Pub Date : 2025-01-01DOI: 10.1016/j.jhqr.2024.09.005
M. Ottonello , C. Pistarini , S. Ruvolo , S. Costa , V. Navarra , C. Murianni , E. Cristallo , S. Maiello , M.R. Tritto , M.G. Pagliarulo , M.R. Manera
Introduction
The aim of the present study was to identify information and educational needs of neurological inpatients during residential rehabilitation from the caregivers’ perspective. On top of that, it was important to acknowledge the conceptual framework underlying the complexity of needs, for the development in future research of an early identification of caregiver's information needs assessment tool. This preliminary study will allow to define the dimensions on which to measure caregiver needs and the quality of care provided to the patients and their families.
Material and methods
Focus groups of family caregivers of inpatients admitted to the Neurorehabilitation Units by the ICS Maugeri Institutes were conducted to explore the caregivers needs. All focus groups were tape-recorded and contemporaneous notes made. The tapes were transcribed and thematic analysis was used to develop categories of needs. To ensure consistency between groups, a semi-structured schedule was used to guide the focus groups.
Results
In the analysis of the statements extracted from the transcripts we defined five main themes of information needs expressed from caregivers: education, hospital care organization, legal and social care management and emotional or psychological support.
Conclusion
The results provided the identification of the domains essential for the development of a questionnaire that measures the complexity of the caregiver's information needs during residential rehabilitation. The caregivers’ statements expressed in the focus groups allowed to identify five main kinds of needs. Moreover, some suggestions and ideas to improve the information and education materials to satisfy these needs emerged from caregivers and health professionals during team meetings.
{"title":"Informational and educational needs of caregivers of neurologic inpatients in rehabilitation treatment: A qualitative exploratory study","authors":"M. Ottonello , C. Pistarini , S. Ruvolo , S. Costa , V. Navarra , C. Murianni , E. Cristallo , S. Maiello , M.R. Tritto , M.G. Pagliarulo , M.R. Manera","doi":"10.1016/j.jhqr.2024.09.005","DOIUrl":"10.1016/j.jhqr.2024.09.005","url":null,"abstract":"<div><h3>Introduction</h3><div>The aim of the present study was to identify information and educational needs of neurological inpatients during residential rehabilitation from the caregivers’ perspective. On top of that, it was important to acknowledge the conceptual framework underlying the complexity of needs, for the development in future research of an early identification of caregiver's information needs assessment tool. This preliminary study will allow to define the dimensions on which to measure caregiver needs and the quality of care provided to the patients and their families.</div></div><div><h3>Material and methods</h3><div>Focus groups of family caregivers of inpatients admitted to the Neurorehabilitation Units by the ICS Maugeri Institutes were conducted to explore the caregivers needs. All focus groups were tape-recorded and contemporaneous notes made. The tapes were transcribed and thematic analysis was used to develop categories of needs. To ensure consistency between groups, a semi-structured schedule was used to guide the focus groups.</div></div><div><h3>Results</h3><div>In the analysis of the statements extracted from the transcripts we defined five main themes of information needs expressed from caregivers: education, hospital care organization, legal and social care management and emotional or psychological support.</div></div><div><h3>Conclusion</h3><div>The results provided the identification of the domains essential for the development of a questionnaire that measures the complexity of the caregiver's information needs during residential rehabilitation. The caregivers’ statements expressed in the focus groups allowed to identify five main kinds of needs. Moreover, some suggestions and ideas to improve the information and education materials to satisfy these needs emerged from caregivers and health professionals during team meetings.</div></div>","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":"40 1","pages":"Pages 48-55"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142629703","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1016/j.jhqr.2024.10.003
E. Uibu , K. Binsol , K. Põlluste , M. Lember , M. Kangasniemi
Objective
Nurses and their leaders are known for actively using incident reporting systems. However, information sharing about lessons learned from incidents has rarely been reported in previous studies. This study aimed to describe nurses’ and nursing managers’ experiences with incident reporting system information sharing and their perceptions of patient safety development needs.
Material and methods
Semi-structured individual and group interviews were conducted with nursing staff in Estonia (n = 26). Collected data was analyzed using the inductive content analysis method. The COREQ checklist was used for study report.
