Pub Date : 2020-04-01DOI: 10.1097/DBP.0000000000000748
P. Zengin Akkus, Berrak Bilginer Gurbuz, Kısmet Çıkı, E. İLTER BAHADUR, S. Karahan, E. Ozmert, T. Coşkun, S. Sivri
OBJECTIVES Phenylketonuria (PKU) and mild hyperphenylalaninemia (HPA) are characterized by increased blood phenylalanine concentrations varying from mild to severe. Management of PKU was reported to be time consuming and burdensome for caregivers. This study intended to explore the experiences of families caring for a child with PKU/HPA in a country with a high PKU rate. The aim of this study was to compare parental well-being between parents of children with and without dietary restrictions and to explore the factors associated with parental psychological well-being. METHODS Participants were interviewed about their experiences, concerns, and challenges related to the disease by using a semistructured questionnaire. After the interview, parents filled out the Beck Depression Inventory and State-Trait Anxiety Inventory-Trait. RESULTS This study highlighted the adverse psychological, financial, and social effects of the diagnosis and management of the disease regarding the lives of the families of children with PKU/HPA. Although parental anxiety scores of children with and without dietary restrictions were similar, depressive symptom scores were higher in parents of children with dietary restrictions. However, in multiple regression analysis, lower household income and absence of perceived social support were found to be independent factors associated with higher depressive symptom scores. Having a daughter diagnosed with PKU/HPA and lower household income were found to be factors associated with higher anxiety scores. CONCLUSION This study revealed that income level, perceived social support, and gender of the child were factors associated with psychological well-being of parents caring for children with PKU/HPA. Health care professionals should identify the challenges faced by families and should be aware of risk factors associated with lower parental well-being to achieve better family adjustment and better health outcomes.
{"title":"Caring for a Child with Phenylketonuria: Parental Experiences from a Eurasian Country.","authors":"P. Zengin Akkus, Berrak Bilginer Gurbuz, Kısmet Çıkı, E. İLTER BAHADUR, S. Karahan, E. Ozmert, T. Coşkun, S. Sivri","doi":"10.1097/DBP.0000000000000748","DOIUrl":"https://doi.org/10.1097/DBP.0000000000000748","url":null,"abstract":"OBJECTIVES\u0000Phenylketonuria (PKU) and mild hyperphenylalaninemia (HPA) are characterized by increased blood phenylalanine concentrations varying from mild to severe. Management of PKU was reported to be time consuming and burdensome for caregivers. This study intended to explore the experiences of families caring for a child with PKU/HPA in a country with a high PKU rate. The aim of this study was to compare parental well-being between parents of children with and without dietary restrictions and to explore the factors associated with parental psychological well-being.\u0000\u0000\u0000METHODS\u0000Participants were interviewed about their experiences, concerns, and challenges related to the disease by using a semistructured questionnaire. After the interview, parents filled out the Beck Depression Inventory and State-Trait Anxiety Inventory-Trait.\u0000\u0000\u0000RESULTS\u0000This study highlighted the adverse psychological, financial, and social effects of the diagnosis and management of the disease regarding the lives of the families of children with PKU/HPA. Although parental anxiety scores of children with and without dietary restrictions were similar, depressive symptom scores were higher in parents of children with dietary restrictions. However, in multiple regression analysis, lower household income and absence of perceived social support were found to be independent factors associated with higher depressive symptom scores. Having a daughter diagnosed with PKU/HPA and lower household income were found to be factors associated with higher anxiety scores.\u0000\u0000\u0000CONCLUSION\u0000This study revealed that income level, perceived social support, and gender of the child were factors associated with psychological well-being of parents caring for children with PKU/HPA. Health care professionals should identify the challenges faced by families and should be aware of risk factors associated with lower parental well-being to achieve better family adjustment and better health outcomes.","PeriodicalId":15655,"journal":{"name":"Journal of Developmental & Behavioral Pediatrics","volume":"46 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88618522","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-04-01DOI: 10.1097/DBP.0000000000000743
M. Whipps, Elizabeth B. Miller, D. Bogen, A. Mendelsohn, Pamela A. Morris, D. Shaw, R. Gross
OBJECTIVE To examine the associations between breastfeeding intensity and underexplored features of maternal-child interaction quality over and above the influence of breastfeeding initiation. METHODS The current study leveraged an on-going, multisite randomized controlled trial of a tiered parenting program for 462 Medicaid-eligible mothers and their infants in the United States. We examined whether breastfeeding intensity and exclusivity was associated with observed maternal sensitivity, intrusiveness, and detachment, as well as self-reported maternal verbal responsiveness, 6 months infant age. Analyses controlled for breastfeeding initiation, demographics, and early parenting experiences. RESULTS Higher intensity breastfeeding at 6 months was significantly related to higher maternal sensitivity (β = 0.12, p = 0.004) and lower maternal intrusiveness (β = -0.10, p = 0.045). There was no significant association between breastfeeding intensity at 6 months and detachment (β = -0.02, no significant [ns]) or self-reported verbal responsiveness (β = 0.11, ns). Results were the same when intensity was measured as a dichotomous indicator for exclusive breastfeeding. Effect sizes were small-to-moderate, ranging from Cohen's d = 0.26 to 0.31. Associations did not vary by site, race/ethnicity, infant difficultness, or household poverty. CONCLUSION The finding that breastfeeding intensity was significantly and independently associated with maternal sensitivity and intrusiveness is novel in the literature on low-income families from the United States. These findings have implications for breastfeeding promotion strategies and indicate that future research should explore synergistic or spillover effects of interventions aimed at maternal-child interaction quality into the infant feeding domain, particularly in the primary care setting.
