equity-focused habit “Pause and Reflect” to bookend the Four Habits. We refined the tool to meet different needs across pregnancy care visits based on feedback from 7 clinicians.</div></div><div><h3>Discussion</h3><div>We applied equity principles in a HCD process to understand a problem, co-design a tool, and prepare for testing by engaging with patients and cultural brokers in Spanish. Balancing the differing approaches for designers and researchers yielded important insights for enhancing equitable processes and outcomes in healthcare improvement.</div></div><div><h3>Practical value</h3><div>Communication tools designed with and for minoritized populations are critical for improving trust in all patient-clinician dyads during pregnancy care.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100366"},"PeriodicalIF":0.0,"publicationDate":"2024-12-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11750560/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143025852","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Assessing the language availability, readability, suitability and comprehensibility of heat-health messaging content on health authority webpages and online resources in Canada","authors":"Emily J. Tetzlaff ,&nbsp;Kristina-Marie T. Janetos ,&nbsp;Katie E. Wagar ,&nbsp;Farah Mourad ,&nbsp;Melissa Gorman ,&nbsp;Victor Gallant ,&nbsp;Glen P. Kenny","doi":"10.1016/j.pecinn.2024.100368","DOIUrl":"10.1016/j.pecinn.2024.100368","url":null,"abstract":"<div><h3>Objectives</h3><div>Heat-health communication initiatives are a key public health protection strategy. Therefore, understanding the potential challenges that all Canadians and specific groups, such as those facing literacy barriers and non-native language speakers, may experience in accessing or interpreting information, is critical.</div></div><div><h3>Methods</h3><div>This study reviewed and evaluated the language availability, readability, suitability, and comprehensibility of heat-related webpages and online resources (<em>n</em> = 417) published on public health authority websites in Canada (<em>n</em> = 73). Six validated readability scales and a comprehensibility instrument were used.</div></div><div><h3>Results</h3><div>Most content was presented in English (90 %); however, only 7 % of the online resources were available in more than one language. The average reading grade level of the content (grade 8) exceeded the recommended level (grade 6), and only 22 % of the content was deemed superior for suitability and comprehensibility.</div></div><div><h3>Conclusions</h3><div>Our study evaluating web-based materials about extreme heat published by Canadian health authorities provides evidence that the current language availability, readability, suitability, and comprehensibility may be limiting the capacity for members of the public to discern key messaging.</div></div><div><h3>Innovation</h3><div>To ensure all Canadians can access and interpret information related to heat-health protection, public health authorities may consider translating their materials into additional languages and incorporating a readability evaluation to improve public understanding.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100368"},"PeriodicalIF":0.0,"publicationDate":"2024-12-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11786110/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143082499","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Direct, non-medical out-of-pocket expenditures for mothers of moderate or late preterm infants in a level II NICU: Comparison of Alberta Family Integrated Care versus standard care","authors":"Jacqueline M. Wilson ,&nbsp;Oyinda Obigbesan ,&nbsp;Elena Lopatina ,&nbsp;Karen M. Benzies","doi":"10.1016/j.pecinn.2024.100365","DOIUrl":"10.1016/j.pecinn.2024.100365","url":null,"abstract":"<div><h3>Objective</h3><div>To compare direct, non-medical out-of-pocket expenditures (OOPE) between mothers receiving Alberta Family Integrated Care (FICare™) versus standard care (SC) during their infant's neonatal intensive care unit (NICU) admission and explore factors influencing spending extremes.</div></div><div><h3>Methods</h3><div>In this exploratory, concurrent mixed-methods sub-study, we compared mother-reported OOPE from Alberta FICare™ and SC parent journals. We thematically analyzed hand-written notes from 30 journals with the highest and lowest 5 % of OOPE.