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Autism Observation Scale for Infants: Systematic Review and Meta-Analysis in Samples at Increased Likelihood of Autism Spectrum Disorders 婴儿自闭症观察量表:自闭症谱系障碍高发样本的系统回顾与元分析
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-01-18 DOI: 10.1007/s40489-023-00417-y
Kyle Reid, Lori-Ann R. Sacrey, Lonnie Zwaigenbaum, Jessica A. Brian, Isabel M. Smith

The Autism Observation Scale for Infants (AOSI) is being applied to non infant sibling populations. Assessment of the tool’s utility across increased likelihood (IL) populations is therefore needed. A systematic review and meta-analysis was conducted on 17 studies identified from six databases. The AOSI has been used in four IL contexts: infant siblings, infants with Fragile X Syndrome, Tuberous Sclerosis Complex, and Down Syndrome. There were three main findings: (1) five studies report classification data though no consistent approach was used; (2) group differences between IL-ASD, IL non-ASD, and controls started at 12-months; and (3) large effect sizes between IL-ASD and control samples was identified. Utility of the AOSI to identify early signs of ASD in IL populations was demonstrated.

婴儿自闭症观察量表 (AOSI) 目前正应用于非婴儿兄弟姐妹群体。因此,有必要对该工具在可能性增加(IL)人群中的实用性进行评估。我们对六个数据库中的 17 项研究进行了系统回顾和荟萃分析。AOSI 已在四种 IL 情况下使用:婴儿兄弟姐妹、脆性 X 综合征婴儿、结节性硬化综合征婴儿和唐氏综合征婴儿。主要发现有三点:(1)五项研究报告了分类数据,但没有使用一致的方法;(2)IL-ASD、IL 非 ASD 和对照组之间的群体差异始于 12 个月;(3)IL-ASD 和对照组样本之间的效应大小较大。结果表明,AOSI可用于识别IL人群中ASD的早期症状。
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引用次数: 0
Anxiety Prevalence in Youth with Autism: A Systematic Review and Meta-analysis of Methodological and Sample Moderators 自闭症青少年的焦虑患病率:方法和样本调节因素的系统回顾和元分析
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-01-18 DOI: 10.1007/s40489-023-00427-w
Henry Noah Thiele-Swift, Diana-Santa Dorstyn

Research on the prevalence of anxiety in children and adolescents with autism remains fragmented due to a reliance on help-seeking populations and differences in anxiety assessment. We present the pooled findings from 15 community studies (N = 4459) sourced from the Embase, PubMed, and PsycINFO databases (1970–2023). Equally high rates of anxiety symptoms and disorders were identified via self-report (33%, CI = 25 to 40%) and diagnostic interview (19%, CI = 7 to 40%). Higher IQ and male gender were identified as significant covariates, although these results may reflect sampling biases. The findings highlight the need for routine screening, with multiple informants, and improved sampling methods. Protocol was registered on Open Science Framework (https://osf.io/7mtca/).

由于对求助人群的依赖以及焦虑评估的差异,有关自闭症儿童和青少年焦虑症患病率的研究仍然比较零散。我们汇总了来自 Embase、PubMed 和 PsycINFO 数据库(1970-2023 年)的 15 项社区研究(N = 4459)的结果。通过自我报告(33%,CI = 25-40%)和诊断性访谈(19%,CI = 7-40%)发现的焦虑症状和焦虑症比例相当高。较高的智商和男性性别被认为是重要的协变量,尽管这些结果可能反映了抽样偏差。研究结果突出表明,有必要通过多个信息提供者进行常规筛查,并改进抽样方法。研究方案已在开放科学框架(https://osf.io/7mtca/)上注册。
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引用次数: 0
Prevalence and Risk Factors Associated with Interpersonal Violence Reported by Autistic Adults: A Systematic Review 自闭症成人报告的人际暴力发生率和相关风险因素:系统回顾
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-01-09 DOI: 10.1007/s40489-023-00426-x

Abstract

This article provides a systematic review of the prevalence and risk factors associated with interpersonal violence reported by autistic adults. A systematic search of electronic data bases for peer-reviewed journal articles in English was conducted. The search identified 16 studies that addressed rates and/or risk factors for interpersonal violence. There was wide variation in prevalence rates which was attributed to differences in types of violence being investigated, definitions and measures used, age range and gender of participants and time-frame covered. Overall results indicated that rates may be higher than in the general population. Twelve studies reported on possible risk factors with both individual and broader social factors identified. Further research utilising longitudinal design and validated measures is needed.

