Pub Date : 2021-04-07DOI: 10.1177/10541373211007850
Stefany Fortin, M. Keitel
This article reviews the literature on the experience of pregnancy for women who suffered a prior perinatal loss through miscarriage or stillbirth. Both psychological and social perspectives are considered, and findings synthesized with the first author’s reflection on the psychosocial circumstances and needs of women pregnant after a loss, using her personal loss and experience as a peer providing support to this population. Clinical implications highlight the importance of acknowledging the challenges faced by those carrying a child in the very same womb that had previously seen a devastating outcome.
{"title":"Nine Months of Labor: The Psychosocial Weight of a Pregnancy After a Gestational Loss","authors":"Stefany Fortin, M. Keitel","doi":"10.1177/10541373211007850","DOIUrl":"https://doi.org/10.1177/10541373211007850","url":null,"abstract":"This article reviews the literature on the experience of pregnancy for women who suffered a prior perinatal loss through miscarriage or stillbirth. Both psychological and social perspectives are considered, and findings synthesized with the first author’s reflection on the psychosocial circumstances and needs of women pregnant after a loss, using her personal loss and experience as a peer providing support to this population. Clinical implications highlight the importance of acknowledging the challenges faced by those carrying a child in the very same womb that had previously seen a devastating outcome.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"33 1","pages":"674 - 688"},"PeriodicalIF":0.0,"publicationDate":"2021-04-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"73999629","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-04-07DOI: 10.1177/10541373211006883
Chrysoula Baka, K. Chatira, E. Karademas, K. Kafetsios
Multiple sclerosis is a chronic autoimmune disorder that greatly impacts on patients’ physical and psychosocial wellbeing. The purpose of this study is to investigate the experiences of people diagnosed with multiple sclerosis in Greece (N = 30), with regard to the way they coped with the diagnosis and the symptoms, the psychological implications of the disorder and the meaning they attributed to it. Data were collected through semi-structured interviews and they were analyzed using grounded theory. The findings showed that despite the negative implications of the disorder and the difficulty in managing the diagnosis and the symptoms, half of the patients attributed positive meaning to the disorder. Taking care of oneself, re-evaluation of life and a sense of liberation were described as the positive outcomes of experiencing multiple sclerosis.
{"title":"Patients’ Perspective on the Psychological Impact of Multiple Sclerosis on Their Life","authors":"Chrysoula Baka, K. Chatira, E. Karademas, K. Kafetsios","doi":"10.1177/10541373211006883","DOIUrl":"https://doi.org/10.1177/10541373211006883","url":null,"abstract":"Multiple sclerosis is a chronic autoimmune disorder that greatly impacts on patients’ physical and psychosocial wellbeing. The purpose of this study is to investigate the experiences of people diagnosed with multiple sclerosis in Greece (N = 30), with regard to the way they coped with the diagnosis and the symptoms, the psychological implications of the disorder and the meaning they attributed to it. Data were collected through semi-structured interviews and they were analyzed using grounded theory. The findings showed that despite the negative implications of the disorder and the difficulty in managing the diagnosis and the symptoms, half of the patients attributed positive meaning to the disorder. Taking care of oneself, re-evaluation of life and a sense of liberation were described as the positive outcomes of experiencing multiple sclerosis.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"95 1","pages":"659 - 673"},"PeriodicalIF":0.0,"publicationDate":"2021-04-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"73581726","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-04-07DOI: 10.1177/10541373211007455
S. Alonzi, L. Perry, Michael Hoerger
Finding meaning in life is important for maintaining physical and mental well-being. Obtaining a deeper understanding of activities that patients with cancer find meaningful is essential in improving cancer care and increasing meaning in life in these individuals. The sample of the present study consisted of patients with cancer (N = 61) who reported their levels of financial strain and listed types of activities that they found most meaningful as a part of an online study. Participants engaged in activities that could be grouped into four broad domains (companionship, personal responsibility, recreation, and existential). In addition, results showed that financial strain was associated with higher preference for activities in the existential domain and lower preference for activities in the recreation domain. Future researchers could extend this study by exploring why certain activities are found to be more meaningful and how to combat the influence of financial strain in cancer.