</div></div><div><h3>Results</h3><div>There was no difference in total direct, non-medical OOPE between Alberta FICare™ (<em>n</em> = 194) and SC (<em>n</em> = 132) groups (<em>U</em> = 12,679.50, <em>p</em> = 0.882). Compared to mothers receiving SC, mothers receiving Alberta FICare™ reported spending less for parking (<em>U</em> = 970.00, <em>p</em> &lt; 0.001) and more for food (<em>U</em> = 14,857.50, <em>p =</em> 0.014) and lodging (<em>U</em> = 15,160.00, <em>p</em> &lt; 0.001). Spending extremes related to travel and proximity of the NICU to their home.</div></div><div><h3>Conclusion</h3><div>Total family financial burden was similar between groups; there were differences in spending categories. Supports to offset OOPE, particularly for families living distant to the NICU or facing transportation challenges, would reduce financial burden and could enhance family-integrated care.</div></div><div><h3>Innovation</h3><div>This novel analysis describes mother-reported OOPEs and strategies to mitigate financial barriers to family integrated care.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100365"},"PeriodicalIF":0.0,"publicationDate":"2024-12-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11732068/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142985709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cross cultural adaptation and validation of audiovisual educational material for use in indigenous patients with rheumatoid arthritis","authors":"Joana Aguilar-Castillo ,&nbsp;Ingris Peláez-Ballestas ,&nbsp;José-Luis Montiel-Hernández ,&nbsp;Cairo Toledano-Jaimes ,&nbsp;Mario-Alberto Garza-Elizondo ,&nbsp;David Zepeda-González ,&nbsp;Diana-Lizbeth Gómez-Galicia","doi":"10.1016/j.pecinn.2024.100363","DOIUrl":"10.1016/j.pecinn.2024.100363","url":null,"abstract":"<div><h3>Background</h3><div>Culturally appropriate educational materials are necessary to improve health literacy among Indigenous populations. However, practically no such materials have been cross-culturally adapted and validated for Indigenous peoples based on compliance with efficacy components.</div></div><div><h3>Objective</h3><div>To perform a cross-cultural adaptation and validation of audiovisual educational materials for adult patients with rheumatoid arthritis belonging to Indigenous communities in Chiapas, Mexico.</div></div><div><h3>Methods</h3><div>Mixed-methods study consisting of three phases: 1) Spanish–Tzotzil translation and cross-cultural adaptation of seven previously designed and validated audiovisual educational materials; 2) qualitative validation; and 3) quantitative validation based on the efficacy components (attraction, understanding, induction to action, involvement, and acceptance). The information collected during the validation phases was recorded and transcribed for content analysis.</div></div><div><h3>Results</h3><div>A total of 31 patients with rheumatoid arthritis participated in the study. Patients had a mean age of 49 years, ≥5 years since disease onset, low adherence to pharmacological treatment (&lt;20%), and a high level of illiteracy (&gt;80%). After three versions of the educational material, where elements of cultural identification were added, the efficacy components increased significantly to reach scores higher than 90%. This suggests that culturally-adapted materials could promote greater patient participation in treatment.</div></div><div><h3>Conclusion</h3><div>This study shows the importance of cross-cultural adaptation in the design and validation of audiovisual educational materials for Indigenous populations; this aspect should be considered when implementing educational strategies for patients with chronic diseases.</div></div><div><h3>Innovation</h3><div>First educational audiovisual material translated and adapted from Spanish to Tzotzil, with a cultural sensitivity approach to achieve educational goals and improve therapeutic adherence.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100363"},"PeriodicalIF":0.0,"publicationDate":"2024-12-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11732553/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142985696","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A lifestyle educational course as an adjunct to biologic administration in patients with severe asthma: A feasibility study","authors":"Joseph W. Lanario ,&nbsp;Drew Davies ,&nbsp;Lucy Cartwright ,&nbsp;Michael E. Hyland ,&nbsp;Matthew Masoli","doi":"10.1016/j.pecinn.2024.100364","DOIUrl":"10.1016/j.pecinn.2024.100364","url":null,"abstract":"<div><h3>Objective</h3><div>To assess the feasibility and acceptability of adapting a psychoeducation course (Body Reprogramming) for severe asthma and finding suggestions for improvement.