摘要 本文对自闭症成人报告的人际暴力的发生率和相关风险因素进行了系统回顾。我们在电子数据库中对同行评审的英文期刊论文进行了系统性检索。搜索发现 16 项研究涉及人际暴力的发生率和/或风险因素。由于调查的暴力类型、所使用的定义和测量方法、参与者的年龄范围和性别以及所涵盖的时间范围不同,流行率存在很大差异。总体结果表明,发生率可能高于普通人群。有 12 项研究报告了可能的风险因素,其中既有个人因素,也有更广泛的社会因素。需要利用纵向设计和有效措施开展进一步研究。
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引用次数: 0
Barriers and Facilitators of Healthcare Access for Autistic Children in the UK: a Systematic Review 英国自闭症儿童获得医疗服务的障碍和促进因素:系统性综述
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-01-05 DOI: 10.1007/s40489-023-00420-3
Tonia Babalola, Giulia Sanguedolce, Lucy Dipper, Nicola Botting

Background

Individuals with autism are more likely to suffer from various physical and mental health problems and experience disparities in effectively accessing healthcare services. This review aims to identify studies that report on the experiences of autistic children, their parents/carers, and the healthcare professionals treating them; to develop an understanding of the facilitators and barriers to healthcare access in order to inform policies and practice to improve access to healthcare for autistic children in the UK.

Methods

A total of 3069 records were screened, and 24 studies were included; six quantitative, four qualitative, and fourteen mixed-methodology studies.

Results

Professional and parental knowledge about autism, sensory issues, challenging behaviour, system-level barriers, patient-provider-parent communication issues, lack of person-centred care, stigma, and culture emerged as significant barriers to accessing healthcare for autistic children.

Conclusions

Families of autistic children experience several barriers to accessing healthcare. Recommendations for those planning services and clinicians are discussed.

背景自闭症患者更有可能出现各种身体和精神健康问题,并且在有效获得医疗保健服务方面存在差异。本综述旨在确定报告自闭症儿童、其父母/照护者以及为其提供治疗的医疗专业人员的经历的研究,以了解获得医疗服务的促进因素和障碍,从而为改善英国自闭症儿童获得医疗服务的政策和实践提供信息。方法共筛选了 3069 份记录,纳入了 24 项研究;其中包括 6 项定量研究、4 项定性研究和 14 项混合方法研究。结果专业人士和家长对自闭症的了解、感官问题、挑战性行为、系统层面的障碍、患者-医护人员-家长之间的沟通问题、缺乏以人为本的护理、耻辱感和文化成为自闭症儿童获得医疗保健服务的主要障碍。本文讨论了对服务规划者和临床医生的建议。
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引用次数: 0
Whither Asperger’s Post DSM-5? An Opinion Piece DSM-5 之后,阿斯伯格症何去何从?评论文章
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-01-03 DOI: 10.1007/s40489-023-00425-y
Fred R. Volkmar, Marc Woodbury-Smith

Although first described in 1944 (the year the description of infantile autism), Asperger’s syndrome attracted little attention until the publication by Lorna Wing in early 1980. Over time, different views of the definition of Asperger’s syndrome developed. By the time of the Third Edition of the American Psychiatric Association’s Diagnostic and Statistical Manual and the Tenth Edition of the World Health Organization’s International Classification of Disease, enough information had accumulated to include the condition within the broader autism category. Asperger’s syndrome remained a focus of research interest and debate until its exclusion in the DSM-5 in 2013. We argue that the decision to remove Asperger’s syndrome 10 years ago as a distinct condition was premature. A discussion of the tensions around defining Asperger’s and concerns now arising due to the lack of this diagnostic category for new cases is provided.

