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The Role of Extended Family Relations and Rituals in Family Resilience Following Loss of Mother to Cancer: A Case Study in Turkey 母亲因癌症去世后,大家庭关系和仪式在家庭恢复力中的作用:土耳其的案例研究
Q2 Social Sciences Pub Date : 2021-08-04 DOI: 10.1177/10541373211034632
Betül Tanacıoğlu-Aydın, Sibel Akmehmet-Şekerler, Denİz Albayrak-kaymak, A. Zara
The loss of the mother leads to many changes in the family. The loss might have negative effects on the ones that are left behind. However, some family members do not show pathological symptoms; rather, they have healthy functioning despite their sad loss. Guided by the resilience perspective, this study illuminates the case of a Turkish family after the mother dies due to stomach cancer. The whole picture of a family after this loss was examined through using various data sources. Transcribed interviews with family members and teachers of two children in the family were investigated through thematic analysis, and five major themes were identified. Extended family relations and rituals, such as funeral services, meals after the funeral, or visiting the grave of the lost one, were found to be helpful toward positive grief experiences and resilience of the family members in the aftermath of the loss. This study was important in the sense that it gave an in-depth perspective of a Muslim family who lost the maternal parent, which is considered a person's most important attachment figure.
母亲的去世给这个家庭带来了许多变化。这种损失可能会对留下来的人产生负面影响。但部分家庭成员未表现出病理症状;更确切地说,尽管他们失去了亲人,但他们的功能还是健康的。本研究以弹性视角为指导,阐述了一个土耳其家庭母亲因胃癌去世的案例。通过使用各种数据来源,研究了一个家庭在失去亲人后的全貌。通过主题分析,对家庭中两个孩子的家庭成员和教师的访谈记录进行了调查,并确定了五个主要主题。大家庭的关系和仪式,如葬礼服务,葬礼后的晚餐,或参拜死者的坟墓,被发现有助于积极的悲伤经历和家庭成员在失去亲人后的恢复力。这项研究的重要之处在于,它对失去父母的穆斯林家庭进行了深入的研究,而父母被认为是一个人最重要的依恋对象。
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引用次数: 2
Understanding the Bereavement Process: Voices of Bereaved Parents 理解丧亲过程:丧亲父母的声音
Q2 Social Sciences Pub Date : 2021-08-03 DOI: 10.1177/10541373211030491
K. Calderwood, A. Alberton
Analysis of in-depth qualitative interviews with 20 bereaved parents and 11 service providers revealed a more holistic conceptualization of the bereavement process for parents who have lost a child. Holistic “states” included: “helplessness prior to the death,” “fog,” “turmoil,” “transition,” “new beginnings,” and “stability.” Findings showed that loss and restorative processes are characteristic of more than one state, the bereavement narrative starts prior to the death, there is often a downturn after the bereaved parent seemingly is doing better, and the process never ends but may include a continuing bond with the deceased and reoccurring moments of extreme grief. Recommendations for direct practice, program development, and future research are presented.
对20位丧亲父母和11位服务提供者的深度定性访谈分析揭示了对丧亲过程的更全面的概念化。整体的“状态”包括:“死前的无助”、“雾”、“动荡”、“过渡”、“新开始”和“稳定”。研究结果表明,失去和恢复过程是不止一种状态的特征,丧亲之痛的叙述在死亡之前就开始了,在失去亲人的父母似乎做得更好之后,通常会有一个低迷期,这个过程永远不会结束,但可能包括与死者的持续联系和反复出现的极端悲伤时刻。对直接实践、程序开发和未来研究提出了建议。
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引用次数: 0
Facing Loss and Finding Hope in Narrating Together: Accounts of Parenthood Following the Death of a Child to Muscular Dystrophy 在共同叙述中面对损失和寻找希望:一个患有肌肉萎缩症的孩子去世后父母的叙述
Q2 Social Sciences Pub Date : 2021-07-20 DOI: 10.1177/10541373211013719
James Randall, Lizette Nolte, D. Wellsted
Muscular dystrophy is a terminal muscle-wasting condition, whereby families face continuous challenges as their child’s health deteriorates. This research explored accounts of parenthood following bereavement of their child to muscular dystrophy. Narrative inquiry was used to analyse interviews with four couples. Findings suggest an importance in narrating adversities (waking up to different futures) and positive influence (creating legacies). The research highlighted how humour is often used to support others to witness painful accounts (humour through the struggle). Parents appeared to co-regulate the painfulness of narrating loss (storytelling together). Further research is needed on conjoint narrative interviews and how these may enable participants to address shared loss experiences. Practitioners who support bereaved parents could consider the potential value highlighted in this study of meeting with parents conjointly, which include that, through co-regulatory, collaborative processes, families seemed to be supported to reach narrative cohesion, sensitively and safely, when facing loss and bereavement.
