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Testing a novel theoretical framework to study language services implementation in health care 测试一个新的理论框架来研究卫生保健中的语言服务实施
Pub Date : 2025-08-27 DOI: 10.1016/j.pecinn.2025.100427
Allison Squires , Lauren Gerchow , Chenjuan Ma , Eva Liang , Sarah Miner
Language services are used to bridge language barriers during healthcare encounters, with the goal of reducing health outcome inequities; however, the implementation of language services in healthcare is understudied. Language Planning Theory has the potential to offer a theoretical framework for studying language services implementation challenges and successes in healthcare. The purpose of this study was to test the three-level view model (3LVM) of Language Planning Theory for studying the implementation of language access services in healthcare. A qualitative secondary analysis of data generated from a study of patients with limited English proficiency receiving home healthcare services and clinicians working for the agency structured this study. Data were analyzed according to the 3LVM using directed content analysis. Results from the analysis provided insights into the factors that generate the need for language services and those that facilitate or hinder their implementation, with the theoretical framework offering clear distinctions. Analyses generated an adapted, healthcare-specific version of the model that includes clinician/staff and patient functions, which proved useful for structuring research about language access services implementation in health care.
语言服务用于消除卫生保健过程中的语言障碍,目标是减少卫生结果的不平等;然而,在医疗保健中实施语言服务的研究不足。语言规划理论有可能为研究医疗保健中语言服务实施的挑战和成功提供理论框架。本研究的目的是检验语言规划理论的三层视图模型(3LVM)在研究医疗卫生机构语言获取服务实施中的应用。对接受家庭保健服务的英语水平有限的患者和为该机构工作的临床医生的研究数据进行定性的二次分析,构建了本研究。根据3LVM使用定向内容分析对数据进行分析。分析结果提供了对产生语言服务需求的因素以及促进或阻碍语言服务实施的因素的见解,理论框架提供了明确的区分。分析生成了一个经过调整的、特定于医疗保健的模型版本,其中包括临床医生/工作人员和患者的功能,事实证明,这对于构建关于医疗保健中语言获取服务实施的研究很有用。
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引用次数: 0
Innovations in communication training for medical and nursing students: Virtual reality communication tool for application and evaluation with key stakeholders and students (VR-TALKS) – a study protocol 医学和护理学生沟通培训的创新:与关键利益相关者和学生应用和评估的虚拟现实沟通工具(VR-TALKS) -一项研究协议
Pub Date : 2025-08-26 DOI: 10.1016/j.pecinn.2025.100426
Hanna A.A. Röwer , Aleksandrina Skvortsova , Mohamad M. Saab , Irene Hartigan , Claudia Bausewein , Sandra Martins Pereira , Pablo Hernández-Marrero , Jan Hrdlička , Kateřina Rusinová , Martin Loučka , Lucie Hrdličková , Martin Zielina , Cathy Payne , Liesbeth M. Van Vliet , Malte Klemmt , Kambiz Afshar , Stephanie Stiel

Background

In healthcare education, virtual reality (VR), simulating real-world situations, is emerging as a tool to improve communication skills, particularly in sensitive scenarios involving patients and caregivers. While promising, VR-based education also poses challenges such as avatar realism, cognitive load, and the need for pedagogical grounding.

Objective

This protocol paper presents the VR-TALKS project, which aims to develop, apply, and evaluate VR scenarios designed to teach healthcare students communication skills in serious illness scenarios. Barriers and facilitators to integrating VR into healthcare teaching modules, along with the usability, feasibility, and educational impact of the VR tool, will be assessed across five European countries, incorporating insights from both students and educators.

Methods

Phase 1 involves screening current communication courses at six partner institutions to identify opportunities for integrating VR. Phase 2 assesses the barriers and facilitators faced by approximately n = 70 educators in incorporating VR into communication training. Phase 3 focuses on developing VR scenarios based on the SPIKES and NURSE techniques. Phase 4 evaluates the usability and feasibility of the scenarios with n = 200 students and n = 30 educators. Feedback from this phase will inform further improvement of the tool.

Expected results

The project will provide valuable insights into the barriers and facilitators of VR integration, develop two VR scenarios in multiple languages, and collect data on feasibility, usability, and user satisfaction. Additionally, it will offer recommendations for effectively incorporating VR into university curricula. Potential limitations of immersive VR, such as motion sickness, will be considered during evaluation.

Conclusions

The project aims to enhance teaching methods for serious illness communication across Europe. The knowledge gained will be disseminated publicly through peer-reviewed publications and the project website, with plans to offer the VR training to other universities.

