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The Use of a Comprehensive Concept of Capability for Wellbeing Assessment: A Best-Fit Framework Synthesis. 使用综合能力概念进行福祉评估:最佳框架综述。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-08-19 DOI: 10.1007/s10728-024-00488-w
Jasper Ubels, Karla Hernandez-Villafuerte, Erica Niebauer, Michael Schlander

Developing an instrument with the capability approach can be challenging, since the capability concept of Sen is ambiguous concerning the burdens that people experience whilst achieving their capabilities. A solution is to develop instruments with a comprehensive concept of capability, such as the concept of 'option-freedom'. This study aims to develop a theoretical framework for instrument development with the concept of option-freedom. A best-fit framework synthesis was conducted with seven qualitative papers by one researcher. Two researchers supported the synthesis by discussing interim results during the synthesis. A priori concepts of option-freedom were used to deductively code against. Themes and subthemes were developed inductively when data did not match a priori themes. Seven paper were identified that fulfilled the eligibility criteria. Four themes emerged from the synthesis. (1) Option Wellbeing represents a range of options that need to be satisfied for individuals to experience wellbeing. (2) Self-Realization represents that there are experiences in an individual's life that have value beyond realizing options. (3) Perceived Access to Options represents the perceived ability of individuals to realize freedoms. (4) Perceived Control represents the experience of having control. Developing an instrument with the proposed framework has two benefits. First, it acknowledges the importance of assessing impediments in realizing capabilities for wellbeing assessment. Secondly, the themes form a broad informational base by including themes related to subjective wellbeing. Future research should study the feasibility of implementing the framework for instrument development.

由于森的能力概念对于人们在实现其能力时所承受的负担并不明确,因此采用能力方法来开发工具可能具有挑战性。解决的办法是开发具有全面能力概念的工具,如 "选择自由 "概念。本研究旨在为使用 "选择自由 "概念开发工具制定一个理论框架。一位研究人员对七篇定性论文进行了最佳框架综合。两位研究人员在综合过程中对临时结果进行了讨论,为综合提供了支持。选择自由的先验概念被用来对其进行演绎编码。当数据与先验主题不一致时,则以归纳的方式确定主题和次主题。确定了七篇符合资格标准的论文。综合得出四个主题。(1) 选择性幸福代表了个人体验幸福所需要满足的一系列选择。(2) 自我实现是指个人生活中的一些经历具有超越实现选择的价值。(3) 感知到的选择机会代表个人感知到的实现自由的能力。(4) 感知到的控制权代表拥有控制权的体验。利用拟议框架开发一种工具有两个好处。首先,它承认了评估实现能力的障碍对于福祉评估的重要性。其次,通过纳入与主观幸福感相关的主题,这些主题形成了广泛的信息基础。未来的研究应研究在工具开发中实施该框架的可行性。
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引用次数: 0
The Role of Transparency in Digital Contact Tracing During COVID-19: Insights from an Expert Survey. COVID-19 期间透明度在数字联系人追踪中的作用:专家调查的启示。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-06-23 DOI: 10.1007/s10728-024-00485-z
Dennis Krämer, Elisabeth Brachem, Lydia Schneider-Reuter, Isabella D'Angelo, Jochen Vollmann, Joschka Haltaufderheide

Health technologies such as apps for digital contract tracing [DCT] played a crucial role in containing and combating infections during the COVID-19 pandemic. Their primary function was to prevent the spread of SARS-CoV-2 by consistently generating and disseminating information related to various events such as encounters, vaccinations or infections. While the functionality of DCT has been well researched, the necessity of transparency in the use of DCT and the consent to share sensitive information such as users' health, vaccination and location status remains unclear. On one hand, DCT enabled the continuous monitoring of various risk factors, including data-based calculations of infection probabilities. On the other hand, digital monitoring of health risks was closely associated with various uncertainties, such as the ambiguous storage of personal data and its potential future misuse, e.g., by tech companies or health authorities. Our contribution aims to retrospectively analyze the COVID-19 pandemic from a post-pandemic perspective and utilize it as a case study for the implementation of new technological measures. We argue that under the condition of voluntary use of DCT, transparency plays a key role in convincing individuals to install health technologies on their mobile devices, keep them activated and consent to the sharing of sensitive data. We support our argument with qualitative data from an expert survey conducted between 2020 and 2021 and analyzed according to the principles of Grounded Theory.