虽然阿斯伯格综合症在 1944 年(即描述婴儿自闭症的年份)就被首次描述,但直到 1980 年初洛纳-温(Lorna Wing)发表文章后才引起人们的注意。随着时间的推移,人们对阿斯伯格综合症的定义产生了不同的看法。到美国精神病学协会的《诊断与统计手册》第三版和世界卫生组织的《国际疾病分类》第十版时,已经积累了足够的信息,可以将该病症纳入更广泛的自闭症范畴。阿斯伯格综合症一直是研究兴趣和争论的焦点,直到2013年DSM-5将其排除在外。我们认为,10 年前将阿斯伯格综合症作为一种独立病症予以剔除的决定为时过早。我们讨论了围绕阿斯伯格综合症定义的紧张关系,以及由于新病例缺乏这一诊断类别而产生的担忧。
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引用次数: 0
The Influence of Policy on Early Diagnosis and Other Autism Services: a Narrative Review 政策对早期诊断和其他自闭症服务的影响:叙述性评论
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-01-02 DOI: 10.1007/s40489-023-00423-0
Olivia J. Lindly, Danielle J. Abate, Hannah J. Park, Jocelyn Kuhn, Plyce Fuchu, Emily Feinberg, Sarabeth Broder-Fingert

Little is known about how policy—laws, regulations, procedures, administrative actions, incentives, or voluntary practices of governments or other institutions—shapes access to early autism services including diagnosis before age three. Early diagnosis and treatment are considered critical to improve outcomes. Understanding how policy influences such services could have substantial impact on outcomes for autistic children. We conducted a narrative literature review to determine what is known on how policy impacts early autism diagnosis and treatment. We found 17 articles that describe policy factors promoting early diagnosis and seven articles that identify policy factors affecting variability in autism services. We identified the following themes: (1) state policy factors influence access to diagnosis and other autism services, (2) innovative screening models affect early diagnosis, (3) provider training programs increase autism screening and diagnosis, (4) insurance policy influences autism services variability, and (5) resource availability affects geographic variability in autism services. Although common themes exist, more robust investigation is needed on policy impacting early autism services—beyond insurance and early intervention—and utilizing more rigorous designs.

对于法律、法规、程序、行政行为、激励措施或政府或其他机构的自愿做法如何影响早期自闭症服务(包括三岁前的诊断)的获取,人们知之甚少。早期诊断和治疗被认为是改善治疗效果的关键。了解政策对此类服务的影响可能会对自闭症儿童的治疗效果产生重大影响。我们对文献进行了叙述性回顾,以确定政策如何影响早期自闭症诊断和治疗。我们发现有 17 篇文章介绍了促进早期诊断的政策因素,有 7 篇文章指出了影响自闭症服务差异的政策因素。我们确定了以下主题:(1)州政策因素影响诊断和其他自闭症服务的获取,(2)创新筛查模式影响早期诊断,(3)医疗服务提供者培训计划增加自闭症筛查和诊断,(4)保险政策影响自闭症服务的可变性,以及(5)资源可用性影响自闭症服务的地域可变性。虽然存在共同的主题,但除了保险和早期干预之外,还需要对影响早期自闭症服务的政策进行更有力的调查,并采用更严格的设计。
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引用次数: 0
A Meta-Analysis of Applied Behavior Analysis-Based Interventions for Individuals with Autism Spectrum Disorders (ASD) in Turkey 基于应用行为分析的土耳其自闭症谱系障碍 (ASD) 干预措施的元分析
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2024-01-02 DOI: 10.1007/s40489-023-00421-2
Mehmet D. Sulu, Orhan Aydin, Ronald C. Martella, Emine Erden, Zafer Ozen