Innovation

By addressing the limitations of conventional training, VR-TALKS offers healthcare professionals the opportunity to develop crucial communication skills in a repeatable, standardized, and time-flexible environment.

Funding

ERASMUS+ Program through the Centre for International Cooperation in Education in the Czech Republic, “Dům zahraniční spolupráce” (DZS), spanning from 01.09.2023 to 31.08.2025.
在医疗保健教育中,虚拟现实(VR),模拟现实世界的情况,正在成为提高沟通技巧的工具,特别是在涉及患者和护理人员的敏感场景中。虽然前景光明,但基于虚拟现实的教育也带来了挑战,如虚拟现实现实、认知负荷以及对教学基础的需求。目的介绍VR- talks项目,该项目旨在开发、应用和评估旨在教授卫生保健学生在严重疾病场景中的沟通技巧的VR场景。将在五个欧洲国家评估将VR整合到医疗保健教学模块中的障碍和促进因素,以及VR工具的可用性、可行性和教育影响,并结合学生和教育工作者的见解。方法第一阶段包括筛选六个合作机构的现有交流课程,以确定整合VR的机会。第二阶段评估了约n = 70名教育工作者在将VR纳入沟通培训时面临的障碍和促进因素。第三阶段的重点是基于SPIKES和NURSE技术开发VR场景。阶段4评估情景的可用性和可行性,有n = 200名学生和n = 30名教育工作者。这个阶段的反馈将为进一步改进工具提供信息。该项目将对VR集成的障碍和促进因素提供有价值的见解,开发两种多语言的VR场景,并收集可行性、可用性和用户满意度方面的数据。此外,它还将为有效地将VR纳入大学课程提供建议。沉浸式虚拟现实的潜在局限性,如晕车,将在评估期间考虑。该项目旨在提高整个欧洲的重病传播教学方法。获得的知识将通过同行评审的出版物和项目网站公开传播,并计划向其他大学提供虚拟现实培训。创新通过解决传统培训的局限性,VR-TALKS为医疗保健专业人员提供了在可重复、标准化和时间灵活的环境中发展关键沟通技能的机会。通过捷克共和国国际教育合作中心“Dům zahraniční spolupráce”(DZS)资助erasmus +项目,时间为2023年9月1日至2025年8月31日。
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引用次数: 0
Online training for Japanese healthcare professionals in the development and use of patient decision aids to facilitate shared decision-making: An acceptability study 为日本医疗保健专业人员提供开发和使用患者决策辅助工具以促进共同决策的在线培训:可接受性研究
Pub Date : 2025-08-25 DOI: 10.1016/j.pecinn.2025.100425
Wakako Osaka , Yumi Aoki , Yuki Yonekura , Hitomi Danya , Kazuhiro Nakayama

Objectives

To 1) design an online training program for Japanese healthcare professionals (HCPs) on the development and use of patient decision aids (PtDAs); 2) assess the acceptability of the program, participants' satisfaction with it, and their intention to develop and implement PtDAs, and 3) obtain suggestions from participants to improve the program.

Methods

A user-centered approach was used to design an online training program for Japanese HCPs on the development and use of PtDAs. HCPs (physicians, nurses, midwives, psychologists, etc.) were recruited to evaluate the training. A total of 40 HCPs completed questionnaires regarding the acceptability of the program, their satisfaction with it, intentions to develop and use PtDAs, and suggestions for improving the program.

Results

Acceptability ratings for the program were high, with over 90 % of participants finding it useful and easy to understand. Thirty-nine of the 40 participants watched all the videos at least once. Ninety percent of the sample were satisfied with the program, and 95 % (n = 38) intended to use PtDAs in the future, although only 65 % (n = 26) planned to develop such tools.

Conclusion

Our online training program for Japanese HCPs on the development and use of PtDAs was acceptable and useful, and most professionals indicated their intentions to use such tools.