在 COVID-19 大流行期间,数字合同追踪 [DCT] 应用程序等卫生技术在遏制和抗击感染方面发挥了至关重要的作用。它们的主要功能是通过持续生成和传播与各种事件(如相遇、接种疫苗或感染)相关的信息来防止 SARS-CoV-2 的传播。虽然对 DCT 的功能进行了深入研究,但 DCT 使用的透明度以及同意共享用户健康、疫苗接种和位置状态等敏感信息的必要性仍不明确。一方面,DCT 能够持续监测各种风险因素,包括基于数据的感染概率计算。另一方面,对健康风险的数字监测与各种不确定因素密切相关,如个人数据的模糊存储及其未来可能被滥用,如被科技公司或卫生当局滥用。我们的贡献旨在从大流行后的角度回顾分析 COVID-19 大流行,并将其作为实施新技术措施的案例研究。我们认为,在自愿使用 DCT 的条件下,透明度在说服个人在其移动设备上安装健康技术、保持其激活状态并同意共享敏感数据方面发挥着关键作用。我们在 2020 年至 2021 年期间开展了一项专家调查,并根据基础理论的原则进行了分析。
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引用次数: 0
Understanding the Normativity of Health Technology Assessment: Ontological, Moral, and Epistemological Commitments. 理解卫生技术评估的规范性:本体论、道德和认识论承诺。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-06-17 DOI: 10.1007/s10728-024-00487-x
Bart Bloemen, Wija Oortwijn, Gert Jan van der Wilt

The inherent normativity of HTA can be conceptualized as a result of normative commitments, a concept that we further specify to encompass moral, epistemological and ontological commitments at play in the practice of HTA. Based on examples from literature, and an analysis of the example of assessing Non-Invasive Prenatal Testing (NIPT), we will show that inevitable normative decisions in conducting an assessment commits the HTA practitioner to moral (regarding what makes a health technology desirable), ontological (regarding which effects of health technology are conceivable), and epistemological (regarding how to obtain reliable information about health technology) norms. This highlights and supports the need for integrating normative analysis and stakeholder participation, providing guidance to HTA practitioners when making normative choices. This will foster a shared understanding between those who conduct, use, or are impacted by assessments regarding what are conceivable and desirable outcomes of using health technology, and how to collect reliable information to assess whether these outcomes are (going to be) realized. It also provides more insight into the implications of different normative choices.

HTA 固有的规范性可被概念化为规范性承诺的结果,我们进一步明确了这一概念,以涵盖在 HTA 实践中发挥作用的道德、认识论和本体论承诺。根据文献中的例子和对无创产前检测(NIPT)评估例子的分析,我们将说明在进行评估时不可避免的规范性决策会使 HTA 从业者对道德(关于什么是可取的医疗技术)、本体论(关于医疗技术的哪些效果是可以想象的)和认识论(关于如何获得医疗技术的可靠信息)规范做出承诺。这凸显并支持了将规范分析与利益相关者参与相结合的必要性,在做出规范选择时为 HTA 从业人员提供指导。这将促进进行评估、使用评估或受评估影响的人员之间达成共识,即使用卫生技术的可想象和理想结果是什么,以及如何收集可靠信息以评估这些结果是否(将要)实现。它还能让人们更深入地了解不同规范选择的影响。
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引用次数: 0
Premature Death as a Normative Concept. 作为规范概念的过早死亡。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-06-01 Epub Date: 2024-01-26 DOI: 10.1007/s10728-023-00471-x
Preben Sørheim, Mathias Barra, Ole Frithjof Norheim, Espen Gamlund, Carl Tollef Solberg

The practical goal of preventing premature death seems uncontroversial. But the term 'premature death' is vague with several, sometimes conflicting definitions. This ambiguity results in several conceptions with which not all will agree. Moreover, the normative rationale behind the goal of preventing premature deaths is masked by the operational definition of existing measures. In this article, we argue that 'premature death' should be recognized as a normative concept. We propose that normative theories should be used to justify measures of premature death to provide them with normative validity and public legitimacy.

