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Engaged curiosity: “Hot spots” for clinical reasoning in complex patient encounters 激发好奇心:在复杂的病人遭遇中进行临床推理的“热点”
Pub Date : 2025-06-06 DOI: 10.1016/j.pecinn.2025.100408
Michael Soh , Dolores Mullikin , Steven J. Durning , Jerusalem Merkebu

Objective

This study explores how, if at all, engaged curiosity - a genuine, emotionally engaged interest in learning more about the complexity of another's particular emotional perspective - emerges in the clinical reasoning process and its relationship with contextual factors and clinical reasoning performance.

Methods

Think-alouds transcripts from nineteen physicians in internal medicine from three military training facilities were thematically analyzed for instances of engaged curiosity and examined through the lens of contextual factors and clinical reasoning performance.

Results

Our findings indicate that engaged curiosity can be likened to placeholders that physicians employ early on to “bookmark” sources of patient concern. These sources, or hot spots, deserve follow up, particularly when cognitive resources are unavailable to “attend” to a deeper understanding of the patient's experience.

Conclusion

Engaged curiosity provides a unique lens for better understanding the relationship between empathy and clinical reasoning and warrants further research on its impact on the patient and their care.

Innovation

Engaged curiosity could serve as a novel way to train physicians to think and engage more empathically with their patients.
目的:本研究探讨了在临床推理过程中,好奇心(一种真正的、情感上的兴趣,想要更多地了解他人特定情感视角的复杂性)是如何出现的,以及它与情境因素和临床推理表现的关系。方法对来自三家军事训练机构的19名内科医生的“大声思考”记录进行主题分析,以确定参与好奇心的实例,并通过语境因素和临床推理表现进行检查。结果:我们的研究结果表明,参与好奇心可以比作医生早期使用的占位符,用于“书签”患者关注的来源。这些来源或热点值得跟进,特别是当认知资源无法“关注”对患者体验的更深入理解时。参与式好奇心为更好地理解共情和临床推理之间的关系提供了一个独特的视角,并值得进一步研究其对患者及其护理的影响。创新激发好奇心可以作为一种新颖的方式来训练医生思考问题,并与病人产生更多的共鸣。
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引用次数: 0
A novel outreach approach for identification of familial hypercholesterolemia: Interview-based formative evaluation to improve healthcare access and quality 一种识别家族性高胆固醇血症的新方法:基于访谈的形成性评估以改善医疗保健的可及性和质量
Pub Date : 2025-06-01 DOI: 10.1016/j.pecinn.2025.100407
Rachel C. Forcino , Terry Sturke , Mary P. McGowan , Amanda N. Perry , Shoshana H. Bardach , Vikrant S. Vaze , Kerrilynn C. Hennessey

Background

Familial hypercholesterolemia (FH) is a genetic condition which elevates cholesterol levels and increases risk of premature cardiac events. Medical treatment greatly reduces those risks. However, in the United States, FH is markedly underdiagnosed. We aimed to design and evaluate direct outreach and referral to specialty care for patients with an elevated risk of FH identified through application of a machine learning model and expert review of the electronic health record in a rural United States health system.

Methods

Two sets of interviews: (1) seeking advice for designing outreach from a convenience sample comprising health professionals and members of the public both with and without FH and (2)) evaluating the outreach with a convenience sample of health professionals and patients who received the outreach. Two researchers conducted each interview. Thematic analysis included investigator triangulation.

Results

We conducted 15 pre-outreach interviews and 32 post-outreach interviews. Most members of the public felt the outreach should be initiated by the patient's primary care clinician, while health professionals recommended outreach directly from a lipid specialist after notifying the primary care clinician. Outreach ultimately included primary care clinician notification; a mailed letter from lipid specialists to the patient indicating partnership with primary care; a message sent through the online patient portal; and a telephone call(s) from a lipid specialist to the patient. Phone calls were most impactful in prompting a clinical evaluation for FH. We identified 4 themes: (1) Both patients and clinical team members supported direct-to-patient outreach about FH; (2) Phone calls from lipid specialists to patients were considered high-value; (3) The importance of primary care team member involvement was perceived differently between pre- and post-outreach phases; and (4)) Outreach had a broader impact beyond the individual patients reached, including family screening.