{"title":"Finding Meaning in Life After a Cancer Diagnosis: What Is the Role of Financial Strain?","authors":"S. Alonzi, L. Perry, Michael Hoerger","doi":"10.1177/10541373211007455","DOIUrl":"https://doi.org/10.1177/10541373211007455","url":null,"abstract":"Finding meaning in life is important for maintaining physical and mental well-being. Obtaining a deeper understanding of activities that patients with cancer find meaningful is essential in improving cancer care and increasing meaning in life in these individuals. The sample of the present study consisted of patients with cancer (N = 61) who reported their levels of financial strain and listed types of activities that they found most meaningful as a part of an online study. Participants engaged in activities that could be grouped into four broad domains (companionship, personal responsibility, recreation, and existential). In addition, results showed that financial strain was associated with higher preference for activities in the existential domain and lower preference for activities in the recreation domain. Future researchers could extend this study by exploring why certain activities are found to be more meaningful and how to combat the influence of financial strain in cancer.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"49 1 1","pages":"628 - 639"},"PeriodicalIF":0.0,"publicationDate":"2021-04-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88841926","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-03-02DOI: 10.1177/1054137321995811
P. Wright
A scoping review of parental bereavement in older age was conducted to identify the unique needs of older adults after the loss of an adult child. Inclusion and exclusion criteria were developed in accordance with the stated objectives of this review, which was guided by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR). In total, 26 research studies were included. The data were then analyzed using a systematic approach for organizing and synthesizing key data. The results indicated that some consequences and mediators of parental bereavement are similar regardless of age. But, older adults experience greater loneliness, isolation, and stigma than their younger counterparts. Older parents are also at greater risk for physical decline, mortality, and institutionalization following the death of an adult child. Religious and cultural mores also have influence on the bereavement process.
{"title":"Parental Bereavement in Older Age: A Scoping Review","authors":"P. Wright","doi":"10.1177/1054137321995811","DOIUrl":"https://doi.org/10.1177/1054137321995811","url":null,"abstract":"A scoping review of parental bereavement in older age was conducted to identify the unique needs of older adults after the loss of an adult child. Inclusion and exclusion criteria were developed in accordance with the stated objectives of this review, which was guided by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR). In total, 26 research studies were included. The data were then analyzed using a systematic approach for organizing and synthesizing key data. The results indicated that some consequences and mediators of parental bereavement are similar regardless of age. But, older adults experience greater loneliness, isolation, and stigma than their younger counterparts. Older parents are also at greater risk for physical decline, mortality, and institutionalization following the death of an adult child. Religious and cultural mores also have influence on the bereavement process.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"2 1","pages":"531 - 571"},"PeriodicalIF":0.0,"publicationDate":"2021-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90113282","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-31DOI: 10.1177/1054137320988476
Gina C. Whalen, Tara E. Simmons
The purpose of this study is to explore the experience of maternal bereavement. As scholar practitioners the authors offer their personal narratives to bring awareness to the multifaceted aspects of grieving the death of a child. Using collaborative autoethnography as the study’s methodology enabled the authors to explore their connection to the sociocultural context of maternal grief. Data collection consisted of a dialogue process that took place electronically through the course of asynchronous messages. Data analysis revealed three interrelated themes: transformation, constructing meaning, and creative ways of knowing. The findings are examined in light of literature regarding maternal bereavement and the expressing of grief through writing. The study concludes with a discussion on implications and recommendations for bereaved mothers and those who serve this population.
{"title":"Bonded from Brokenness: A Collaborative Autoethnography on Maternal Bereavement","authors":"Gina C. Whalen, Tara E. Simmons","doi":"10.1177/1054137320988476","DOIUrl":"https://doi.org/10.1177/1054137320988476","url":null,"abstract":"The purpose of this study is to explore the experience of maternal bereavement. As scholar practitioners the authors offer their personal narratives to bring awareness to the multifaceted aspects of grieving the death of a child. Using collaborative autoethnography as the study’s methodology enabled the authors to explore their connection to the sociocultural context of maternal grief. Data collection consisted of a dialogue process that took place electronically through the course of asynchronous messages. Data analysis revealed three interrelated themes: transformation, constructing meaning, and creative ways of knowing. The findings are examined in light of literature regarding maternal bereavement and the expressing of grief through writing. The study concludes with a discussion on implications and recommendations for bereaved mothers and those who serve this population.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"714 1","pages":"516 - 530"},"PeriodicalIF":0.0,"publicationDate":"2021-01-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78728251","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-06DOI: 10.1177/1054137320986750
Helle Holmgren
Families with children in the home who lose a parent to death are not only faced by bereavement but quite often a whole array of other changes. One area that has so far been overlooked in research is the return to work of the surviving parent. In this online survey of widowed parents, four out of five (81.6%, n=71) had experienced changes in their working or student conditions as a direct result of losing their partner. The experienced changes were mainly seen in relation to increased sick leave, reduced working hours, redundancy, and a change of jobs. Thematic analyses of participant responses to open-ended questions resulted in four different themes: Feeling overburdened, Grief as a process, Unaccommodating workplace, and Accommodating workplace. The results of this study highlight a need for focusing on the return to work of bereaved employees who have lost a co-parent.
