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Review Journal of Autism and Developmental Disorders最新文献

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The Experience of Raising Girls with Autism Spectrum Disorder: a Systematic Review of Qualitative Research Studies 孤独症谱系障碍女童的养育经验:质性研究的系统回顾
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-11-30 DOI: 10.1007/s40489-023-00419-w
Nicola Hopkins, Jane Iles, Rose-Marie Satherley

Autistic females often present differently to autistic males, which can lead to difficulties obtaining a diagnosis and subsequent support. Parenting an autistic daughter has been linked to additional parenting stress compared to parenting an autistic son. However, research in this area is limited. A systematic review was undertaken to synthesise qualitative studies on parental experiences of raising autistic females. Nine studies met the inclusion criteria and thematic synthesis was completed. Six themes were created. The analysis found issues with diagnosis and differences in lived experience compared to autistic males can present significant challenges. Parents can struggle with a range of negative emotions or feel overwhelmed. However, studies also found benefits to parenting an autistic daughter, such as increased confidence in parenting.

女性自闭症患者的表现往往与男性自闭症患者不同,这可能导致难以获得诊断和随后的支持。与养育一个自闭症的儿子相比,养育一个自闭症的女儿会带来额外的养育压力。然而,这方面的研究是有限的。本文进行了一项系统综述,以综合对养育自闭症女性的父母经验的定性研究。9项研究符合纳入标准,完成了专题综合。共创建了六个主题。分析发现,与自闭症男性相比,诊断问题和生活经历的差异可能会带来重大挑战。父母可能会与一系列负面情绪作斗争,或者感到不知所措。然而,研究也发现了养育自闭症女儿的好处,比如增加了养育孩子的信心。
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引用次数: 0
Listening to the Perspectives of Autistic Adolescents on Inclusive Education: a Systematic Literature Review 倾听自闭症青少年对全纳教育的看法:系统的文献综述
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-11-21 DOI: 10.1007/s40489-023-00416-z
Samantha E. Goldman, Kimberly N. Preece

Autistic adolescents are increasingly educated in inclusive settings. This likely affects their education and experiences in a variety of ways, yet their opinions on their inclusive educational experiences are rarely sought. Autistic adolescents should be given the opportunity to share their opinions on their inclusive experiences to help identify structural issues that limit their success, as well as the school supports they desire. This literature review synthesizes the opinions of autistic adolescents on their experiences in inclusive education. After identifying 23 eligible studies in a systematic search, five overarching themes were identified relating to (1) negotiating identity, (2) peer interactions, (3) teacher characteristics, (4) instructional practices, and (5) classroom and school environment. Limitations and implications for future research and practice are discussed, including the need to conduct studies on this topic in the USA and to solicit the perspectives of female autistic adolescents more actively.

自闭症青少年越来越多地在包容性环境中接受教育。这可能会以各种方式影响他们的教育和经历,但他们对包容性教育经历的看法却很少被问及。自闭症青少年应该有机会分享他们对包容性经历的看法,以帮助确定限制他们成功的结构性问题,以及他们所希望的学校支持。这篇文献综述综合了自闭症青少年对其全纳教育经验的看法。在系统搜索中确定了23项符合条件的研究后,确定了五个总体主题,涉及(1)谈判身份,(2)同伴互动,(3)教师特征,(4)教学实践,以及(5)课堂和学校环境。讨论了未来研究和实践的局限性和意义,包括在美国开展这一主题研究的必要性,以及更积极地征求女性自闭症青少年的观点。
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引用次数: 0
Effectiveness of Telehealth Social Communication Intervention on Language Skills Among Children with Autism Spectrum Disorder: a Systematic Review and Meta-analysis 远程医疗社会沟通干预对自闭症谱系障碍儿童语言技能的影响:系统回顾和meta分析
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-11-15 DOI: 10.1007/s40489-023-00411-4
Ying Hao, Yao Du, Saijun Zhang, Lin Sun, Gina Keene, Toshikazu Ikuta

This systematic review and meta-analysis evaluated the effectiveness of telehealth social communication intervention on language skills of children with autism spectrum disorder (ASD). Twenty-one studies were included, among which 17 were single subject experimental design (SSED). Language outcomes were categorized into five linguistic domains (phonology, morphology, syntax, semantics, and pragmatics), and meta-analysis was planned for each domain. Meta-analysis was only performed for pragmatic outcomes, due to the small number of studies that included outcomes in other domains. The results showed significant pre- to post-intervention improvement, thus supporting the use of telehealth social communication intervention to improve pragmatic skills among children with ASD. More diverse measures should be used to target linguistic domains beyond pragmatics. The predominant use of SSED warrants large-scale studies for robust evidence in the future.

