首页 > 最新文献

Journal of palliative care & medicine最新文献

英文 中文
Patient Centered Care for Persons with HIV Disease: Protocol Review for CASA Study (Care and Support Access) Early in Chronic Disease Management 以患者为中心的艾滋病患者护理:慢性疾病管理早期CASA研究(护理和支持获取)方案回顾
Pub Date : 2017-03-17 DOI: 10.4172/2165-7386.1000300
Carla S Alex, er, V. Raveis, D. Karus, Mei Ching Lee, Monique Carrero Tagle, Rebecca Brotemarkle, G. Pappas, P. Selwyn
Background: In the US, more than 1.2 million adults are living with human immunodeficiency virus (HIV); gay and bisexual men account for 82% of new diagnoses annually. Young men of color account for 67% of this total. Despite advances in disease control, lack of retention in care itself remains a barrier and how outpatient staff members impact this has not been investigated. The palliative approach is patient-centered care targeting "relief of suffering" and "quality of life." This paper describes the original protocol for the Care and Support Access Study (CASA) where outpatient HIV staff members are challenged to improve outcomes for young men who have sex with men (yMSM) by integrating the palliative approach early (ePA) with HIV care delivery. Methods: The hypothesis is that ePA can favorably impact outcomes for yMSM in one HIV clinic compared with treatment as usual (TAU) at a second clinic. In the era of HIVdisease control, we use a quasi-experimental design with mixed methods to compare patient-level outcomes at 2 HIV clinics. The intervention fosters incorporation of the ePA with care provision using didactic and iterative education. We survey HIV staff members with regard to stress of care-giving. Qualitative interviews will highlight impact of the experience. Objectives: This paper reviews the aims of the study including: 1) compare outcomes of yMSM receiving care from staff using the ePA to those receiving TAU; 2) compare work-related staff stress at a clinic receiving the ePA with staff providing standard HIV outpatient care; and 3) refine, deliver and determine the acceptability and applicability of interdisciplinary professional education to deliver the ePA in HIV management. Discussion: We will measure the impact of the ePA on care delivery relative to patientcentered benefits. Lessons learned can contribute to a model for working with diverse patients facing challenging life transitions.
背景:在美国,超过120万成年人感染人类免疫缺陷病毒(HIV);同性恋和双性恋男性占每年新确诊病例的82%。有色人种的年轻男性占总数的67%。尽管在疾病控制方面取得了进展,但缺乏护理本身仍然是一个障碍,门诊工作人员如何影响这一点尚未得到调查。姑息治疗是一种以病人为中心的治疗方法,其目标是“减轻痛苦”和“提高生活质量”。本文描述了护理和支持获取研究(CASA)的原始方案,其中门诊艾滋病毒工作人员面临的挑战是,通过将姑息治疗方法(ePA)与艾滋病毒护理相结合,改善年轻男男性行为者(yMSM)的预后。方法:假设ePA在一个HIV诊所比在另一个诊所进行常规治疗(TAU)更有利于影响yMSM的结果。在艾滋病毒疾病控制时代,我们使用混合方法的准实验设计来比较两家艾滋病毒诊所的患者水平结果。干预促进了ePA与使用教学和迭代教育的护理提供的结合。我们调查了艾滋病毒工作人员关于照顾的压力。定性访谈将突出经验的影响。目的:本文回顾了本研究的目的,包括:1)比较使用ePA和TAU的医护人员对yMSM的护理结果;2)比较接受ePA治疗的诊所工作人员与提供标准HIV门诊治疗的诊所工作人员的压力;3)完善、提供并确定跨学科专业教育的可接受性和适用性,以提供HIV管理中的ePA。讨论:我们将衡量ePA对以患者为中心的医疗服务的影响。吸取的经验教训可以为面对生活转变挑战的各种患者提供一个工作模式。
{"title":"Patient Centered Care for Persons with HIV Disease: Protocol Review for CASA Study (Care and Support Access) Early in Chronic Disease Management","authors":"Carla S Alex, er, V. Raveis, D. Karus, Mei Ching Lee, Monique Carrero Tagle, Rebecca Brotemarkle, G. Pappas, P. Selwyn","doi":"10.4172/2165-7386.1000300","DOIUrl":"https://doi.org/10.4172/2165-7386.1000300","url":null,"abstract":"Background: In the US, more than 1.2 million adults are living with human immunodeficiency virus (HIV); gay and bisexual men account for 82% of new diagnoses annually. Young men of color account for 67% of this total. Despite advances in disease control, lack of retention in care itself remains a barrier and how outpatient staff members impact this has not been investigated. The palliative approach is patient-centered care targeting \"relief of suffering\" and \"quality of life.