Innovation

There is a lack of resources on PtDAs in Japan. Our online training program is an innovative resource for HCPs that fills an important gap in facilitating shared decision-making.
目的:1)为日本医疗保健专业人员(HCPs)设计一个关于患者决策辅助工具(ptda)的开发和使用的在线培训项目;2)评估项目的可接受性、参与者对项目的满意度、制定和实施ptda的意愿;3)获取参与者对项目的改进建议。方法采用以用户为中心的方法,为日本医护人员设计ptda的开发和使用在线培训课程。招募HCPs(医生、护士、助产士、心理学家等)对培训进行评估。共有40名HCPs完成了问卷调查,内容涉及项目的可接受性、满意度、开发和使用ptda的意向以及改进项目的建议。结果该课程的可接受度很高,超过90%的参与者认为它有用且易于理解。40名参与者中有39人至少看了一次所有的视频。90%的样本对该程序感到满意,95% (n = 38)打算在未来使用ptda,尽管只有65% (n = 26)计划开发此类工具。结论我们为日本医护人员提供的ptda开发和使用在线培训项目是可接受和有用的,大多数专业人员表示愿意使用这些工具。日本缺乏ptda的相关资源。我们的在线培训项目是医疗保健专业人员的创新资源,填补了促进共同决策的重要空白。
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引用次数: 0
When physicians become patients: A podcast series for learning from patient experiences 当医生成为病人:一个从病人经验中学习的播客系列
Pub Date : 2025-08-22 DOI: 10.1016/j.pecinn.2025.100423
M.A. van Helvoort , K.J.A. van Dijsseldonk , B. Post
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引用次数: 0
How can community-based organizations be involved in the contraception care pathway for newcomer youth? Results of knowledge translation workshops 社区组织如何参与新移民青年的避孕护理途径?知识翻译研讨会的结果
Pub Date : 2025-08-14 DOI: 10.1016/j.pecinn.2025.100422
Zeba Khan , Piper Scott-Fiddler , Sarah Munro

Objective

Despite being a basic right of all individuals, many newcomer youth in Canada face challenges in accessing sexual and reproductive health (SRH), including contraception care. Settlement service providers are a trusted source for newcomers in the community, and we explored their role in supporting equitable access to SRH.

Methods

We conducted an integrated knowledge translation (IKT) intervention involving two workshops and the development of an infographic to explore the barriers and opportunities for settlement service organizations to participate in the SRH care pathway for newcomer youth.

Results

SRH and contraception topics arise when youth access other services, such as violence prevention and mental health programming. Lack of training and resources limits their ability to support youth. Workshop participants expressed interest in training and resources and identified opportunities to strengthen the referral pathways to support youth's access to SRH.

Conclusion

Providing resources and training can bolster settlement service providers' awareness of newcomer youth's SRH needs and improve their capacity to support them with information.

Innovation

Our work identified settlement service providers as important in strengthening the SRH care pathway for newcomer youth. We demonstrated the need and opportunity to reach newcomer youth with SRH information by providing training and resources to settlement service providers.
尽管这是所有人的一项基本权利,但加拿大的许多新移民青年在获得性健康和生殖健康(SRH),包括避孕护理方面面临挑战。安置服务提供者是社区新移民可信赖的来源,我们探讨了他们在支持公平获得性健康和生殖健康方面的作用。方法我们进行了一项综合知识翻译(IKT)干预,包括两个研讨会和信息图表的开发,以探讨安置服务机构参与新移民青年性健康和健康护理途径的障碍和机会。结果:当青年获得其他服务,如暴力预防和心理健康规划时,就会出现ssrh和避孕问题。缺乏培训和资源限制了他们支持青年的能力。工作坊参加者表示对培训和资源感兴趣,并确定了加强转介途径的机会,以支持青少年获得性健康和生殖健康服务。结论提供资源和培训可以增强安置服务提供者对新移民青少年性健康和健康需求的认识,提高其信息支持能力。创新我们的工作确定了安置服务提供者在加强新移民青年的性健康和健康护理途径方面的重要作用。我们通过向安置服务提供者提供培训和资源,证明了向新移民青少年提供性健康与健康信息的必要性和机会。
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引用次数: 0
Usability testing of an individualized decision aid for total knee arthroplasty 全膝关节置换术个体化决策辅助的可用性测试
Pub Date : 2025-08-13 DOI: 10.1016/j.pecinn.2025.100421
Jeffrey A. Johnson , Ademola Joshua Itiola , Shakib Rahman , Christopher Smith , Allison Soprovich , Lisa A. Wozniak , Deborah A. Marshall

Objectives

Osteoarthritis (OA) is a leading cause of total knee arthroplasty (TKA), affecting over 15 % of Canadians. With an aging population and suboptimal use of non-surgical options, TKA rates and wait times are rising. Although TKA is effective, 30 % of patients are dissatisfied due to unmet expectations, suggesting some surgeries may be inappropriate. Patient decision aids can set realistic expectations, improve decision quality, and enhance satisfaction. We developed an individualized online patient decision aid allowing patients to compare treatment outcomes based on similar characteristics (age, sex and body mass index) and evaluated its usability before clinical implementation.