目的探讨母乳喂养强度与未被充分发掘的母婴互动质量特征之间的关系，以及母乳喂养开始的影响。方法:目前的研究利用了一项正在进行的、多地点的随机对照试验，该试验对美国462名符合医疗补助条件的母亲及其婴儿进行了分层育儿计划。我们研究了母乳喂养强度和排他性是否与观察到的母亲敏感性、侵入性和超然性以及自我报告的母亲言语反应有关。分析控制了母乳喂养开始、人口统计学和早期养育经历。结果6月龄时母乳喂养强度越高，产妇敏感性越高(β = 0.12, p = 0.004)，产妇侵入性越低(β = -0.10, p = 0.045)。6个月时母乳喂养强度与脱离(β = -0.02，无显著[ns])或自我报告的言语反应(β = 0.11, ns)之间无显著关联。当强度作为纯母乳喂养的二分类指标进行测量时，结果是相同的。效应大小从小到中等，科恩的d = 0.26至0.31。关联不因地点、种族/民族、婴儿困难或家庭贫困而异。结论在美国低收入家庭中，母乳喂养强度与母亲的敏感性和侵入性存在显著且独立的相关性，这一发现在文献中是新颖的。这些发现对母乳喂养促进策略具有启示意义，并表明未来的研究应探索旨在提高母婴互动质量的干预措施在婴儿喂养领域的协同效应或溢出效应，特别是在初级保健环境中。
{"title":"Breastfeeding Behaviors and Maternal Interaction Quality in a Low-Income, Ethnic Minority Population.","authors":"M. Whipps, Elizabeth B. Miller, D. Bogen, A. Mendelsohn, Pamela A. Morris, D. Shaw, R. Gross","doi":"10.1097/DBP.0000000000000743","DOIUrl":"https://doi.org/10.1097/DBP.0000000000000743","url":null,"abstract":"OBJECTIVE\u0000To examine the associations between breastfeeding intensity and underexplored features of maternal-child interaction quality over and above the influence of breastfeeding initiation.\u0000\u0000\u0000METHODS\u0000The current study leveraged an on-going, multisite randomized controlled trial of a tiered parenting program for 462 Medicaid-eligible mothers and their infants in the United States. We examined whether breastfeeding intensity and exclusivity was associated with observed maternal sensitivity, intrusiveness, and detachment, as well as self-reported maternal verbal responsiveness, 6 months infant age. Analyses controlled for breastfeeding initiation, demographics, and early parenting experiences.\u0000\u0000\u0000RESULTS\u0000Higher intensity breastfeeding at 6 months was significantly related to higher maternal sensitivity (β = 0.12, p = 0.004) and lower maternal intrusiveness (β = -0.10, p = 0.045). There was no significant association between breastfeeding intensity at 6 months and detachment (β = -0.02, no significant [ns]) or self-reported verbal responsiveness (β = 0.11, ns). Results were the same when intensity was measured as a dichotomous indicator for exclusive breastfeeding. Effect sizes were small-to-moderate, ranging from Cohen's d = 0.26 to 0.31. Associations did not vary by site, race/ethnicity, infant difficultness, or household poverty.\u0000\u0000\u0000CONCLUSION\u0000The finding that breastfeeding intensity was significantly and independently associated with maternal sensitivity and intrusiveness is novel in the literature on low-income families from the United States. These findings have implications for breastfeeding promotion strategies and indicate that future research should explore synergistic or spillover effects of interventions aimed at maternal-child interaction quality into the infant feeding domain, particularly in the primary care setting.","PeriodicalId":15655,"journal":{"name":"Journal of Developmental & Behavioral Pediatrics","volume":"10 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89635530","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-04-01DOI: 10.1097/DBP.0000000000000798
Kimberley J. Levitt, Prachi E Shah
{"title":"Emotion Regulation in Children and Adolescents: A Practitioner's Guide","authors":"Kimberley J. Levitt, Prachi E Shah","doi":"10.1097/DBP.0000000000000798","DOIUrl":"https://doi.org/10.1097/DBP.0000000000000798","url":null,"abstract":"","PeriodicalId":15655,"journal":{"name":"Journal of Developmental & Behavioral Pediatrics","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"77958273","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-04-01DOI: 10.1097/DBP.0000000000000784
Carol C Weitzman, Jennifer K. Poon, J. H. Sia, A. Egan