肌肉萎缩症是一种晚期肌肉萎缩症,随着孩子健康状况的恶化,家庭面临着持续的挑战。这项研究探讨了因肌肉萎缩症而失去孩子的父母的情况。叙述性调查用于分析对四对夫妇的采访。研究结果表明,它在叙述逆境(意识到不同的未来)和积极影响(创造遗产)方面很重要。这项研究强调了幽默是如何经常被用来支持别人见证痛苦的经历的(通过挣扎来幽默)。父母似乎共同调节叙述失去的痛苦(一起讲故事)。需要进一步研究联合叙事访谈,以及这些访谈如何使参与者解决共同的损失经历。支持丧亲父母的从业者可以考虑本研究中强调的与父母共同会面的潜在价值,其中包括,通过共同监管,协作过程,家庭似乎得到支持,在面对损失和丧亲时,敏感而安全地达到叙事凝聚力。
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引用次数: 0
Embodied Loss and the Psychophysiological Effects of Pain Examined With Traditional and New Behavioral Measures 用传统和新的行为学方法研究疼痛的具身损失和心理生理效应
Q2 Social Sciences Pub Date : 2021-06-24 DOI: 10.1177/10541373211020667
Preston A. Long, X. T. Wang
Based on a robust decision phenomenon of loss aversion, people are distinctly more sensitive to losses than to gains. The psychological pain experienced due to a loss is greater than the pleasure experienced due to a gain of the same amount. We argue that physical pain can be viewed as a psychological loss with diminishing sensitivity. Pain thus would be preferred summed rather than distributed. The results from 89 student-participants recruited from a public university in the Midwest US revealed that chronic pain is correlated with reduced subjective life expectancy and increased impulsivity. We found a significant propensity to prefer sharp-and-shorter pain to milder-and-longer pain. The loss-aversion score predicted this propensity in pain management. We developed a new behavioral measure of Band-Aid removal as a predictor for pain duration-intensity tradeoff. The higher the Band-Aid removal time, the higher the preference for higher-duration and lower intensity, and the lower willingness to seek medical attention for pain. The participants also revealed a higher willingness to seek medical help for generalized pain than localized pain to reduce information ambiguity.
基于损失厌恶这一稳健的决策现象,人们对损失的敏感度明显高于对收益的敏感度。因失去而经历的心理痛苦比因获得同样数量的东西而经历的快乐更大。我们认为,身体上的疼痛可以被视为一种心理上的损失,其敏感性正在下降。因此,痛苦更倾向于被汇总而不是被分配。从美国中西部一所公立大学招募的89名学生参与者的研究结果显示,慢性疼痛与主观预期寿命缩短和冲动增加有关。我们发现,比起轻微而持久的疼痛,人们更喜欢剧烈而短暂的疼痛。损失厌恶得分预测了疼痛管理中的这种倾向。我们开发了一种新的行为测量创可贴去除作为疼痛持续时间-强度权衡的预测指标。拔除创可贴时间越长,对高持续时间、低强度创可贴的偏好越高,疼痛就医意愿越低。为了减少信息歧义,参与者还表现出对全身性疼痛比局部疼痛寻求医疗帮助的意愿更高。
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引用次数: 0
A Preliminary Report on Alcohol-Associated DNA Methylation Changes and Suicidal Behavior: Evidence Using Mendelian Randomization 酒精相关DNA甲基化改变与自杀行为的初步报告:使用孟德尔随机化的证据
Q2 Social Sciences Pub Date : 2021-06-19 DOI: 10.1177/1054137320952246
C. Adams
Suicide is a major public health concern. In 2015, it was the 10th leading cause of death in the US. The number of suicides increased by 30% in the US from 1999 to 2016, and a greater uptick in suicides is predicted to occur as a result of the COVID-19 crisis, for which the primary public-health strategy is physical distancing and during which alcohol sales have soared. Thus, current strategies for identifying at-risk individuals and preventing suicides, such as relying on self-reported suicidal ideation, are insufficient, especially under conditions of physical distancing, which exacerbate isolation, loneliness, economic stress, and possibly alcohol consumption. New strategies are urgent now and into the future. To that aim, here, a two-sample Mendelian randomization (an instrumental variables technique using public genome-wide association study data as data sources) was performed to determine whether alcohol-associated changes in DNA methylation mediate risk for suicidal behavior. The results suggest that higher alcohol-associated DNA methylation levels at cg18120259 confer a weak causal effect. Replication and triangulation of the results, both experimentally and with designs other than Mendelian randomization, are needed. If the findings replicate, the information might be utilized to raise awareness about the biological links between alcohol and suicide and possibly explored as a biomarker of risk, perhaps especially for early detection of those who may not self-report suicidal intent.