Methods

Participants were recruited from a high-volume urban hip and knee clinic. Eligible adults diagnosed with knee OA completed the decision aid online and subsequently filled out demographics and survey forms, including the Preparation for Decision Making Scale (PDMS), System Usability Scale (SUS), and Acceptability Scale. Data were analyzed using descriptive statistics and content analysis of open-ended responses.

Results

There were 20 participants (mean age 68 years, 65 % female). The average PDMS score was 66.4, indicating above-average preparedness for decision-making. The SUS score averaged 63.4, suggesting marginal usability. Females and participants under 70 years reported higher PDMS and SUS scores. Most participants rated the information presentation as “good” or “excellent,” with 75 % finding the decision aid's length appropriate and information balanced. Feedback highlighted the need to simplify content, reduce variables, and offer the aid earlier in treatment.

Conclusions

The decision aid demonstrated reasonable usability, acceptability, and usefulness for routine practice. Future research should explore its impact on long-term patient outcomes and satisfaction, including among non-surgical populations.

Practice implications

Incorporating this decision aid into routine practice can help patients set realistic expectations and make informed decisions, reducing dissatisfaction. Offering it earlier in the patient journey may enhance its impact, especially for non-surgical options.
目的骨关节炎(OA)是全膝关节置换术(TKA)的主要原因,影响超过15%的加拿大人。随着人口老龄化和非手术选择的次优使用,TKA率和等待时间正在上升。虽然TKA是有效的,但30%的患者由于未达到预期而不满意,这表明一些手术可能不合适。辅助患者决策可以设定切合实际的期望,提高决策质量,提高满意度。我们开发了一种个性化的在线患者决策辅助工具,允许患者根据相似的特征(年龄、性别和体重指数)比较治疗结果,并在临床实施前评估其可用性。方法研究对象从一个大容量的城市髋关节和膝关节诊所招募。诊断为膝关节OA的合格成人在线完成决策辅助,随后填写人口统计和调查表格,包括决策准备量表(PDMS)、系统可用性量表(SUS)和可接受性量表。数据分析采用描述性统计和开放式回答的内容分析。结果共纳入20例患者,平均年龄68岁,女性占65%。平均PDMS得分为66.4,表明决策准备高于平均水平。SUS的平均得分为63.4,表明可用性处于边缘。女性和70岁以下的参与者报告了更高的PDMS和SUS评分。大多数参与者将信息展示评为“好”或“优秀”,75%的人认为决策援助的长度合适,信息平衡。反馈强调需要简化内容,减少变量,并在治疗早期提供帮助。结论该辅助决策系统具有良好的可用性、可接受性和实用性。未来的研究应探讨其对患者长期预后和满意度的影响,包括在非手术人群中。实践启示将这种辅助决策纳入日常实践可以帮助患者设定切合实际的期望并做出明智的决定,减少患者的不满。在病人的治疗过程中尽早提供它可能会增强其影响,特别是对于非手术选择。
{"title":"Usability testing of an individualized decision aid for total knee arthroplasty","authors":"Jeffrey A. Johnson ,&nbsp;Ademola Joshua Itiola ,&nbsp;Shakib Rahman ,&nbsp;Christopher Smith ,&nbsp;Allison Soprovich ,&nbsp;Lisa A. Wozniak ,&nbsp;Deborah A. Marshall","doi":"10.1016/j.pecinn.2025.100421","DOIUrl":"10.1016/j.pecinn.2025.100421","url":null,"abstract":"<div><h3>Objectives</h3><div>Osteoarthritis (OA) is a leading cause of total knee arthroplasty (TKA), affecting over 15 % of Canadians. With an aging population and suboptimal use of non-surgical options, TKA rates and wait times are rising. Although TKA is effective, 30 % of patients are dissatisfied due to unmet expectations, suggesting some surgeries may be inappropriate. Patient decision aids can set realistic expectations, improve decision quality, and enhance satisfaction. We developed an <em>individualized</em> online patient decision aid allowing patients to compare treatment outcomes based on similar characteristics (age, sex and body mass index) and evaluated its usability before clinical implementation.</div></div><div><h3>Methods</h3><div>Participants were recruited from a high-volume urban hip and knee clinic. Eligible adults diagnosed with knee OA completed the decision aid online and subsequently filled out demographics and survey forms, including the Preparation for Decision Making Scale (PDMS), System Usability Scale (SUS), and Acceptability Scale. Data were analyzed using descriptive statistics and content analysis of open-ended responses.</div></div><div><h3>Results</h3><div>There were 20 participants (mean age 68 years, 65 % female). The average PDMS score was 66.4, indicating above-average preparedness for decision-making. The SUS score averaged 63.4, suggesting marginal usability. Females and participants under 70 years reported higher PDMS and SUS scores. Most participants rated the information presentation as “good” or “excellent,” with 75 % finding the decision aid's length appropriate and information balanced. Feedback highlighted the need to simplify content, reduce variables, and offer the aid earlier in treatment.</div></div><div><h3>Conclusions</h3><div>The decision aid demonstrated reasonable usability, acceptability, and usefulness for routine practice. Future research should explore its impact on long-term patient outcomes and satisfaction, including among non-surgical populations.</div></div><div><h3>Practice implications</h3><div>Incorporating this decision aid into routine practice can help patients set realistic expectations and make informed decisions, reducing dissatisfaction. Offering it earlier in the patient journey may enhance its impact, especially for non-surgical options.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100421"},"PeriodicalIF":0.0,"publicationDate":"2025-08-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144864589","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Harnessing storytelling with medical students and community members to build curiosity and trust: A mixed methods evaluation of a pilot intervention 利用医学生和社区成员讲故事来建立好奇心和信任:对试点干预的混合方法评估
Pub Date : 2025-07-09 DOI: 10.1016/j.pecinn.2025.100420
Rebecca K. Rudel , Nicole D. Kaufmann , Shana A.B. Burrowes , Cheryl Harding , Cara Solomon , Benjamin P. Linas , Mari-Lynn Drainoni , Katherine Gergen Barnett