Interventions based on the principles of applied behavior analysis (ABA) have been determined to be evidenced-based practices and are widely used with individuals with autism spectrum disorders (ASD) across the world. Originally developed in the USA, implementation of these interventions has become widespread in the last decade in Turkey. Given the significance of culture in guiding ABA practices, this meta-analysis investigated the prevalence and the magnitude effects of ABA-based interventions and whether specific participant and intervention characteristics moderated such effects in Turkey. Seventy-one ABA-based intervention studies were assessed based on What Works Clearinghouse (WWC, Kratochwill et al., Remedial and Special Education, 34(1), 26–38, 2013) design standards (DSs) including (a) systematic manipulation of independent variables, (b) interrater reliability, (c) three demonstrations of the intervention effect, and (d) adequate number of data points collected for each condition. Forty-three studies that met WWC (Kratochwill et al., Remedial and Special Education, 34(1), 26–38, 2013) DSs were analyzed and calculated with baseline-corrected tau (Tarlow, Behavior Modification, 41(4), 427–467, 2017). Furthermore, performance-criteria-based effect size values (PCES; Aydin and Tanious, Journal of Applied Behavior Analysis, 2021) were calculated for 27 studies that had mastery criteria. While the overall tau appeared to be large 0.71 (p = 0.072, se = 0.254), the overall effect size for PCES revealed a small effect of 0.73. The comparisons of all sub-categories’ effect sizes of moderator variables were not statistically significant based on Kruskal Wallis or Mann Whitney U tests. Additionally, findings revealed that studies were predominantly implemented by highly trained researchers in segregated one-on-one settings, and did not include adults with ASD nor challenging behavior. Overall, there has been significant growth in ABA-based interventions in Turkey that show promise in improving the lives of individuals with ASD. However, further research and cultural considerations are essential for a comprehensive understanding of their impact in the Turkish context. Findings from two different effect size analyses and recommendations for future studies are discussed.

基于应用行为分析(ABA)原则的干预措施已被确定为有实证依据的做法,并在全球自闭症谱系障碍(ASD)患者中广泛使用。这些干预措施最初是在美国开发的,近十年来在土耳其得到了广泛应用。鉴于文化在指导 ABA 实践中的重要意义,本荟萃分析调查了基于 ABA 的干预措施在土耳其的流行程度和效果大小,以及特定参与者和干预措施的特征是否会调节这些效果。71 项基于 ABA 的干预研究是根据 What Works Clearinghouse(WWC,Kratochwill 等人,Remedial and Special Education,34(1), 26-38, 2013)的设计标准(DSs)进行评估的,这些标准包括:(a)对独立变量的系统操作;(b)评定者之间的可靠性;(c)对干预效果的三次演示;以及(d)为每个条件收集足够数量的数据点。符合 WWC 标准的 43 项研究(Kratochwill 等人,《补习与特殊教育》,34(1),26-38,2013 年)对 DSs 进行了分析,并使用基线校正 tau 进行了计算(Tarlow,《行为矫正》,41(4),427-467,2017)。此外,还计算了 27 项具有掌握标准的研究的基于表现标准的效应大小值(PCES;Aydin 和 Tanious,《应用行为分析杂志》,2021 年)。虽然总体 tau 值为 0.71(p = 0.072,se = 0.254),但 PCES 的总体效应大小仅为 0.73。根据 Kruskal Wallis 或 Mann Whitney U 检验,所有子类别调节变量效应大小的比较在统计学上都不显著。此外,研究结果显示,这些研究主要是由训练有素的研究人员在一对一的隔离环境中实施的,并不包括患有 ASD 或有挑战行为的成年人。总体而言,土耳其以 ABA 为基础的干预措施有了显著发展,显示出改善 ASD 患者生活的希望。然而,要全面了解这些干预措施在土耳其的影响,进一步的研究和文化考虑是必不可少的。本文讨论了两种不同效应大小分析的结果以及对未来研究的建议。
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引用次数: 0
The Demographics of Autistic Individuals in Social Communication Evidence-Based Practice: a Systematic Review 社会交流循证实践中的自闭症患者人口统计:系统性综述
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-12-20 DOI: 10.1007/s40489-023-00424-z
Moon Young Savana Bak, Ana D. Dueñas, Amber M. Reilly, Qichao Pan, Hamdi Abas

Social communication, like all inter-human behaviors, are highly affected by an individual’s intersectional identities and memberships of diverse communities. The current systematic literature review investigated the reporting practices of participant demographics and the extent to which under-represented autistic groups were included in social communication intervention studies in the 2020 National Clearinghouse on Autism Evidence and Practice report. Results show inconsistencies and gaps in reporting participant variables as well as a general lack of representation of diverse autistic communities in social communication intervention research. The results highlight the limitations of current racial categories and considerations for complex intersectional identities. Recommendations for future researchers are also discussed.