\" This paper describes the original protocol for the Care and Support Access Study (CASA) where outpatient HIV staff members are challenged to improve outcomes for young men who have sex with men (yMSM) by integrating the palliative approach early (ePA) with HIV care delivery. \u0000Methods: The hypothesis is that ePA can favorably impact outcomes for yMSM in one HIV clinic compared with treatment as usual (TAU) at a second clinic. In the era of HIVdisease control, we use a quasi-experimental design with mixed methods to compare patient-level outcomes at 2 HIV clinics. The intervention fosters incorporation of the ePA with care provision using didactic and iterative education. We survey HIV staff members with regard to stress of care-giving. Qualitative interviews will highlight impact of the experience. \u0000Objectives: This paper reviews the aims of the study including: 1) compare outcomes of yMSM receiving care from staff using the ePA to those receiving TAU; 2) compare work-related staff stress at a clinic receiving the ePA with staff providing standard HIV outpatient care; and 3) refine, deliver and determine the acceptability and applicability of interdisciplinary professional education to deliver the ePA in HIV management. \u0000Discussion: We will measure the impact of the ePA on care delivery relative to patientcentered benefits. Lessons learned can contribute to a model for working with diverse patients facing challenging life transitions.","PeriodicalId":91127,"journal":{"name":"Journal of palliative care & medicine","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2017-03-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.4172/2165-7386.1000300","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44083279","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Emergency Department Intervention Program for Enhancing Choice at the Endof Life: A Quality Improvement Project at a Comprehensive Cancer Center 急诊科介入计划在生命末期加强选择:一个综合癌症中心的品质改善计画
Pub Date : 2017-02-27 DOI: 10.4172/2165-7386.1000298
M. T. Cruz-Carreras, Patrick S Chaftari, Carmen E. Gonzalez, Rowena Enojo, Jayne Viets-Upchurch
Background: Advance care planning (ACP) for end-of-life care is especially important for individuals with terminal illnesses such as advanced cancer. It ensures that patients’ wishes are honored and alleviates the decisionmaking burden on family members and medical providers. It reduces unnecessary medical costs, and prevents waste of valuable resources. We proposed a quality improvement project to improve documentation of advanced care directives in the Emergency Department (ED) of a tertiary cancer center. Methods: We developed a pocket card to help emergency physicians screen patients in need of ACP. The goal was to assist ED staff in initiating conversations about end-of-life issues, and encourage patients and their caregivers to get involved in decisions about their medical treatment. Intervention: The project was implemented in a Plan-Do-Study-Act design. Baseline data was collected from the medical records of all patients visiting the ED on seven consecutive days prior to the distribution of the pocket card tool. After the launch of the intervention, the charts of all patients visiting the emergency center were reviewed for documentation of advanced care planning. Metrics polled included presence of a health care power of attorney and determination of code status, specifically the do-not-resuscitate (DNR) status. Results: 429 patients who visited the ED seven consecutive days prior to institution of the screening tool. Of these, we found that 66 (15.4%) had indicated their do-not-resuscitate (DNR) status in their charts, and 82 (19.1%) had a health care power of attorney. Post launch of the intervention, 391 patients visited the ED over seven consecutive days. Of these, 125 (32.0%) indicated their DNR status in their charts before leaving the ED, and 95 (24.3%) had a health care power of attorney. After implementation of our screening tool, there was a 107.8% increase in documentation of DNR status and a 76% increase in patients with a health care power of attorney. Conclusions: In this quality improvement project, a straightforward, low cost intervention was successfully implemented to improve documentation of patients’ ACP goals.