{"title":"Returning to Work Following Spousal Loss? The Experiences of Widowed Parents","authors":"Helle Holmgren","doi":"10.1177/1054137320986750","DOIUrl":"https://doi.org/10.1177/1054137320986750","url":null,"abstract":"Families with children in the home who lose a parent to death are not only faced by bereavement but quite often a whole array of other changes. One area that has so far been overlooked in research is the return to work of the surviving parent. In this online survey of widowed parents, four out of five (81.6%, n=71) had experienced changes in their working or student conditions as a direct result of losing their partner. The experienced changes were mainly seen in relation to increased sick leave, reduced working hours, redundancy, and a change of jobs. Thematic analyses of participant responses to open-ended questions resulted in four different themes: Feeling overburdened, Grief as a process, Unaccommodating workplace, and Accommodating workplace. The results of this study highlight a need for focusing on the return to work of bereaved employees who have lost a co-parent.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"109 1","pages":"499 - 515"},"PeriodicalIF":0.0,"publicationDate":"2021-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85721710","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-06DOI: 10.1177/1054137320982203
Fereshteh Ahmadi, Nader Ahmadi
Sanctification is an important phenomenon and should be of keen interest to those studying religious and spiritually oriented coping. Oddly enough, this phenomenon has not received a great deal of attention. One reason may be that sanctification does not directly apply to institutional religious involvement. Moreover, the sacred cannot easily be discerned in people’s coping experience. On important issue is also the lack of attention to the role of culture in coping. One of the researchers who has paid considerable attention to the concept of sanctification and has developed it from different perspectives is Kenneth Pargament. The aim of this article is give rise to a vital discussion on the role of sanctification in coping from a cultural perspective. In doing this, we will first introduce Pargament’s approach to religion and spirituality and then his view on sanctification and then we will put forward our own critique of some discussions on this subject, concluding with our own view.
{"title":"Sanctification in Coping From a Cultural Perspective","authors":"Fereshteh Ahmadi, Nader Ahmadi","doi":"10.1177/1054137320982203","DOIUrl":"https://doi.org/10.1177/1054137320982203","url":null,"abstract":"Sanctification is an important phenomenon and should be of keen interest to those studying religious and spiritually oriented coping. Oddly enough, this phenomenon has not received a great deal of attention. One reason may be that sanctification does not directly apply to institutional religious involvement. Moreover, the sacred cannot easily be discerned in people’s coping experience. On important issue is also the lack of attention to the role of culture in coping. One of the researchers who has paid considerable attention to the concept of sanctification and has developed it from different perspectives is Kenneth Pargament. The aim of this article is give rise to a vital discussion on the role of sanctification in coping from a cultural perspective. In doing this, we will first introduce Pargament’s approach to religion and spirituality and then his view on sanctification and then we will put forward our own critique of some discussions on this subject, concluding with our own view.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"12 1","pages":"465 - 488"},"PeriodicalIF":0.0,"publicationDate":"2021-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1054137320982203","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"72512568","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-11-22DOI: 10.1177/1054137320968484
Kathryn E. Bojczyk, Heather R. Haverback
The goal of this study was to explore middle aged mothers’ and young adult daughters’ perceptions of the impact of non-death loss. This qualitative study explored perceptions of loss and boundary ambiguity of 24 mother-daughter dyads through individual interviews. All mothers and daughters described losses such as illness, the daughters’ launching, and dissolution of relationships that impacted the mother-daughter relationship. Comparison of mothers’ and daughters’ descriptions of the impacts of loss revealed convergence and divergence in their descriptions of associated levels of boundary ambiguity. Although experiences of loss do seem to be a universal human experience, perceptions regarding the impact of loss on both the individual and the mother-daughter dyad vary greatly.
