Pub Date : 2023-11-15DOI: 10.1007/s40489-023-00414-1
Sophia Dückert, Petia Gewohn, Hannah König, Daniel Schöttle, Alexander Konnopka, Pascal Rahlff, Kai Vogeley, Holger Schulz, Nicole David, Judith Peth
Family caregivers often play a critical role in supporting their relative(s) with autism spectrum disorder (ASD) across the lifespan. This can lead to great burdens on family caregivers themselves. However, to date, the potential burden on family caregivers has not been in the focus of research, particularly, with respect to caregiver burden as relatives with ASD advance to adulthood. Thus, this scoping review aimed to (a) systematically map research regarding multiple dimensions of caregiver burden on family caregivers of adults with ASD (i.e., time dependence, developmental, physical, social, emotional, and financial burden) and (b) identify interventions designed to reduce such burden. A total of N = 33 eligible studies highlighted the impact of caregiving demands for adults with ASD, mainly focusing on emotional burden of caregiving (n = 27), reporting decreased mental quality of life and mental health. Findings gave indications on all other dimensions of caregiver burden, but evidence is lacking. No study was identified that provided evidence for specific interventions to reduce or to prevent caregiver burden. Findings highlighted the urgent need for more research on this topic and the development of strategies to support family caregivers of adults with ASD.
{"title":"Multidimensional Burden on Family Caregivers of Adults with Autism Spectrum Disorder: a Scoping Review","authors":"Sophia Dückert, Petia Gewohn, Hannah König, Daniel Schöttle, Alexander Konnopka, Pascal Rahlff, Kai Vogeley, Holger Schulz, Nicole David, Judith Peth","doi":"10.1007/s40489-023-00414-1","DOIUrl":"https://doi.org/10.1007/s40489-023-00414-1","url":null,"abstract":"<p>Family caregivers often play a critical role in supporting their relative(s) with autism spectrum disorder (ASD) across the lifespan. This can lead to great burdens on family caregivers themselves. However, to date, the potential burden on family caregivers has not been in the focus of research, particularly, with respect to caregiver burden as relatives with ASD advance to adulthood. Thus, this scoping review aimed to (a) systematically map research regarding multiple dimensions of caregiver burden on family caregivers of adults with ASD (i.e., time dependence, developmental, physical, social, emotional, and financial burden) and (b) identify interventions designed to reduce such burden. A total of <i>N</i> = 33 eligible studies highlighted the impact of caregiving demands for adults with ASD, mainly focusing on emotional burden of caregiving (<i>n</i> = 27), reporting decreased mental quality of life and mental health. Findings gave indications on all other dimensions of caregiver burden, but evidence is lacking. No study was identified that provided evidence for specific interventions to reduce or to prevent caregiver burden. Findings highlighted the urgent need for more research on this topic and the development of strategies to support family caregivers of adults with ASD.</p>","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":null,"pages":null},"PeriodicalIF":3.8,"publicationDate":"2023-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138529488","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-14DOI: 10.1007/s40489-023-00415-0
Emma Frickel, Caitlyn Mahony, Sophia Bam, Erin Buchanan, Mignon van der Watt, Colleen O’Ryan
Abstract African populations are consistently underrepresented in molecular research on autism spectrum disorders (ASD). Yet, Africa’s genetic diversity could reveal novel mechanisms associated with ASD etiology. We review the molecular ASD research from Africa between 2016–2022, highlighting region-specific limitations, opportunities, and areas of progress. We emphasize a need to advance null-hypothesis based molecular studies in Africa, particularly in critically understudied Sub-Saharan African (SSA) populations. Using South Africa as a case study, we show that this geographical disparity is not solely attributable to sociocultural barriers nor to an absence of molecular research infrastructure. We emphasize the importance of interdisciplinary collaboration within SSA and internationally to harness existing infrastructure for the expansion of molecular ASD research in Africa.