Background

Mistrust of medical providers disproportionately affects individuals from racialized communities. Mistrust of providers negatively influences willingness to seek care, which exacerbates health disparities. Patient-centered communication can mitigate this mistrust.

Objective

To assess the impact of a three-hour pilot workshop entitled Storytelling to Build Medical Trust, which brings medical students and Black, Indigenous and other People of Color (BIPOC) community members together to practice the skills underlying patient-centered communication, on medical student patient-centered communication self-efficacy and community member trust.

Methods

Medical students completed the Self-Efficacy in Patient-Centeredness Questionnaire (SEPCQ-27) before, after, and one-month post-participation in the workshop, while community members completed two sub-scales of the Collaboration Trust Scale at the same time points. Community members also participated in focus group discussions approximately one week after workshop completion. Focus group transcripts were analyzed using the Social Cognitive Theory.

Results

Median medical student SEPCQ-27 score increased 18 % pre to post-workshop (p < 0.001). Similarly, median scores of the Collaboration Trust Survey sub-scales “Trust in Communication” and “Trust in Partner Investment and Community Well-Being” increased 23.3 % (p = 0.025), and 18.75 % (p = 0.013), respectively. Analysis of focus group discussions identified five themes: 1) The workshop cultivated an open and comfortable environment; 2) Community members desire additional information and direction prior to the program; 3) Training medical students may have a downstream impact, but there is a pressing need to train current providers; 4) The workshop articulates opportunities for community members to assert their strength and empowers them to pursue them; and 5) Dismantling medical mistrust requires ongoing efforts.

Conclusion

The Storytelling workshop may build trust between patients from historically marginalized communities and medical practitioners.

Innovation

This is the first evaluation of a trust-building intervention that brings both medical providers and potential patients together in one room.
对医疗服务提供者的不信任对种族化社区的个人影响尤为严重。对提供者的不信任对求医的意愿产生负面影响,从而加剧了健康差距。以病人为中心的沟通可以减轻这种不信任。目的评价医学生与黑人、原住民和其他有色人种(BIPOC)社区成员一起练习以患者为中心的沟通技巧的“讲故事建立医疗信任”3小时试点讲习班对医学生以患者为中心的沟通自我效能感和社区成员信任的影响。方法医学生在参加研讨会前、后、后1个月分别填写《以病人为中心的自我效能感问卷》(SEPCQ-27),社区成员在同一时间点填写《协作信任量表》的两个子量表。社区成员还在讲习班结束后大约一周参加了焦点小组讨论。使用社会认知理论分析焦点小组记录。结果医学生SEPCQ-27评分中位数在研修前后提高了18% (p <;0.001)。同样,合作信任调查子量表“对沟通的信任”和“对伙伴投资和社区福祉的信任”的中位数得分分别增加了23.3% (p = 0.025)和18.75% (p = 0.013)。通过对焦点小组讨论的分析,确定了五个主题:1)研讨会营造了一个开放舒适的环境;2)社区成员希望在项目之前获得更多信息和指导;3)培养医学生可能会产生下游影响,但迫切需要培养现有的提供者;4)讲习班为社区成员提供了展示自己力量的机会,并赋予他们追求这些力量的能力;5)消除医疗不信任需要持续的努力。结论“讲故事工作坊”可以建立历史边缘化群体患者与医生之间的信任关系。这是对一种将医疗提供者和潜在患者聚集在一个房间里的信任建立干预措施的首次评估。
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引用次数: 0
Communication quality between parents and siblings of children with chronic disorders 慢性疾病患儿父母与兄弟姐妹之间的沟通质量
Pub Date : 2025-07-08 DOI: 10.1016/j.pecinn.2025.100419
Caitlin M. Prentice , Anna Aanesen , Amalie Kirkedelen Syverstad , Torun M. Vatne , Krister W. Fjermestad