本系统综述和荟萃分析评估了远程医疗社会沟通干预对自闭症谱系障碍儿童语言技能的影响。纳入21项研究,其中17项为单受试者实验设计(sed)。语言结果分为五个语言领域(音韵学、形态学、句法、语义学和语用学),并计划对每个领域进行meta分析。由于纳入其他领域结果的研究较少,因此仅对实用结果进行了荟萃分析。结果显示干预前后显著改善,因此支持使用远程医疗社会沟通干预来提高ASD儿童的语用技能。在语用学之外的语言领域应该采用更多样化的措施。该方法的主要应用保证了未来大规模研究的有力证据。
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引用次数: 0
Multidimensional Burden on Family Caregivers of Adults with Autism Spectrum Disorder: a Scoping Review 自闭症谱系障碍成人家庭照顾者的多维负担:范围审查
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-11-15 DOI: 10.1007/s40489-023-00414-1
Sophia Dückert, Petia Gewohn, Hannah König, Daniel Schöttle, Alexander Konnopka, Pascal Rahlff, Kai Vogeley, Holger Schulz, Nicole David, Judith Peth

Family caregivers often play a critical role in supporting their relative(s) with autism spectrum disorder (ASD) across the lifespan. This can lead to great burdens on family caregivers themselves. However, to date, the potential burden on family caregivers has not been in the focus of research, particularly, with respect to caregiver burden as relatives with ASD advance to adulthood. Thus, this scoping review aimed to (a) systematically map research regarding multiple dimensions of caregiver burden on family caregivers of adults with ASD (i.e., time dependence, developmental, physical, social, emotional, and financial burden) and (b) identify interventions designed to reduce such burden. A total of N = 33 eligible studies highlighted the impact of caregiving demands for adults with ASD, mainly focusing on emotional burden of caregiving (n = 27), reporting decreased mental quality of life and mental health. Findings gave indications on all other dimensions of caregiver burden, but evidence is lacking. No study was identified that provided evidence for specific interventions to reduce or to prevent caregiver burden. Findings highlighted the urgent need for more research on this topic and the development of strategies to support family caregivers of adults with ASD.

