Pub Date : 2025-02-01Epub Date: 2024-06-24DOI: 10.1037/rep0000565
Michelle Botha, Brian Watermeyer
Purpose: Peer support has been identified as an important aspect of rehabilitation for visually impaired adults. However, there is a limited exploration in rehabilitation studies literature of the identity-related impact of these interventions, both at an individual and collective level. Through attending to the discourses on blindness, well-being, and social inclusion that circulate in organization cultures, this article considers the role that peer support plays in forming "blind communities" with particular characteristics, and what these communities might model about life with blindness, both to newly blind persons and to society.
Research method: Foucauldian discourse analysis was conducted on semi-structured interviews with 18 visual impairment rehabilitation service users and eight rehabilitation practitioners at four organizations providing services in the Western Cape, South Africa.
Results: Formal peer support is lacking in the sampled organizations, suggesting that relational aspects are not a priority in rehabilitation practice. The formal and informal peer support that does exist in these services is shadowed by largely negative sociocultural beliefs about blindness. Participants described a culture of comparison, othering, and surveillance within which, the article suggests, they are unable to explore and embrace authentic and positive blind identities. This has implications for both individual and collective empowerment.
Conclusions: Greater attention must be paid to both rehabilitation practitioner training and the design and implementation of rehabilitation services to the identity-level impact of rehabilitation. This is essential to develop services that promote individual and collective empowerment and that respond to the multilayered practical, social, and psychoemotional needs of blind adults. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
目的:同伴支持被认为是视障成人康复的一个重要方面。然而,康复研究文献对这些干预措施在个人和集体层面上与身份相关的影响的探讨十分有限。通过关注组织文化中流传的关于失明、福祉和社会包容的论述,本文探讨了同伴支持在形成具有特殊性的 "盲人社区 "中所扮演的角色,以及这些社区可能为新盲人和社会树立的失明生活典范:研究方法:对南非西开普省四个服务机构的 18 名视力障碍康复服务使用者和 8 名康复从业人员进行了半结构化访谈,并进行了福柯话语分析:结果:在抽样调查的机构中缺乏正式的同伴支持,这表明关系方面在康复实践中并不是优先事项。这些服务机构中确实存在的正式和非正式同伴支持,却被对失明的负面社会文化观念所掩盖。参与者描述了一种比较、他化和监视的文化,文章认为,在这种文化中,他们无法探索和接受真实、积极的盲人身份。这对个人和集体赋权都有影响:康复从业人员的培训以及康复服务的设计和实施都必须更加关注康复在身份层面的影响。这对于发展促进个人和集体赋权的服务,以及满足成年盲人多层次的实际、社会和心理情感需求至关重要。(PsycInfo Database Record (c) 2024 APA, all rights reserved)。
{"title":"Comparison, othering, and surveillance: Foucauldian discourse analysis of peer support in visual impairment rehabilitation services in South Africa.","authors":"Michelle Botha, Brian Watermeyer","doi":"10.1037/rep0000565","DOIUrl":"10.1037/rep0000565","url":null,"abstract":"<p><strong>Purpose: </strong>Peer support has been identified as an important aspect of rehabilitation for visually impaired adults. However, there is a limited exploration in rehabilitation studies literature of the identity-related impact of these interventions, both at an individual and collective level. Through attending to the discourses on blindness, well-being, and social inclusion that circulate in organization cultures, this article considers the role that peer support plays in forming \"blind communities\" with particular characteristics, and what these communities might model about life with blindness, both to newly blind persons and to society.</p><p><strong>Research method: </strong>Foucauldian discourse analysis was conducted on semi-structured interviews with 18 visual impairment rehabilitation service users and eight rehabilitation practitioners at four organizations providing services in the Western Cape, South Africa.</p><p><strong>Results: </strong>Formal peer support is lacking in the sampled organizations, suggesting that relational aspects are not a priority in rehabilitation practice. The formal and informal peer support that does exist in these services is shadowed by largely negative sociocultural beliefs about blindness. Participants described a culture of comparison, othering, and surveillance within which, the article suggests, they are unable to explore and embrace authentic and positive blind identities. This has implications for both individual and collective empowerment.</p><p><strong>Conclusions: </strong>Greater attention must be paid to both rehabilitation practitioner training and the design and implementation of rehabilitation services to the identity-level impact of rehabilitation. This is essential to develop services that promote individual and collective empowerment and that respond to the multilayered practical, social, and psychoemotional needs of blind adults. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"84-93"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141447369","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Emily M Lund, Christopher R DeJesus, Mana K Ali Carter, Lauren R Khazem
Introduction: Positionality statements accompanying peer-reviewed publications are increasingly being implemented in academic journals across many disciplines, including psychology. These statements serve as transparent, public acknowledgments of the authors' identities, which can offer valuable insight into the authors' work in the context of their lived experiences and potential biases. However, journal editors and associated staff risk harm by uniformly adopting a policy on positionality statements without consideration of the unintended consequences of implementing such practices.
