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Application of the Community-based Participatory Research in Autism Spectrum Disorder: A Scoping Review 社区参与式研究在自闭症谱系障碍中的应用:范围综述
IF 3.8 3区 心理学 Q1 Neuroscience Pub Date : 2024-03-25 DOI: 10.1007/s40489-024-00446-1
Jiayi Chen, Dazhi Yao, Shuanglan Lin, Shuai Yuan, Mian Wang, Hongmei Wu, Quanzhi Zhang

The World Health Organization's (WHO) integrated approach to primary care differs from the traditional patient-centered approach to primary care, resulting in a gap that needs to be addressed. Recently, the Community-Based Participatory Research (CBPR) model has emerged as an alternative research approach to the traditional model, and has gained considerable attention in the field of autism research.The aim of this scoping review was to explore the pattern and effectiveness of CBPR in the ASD population. The findings suggest that CBPR is a promising and effective research model for skills enhancement and healthcare for autistic people. This review highlights the importance of using the CBPR model in ASD research which can help researchers build multi-partnerships with communities and other stakeholders to facilitate the design and implementation of health promotion programs.

世界卫生组织(WHO)的综合初级保健方法与传统的以患者为中心的初级保健方法不同,造成了需要解决的差距。最近,以社区为基础的参与式研究(CBPR)模式作为一种替代传统模式的研究方法出现,并在自闭症研究领域获得了广泛关注。研究结果表明,在自闭症患者的技能提升和医疗保健方面,CBPR 是一种很有前景且有效的研究模式。本综述强调了在 ASD 研究中使用 CBPR 模式的重要性,该模式可帮助研究人员与社区和其他利益相关者建立多方合作关系,从而促进健康促进计划的设计和实施。
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引用次数: 0
Autism Spectrum Disorder Symptoms in Individuals with a Primary Diagnosis of Attention-Deficit/Hyperactivity Disorder: A Systematic Review 自闭症谱系障碍症状在原发诊断为注意力缺陷/多动障碍的个体中的表现:系统回顾
IF 3.8 3区 心理学 Q1 Neuroscience Pub Date : 2024-03-25 DOI: 10.1007/s40489-024-00443-4
Qing Zhong, Melanie Porter

Background and Aims

Attention-Deficit/Hyperactivity Disorder (ADHD) and Autism Spectrum Disorder (ASD) represent two of the most prevalent neurodevelopmental conditions, with prevalence rates of 5–7% and 0.6–1%, respectively. Despite their conceptually distinct phenotypes, ADHD and ASD are highly comorbid. This review is aimed at examining and synthesising the prevalence and profile of ASD-like symptoms in individuals with a primary diagnosis of ADHD across the lifespan in accordance with the Diagnostic and Statistical Manual, Fifth Edition (DSM-5; APA, 2013) diagnostic criteria.

Methods

This systematic review was performed in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines, as discussed by (Moher et al. in PLOS Medicine, 6(7), e1000097, 2009; Page et al. in Systematic Reviews, 10(1), 89, 2021). Studies were identified through a systematic literature search of the databases: PsycINFO, Medline, CINAHL, Psychology and Behavioural Sciences Collection, and Scopus (N = 12,633). Articles were critically appraised according to established quality methodology criteria, and findings were summarised using narrative synthesis.

Results and Conclusion

A total of nine studies (ADHD individuals n = 548) were identified and included in the review. Of these studies, three were classified as having ‘good’ methodological quality, five as ‘fair’, and one as ‘poor’. These studies varied considerably in their methodological approach and assessment procedures. Overall, higher levels of ASD symptoms were found in individuals with ADHD compared to the general population. There was considerable variation in the reported prevalence of clinically significant ASD symptoms in individuals with ADHD, ranging from 15 to 64.3%. Clinical implications and considerations for further research are discussed.