Objective

This study examines parent-sibling communication during a manual-based group intervention (SIBS) that aims to improve communication quality and well-being for siblings of children with a chronic disorder diagnosis.

Methods

Audio recordings and transcripts of 20 parent-sibling conversations were analyzed using the manual-based tool Verona Coding Definition of Emotional Sequences (VR-CoDES). We measured siblings' negative expressions and parental responses, focusing on how parents applied the SIBS target behaviours of listening, exploring and validating responses.

Results

Siblings raised topics such as heritability of the chronic disorder, differential treatment, and instances of violence and temper tantrums. Siblings' negative expressions were 53 % cues (implicit expressions) and 47 % concerns (explicit expressions). Parents provided space in 74 % of the responses to cues and concerns, meaning they gave space for further disclosure. Within these responses, parents applied the SIBS target behaviours, including exploration (59 %), validation (33 %), and listening (8 %).

Conclusion

Parents mainly provided space and used a warm tone when responding to siblings in the SIBS sessions. Responses included a higher proportion of validation responses and a lower proportion of listening responses compared with previous studies.

Innovation

Parents and siblings of children with chronic disorders face unique challenges that can negatively impact the quality of parent-sibling communication and psychological adjustment in siblings. This study contributes new insight into how parents and siblings communicate in an intervention setting, and how characteristics of the intervention may influence the quality of this communication.
目的本研究旨在通过基于手工的群体干预(SIBS)来改善慢性障碍患儿兄弟姐妹的沟通质量和幸福感。方法采用基于手册的Verona情绪序列编码定义(VR-CoDES)工具对20份父母-兄弟对话录音和文本进行分析。我们测量了兄弟姐妹的消极表达和父母的反应,重点关注父母如何应用SIBS的目标行为,即倾听、探索和验证反应。结果:兄弟姐妹们提出了诸如慢性疾病的遗传性、差别待遇、暴力和发脾气等话题。兄弟姐妹的消极表达有53%是暗示(隐性表达),47%是担忧(显性表达)。对于暗示和担忧,家长在74%的回复中提供了空间,这意味着他们给了进一步披露的空间。在这些回应中,家长应用了SIBS的目标行为,包括探索(59%)、验证(33%)和倾听(8%)。结论在SIBS会话中,家长主要提供空间和使用温暖的语气回应兄弟姐妹。与以往的研究相比,验证性回应的比例更高,而倾听性回应的比例更低。创新慢性疾病儿童的父母和兄弟姐妹面临着独特的挑战,这可能会对父母-兄弟姐妹的沟通质量和兄弟姐妹的心理适应产生负面影响。本研究对父母和兄弟姐妹如何在干预环境下沟通,以及干预的特征如何影响这种沟通的质量提供了新的见解。
{"title":"Communication quality between parents and siblings of children with chronic disorders","authors":"Caitlin M. Prentice ,&nbsp;Anna Aanesen ,&nbsp;Amalie Kirkedelen Syverstad ,&nbsp;Torun M. Vatne ,&nbsp;Krister W. Fjermestad","doi":"10.1016/j.pecinn.2025.100419","DOIUrl":"10.1016/j.pecinn.2025.100419","url":null,"abstract":"<div><h3>Objective</h3><div>This study examines parent-sibling communication during a manual-based group intervention (SIBS) that aims to improve communication quality and well-being for siblings of children with a chronic disorder diagnosis.</div></div><div><h3>Methods</h3><div>Audio recordings and transcripts of 20 parent-sibling conversations were analyzed using the manual-based tool Verona Coding Definition of Emotional Sequences (VR-CoDES). We measured siblings' negative expressions and parental responses, focusing on how parents applied the SIBS target behaviours of listening, exploring and validating responses.</div></div><div><h3>Results</h3><div>Siblings raised topics such as heritability of the chronic disorder, differential treatment, and instances of violence and temper tantrums. Siblings' negative expressions were 53 % cues (implicit expressions) and 47 % concerns (explicit expressions). Parents provided space in 74 % of the responses to cues and concerns, meaning they gave space for further disclosure. Within these responses, parents applied the SIBS target behaviours, including exploration (59 %), validation (33 %), and listening (8 %).</div></div><div><h3>Conclusion</h3><div>Parents mainly provided space and used a warm tone when responding to siblings in the SIBS sessions. Responses included a higher proportion of validation responses and a lower proportion of listening responses compared with previous studies.</div></div><div><h3>Innovation</h3><div>Parents and siblings of children with chronic disorders face unique challenges that can negatively impact the quality of parent-sibling communication and psychological adjustment in siblings. This study contributes new insight into how parents and siblings communicate in an intervention setting, and how characteristics of the intervention may influence the quality of this communication.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100419"},"PeriodicalIF":0.0,"publicationDate":"2025-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144655730","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The experience of people with multiple sclerosis who receive occupational performance coaching 多发性硬化症患者接受职业表现指导的经验
Pub Date : 2025-07-03 DOI: 10.1016/j.pecinn.2025.100418
Niloufar Malakouti , Dorothy Kessler , Marcia Finlayson , Samantha Stephens