Objective/purpose: The purpose of the current article is to discuss the benefits and challenges of incorporating positionality statements, with a focus on the specific context and principles of rehabilitation psychology.
Method: We reviewed the literature on positionality statements and disclosure and incorporated our own experiences as researchers and authors from marginalized and/or minoritized groups.
Results: Editorial and research teams in rehabilitation psychology are encouraged to reflect on both the potential benefits of positionality statements (e.g., greater recognition of "insider perspectives," recognition of potential biases) as well as the potential negative consequences (e.g., forced disclosure of characteristics and identities in published work, minimization of the impact of intersectional identities, dissolution of dynamic identities and stages of identity development).
Conclusions/implications: Positionality statements present complex challenges for rehabilitation psychology researchers from diverse backgrounds and their colleagues; thus, authors should be given the freedom to choose if and how to include a positionality statement in their work. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
在包括心理学在内的许多学科的学术期刊中,同行评议出版物越来越多地采用位置性声明。这些声明是对作者身份的透明、公开的承认,可以在作者的生活经历和潜在偏见的背景下,为作者的工作提供有价值的见解。然而,期刊编辑和相关工作人员在不考虑实施这种做法的意外后果的情况下统一采用立场声明政策,可能会受到伤害。目标/目的:本文的目的是讨论纳入定位陈述的好处和挑战,重点是康复心理学的具体背景和原则。方法:我们回顾了关于立场陈述和披露的文献,并结合了我们自己作为边缘化和/或少数群体的研究人员和作者的经验。结果:鼓励康复心理学的编辑和研究团队反思立场陈述的潜在好处(例如,更多地认识到“内部观点”,认识到潜在的偏见)以及潜在的负面后果(例如,在发表的作品中强制披露特征和身份,最小化交叉身份的影响,动态身份的解散和身份发展的阶段)。结论/启示:位置性陈述对来自不同背景的康复心理学研究者及其同事提出了复杂的挑战;因此,作者应该有自由选择是否以及如何在他们的工作中包含立场声明。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Positionality statements: Intersectional considerations for rehabilitation psychology.","authors":"Emily M Lund, Christopher R DeJesus, Mana K Ali Carter, Lauren R Khazem","doi":"10.1037/rep0000569","DOIUrl":"10.1037/rep0000569","url":null,"abstract":"<p><strong>Introduction: </strong>Positionality statements accompanying peer-reviewed publications are increasingly being implemented in academic journals across many disciplines, including psychology. These statements serve as transparent, public acknowledgments of the authors' identities, which can offer valuable insight into the authors' work in the context of their lived experiences and potential biases. However, journal editors and associated staff risk harm by uniformly adopting a policy on positionality statements without consideration of the unintended consequences of implementing such practices.</p><p><strong>Objective/purpose: </strong>The purpose of the current article is to discuss the benefits and challenges of incorporating positionality statements, with a focus on the specific context and principles of rehabilitation psychology.</p><p><strong>Method: </strong>We reviewed the literature on positionality statements and disclosure and incorporated our own experiences as researchers and authors from marginalized and/or minoritized groups.</p><p><strong>Results: </strong>Editorial and research teams in rehabilitation psychology are encouraged to reflect on both the potential benefits of positionality statements (e.g., greater recognition of \"insider perspectives,\" recognition of potential biases) as well as the potential negative consequences (e.g., forced disclosure of characteristics and identities in published work, minimization of the impact of intersectional identities, dissolution of dynamic identities and stages of identity development).</p><p><strong>Conclusions/implications: </strong>Positionality statements present complex challenges for rehabilitation psychology researchers from diverse backgrounds and their colleagues; thus, authors should be given the freedom to choose if and how to include a positionality statement in their work. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":"70 1","pages":"110-117"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143014109","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-02-01Epub Date: 2024-03-28DOI: 10.1037/rep0000543
Juan Carlos Arango-Lasprilla, Marina Zeldovich, Bryan R Christ, Daniela Ramos-Usuga, Nicole von Steinbuechel, Paul B Perrin, Diego Rivera
