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Patient's experience as a tool in analyzing primary care in Catalonia. 将患者体验作为分析加泰罗尼亚初级保健的工具。
IF 1.1 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-14 DOI: 10.1016/j.jhqr.2024.10.002
A Iruela, I Moral, G Gálvez, L M Jimenez, R Manzanera

Introduction: Primary health care is essential in a well-designed health system. A way of approaching the quality of an institution or service is evaluating different aspects like accessibility, treatment, satisfaction, and efficiency. The COVID-19 pandemic caused substantial disruptions in health systems. The present work focused on assessing the evolution of the experience of patients. It analyzed its relationship with various factors of the centers and the professionals' quality of life.

Methods: Retrospective quantitative study through a survey carried out in Catalonia evaluating the experience of users in relation to primary health care services. Results from years 2015, 2018, 2021 and 2022 are included in the study.

Results: Users from 370 centers were included in the study. The highest scores were registered in dimensions as environment and information (more than 90%), while accessibility was the worst scored dimension (mean 65.19). Global satisfaction scores were significantly higher in 2015 and 2018 and dropped the following years showing the impact of the COVID-19 pandemics.

Conclusion: The evolution of the patient experience in Catalonia shows a progressive decrease from the first edition in 2015 to the most recent edition in 2022, aggravated by the COVID-19 pandemic. During the pandemic, all the characteristics of primary care were affected, and they are beginning to recover. The resilience that primary care has shown during the pandemic contrasts with a downward valuation of the experience of patients who have used it.

引言在一个设计完善的医疗系统中,初级医疗保健是必不可少的。衡量机构或服务质量的一种方法是对可及性、治疗、满意度和效率等不同方面进行评估。COVID-19 大流行对医疗系统造成了严重破坏。目前的工作重点是评估患者体验的演变。方法:通过调查进行回顾性定量研究:方法:通过在加泰罗尼亚开展的一项调查进行回顾性定量研究,评估用户在初级医疗保健服务方面的体验。研究结果包括 2015 年、2018 年、2021 年和 2022 年的结果:来自 370 个中心的用户参与了研究。得分最高的维度是环境和信息(超过 90%),而可及性是得分最差的维度(平均 65.19)。全球满意度得分在2015年和2018年明显较高,随后几年有所下降,显示出COVID-19大流行的影响:加泰罗尼亚地区患者体验的演变表明,从2015年的第一版到2022年的最新版,患者体验在COVID-19大流行的影响下逐渐下降。在大流行期间,初级医疗的所有特征都受到了影响,目前正在开始恢复。初级医疗在大流行期间表现出的恢复力与使用过初级医疗的患者对其体验的评价下降形成了鲜明对比。
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引用次数: 0
Informational and educational needs of caregivers of neurologic inpatients in rehabilitation treatment: A qualitative exploratory study. 接受康复治疗的神经科住院患者的护理人员对信息和教育的需求:定性探索性研究。
IF 1.1 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-13 DOI: 10.1016/j.jhqr.2024.09.005
M Ottonello, C Pistarini, S Ruvolo, S Costa, V Navarra, C Murianni, E Cristallo, S Maiello, M R Tritto, M G Pagliarulo, M R Manera

Introduction: The aim of the present study was to identify information and educational needs of neurological inpatients during residential rehabilitation from the caregivers' perspective. On top of that, it was important to acknowledge the conceptual framework underlying the complexity of needs, for the development in future research of an early identification of caregiver's information needs assessment tool. This preliminary study will allow to define the dimensions on which to measure caregiver needs and the quality of care provided to the patients and their families.

Material and methods: Focus groups of family caregivers of inpatients admitted to the Neurorehabilitation Units by the ICS Maugeri Institutes were conducted to explore the caregivers needs. All focus groups were tape-recorded and contemporaneous notes made. The tapes were transcribed and thematic analysis was used to develop categories of needs. To ensure consistency between groups, a semi-structured schedule was used to guide the focus groups.

Results: In the analysis of the statements extracted from the transcripts we defined five main themes of information needs expressed from caregivers: education, hospital care organization, legal and social care management and emotional or psychological support.