背景:临终关怀的预先护理计划(ACP)对于患有晚期癌症等绝症的个体尤为重要。它确保了患者的意愿得到尊重,减轻了家庭成员和医疗提供者的决策负担。它减少了不必要的医疗费用,并防止宝贵资源的浪费。我们提出了一个质量改进项目,以改善三级癌症中心急诊科(ED)的高级护理指示文件。方法:我们开发了一种袖珍卡片,以帮助急诊医生筛选需要ACP的患者。目的是帮助急诊科的工作人员发起关于临终问题的对话,并鼓励病人和他们的护理人员参与他们的医疗决定。干预:项目采用计划-实施-研究-行动设计。基线数据是从分发口袋卡工具之前连续7天访问急诊科的所有患者的医疗记录中收集的。干预措施启动后,对所有到急救中心就诊的病人的病历进行了审查,以确定高级护理计划的文件。调查的指标包括医疗保健授权书的存在和代码状态的确定,特别是不复苏(DNR)状态。结果:429例患者在使用筛查工具前连续7天到急诊科就诊。其中,66例(15.4%)患者在病历中注明了不抢救(DNR)状态,82例(19.1%)患者有医疗授权书。干预启动后,391名患者在连续7天内访问了急诊科。其中,125人(32.0%)在离开急诊科前在病历中表明了他们的DNR状态,95人(24.3%)有医疗授权书。在实施我们的筛查工具后,DNR状态的记录增加了107.8%,拥有医疗授权书的患者增加了76%。结论:在本质量改进项目中,成功实施了一种简单、低成本的干预措施,以改善患者ACP目标的记录。
{"title":"Emergency Department Intervention Program for Enhancing Choice at the Endof Life: A Quality Improvement Project at a Comprehensive Cancer Center","authors":"M. T. Cruz-Carreras, Patrick S Chaftari, Carmen E. Gonzalez, Rowena Enojo, Jayne Viets-Upchurch","doi":"10.4172/2165-7386.1000298","DOIUrl":"https://doi.org/10.4172/2165-7386.1000298","url":null,"abstract":"Background: Advance care planning (ACP) for end-of-life care is especially important for individuals with terminal illnesses such as advanced cancer. It ensures that patients’ wishes are honored and alleviates the decisionmaking burden on family members and medical providers. It reduces unnecessary medical costs, and prevents waste of valuable resources. We proposed a quality improvement project to improve documentation of advanced care directives in the Emergency Department (ED) of a tertiary cancer center. \u0000Methods: We developed a pocket card to help emergency physicians screen patients in need of ACP. The goal was to assist ED staff in initiating conversations about end-of-life issues, and encourage patients and their caregivers to get involved in decisions about their medical treatment. \u0000Intervention: The project was implemented in a Plan-Do-Study-Act design. Baseline data was collected from the medical records of all patients visiting the ED on seven consecutive days prior to the distribution of the pocket card tool. After the launch of the intervention, the charts of all patients visiting the emergency center were reviewed for documentation of advanced care planning. Metrics polled included presence of a health care power of attorney and determination of code status, specifically the do-not-resuscitate (DNR) status. \u0000Results: 429 patients who visited the ED seven consecutive days prior to institution of the screening tool. Of these, we found that 66 (15.4%) had indicated their do-not-resuscitate (DNR) status in their charts, and 82 (19.1%) had a health care power of attorney. Post launch of the intervention, 391 patients visited the ED over seven consecutive days. Of these, 125 (32.0%) indicated their DNR status in their charts before leaving the ED, and 95 (24.3%) had a health care power of attorney. After implementation of our screening tool, there was a 107.8% increase in documentation of DNR status and a 76% increase in patients with a health care power of attorney. \u0000Conclusions: In this quality improvement project, a straightforward, low cost intervention was successfully implemented to improve documentation of patients’ ACP goals.","PeriodicalId":91127,"journal":{"name":"Journal of palliative care & medicine","volume":"2017 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2017-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.4172/2165-7386.1000298","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"70683674","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Medical Residents' Practices and Perceptions toward Do-Not-Resuscitate (DNR)Order 住院医师对不抢救(DNR)令的实践与认知
Pub Date : 2017-02-27 DOI: 10.4172/2165-7386.1000295
Muneerah M. Albugami, H. Bassil, Ulrike Laudon, Abeer Ibrahim, Abdelazeim Elamin, Usamah Elalem, M. Siddiquee, Muhammad Sohaib Khan, A. Alshehri
The knowledge and implementation skills of the DNR order amongst physicians in training appear to be quite variable. Few studies had assessed residents' views on this complex topic. Our objective was to describe the medical residents’ practices and perceptions toward DNR order. A 26 question survey was distributed to medical residents during the academic day activity. Only 56 residents completed the questionnaire (75% response rate). 61.40% of the residents understood the definition of DNR order. 85.96% thought physicians shouldn’t order diagnostic tests for DNR patients and 92.98% thought physicians shouldn’t give blood products and antibiotics to DNR patients. 45.61% thought DNR order would lead to poor care. 36.84% thought physician alone should decide about the DNR decision. 45.61% answered that DNR order never discussed with patients. 64.91% answered that consultant discussed DNR order with patients. 42.11% of residents were involved in the discussion of DNR order. 66.67% answered that time to decide about the DNR order on day of admission. 42.11% answered there was variation between consultants regarding the care of DNR patient. 43.86% answered there was variation in the clinical care before and after DNR order was placed. 87.72% thought here was a need for formal training in DNR discussion. 68.42% didn’t know if KFSH and RC had clinical guidelines for DNR patients care. Conclusion: (1) Majority of the residents had misunderstanding regarding DNR patient care and comfortable care. There is a need for developing a structured residency program curriculum to address resident skills in end-oflife care. (2) Encouraged discussions DNR issues in the outpatient setting could prevent unwanted resuscitation in the acute setting. (3) Efforts are needed to increase patients and their families’ awareness about the meaning of DNR order. (4) There is a need to unify and improve quality of care provided to DNR patients by developing specific strategies within a framework of goals of care.