Results
Nursing staff considered information sharing of lessons learned crucial. First, it was necessary to raise patient safety awareness among employees. Second, the importance of learning from mistakes to protect themselves from legal consequences and improve public trust was highlighted. Nursing staff had traditional ways of sharing information about lessons learned. However, because of the lack of organized strategies, nurses resorted to private discussions or self-initiated investigations. Nursing staff reported a need to develop patient safety by supporting nurses’ patient safety competencies and training, and to establish the use of a reporting system in daily care. The precondition was a positive patient safety culture, which would be improved by open communication among nursing staff and sufficient resources.
Conclusions
Information sharing from safety incident reports should rely on organized strategies to avoid self-initiated practices and misinformation. Awareness of the complexity of implementing patient safety initiatives and adequate responsiveness from hospital executives can help establish practices supporting staff to feel secure when discussing safety issues.
{"title":"Results of a qualitative semi-structured interview study with hospital nursing staff to improve incident reporting systems in Estonia","authors":"E. Uibu , K. Binsol , K. Põlluste , M. Lember , M. Kangasniemi","doi":"10.1016/j.jhqr.2024.10.003","DOIUrl":"10.1016/j.jhqr.2024.10.003","url":null,"abstract":"<div><h3>Objective</h3><div>Nurses and their leaders are known for actively using incident reporting systems. However, information sharing about lessons learned from incidents has rarely been reported in previous studies. This study aimed to describe nurses’ and nursing managers’ experiences with incident reporting system information sharing and their perceptions of patient safety development needs.</div></div><div><h3>Material and methods</h3><div>Semi-structured individual and group interviews were conducted with nursing staff in Estonia (<em>n</em> <!-->=<!--> <!-->26). Collected data was analyzed using the inductive content analysis method. The COREQ checklist was used for study report.</div></div><div><h3>Results</h3><div>Nursing staff considered information sharing of lessons learned crucial. First, it was necessary to raise patient safety awareness among employees. Second, the importance of learning from mistakes to protect themselves from legal consequences and improve public trust was highlighted. Nursing staff had traditional ways of sharing information about lessons learned. However, because of the lack of organized strategies, nurses resorted to private discussions or self-initiated investigations. Nursing staff reported a need to develop patient safety by supporting nurses’ patient safety competencies and training, and to establish the use of a reporting system in daily care. The precondition was a positive patient safety culture, which would be improved by open communication among nursing staff and sufficient resources.</div></div><div><h3>Conclusions</h3><div>Information sharing from safety incident reports should rely on organized strategies to avoid self-initiated practices and misinformation. Awareness of the complexity of implementing patient safety initiatives and adequate responsiveness from hospital executives can help establish practices supporting staff to feel secure when discussing safety issues.</div></div>","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":"40 1","pages":"Pages 39-47"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142750645","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1016/j.jhqr.2024.07.004
M.R. Shen , J.K. Silver
{"title":"Letter to the Editor on “Loneliness impact on healthcare utilization in primary care: A retrospective study”","authors":"M.R. Shen , J.K. Silver","doi":"10.1016/j.jhqr.2024.07.004","DOIUrl":"10.1016/j.jhqr.2024.07.004","url":null,"abstract":"","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":"40 1","pages":"Pages 62-64"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142297423","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1016/j.jhqr.2024.10.001
N. Yanal , A.M. Al Massri , E.A. Hammad