Purpose/objective: The aim of this article is to evaluate the measurement invariance (MI) of the Patient Health Questionnaire-9 (PHQ-9) in a sample of individuals during the first 2 years after traumatic brain injury (TBI). MI was examined among racial/ethnic groups and over time to determine the utility of the PHQ-9 across these dimensions.
Research method/design: In total, N = 3,227 (20% of the total sample) at 1 year and N = 3,153 (19% of the total sample) at 2 years were included for cross-sectional analyses. For the longitudinal analyses, participants with the PHQ-9 at both time points (N = 2,234; 14% of the total study sample) were included.
Results: Results were that the PHQ-9 is fully invariant and maintains its unidimensional factorial structure across racial/ethnic groups during the first 2 years after TBI, suggesting the scale measures the same construct equally well for participants from each group.
Conclusion/implications: Based on these results, clinicians should feel confident using the PHQ-9 with diverse TBI patient populations, and researchers can reliably and validly employ it in TBI studies across racial/ethnic groups in the United States. Given the high rates of depression among individuals after TBI and its negative impact on their lives, this instrument will continue to be a key tool to measure the prognosis and success of rehabilitation programs. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Longitudinal measurement invariance of the Patient Health Questionnaire-9 across racial/ethnic groups: Results from the traumatic brain injury model system study.","authors":"Juan Carlos Arango-Lasprilla, Marina Zeldovich, Bryan R Christ, Daniela Ramos-Usuga, Nicole von Steinbuechel, Paul B Perrin, Diego Rivera","doi":"10.1037/rep0000543","DOIUrl":"10.1037/rep0000543","url":null,"abstract":"<p><strong>Purpose/objective: </strong>The aim of this article is to evaluate the measurement invariance (MI) of the Patient Health Questionnaire-9 (PHQ-9) in a sample of individuals during the first 2 years after traumatic brain injury (TBI). MI was examined among racial/ethnic groups and over time to determine the utility of the PHQ-9 across these dimensions.</p><p><strong>Research method/design: </strong>In total, <i>N</i> = 3,227 (20% of the total sample) at 1 year and <i>N</i> = 3,153 (19% of the total sample) at 2 years were included for cross-sectional analyses. For the longitudinal analyses, participants with the PHQ-9 at both time points (<i>N</i> = 2,234; 14% of the total study sample) were included.</p><p><strong>Results: </strong>Results were that the PHQ-9 is fully invariant and maintains its unidimensional factorial structure across racial/ethnic groups during the first 2 years after TBI, suggesting the scale measures the same construct equally well for participants from each group.</p><p><strong>Conclusion/implications: </strong>Based on these results, clinicians should feel confident using the PHQ-9 with diverse TBI patient populations, and researchers can reliably and validly employ it in TBI studies across racial/ethnic groups in the United States. Given the high rates of depression among individuals after TBI and its negative impact on their lives, this instrument will continue to be a key tool to measure the prognosis and success of rehabilitation programs. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"26-35"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140307402","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-02-01Epub Date: 2024-03-28DOI: 10.1037/rep0000557
Erica J Ho, Aaron P Turner, Mark P Jensen, Melissa A Day, Dawn M Ehde, Tracy M Anastas, Rhonda M Williams
Objective: Clinical trials often focus on symptom reduction as a primary outcome, overlooking positive psychology factors of potential importance although many individuals can and do live well with pain. The Patient-Reported Outcomes Measurement Information System (PROMIS) Psychosocial Illness Impact-Positive (PIIP) scale assesses perceptions of adaptive psychosocial functioning (e.g., coping and meaning-making) after illness onset. This study evaluated the effects of hypnosis (HYP), mindfulness meditation (MM), and pain psychoeducation (ED) on PIIP scores, using data from a completed randomized clinical trial (RCT) of complementary and integrative chronic pain interventions. We hypothesized that treatment effects on PIIP would mirror the RCT's primary pain intensity outcome, such that HYP and MM, relative to ED, would lead to greater improvements in PIIP during trial follow-up.