Conclusion: The results provided the identification of the domains essential for the development of a questionnaire that measures the complexity of the caregiver's information needs during residential rehabilitation. The caregivers' statements expressed in the focus groups allowed to identify five main kinds of needs. Moreover, some suggestions and ideas to improve the information and education materials to satisfy these needs emerged from caregivers and health professionals during team meetings.

简介本研究旨在从护理人员的角度出发,确定神经系统住院患者在住院康复期间的信息和教育需求。此外,确认需求复杂性背后的概念框架也很重要,以便在今后的研究中开发出一种早期识别护理人员信息需求的评估工具。这项初步研究将有助于确定衡量照顾者需求和为患者及其家属提供的护理质量的维度:为了解护理人员的需求,ICS 毛杰里研究所对神经康复科住院患者的家庭护理人员进行了焦点小组讨论。所有焦点小组都进行了录音,并做了同期记录。对录音带进行了转录,并采用主题分析法对需求进行分类。为确保各小组之间的一致性,采用了半结构化时间表来指导焦点小组的工作:结果:在分析从录音誊本中提取的陈述时,我们确定了护理人员所表达的信息需求的五大主题:教育、医院护理组织、法律和社会护理管理以及情感或心理支持:结论:研究结果为编制一份调查问卷提供了重要依据,该问卷可衡量护理人员在住院康复期间对信息需求的复杂程度。根据护理人员在焦点小组中的发言,可以确定五种主要需求。此外,在小组会议期间,护理人员和保健专业人员还提出了一些建议和想法,以改进信息和教育材料,满足这些需求。
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引用次数: 0
[Outcomes of using Pulse Point Arrow as lean healthcare tool for managing paediatric patient safety in the surgical area]. [使用脉搏点箭头作为精益医疗工具管理外科领域儿科患者安全的成果]。
IF 1.1 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-12 DOI: 10.1016/j.jhqr.2024.09.006
A Cervera Barajas, L López Rodríguez, E Pérez Fernández, D Moreno Borrego, R M Romero Ruiz, P Bonachela Solás

Objective: To improve the safety's management in the urology paediatric surgical process of the Ambulatory Major Surgery Unit (AMSU) through the use of this tool.

Material and methods: Observational study lasting 9 months divided into a PRE-period for collecting information on the safety indicators defined by the team and reflected in the Pulse Point Arrow, using the "Hoja de Ruta", an intervention period and a POST collection stage of the same information.

Results: In both periods, a total of 1464 "Hojas de Ruta" were collected in the CMA unit, 55.8% of the total corresponding to the PRE-period, and the rest to the POST. The selected indicators improved significantly, highlighting the correct placement of bracelets, bed assignment, allergy registration, and administration of preoperative treatment.

Conclusions: The use of new management tools in healthcare systems is essential for improving healthcare processes and achieving better health outcomes. In our experience the introduction of Pulse Point Arrow improved results of surgical safety of the paediatric patient.

目的通过使用该工具,改善门诊大手术室(AMSU)泌尿科儿科手术过程的安全管理:观察研究为期 9 个月,分为前期(使用 "Hoja de Ruta "收集由团队定义并反映在脉搏点箭头中的安全指标信息)、干预期和后期(收集相同信息):结果:在干预期和干预后两个阶段,CMA 共收集了 1464 条 "Hojas de Ruta",其中 55.8%属于干预前阶段,其余属于干预后阶段。所选指标明显改善,突出表现在正确放置手环、床位分配、过敏登记和术前治疗管理等方面:在医疗系统中使用新的管理工具对于改善医疗流程和取得更好的医疗效果至关重要。根据我们的经验,脉冲点箭的引入提高了儿科患者的手术安全性。
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引用次数: 0
Enhancing vaccine accessibility and efficacy through microneedle patches. 通过微针贴片提高疫苗的可及性和有效性。
IF 1.1 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-09 DOI: 10.1016/j.jhqr.2024.09.004
V Kumar, N Rai, S Sah, M Soni
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引用次数: 0
[A practical model to implement the patient participation in tertiary hospitals (ICE model)]. [在三级医院实施患者参与的实用模式(ICE 模式)]。
IF 1.1 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-18 DOI: 10.1016/j.jhqr.2024.09.003
Ana Martí, Clara Grau, Emmanuel Giménez, Karla Salas-Gama, Marta Aguayo, Antonio Román, Albert Salazar

Objective: Democratise healthcare and research through a model that ensures the participation of patients and professionals.