</div></div><div><h3>Methods</h3><div>Severe asthma patients were recruited from a single centre and enrolled in an online group-based course. Each course consisted of four sessions: introduction to BR, stress, exercise, and diet. Participants were asked to complete questionnaires assessing HRQoL, mood, asthma and extra-pulmonary symptoms, pre/post course. Those who attended two or more sessions were invited to provide feedback in interviews.</div></div><div><h3>Results</h3><div>Twenty-eight participants took part in one of the five courses. Thirteen (46 %) attended all four sessions and were sent post-course questionnaires, eight participants (62 %) returned them. Twelve participants provided post course feedback, Themes included: The course as a time to reflect, Appreciation of the group-format, Impact of pre-existing knowledge on enjoyment of the course and Areas of improvement. Maintaining course size, clarification of the course aims and methods were identified as areas of improvement by participants.</div></div><div><h3>Conclusion</h3><div>An educational course focused on managing extra-pulmonary symptoms is feasible and of perceived benefit to patients with severe asthma.</div></div><div><h3>Innovation</h3><div>BR could be incorporated into a rehab programme for patients with severe asthma with significant extrapulmonary symptoms.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100364"},"PeriodicalIF":0.0,"publicationDate":"2024-12-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11733048/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143017461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Taking a step back: Parents' experiences of the decision-making process for elective orthognathic surgery in cleft lip and palate (IPA)","authors":"Jana Safarikova ,&nbsp;Eliane Young ,&nbsp;Kiki Mastroyannopoulou ,&nbsp;Paul Fisher","doi":"10.1016/j.pecinn.2024.100362","DOIUrl":"10.1016/j.pecinn.2024.100362","url":null,"abstract":"<div><h3>Objective</h3><div>This study explored parents' experiences of the transition of responsibility to their child for healthcare decisions relating to their cleft lip and/or palate (CL/P).</div></div><div><h3>Methods</h3><div>Online semi-structured interviews were conducted with 11 participants (six females and five males, aged 41 to 60 years). They were parents of young people who had decided whether to undergo orthognathic surgery. The data were transcribed and analysed using interpretative phenomenological analysis (IPA).</div></div><div><h3>Results</h3><div>A responsibility shift from participants to their children was identified in 2 main themes ‘A natural process <em>(or not)</em>’ and ‘It has to be their decision’.</div></div><div><h3>Conclusion</h3><div>The process of shifting responsibility for decision-making to the child comprised a spectrum of experiences from a relief to a shock and upset. Participants went through sometimes difficult negotiating of their ongoing involvement while supporting their child.</div></div><div><h3>Innovation</h3><div>The importance of addressing psychological aspects of the family system as well as the young person is highlighted here. Addressing the familial complexities of the transition may contribute to the success of the whole process. Clinicians need careful consideration of the potential emotional impact on parents which is not always shared.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100362"},"PeriodicalIF":0.0,"publicationDate":"2024-12-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11699215/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142933621","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Perceived usability and acceptability of the My-Hip Fracture risk communication tool from the perspective of academic clinicians","authors":"Erin L. Hommel ,&nbsp;James P. Flaherty ,&nbsp;Caitlin R. Aguirre ,&nbsp;Amber S. McIlwain ,&nbsp;Monique R. Pappadis ,&nbsp;Pete Wegier ,&nbsp;Peter Cram","doi":"10.1016/j.pecinn.2024.100360","DOIUrl":"10.1016/j.pecinn.2024.100360","url":null,"abstract":"<div><h3>Objective</h3><div>We evaluated the usability and acceptability of My-Hip Fracture (My-HF), a web application that assists providers in delivering individualized prognostic information to patients hospitalized for hip fracture (HF).</div></div><div><h3>Methods</h3><div>We observed a sample of 16 clinicians as they navigated My-HF. We then administered a structured questionnaire and conducted semi-structured interviews to explore participants' opinions about the app's content and the feasibility of incorporating the app into clinical workflows.