Method: Our sample included 262 Veterans who completed the PROMIS PIIP Short-Form 8a at pre- and posttreatment and at 3- and 6-month follow-up. Linear regression was used to test between-group differences in PIIP at each time point, controlling for baseline PIIP, average pain intensity, and baseline perceptions of prepain psychosocial functioning.
Results: There were no significant between-group differences in PIIP at posttreatment or 3-month follow-up. However, group differences emerged at 6-month follow-up: individuals randomized to MM and HYP showed improved PIIP relative to those randomized to ED.
Conclusions: Positive psychosocial outcomes are a mostly untapped territory in clinical trials of pain interventions. The present work highlights the potential benefits of including positive psychology concepts in both research and clinical contexts, emphasizing the importance of understanding human flourishing in the presence of illness and disability. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Positive impacts of psychological pain treatments: Supplementary analyses of a randomized clinical trial.","authors":"Erica J Ho, Aaron P Turner, Mark P Jensen, Melissa A Day, Dawn M Ehde, Tracy M Anastas, Rhonda M Williams","doi":"10.1037/rep0000557","DOIUrl":"10.1037/rep0000557","url":null,"abstract":"<p><strong>Objective: </strong>Clinical trials often focus on symptom reduction as a primary outcome, overlooking positive psychology factors of potential importance although many individuals can and do live well with pain. The Patient-Reported Outcomes Measurement Information System (PROMIS) Psychosocial Illness Impact-Positive (PIIP) scale assesses perceptions of adaptive psychosocial functioning (e.g., coping and meaning-making) after illness onset. This study evaluated the effects of hypnosis (HYP), mindfulness meditation (MM), and pain psychoeducation (ED) on PIIP scores, using data from a completed randomized clinical trial (RCT) of complementary and integrative chronic pain interventions. We hypothesized that treatment effects on PIIP would mirror the RCT's primary pain intensity outcome, such that HYP and MM, relative to ED, would lead to greater improvements in PIIP during trial follow-up.</p><p><strong>Method: </strong>Our sample included 262 Veterans who completed the PROMIS PIIP Short-Form 8a at pre- and posttreatment and at 3- and 6-month follow-up. Linear regression was used to test between-group differences in PIIP at each time point, controlling for baseline PIIP, average pain intensity, and baseline perceptions of prepain psychosocial functioning.</p><p><strong>Results: </strong>There were no significant between-group differences in PIIP at posttreatment or 3-month follow-up. However, group differences emerged at 6-month follow-up: individuals randomized to MM and HYP showed improved PIIP relative to those randomized to ED.</p><p><strong>Conclusions: </strong>Positive psychosocial outcomes are a mostly untapped territory in clinical trials of pain interventions. The present work highlights the potential benefits of including positive psychology concepts in both research and clinical contexts, emphasizing the importance of understanding human flourishing in the presence of illness and disability. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"36-45"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11910985/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140307403","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-02-01Epub Date: 2024-02-15DOI: 10.1037/rep0000544
Sherri L LaVela, Justina Wu, Andrea L Nevedal, Susan M Frayne, Alex H S Harris, Katherine D Arnow, Kristen Davis, Gary J Farkas, Lorena Reyes, Dan Eisenberg
Purpose/objective: Nutrition knowledge, beliefs, and behaviors have important implications for managing and preventing chronic and injury-related secondary conditions in persons with spinal cord injuries and disorders (SCI/D). Yet, the unique dietary and nutritional needs and recommendations specific to individuals with SCI/D and their eating beliefs and behaviors have been understudied. Aim is to describe nutrition and eating beliefs and behaviors from the perspectives of individuals with SCI/D.