与所有人际交往行为一样,社会交往也受到个人交叉身份和多元社群成员身份的高度影响。目前的系统性文献综述调查了参与者人口统计学的报告实践,以及 2020 年国家自闭症证据与实践信息交流中心报告中的社会沟通干预研究在多大程度上纳入了代表性不足的自闭症群体。结果显示,在报告参与者变量方面存在不一致和差距,在社会沟通干预研究中也普遍缺乏对不同自闭症群体的代表。研究结果强调了当前种族分类的局限性以及对复杂交叉身份的考虑。此外,还讨论了对未来研究人员的建议。
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引用次数: 0
Diagnostic Assessment of Autism in Children Using Telehealth in a Global Context: a Systematic Review 在全球范围内使用远程医疗对儿童自闭症的诊断评估:一项系统综述
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-12-06 DOI: 10.1007/s40489-023-00408-z
Panos Katakis, Georgia Lockwood Estrin, Jeanne Wolstencroft, Shermina Sayani, Ellie Buckley, Venus Mirzaei, Michelle Heys, David Skuse

Reflecting the significant delays in autism assessments globally, studies have explored whether autism assessments conducted via telehealth are feasible and accurate. This systematic review investigated the psychometric properties of autism assessment tools for children administered via telehealth and examined the diagnostic accuracy of telehealth assessment procedures compared to care-as-usual in-person assessments. Relevant databases (MEDLINE, Embase and PsycInfo) were searched for eligible studies (PROSPERO: CRD42022332500). In total, 18 studies were included, collectively assessing 1593 children for autism. Telehealth assessments for autism were largely comparable to in-person assessments, with a diagnostic agreement of 80–88.2%. Individual behavioral observation tools, diagnostic interviews, and clinician-administered screening tools demonstrated acceptable validity. For many children, diagnostic decision-making can be expedited without loss of validity using telehealth.

研究反映了全球自闭症评估的严重延迟,探讨了通过远程医疗进行的自闭症评估是否可行和准确。本系统综述调查了通过远程医疗管理的儿童自闭症评估工具的心理测量特性,并比较了远程医疗评估程序与日常护理现场评估的诊断准确性。检索相关数据库(MEDLINE, Embase和PsycInfo)以查找符合条件的研究(PROSPERO: CRD42022332500)。总共纳入了18项研究,共评估了1593名自闭症儿童。远程医疗对自闭症的评估在很大程度上与现场评估相当,诊断一致性为80-88.2%。个体行为观察工具、诊断访谈和临床医生管理的筛查工具证明了可接受的有效性。对许多儿童来说,使用远程保健可以加快诊断决策,而不会丧失其有效性。
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引用次数: 0
The Effects of Physical Activity Interventions in Children with Autism Spectrum Disorder: a Systematic Review and Network Meta-analysis 体育活动干预对自闭症谱系障碍儿童的影响:系统回顾和网络荟萃分析
IF 3.8 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-12-05 DOI: 10.1007/s40489-023-00418-x
Yinhua Li, Yanqing Feng, Jiugen Zhong, Zhi Zou, Wanting Lan, Yingying Shen, Jiaheng Gong, Benxuan Zhao, Cong Tong, Cindy Hui-Ping Sit, Xiaohui Hou

We conducted a network meta-analysis to assess and rank the efficacy of different physical activities on motor function, social function, communication, and stereotyped behavior in children with autism spectrum disorder. PubMed, EBSCO, Cochrane Library, and Web of Science databases were searched through May 25, 2023. A total of 37 studies involving 1200 participants and 17 interventions were included in our study. Based on the ranking probabilities, Tai Chi Chuan and fundamental motor skill intervention were ranked as possibly the most effective intervention for motor function and communication, respectively. Kata techniques had the highest probability of being best for stereotyped behavior and social function. This review provides valuable information that physical activity can be a useful strategy in the management of autism spectrum disorder.

我们进行了一项网络荟萃分析,以评估和排名不同的体育活动对自闭症谱系障碍儿童的运动功能、社交功能、沟通和刻板行为的影响。PubMed、EBSCO、Cochrane Library和Web of Science数据库被检索到2023年5月25日。本研究共纳入37项研究,涉及1200名受试者和17项干预措施。基于排名概率,太极拳和基本运动技能干预分别被评为对运动功能和沟通最有效的干预。对刻板行为和社会功能来说,格斗技巧最有可能是最好的。这一综述提供了有价值的信息,即体育活动可以成为治疗自闭症谱系障碍的有效策略。
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引用次数: 0
期刊
Review Journal of Autism and Developmental Disorders
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