自杀是一个重大的公共卫生问题。2015年,它是美国第十大死因。从1999年到2016年,美国的自杀人数增加了30%,预计由于2019冠状病毒病危机,自杀人数将会出现更大的上升。在这场危机中,主要的公共卫生策略是保持身体距离,在此期间酒精销量飙升。因此,目前识别高危个人和预防自杀的战略,例如依靠自我报告的自杀意念,是不够的,特别是在身体距离的情况下,这会加剧孤立、孤独、经济压力,并可能导致饮酒。现在和将来都迫切需要新的战略。为此,本研究采用双样本孟德尔随机化(一种使用公共全基因组关联研究数据作为数据源的工具变量技术)来确定酒精相关的DNA甲基化变化是否介导自杀行为的风险。结果表明,cg18120259位点较高的酒精相关DNA甲基化水平具有较弱的因果效应。需要用实验和孟德尔随机化以外的设计对结果进行复制和三角测量。如果研究结果重复,这些信息可能被用来提高人们对酒精和自杀之间的生物学联系的认识,并可能作为风险的生物标志物进行探索,特别是对于那些可能没有自我报告自杀意图的人的早期检测。
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引用次数: 0
A Systematic Review of the Effectiveness of Acceptance and Commitment Therapy for Managing Grief Experienced by Bereaved Spouses or Partners of Adults Who Had Received Palliative Care 接受和承诺治疗对接受姑息治疗的丧失亲人的配偶或伴侣所经历的悲伤的管理效果的系统回顾
Q2 Social Sciences Pub Date : 2021-06-18 DOI: 10.1177/10541373211000175
K. Jones, A. Methley, G. Boyle, R. García, J. Vseteckova
This systematic review investigated the effectiveness of Acceptance and Commitment Therapy (ACT) for managing grief experienced by bereaved spouses or partners of adults who had received palliative care. Systematic searches were undertaken on seven bibliographic databases and grey literature was also searched. The review was informed by the use of the PICO framework and PRISMA-P guidelines. Initially 30 relevant papers were identified, but only two international studies met the criteria for inclusion. One was a qualitative, doctoral study using Interpretative Phenomenological Analysis; the other, a randomized controlled trial comparing ACT with usual psychosocial support. These studies showed some evidence of benefit for bereaved individuals, particularly by promoting the acceptance of troubling emotions. However, this type of therapy may be more effective in reducing psychological distress rather than grief. Further research is needed into the value of ACT in addressing grief following bereavement.