Research method/design: Descriptive qualitative design using in-depth semistructured interviews with a national sample of veterans with SCI/D (n = 33). Audio-recorded and transcribed verbatim transcripts were coded and analyzed using thematic analysis.
Results: Participants were male (61%), aged 29-84 years, and 55% had tetraplegia. Five key themes were identified: extreme fasting/caloric restriction, perceived healthy eating behaviors, perceived unhealthy eating behaviors, modified eating behaviors due to SCI/D-related symptoms, and food/preparation choices based on abilities/independence and access.
Conclusions/implications: Nutrition among veterans with SCI/D may be impacted by many factors, such as nutrition knowledge and beliefs/behaviors about "healthy" and "unhealthy" nutrition, fasting, caloric restriction, imbalanced intake of macro- and micronutrients, overconsumption relative to energy needs, injury-related secondary complications, postinjury body composition and function changes, impairments related to satiety and hunger signals, and difficulty in obtaining and preparing food. Study findings provide many areas that would benefit from intervention. Findings can be used to inform ideal nutrition and healthy eating beliefs and behaviors which are important because nutritional inadequacies can lead to diet-related diseases, may exacerbate SCI secondary conditions, and lead to poor overall health. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Nutrition and eating beliefs and behaviors among individuals with spinal cord injuries and disorders: Healthy or misconceived?","authors":"Sherri L LaVela, Justina Wu, Andrea L Nevedal, Susan M Frayne, Alex H S Harris, Katherine D Arnow, Kristen Davis, Gary J Farkas, Lorena Reyes, Dan Eisenberg","doi":"10.1037/rep0000544","DOIUrl":"10.1037/rep0000544","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Nutrition knowledge, beliefs, and behaviors have important implications for managing and preventing chronic and injury-related secondary conditions in persons with spinal cord injuries and disorders (SCI/D). Yet, the unique dietary and nutritional needs and recommendations specific to individuals with SCI/D and their eating beliefs and behaviors have been understudied. Aim is to describe nutrition and eating beliefs and behaviors from the perspectives of individuals with SCI/D.</p><p><strong>Research method/design: </strong>Descriptive qualitative design using in-depth semistructured interviews with a national sample of veterans with SCI/D (<i>n</i> = 33). Audio-recorded and transcribed verbatim transcripts were coded and analyzed using thematic analysis.</p><p><strong>Results: </strong>Participants were male (61%), aged 29-84 years, and 55% had tetraplegia. Five key themes were identified: extreme fasting/caloric restriction, perceived healthy eating behaviors, perceived unhealthy eating behaviors, modified eating behaviors due to SCI/D-related symptoms, and food/preparation choices based on abilities/independence and access.</p><p><strong>Conclusions/implications: </strong>Nutrition among veterans with SCI/D may be impacted by many factors, such as nutrition knowledge and beliefs/behaviors about \"healthy\" and \"unhealthy\" nutrition, fasting, caloric restriction, imbalanced intake of macro- and micronutrients, overconsumption relative to energy needs, injury-related secondary complications, postinjury body composition and function changes, impairments related to satiety and hunger signals, and difficulty in obtaining and preparing food. Study findings provide many areas that would benefit from intervention. Findings can be used to inform ideal nutrition and healthy eating beliefs and behaviors which are important because nutritional inadequacies can lead to diet-related diseases, may exacerbate SCI secondary conditions, and lead to poor overall health. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"1-14"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12331222/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139736434","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-02-01Epub Date: 2024-06-24DOI: 10.1037/rep0000567
Nicola L de Souza, Katherine A Ornstein, Emily Evans, Shannon B Juengst, Kristen Dams-O'Connor, Raj G Kumar
Purpose/objective: To examine the association of changes in homebound status (i.e., never/rarely leaving the home) with life satisfaction in the first 10 years after traumatic brain injury (TBI).