Academic Performance, Screen Media Use Adelantado-Renau M, Molinder-Urdiales D, CaveroRedondo I, et al. Association between screen media use and academic performance among children and adolescents. JAMA Pediatr. 2019;173:1058–1067. The literature has shown mixed results in the evaluation of the association between screen media use and academic performance. This study seeks to examine the association between time spent on screen-based activities and specific academic performance areas. This systematic review and meta-analysis followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) and the Cochrane handbook. The search strategy was performed through multiple databases from their inception through September 2018. Inclusion criteria were studies with the following characteristics: (1) participants who were 4 to 18 years of age or primary, elementary, and secondary school students; (2) exposure was usage time or frequency of screen-based activities; (3) outcomes analyzed as academic performance recorded as school grades, standardized test, or other measurements, including school performance or academic failure; (4) study design was cross sectional; and (5) language of articles in English or Spanish. Articles excluded were those not reporting findings concerning the association between time or frequency of screen media use and academic performance, and studies that included toddlers or participants with disorders that could limit generalization of data. Of 5599 records identified, 58 cross-sectional studies met the inclusion criteria, and 30 (52%) were included in the meta-analysis. There were a total of 106,653 total participants (ranging from 70 to 42,041 people per study). The pooled effect size estimate did not find an association between overall screen media time/frequency and composite scores on academic performance {pooled estimated effect size [ES]20.29 (95% confidence interval [CI],20.65 to 0.08)}. Television viewing and academic performance areas were inversely associated (pooled ES 20.19 (95% CI,20.29 to 20.09) for composite academic performance scores, 20.18 [95% CI, 20.36 to 20.01] for language scores, and 20.25 [95% CI, 20.33 to 20.16] for math). This was also true for association between the duration of video game time and composite scores (pooled ES 20.15 (95% CI, 20.22 to 20.08). Subgroup analyses conducted in children (between 4 and 11.9 years) and adolescents demonstrated that in children, television watching duration was inversely associated with language (ES 20.20; 95% CI, 20.26 to 20.15) and math (ES 20.36; 95% CI, 20.66 to 20.07) while in adolescents, the duration of television watching was inversely associated with composite scores (ES 20.19; 95% CI, 20.30 to 20.07) and math (ES 20.21; 95% CI, 20.26 to 20.15). Video game playing duration was also inversely associated with composite scores of adolescents only (ES 20.16; 95% CI, 20.24 to 20.09). Although there was a lack of association between the
{"title":"Journal Article Reviews.","authors":"Carol C Weitzman, Jennifer K. Poon, J. H. Sia, A. Egan","doi":"10.1097/DBP.0000000000000784","DOIUrl":"https://doi.org/10.1097/DBP.0000000000000784","url":null,"abstract":"Academic Performance, Screen Media Use Adelantado-Renau M, Molinder-Urdiales D, CaveroRedondo I, et al. Association between screen media use and academic performance among children and adolescents. JAMA Pediatr. 2019;173:1058–1067. The literature has shown mixed results in the evaluation of the association between screen media use and academic performance. This study seeks to examine the association between time spent on screen-based activities and specific academic performance areas. This systematic review and meta-analysis followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) and the Cochrane handbook. The search strategy was performed through multiple databases from their inception through September 2018. Inclusion criteria were studies with the following characteristics: (1) participants who were 4 to 18 years of age or primary, elementary, and secondary school students; (2) exposure was usage time or frequency of screen-based activities; (3) outcomes analyzed as academic performance recorded as school grades, standardized test, or other