本系统综述调查了接受和承诺疗法(ACT)对接受姑息治疗的丧失亲人的配偶或伴侣所经历的悲伤的管理效果。系统地检索了7个书目数据库,并检索了灰色文献。审查是通过使用PICO框架和PRISMA-P指南来进行的。最初确定了30篇相关论文,但只有两篇国际研究符合纳入标准。一个是定性的博士研究,使用解释现象学分析;另一项是比较ACT与常规心理社会支持的随机对照试验。这些研究显示了一些对失去亲人的人有益的证据,特别是通过促进对烦恼情绪的接受。然而,这种类型的治疗可能更有效地减少心理困扰,而不是悲伤。ACT在处理丧亲之痛中的价值有待进一步研究。
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引用次数: 3
Assessment of Risk Factors and Consequences of Mental Health Problems Among Mental Health Patients Admitted in Felege Hiwot Referral Hospital, Bahir Dar, Ethiopia 对埃塞俄比亚巴希尔达尔费利格希沃特转诊医院收治的精神健康患者的精神健康问题的风险因素和后果的评估
Q2 Social Sciences Pub Date : 2021-06-18 DOI: 10.1177/10541373211020449
Awgchew Shimelash Yasegnal
Introduction Mental health problem is a syndrome characterized by clinically significant disturbance in an individual’s cognition, emotion regulation, or behavior that reflects a dysfunction in the psychological, biological, or developmental processes underlying mental functioning. Objective To assess the risk factors and consequence of mental health problems among patients admitted in Felege Hiwot Referal Hospital in Bahir Dar, Ethiopia. Methodology: Phenomenological research design was used to conduct this study. Using available sampling, a total of 10 participants were involved. Interview was used as a means of collecting the data. The data was analyzed by thematic and narration techniques of analysis. Result Early life experience, social crises, economic problem, biological causes like brain damage and injury, heredity, drug use, and traditional believes such as sin, curse, witchcraft, evil spirit, herbal medicine are found to be the risk factors. Low self esteem, loneliness, hopelessness, economic problem, suicidal attempt, unable to detect the need of the patients, history taking challenge, low level of patience, low drug adherence, and counter transference are found to be the consequence of mental health problem. Conclusion People with mental health problem in the long run are highly prone to suicidal attempt and commitment as a result mental health problem. Recommendations: Concerned government bodies/Health Bureau/and the people shall work on the problems proactively and minimize the consequences through intensive follow up of people with mental health problems.
心理健康问题是一种以个体认知、情绪调节或行为的临床显著障碍为特征的综合征,反映了心理、生物或发展过程中潜在的心理功能障碍。目的探讨埃塞俄比亚巴希尔达尔费利格希沃特转诊医院住院患者心理健康问题的危险因素及其后果。方法:采用现象学研究设计进行本研究。利用现有的抽样,共涉及10名参与者。访谈是收集数据的一种手段。采用主题分析和叙事分析的方法对数据进行分析。结果早期生活经历、社会危机、经济问题、脑损伤等生物原因、遗传、药物使用以及罪、诅咒、巫术、邪灵、草药等传统信仰是其发病的危险因素。低自尊、孤独、绝望、经济问题、自杀企图、无法发现病人的需要、接受挑战的历史、低水平的耐心、低药物依从性和反移情被发现是心理健康问题的后果。结论有心理健康问题的人长期存在自杀企图和自杀承诺的倾向,这是心理健康问题的结果。建议:有关政府机构/卫生局/市民应积极处理问题,并透过密集跟进心理健康问题人士,将后果减至最低。
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引用次数: 0
Characteristics of Resilient Hospice Workers From Their Administrators’ Perspectives: A Qualitative Study 从管理者的角度看弹性安宁疗护工作者的特质:一项质性研究
Q2 Social Sciences Pub Date : 2021-06-16 DOI: 10.1177/10541373211017279
Tiffany Havlin, Amanda Keys
This study explores hospice administrators’ perceptions of the characteristics of resilient hospice workers. This qualitative phenomenological study included ten participants from five hospice organizations in rural and urban Southwest Missouri communities. All participants were current hospice administrators. Administrators identified six characteristics of resilient hospice workers. These characteristics included (a) relationship building with clients, (b) having a supportive team, (c) ongoing education, (d) positivity, (e) strong boundaries, and (f) the importance of spirituality. Authors suggest identifying and encouraging these characteristics in hospice workers may lead to less employee turnover, healthier employees, and a better work environment.