<div><h3>Introduction and objectives</h3><div>The EQ-5D VAS is a widely used measure for health-related quality of life (HRQol). The EQ-5D health states often weighted using the time trade-off (TTO). The assessment of the EQ-5D, VAS, TTO psychometric properties is necessary to inform adaption across countries and populations due to cross-cultural and language diversity. The objective of the study is to evaluate validity, reliability, and feasibility of the Arabic version of the EQ-5D-3L, VAS, and TTO among a broad sample of Arabic-speaking Jordanians.</div></div><div><h3>Methods</h3><div>A cross-sectional study was conducted using structured face-to-face interviews with 1007 participants attending outpatient clinics at a central university affiliated hospital. The participants completed the EQ-5D-3L, described own health via VAS and in words (excellent, very good, good, fair, and poor). Additionally, participants requested to answer a TTO question. Validity was assessed using correlation analysis, while test–retest methods were used to evaluate reliability. Perspectives of participants on how easy to complete or understand the study measures were investigated.</div></div><div><h3>Results</h3><div>Completion rates were 100% for the EQ-5D, 98% for VAS and 77% for TTO. The construct validity of EQ-5D, VAS, and TTO was supported by significant correlation across each other and participants’ characteristics. Higher severity of EQ-5D health states was significantly associated with lower VAS scores (<em>r</em><sub>s</sub> <!-->=<!--> <!-->−0.38, <em>p</em> <!--><<!--> <!-->0.01). Usual activity and pain/discomfort had the strongest correlations with VAS scores (−0.40 and −0.39, respectively, <em>p</em> <!--><<!--> <!-->0.001). A higher willingness to trade years was observed with more severe EQ-5D states (<em>r</em><sub>s</sub> <!-->=<!--> <!-->0.32, <em>p</em> <!--><<!--> <!-->0.001), with usual activity, and pain/discomfort showing the strongest associations. Self-reported health via VAS and words was highly correlated (<em>r</em><sub>s</sub> <!-->=<!--> <!-->0.76, <em>p</em> <!--><<!--> <!-->0.001). Reliability of the weighted Cohen's <em>k</em> for EQ-5D dimension ranged between 0.3 and .72. Intraclass correlation coefficients for VAS were 0.80 and 0.92 for TTO, all <em>p</em> value <0.001. VAS showed substantial test–retest reliability (ICC<!--> <!-->=<!--> <!-->0.80), and TTO showed excellent reliability (ICC<!--> <!-->=<!--> <!-->0.92). However, only 62.3% and 54.6% found EQ-5D and TTO easy to understand, respectively, while 89.4% found the VAS easy to use.</div></div><div><h3>Conclusion</h3><div>The Arabic EQ-5D-3L, VAS, and TTO demonstrated validity and reliability for measuring HRQoL among Jordanians. The study highlights the importance of cultural and linguistic contexts in HRQoL measures adaption. Future research should focus on refining TTO to improve cultural appropriateness and understanding among Arabic-speaking population
{"title":"Validity, reliability, and feasibility of EQ-5D-3L, VAS, and time trade-off among Jordanians","authors":"N. Yanal , A.M. Al Massri , E.A. Hammad","doi":"10.1016/j.jhqr.2024.10.001","DOIUrl":"10.1016/j.jhqr.2024.10.001","url":null,"abstract":"<div><h3>Introduction and objectives</h3><div>The EQ-5D VAS is a widely used measure for health-related quality of life (HRQol). The EQ-5D health states often weighted using the time trade-off (TTO). The assessment of the EQ-5D, VAS, TTO psychometric properties is necessary to inform adaption across countries and populations due to cross-cultural and language diversity. The objective of the study is to evaluate validity, reliability, and feasibility of the Arabic version of the EQ-5D-3L, VAS, and TTO among a broad sample of Arabic-speaking Jordanians.</div></div><div><h3>Methods</h3><div>A cross-sectional study was conducted using structured face-to-face interviews with 1007 participants attending outpatient clinics at a central university affiliated hospital. The participants completed the EQ-5D-3L, described own health via VAS and in words (excellent, very good, good, fair, and poor). Additionally, participants requested to answer a TTO question. Validity was assessed using correlation analysis, while test–retest methods were used to evaluate reliability. Perspectives of participants on how easy to complete or understand the study measures were investigated.