在接受培训的医生中,DNR命令的知识和实施技能似乎变化很大。很少有研究评估居民对这个复杂话题的看法。我们的目的是描述住院医师对DNR秩序的做法和看法。在学术日活动期间,向住院医生分发了一份26个问题的调查。只有56名居民完成了问卷调查(75%的回答率)。61.40%的居民理解DNR秩序的定义。85.96%的人认为医生不应该为DNR患者进行诊断测试,92.98%的人认为医师不应该给DNR患者服用血液制品和抗生素。45.61%的人认为DNR命令会导致护理不善。36.84%的人认为应该由医生单独决定DNR的决定。45.61%的人回答DNR命令从未与患者讨论过。64.91%的人回答顾问与患者讨论了DNR顺序。42.11%的居民参与了对DNR命令的讨论。66.67%的人在入院当天回答了决定DNR命令的时间。42.11%的人回答说,顾问之间对DNR患者的护理存在差异。43.86%的人回答说,在下达DNR命令前后,临床护理存在差异。87.72%的人认为需要在DNR讨论中进行正式培训。68.42%的人不知道KFSH和RC是否有DNR患者护理的临床指南。结论:(1)绝大多数居民对DNR患者护理和舒适护理存在误解。有必要制定一个结构化的住院医师课程,以解决临终关怀中的住院医师技能问题。(2) 鼓励在门诊环境中讨论DNR问题可以防止在急性环境中进行不必要的复苏。(3) 需要努力提高患者及其家属对DNR命令含义的认识。(4) 需要通过在护理目标框架内制定具体策略,统一并提高为DNR患者提供的护理质量。
{"title":"Medical Residents' Practices and Perceptions toward Do-Not-Resuscitate (DNR)Order","authors":"Muneerah M. Albugami, H. Bassil, Ulrike Laudon, Abeer Ibrahim, Abdelazeim Elamin, Usamah Elalem, M. Siddiquee, Muhammad Sohaib Khan, A. Alshehri","doi":"10.4172/2165-7386.1000295","DOIUrl":"https://doi.org/10.4172/2165-7386.1000295","url":null,"abstract":"The knowledge and implementation skills of the DNR order amongst physicians in training appear to be quite variable. Few studies had assessed residents' views on this complex topic. Our objective was to describe the medical residents’ practices and perceptions toward DNR order. A 26 question survey was distributed to medical residents during the academic day activity. Only 56 residents completed the questionnaire (75% response rate). 61.40% of the residents understood the definition of DNR order. 85.96% thought physicians shouldn’t order diagnostic tests for DNR patients and 92.98% thought physicians shouldn’t give blood products and antibiotics to DNR patients. 45.61% thought DNR order would lead to poor care. 36.84% thought physician alone should decide about the DNR decision. 45.61% answered that DNR order never discussed with patients. 64.91% answered that consultant discussed DNR order with patients. 42.11% of residents were involved in the discussion of DNR order. 66.67% answered that time to decide about the DNR order on day of admission. 42.11% answered there was variation between consultants regarding the care of DNR patient. 43.86% answered there was variation in the clinical care before and after DNR order was placed. 87.72% thought here was a need for formal training in DNR discussion. 68.42% didn’t know if KFSH and RC had clinical guidelines for DNR patients care. \u0000Conclusion: (1) Majority of the residents had misunderstanding regarding DNR patient care and comfortable care. There is a need for developing a structured residency program curriculum to address resident skills in end-oflife care. (2) Encouraged discussions DNR issues in the outpatient setting could prevent unwanted resuscitation in the acute setting. (3) Efforts are needed to increase patients and their families’ awareness about the meaning of DNR order. (4) There is a need to unify and improve quality of care provided to DNR patients by developing specific strategies within a framework of goals of care.","PeriodicalId":91127,"journal":{"name":"Journal of palliative care & medicine","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2017-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.4172/2165-7386.1000295","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42454929","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Poly Ulceration Patient Terminal: Kennedy Terminal Ulcer (KTU) 多发性溃疡患者终端:肯尼迪终端溃疡(KTU)
Pub Date : 2017-02-27 DOI: 10.4172/2165-7386.1000297
Sarabia-Cobo Cm
The principles of palliative wound and pressure ulcer care should be integrated along the continuum of wound care to address the whole person care needs of older people who often present with chronic debilitating diseases, advanced diseases associated with major organ failure (renal, hepatic, pulmonary or cardiac), profound dementia, complex psychosocial issues, diminished self-care abilities, and challenging wound-related symptoms [1].