Objective

To explore how Occupational Performance Coaching (OPC) influences self-management in the daily lives of people with Multiple Sclerosis (PwMS).

Methods

A qualitative study involving 10 PwMS who underwent 6 sessions of telephone OPC over ten weeks. Interpretive description was used as the methodological approach. Participants were interviewed pre- and post-intervention, with thematic analysis performed on transcripts.

Results

Pre-intervention themes included resisting MS, living with MS, ongoing challenges, and strategies. Post-intervention, the theme of resisting MS dissipated, with emergent sub-themes of planning ahead, being consistent, and talking about the plan. Participants reported reduced resistance towards their condition, a shift in their focus from problems towards solutions, and an enhancement of existing strategies and/or development of new strategies used to overcome ongoing challenges in living with MS.

Conclusion

OPC may facilitate a shift in focus towards solutions and enhance self-management strategies in PwMS.

Innovation

This study highlights OPC as a promising and innovative approach for addressing the self-management needs of individuals with MS, emphasizing its potential to enhance meaningful participation by fostering effective coping strategies and proactive attitudes.
目的探讨职业绩效指导(OPC)对多发性硬化症(PwMS)患者日常生活自我管理的影响。方法对10例经电话OPC治疗10周的PwMS患者进行定性研究。采用解释性描述作为方法学方法。参与者在干预前和干预后接受采访,并对笔录进行专题分析。结果干预前的主题包括抵抗多发性硬化症、与多发性硬化症共存、持续的挑战和策略。干预后,抵抗MS的主题消失了,出现了提前计划、保持一致和谈论计划的子主题。参与者报告说,他们对自己的病情的抵抗力降低了,他们的注意力从问题转向了解决方案,并加强了现有的策略和/或开发了新的策略,用于克服与ms生活中的持续挑战。结论:opc可能有助于将注意力转向解决方案,并增强了PwMS的自我管理策略。创新本研究强调了OPC作为一种解决多发性硬化患者自我管理需求的有前途和创新的方法,强调了它通过培养有效的应对策略和积极的态度来提高有意义的参与的潜力。
{"title":"The experience of people with multiple sclerosis who receive occupational performance coaching","authors":"Niloufar Malakouti ,&nbsp;Dorothy Kessler ,&nbsp;Marcia Finlayson ,&nbsp;Samantha Stephens","doi":"10.1016/j.pecinn.2025.100418","DOIUrl":"10.1016/j.pecinn.2025.100418","url":null,"abstract":"<div><h3>Objective</h3><div>To explore how Occupational Performance Coaching (OPC) influences self-management in the daily lives of people with Multiple Sclerosis (PwMS).</div></div><div><h3>Methods</h3><div>A qualitative study involving 10 PwMS who underwent 6 sessions of telephone OPC over ten weeks. Interpretive description was used as the methodological approach. Participants were interviewed pre- and post-intervention, with thematic analysis performed on transcripts.</div></div><div><h3>Results</h3><div>Pre-intervention themes included resisting MS, living with MS, ongoing challenges, and strategies. Post-intervention, the theme of resisting MS dissipated, with emergent sub-themes of planning ahead, being consistent, and talking about the plan. Participants reported reduced resistance towards their condition, a shift in their focus from problems towards solutions, and an enhancement of existing strategies and/or development of new strategies used to overcome ongoing challenges in living with MS.</div></div><div><h3>Conclusion</h3><div>OPC may facilitate a shift in focus towards solutions and enhance self-management strategies in PwMS.</div></div><div><h3>Innovation</h3><div>This study highlights OPC as a promising and innovative approach for addressing the self-management needs of individuals with MS, emphasizing its potential to enhance meaningful participation by fostering effective coping strategies and proactive attitudes.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100418"},"PeriodicalIF":0.0,"publicationDate":"2025-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144588961","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors predicting eHealth literacy: A profile of California, USA 预测电子健康素养的因素:美国加州的概况
Pub Date : 2025-06-28 DOI: 10.1016/j.pecinn.2025.100410
Ronald W. Berkowsky , Brandon Almanza , Jasmine Garcia , Noah Graza