</div></div><div><h3>Results</h3><div>Completion rates were 100% for the EQ-5D, 98% for VAS and 77% for TTO. The construct validity of EQ-5D, VAS, and TTO was supported by significant correlation across each other and participants’ characteristics. Higher severity of EQ-5D health states was significantly associated with lower VAS scores (<em>r</em><sub>s</sub> <!-->=<!--> <!-->−0.38, <em>p</em> <!--><<!--> <!-->0.01). Usual activity and pain/discomfort had the strongest correlations with VAS scores (−0.40 and −0.39, respectively, <em>p</em> <!--><<!--> <!-->0.001). A higher willingness to trade years was observed with more severe EQ-5D states (<em>r</em><sub>s</sub> <!-->=<!--> <!-->0.32, <em>p</em> <!--><<!--> <!-->0.001), with usual activity, and pain/discomfort showing the strongest associations. Self-reported health via VAS and words was highly correlated (<em>r</em><sub>s</sub> <!-->=<!--> <!-->0.76, <em>p</em> <!--><<!--> <!-->0.001). Reliability of the weighted Cohen's <em>k</em> for EQ-5D dimension ranged between 0.3 and .72. Intraclass correlation coefficients for VAS were 0.80 and 0.92 for TTO, all <em>p</em> value <0.001. VAS showed substantial test–retest reliability (ICC<!--> <!-->=<!--> <!-->0.80), and TTO showed excellent reliability (ICC<!--> <!-->=<!--> <!-->0.92). However, only 62.3% and 54.6% found EQ-5D and TTO easy to understand, respectively, while 89.4% found the VAS easy to use.</div></div><div><h3>Conclusion</h3><div>The Arabic EQ-5D-3L, VAS, and TTO demonstrated validity and reliability for measuring HRQoL among Jordanians. The study highlights the importance of cultural and linguistic contexts in HRQoL measures adaption. Future research should focus on refining TTO to improve cultural appropriateness and understanding among Arabic-speaking population","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":"40 1","pages":"Pages 29-38"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142751073","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
It is important to determine the health-related quality of life (HRQoL) to devise population-based cost-effective service delivery models. The present study aimed to evaluate the HRQoL of patients with refractive errors (RE) using generic and vision-specific instruments, identify the determinants of HRQoL, and examine the validity between the quality-of-life instruments for refractive errors.
Methods
Face-to-face interviews were conducted with 515 participants with RE using generic as well as vision-specific HRQoL measures. Mean EuroQol-five dimensions-five levels (EQ-5D-5L) utility value, National Eye Institute-Visual Function Questionnaire-25 (NEI-VFQ-25) composite score, and EuroQol-Visual analogue scale (EQ-VAS) score were computed, and determinants of quality of life were determined using generalized linear regression model. The validity between generic and disease-specific measures was ascertained using Pearson's coefficient.
Results
The mean EQ-5D-5L utility score for patients with RE was estimated as 0.72 (95% CI: 0.70–0.75). The mean NEI-VFQ-25 composite score and EQ-VAS score were 71.3 (95% CI: 69.8–73), and 74.7 (95% CI: 73.4–76.1), respectively. Visual acuity, gender, and presence of co-morbidities were significantly associated with quality of life. The concurrence between the generic and vision-specific instruments was found to be low to moderate.
Conclusion
The findings of the study indicate the importance of the value of quality of life for patients with RE, which could be taken into account by health administrators, doctors and researchers to carry out economic evaluations, since these measures provide a basis for an evaluation more precisely the impact of RE and guide the determination of efficient ways to alleviate the burden of treatable visual impairment.
More research is required to explore the potential integration of a vision component, the sixth dimension, into the EQ-5D-5L instrument, given the moderate agreement observed between the generic and specific assessment tools.