背景和目的注意缺陷/多动障碍(ADHD)和自闭症谱系障碍(ASD)是两种最常见的神经发育疾病,发病率分别为 5-7% 和 0.6-1%。尽管ADHD和ASD的表型在概念上截然不同,但它们却高度合并。本综述旨在根据《诊断与统计手册第五版》(DSM-5;APA,2013 年)的诊断标准,研究和综合被初诊为多动症的患者在整个生命周期中类似 ASD 症状的流行情况和特征。方法本系统综述根据《系统综述和元分析首选报告项目》(Preferred Reporting Items for Systematic Reviews and Meta-Analyses,PRISMA)指南进行,该指南由(Moher 等人,发表于《PLOS Medicine》,6(7), e1000097, 2009 年;Page 等人,发表于《Systematic Reviews》,10(1), 89, 2021 年)讨论。研究是通过对数据库进行系统文献检索确定的:这些数据库包括:PsycINFO、Medline、CINAHL、Psychology and Behavioural Sciences Collection 和 Scopus(N = 12,633)。根据既定的质量方法标准对文章进行了严格评估,并采用叙述性综合方法对研究结果进行了总结。结果与结论共确定了九项研究(ADHD个体 n = 548),并将其纳入综述。在这些研究中,有三项研究的方法学质量为 "良好",五项为 "一般",一项为 "较差"。这些研究的方法和评估程序差异很大。总体而言,与普通人群相比,多动症患者的 ASD 症状水平较高。据报道,ADHD 患者中具有临床意义的 ASD 症状发生率差异很大,从 15% 到 64.3% 不等。本文讨论了进一步研究的临床意义和注意事项。
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引用次数: 0
A Systematic Review of Picture Exchange Communication System Interventions for Children and Adolescents on the Autism Spectrum in Mainland China 中国大陆自闭症谱系儿童和青少年图片交流系统干预的系统性综述
IF 3.8 3区 心理学 Q1 Neuroscience Pub Date : 2024-03-20 DOI: 10.1007/s40489-024-00442-5

Abstract

The picture exchange communication system (PECS) is an evidence-based intervention used to improve communication for people on the autism spectrum. Little is known, however, about the extent to which PECS is currently used with Chinese-speaking persons. Our systematic review identified 13 single-case design studies reporting on PECS interventions with a total of 22 participants. The results indicated that PECS increased non-vocal communication behavior for 19 participants, increased speech for six participants, and decreased problem behavior for five participants. Five studies reported social validity, three studies programmed for generalization, and nine studies reported maintenance effects. According to Reichow’s (2011) evaluation standards, thirteen studies met only weak criteria indicating that they did not provide good evidence for the effectiveness of PECS in Chinese-speaking persons on the autism spectrum. Implications for future research and practice are discussed.

摘要 图画交流系统(PECS)是一种以证据为基础的干预方法,用于改善自闭症谱系障碍者的交流能力。然而,人们对 PECS 目前在说中文的人群中的应用程度知之甚少。我们的系统综述发现了 13 项关于 PECS 干预的单例设计研究,共有 22 人参与。结果表明,PECS 增加了 19 名参与者的非发声交流行为,增加了 6 名参与者的言语能力,减少了 5 名参与者的问题行为。五项研究报告了社会有效性,三项研究报告了普适性,九项研究报告了维持效果。根据 Reichow(2011 年)的评估标准,有 13 项研究仅符合较弱的标准,表明这些研究没有为 PECS 在自闭症谱系中讲中文者中的有效性提供很好的证据。本文讨论了未来研究和实践的意义。
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引用次数: 0
Time to Change How We Measure Quality of Life and Well-Being in Autism: A Systematic Review 是时候改变我们衡量自闭症患者生活质量和幸福感的方式了:系统回顾
IF 3.8 3区 心理学 Q1 Neuroscience Pub Date : 2024-03-19 DOI: 10.1007/s40489-024-00440-7
Kate Simpson, Jessica Paynter, Marleen Westerveld, Larah van der Meer, Lee Patrick, Gabrielle Hogg, Helen Heussler, Melanie Heyworth, Alison Gable, Hem Sid Chandran, Rachael Bowen, Dawn Adams

This review examines methods used to report on the QoL and/or well-being of autistic people. A search of four databases (June 2023) identified 256 studies that reported on the Qol and/or well-being of at least one autistic person. The quality of studies varied. Results were synthesised on who reported, who was reported on, how information was obtained including accommodations and community involvement. One-third used proxy informants, over 80% used generic measures of QoL and/or well-being, autistic people with intellectual impairment and communication disorders were underrepresented, one quarter included accommodations, and few studies included community involvement. Despite the growing research on QoL and well-being of autistic people, more accessible and inclusive research is required to understand autistic people’s experience.