Objective

Given the known benefits of enhanced eHealth literacy in promoting patient health, identifying segments of the patient population at risk for low eHealth literacy can provide avenues for health professionals to promote enhanced eHealth skills through targeted outreach and intervention. The purpose of this study was to examine factors associated with eHealth literacy and to identify disparities in eHealth literacy in California.

Methods

Using survey data from the 2020 CALSPEAKS survey, ordinary least squares regression was performed on measures of self-assessed eHealth literacy to identify associated factors (N = 780).

Results

Findings showed that the strongest and most consistent predictors of eHealth literacy included self-rated health, a proxy measure for religiosity, Internet use characteristics, and personality traits (i.e., conscientiousness, neuroticism).

Conclusion

Overall, Californians report relatively high levels of eHealth literacy – but, those seeking to increase eHealth literacy among patients in the state may benefit from tailoring digital health information and eHealth interventions based on the significant associations found.

Innovation

Few studies have examined the impacts of personality characteristics on eHealth literacy using a large sample – findings elucidate innovative pathways to enhancing eHealth literacy (e.g., accommodating online content or training interventions to those reporting low conscientiousness or high neuroticism).
鉴于提高电子卫生素养在促进患者健康方面的已知益处,确定电子卫生素养低的风险患者群体可以为卫生专业人员提供途径,通过有针对性的外展和干预促进提高电子卫生技能。本研究的目的是检查与电子健康素养相关的因素,并确定加州电子健康素养的差异。方法利用2020年CALSPEAKS调查的调查数据,对自我评估的电子健康素养进行普通最小二乘回归,以确定相关因素(N = 780)。结果发现,电子健康素养最强且最一致的预测因子包括自评健康、宗教虔诚度、互联网使用特征和人格特征(即尽责性、神经质)。总体而言,加州人报告的电子健康素养水平相对较高,但是,那些寻求提高该州患者电子健康素养的人可能会受益于基于所发现的显著关联的定制数字健康信息和电子健康干预。创新很少有研究使用大样本考察了人格特征对电子健康素养的影响——研究结果阐明了提高电子健康素养的创新途径(例如,为那些报告责任心低或高度神经质的人提供在线内容或培训干预措施)。
{"title":"Factors predicting eHealth literacy: A profile of California, USA","authors":"Ronald W. Berkowsky ,&nbsp;Brandon Almanza ,&nbsp;Jasmine Garcia ,&nbsp;Noah Graza","doi":"10.1016/j.pecinn.2025.100410","DOIUrl":"10.1016/j.pecinn.2025.100410","url":null,"abstract":"<div><h3>Objective</h3><div>Given the known benefits of enhanced eHealth literacy in promoting patient health, identifying segments of the patient population at risk for low eHealth literacy can provide avenues for health professionals to promote enhanced eHealth skills through targeted outreach and intervention. The purpose of this study was to examine factors associated with eHealth literacy and to identify disparities in eHealth literacy in California.</div></div><div><h3>Methods</h3><div>Using survey data from the 2020 CALSPEAKS survey, ordinary least squares regression was performed on measures of self-assessed eHealth literacy to identify associated factors (<em>N</em> = 780).</div></div><div><h3>Results</h3><div>Findings showed that the strongest and most consistent predictors of eHealth literacy included self-rated health, a proxy measure for religiosity, Internet use characteristics, and personality traits (i.e., conscientiousness, neuroticism).</div></div><div><h3>Conclusion</h3><div>Overall, Californians report relatively high levels of eHealth literacy – but, those seeking to increase eHealth literacy among patients in the state may benefit from tailoring digital health information and eHealth interventions based on the significant associations found.</div></div><div><h3>Innovation</h3><div>Few studies have examined the impacts of personality characteristics on eHealth literacy using a large sample – findings elucidate innovative pathways to enhancing eHealth literacy (e.g., accommodating online content or training interventions to those reporting low conscientiousness or high neuroticism).</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100410"},"PeriodicalIF":0.0,"publicationDate":"2025-06-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144518195","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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