{"title":"Analysis of quality of life of patients with refractive errors in India","authors":"Neha Purohit , Aarti Goyal , Parul Chawla Gupta , Kathirvel Soundappan , Atul Kotwal , Shankar Prinja","doi":"10.1016/j.jhqr.2024.08.001","DOIUrl":"10.1016/j.jhqr.2024.08.001","url":null,"abstract":"<div><h3>Introduction</h3><div>It is important to determine the health-related quality of life (HRQoL) to devise population-based cost-effective service delivery models. The present study aimed to evaluate the HRQoL of patients with refractive errors (RE) using generic and vision-specific instruments, identify the determinants of HRQoL, and examine the validity between the quality-of-life instruments for refractive errors.</div></div><div><h3>Methods</h3><div>Face-to-face interviews were conducted with 515 participants with RE using generic as well as vision-specific HRQoL measures. Mean EuroQol-five dimensions-five levels (EQ-5D-5L) utility value, National Eye Institute-Visual Function Questionnaire-25 (NEI-VFQ-25) composite score, and EuroQol-Visual analogue scale (EQ-VAS) score were computed, and determinants of quality of life were determined using generalized linear regression model. The validity between generic and disease-specific measures was ascertained using Pearson's coefficient.</div></div><div><h3>Results</h3><div>The mean EQ-5D-5L utility score for patients with RE was estimated as 0.72 (95% CI: 0.70–0.75). The mean NEI-VFQ-25 composite score and EQ-VAS score were 71.3 (95% CI: 69.8–73), and 74.7 (95% CI: 73.4–76.1), respectively. Visual acuity, gender, and presence of co-morbidities were significantly associated with quality of life. The concurrence between the generic and vision-specific instruments was found to be low to moderate.</div></div><div><h3>Conclusion</h3><div>The findings of the study indicate the importance of the value of quality of life for patients with RE, which could be taken into account by health administrators, doctors and researchers to carry out economic evaluations, since these measures provide a basis for an evaluation more precisely the impact of RE and guide the determination of efficient ways to alleviate the burden of treatable visual impairment.</div><div>More research is required to explore the potential integration of a vision component, the sixth dimension, into the EQ-5D-5L instrument, given the moderate agreement observed between the generic and specific assessment tools.</div></div>","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":"40 1","pages":"Pages 12-21"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142146481","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1016/j.jhqr.2024.04.002
O. Tornero-Torres , R. Fuentes-Irigoyen , Á. Berbel García , C. Resino Luis , C. Ruiz-Huerta García de Viedma
{"title":"¿Qué conocimientos tienen los pacientes sobre su tratamiento? Estrategias «no hacer» en el uso adecuado de los medicamentos","authors":"O. Tornero-Torres , R. Fuentes-Irigoyen , Á. Berbel García , C. Resino Luis , C. Ruiz-Huerta García de Viedma","doi":"10.1016/j.jhqr.2024.04.002","DOIUrl":"10.1016/j.jhqr.2024.04.002","url":null,"abstract":"","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":"40 1","pages":"Pages 56-58"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140783600","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1016/j.jhqr.2024.09.003
Ana Martí, Clara Grau, Emmanuel Giménez, Karla Salas-Gama, Marta Aguayo, Antonio Román, Albert Salazar
Objective
Democratise healthcare and research through a model that ensures the participation of patients and professionals.
Method
Weaknesses are analysed and corrections are articulated with a model through biweekly meetings between the hospital's citizen attention and healthcare management.
Results
The resulting model is proactive in nature, deployed between November-2021 and December-2023 and had three elements: Information, Co-creation and Strategy (ICE). The Information is materialized with: an Association Attention Office (AAO) and an Easy Reading Commission (ERC). Co-creation is organized through Stable Work Commissions (SWC) formed by professional-patient. The Strategy that is materialized through a Strategic Plan for institutional participation and a Strategic Committee for participation. The AAO has registered 304 entities and managed 112 projects. The ERC has evaluated 41 documents in 2023. 13 SWCs related to therapeutic areas were generated where 108 professionals and 101 patient representatives participated and 42 objectives were agreed upon, working on templates for informative documents, guides or organizing informative days. The Strategic Participation Plan is translated into 8 lines with objectives and actions, creating the Strategic Participation Committee as the governing body.
Conclusions
The ICE-VH model is a replicable opportunity to implement patient and professional participation in any hospital and improve person-centered care by incorporating the values and preferences of all stakeholders.