家庭照顾者通常在支持患有自闭症谱系障碍(ASD)的亲属的一生中发挥着关键作用。这可能给家庭照顾者本身带来巨大负担。然而,到目前为止,家庭照顾者的潜在负担尚未成为研究的重点,特别是当患有ASD的亲属进入成年期时照顾者的负担。因此,本范围综述旨在(a)系统地绘制有关自闭症成人家庭照顾者负担的多个维度的研究图(即时间依赖性、发育负担、身体负担、社会负担、情感负担和经济负担),以及(b)确定旨在减轻这种负担的干预措施。共有N = 33项符合条件的研究强调了照顾需求对ASD成人的影响,主要关注照顾的情绪负担(N = 27),报告了心理生活质量和心理健康的下降。调查结果显示了照顾者负担的所有其他方面,但缺乏证据。没有研究确定提供证据的具体干预措施,以减少或防止照顾者的负担。研究结果强调,迫切需要对这一主题进行更多的研究,并制定策略来支持自闭症成人的家庭照顾者。
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引用次数: 0
Molecular Autism Research in Africa: Emerging Themes and Prevailing Disparities 非洲分子自闭症研究:新兴主题和普遍差异
3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-11-14 DOI: 10.1007/s40489-023-00415-0
Emma Frickel, Caitlyn Mahony, Sophia Bam, Erin Buchanan, Mignon van der Watt, Colleen O’Ryan
Abstract African populations are consistently underrepresented in molecular research on autism spectrum disorders (ASD). Yet, Africa’s genetic diversity could reveal novel mechanisms associated with ASD etiology. We review the molecular ASD research from Africa between 2016–2022, highlighting region-specific limitations, opportunities, and areas of progress. We emphasize a need to advance null-hypothesis based molecular studies in Africa, particularly in critically understudied Sub-Saharan African (SSA) populations. Using South Africa as a case study, we show that this geographical disparity is not solely attributable to sociocultural barriers nor to an absence of molecular research infrastructure. We emphasize the importance of interdisciplinary collaboration within SSA and internationally to harness existing infrastructure for the expansion of molecular ASD research in Africa.
非洲人群在自闭症谱系障碍(ASD)的分子研究中一直代表性不足。然而,非洲的遗传多样性可能揭示与ASD病因相关的新机制。我们回顾了2016-2022年非洲的分子ASD研究,强调了区域特定的局限性、机遇和进展领域。我们强调有必要在非洲推进基于零假设的分子研究,特别是在研究严重不足的撒哈拉以南非洲(SSA)人群中。以南非为例,我们表明这种地理差异不仅仅是由于社会文化障碍,也不是由于缺乏分子研究基础设施。我们强调在非洲自闭症分子机制框架内和国际上开展跨学科合作的重要性,利用现有基础设施扩大非洲自闭症分子机制研究。
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引用次数: 0
Treating Substance Abuse in Patients with Autism Spectrum Disorder—a Systematic Review 自闭症谱系障碍患者药物滥用的治疗——系统综述
3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-11-10 DOI: 10.1007/s40489-023-00409-y
Mariana Vieira, Bianca H. Yeep, Irene P. Carvalho
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引用次数: 0
Students with autism transitioning into higher education: A systematic review of literature 向高等教育过渡的自闭症学生:文献系统综述
3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-11-03 DOI: 10.1007/s40489-023-00413-2
Wanda Hadley, Aaron Mapondera
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引用次数: 0
Special Education Teacher Training to Address Challenging Behaviors for Students with ASD in the Classroom Setting: A Systematic Review of the Literature 特殊教育教师培训在课堂环境中处理ASD学生的挑战性行为:文献的系统回顾
3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-11-02 DOI: 10.1007/s40489-023-00404-3
Chelsea Marelle, Emily Tanner, Claire Donehower Paul
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引用次数: 0
Effects of Mind-Body Exercises on Health-related Outcomes in Children and Adolescents with Autism Spectrum Disorder: A Systematic Review 身心锻炼对自闭症谱系障碍儿童和青少年健康相关结局的影响:一项系统综述
3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-10-27 DOI: 10.1007/s40489-023-00412-3
Jiafu Huang, Xuecheng Li, Zongwei Chen, Liye Zou, Sean Healy, Choi Yeung Andy Tse, Chunxiao Li
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引用次数: 0
Effects of Physical Education on Socializing and Communicating Among Children and Preadolescents with Autism Spectrum Disorder: a Systematic Review and Meta-Analysis 体育教育对自闭症谱系障碍儿童和前青少年社交和沟通的影响:系统回顾和meta分析
3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-10-26 DOI: 10.1007/s40489-023-00410-5
Álvaro Huerta Ojeda, Guillermo Barahona-Fuentes, Franchesca Villagra Órdenes, Maríajosé Mena Tapia, María-Mercedes Yeomans-Cabrera, Jonathan Martínez-Líbano
Abstract Physical education stimulates brain plasticity. However, the effect of physical education interventions on socialization and communication skills in children and preadolescents with autism spectrum disorder is unknown. To review and qualitatively describe studies published between 2012 and 2022 that intervened with physical education to generate changes in socialization and communication skills in children and preadolescents with autism spectrum disorder. The search was designed following the PRISMA® guidelines for systematic reviews and meta-analyses and performed in Web of Science, Scopus, and PubMed between 2012 and 2022. Fourteen studies were included in the systematic review and nine in the meta-analysis. Physical education was shown to be effective in increasing socialization and communication skills in children and preadolescents with autism spectrum disorder.
体育锻炼可以激发大脑的可塑性。然而,体育干预对自闭症谱系障碍儿童和前青少年的社交和沟通技能的影响尚不清楚。回顾和定性描述2012年至2022年间发表的研究,这些研究通过体育干预来改变患有自闭症谱系障碍的儿童和青春期前儿童的社交和沟通技巧。该检索是按照PRISMA®系统评价和荟萃分析指南设计的,并在2012年至2022年期间在Web of Science、Scopus和PubMed进行。系统评价纳入14项研究,荟萃分析纳入9项研究。体育教育在提高自闭症谱系障碍儿童和青春期前儿童的社交和沟通技能方面是有效的。
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Review Journal of Autism and Developmental Disorders
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