姑息性伤口和压疮护理的原则应与伤口护理的连续性相结合,以满足老年人的全人护理需求,这些老年人通常患有慢性衰弱性疾病、与主要器官衰竭(肾、肝、肺或心脏)相关的晚期疾病、深度痴呆、复杂的社会心理问题、自我护理能力下降和具有挑战性的伤口相关症状bbb。
{"title":"Poly Ulceration Patient Terminal: Kennedy Terminal Ulcer (KTU)","authors":"Sarabia-Cobo Cm","doi":"10.4172/2165-7386.1000297","DOIUrl":"https://doi.org/10.4172/2165-7386.1000297","url":null,"abstract":"The principles of palliative wound and pressure ulcer care should be integrated along the continuum of wound care to address the whole person care needs of older people who often present with chronic debilitating diseases, advanced diseases associated with major organ failure (renal, hepatic, pulmonary or cardiac), profound dementia, complex psychosocial issues, diminished self-care abilities, and challenging wound-related symptoms [1].","PeriodicalId":91127,"journal":{"name":"Journal of palliative care & medicine","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2017-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.4172/2165-7386.1000297","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43134279","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Towards a Practice Guided Evidence Based Theory of Mentoring in PalliativeCare 实践导向的姑息治疗循证指导理论研究
Pub Date : 2017-01-02 DOI: 10.4172/2165-7386.1000296
Loo Teck Wee Wesley, M. Ikbal, Jingting Wu, M. T. Wahab, Y. C. Teng, Ee Hui Fang Margaret, R. Kanesvaran, L. Krishna
Provision of end of life care and coping with the emotional and existential distress engendered by palliative care demands the provision of holistic support and training for palliativists. Mentoring is an effective means of meeting this need; however little is known of mentoring in palliative care and a universally accepted learning theory of mentoring remains lacking in this setting. To advance mentoring practice in palliative care, we review the only two evidenced based mentoring theories based upon narrative reviews of mentoring practice in the key specialties within palliative care teams. Building upon mentoring’s mentee, mentor and organizational dependent, goal specific, context sensitive features highlighted in both recent reviews of mentoring this paper proffers a working theory of mentoring. Constructed Krishna’s Mentoring Pyramid that underlines the 5 core elements of successful mentoring programs, we propose melding elements of the cognitive apprenticeship model with the adult learning theory using the multi-theories model of adult learning offers an effective starting point for a mentoring theory. More context-specific studies are needed to provide better insight into the validity of this framework in the ongoing pursuit of an interprofessional mentoring theory in Palliative Medicine.
提供临终关怀和应对由姑息治疗产生的情绪和存在的痛苦需要提供全面的支持和培训姑息治疗者。指导是满足这种需求的有效手段;然而,人们对姑息治疗中的指导知之甚少,在这种情况下,仍然缺乏普遍接受的指导学习理论。为了推进姑息治疗中的指导实践,我们回顾了仅有的两种基于姑息治疗团队关键专业指导实践的叙述性回顾的基于证据的指导理论。在师徒关系的被指导者、导师和组织依赖、目标特定、上下文敏感等特征的基础上,本文提出了师徒关系的工作理论。构建了Krishna的指导金字塔,强调了成功指导计划的5个核心要素,我们提出将认知学徒模型与成人学习理论的要素融合,使用成人学习的多理论模型为指导理论提供了一个有效的起点。在姑息医学的跨专业指导理论的持续追求中,需要更多的具体背景研究来更好地了解这一框架的有效性。
{"title":"Towards a Practice Guided Evidence Based Theory of Mentoring in PalliativeCare","authors":"Loo Teck Wee Wesley, M. Ikbal, Jingting Wu, M. T. Wahab, Y. C. Teng, Ee Hui Fang Margaret, R. Kanesvaran, L. Krishna","doi":"10.4172/2165-7386.1000296","DOIUrl":"https://doi.org/10.4172/2165-7386.1000296","url":null,"abstract":"Provision of end of life care and coping with the emotional and existential distress engendered by palliative care demands the provision of holistic support and training for palliativists. Mentoring is an effective means of meeting this need; however little is known of mentoring in palliative care and a universally accepted learning theory of mentoring remains lacking in this setting. To advance mentoring practice in palliative care, we review the only two evidenced based mentoring theories based upon narrative reviews of mentoring practice in the key specialties within palliative care teams. Building upon mentoring’s mentee, mentor and organizational dependent, goal specific, context sensitive features highlighted in both recent reviews of mentoring this paper proffers a working theory of mentoring. Constructed Krishna’s Mentoring Pyramid that underlines the 5 core elements of successful mentoring programs, we propose melding elements of the cognitive apprenticeship model with the adult learning theory using the multi-theories model of adult learning offers an effective starting point for a mentoring theory. More context-specific studies are needed to provide better insight into the validity of this framework in the ongoing pursuit of an interprofessional mentoring theory in Palliative Medicine.","PeriodicalId":91127,"journal":{"name":"Journal of palliative care & medicine","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2017-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.4172/2165-7386.1000296","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47542907","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 26
Needs for Palliative Care of Cancer Patients in Brazil: Analysis of Data from 2008-2014 巴西癌症患者姑息治疗需求:2008-2014年数据分析