{"title":"Un modelo práctico para implementar la participación de pacientes en hospitales terciarios (modelo ICE)","authors":"Ana Martí, Clara Grau, Emmanuel Giménez, Karla Salas-Gama, Marta Aguayo, Antonio Román, Albert Salazar","doi":"10.1016/j.jhqr.2024.09.003","DOIUrl":"10.1016/j.jhqr.2024.09.003","url":null,"abstract":"<div><h3>Objective</h3><div>Democratise healthcare and research through a model that ensures the participation of patients and professionals.</div></div><div><h3>Method</h3><div>Weaknesses are analysed and corrections are articulated with a model through biweekly meetings between the hospital's citizen attention and healthcare management.</div></div><div><h3>Results</h3><div>The resulting model is proactive in nature, deployed between November-2021 and December-2023 and had three elements: Information, Co-creation and Strategy (ICE). The Information is materialized with: an Association Attention Office (AAO) and an Easy Reading Commission (ERC). Co-creation is organized through Stable Work Commissions (SWC) formed by professional-patient. The Strategy that is materialized through a Strategic Plan for institutional participation and a Strategic Committee for participation. The AAO has registered 304 entities and managed 112 projects. The ERC has evaluated 41 documents in 2023. 13<!--> <!-->SWCs related to therapeutic areas were generated where 108 professionals and 101 patient representatives participated and 42 objectives were agreed upon, working on templates for informative documents, guides or organizing informative days. The Strategic Participation Plan is translated into 8<!--> <!-->lines with objectives and actions, creating the Strategic Participation Committee as the governing body.</div></div><div><h3>Conclusions</h3><div>The ICE-VH model is a replicable opportunity to implement patient and professional participation in any hospital and improve person-centered care by incorporating the values and preferences of all stakeholders.</div></div>","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":"40 1","pages":"Pages 3-11"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142476740","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01DOI: 10.1016/j.jhqr.2024.09.002
José Antonio González-Gutiérrez , Iker Apraiz-Sánchez , Arantxa Picón-Santamaría , María Begoña de la Fuente-Martínez , Sendoa Ballesteros-Peña
Introduction
Measuring social value has always been a challenge for organizations that generate such value, including foundations, NGOs, social enterprises, and governmental entities. Often, the benefits of these initiatives are perceived as intangible or long-term, making them difficult to quantify. Assessing social value demonstrates the impact of investments and accountability to stakeholders.Healthcare organizations should be evaluated from a broad perspective, where the quality of healthcare services is an integral part of the social value with multiple beneficiaries.This study aims to determine the economic and social impact of Hospital Santa Marina on the Bizkaia (Basque Country) population in 2023, as well as to evaluate the evolution of the hospital's social value from 2018 to 2023.
Materials and methods
The study was conducted from the multifaceted perspective of social accounting (stakeholder theory), utilizing the Social Return on Investment (SROI) tool. The economic value of the hospital (both direct and indirect) and the hospital's specific social value were calculated based on areas identified by stakeholders. Subsequently, the hospital's integrated social value and socio-emotional value were determined.
Results
The hospital contributed €34,696,178.20 to society in Direct and Indirect Market Social Value (SROI), and the Non-Market Social Value amounted to €119,758,230.71. This generated an integrated social value of the hospital of €154,454,408.91, which, considering the satisfaction index for the year 2023 was 0.9805, leads to a socio-emotional value of €211,998,238.76.
Conclusions
Hospital Santa Marina generates significant economic value for the society, beyond its direct contribution to the population's health. These findings underscore the importance of adopting a broader perspective on health and highlight the role of healthcare institutions as drivers of sustainable development.