</div></div><div><h3>Results</h3><div>Clinicians required a median of 2-min and 45 s to navigate through the app. Nearly all participants indicated that My-HF was easy to use and would be useful for their practice. About half of participants had suggestions for additional useful peri-operative content. A few expressed concerns about communicating mortality risk. About half expressed concerns about how My-HF might be integrated into existing clinical workflows.</div></div><div><h3>Conclusions</h3><div>Though clinicians rated My-HF high on usefulness in a structured usability questionnaire, qualitative interviews identified a number of suggestions for optimizing integration into clinical practice. Creating shared goals, establishing a decision coach, and developing a framework of communication across care settings could facilitate integration of My-HF by the multidisciplinary HF team.</div></div><div><h3>Innovation</h3><div>My-Hip Fracture is a unique web application which provides personalized prognostic information to patients and families after HF. My-HF has potential to facilitate informed decision-making between clinicians and patients, but adaptations will be necessary to enhance its usability.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"5 ","pages":"Article 100360"},"PeriodicalIF":0.0,"publicationDate":"2024-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142759409","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The nursing shared decision making attitude scale: A translation and psychometric evaluation study","authors":"Stefanie van den Broek ,&nbsp;Floor Halvorsen ,&nbsp;Bregje Raap- van Sleuwen ,&nbsp;Rien de Vos","doi":"10.1016/j.pecinn.2024.100361","DOIUrl":"10.1016/j.pecinn.2024.100361","url":null,"abstract":"<div><h3>Background</h3><div>Nurses have an increasingly important role in the ‘shared decision-making’ process. Knowledge about attitudes can facilitate the implementation process of the different roles of nurses in shared decision-making. However, no specific instrument is available in Dutch to assess Dutch nurses' attitudes towards shared decision-making.</div></div><div><h3>Aim</h3><div>This study aims to translate the Nursing Shared Decision Attitude scale into Dutch and evaluate its psychometric properties.</div></div><div><h3>Design</h3><div>Psychometric evaluation study.</div></div><div><h3>Settings</h3><div>A general hospital in the Netherlands.</div></div><div><h3>Participants</h3><div>A random sample of 128 nurses.</div></div><div><h3>Methods</h3><div>The translation was performed using translation and cross-cultural guidelines. Experts assessed content validity. In a cross-sectional study, 128 nurses completed the Dutch Nursing Shared Decision Attitude scale. The factor structure of the Dutch Nursing Shared Decision Attitude scale was determined by principal components analysis. Internal consistency and standard error of measurement (SEM) were assessed. A first and simple hypothesis for construct validity was tested.</div></div><div><h3>Results</h3><div>Experts rated content validity as adequate. The principal components analysis revealed a 2-factor structure as most suitable (Empathic communication and Mastery learning) consistent with the original Nursing Shared Decision Attitude scale. The explained variance was 55 %. The internal consistency was 0.84 and 0.78 for the subscales and the SEM was 1,65. The mean score on the Dutch Nursing Shared Decision Attitude scale was 46,4 (CI: 42.77–49.23). A first and simple hypothesis that more experience in shared decision-making would lead to higher shared decision-making scores on the Dutch Nursing Shared Decision Attitude scale, could not be confirmed.</div></div><div><h3>Conclusion and innovation</h3><div>This study fills in a gap concerning available instruments to assess attitudes towards SDM among nurses since there is no instrument available for the Dutch population.</div><div>The results of this study are a first and somewhat promising step towards further developing the reliability and validity of the Dutch Nursing Shared Decision Attitude scale as a measure of hospital nurses' attitudes towards shared decision-making. Such measurement information is relevant to researchers and nurses involved in the implementation of shared decision-making in nursing practice.