Innovation

This study provides key insights into the acceptable design and use of machine learning and electronic health record data for direct-to-patient outreach.

Conclusions

Partnership with the target population led to direct-to-patient FH outreach that was acceptable to most recipients. High-touch engagement by lipid specialists included repeat phone calls, which maximized patients' response but are unlikely to be sustained in routine practice.
家族性高胆固醇血症(FH)是一种升高胆固醇水平和增加心脏过早事件风险的遗传性疾病。医学治疗大大降低了这些风险。然而,在美国,FH的诊断明显不足。我们的目的是设计和评估通过应用机器学习模型和专家审查美国农村卫生系统的电子健康记录来确定的FH风险升高的患者的直接外展和转诊到专科护理。方法两组访谈:(1)从便利样本(包括卫生专业人员和患有和不患有FH的公众)中寻求外展设计建议;(2)通过便利样本(包括卫生专业人员和接受外展的患者)评估外展。每次采访由两名研究人员进行。专题分析包括调查员三角测量。结果开展了15次外展前访谈和32次外展后访谈。大多数公众认为外展应由患者的初级保健临床医生发起,而卫生专业人员建议在通知初级保健临床医生后直接由脂质专家进行外展。外展最终包括初级保健临床医生通知;脂质专家给患者的一封表明与初级保健伙伴关系的信件;通过在线患者门户发送的消息;以及脂质专家给病人的电话。在促使对FH进行临床评估方面,电话最具影响力。我们确定了4个主题:(1)患者和临床团队成员都支持FH直接面向患者的外展;(2)脂质专家给患者的电话被认为是高价值的;(3)初级保健团队成员参与的重要性在外展前阶段和后阶段有不同的感知;(4)外展具有更广泛的影响,超出了个体患者,包括家庭筛查。创新本研究为机器学习和电子健康记录数据直接面向患者的可接受设计和使用提供了关键见解。结论与目标人群的合作导致了大多数接受者可以接受的直接针对患者的FH外展。脂质专家的高接触参与包括重复电话,这最大限度地提高了患者的反应,但在日常实践中不太可能持续。
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引用次数: 0
Beyond motivation: Creating supportive healthcare environments for engaging in therapeutic patient education according to healthcare providers 超越动机:根据医疗保健提供者的意见,为参与治疗性患者教育创造支持性医疗保健环境
Pub Date : 2025-05-25 DOI: 10.1016/j.pecinn.2025.100405
Bob C. Mulder , Hylkje Algra , Esther Cruijsen , J. Marianne Geleijnse , Renate M. Winkels , Willemieke Kroeze

Objective

This article reports the findings of focus-group discussions with healthcare providers concerning the facilitators and barriers they experience when engaging in therapeutic patient education (TPE).

Methods

Five focus-group discussions were held with a total of 21 primary and secondary healthcare providers. Discussions were moderated using a topic list that was co-created with healthcare providers. All discussions were recorded, transcribed verbatim and analysed thematically.

Results

Healthcare providers consider TPE important, but it requires long-term, continuous effort in order to be effective. They sometimes doubt its effectiveness and their own efficacy. Moreover, healthcare providers experience a lack of a supportive environment. Overall, their experiences could be captured in four categories of determinants of engaging in TPE: Capabilities, Motivation, Physical Context and Social Context.

Conclusion

Therapeutic patient education requires healthcare providers to be capable and motivated. To maintain the continuous effort needed, healthcare providers need to be supported both socially (e.g. by colleagues and management) and physically (e.g. through communication infrastructure).