Research method/design: We analyzed data from 2,294 individuals with moderate-to-severe TBI from the TBI Model Systems National Database using a longitudinal multilevel model with time-varying predictors to account for within-person changes over time as well as between-person differences. We measured homebound status (defined as leaving the home ≤ 2 days/week) and life satisfaction (defined as the total score on the Satisfaction With Life Scale) at 1, 2, 5, and 10 years post-TBI. We adjusted the models for demographic and injury-related covariates and used inverse probability weighting to account for selection bias.
Results: Forty-five (2%) individuals were homebound at all follow-up visits, 523 (22.8%) were homebound at least one follow-up visit, and 1,726 (75.2%) were never homebound. Individuals with TBI who were consistently homebound had > 1 SD lower life satisfaction compared to those who were never homebound, β = -8.07, 95% confidence interval (CI) = [-9.39, -6.76], p < .001. Individuals who became homebound experienced a significant, but modest, decline in life satisfaction (β = -2.13, 95% CI = [-2.66, -1.61], p < .001).
Conclusions/implications: Our results indicate that being homebound and becoming homebound are associated with decreased life satisfaction. Homeboundness is a potentially modifiable target to improve life satisfaction, and elucidation of contributing factors to homebound status will help develop interventions to ameliorate post-TBI homeboundness. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
目的/目标:研究方法/设计:我们分析了来自全国创伤性脑损伤模型系统数据库(TBI Model Systems National Database)的 2,294 名中度至重度创伤性脑损伤患者的数据,采用了一个纵向多层次模型,其中包含随时间变化的预测因子,以考虑到人体内随时间的变化以及人与人之间的差异。我们测量了创伤后 1 年、2 年、5 年和 10 年的居家状态(定义为离开家 ≤ 2 天/周)和生活满意度(定义为生活满意度量表的总分)。我们根据人口统计学和受伤相关协变量对模型进行了调整,并使用反概率加权法来考虑选择偏差:有 45 人(2%)在所有随访中都居家休养,523 人(22.8%)至少在一次随访中居家休养,1,726 人(75.2%)从未居家休养。持续居家的 TBI 患者的生活满意度比从不居家的患者低 1 SD 以上,β = -8.07,95% 置信区间 (CI) = [-9.39, -6.76],P < .001。居家者的生活满意度显著下降,但幅度不大(β = -2.13,95% 置信区间 = [-2.66, -1.61], p < .001):我们的研究结果表明,居家和变得居家与生活满意度下降有关。居家状态是改善生活满意度的潜在目标,阐明导致居家状态的因素将有助于制定干预措施,改善创伤后应激障碍患者的居家状态。(PsycInfo Database Record (c) 2024 APA, 版权所有)。
{"title":"Longitudinal associations of time-varying homeboundness and life satisfaction after traumatic brain injury.","authors":"Nicola L de Souza, Katherine A Ornstein, Emily Evans, Shannon B Juengst, Kristen Dams-O'Connor, Raj G Kumar","doi":"10.1037/rep0000567","DOIUrl":"10.1037/rep0000567","url":null,"abstract":"<p><strong>Purpose/objective: </strong>To examine the association of changes in homebound status (i.e., never/rarely leaving the home) with life satisfaction in the first 10 years after traumatic brain injury (TBI).