本综述探讨了报告自闭症患者生活质量和/或幸福感的方法。通过对四个数据库的检索(2023 年 6 月),共发现 256 项研究报告了至少一名自闭症患者的 Qol 和/或福祉。研究质量参差不齐。研究结果综合了报告人、报告对象、信息获取方式(包括住宿和社区参与)。三分之一的研究使用了代理信息提供者,超过 80% 的研究使用了 QoL 和/或幸福感的通用测量方法,有智力障碍和交流障碍的自闭症患者所占比例较低,四分之一的研究包括了住宿问题,很少有研究包括社区参与。尽管有关自闭症患者生活质量和幸福感的研究在不断增加,但要了解自闭症患者的经历,还需要更多无障碍和包容性的研究。
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引用次数: 0
Parent-Mediated Naturalistic Developmental Behavioral Interventions for Young Autistic Children: A Systematic Literature Review of Single-Case Research 针对自闭症幼儿的家长主导型自然发展行为干预:单例研究的系统文献综述
IF 3.8 3区 心理学 Q1 Neuroscience Pub Date : 2024-03-12 DOI: 10.1007/s40489-024-00439-0
Lauren van Noorden, Siobhan Gardiner, Hannah Waddington

Naturalistic developmental behavioral interventions (NDBIs) are a class of supports that may lend themselves to a parent-mediated approach. This systematic literature review synthesizes single-case research evaluations of parent-mediated NDBIs for young autistic children. Of the 353 articles screened, 17 were eligible for inclusion. Child outcome measures included engagement, joint attention, language/communication, imitation, and ‘compliance’/avoidance. Most studies found positive effects for at least some children on at least one measure. However, there were no consistently positive effects across studies. Most parents increased their NDBI fidelity, but many did not reach specified fidelity criteria. Only three studies met all Council of Exceptional Children quality indicators. These results suggest that parent-mediated NDBIs are a promising approach to supporting young autistic children, but more high-quality research is needed.

自然发展行为干预(NDBIs)是一类可能适合以家长为媒介的支持方法。本系统性文献综述了针对自闭症幼儿的以家长为中介的自然发展行为干预的单例研究评估。在筛选出的 353 篇文章中,有 17 篇符合纳入条件。儿童结果测量包括参与、共同注意、语言/沟通、模仿和 "顺从"/回避。大多数研究发现,至少在一项测量指标上对部分儿童产生了积极影响。然而,在所有研究中并没有一致的积极效果。大多数家长提高了他们的 NDBI 忠诚度,但许多家长没有达到指定的忠诚度标准。只有三项研究达到了特殊儿童委员会的所有质量指标。这些结果表明,以家长为中介的 NDBI 是一种很有前景的支持自闭症幼儿的方法,但还需要更多高质量的研究。
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引用次数: 0
Gaze Behaviors and Social Communication Skills of Young Autistic Children: A Scoping Review 自闭症幼儿的凝视行为和社交沟通技能:范围审查
IF 3.8 3区 心理学 Q1 Neuroscience Pub Date : 2024-03-07 DOI: 10.1007/s40489-024-00438-1
Christy D. Yoon, Adriana Kaori Terol, Hedda Meadan, James D. Lee

This review aimed to (a) identify gaze metrics and behavioral assessments used in eye-tracking studies investigating social communication skills of young autistic children and (b) examine the reported correlation between gaze behaviors and social communication skills. We conducted a systematic search process following the PRISMA statement. A total of 19 studies were included in this review. Collectively, six gaze metrics were quantified to describe gaze behaviors, and 10 behavioral assessments of social communication skills or autism characteristics were identified, which were subsequently analyzed by respective stimulus categories. The overall findings from studies that employed semi-naturalistic stimuli suggested that increased social attention, as well as fixating closer to fixation of neurotypical children, is related to better social communication skills of young autistic children. In addition, the overall findings from studies that employed non-semi-naturalistic or live-interaction stimuli suggested that more engagement in gaze movements between shared interests is related to better social communication skills of young autistic children. Findings have implications for early identification and intervention in autism and highlight the need for further research examining factors that may have contributed to some mixed findings on the relation between gaze behaviors and social communication skills.