measurements, including school performance or academic failure; (4) study design was cross sectional; and (5) language of articles in English or Spanish. Articles excluded were those not reporting findings concerning the association between time or frequency of screen media use and academic performance, and studies that included toddlers or participants with disorders that could limit generalization of data. Of 5599 records identified, 58 cross-sectional studies met the inclusion criteria, and 30 (52%) were included in the meta-analysis. There were a total of 106,653 total participants (ranging from 70 to 42,041 people per study). The pooled effect size estimate did not find an association between overall screen media time/frequency and composite scores on academic performance {pooled estimated effect size [ES]20.29 (95% confidence interval [CI],20.65 to 0.08)}. Television viewing and academic performance areas were inversely associated (pooled ES 20.19 (95% CI,20.29 to 20.09) for composite academic performance scores, 20.18 [95% CI, 20.36 to 20.01] for language scores, and 20.25 [95% CI, 20.33 to 20.16] for math). This was also true for association between the duration of video game time and composite scores (pooled ES 20.15 (95% CI, 20.22 to 20.08). Subgroup analyses conducted in children (between 4 and 11.9 years) and adolescents demonstrated that in children, television watching duration was inversely associated with language (ES 20.20; 95% CI, 20.26 to 20.15) and math (ES 20.36; 95% CI, 20.66 to 20.07) while in adolescents, the duration of television watching was inversely associated with composite scores (ES 20.19; 95% CI, 20.30 to 20.07) and math (ES 20.21; 95% CI, 20.26 to 20.15). Video game playing duration was also inversely associated with composite scores of adolescents only (ES 20.16; 95% CI, 20.24 to 20.09). Although there was a lack of association between the ","PeriodicalId":15655,"journal":{"name":"Journal of Developmental & Behavioral Pediatrics","volume":"71 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"82640621","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-02-01DOI: 10.1097/DBP.0000000000000733
F. Cook, Laura J Conway, Deirdre Gartland, R. Giallo, Elizabeth M. Keys, S. Brown
OBJECTIVE To identify profiles and predictors of maternal-reported infant sleep problems across the first postnatal year. METHODS Survey data examining maternal mental and physical health, intimate partner violence (IPV), and infant sleep problems and night waking were gathered from a cohort of 1,460 nulliparous women at 15 weeks' gestation and when their infants were 3, 6, 9, and 12 months old. RESULTS Latent class analysis revealed 5 profiles of infant sleep problems, including those who had few problems (24.7%), persistent moderate problems (27.3%), increased problems at 6 months (10.8%), increased problems at 9 months (17.8%), and persistent severe problems (19.4%). Persistent severe infant sleep problems were associated with prepartum and postpartum maternal depression (adjusted odds ratio [AOR] 2.13, 95% confidence interval [CI] 1.35-3.34, p < 0.01; AOR 2.52, 95% CI 1.64-3.87, p < 0.001, respectively), poorer prepartum and postpartum perception of health (adjusted mean difference [AMD] 23.48, 95% CI 24.9 to 22.1, p < 0.01; AMD 23.78, 95% CI 25.2 to 22.4, p < 0.001, respectively), increased postpartum anxiety (AOR 2.22, 95% CI 1.26-3.90, p < 0.01), and increased prevalence of IPV in the first year postpartum (AOR 1.86, 95% CI 1.20-2.87, p < 0.01). CONCLUSION Poorer prepartum and postpartum maternal mental and physical health, and IPV, were associated with maternal report of persistent severe infant sleep problems. Women experiencing prenatal physical and mental health difficulties may benefit from advice on managing infant sleep and settling. Health professionals working with unsettled infants must be equipped to enquire about and respond appropriately to disclosures of IPV.