预防过早死亡的实际目标似乎没有争议。但是,"过早死亡 "一词的定义模糊不清,有时甚至相互矛盾。这种模糊性导致了几种并非所有人都同意的概念。此外,现有措施的操作定义也掩盖了预防过早死亡这一目标背后的规范原理。在本文中,我们认为 "过早死亡 "应被视为一个规范性概念。我们建议使用规范理论来证明过早死亡措施的合理性,使其具有规范有效性和公共合法性。
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引用次数: 0
Correction: What's Good About Inclusion? An Ethical Analysis of the Ideal of Social Inclusion for People with Profound Intellectual and Multiple Disabilities. 更正:包容有什么好处?对严重智障和多重残疾人士融入社会理想的伦理分析》。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-06-01 Epub Date: 2024-02-02 DOI: 10.1007/s10728-024-00481-3
Simon van der Weele, Femmianne Bredewold
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引用次数: 0
Patient Knowledge and Trust in Health Care. A Theoretical Discussion on the Relationship Between Patients' Knowledge and Their Trust in Health Care Personnel in High Modernity. 患者对医疗保健的了解和信任。高现代性条件下患者知识与对医护人员信任关系的理论探讨。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-06-01 Epub Date: 2023-10-09 DOI: 10.1007/s10728-023-00467-7
Stein Conradsen, Henrik Vardinghus-Nielsen, Helge Skirbekk

In this paper we aim to discuss a theoretical explanation for the positive relationship between patients' knowledge and their trust in healthcare personnel. Our approach is based on John Dewey's notion of continuity. This notion entails that the individual's experiences are interpreted as interrelated to each other, and that knowledge is related to future experience, not merely a record of the past. Furthermore, we apply Niklas Luhmann's theory on trust as a way of reducing complexity and enabling action. Anthony Giddens' description and analysis of the high modern society provides a frame for discussing the preconditions for patient-healthcare personnel interaction. High modernity is dominated by expert systems and demands trust in these. We conclude that patient knowledge and trust in healthcare personnel is related because both knowledge and trust are future- and action-oriented concepts. The traits of high modernity provides opportunities and challenges as the personnel can and must perform discretion. This discretion must be made in a context where knowledge is considered uncertain and preliminary.

在本文中,我们旨在讨论患者的知识与他们对医护人员的信任之间正相关关系的理论解释。我们的方法是基于约翰·杜威的连续性概念。这一概念意味着个人的经历被解释为相互关联,知识与未来的经历有关,而不仅仅是过去的记录。此外,我们将Niklas Luhmann的信任理论应用于降低复杂性和促进行动。安东尼·吉登斯对高等现代社会的描述和分析为讨论患者与医护人员互动的前提条件提供了一个框架。高度现代化是由专家系统主导的,需要对这些系统的信任。我们得出结论,患者的知识和对医护人员的信任是相关的,因为知识和信任都是面向未来和行动的概念。高度现代化的特点为人员能够而且必须行使自由裁量权提供了机遇和挑战。这种自由裁量权必须在知识被认为是不确定和初步的情况下作出。
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引用次数: 0
Health-Oriented Environmental Categories, Individual Health Environments, and the Concept of Environment in Public Health. 以健康为导向的环境类别、个人健康环境和公共卫生中的环境概念。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-06-01 Epub Date: 2024-01-29 DOI: 10.1007/s10728-023-00477-5
Annette K F Malsch, Anton Killin, Marie I Kaiser