Method: Weaknesses are analysed and corrections are articulated with a model through biweekly meetings between the hospital's citizen attention and healthcare management.

Results: The resulting model is proactive in nature, deployed between November-2021 and December-2023 and had three elements: Information, Co-creation and Strategy (ICE). The Information is materialized with: an Association Attention Office (AAO) and an Easy Reading Commission (ERC). Co-creation is organized through Stable Work Commissions (SWC) formed by professional-patient. The Strategy that is materialized through a Strategic Plan for institutional participation and a Strategic Committee for participation. The AAO has registered 304 entities and managed 112 projects. The ERC has evaluated 41 documents in 2023. 13SWCs related to therapeutic areas were generated where 108 professionals and 101 patient representatives participated and 42 objectives were agreed upon, working on templates for informative documents, guides or organizing informative days. The Strategic Participation Plan is translated into 8lines with objectives and actions, creating the Strategic Participation Committee as the governing body.

Conclusions: The ICE-VH model is a replicable opportunity to implement patient and professional participation in any hospital and improve person-centered care by incorporating the values and preferences of all stakeholders.

目标:通过确保患者和专业人员参与的模式,实现医疗保健和研究的民主化:通过确保患者和专业人员参与的模式,实现医疗保健和研究的民主化:方法:通过医院的公民关注和医疗保健管理层之间的双周会议,分析薄弱环节,并通过一种模式明确改正措施:结果:所产生的模式具有前瞻性,在 2021 年 11 月至 2023 年 12 月期间部署,包含三个要素:信息、共创和战略(ICE)。信息通过协会关注办公室(AAO)和易读委员会(ERC)实现。共同创造是通过由专业人员和患者组成的稳定工作委员会(SWC)来组织的。该战略通过机构参与战略计划和参与战略委员会得以实现。AAO 注册了 304 个实体,管理着 112 个项目。ERC 在 2023 年评估了 41 份文件。13 个与治疗领域相关的战略委员会成立,108 名专业人员和 101 名患者代表参与其中,并就 42 个目标达成一致意见,共同制定信息文件模板、指南或组织信息日活动。战略参与计划被转化为 8 项目标和行动,并成立了战略参与委员会作为管理机构:结论:ICE-VH 模式是一个可复制的机会,可在任何医院实施患者和专业人员参与,并通过纳入所有利益相关者的价值观和偏好,改善以人为本的护理。
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引用次数: 0
[Integrated social value generated in a specialized hospital for chronic patients]. [慢性病人专科医院产生的综合社会价值]。
IF 1.1 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-16 DOI: 10.1016/j.jhqr.2024.09.002
José Antonio González-Gutiérrez, Iker Apraiz-Sánchez, Arantxa Picón-Santamaría, María Begoña de la Fuente-Martínez, Sendoa Ballesteros-Peña

Introduction: Measuring social value has always been a challenge for organizations that generate such value, including foundations, NGOs, social enterprises, and governmental entities. Often, the benefits of these initiatives are perceived as intangible or long-term, making them difficult to quantify. Assessing social value demonstrates the impact of investments and accountability to stakeholders.Healthcare organizations should be evaluated from a broad perspective, where the quality of healthcare services is an integral part of the social value with multiple beneficiaries.This study aims to determine the economic and social impact of Hospital Santa Marina on the Bizkaia (Basque Country) population in 2023, as well as to evaluate the evolution of the hospital's social value from 2018 to 2023.

Materials and methods: The study was conducted from the multifaceted perspective of social accounting (stakeholder theory), utilizing the Social Return on Investment (SROI) tool. The economic value of the hospital (both direct and indirect) and the hospital's specific social value were calculated based on areas identified by stakeholders. Subsequently, the hospital's integrated social value and socio-emotional value were determined.