Innovation

In contrast to previous studies focusing on the motivation and capability of healthcare providers to perform TPE, this study contributes to innovation in health communication by identifying social and physical factors that determine whether TPE is delivered continuously under actual or perceived constraints in terms of time and effectiveness.
目的本文报告了焦点小组讨论的结果与卫生保健提供者关于促进和障碍时,他们所经历的治疗性患者教育(TPE)。方法与21名初级和二级医疗服务提供者进行5次焦点小组讨论。讨论使用与医疗保健提供者共同创建的主题列表进行调节。所有的讨论都被记录下来,逐字抄录,并按主题进行分析。结果卫生保健提供者认为TPE很重要,但它需要长期、持续的努力才能有效。他们有时会怀疑它的有效性和他们自己的有效性。此外,医疗保健提供者缺乏支持性环境。总的来说,他们的经历可以被归纳为四类参与TPE的决定因素:能力、动机、身体环境和社会环境。结论治疗性患者教育要求医护人员有能力、有积极性。为了保持所需的持续努力,医疗保健提供者需要得到社会(例如同事和管理层)和物理(例如通过通信基础设施)两方面的支持。创新与以往研究关注医疗保健提供者实施TPE的动机和能力不同,本研究通过确定社会和物理因素来确定TPE是否在实际或感知的时间和有效性约束下持续提供,从而促进健康传播的创新。
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引用次数: 0
Perceptions of frailty and falls in older adults using an English regional ambulance service: A descriptive phenomenological study 使用英国地区救护车服务的老年人对虚弱和跌倒的感知:一项描述性现象学研究
Pub Date : 2025-05-24 DOI: 10.1016/j.pecinn.2025.100406
Karl Charlton , Tripta Rathour , Emma Burrow

Objective

Frailty is of increasing importance for healthcare systems as well as the personalised care agenda. Despite the evolving body of research exploring frailty and falls in the ambulance setting, the voices of frail older adults who use ambulance services, are seldom heard. Through first-hand accounts, this study set out to describe the experiences and perceptions of frailty for a cohort of older adults.

Methods

A descriptive phenomenological study involving eight participants with frailty who used a regional English National Health Service (NHS) ambulance service following a fall, conducted between July 2022–February 2023.

Results

Accounts from older adults highlight different perceptions of frailty and attitudes towards ageing. Frailty and falls were experienced through varying perceptions of identity and self, underpinned by acceptance, or otherwise, of an altered sense of embodiment and a life with limits.

Conclusion

Older adults generally hold negative perceptions of frailty, falls and ageing, but also challenged the negative terms frequently used to describe frailty, suggesting some frail older adults remain positive and still value life. Paramedics are likely to require further training and support to manage patients with frailty effectively and improve patient experience.

Innovation

This study uniquely explores frailty and falls through the stories of older adults using an NHS ambulance service. It highlights that older adults in this setting often differ from the older population in general, have a higher frailty prevalence than patients in other settings and appear to view the future with greater pessimism.
目的:对于医疗保健系统以及个性化护理议程而言,虚弱越来越重要。尽管不断发展的研究机构探索脆弱和跌倒在救护车设置,虚弱的老年人谁使用救护车服务的声音,很少听到。通过第一手资料,本研究旨在描述一群老年人的经历和对脆弱的看法。方法在2022年7月至2023年2月期间进行了一项描述性现象学研究,涉及8名身体虚弱的参与者,他们在跌倒后使用了英国国家卫生服务(NHS)地区救护车服务。结果来自老年人的说法强调了对虚弱的不同看法和对老龄化的不同态度。脆弱和跌倒是通过对身份和自我的不同认知而经历的,以接受为基础,或者以其他方式,一种改变的体现感和有限制的生活。结论老年人普遍对虚弱、跌倒和衰老持负面看法,但也对经常用来描述虚弱的负面术语提出了质疑,这表明一些虚弱的老年人仍然保持积极的态度,仍然重视生命。护理人员可能需要进一步的培训和支持,以有效地管理虚弱的患者并改善患者的体验。创新:这项研究独特地探讨了老年人使用NHS救护车服务的脆弱性。它强调,在这种情况下的老年人通常不同于一般的老年人口,比其他情况下的患者有更高的虚弱患病率,并且对未来的看法似乎更悲观。
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引用次数: 0
Getting back on track: Development of a blended-care intervention for weight recurrence after metabolic bariatric surgery using intervention mapping 回归正轨:利用干预制图技术对代谢减肥手术后体重复发的混合护理干预的发展
Pub Date : 2025-05-18 DOI: 10.1016/j.pecinn.2025.100404
Vera Voorwinde , Ingrid H.M. Steenhuis , Ignace M.C. Janssen , Valerie M. Monpellier , Maartje M. van Stralen

Objective

To systematically re-develop a blended-care intervention addressing weight recurrence after metabolic bariatric surgery (MBS). Weight recurrence poses a significant longterm challenge for around 20–30 % of MBS patients. The intervention aims to improve weight outcomes and enhance patient well-being. This study describes the novel application of the Intervention Mapping (IM) protocol, integrating scientific evidence and stakeholder input.