</p><p><strong>Research method/design: </strong>We analyzed data from 2,294 individuals with moderate-to-severe TBI from the TBI Model Systems National Database using a longitudinal multilevel model with time-varying predictors to account for within-person changes over time as well as between-person differences. We measured homebound status (defined as leaving the home ≤ 2 days/week) and life satisfaction (defined as the total score on the Satisfaction With Life Scale) at 1, 2, 5, and 10 years post-TBI. We adjusted the models for demographic and injury-related covariates and used inverse probability weighting to account for selection bias.</p><p><strong>Results: </strong>Forty-five (2%) individuals were homebound at all follow-up visits, 523 (22.8%) were homebound at least one follow-up visit, and 1,726 (75.2%) were never homebound. Individuals with TBI who were consistently homebound had > 1 <i>SD</i> lower life satisfaction compared to those who were never homebound, β = -8.07, 95% confidence interval (CI) = [-9.39, -6.76], <i>p</i> < .001. Individuals who became homebound experienced a significant, but modest, decline in life satisfaction (β = -2.13, 95% CI = [-2.66, -1.61], <i>p</i> < .001).</p><p><strong>Conclusions/implications: </strong>Our results indicate that being homebound and becoming homebound are associated with decreased life satisfaction. Homeboundness is a potentially modifiable target to improve life satisfaction, and elucidation of contributing factors to homebound status will help develop interventions to ameliorate post-TBI homeboundness. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"94-103"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11666807/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141447370","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Christine L Petranovich, Samantha Koerber, Cristina Sarmiento, Sarah Graber, Michael Dichiaro, Pamela Wilson, Andrea Miele, Robin L Peterson, Tess Simpson, Amy K Connery, Michael W Kirkwood, Susan Apkon
Purpose/objective: The transition from childhood to adulthood often involves emotional challenges. These problems may be especially prominent for transition-age adults (TAA) with pediatric-onset disabilities, although there are currently few studies that speak to this. The aim of this study is to characterize depressive symptoms and the association with family functioning in a sample of TAA with pediatric-onset disabilities.
Research method/design: This sample is comprised of 55 TAA (18-28 years of age, M = 20.88, SD = 2.49) who were followed by pediatric rehabilitation medicine clinics. Participants have childhood acquired brain injury (n = 17), spina bifida (n = 10), or neuromuscular disorders (n = 28). Participants completed the Center for Epidemiological Studies-Depression scale and the Family Assessment Device Short Form.
Results: Clinically elevated depressive symptoms were endorsed by 65.4% of the sample. Forty-five percent of those with elevated depressive symptoms were not currently receiving psychotherapy services. Poorer family functioning on the Family Assessment Device Short Form and older age were independently associated with more depressive symptoms, controlling for medical condition, mobility status, and other relevant sociodemographic factors.