Pub Date : 2017-01-01 DOI: 10.4172/2165-7386.1000294
C. D. Santos, J. Caldas, J. Serafim, N. Barros, A. Pereira, M. Capra, A. Stein
Background: The Brazilian Health System (SUS) faces major challenges to ensure the constitutional right of universal access to health care assistance and technological advances to the entire population. Concerns with the ageing population, the increasing incidence of cancer and the emergence of chronic non-communicable diseases include palliative care as one of the objectives of the Brazilian Health System (SUS). However, considering that each disease and individual present different social and cultural factors, needs, pattern of disease progression, associated co-morbidities and access to health care, the estimation of necessary resources and the definition of specific criteria to structure and adapt palliative care in the health services have been a difficult task in Brazil. Thus, it is necessary to estimate the needs and the resources and to specify parameters to structure and tailor an adequate modality of assistance in palliative care. Aims: 1) To estimate the number of cancer patients with palliative care needs in the population; 2) To simulate palliative care methods for population based estimation. Methods: The present methodology has a quantitative approach, with descriptive, exploratory, retrospective and observational studies of hospitalized cancer patients. This is a cross-sectional study using death certificate and hospital admission data, which was collected from the Mortality Information System (SIM) and Hospital Information System (SIH) of the Brazilian Health System (SUS), obtained from the database of the Health Information Department (DATASUS). Results: Yearly around 1.1 million deaths were reported to the Brazilian Mortality Information System, being 15.9% of these related to people living with cancer. Between 2008 and 2014, there were almost 4.5 million hospitalizations (4,431,685) of patients with cancer in Brazil, and, of all the hospital admissions of cancer patients, 1.189.908 (26.85%) were related to intercurrences of the disease and/or of treatment. The average rate of hospital mortality was 7.7 for cancer in general and 21.4 for clinical intercurrence of cancer patients, while the average length of stay (LOS) was 5.7 days for cancer in general and 7.9 days for clinical intercurrence of cancer patients. Conclusion: considering that the offer and the technical guidance regarding palliative care for users served by health establishments authorized by Brazilian Health System for the specialized assistance in oncology are mandatory, we need to estimate the needs, resources and specify parameters to structure and tailor an adequate modality of assistance in palliative care.
背景:巴西卫生系统(SUS)面临着重大挑战,以确保全民普遍获得卫生保健援助和技术进步的宪法权利。对人口老龄化、癌症发病率上升和慢性非传染性疾病出现的关注,将姑息治疗作为巴西卫生系统(SUS)的目标之一。然而,考虑到每种疾病和个人都有不同的社会和文化因素、需求、疾病进展模式、相关的合并症和获得保健的机会,估计必要的资源和确定在保健服务中构建和适应姑息治疗的具体标准在巴西一直是一项艰巨的任务。因此,有必要估计需求和资源,并指定参数,以结构和量身定制在姑息治疗援助的适当模式。目的:1)估计人群中需要姑息治疗的癌症患者数量;2)模拟基于人口估计的姑息治疗方法。方法:本方法采用定量方法,对住院癌症患者进行描述性、探索性、回顾性和观察性研究。这是一项使用死亡证明和住院数据的横断面研究,数据来自巴西卫生系统(SUS)的死亡率信息系统(SIM)和医院信息系统(SIH),数据来自卫生信息部(DATASUS)的数据库。结果:每年向巴西死亡率信息系统报告的死亡人数约为110万人,其中15.9%与癌症患者有关。2008年至2014年期间,巴西有近450万癌症患者住院(4,431,685人),在所有癌症患者住院中,有1,189.908人(26.85%)与疾病和/或治疗的复发有关。一般癌症患者的平均住院死亡率为7.7,临床复发癌症患者的平均住院死亡率为21.4,而一般癌症患者的平均住院时间为5.7天,临床复发癌症患者的平均住院时间为7.9天。结论:考虑到巴西卫生系统授权的卫生机构为肿瘤专业援助服务的用户提供姑息治疗的服务和技术指导是强制性的,我们需要估计需求、资源并指定参数,以构建和定制适当的姑息治疗援助模式。
{"title":"Needs for Palliative Care of Cancer Patients in Brazil: Analysis of Data from 2008-2014","authors":"C. D. Santos, J. Caldas, J. Serafim, N. Barros, A. Pereira, M. Capra, A. Stein","doi":"10.4172/2165-7386.1000294","DOIUrl":"https://doi.org/10.4172/2165-7386.1000294","url":null,"abstract":"Background: The Brazilian Health System (SUS) faces major challenges to ensure the constitutional right of universal access to health care assistance and technological advances to the entire population. Concerns with the ageing population, the increasing incidence of cancer and the emergence of chronic non-communicable diseases include palliative care as one of the objectives of the Brazilian Health System (SUS). However, considering that each disease and individual present different social and cultural factors, needs, pattern of disease progression, associated co-morbidities and access to health care, the estimation of necessary resources and the definition of specific criteria to structure and adapt palliative care in the health services have been a difficult task in Brazil. Thus, it is necessary to estimate the needs and the resources and to specify parameters to structure and tailor an adequate modality of assistance in palliative care. Aims: 1) To estimate the number of cancer patients with palliative care needs in the population; 2) To simulate palliative care methods for population based estimation. Methods: The present methodology has a quantitative approach, with descriptive, exploratory, retrospective and observational studies of