Methods

The six-step IM protocol guided the development process, ensuring the active involvement of patients and healthcare professionals. A comprehensive needs assessment using quantitative, qualitative, and literature-based approaches informed the creation of a logic model of the problem (Step 1) and a logic model of change (Step 2). Program outcomes and objectives were formulated through collaborative brainstorming and design-thinking sessions, leading to intervention design (Step 3). The intervention was co-produced with patients, implementers, and an app developer (Step 4). Detailed implementation (Step 5) and evaluation (Step 6) plans were subsequently developed.

Results

The IM process yielded a blended-care intervention grounded in theoretical frameworks and evidence-based methods. The intervention actively involved the target population and implementers, addressing key determinants of weight recurrence.

Conclusion

The IM protocol demonstrated utility in designing a tailored, theory-based intervention post-MBS. The process emphasized the value of integrating stakeholder perspectives and highlighted the feasibility of co-creating an evidence-informed intervention.

Innovation

This intervention incorporates newly developed elements in a novel blended-care structure. Future evaluation is necessary to determine its effectiveness in achieving the desired outcomes.
目的系统地重新制定针对代谢减肥手术(MBS)后体重复发的混合护理干预措施。体重复发对约20 - 30%的MBS患者构成了重大的长期挑战。干预的目的是改善体重结果和提高病人的幸福感。本研究描述了干预映射(IM)协议的新应用,整合了科学证据和利益相关者的输入。方法采用六步IM方案指导开发过程,确保患者和医护人员的积极参与。使用定量、定性和基于文献的方法进行全面的需求评估,为问题的逻辑模型(步骤1)和变化的逻辑模型(步骤2)的创建提供信息。通过协同头脑风暴和设计思考会议制定项目结果和目标,从而进行干预设计(步骤3)。干预是由患者、实施者和应用程序开发人员共同制作的(步骤4)。随后制定了详细的实施(步骤5)和评估(步骤6)计划。结果IM过程产生了基于理论框架和循证方法的混合护理干预。干预积极涉及目标人群和实施者,解决体重复发的关键决定因素。结论:IM协议在mbs后设计量身定制的、基于理论的干预方面具有实用性。该进程强调了整合利益攸关方观点的价值,并强调了共同创建循证干预措施的可行性。创新:该干预措施将新开发的元素融入到一种新型混合护理结构中。未来的评价是必要的,以确定其在实现预期结果方面的有效性。
{"title":"Getting back on track: Development of a blended-care intervention for weight recurrence after metabolic bariatric surgery using intervention mapping","authors":"Vera Voorwinde ,&nbsp;Ingrid H.M. Steenhuis ,&nbsp;Ignace M.C. Janssen ,&nbsp;Valerie M. Monpellier ,&nbsp;Maartje M. van Stralen","doi":"10.1016/j.pecinn.2025.100404","DOIUrl":"10.1016/j.pecinn.2025.100404","url":null,"abstract":"<div><h3>Objective</h3><div>To systematically re-develop a blended-care intervention addressing weight recurrence after metabolic bariatric surgery (MBS). Weight recurrence poses a significant longterm challenge for around 20–30 % of MBS patients. The intervention aims to improve weight outcomes and enhance patient well-being. This study describes the novel application of the Intervention Mapping (IM) protocol, integrating scientific evidence and stakeholder input.</div></div><div><h3>Methods</h3><div>The six-step IM protocol guided the development process, ensuring the active involvement of patients and healthcare professionals. A comprehensive needs assessment using quantitative, qualitative, and literature-based approaches informed the creation of a logic model of the problem (Step 1) and a logic model of change (Step 2). Program outcomes and objectives were formulated through collaborative brainstorming and design-thinking sessions, leading to intervention design (Step 3). The intervention was co-produced with patients, implementers, and an app developer (Step 4). Detailed implementation (Step 5) and evaluation (Step 6) plans were subsequently developed.</div></div><div><h3>Results</h3><div>The IM process yielded a blended-care intervention grounded in theoretical frameworks and evidence-based methods. The intervention actively involved the target population and implementers, addressing key determinants of weight recurrence.</div></div><div><h3>Conclusion</h3><div>The IM protocol demonstrated utility in designing a tailored, theory-based intervention post-MBS. The process emphasized the value of integrating stakeholder perspectives and highlighted the feasibility of co-creating an evidence-informed intervention.</div></div><div><h3>Innovation</h3><div>This intervention incorporates newly developed elements in a novel blended-care structure. Future evaluation is necessary to determine its effectiveness in achieving the desired outcomes.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100404"},"PeriodicalIF":0.0,"publicationDate":"2025-05-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144106301","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Psychometric characteristics of Roter interaction analysis system (RIAS) in the context of health education in a Moroccan school 摩洛哥某学校健康教育背景下Roter交互作用分析系统(RIAS)的心理测量特征
Pub Date : 2025-05-15 DOI: 10.1016/j.pecinn.2025.100403
Khadija Daoudi, Khaoula Jounaidi, Abdellah Gantare