目的:确定母亲报告的婴儿出生后第一年睡眠问题的概况和预测因素。方法收集1460名怀孕15周、婴儿3、6、9和12个月时未生育的产妇的身心健康、亲密伴侣暴力(IPV)、婴儿睡眠问题和夜间清醒情况的调查数据。结果通过分类分析，共发现5种类型的婴儿睡眠问题，包括少数问题(24.7%)、持续中度问题(27.3%)、6个月时问题加重(10.8%)、9个月时问题加重(17.8%)和持续重度问题(19.4%)。持续重度婴儿睡眠问题与孕前、产后母亲抑郁相关(调整优势比[AOR] 2.13, 95%可信区间[CI] 1.35 ~ 3.34, p < 0.01;AOR分别为2.52,95% CI为1.64 ~ 3.87,p < 0.001)，产前产后健康感知较差(调整平均差[AMD] 23.48, 95% CI为24.9 ~ 22.1,p < 0.01;AMD (23.78, 95% CI 25.2 ~ 22.4, p < 0.001)，产后焦虑增加(AOR 2.22, 95% CI 1.26 ~ 3.90, p < 0.01)，产后第一年IPV患病率增加(AOR 1.86, 95% CI 1.20 ~ 2.87, p < 0.01)。结论孕产期母亲身心健康状况较差和IPV与母亲报告的持续性重度婴儿睡眠问题有关。遇到产前身心健康问题的妇女可能会从管理婴儿睡眠和安顿方面的建议中受益。与未安置婴儿打交道的卫生专业人员必须具备对IPV的披露进行查询和适当应对的能力。
{"title":"Profiles and Predictors of Infant Sleep Problems Across the First Year.","authors":"F. Cook, Laura J Conway, Deirdre Gartland, R. Giallo, Elizabeth M. Keys, S. Brown","doi":"10.1097/DBP.0000000000000733","DOIUrl":"https://doi.org/10.1097/DBP.0000000000000733","url":null,"abstract":"OBJECTIVE\u0000To identify profiles and predictors of maternal-reported infant sleep problems across the first postnatal year.\u0000\u0000\u0000METHODS\u0000Survey data examining maternal mental and physical health, intimate partner violence (IPV), and infant sleep problems and night waking were gathered from a cohort of 1,460 nulliparous women at 15 weeks' gestation and when their infants were 3, 6, 9, and 12 months old.\u0000\u0000\u0000RESULTS\u0000Latent class analysis revealed 5 profiles of infant sleep problems, including those who had few problems (24.7%), persistent moderate problems (27.3%), increased problems at 6 months (10.8%), increased problems at 9 months (17.8%), and persistent severe problems (19.4%). Persistent severe infant sleep problems were associated with prepartum and postpartum maternal depression (adjusted odds ratio [AOR] 2.13, 95% confidence interval [CI] 1.35-3.34, p < 0.01; AOR 2.52, 95% CI 1.64-3.87, p < 0.001, respectively), poorer prepartum and postpartum perception of health (adjusted mean difference [AMD] 23.48, 95% CI 24.9 to 22.1, p < 0.01; AMD 23.78, 95% CI 25.2 to 22.4, p < 0.001, respectively), increased postpartum anxiety (AOR 2.22, 95% CI 1.26-3.90, p < 0.01), and increased prevalence of IPV in the first year postpartum (AOR 1.86, 95% CI 1.20-2.87, p < 0.01).\u0000\u0000\u0000CONCLUSION\u0000Poorer prepartum and postpartum maternal mental and physical health, and IPV, were associated with maternal report of persistent severe infant sleep problems. Women experiencing prenatal physical and mental health difficulties may benefit from advice on managing infant sleep and settling. Health professionals working with unsettled infants must be equipped to enquire about and respond appropriately to disclosures of IPV.","PeriodicalId":15655,"journal":{"name":"Journal of Developmental & Behavioral Pediatrics","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79814508","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-02-01DOI: 10.1097/DBP.0000000000000728
L. Kelada, C. Wakefield, Maria C Cruz Silva, C. Signorelli
OBJECTIVE Camps for children with cancer and their families aim to promote positive psychosocial and physical outcomes for attendees. However, evidence for this is inconsistent, and previous reviews have not delineated between camps for children (patient/survivors and siblings) and family camps (including parents/guardians). Such understanding is necessary to understand the evidence-based benefits of each type of camp. Our systematic review summarizes the findings and limitations of the recent literature for children's camps and family camps. METHODS We searched MEDLINE/PubMed, PsycINFO, Social Work Abstracts, and Google Scholar for relevant articles published between 2013 and 2018. RESULTS Using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses protocol, we included 19 articles (from 15 studies) in the review. Evidence for the impact of camps was mixed. All articles reported positive outcomes, yet 3 quantitative articles also reported nonsignificant changes. Camps for children (representing 2151 children with cancer/survivors) appeared to facilitate social skills, self-esteem, and physical activity. Family camps (representing 96 families) may provide families the opportunity to reconnect. Both types of camp provide attendees with social support and fun/respite. In 2 qualitative articles, some parents attending family camps reported tension between families of children on treatment and bereaved families. The literature is limited by small sample sizes and the lack of multisite, longitudinal, and controlled study designs. CONCLUSION The recent literature provides evidence for some positive, short-term psychosocial and physical outcomes of camps. Future research should use rigorous quasiexperimental designs and should assess the long-term impact of camp attendance.