hospitalized cancer patients. This is a cross-sectional study using death certificate and hospital admission data, which was collected from the Mortality Information System (SIM) and Hospital Information System (SIH) of the Brazilian Health System (SUS), obtained from the database of the Health Information Department (DATASUS). Results: Yearly around 1.1 million deaths were reported to the Brazilian Mortality Information System, being 15.9% of these related to people living with cancer. Between 2008 and 2014, there were almost 4.5 million hospitalizations (4,431,685) of patients with cancer in Brazil, and, of all the hospital admissions of cancer patients, 1.189.908 (26.85%) were related to intercurrences of the disease and/or of treatment. The average rate of hospital mortality was 7.7 for cancer in general and 21.4 for clinical intercurrence of cancer patients, while the average length of stay (LOS) was 5.7 days for cancer in general and 7.9 days for clinical intercurrence of cancer patients. Conclusion: considering that the offer and the technical guidance regarding palliative care for users served by health establishments authorized by Brazilian Health System for the specialized assistance in oncology are mandatory, we need to estimate the needs, resources and specify parameters to structure and tailor an adequate modality of assistance in palliative care.","PeriodicalId":91127,"journal":{"name":"Journal of palliative care & medicine","volume":"2017 1","pages":"1-8"},"PeriodicalIF":0.0,"publicationDate":"2017-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.4172/2165-7386.1000294","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"70683974","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 4
Family Caregivers and Palliative Care of Patients with Disorder in Consciousness 意识障碍患者的家庭照顾者与姑息治疗
Pub Date : 2017-01-01 DOI: 10.4172/2165-7386.1000305
Zahra Imani Goghary
{"title":"Family Caregivers and Palliative Care of Patients with Disorder in Consciousness","authors":"Zahra Imani Goghary","doi":"10.4172/2165-7386.1000305","DOIUrl":"https://doi.org/10.4172/2165-7386.1000305","url":null,"abstract":"","PeriodicalId":91127,"journal":{"name":"Journal of palliative care & medicine","volume":"7 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2017-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.4172/2165-7386.1000305","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"70683718","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Will You Be My Doctor? A Different Approach to Treating Patients with ChronicPain 你愿意做我的医生吗?治疗慢性疼痛患者的不同方法
Pub Date : 2017-01-01 DOI: 10.4172/2165-7386.1000309
Padmashri Rastogi
{"title":"Will You Be My Doctor? A Different Approach to Treating Patients with ChronicPain","authors":"Padmashri Rastogi","doi":"10.4172/2165-7386.1000309","DOIUrl":"https://doi.org/10.4172/2165-7386.1000309","url":null,"abstract":"","PeriodicalId":91127,"journal":{"name":"Journal of palliative care & medicine","volume":"7 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2017-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.4172/2165-7386.1000309","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"70683870","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Benefits of Palliative Care Interventions for Patients with Heart Failure - A Literature Review 姑息治疗干预心力衰竭患者的益处-文献综述
Pub Date : 2017-01-01 DOI: 10.4172/2165-7386.1000324
K. Hnyda, A. Avadhani
Palliative care is an underused resource with the heart failure patient population. Many of these patients suffer not only from physical alignments but mental, spiritual and financial ones. Heart failure patients face many challenges such as frequent readmissions and a declining quality of life. This not only affects the patients but their families as well. Early palliative care intervention can decrease hospital readmissions and improve quality of life. Although advances in medicine have allowed for the heart failure patient to have more options in prolonging their life, sudden cardiac death may still occur. This uncertainty with the trajectory of death makes it difficult for some health care providers to initiate early discussions of palliative care. Many heart failure patients and their families see heart failure as a benign disease which makes it seem unnecessary for early palliative care interventions. Palliative care, by some people, is perceived as imminent death and not as an improvement to the quality of life. These patients are not being offered appropriate palliative care until their disease has exhausted all treatment plans. Many medical providers do not feel comfortable discussing early palliative care interventions, which in turn can lead to the lack of initiation into the patient’s heart failure treatment. Implementing a multidisciplinary team approach will allow cardiologists to work with other health care team members to provide for the highest quality of life. The purpose of this paper is to review the implementation process and benefits palliative care services offered to the heart failure patient community.