The term 'environment' is not uniformly defined in the public health sciences, which causes crucial inconsistencies in research, health policy, and practice. As we shall indicate, this is somewhat entangled with diverging pathogenic and salutogenic perspectives (research and policy priorities) concerning environmental health. We emphasise two distinct concepts of environment in use by the World Health Organisation. One significant way these concepts differ concerns whether the social environment is included. Divergence on this matter has profound consequences for the understanding of health and disease, for measures derived from that understanding targeting health promotion and disease prevention, and consequently, for epistemic structures and concept development in scientific practice. We hope to improve the given situation in public health by uncovering these differences and by developing a fruitful way of thinking about environment. Firstly, we side with the salutogenic conception of environment as a health resource (as well as a source of health risks). Secondly, we subdivide the concept of environment into four health-oriented environmental categories (viz., natural, built-material, socio-cultural, and psychosocial) and we link these with other theoretical notions proposed in the health sciences literature. Thirdly, we propose that in public health 'environment' should be understood as consisting of all extrinsic factors that influence or are influenced by the health, well-being, and development of an individual. Consequently, none of the four categories should be excluded from the concept of environment. We point out the practical relevance and fruitfulness of the conception of environment as a health source and frame this in causal terms, representing individual health environments as causal networks. Throughout, we side with the view that for the design of human health-promoting settings, increased attention and consideration of environmental resources of salutogenic potential is particularly pressing.

环境 "一词在公共卫生科学中的定义并不统一,这导致了研究、卫生政策和实践中的严重不一致。正如我们将要指出的,这在某种程度上与有关环境健康的致病和致救观点(研究和政策优先事项)的分歧纠缠在一起。我们强调世界卫生组织使用的两种不同的环境概念。这些概念的一个重要区别在于是否包括社会环境。在这一问题上的分歧对健康和疾病的理解、对从这种理解中得出的以促进健康和预防疾病为目标的措施,进而对科学实践中的认识结构和概念发展都有深远的影响。我们希望通过揭示这些分歧和发展一种富有成效的环境思维方式来改善公共卫生领域的现状。首先,我们支持将环境作为一种健康资源(以及健康风险的来源)的有益概念。其次,我们将环境概念细分为四个以健康为导向的环境类别(即自然、物质建筑、社会文化和社会心理),并将这些类别与健康科学文献中提出的其他理论概念联系起来。第三,我们提出,在公共卫生领域,"环境 "应被理解为包括所有影响或被影响个人健康、福祉和发展的外在因素。因此,这四个类别中的任何一个都不应排除在环境概念之外。我们指出了环境作为健康来源这一概念的现实意义和丰硕成果,并以因果关系为框架,将个体健康环境表述为因果网络。我们始终认为,在设计促进人类健康的环境时,更多地关注和考虑具有促进健康潜力的环境资源尤为迫切。
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引用次数: 0
Moral Distress and Nursing Education: Curricular and Pedagogical Strategies for a Complex Phenomenon. 道德压力与护理教育:针对复杂现象的课程和教学策略》。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-03-01 Epub Date: 2023-09-04 DOI: 10.1007/s10728-023-00468-6
Sadie Deschenes, Cathryn van Kessel

Moral distress is a common phenomenon among nurses and is related to the complicated work environments and complex nature of ethical situations in day-to-day nursing practice. Moral distress impacts nurses as well as patient care and the health care system. Few strategies have been identified for instructors to effectively engage with learners when communicating about moral distress. We discuss two key curricular and pedagogical strategies that should be utilized when learning about moral distress: difficult knowledge' and 'terror management theory'. Whether it is with new nursing students or experienced nurses, there is necessary learning that needs to occur on moral distress. Difficult knowledge' and 'terror management theory', when implemented, can provide a starting point for both the learner and the instructor to discuss the emotionally difficult and complex topic of moral distress. Knowledge about moral distress has the potential to mitigate its negative effects, therefore it is vital to consider educational strategies to teach nurses about this complex phenomenon.