{"title":"Band-Aids and Kisses Can’t Fix It: Mothers’ and Daughters’ Perceptions of Non-Death Loss and Boundary Ambiguity","authors":"Kathryn E. Bojczyk, Heather R. Haverback","doi":"10.1177/1054137320968484","DOIUrl":"https://doi.org/10.1177/1054137320968484","url":null,"abstract":"The goal of this study was to explore middle aged mothers’ and young adult daughters’ perceptions of the impact of non-death loss. This qualitative study explored perceptions of loss and boundary ambiguity of 24 mother-daughter dyads through individual interviews. All mothers and daughters described losses such as illness, the daughters’ launching, and dissolution of relationships that impacted the mother-daughter relationship. Comparison of mothers’ and daughters’ descriptions of the impacts of loss revealed convergence and divergence in their descriptions of associated levels of boundary ambiguity. Although experiences of loss do seem to be a universal human experience, perceptions regarding the impact of loss on both the individual and the mother-daughter dyad vary greatly.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"45 1","pages":"447 - 464"},"PeriodicalIF":0.0,"publicationDate":"2020-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90485375","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-11-17DOI: 10.1177/1054137320966261
Helle Holmgren
Following a lengthy debate about the possibilities of distinguishing abnormal from normal grief reactions, a diagnosis of prolonged grief disorder has been included in the newest edition of the International Classification of Diseases (ICD; WHO, 2018). In this online survey, spousally bereaved individuals (N = 86) with children in the home were asked about what they made of the grief diagnosis. The results varied from individuals being decidedly against diagnosing grief to others embracing a diagnosis as a means to a recognition of bereavement and grief—and possible access to help and support. The time criterion in the ICD diagnosis of PGD, however, met widespread criticism. While the diagnosis of PGD has already been included in the ICD, it remains to be seen whether it will lead to more understanding of bereaved individuals and an improved provision of help and support for adults and children in the future.
{"title":"Defining Normal: What Widowed Parents Make of Diagnosing Grief","authors":"Helle Holmgren","doi":"10.1177/1054137320966261","DOIUrl":"https://doi.org/10.1177/1054137320966261","url":null,"abstract":"Following a lengthy debate about the possibilities of distinguishing abnormal from normal grief reactions, a diagnosis of prolonged grief disorder has been included in the newest edition of the International Classification of Diseases (ICD; WHO, 2018). In this online survey, spousally bereaved individuals (N = 86) with children in the home were asked about what they made of the grief diagnosis. The results varied from individuals being decidedly against diagnosing grief to others embracing a diagnosis as a means to a recognition of bereavement and grief—and possible access to help and support. The time criterion in the ICD diagnosis of PGD, however, met widespread criticism. While the diagnosis of PGD has already been included in the ICD, it remains to be seen whether it will lead to more understanding of bereaved individuals and an improved provision of help and support for adults and children in the future.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"3 1","pages":"410 - 426"},"PeriodicalIF":0.0,"publicationDate":"2020-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88241240","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-10-11DOI: 10.1177/1054137320953678
E. Micali
The study aims to analyse the presence of depressive symptoms correlated to memory and cognitive deficits in night-shift healthcare personnel working in the emergency wards of a Sicilian hospital, and examines the repercussions on health and safety in the workplace. A psycho-diagnostic protocol including a subtest of the Weschler Adult Intelligence Scale/WAIS-IV (PRI, WMI, PSI) and the Beck Depression Inventory (BDI) was administered to the sample of 50 subjects (25 doctors and 25 nurses) selected by taking inclusion and exclusion criteria into account. The results showed that the whole sample displayed normal levels in terms of perceptual reasoning index, image perception, the ability to isolate figures from the background, eye-motor coordination and non-verbal reasoning. Working memory index and processing speed index – indicative of concentration, manipulation, short-term memory, processing speed, selective attention and spatial orientation – were meanwhile found to be compromised to a higher percentage among nurses. The Beck Depression Inventory denoted a greater presence of depressive symptoms in nurses than doctors, associated with lower levels of WMI and PSI.
{"title":"Depression and Cognitive Levels in Health Workers With Night Shifts","authors":"E. Micali","doi":"10.1177/1054137320953678","DOIUrl":"https://doi.org/10.1177/1054137320953678","url":null,"abstract":"The study aims to analyse the presence of depressive symptoms correlated to memory and cognitive deficits in night-shift healthcare personnel working in the emergency wards of a Sicilian hospital, and examines the repercussions on health and safety in the workplace. A psycho-diagnostic protocol including a subtest of the Weschler Adult Intelligence Scale/WAIS-IV (PRI, WMI, PSI) and the Beck Depression Inventory (BDI) was administered to the sample of 50 subjects (25 doctors and 25 nurses) selected by taking inclusion and exclusion criteria into account. The results showed that the whole sample displayed normal levels in terms of perceptual reasoning index, image perception, the ability to isolate figures from the background, eye-motor coordination and non-verbal reasoning. Working memory index and processing speed index – indicative of concentration, manipulation, short-term memory, processing speed, selective attention and spatial orientation – were meanwhile found to be compromised to a higher percentage among nurses. The Beck Depression Inventory denoted a greater presence of depressive symptoms in nurses than doctors, associated with lower levels of WMI and PSI.","PeriodicalId":39747,"journal":{"name":"Illness Crisis and Loss","volume":"17 1","pages":"365 - 377"},"PeriodicalIF":0.0,"publicationDate":"2020-10-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89895791","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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