Objective

The Roter Interaction Analysis System (RIAS) is widely used to assess communication in clinical settings but has not yet been applied in educational contexts. This study explores the psychometric properties of RIAS in Moroccan school health education, assessing its feasibility, reliability, and validity while examining its potential to improve communication strategies between health educators and students.

Methods

A cross-sectional study was conducted with 36 Moroccan primary school students. Health education session were recorded and analyzed using RIAS to evaluate communication patterns. Two trained raters independently coded the interactions into eight communication behavior categories. Psychometric analyses, including assessments of feasibility (coding versus session duration), inter-rater reliability (using correlation coefficients), and content validity (based on category usage), were conducted to evaluate RIAS's reliability and validity.

Results

RIAS demonstrated feasibility with extended coding times reflecting its comprehensive nature. High inter-rater reliability (ρ = 0.96–1.00, p < 0.01) validated its consistent application. Content validity confirmed adaptability, though challenges with social-emotional utterances and low-frequency categories suggest refinement to align with health education's unique dynamics.
Conclusion: This pilot study demonstrates the feasibility, reliability, and validity of RIAS in Moroccan school health education, highlighting its potential to enhance educator-student communication and improve health education outcomes in diverse cultural settings.

Innovation

This study pioneers the application of RIAS in Moroccan school health education, extending its use beyond clinical contexts. It highlights RIAS's adaptability to diverse, non-Western settings, bridging a gap in communication analysis. Findings provide a foundation for refining RIAS to align with health education and global health promotion strategies.
目的Roter互动分析系统(RIAS)被广泛用于临床环境中的沟通评估,但尚未在教育环境中应用。本研究探讨RIAS在摩洛哥学校健康教育中的心理测量特性,评估其可行性、信度和效度,同时研究其改善健康教育者与学生之间沟通策略的潜力。方法对36名摩洛哥小学生进行横断面调查。使用RIAS对健康教育会话进行记录和分析,评价交流模式。两名训练有素的评分员独立地将互动分为八种沟通行为类别。心理测量分析,包括可行性评估(编码与会话持续时间),评分者间信度(使用相关系数)和内容效度(基于类别使用),进行评估RIAS的信度和效度。结果rias具有可行性,编码时间延长,反映了其全面性。高信度(ρ = 0.96-1.00, p <;0.01)验证了其一致性应用。内容效度证实了适应性,尽管社交情感话语和低频类别的挑战建议改进,以配合健康教育的独特动态。结论:本初步研究证明了RIAS在摩洛哥学校健康教育中的可行性、可靠性和有效性,突出了其在不同文化背景下加强教育者与学生交流和改善健康教育成果的潜力。创新本研究开创了RIAS在摩洛哥学校健康教育中的应用,将其应用范围扩大到临床以外。它突出了RIAS对各种非西方环境的适应性,弥合了沟通分析的差距。研究结果为完善RIAS以配合健康教育和全球健康促进战略提供了基础。
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引用次数: 0
Empathy training via Kalamazoo Consensus in remote and in-person medical communication: A randomized controlled trial 通过卡拉马祖共识在远程和面对面医疗沟通中的移情训练:一项随机对照试验
Pub Date : 2025-05-15 DOI: 10.1016/j.pecinn.2025.100399
Giovan Battista Previti , Carlo Mazzatenta , Tommaso Bellandi , Francesco Niccolai , Dario Nieri , Valentina Ungaretti , Irene Cavasini , Alessandra Mazzoni , Stefano Maiorano , Luca Di Paolo , Veronica D'Elia , Monica Torre , Licia Matteucci , Guido Miccinesi , Moreno Marcucci , Michela Maielli , Sergio Ardis

Background

Empathy is crucial in healthcare, facilitating effective communication and improving patient outcomes.