目的:为癌症儿童及其家庭举办的夏令营旨在为参与者促进积极的社会心理和身体结果。然而，这方面的证据是不一致的，以前的综述没有划分儿童营地(病人/幸存者和兄弟姐妹)和家庭营地(包括父母/监护人)。这样的理解对于理解每一种营地的循证益处是必要的。我们的系统综述总结了最近关于儿童营地和家庭营地的文献的发现和局限性。方法检索MEDLINE/PubMed、PsycINFO、Social Work Abstracts和谷歌Scholar，检索2013 - 2018年发表的相关文章。使用系统评价和荟萃分析方案的首选报告项目，我们纳入了19篇文章(来自15项研究)。有关难民营影响的证据好坏参半。所有的文章都报告了积极的结果，但3篇定量文章也报告了不显著的变化。儿童营地(代表2151名患有癌症的儿童/幸存者)似乎促进了社交技能、自尊和身体活动。家庭营地(代表96个家庭)可能为家庭提供重新联系的机会。两种类型的营地都为参加者提供社会支持和乐趣/喘息。在两篇定性文章中，一些参加家庭营的父母报告说，接受治疗的儿童的家庭与失去亲人的家庭之间关系紧张。文献受限于样本量小，缺乏多地点、纵向和对照研究设计。结论最近的文献为营地的一些积极的、短期的心理和生理结果提供了证据。未来的研究应采用严格的准实验设计，并应评估营地出勤的长期影响。
{"title":"Camps for Children with Cancer and Their Families: A Systematic Review of Psychosocial and Physical Impacts.","authors":"L. Kelada, C. Wakefield, Maria C Cruz Silva, C. Signorelli","doi":"10.1097/DBP.0000000000000728","DOIUrl":"https://doi.org/10.1097/DBP.0000000000000728","url":null,"abstract":"OBJECTIVE\u0000Camps for children with cancer and their families aim to promote positive psychosocial and physical outcomes for attendees. However, evidence for this is inconsistent, and previous reviews have not delineated between camps for children (patient/survivors and siblings) and family camps (including parents/guardians). Such understanding is necessary to understand the evidence-based benefits of each type of camp. Our systematic review summarizes the findings and limitations of the recent literature for children's camps and family camps.\u0000\u0000\u0000METHODS\u0000We searched MEDLINE/PubMed, PsycINFO, Social Work Abstracts, and Google Scholar for relevant articles published between 2013 and 2018.\u0000\u0000\u0000RESULTS\u0000Using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses protocol, we included 19 articles (from 15 studies) in the review. Evidence for the impact of camps was mixed. All articles reported positive outcomes, yet 3 quantitative articles also reported nonsignificant changes. Camps for children (representing 2151 children with cancer/survivors) appeared to facilitate social skills, self-esteem, and physical activity. Family camps (representing 96 families) may provide families the opportunity to reconnect. Both types of camp provide attendees with social support and fun/respite. In 2 qualitative articles, some parents attending family camps reported tension between families of children on treatment and bereaved families. The literature is limited by small sample sizes and the lack of multisite, longitudinal, and controlled study designs.\u0000\u0000\u0000CONCLUSION\u0000The recent literature provides evidence for some positive, short-term psychosocial and physical outcomes of camps. Future research should use rigorous quasiexperimental designs and should assess the long-term impact of camp attendance.","PeriodicalId":15655,"journal":{"name":"Journal of Developmental & Behavioral Pediatrics","volume":"61 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76007279","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-02-01DOI: 10.1097/DBP.0000000000000739
G. Aylward
OBJECTIVE To determine whether correction for prematurity is appropriate for cognitive, language, and motor function at varying degrees of prematurity and at different baseline functional levels. METHODS The newly published Bayley-4 normative data on 1700 normal children were used. Raw scores for baseline levels of function (-2 SD, -1 SD, and M) were identified at 6, 12, 24, and 36 months for receptive communication, expressive communication, fine motor, and gross motor scaled scores and cognitive, language, and motor composite scores. Differences between the baseline and uncorrected scores at 4, 3, 2, and 1 months of prematurity were evaluated at each age. RESULTS Using a cutoff of 3 points (1/5 SD), correction is needed for cognitive composite scores at all gestational ages for the first 2 years and in those born 4 months premature at 3 years of age; language and motor composite scores should be corrected to 3 years at all degrees of prematurity. CONCLUSION Not correcting for prematurity in cognitive, language, and motor function at 3 years and younger places preterm infants at a distinct disadvantage when compared to peers with few exceptions, suggesting that such correction should be routine.