本综述旨在(a)确定在调查自闭症幼儿社交沟通技能的眼动追踪研究中使用的注视指标和行为评估,以及(b)检查所报道的注视行为与社交沟通技能之间的相关性。我们按照 PRISMA 声明进行了系统检索。本综述共纳入 19 项研究。我们对六种注视指标进行了量化以描述注视行为,并确定了 10 项社会交流技能或自闭症特征的行为评估,随后按刺激类别对这些评估进行了分析。采用半自然刺激的研究的总体结果表明,自闭症幼儿社会注意力的增加以及更接近神经畸形儿童定点的凝视与他们更好的社会交流技能有关。此外,采用非半自然或现场互动刺激的研究的总体结果表明,自闭症幼儿更多地参与共同兴趣之间的凝视运动与他们更好的社会交往能力有关。研究结果对自闭症的早期识别和干预具有重要意义,并强调有必要进一步研究可能导致凝视行为与社会交往能力之间关系不一的因素。
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引用次数: 0
Developmental, Behavioural and NDBI Interventions in Autistic Children or at Elevated Likelihood of Autism: A Systematic Review of Neural Outcomes 自闭症儿童或自闭症高发人群的发育、行为和 NDBI 干预:神经结果的系统回顾
IF 3.8 3区 心理学 Q1 Neuroscience Pub Date : 2024-03-06 DOI: 10.1007/s40489-024-00437-2
Arianna Zanatta, Jasmine Siew, Van der Paelt Sara, Warreyn Petra, Roeyers Herbert

According to the principle of neuroplasticity, early repeated and intense exposure to stimuli can lead to changes in brain structure. In line with this view, it has been argued that early interventions for autistic children could have an impact on their neural development. In the present systematic review, we synthesised the available evidence on neural outcomes after early behavioural, developmental and naturalistic developmental behavioural interventions in young autistic children or children at elevated likelihood of autism. Six out of seven selected studies observed post-intervention differences in neural activity and connectivity. However, we observed significant methodological variation and limitations across studies (e.g. small sample sizes). Here, we discuss the field-wide need to address these issues.

根据神经可塑性原理,早期反复强烈接触刺激会导致大脑结构发生变化。根据这一观点,有人认为对自闭症儿童的早期干预可能会对他们的神经发育产生影响。在本系统性综述中,我们综合了有关对年幼自闭症儿童或自闭症可能性较高的儿童进行早期行为干预、发展干预和自然发展行为干预后神经发育结果的现有证据。所选的七项研究中有六项观察到了干预后神经活动和连接性的差异。然而,我们也注意到不同研究在方法上存在很大差异和局限性(如样本量较小)。在此,我们讨论了整个领域解决这些问题的必要性。
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引用次数: 0
Using Machine Learning for Motion Analysis to Early Detect Autism Spectrum Disorder: A Systematic Review 利用机器学习运动分析来早期检测自闭症谱系障碍:系统回顾
IF 3.8 3区 心理学 Q1 Neuroscience Pub Date : 2024-03-02 DOI: 10.1007/s40489-024-00435-4
Roberta Simeoli, Angelo Rega, Mariangela Cerasuolo, Raffaele Nappo, Davide Marocco

Diagnosis of autism spectrum disorder (ASD) is typically performed using traditional tools based on behavioral observations. However, these diagnosis methods are time-consuming and can be misleading. Integrating machine learning algorithms with technological screening tools within the typical behavioral observations can possibly enhance the traditional assessment and diagnostic process. In the last two decades, to improve the accuracy and reliability of autism detection, many clinicians and researchers began to develop new screening methods by means of advanced technology like machine learning (ML). These methods include artificial neural networks (ANN), support vector machines (SVM), a priori algorithms, and decision trees (DT). Mostly, these methods have been applied to pre-existing datasets, derived from the standard diagnostic and assessment tools, to implement and test predictive models. On the other hand, the detection of new objective behavioral measures such as biomarkers could lead to a significant strengthening of existing screening tools. In the present study, we carried out a critical review of the literature about the latest findings in this field. The aim was to shed light about the effectiveness of using ML systems for motion analysis to enhance both clinical assessment and diagnostic processes. Specifically, we discussed the contribution of ML systems in promoting early diagnosis of ASD. The literature review showed that motion patterns ML analysis predicts ASD classification as accurately as that of classical gold standard tools. However, the application of these methods is still challenging, as discussed in this review.