Results: The hospital contributed €34,696,178.20 to society in Direct and Indirect Market Social Value (SROI), and the Non-Market Social Value amounted to €119,758,230.71. This generated an integrated social value of the hospital of €154,454,408.91, which, considering the satisfaction index for the year 2023 was 0.9805, leads to a socio-emotional value of €211,998,238.76.

Conclusions: Hospital Santa Marina generates significant economic value for the society, beyond its direct contribution to the population's health. These findings underscore the importance of adopting a broader perspective on health and highlight the role of healthcare institutions as drivers of sustainable development.

导言:对于创造社会价值的组织(包括基金会、非政府组织、社会企业和政府实体)来说,衡量社会价值一直是一项挑战。通常情况下,这些举措的效益被认为是无形的或长期的,因此难以量化。评估社会价值可以展示投资的影响和对利益相关者的责任。医疗机构应从广阔的视角进行评估,其中医疗服务的质量是社会价值不可分割的一部分,有多个受益者。本研究旨在确定 2023 年圣玛丽娜医院对比斯开亚(巴斯克地区)人口的经济和社会影响,并评估医院社会价值从 2018 年到 2023 年的演变情况:研究从社会会计(利益相关者理论)的多角度出发,利用社会投资回报率(SROI)工具进行。根据利益相关者确定的领域,计算了医院的经济价值(包括直接价值和间接价值)以及医院的具体社会价值。随后,确定了医院的综合社会价值和社会情感价值:医院为社会贡献了 34,696,178.20 欧元的直接和间接市场社会价值(SROI),非市场社会价值达 119,758,230.71 欧元。由此产生的医院综合社会价值为 154 454 408.91 欧元,考虑到 2023 年的满意度指数为 0.9805,其社会情感价值为 211 998 238.76 欧元:圣玛丽娜医院为社会创造了巨大的经济价值,而不仅仅是对居民健康的直接贡献。这些发现强调了从更广阔的视角看待健康问题的重要性,并突出了医疗机构作为可持续发展驱动力的作用。
{"title":"[Integrated social value generated in a specialized hospital for chronic patients].","authors":"José Antonio González-Gutiérrez, Iker Apraiz-Sánchez, Arantxa Picón-Santamaría, María Begoña de la Fuente-Martínez, Sendoa Ballesteros-Peña","doi":"10.1016/j.jhqr.2024.09.002","DOIUrl":"https://doi.org/10.1016/j.jhqr.2024.09.002","url":null,"abstract":"<p><strong>Introduction: </strong>Measuring social value has always been a challenge for organizations that generate such value, including foundations, NGOs, social enterprises, and governmental entities. Often, the benefits of these initiatives are perceived as intangible or long-term, making them difficult to quantify. Assessing social value demonstrates the impact of investments and accountability to stakeholders.Healthcare organizations should be evaluated from a broad perspective, where the quality of healthcare services is an integral part of the social value with multiple beneficiaries.This study aims to determine the economic and social impact of Hospital Santa Marina on the Bizkaia (Basque Country) population in 2023, as well as to evaluate the evolution of the hospital's social value from 2018 to 2023.</p><p><strong>Materials and methods: </strong>The study was conducted from the multifaceted perspective of social accounting (stakeholder theory), utilizing the Social Return on Investment (SROI) tool. The economic value of the hospital (both direct and indirect) and the hospital's specific social value were calculated based on areas identified by stakeholders. Subsequently, the hospital's integrated social value and socio-emotional value were determined.</p><p><strong>Results: </strong>The hospital contributed €34,696,178.20 to society in Direct and Indirect Market Social Value (SROI), and the Non-Market Social Value amounted to €119,758,230.71. This generated an integrated social value of the hospital of €154,454,408.91, which, considering the satisfaction index for the year 2023 was 0.9805, leads to a socio-emotional value of €211,998,238.76.</p><p><strong>Conclusions: </strong>Hospital Santa Marina generates significant economic value for the society, beyond its direct contribution to the population's health. These findings underscore the importance of adopting a broader perspective on health and highlight the role of healthcare institutions as drivers of sustainable development.</p>","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":" ","pages":""},"PeriodicalIF":1.1,"publicationDate":"2024-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142476741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Determinants of citizens' choice between public and private hospitals. 市民选择公立医院还是私立医院的决定因素。
IF 1.1 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-04 DOI: 10.1016/j.jhqr.2024.09.001
S Parrado, J Rama, A-M Reynaers

Objective: This study assesses what factors determine citizens' preferences for a public or private hospital (assuming the choice is free of charge) according to the severity of the disease.