道德困扰是护士中的一种普遍现象,与日常护理实践中复杂的工作环境和道德状况的复杂性有关。道德困扰影响着护士以及病人护理和医疗保健系统。在与学习者交流道德困扰时,很少有教员能找到有效的策略。我们讨论了在学习道德困扰时应采用的两种关键课程和教学策略:"困难知识 "和 "恐怖管理理论"。无论是护理专业的新生还是经验丰富的护士,都需要对道德困扰进行必要的学习。困难知识 "和 "恐怖管理理论 "的实施可以为学习者和教师提供一个起点,以讨论道德困扰这一情感上困难而复杂的话题。有关精神痛苦的知识有可能减轻其负面影响,因此,考虑采取教育策略向护士传授有关这一复杂现象的知识至关重要。
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引用次数: 0
The Ethics of Population Policy for the Two Worlds of Population Conditions. 两个世界人口状况下的人口政策伦理。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-03-01 Epub Date: 2023-07-21 DOI: 10.1007/s10728-023-00462-y
Ming-Jui Yeh, Po-Han Lee

Population policy has taken two divergent trajectories. In the developing part of the world, controlling population growth has been a major tune of the debate more than a half-century ago. In the more developed part of the world, an inverse pattern results in the discussion over the facilitation of population growth. The ethical debates on population policy have primarily focused on the former and ignored the latter. This paper proposes a more comprehensive account that justifies states' population policy interventions. We first consider the reasons that support pro-natalist policies to enhance fertility rates and argue that these policies are ethically problematic. We then establish an ethics of population policy grounded on account of self-sustaining the body politic, which consists of four criteria: survival, replacement, accountability, and solidarity. We discuss the implications of this account regarding birth-control and pro-natalist policies, as well as non-procreative policies such as immigration, adoption, and unintended baby-saving strategies.

人口政策经历了两条不同的轨迹。在世界的发展中地区,控制人口增长是半个多世纪前辩论的主要议题。在世界较发达地区,关于促进人口增长的讨论则呈现出相反的模式。关于人口政策的伦理辩论主要集中在前者,而忽视了后者。本文提出了一种更全面的解释,为国家的人口政策干预提供依据。我们首先考虑了支持提高生育率的亲生育政策的原因,并认为这些政策在伦理上是有问题的。然后,我们建立了基于政治体自我维持的人口政策伦理,其中包括四个标准:生存、替代、问责和团结。我们讨论了这一论述对节育和支持生育政策以及移民、领养和意外保胎策略等非生育政策的影响。
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引用次数: 0
Why Health-enhancing Nudges Fail. 为什么促进健康的建议会失败?
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-03-01 Epub Date: 2023-07-21 DOI: 10.1007/s10728-023-00459-7
Thomas Schramme

Nudges are means to influence the will formation of people to make specific choices more likely. My focus is on nudges that are supposed to improve the health condition of individuals and populations over and above the direct prevention of disease. I point out epistemic and moral problems with these types of nudges, which lead to my conclusion that health-enhancing nudges fail. They fail because we cannot know which choices enhance individual health-properly understood in a holistic way-and because health-enhancing nudges are often themselves bad for our health. They can be bad for our health because they assume inferior agency in their targets and accordingly regularly lead to appropriate resentment and anger-strong emotions which go along with an increased risk of health impairments. Briefly, health-enhancing nudges fail because they are based on persistent ignorance and on a presumptuous attitude.

暗示是影响人们意志形成的手段,使人们更有可能做出特定的选择。我的重点是那些除了直接预防疾病之外,还能改善个人和群体健康状况的干预措施。我指出了这些类型的 "暗示 "在认识论和道德上存在的问题,并由此得出结论:改善健康的 "暗示 "是失败的。它们之所以失败,是因为我们无法知道哪些选择可以增进个人健康--从整体上正确理解--还因为增进健康的干预措施本身往往不利于我们的健康。它们可能对我们的健康不利,因为它们假定目标的代理权较低,因此经常导致适当的怨恨和愤怒--强烈的情绪伴随着健康受损风险的增加。简而言之,促进健康的暗示之所以失败,是因为它们建立在持续的无知和自以为是的态度之上。
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引用次数: 0
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Health Care Analysis
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