Objective

This study aimed to evaluate the impact of tele-conference training based on the Kalamazoo Consensus Statement (KCS) on the empathy scores of newly hired physicians in a tele-visit simulation course.

Methods

From September 2021 to April 2022, we conducted a randomized controlled trial involving 129 medical doctors from 13 hospitals in north-western Tuscany, with an age range of 31 to 42 years. Partecipants were randomly assigned to a trained group (TG) or a control group (CG). Both groups completed the Toronto Empathy Questionnaire (TEQ) and the Balanced Emotional Empathy Scale (BEES) before (T0) and after (T1) the training. The TG underwent a 12-h online communication training course. The CG only completed the questionnaires without further intervention.

Results

Total sample included 129 partecipants. Results indicated a significant increase in TEQ scores for the TG (55,8 % of total sample; T0: 65.32; T1: 66.42, p = 0.032) and BEES scores (T0: 122.39; T1: 127.50, p = 0.000). The CG (44,2 %) experienced a decrease in TEQ scores (T0: 65.58; T1: 63.75, p = 0.000) but stable BEES scores (T0: 122.16; T1: 120.67, p = 0.317). Female participants consistently exhibited higher empathy scores than males, with training significantly enhancing scores for both genders.

Conclusions

The tele-conference training effectively improved empathy scores among newly hired physicians. We recommend the implementation of KCS-based training to enhance empathy and communication skills in medical practice.

Innovation

The pandemic has accelerated the use of tele-education and telemedicine, though opinions on their effectiveness remain divided. However, studies show that empathy can be enhanced through interactive online training, which offers significant innovations for both healthcare professionals' learning and patient care.
同情心在医疗保健中至关重要,它促进了有效的沟通并改善了患者的预后。目的探讨基于卡拉马祖共识声明(KCS)的远程会议培训对新入职医师远程访视模拟课程共情得分的影响。方法于2021年9月至2022年4月,对来自托斯卡纳西北部13家医院的129名医生进行随机对照试验,年龄31 ~ 42岁。参与者被随机分配到训练组(TG)或对照组(CG)。两组在训练前(T0)和训练后(T1)分别完成多伦多共情问卷(TEQ)和平衡情绪共情量表(BEES)。TG接受了一个12小时的在线交流培训课程。CG只完成问卷,没有进一步的干预。结果共纳入样本129人。结果表明,TG组的TEQ分数显著增加(占总样本的55.8%;T0: 65.32;T1: 66.42, p = 0.032)和BEES评分(T0: 122.39;T1: 127.50, p = 0.000)。对照组(44.2%)TEQ得分下降(T0: 65.58;T1: 63.75, p = 0.000),但稳定的蜜蜂得分(T0: 122.16;T1: 120.67, p = 0.317)。女性参与者始终表现出比男性更高的同理心得分,训练显著提高了男女的得分。结论电话会议培训有效提高了新入职医师的共情能力。我们建议实施以kcs为基础的培训,以提高医疗实践中的同理心和沟通技巧。创新大流行加速了远程教育和远程医疗的使用,尽管对其有效性的意见仍存在分歧。然而,研究表明,移情可以通过交互式在线培训来增强,这为医疗保健专业人员的学习和患者护理提供了重大创新。
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引用次数: 0
Acceptability of the ePOWER intervention: Managing previvors' cancer-related uncertainty and supporting decision making ePOWER干预的可接受性:管理先前癌症相关的不确定性和支持决策
Pub Date : 2025-05-10 DOI: 10.1016/j.pecinn.2025.100402
Marleah Dean , Bethany Jowers , Claire Conley , Erica Camacho , Whitney Espinel , Kimberly A. Kaphingst

Objective

Previvors—unaffected individuals who have increased risk of cancer due to a pathogenic or likely pathogenic variant in a gene—experience high levels of uncertainty, which is associated with negative outcomes. The ePOWER (empowering Preventive Options for Women Experiencing Risk) intervention is designed to help BRCA1/2 previvors manage their cancer-related uncertainty and make informed health decisions. In this study, we assessed the acceptability of ePOWER using a multiple methods approach.