{"title":"Valor social integrado generado en un hospital monográfico de pacientes crónicos","authors":"José Antonio González-Gutiérrez , Iker Apraiz-Sánchez , Arantxa Picón-Santamaría , María Begoña de la Fuente-Martínez , Sendoa Ballesteros-Peña","doi":"10.1016/j.jhqr.2024.09.002","DOIUrl":"10.1016/j.jhqr.2024.09.002","url":null,"abstract":"<div><h3>Introduction</h3><div>Measuring social value has always been a challenge for organizations that generate such value, including foundations, NGOs, social enterprises, and governmental entities. Often, the benefits of these initiatives are perceived as intangible or long-term, making them difficult to quantify. Assessing social value demonstrates the impact of investments and accountability to stakeholders.Healthcare organizations should be evaluated from a broad perspective, where the quality of healthcare services is an integral part of the social value with multiple beneficiaries.This study aims to determine the economic and social impact of Hospital Santa Marina on the Bizkaia (Basque Country) population in 2023, as well as to evaluate the evolution of the hospital's social value from 2018 to 2023.</div></div><div><h3>Materials and methods</h3><div>The study was conducted from the multifaceted perspective of social accounting (stakeholder theory), utilizing the Social Return on Investment (SROI) tool. The economic value of the hospital (both direct and indirect) and the hospital's specific social value were calculated based on areas identified by stakeholders. Subsequently, the hospital's integrated social value and socio-emotional value were determined.</div></div><div><h3>Results</h3><div>The hospital contributed €34,696,178.20 to society in Direct and Indirect Market Social Value (SROI), and the Non-Market Social Value amounted to €119,758,230.71. This generated an integrated social value of the hospital of €154,454,408.91, which, considering the satisfaction index for the year 2023 was 0.9805, leads to a socio-emotional value of €211,998,238.76.</div></div><div><h3>Conclusions</h3><div>Hospital Santa Marina generates significant economic value for the society, beyond its direct contribution to the population's health. These findings underscore the importance of adopting a broader perspective on health and highlight the role of healthcare institutions as drivers of sustainable development.</div></div>","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":"40 1","pages":"Pages 22-28"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142476741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-12-30DOI: 10.1016/j.jhqr.2024.11.003
A McCaskill, A Gasch-Gallen, J Montero-Marco
Objective: This quasi-experimental, non-randomized study described the process of implementing ISO 7101 subclause 8.10.5 Health literacy in specialty consultations, then determined the effects of implementation on patient general health literacy scores and perceptions of quality of care.
Method: Implementation steps were outlined, nurses were trained and used a standardized health literacy checklist with patients. The HLS19-Q12 was used to calculate patients' general health literacy scores pre- and post-implementation of subclause 8.10.5. Paired samples t-test and Wilcoxon signed-rank test determined relationships between implementation, health literacy score, and quality of care perceived.
Results: Mean general health literacy scores increased post-implementation from 66.35 to 76.29, as did the mean score of perception of quality of care received (M=3.87 to M=3.99). Wilcoxon test for both variables was significant (P<.001), and effect size was large (d≥0.8).
Conclusions: Implementation of ISO 7101, subclause 8.10.5 Health literacy had a positive, statistically significant impact on patient general health literacy scores and perceptions of quality of care. This is valuable information for healthcare management decision makers as they implement new standards and seek to improve patient health outcomes.
{"title":"Results of the process of implementation of ISO 7101 subclause 8.10.5 Health literacy in specialty consultations.","authors":"A McCaskill, A Gasch-Gallen, J Montero-Marco","doi":"10.1016/j.jhqr.2024.11.003","DOIUrl":"https://doi.org/10.1016/j.jhqr.2024.11.003","url":null,"abstract":"<p><strong>Objective: </strong>This quasi-experimental, non-randomized study described the process of implementing ISO 7101 subclause 8.10.5 Health literacy in specialty consultations, then determined the effects of implementation on patient general health literacy scores and perceptions of quality of care.</p><p><strong>Method: </strong>Implementation steps were outlined, nurses were trained and used a standardized health literacy checklist with patients. The HLS<sub>19</sub>-Q12 was used to calculate patients' general health literacy scores pre- and post-implementation of subclause 8.10.5. Paired samples t-test and Wilcoxon signed-rank test determined relationships between implementation, health literacy score, and quality of care perceived.</p><p><strong>Results: </strong>Mean general health literacy scores increased post-implementation from 66.35 to 76.29, as did the mean score of perception of quality of care received (M=3.87 to M=3.99). Wilcoxon test for both variables was significant (P<.001), and effect size was large (d≥0.8).</p><p><strong>Conclusions: </strong>Implementation of ISO 7101, subclause 8.10.5 Health literacy had a positive, statistically significant impact on patient general health literacy scores and perceptions of quality of care. This is valuable information for healthcare management decision makers as they implement new standards and seek to improve patient health outcomes.</p>","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":" ","pages":""},"PeriodicalIF":1.1,"publicationDate":"2024-12-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142910876","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-12-30DOI: 10.1016/j.jhqr.2024.11.001
A García-Rudolph, E A Devilleneuve, M A Wright, D Sanchez-Pinsach, E Opisso
Introduction and objectives: Despite the importance of length of stay (LOS) following spinal cord injury, it remains underexplored in the literature. This study aims to bridge this gap by investigating the association between rehabilitation LOS and functional gains among patients with traumatic (TSCI) or non-traumatic (NTSCI) spinal cord injuries.