{"title":"Is It Correct to Correct for Prematurity? Theoretic Analysis of the Bayley-4 Normative Data.","authors":"G. Aylward","doi":"10.1097/DBP.0000000000000739","DOIUrl":"https://doi.org/10.1097/DBP.0000000000000739","url":null,"abstract":"OBJECTIVE\u0000To determine whether correction for prematurity is appropriate for cognitive, language, and motor function at varying degrees of prematurity and at different baseline functional levels.\u0000\u0000\u0000METHODS\u0000The newly published Bayley-4 normative data on 1700 normal children were used. Raw scores for baseline levels of function (-2 SD, -1 SD, and M) were identified at 6, 12, 24, and 36 months for receptive communication, expressive communication, fine motor, and gross motor scaled scores and cognitive, language, and motor composite scores. Differences between the baseline and uncorrected scores at 4, 3, 2, and 1 months of prematurity were evaluated at each age.\u0000\u0000\u0000RESULTS\u0000Using a cutoff of 3 points (1/5 SD), correction is needed for cognitive composite scores at all gestational ages for the first 2 years and in those born 4 months premature at 3 years of age; language and motor composite scores should be corrected to 3 years at all degrees of prematurity.\u0000\u0000\u0000CONCLUSION\u0000Not correcting for prematurity in cognitive, language, and motor function at 3 years and younger places preterm infants at a distinct disadvantage when compared to peers with few exceptions, suggesting that such correction should be routine.","PeriodicalId":15655,"journal":{"name":"Journal of Developmental & Behavioral Pediatrics","volume":"16 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85027023","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-02-01DOI: 10.1097/DBP.0000000000000731
S. Mittal, A. Boan, Silvia Pereira-Smith, Angela C. Larosa
OBJECTIVE As part of the 2011 American Academy of Pediatrics (AAP) health supervision guidelines for children with Down syndrome (DS), annual screening for iron deficiency anemia is recommended between the ages of 1 and 18 years, but the evidence supporting this recommendation is limited. This study aimed to assess the prevalence of anemia in patients with DS between the ages of 1 and 18 years to provide additional evidence for the AAP 2011 guideline recommendations for annual hemoglobin and ferritin screening in patients with DS. METHODS A retrospective cohort study was completed by obtaining data from the electronic health record (EHR) for patients meeting the following inclusion criterion: a diagnosis of DS in patients aged 1 to 18 years seen at our institution with hemoglobin drawn between July 2012 and 2016. Data were analyzed by the Fisher exact test and χ test. RESULTS A total of 200 patients were identified. 22.5% had anemia, defined as a hemoglobin concentration less than 2 SDs for normed age. The National Health and Nutrition Examination Survey (2007-2010) reported prevalence of anemia for children aged 1 to 5 years is 3.2% when compared with 18.7% in our sample. Of the 45 children with anemia, 5% had a microcytic, 67.5% a normocytic, and 27.5% a macrocytic anemia. Only 10 received a diagnosis of anemia in the EHR. CONCLUSION The prevalence of anemia in this cohort of children with DS is significantly higher than that in the general population, supporting the AAP guidelines for an annual screening until the age of 18 years.