Methods

Previvors (N = 24) completed individual, semi-structured interviews. Previvors first completed the Treatment Acceptability and Preference Scale (TAPS). Additionally, using a Learner Verification & Revision (LV&R) interviewing approach, we also elicited feedback on whether ePOWER was understandable, salient, and satisfactory to previvors. Acceptability was assessed by quantitative data (TAPS scores) and qualitative data (interviews). In analyzing the interview data and integrating the findings, deductive coding was utilized using LV&R categories and inductive thematic analysis was utilized to capture additional nuances from participants' evaluation.

Results

Adequate acceptability was demonstrated by TAPS scores. 88 % of participants exceeded the a priori acceptability threshold (TAPS ≥3). Deductive coding using LV&R categories also confirmed ePOWER was visually appealing, understandable, persuasive, cultural appropriate, and fostered self-efficacy. Inductive thematic analysis expanded on the LV&R categories and identified two additional themes: (1) relatability and emotional support and (2) useful resource.

Conclusion

ePOWER is an acceptable intervention to help previvors manage cancer-related uncertainty and support decision making.

Innovation

The ePOWER intervention can be shared during healthcare appointments and then utilized continuously by previvors to manage uncertainty and facilitate decisions.
目的:因基因致病性或可能致病性变异而增加癌症风险的未受影响的个体经历高度的不确定性,这与负面结果相关。ePOWER(赋予女性风险预防选择)干预旨在帮助BRCA1/2患者管理与癌症相关的不确定性,并做出明智的健康决定。在这项研究中,我们使用多种方法评估了ePOWER的可接受性。方法24名康复者完成了个人半结构化访谈。受试者首先完成治疗可接受性和偏好量表(TAPS)。此外,使用学习者验证&;修订(LV&;R)访谈方法,我们也得到了关于ePOWER是否可理解、突出和令人满意的反馈。通过定量数据(TAPS分数)和定性数据(访谈)评估可接受性。在分析访谈数据和整合调查结果时,我们使用了LV&;R类别的演绎编码和归纳主题分析来捕捉参与者评价中的其他细微差别。结果TAPS评分显示有足够的可接受性。88%的参与者超过了先验可接受阈值(TAPS≥3)。使用LV&;R分类的演绎编码也证实了ePOWER在视觉上具有吸引力、可理解、有说服力、文化适应性和培养自我效能感。归纳主题分析扩展了LV&;R类别,并确定了两个额外的主题:(1)相关性和情感支持;(2)有用的资源。结论power是一种可接受的干预措施,可帮助患者管理癌症相关的不确定性并支持决策。创新ePOWER干预措施可以在医疗保健预约期间共享,然后由以前的人持续使用,以管理不确定性并促进决策。
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引用次数: 0
Let's talk about death, dying, and what matters most to you in life: Pretest and piloting of a translated and adapted conversation game 让我们来谈谈死亡,临终,以及你生命中最重要的事情:一款翻译和改编的对话游戏的预测试和驾驶
Pub Date : 2025-05-06 DOI: 10.1016/j.pecinn.2025.100400
Julia Jaschke, Sara Söling, Juliane Köberlein-Neu

Objective

This study aimed to pretest and pilot the German version of the Hello conversation game (German: Hey du) to assess its comprehensibility and acceptability. Like the original, Hey du is designed as a low-threshold method to empower people of almost all ages and health conditions to engage in advance care planning (ACP), particularly targeting young/healthy people for whom there are currently few or no ACP programmes.

Methods

The conversation game was systematically translated into German using the TRAPD process and cognitively pretested in 12 interviews. Subsequently, two observational studies were conducted: Hey du was used in 1) a nursing school (n = 16) and 2) with groups of family and friends (n = 50). After completing the game, participants were surveyed regarding the game's acceptability and comprehensibility.

Results

The results of the cognitive pretest and the observational studies show that the conversation game was acceptable and comprehensible in both settings. Most of the participants (>92 %) reported that Hey du helped them come to terms with their own wishes and preferences for medical and nursing care and that they felt comfortable playing the game.