Material and method: A web-based discrete choice experiment was carried out with 1777 individuals distinguishing between a control group (posed with a simple choice for each health condition) and added information for respondents of the treatment groups (distance, waiting time, advice from the family doctor, and recommendations from the social context). The relevance of these factors in relation to the severity of one's illness is investigated. The outcome variable is the choice of a public versus a private hospital for the treatment of a health issue of a different severity.

Results: The severity of the health issue has a moderator effect on the additional information for the treatment groups. Waiting time has a direct positive impact on the patient's preferred choice for a private hospital both for severe and non-severe health issues. Distance to the hospital and the family doctor's recommendation positively impact the preferred choice for a private hospital for non-severe health issues but not for severe health issues. Covariates like gender and age are not relevant in explaining the effects of the treatments, and educational level has a positive impact on one of the treatments: advice from the patient's environment. Satisfaction with public hospitals has a positive impact on all treatments.

Conclusions: Results indicate that waiting time is a key factor in choosing a private hospital against the majority-stated preference for a public hospital.

研究目的本研究根据疾病的严重程度,评估哪些因素决定了公民对公立或私立医院(假设选择免费)的偏好:对 1777 人进行了一项基于网络的离散选择实验,区分对照组(对每种健康状况提出一个简单的选择)和治疗组受访者的附加信息(距离、等待时间、家庭医生的建议和社会背景的推荐)。研究调查了这些因素与个人疾病严重程度的相关性。结果变量是在治疗不同严重程度的健康问题时选择公立医院还是私立医院:结果:健康问题的严重程度对治疗组的额外信息有调节作用。无论是严重健康问题还是非严重健康问题,候诊时间对患者选择私立医院都有直接的积极影响。距离医院的远近和家庭医生的推荐对非严重健康问题患者选择私立医院有积极影响,但对严重健康问题患者选择私立医院没有积极影响。性别和年龄等协变因素与解释治疗效果无关,而教育水平对其中一种治疗方法有积极影响:来自患者环境的建议。对公立医院的满意度对所有治疗方法都有积极影响:结果表明,与大多数人对公立医院的偏好相比,等候时间是选择私立医院的关键因素。
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引用次数: 0
Letter to the Editor on "Loneliness impact on healthcare utilization in primary care: A retrospective study". 致编辑的信,主题为 "孤独感对初级保健中医疗服务利用率的影响:回顾性研究"。
IF 1.1 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-14 DOI: 10.1016/j.jhqr.2024.07.004
M R Shen, J K Silver
{"title":"Letter to the Editor on \"Loneliness impact on healthcare utilization in primary care: A retrospective study\".","authors":"M R Shen, J K Silver","doi":"10.1016/j.jhqr.2024.07.004","DOIUrl":"https://doi.org/10.1016/j.jhqr.2024.07.004","url":null,"abstract":"","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":" ","pages":""},"PeriodicalIF":1.1,"publicationDate":"2024-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142297423","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
[Learning from our mistakes: Notification of pediatric events through SiNASP in Galicia]. [从错误中学习:加利西亚通过 SiNASP 通报儿科事件]。
IF 1.1 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-12 DOI: 10.1016/j.jhqr.2024.08.002
S Rujido Freire, P Viaño Nogueira, M J Pérez Taboada, R Bugarín González, A Rodríguez Núñez
{"title":"[Learning from our mistakes: Notification of pediatric events through SiNASP in Galicia].","authors":"S Rujido Freire, P Viaño Nogueira, M J Pérez Taboada, R Bugarín González, A Rodríguez Núñez","doi":"10.1016/j.jhqr.2024.08.002","DOIUrl":"https://doi.org/10.1016/j.jhqr.2024.08.002","url":null,"abstract":"","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":" ","pages":""},"PeriodicalIF":1.1,"publicationDate":"2024-09-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142297422","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Analysis of quality of life of patients with refractive errors in India. 印度屈光不正患者的生活质量分析。
IF 1.1 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-05 DOI: 10.1016/j.jhqr.2024.08.001
Neha Purohit, Aarti Goyal, Parul Chawla Gupta, Kathirvel Soundappan, Atul Kotwal, Shankar Prinja