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"5 ","pages":"Article 100361"},"PeriodicalIF":0.0,"publicationDate":"2024-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142757203","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Measuring professionals' attitudes toward persistent somatic symptoms: Development, validation, and reliability of the professionals' Attitude to Persistent Somatic Symptoms Questionnaire (PAPSS)","authors":"Denise J.C. Hanssen ,&nbsp;Charlotte A. Spiertz ,&nbsp;Lineke M. Tak ,&nbsp;Judith G.M. Rosmalen","doi":"10.1016/j.pecinn.2024.100359","DOIUrl":"10.1016/j.pecinn.2024.100359","url":null,"abstract":"<div><h3>Objective</h3><div>The healthcare professional's attitude toward persistent somatic symptoms (PSS) seems to play an important role in access to and quality of care for patients with PSS. To encourage research on PSS attitude, we developed and validated the Professionals' Attitude to Persistent Somatic Symptoms Questionnaire (PAPSS).</div></div><div><h3>Methods</h3><div>A list of items was developed through theory and a focus group with PSS experts, with response categories on a 5-point Likert scale ranging from “strongly disagree” to “strongly agree”. These items were then validated through a sample (<em>N</em> = 411) consisting of medical specialists, general practitioners, and psychologists. Subscales of the PAPSS were constructed using repeated factor analyses and reliability analyses.</div></div><div><h3>Results</h3><div>Exploratory factor analyses resulted in a 15-item questionnaire with four subscales: “Perceived burden” and “Affinity” showed good reliability rates; “Perceived professional competence” and “Openness to patient-centered care” had questionable reliability rates. In general, psychologists had the most pronounced scores on subscales compared to medical specialists and general practitioners.</div></div><div><h3>Innovation</h3><div>The PAPSS is the first questionnaire for exploring the role of the professional's attitude toward PSS; it offers opportunities for further research on the influence of attitude on treatment of PSS.</div></div><div><h3>Conclusions</h3><div>The PAPPS is a relatively short questionnaire that can be used in both quantitative research and clinical care. However, it requires further research on psychometric qualities, including the validation of the translated versions of this questionnaire.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"5 ","pages":"Article 100359"},"PeriodicalIF":0.0,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142723263","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Single-encounter elicitation framework for diagnostic excellence patient-reported measures: SEE-Dx-PRM","authors":"Vadim Dukhanin ,&nbsp;Kathryn M. McDonald ,&nbsp;Susan K. Peterson ,&nbsp;Kelly T. Gleason","doi":"10.1016/j.pecinn.2024.100357","DOIUrl":"10.1016/j.pecinn.2024.100357","url":null,"abstract":"<div><h3>Objective</h3><div>To create a conceptual framework for assessing patient-reported diagnostic excellence of a single diagnostic encounter.</div></div><div><h3>Methods</h3><div>We held multiple expert panel meetings to prioritize a priori identified diagnostically relevant patient-reported experience and outcome domains. We combined and synthesized expert feedback with our experience in measure development and the reflections of a patient focus group. We then developed the framework, SEE-Dx-PRM (Single-Encounter Elicitation Framework for Diagnostic Excellence Patient-Reported Measures).</div></div><div><h3>Results</h3><div>We defined the SEE-Dx-PRM's scope as intended for a single diagnostic encounter in emergency or urgent care, prospective and agnostic of the health condition, and with a timeframe of within several days up to a month from the encounter. The SEE-Dx-PRM's diagnostic excellence outcomes are: (1) accurate diagnosis and (2) either final, or working diagnosis, or specific next steps to establish diagnosis that were communicated and comprehended by patients. SEE-Dx-PRM encompasses 2 domains associated with accurate diagnosis, 5 domains of patient perception of iterative diagnostic process, 5 domains associated with communication and comprehension, and a domain associated with uncertainty.</div></div><div><h3>Conclusion</h3><div>SEE-Dx-PRM-informed measures might support quality improvement, prompt system response, and research on diagnostic excellence.</div></div><div><h3>Innovation</h3><div>SEE-Dx-PRM presents a novel patient-centered framework for the emerging diagnostic excellence construct and its measurement.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"5 ","pages":"Article 100357"},"PeriodicalIF":0.0,"publicationDate":"2024-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142705579","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}