Conclusion

Hey du has the potential to motivate and empower people to deal with ACP.

Innovation

Hey du is the first scientifically supported gamification approach in Germany to introduce ACP to people for whom no systematic ACP programs exist. The game provides a safe forum for people of almost all ages and health conditions to discuss their values regarding life, death, dying and what matters most.
目的本研究旨在对德语版Hello会话游戏(德语:Hey du)进行预测试和试点,以评估其可理解性和可接受性。与最初的方案一样,Hey du被设计为一种低门槛方法,使几乎所有年龄和健康状况的人都能参与预先护理计划,特别是针对目前很少或没有预先护理计划的年轻人/健康人。方法采用TRAPD程序将会话游戏系统地翻译成德语,并在12个访谈中进行认知预测。随后,进行了两项观察性研究:Hey du被用于1)护理学校(n = 16)和2)家庭和朋友群体(n = 50)。在完成游戏后,参与者接受了关于游戏可接受性和可理解性的调查。结果认知预测和观察性研究结果表明,会话游戏在两种情境下都是可接受和可理解的。大多数参与者(92%)报告说,Hey du帮助他们达成了自己对医疗和护理的愿望和偏好,他们觉得玩这个游戏很舒服。结论hey du具有激励和授权人们应对ACP的潜力。InnovationHey du是德国第一个有科学支持的游戏化方法,向没有系统ACP计划的人介绍ACP。这个游戏为几乎所有年龄和健康状况的人提供了一个安全的论坛,讨论他们对生命、死亡、死亡和最重要的事情的价值观。
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引用次数: 0
Use of digital flashcards for reproductive health counseling among adolescents 在青少年中使用数字抽认卡进行生殖健康咨询
Pub Date : 2025-05-06 DOI: 10.1016/j.pecinn.2025.100401
Meghan A. Anderson , Rachel Price , Tori P. Miller , Rajan Lamichhane , Jennie L. Yoost

Objective

The purpose of this study is to determine whether “digital flashcard” graphics on a provider's smartphone are helpful in educating adolescents about reproductive health.

Methods

A randomized study compared the understanding of reproductive health topics among adolescents using digital flashcards during a clinical visit vs counseling as usual (control).

Results

There were 197 subjects (99 flashcards, 98 control) with mean age of 14.7 years. Among subjects in the flashcard group, new patients used more flashcards than return patients (3.48 vs 2.40, p = 0.001). The most frequently used flashcards were 7-day placebo birth control pills, the intrauterine device, internal anatomy and 84-day birth control pills. Among the flashcard group 96.9 % reported they “agreed” or “strongly agreed” that flashcards were helpful in understanding the topics discussed, and 98 % would recommend using them in the future. All subjects experienced an increase in understanding of the topics discussed during clinic, and there was no difference between the flashcard group and control.

Conclusion

Subjects using the digital flashcards during their clinical encounter reported high acceptability.

Innovation

Digital flashcards are accessible via smart phone use and can be easily distributed among providers to assist in reproductive health counseling in adolescents.
目的:本研究的目的是确定供应商智能手机上的“数字抽认卡”图形是否有助于对青少年进行生殖健康教育。方法一项随机研究比较了在临床访问期间使用数字抽认卡与常规咨询(对照组)的青少年对生殖健康主题的理解。结果共纳入197例受试者(抽认卡99张,对照组98张),平均年龄14.7岁。在抽认卡组的受试者中,新患者比复发患者使用更多的抽认卡(3.48 vs 2.40, p = 0.001)。使用最多的卡片是7天安慰剂避孕药、宫内节育器、内部解剖和84天避孕药。在抽认卡组中,96.9%的人表示他们“同意”或“强烈同意”抽认卡有助于理解所讨论的主题,98%的人建议将来使用抽认卡。所有受试者在临床期间对讨论主题的理解都有所增加,抽认卡组与对照组之间没有差异。结论受试者在临床接触中使用数字抽认卡的可接受性较高。创新数字抽认卡可以通过智能手机获得,并且可以很容易地分发给提供者,以协助向青少年提供生殖健康咨询。
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引用次数: 0
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PEC innovation
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