{"title":"Molecular Autism Research in Africa: Emerging Themes and Prevailing Disparities","authors":"Emma Frickel, Caitlyn Mahony, Sophia Bam, Erin Buchanan, Mignon van der Watt, Colleen O’Ryan","doi":"10.1007/s40489-023-00415-0","DOIUrl":"https://doi.org/10.1007/s40489-023-00415-0","url":null,"abstract":"Abstract African populations are consistently underrepresented in molecular research on autism spectrum disorders (ASD). Yet, Africa’s genetic diversity could reveal novel mechanisms associated with ASD etiology. We review the molecular ASD research from Africa between 2016–2022, highlighting region-specific limitations, opportunities, and areas of progress. We emphasize a need to advance null-hypothesis based molecular studies in Africa, particularly in critically understudied Sub-Saharan African (SSA) populations. Using South Africa as a case study, we show that this geographical disparity is not solely attributable to sociocultural barriers nor to an absence of molecular research infrastructure. We emphasize the importance of interdisciplinary collaboration within SSA and internationally to harness existing infrastructure for the expansion of molecular ASD research in Africa.","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134991362","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-10DOI: 10.1007/s40489-023-00409-y
Mariana Vieira, Bianca H. Yeep, Irene P. Carvalho
{"title":"Treating Substance Abuse in Patients with Autism Spectrum Disorder—a Systematic Review","authors":"Mariana Vieira, Bianca H. Yeep, Irene P. Carvalho","doi":"10.1007/s40489-023-00409-y","DOIUrl":"https://doi.org/10.1007/s40489-023-00409-y","url":null,"abstract":"","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135136448","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-03DOI: 10.1007/s40489-023-00413-2
Wanda Hadley, Aaron Mapondera
{"title":"Students with autism transitioning into higher education: A systematic review of literature","authors":"Wanda Hadley, Aaron Mapondera","doi":"10.1007/s40489-023-00413-2","DOIUrl":"https://doi.org/10.1007/s40489-023-00413-2","url":null,"abstract":"","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135868948","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-02DOI: 10.1007/s40489-023-00404-3
Chelsea Marelle, Emily Tanner, Claire Donehower Paul
{"title":"Special Education Teacher Training to Address Challenging Behaviors for Students with ASD in the Classroom Setting: A Systematic Review of the Literature","authors":"Chelsea Marelle, Emily Tanner, Claire Donehower Paul","doi":"10.1007/s40489-023-00404-3","DOIUrl":"https://doi.org/10.1007/s40489-023-00404-3","url":null,"abstract":"","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135935838","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-27DOI: 10.1007/s40489-023-00412-3
Jiafu Huang, Xuecheng Li, Zongwei Chen, Liye Zou, Sean Healy, Choi Yeung Andy Tse, Chunxiao Li
{"title":"Effects of Mind-Body Exercises on Health-related Outcomes in Children and Adolescents with Autism Spectrum Disorder: A Systematic Review","authors":"Jiafu Huang, Xuecheng Li, Zongwei Chen, Liye Zou, Sean Healy, Choi Yeung Andy Tse, Chunxiao Li","doi":"10.1007/s40489-023-00412-3","DOIUrl":"https://doi.org/10.1007/s40489-023-00412-3","url":null,"abstract":"","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136262178","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-26DOI: 10.1007/s40489-023-00410-5
Álvaro Huerta Ojeda, Guillermo Barahona-Fuentes, Franchesca Villagra Órdenes, Maríajosé Mena Tapia, María-Mercedes Yeomans-Cabrera, Jonathan Martínez-Líbano
Abstract Physical education stimulates brain plasticity. However, the effect of physical education interventions on socialization and communication skills in children and preadolescents with autism spectrum disorder is unknown. To review and qualitatively describe studies published between 2012 and 2022 that intervened with physical education to generate changes in socialization and communication skills in children and preadolescents with autism spectrum disorder. The search was designed following the PRISMA® guidelines for systematic reviews and meta-analyses and performed in Web of Science, Scopus, and PubMed between 2012 and 2022. Fourteen studies were included in the systematic review and nine in the meta-analysis. Physical education was shown to be effective in increasing socialization and communication skills in children and preadolescents with autism spectrum disorder.