{"title":"Screening for Anemia in Children with Down Syndrome.","authors":"S. Mittal, A. Boan, Silvia Pereira-Smith, Angela C. Larosa","doi":"10.1097/DBP.0000000000000731","DOIUrl":"https://doi.org/10.1097/DBP.0000000000000731","url":null,"abstract":"OBJECTIVE\u0000As part of the 2011 American Academy of Pediatrics (AAP) health supervision guidelines for children with Down syndrome (DS), annual screening for iron deficiency anemia is recommended between the ages of 1 and 18 years, but the evidence supporting this recommendation is limited. This study aimed to assess the prevalence of anemia in patients with DS between the ages of 1 and 18 years to provide additional evidence for the AAP 2011 guideline recommendations for annual hemoglobin and ferritin screening in patients with DS.\u0000\u0000\u0000METHODS\u0000A retrospective cohort study was completed by obtaining data from the electronic health record (EHR) for patients meeting the following inclusion criterion: a diagnosis of DS in patients aged 1 to 18 years seen at our institution with hemoglobin drawn between July 2012 and 2016. Data were analyzed by the Fisher exact test and χ test.\u0000\u0000\u0000RESULTS\u0000A total of 200 patients were identified. 22.5% had anemia, defined as a hemoglobin concentration less than 2 SDs for normed age. The National Health and Nutrition Examination Survey (2007-2010) reported prevalence of anemia for children aged 1 to 5 years is 3.2% when compared with 18.7% in our sample. Of the 45 children with anemia, 5% had a microcytic, 67.5% a normocytic, and 27.5% a macrocytic anemia. Only 10 received a diagnosis of anemia in the EHR.\u0000\u0000\u0000CONCLUSION\u0000The prevalence of anemia in this cohort of children with DS is significantly higher than that in the general population, supporting the AAP guidelines for an annual screening until the age of 18 years.","PeriodicalId":15655,"journal":{"name":"Journal of Developmental & Behavioral Pediatrics","volume":"329 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"73157250","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-02-01DOI: 10.1097/DBP.0000000000000722
Paloma A Ventura, Maria-Lucia C Lage, Alessandra L de Carvalho, Adriana S Fernandes, Tânia B Taguchi, C. Nascimento-Carvalho
OBJECTIVE To assess the gross motor development of children with presumed congenital Zika virus (ZIKV) infection over the first 2 years of their lives. METHODS Seventy-seven children were assessed at the median ages of 11, 18, and 24 months, using the evaluative instrument Gross Motor Function Measure (GMFM-66). At the third assessment, the children with diagnoses of cerebral palsy (CP) were classified by severity through the Gross Motor Function Classification System (GMFCS) and stratified by topography indicating the predominantly affected limbs. With these instruments in combination and using the motor development curves as reference, the rate of development and functional ability were estimated. RESULTS At 2 years of age, all children had the diagnosis of CP. Seventy-four (96.1%) presented gross motor skills similar to those of children aged 4 months or younger, according to the World Health Organization's standard. The GMFM-66 median score among the 73 (94.8%) children with quadriplegia and GMFCS level V showed significant change between 11 and 18 months (p < 0.001) and between 11 and 24 months (p < 0.001). No significant difference (p = 0.076) was found between 18 and 24 months. CONCLUSION Despite showing some gross motor progress during the initial 18 months of life, these children with presumed congenital ZIKV infection and CP experienced severe motor impairment by 2 years of age. According to the motor development curves, these children with quadriplegia have probably already reached about 90% of their motor development potential.
{"title":"Early Gross Motor Development Among Brazilian Children with Microcephaly Born Right After Zika Virus Infection Outbreak.","authors":"Paloma A Ventura, Maria-Lucia C Lage, Alessandra L de Carvalho, Adriana S Fernandes, Tânia B Taguchi, C. Nascimento-Carvalho","doi":"10.1097/DBP.0000000000000722","DOIUrl":"https://doi.org/10.1097/DBP.0000000000000722","url":null,"abstract":"OBJECTIVE\u0000To assess the gross motor development of children with presumed congenital Zika virus (ZIKV) infection over the first 2 years of their lives.\u0000\u0000\u0000METHODS\u0000Seventy-seven children were assessed at the median ages of 11, 18, and 24 months, using the evaluative instrument Gross Motor Function Measure (GMFM-66). At the third assessment, the children with diagnoses of cerebral palsy (CP) were classified by severity through the Gross Motor Function Classification System (GMFCS) and stratified by topography indicating the predominantly affected limbs. With these instruments in combination and using the motor development curves as reference, the rate of development and functional ability were estimated.\u0000\u0000\u0000RESULTS\u0000At 2 years of age, all children had the diagnosis of CP. Seventy-four (96.1%) presented gross motor skills similar to those of children aged 4 months or younger, according to the World Health Organization's standard. The GMFM-66 median score among the 73 (94.8%) children with quadriplegia and GMFCS level V showed significant change between 11 and 18 months (p < 0.001) and between 11 and 24 months (p < 0.001). No significant difference (p = 0.076) was found between 18 and 24 months.\u0000\u0000\u0000CONCLUSION\u0000Despite showing some gross motor progress during the initial 18 months of life, these children with presumed congenital ZIKV infection and CP experienced severe motor impairment by 2 years of age. According to the motor development curves, these children with quadriplegia have probably already reached about 90% of their motor development potential.","PeriodicalId":15655,"journal":{"name":"Journal of Developmental & Behavioral Pediatrics","volume":"94 6 Suppl 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"83367318","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
京公网安备 11010802042870号
京ICP备2023020795号-1
扫码关注我们
求助内容：
应助结果提醒方式：