自闭症谱系障碍(ASD)的诊断通常使用基于行为观察的传统工具。然而,这些诊断方法既耗时又可能产生误导。将机器学习算法与典型行为观察中的技术筛选工具相结合,有可能改进传统的评估和诊断过程。近二十年来,为了提高自闭症检测的准确性和可靠性,许多临床医生和研究人员开始利用机器学习(ML)等先进技术开发新的筛查方法。这些方法包括人工神经网络(ANN)、支持向量机(SVM)、先验算法和决策树(DT)。这些方法大多应用于从标准诊断和评估工具中提取的已有数据集,以实施和测试预测模型。另一方面,检测新的客观行为指标(如生物标志物)可以大大加强现有的筛查工具。在本研究中,我们对有关该领域最新研究成果的文献进行了批判性回顾。目的是阐明使用运动分析 ML 系统来增强临床评估和诊断过程的有效性。具体而言,我们讨论了运动模式识别系统在促进 ASD 早期诊断方面的贡献。文献综述显示,运动模式 ML 分析预测 ASD 分类的准确性不亚于经典的金标准工具。然而,正如本综述所讨论的,这些方法的应用仍具有挑战性。
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引用次数: 0
Cultural Considerations in Caregiver-Implemented Naturalistic Developmental Behavioral Interventions: A Scoping Review 照顾者实施自然发展行为干预的文化考虑因素:范围审查
IF 3.8 3区 心理学 Q1 Neuroscience Pub Date : 2024-03-01 DOI: 10.1007/s40489-024-00436-3
Sarah N. Douglas, Shakila Dada, Kerstin Tönsing, Alecia Samuels, Prince Owusu

Globally, there is an increasing focus on interventions that are culturally relevant for children and families from diverse cultural, racial, and ethnic groups. We conducted a scoping review to evaluate what populations have been included in the caregiver research related to established naturalistic developmental behavioral interventions for children with autism spectrum disorder (ASD). We also evaluated the extent to which these interventions have developed or adapted to be culturally relevant for use with caregivers of children with ASD using the Cultural Adaptation Checklist. Seventy studies met the inclusion criteria. Our review noted a paucity of research with diverse populations, and lack of description related to cultural adaptations of these interventions. Descriptions related to cultural adaptations tended to focus the least on persons, goals, and methods. Clinicians and researchers are encouraged to engage in cultural adaptations of interventions in consultations with communities in order to enhance interventions for culturally diverse groups.

在全球范围内,人们越来越关注针对来自不同文化、种族和民族群体的儿童和家庭的文化相关干预措施。我们进行了一次范围界定审查,以评估与针对自闭症谱系障碍(ASD)儿童的既定自然发展行为干预相关的照顾者研究中包括了哪些人群。我们还使用文化适应性检查表评估了这些干预措施在多大程度上发展或调整为与自闭症谱系障碍(ASD)儿童照顾者的文化相关。共有 70 项研究符合纳入标准。我们在审查中注意到,针对不同人群的研究很少,而且缺乏与这些干预措施的文化适应性相关的描述。与文化适应相关的描述往往最不关注人员、目标和方法。我们鼓励临床医生和研究人员在与社区协商时对干预措施进行文化适应性调整,以加强针对不同文化群体的干预措施。
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引用次数: 0
Social Robots: A Promising Tool to Support People with Autism. A Systematic Review of Recent Research and Critical Analysis from the Clinical Perspective 社交机器人:支持自闭症患者的有效工具。最新研究的系统回顾和临床角度的批判性分析
IF 3.8 3区 心理学 Q1 Neuroscience Pub Date : 2024-02-29 DOI: 10.1007/s40489-024-00434-5

Abstract

In the past decade, interdisciplinary research has revealed the potential benefits of using social robots in the care of individuals with autism. There is a growing interest in integrating social robots into clinical practice. However, while significant efforts have been made to develop and test the technical aspects, clinical validation and implementation lag behind. This article presents a systematic literature review from a clinical perspective, focusing on articles that demonstrate clinical relevance through experimental studies. These studies are analysed and critically discussed in terms of their integration into healthcare and care practices. The goal is to assist healthcare professionals in identifying opportunities and limitations in their practice and to promote further interdisciplinary cooperation.

摘要 在过去十年中,跨学科研究揭示了使用社交机器人护理自闭症患者的潜在益处。人们对将社交机器人融入临床实践的兴趣与日俱增。然而,虽然在开发和测试技术方面做出了巨大努力,但临床验证和实施工作却相对滞后。本文从临床角度进行了系统的文献综述,重点关注通过实验研究证明与临床相关的文章。文章分析并批判性地讨论了这些研究与医疗保健和护理实践的结合。目的是帮助医疗保健专业人员识别其实践中的机遇和局限性,并促进进一步的跨学科合作。
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引用次数: 0
期刊
Review Journal of Autism and Developmental Disorders
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