体育锻炼可以激发大脑的可塑性。然而，体育干预对自闭症谱系障碍儿童和前青少年的社交和沟通技能的影响尚不清楚。回顾和定性描述2012年至2022年间发表的研究，这些研究通过体育干预来改变患有自闭症谱系障碍的儿童和青春期前儿童的社交和沟通技巧。该检索是按照PRISMA®系统评价和荟萃分析指南设计的，并在2012年至2022年期间在Web of Science、Scopus和PubMed进行。系统评价纳入14项研究，荟萃分析纳入9项研究。体育教育在提高自闭症谱系障碍儿童和青春期前儿童的社交和沟通技能方面是有效的。
{"title":"Effects of Physical Education on Socializing and Communicating Among Children and Preadolescents with Autism Spectrum Disorder: a Systematic Review and Meta-Analysis","authors":"Álvaro Huerta Ojeda, Guillermo Barahona-Fuentes, Franchesca Villagra Órdenes, Maríajosé Mena Tapia, María-Mercedes Yeomans-Cabrera, Jonathan Martínez-Líbano","doi":"10.1007/s40489-023-00410-5","DOIUrl":"https://doi.org/10.1007/s40489-023-00410-5","url":null,"abstract":"Abstract Physical education stimulates brain plasticity. However, the effect of physical education interventions on socialization and communication skills in children and preadolescents with autism spectrum disorder is unknown. To review and qualitatively describe studies published between 2012 and 2022 that intervened with physical education to generate changes in socialization and communication skills in children and preadolescents with autism spectrum disorder. The search was designed following the PRISMA® guidelines for systematic reviews and meta-analyses and performed in Web of Science, Scopus, and PubMed between 2012 and 2022. Fourteen studies were included in the systematic review and nine in the meta-analysis. Physical education was shown to be effective in increasing socialization and communication skills in children and preadolescents with autism spectrum disorder.","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134908201","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A Narrative Review of Genetic Testing for Children with Autism Spectrum Disorder in the United States","authors":"Shixi Zhao, Ming Li, Wei-Ju Chen, Zihan Zhang, Justin Kramer, Danielle Schwartzenburg Takacs, Sandy Magaña, Lei-Shih Chen","doi":"10.1007/s40489-023-00406-1","DOIUrl":"https://doi.org/10.1007/s40489-023-00406-1","url":null,"abstract":"","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135095157","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-06DOI: 10.1007/s40489-023-00407-0
Rachele Lievore, Giulia Crisci, Irene C. Mammarella
Abstract Children and adolescents with autism spectrum disorder (ASD) and attention deficit and hyperactivity disorder (ADHD) show difficulties in recognizing emotions. Similarities and differences between these two clinical groups’ emotion recognition (ER) have been little explored. This systematic review aims to summarize the results of comparative studies that included samples of cases with ASD and ADHD. A systematic search was conducted following PRISMA guidelines, and 24 papers were included. Behavioral, brain-based, and eye-tracking studies were considered, paying particular attention to the different methods used and to the characteristics of the study groups, such as cognitive factors, age-related differences, and comorbidities. This review provides some insight on the complex process of ER in ASD and ADHD, highlighting important directions for future research.
{"title":"Emotion Recognition in Children and Adolescents with ASD and ADHD: a Systematic Review","authors":"Rachele Lievore, Giulia Crisci, Irene C. Mammarella","doi":"10.1007/s40489-023-00407-0","DOIUrl":"https://doi.org/10.1007/s40489-023-00407-0","url":null,"abstract":"Abstract Children and adolescents with autism spectrum disorder (ASD) and attention deficit and hyperactivity disorder (ADHD) show difficulties in recognizing emotions. Similarities and differences between these two clinical groups’ emotion recognition (ER) have been little explored. This systematic review aims to summarize the results of comparative studies that included samples of cases with ASD and ADHD. A systematic search was conducted following PRISMA guidelines, and 24 papers were included. Behavioral, brain-based, and eye-tracking studies were considered, paying particular attention to the different methods used and to the characteristics of the study groups, such as cognitive factors, age-related differences, and comorbidities. This review provides some insight on the complex process of ER in ASD and ADHD, highlighting important directions for future research.","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135351310","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-03DOI: 10.1007/s40489-023-00392-4
K. Nicole O’Guinn, Jessica Akers, Kristina Gerencser
{"title":"Interventions Targeting Interactive Play in Individuals with Autism: A Systematic Review","authors":"K. Nicole O’Guinn, Jessica Akers, Kristina Gerencser","doi":"10.1007/s40489-023-00392-4","DOIUrl":"https://doi.org/10.1007/s40489-023-00392-4","url":null,"abstract":"","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135739064","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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