Methods: We conducted a retrospective observational cohort study assessing functional gains using the motor Functional Independence Measure (mFIM) and the Spinal Cord Independence Measure (SCIM III) from rehabilitation admission to discharge. Outcomes were analyzed across four neurological categories based on the American Spinal Injury Association Impairment Scale (AIS): C1-C4 AIS A-C; C5-8 AIS A-C; T1-S5 AIS A-C; and AIS D. Linear regression models estimated changes across rehabilitation LOS quarters (Q1-Q4), adjusting for covariates.
Results: We included 1036 patients admitted for rehabilitation between 2007 and 2023 (46.3% TSCI, 53.7% NTSCI). TSCI: age 42.7, 80.2% male, 41.8% AIS A, LOS 90.5. NTSCI: age 55.7, 54.2% male, 14.2% AIS A, LOS 69.6. For TSCI, mFIM and SCIM III gains increased significantly from Q1 to Q2 (T1-S5-ABC, n=214) and Q2 to Q3 (AIS D, n=129). For NTSCI, gains increased from Q2 to Q3 (T1-S5-ABC, n=195) and from Q1 to Q2 as well as from Q2 to Q3 (AIS D, n=304). Adjusted models showed decreasing gains for Q2 and Q3 vs. Q1 (TSCI) but increasing gains for Q2-Q4 vs. Q1 (NTSCI) for both measures. No significant gains were observed from Q3 to Q4.
Conclusions: We identified specific neurological categories and LOS quarters yielding to significant functional gains.
{"title":"Optimizing length of hospital stay among inpatients with spinal cord injury: An observational study.","authors":"A García-Rudolph, E A Devilleneuve, M A Wright, D Sanchez-Pinsach, E Opisso","doi":"10.1016/j.jhqr.2024.11.001","DOIUrl":"https://doi.org/10.1016/j.jhqr.2024.11.001","url":null,"abstract":"<p><strong>Introduction and objectives: </strong>Despite the importance of length of stay (LOS) following spinal cord injury, it remains underexplored in the literature. This study aims to bridge this gap by investigating the association between rehabilitation LOS and functional gains among patients with traumatic (TSCI) or non-traumatic (NTSCI) spinal cord injuries.</p><p><strong>Methods: </strong>We conducted a retrospective observational cohort study assessing functional gains using the motor Functional Independence Measure (mFIM) and the Spinal Cord Independence Measure (SCIM III) from rehabilitation admission to discharge. Outcomes were analyzed across four neurological categories based on the American Spinal Injury Association Impairment Scale (AIS): C1-C4 AIS A-C; C5-8 AIS A-C; T1-S5 AIS A-C; and AIS D. Linear regression models estimated changes across rehabilitation LOS quarters (Q1-Q4), adjusting for covariates.</p><p><strong>Results: </strong>We included 1036 patients admitted for rehabilitation between 2007 and 2023 (46.3% TSCI, 53.7% NTSCI). TSCI: age 42.7, 80.2% male, 41.8% AIS A, LOS 90.5. NTSCI: age 55.7, 54.2% male, 14.2% AIS A, LOS 69.6. For TSCI, mFIM and SCIM III gains increased significantly from Q1 to Q2 (T1-S5-ABC, n=214) and Q2 to Q3 (AIS D, n=129). For NTSCI, gains increased from Q2 to Q3 (T1-S5-ABC, n=195) and from Q1 to Q2 as well as from Q2 to Q3 (AIS D, n=304). Adjusted models showed decreasing gains for Q2 and Q3 vs. Q1 (TSCI) but increasing gains for Q2-Q4 vs. Q1 (NTSCI) for both measures. No significant gains were observed from Q3 to Q4.</p><p><strong>Conclusions: </strong>We identified specific neurological categories and LOS quarters yielding to significant functional gains.</p>","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":" ","pages":""},"PeriodicalIF":1.1,"publicationDate":"2024-12-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142910874","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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