Introduction: It is important to determine the health-related quality of life (HRQoL) to devise population-based cost-effective service delivery models. The present study aimed to evaluate the HRQoL of patients with refractive errors (RE) using generic and vision-specific instruments, identify the determinants of HRQoL, and examine the validity between the quality-of-life instruments for refractive errors.

Methods: Face-to-face interviews were conducted with 515 participants with RE using generic as well as vision-specific HRQoL measures. Mean EuroQol-five dimensions-five levels (EQ-5D-5L) utility value, National Eye Institute-Visual Function Questionnaire-25 (NEI-VFQ-25) composite score, and EuroQol-Visual analogue scale (EQ-VAS) score were computed, and determinants of quality of life were determined using generalized linear regression model. The validity between generic and disease-specific measures was ascertained using Pearson's coefficient.

Results: The mean EQ-5D-5L utility score for patients with RE was estimated as 0.72 (95% CI: 0.70-0.75). The mean NEI-VFQ-25 composite score and EQ-VAS score were 71.3 (95% CI: 69.8-73), and 74.7 (95% CI: 73.4-76.1), respectively. Visual acuity, gender, and presence of co-morbidities were significantly associated with quality of life. The concurrence between the generic and vision-specific instruments was found to be low to moderate.

Conclusion: The findings of the study indicate the importance of the value of quality of life for patients with RE, which could be taken into account by health administrators, doctors and researchers to carry out economic evaluations, since these measures provide a basis for an evaluation more precisely the impact of RE and guide the determination of efficient ways to alleviate the burden of treatable visual impairment. More research is required to explore the potential integration of a vision component, the sixth dimension, into the EQ-5D-5L instrument, given the moderate agreement observed between the generic and specific assessment tools.

简介确定与健康相关的生活质量(HRQoL)对于设计基于人群的具有成本效益的服务提供模式非常重要。本研究旨在使用通用工具和视力特异工具评估屈光不正(RE)患者的 HRQoL,确定 HRQoL 的决定因素,并检验屈光不正生活质量工具之间的有效性:方法:采用通用的和视力专用的 HRQoL 测量方法,对 515 名屈光不正患者进行了面对面访谈。计算了EQ-5D-5L(EuroQol-five dimensions-five levels)效用值、NEI-VFQ-25(National Eye Institute-Visual Function Questionnaire-25)综合评分和EQ-VAS(EuroQol-Visual analogue scale)评分的平均值,并使用广义线性回归模型确定了生活质量的决定因素。结果显示,EQ-5D-5L 的平均值高于 EQ-VAS 的平均值,EQ-5D-5L 的平均值高于 EQ-VAS 的平均值:RE 患者的平均 EQ-5D-5L 实用性评分估计为 0.72(95% CI:0.70-0.75)。NEI-VFQ-25综合评分和EQ-VAS评分的平均值分别为71.3(95% CI:69.8-73)和74.7(95% CI:73.4-76.1)。视力、性别和是否合并其他疾病与生活质量密切相关。研究发现,通用工具和视力特异工具之间的吻合度为中低:研究结果表明了视力障碍患者生活质量价值的重要性,卫生管理者、医生和研究人员在进行经济评估时可以考虑到这一点,因为这些措施为更准确地评估视力障碍的影响提供了基础,并指导确定有效的方法来减轻可治疗视力障碍的负担。鉴于通用评估工具和特定评估工具之间的一致性一般,因此需要开展更多研究,探索将视觉部分(第六维度)纳入 EQ-5D-5L 工具的可能性。
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引用次数: 0
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Journal of Healthcare Quality Research
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