本研究探讨安宁疗护管理者对弹性安宁疗护工作者特质的认知。本质性现象学研究包括来自密苏里州西南乡村及城市社区五个安宁疗护组织的十位参与者。所有参与者都是目前的临终关怀管理人员。管理人员确定了有弹性的临终关怀工作者的六个特征。这些特征包括(a)与客户建立关系,(b)拥有一个支持性的团队,(c)持续的教育,(d)积极,(e)强大的界限,以及(f)灵性的重要性。作者建议,识别并鼓励临终关怀工作者的这些特征,可能会减少员工流失率,使员工更健康,并创造更好的工作环境。
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引用次数: 1
Prevalence and Social Risk Factors of Infertility in Vietnam 越南不孕的患病率和社会危险因素
Q2 Social Sciences Pub Date : 2021-06-01 DOI: 10.1177/10541373211022103
Namcho Kim, C. Chamchan, K. Tangchonlatip
Despite of significant social meaning of childlessness in Vietnam, there have been less scientific interests and social concerns about infertility during the past decades. This study aimed to measure infertility prevalence rate among Vietnamese married women and identifies the risk factors associated with vulnerability of infertility in social perspectives. A total of 11,715 married women aged between 20 and 44 years were selected from two rounds of Vietnam Multiple Indicator Cluster Survey in 2011 and 2014. The study applied a demographic definition of infertility; refers to an absence of live birth in the past 24 months among married women having desire of child and not using any contraceptive method. Primary infertility prevalence was decreased from 1.6% in 2011 to 1.1% in 2014, while secondary infertility increased from 3.5% to 3.7% during the same period. Multinomial logistic regression analysis revealed that age of women and husband, education, wealth index and age at first marriage were significantly associated with primary infertility, while education, wealth index and age at first marriage were significantly associated with secondary infertility. Despite some limitations, this study is helpful to understand infertility dynamics and some influencing factors increasing the risk of infertility in social context of the Vietnam.
尽管在越南无子女具有重要的社会意义,但在过去的几十年里,对不孕不育的科学兴趣和社会关注较少。本研究旨在测量越南已婚妇女的不孕症患病率,并从社会角度确定与不孕症易感性相关的危险因素。在2011年和2014年的两轮越南多指标类集调查中,共选择了11,715名年龄在20至44岁之间的已婚女性。该研究采用了不孕不育的人口统计学定义;指有生育愿望且未采取任何避孕措施的已婚妇女在过去24个月内没有活产的情况。原发性不孕症患病率从2011年的1.6%下降到2014年的1.1%,而同期继发性不孕症患病率从3.5%上升到3.7%。多项logistic回归分析显示,女性与丈夫的年龄、教育程度、财富指数和初婚年龄与原发性不孕症显著相关,教育程度、财富指数和初婚年龄与继发性不孕症显著相关。尽管有一定的局限性,但本研究有助于了解越南社会背景下的不孕动态和不孕风险的影响因素。
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引用次数: 0
Political Grief 政治的悲伤
Q2 Social Sciences Pub Date : 2021-04-29 DOI: 10.1177/1054137321999793
Darcy Harris
Grief is usually understood as the personal response to loss. Thus, there is a tendency to consider grief as an individual experience, most typically related to the death of a loved one. However, recent research and theory have provided a much more complex picture of grief as a broad, interdimensional experience that can be both generated and experienced at micro, mezzo, and macro levels. In this context, consideration is given to grief that occurs as a result of events that take place at the sociopolitical level, which can be experienced both individually and collectively. Collective grief may occur when the loss relates to a group where commonly shared assumptions are shattered. The concept of political grief can be seen as a poignant sense of assault to the assumptive world of those who struggle with the ideology and practices of their governing bodies and those who hold political power. Likewise, political grief would also include the direct losses that are experienced by individuals as a result of political policies, ideologies, and oppression enacted and/or empowered at the sociopolitical levels. Different theoretical perspectives, such as the cultural backlash theory, the role of economic inequality within significant sectors, and predictions of the response to threat by terror management theory may help to understand the rise of governments that increase divisions and the sense of loss experienced by large groups within their jurisdiction.
悲伤通常被理解为对失去的个人反应。因此,有一种倾向认为悲伤是一种个人经历,最典型的是与亲人的死亡有关。然而,最近的研究和理论提供了一个更复杂的画面,悲伤是一种广泛的、跨维度的体验,可以在微观、中音和宏观层面上产生和体验。在这种情况下,考虑到在社会政治层面上发生的事件所造成的悲伤,这些事件可以个人或集体地经历。当一个群体的共同假设被打破时,集体悲伤就会发生。政治悲伤的概念可以被看作是对那些与他们的管理机构的意识形态和做法作斗争的人以及那些掌握政治权力的人的假设世界的一种尖锐的攻击。同样,政治悲痛还包括个人因在社会政治层面制定和/或授权的政治政策、意识形态和压迫而遭受的直接损失。不同的理论观点,如文化反弹理论,经济不平等在重要部门中的作用,以及恐怖管理理论对威胁反应的预测,可能有助于理解政府的崛起,这些政府加剧了其管辖范围内的大群体的分裂和失落感。
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引用次数: 2
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Illness Crisis and Loss
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