姑息治疗在心力衰竭患者群体中是一种未充分利用的资源。许多这样的病人不仅遭受身体上的痛苦,而且还遭受精神上、精神上和经济上的痛苦。心力衰竭患者面临许多挑战,如频繁再入院和生活质量下降。这不仅影响到患者,也影响到他们的家人。早期姑息治疗干预可以减少再入院率,提高生活质量。尽管医学的进步使心力衰竭患者有更多的选择来延长他们的生命,但心源性猝死仍然可能发生。这种与死亡轨迹的不确定性使得一些卫生保健提供者难以启动姑息治疗的早期讨论。许多心力衰竭患者和他们的家人认为心力衰竭是一种良性疾病,这使得早期姑息治疗干预似乎没有必要。一些人认为,姑息治疗是迫在眉睫的死亡,而不是生活质量的改善。这些病人直到用尽了所有的治疗方案才得到适当的姑息治疗。许多医疗服务提供者不愿意讨论早期姑息治疗干预措施,这反过来又会导致患者心力衰竭治疗缺乏开端。实施多学科团队方法将允许心脏病专家与其他医疗保健团队成员合作,提供最高质量的生活。本文的目的是回顾实施过程和利益姑息治疗服务提供给心力衰竭患者社区。
{"title":"The Benefits of Palliative Care Interventions for Patients with Heart Failure - A Literature Review","authors":"K. Hnyda, A. Avadhani","doi":"10.4172/2165-7386.1000324","DOIUrl":"https://doi.org/10.4172/2165-7386.1000324","url":null,"abstract":"Palliative care is an underused resource with the heart failure patient population. Many of these patients suffer not only from physical alignments but mental, spiritual and financial ones. Heart failure patients face many challenges such as frequent readmissions and a declining quality of life. This not only affects the patients but their families as well. Early palliative care intervention can decrease hospital readmissions and improve quality of life. Although advances in medicine have allowed for the heart failure patient to have more options in prolonging their life, sudden cardiac death may still occur. This uncertainty with the trajectory of death makes it difficult for some health care providers to initiate early discussions of palliative care. Many heart failure patients and their families see heart failure as a benign disease which makes it seem unnecessary for early palliative care interventions. Palliative care, by some people, is perceived as imminent death and not as an improvement to the quality of life. These patients are not being offered appropriate palliative care until their disease has exhausted all treatment plans. Many medical providers do not feel comfortable discussing early palliative care interventions, which in turn can lead to the lack of initiation into the patient’s heart failure treatment. Implementing a multidisciplinary team approach will allow cardiologists to work with other health care team members to provide for the highest quality of life. The purpose of this paper is to review the implementation process and benefits palliative care services offered to the heart failure patient community.","PeriodicalId":91127,"journal":{"name":"Journal of palliative care & medicine","volume":"7 1","pages":"1-5"},"PeriodicalIF":0.0,"publicationDate":"2017-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.4172/2165-7386.1000324","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"70683744","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effects of Synchronizied Physio and Harp Music Therapy 物理与竖琴音乐同步治疗的效果
Pub Date : 2017-01-01 DOI: 10.4172/2165-7386.1000314
T. Opsahl, T. BroJorgensen, T. Ishøy
{"title":"Effects of Synchronizied Physio and Harp Music Therapy","authors":"T. Opsahl, T. BroJorgensen, T. Ishøy","doi":"10.4172/2165-7386.1000314","DOIUrl":"https://doi.org/10.4172/2165-7386.1000314","url":null,"abstract":"","PeriodicalId":91127,"journal":{"name":"Journal of palliative care & medicine","volume":"7 1","pages":"1-2"},"PeriodicalIF":0.0,"publicationDate":"2017-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"70683987","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Journal of palliative care & medicine
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1