Conclusions/implications: Emotional problems are quite common in TAA with a history of acquired brain injury, spina bifida, and neuromuscular disorders, yet are seemingly inadequately managed. In view of the results of this study, TAA with pediatric-onset disabilities are likely to benefit from interventions that bolster emotional well-being and target risk factors related to their family system. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Emotional well-being in transition-age adults with pediatric-onset disabilities: A cross-sectional study.","authors":"Christine L Petranovich, Samantha Koerber, Cristina Sarmiento, Sarah Graber, Michael Dichiaro, Pamela Wilson, Andrea Miele, Robin L Peterson, Tess Simpson, Amy K Connery, Michael W Kirkwood, Susan Apkon","doi":"10.1037/rep0000599","DOIUrl":"10.1037/rep0000599","url":null,"abstract":"<p><strong>Purpose/objective: </strong>The transition from childhood to adulthood often involves emotional challenges. These problems may be especially prominent for transition-age adults (TAA) with pediatric-onset disabilities, although there are currently few studies that speak to this. The aim of this study is to characterize depressive symptoms and the association with family functioning in a sample of TAA with pediatric-onset disabilities.</p><p><strong>Research method/design: </strong>This sample is comprised of 55 TAA (18-28 years of age, <i>M</i> = 20.88, <i>SD</i> = 2.49) who were followed by pediatric rehabilitation medicine clinics. Participants have childhood acquired brain injury (<i>n</i> = 17), spina bifida (<i>n</i> = 10), or neuromuscular disorders (<i>n</i> = 28). Participants completed the Center for Epidemiological Studies-Depression scale and the Family Assessment Device Short Form.</p><p><strong>Results: </strong>Clinically elevated depressive symptoms were endorsed by 65.4% of the sample. Forty-five percent of those with elevated depressive symptoms were not currently receiving psychotherapy services. Poorer family functioning on the Family Assessment Device Short Form and older age were independently associated with more depressive symptoms, controlling for medical condition, mobility status, and other relevant sociodemographic factors.</p><p><strong>Conclusions/implications: </strong>Emotional problems are quite common in TAA with a history of acquired brain injury, spina bifida, and neuromuscular disorders, yet are seemingly inadequately managed. In view of the results of this study, TAA with pediatric-onset disabilities are likely to benefit from interventions that bolster emotional well-being and target risk factors related to their family system. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.7,"publicationDate":"2025-01-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142972781","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Purpose: This article will review the historical underpinnings of informed consent and decisional capacity, current practices, and potential evolving future modifications or elaborations of decision-making practices in clinical settings.
Method: Ethical and legal foundations for informed consent for health care are reviewed. Contemporary issues with decision making, clinical capacity, and proxy decision making in rehabilitation psychology practice are discussed with a specific focus on health care decision making.
Conclusions: As a subspecialist in psychology, a rehabilitation psychologist necessarily seeks to incorporate a working knowledge of its historical anchors while simultaneously seeking changes sensitive to honoring and advocating for the rights of the individuals whom they serve. The contributions of the disability rights movement have been immeasurable in ensuring that those most impacted with potential challenges to their right to self-determine their choices across a wide range of psycholegal issues are safeguarded. As rehabilitation psychologists, we must remain steadfast stewards and constructive supporters of those under our care through protecting and advocating for their rights. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
目的:本文将回顾知情同意和决策能力的历史基础,当前的实践,以及临床环境中决策实践的潜在演变或阐述。方法:回顾卫生保健知情同意的伦理和法律基础。当代问题与决策,临床能力和代理决策在康复心理学实践讨论与卫生保健决策的具体重点。结论:作为心理学的一个分支专家,康复心理学家必须寻求将其历史锚的工作知识纳入其中,同时寻求敏感的变化,以尊重和倡导他们所服务的个人的权利。残疾人权利运动的贡献是不可估量的,它确保了那些受影响最严重的人在各种心理问题上的自我决定选择权受到潜在挑战的权利得到保障。作为康复心理学家,我们必须通过保护和倡导他们的权利,成为我们所照顾的人的坚定管家和建设性支持者。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Decision-making capacity in rehabilitation psychology practice: Historical, contemporary, and future perspectives.","authors":"Kathleen T Bechtold, James W Mikesell","doi":"10.1037/rep0000604","DOIUrl":"10.1037/rep0000604","url":null,"abstract":"<p><strong>Purpose: </strong>This article will review the historical underpinnings of informed consent and decisional capacity, current practices, and potential evolving future modifications or elaborations of decision-making practices in clinical settings.</p><p><strong>Method: </strong>Ethical and legal foundations for informed consent for health care are reviewed. Contemporary issues with decision making, clinical capacity, and proxy decision making in rehabilitation psychology practice are discussed with a specific focus on health care decision making.</p><p><strong>Conclusions: </strong>As a subspecialist in psychology, a rehabilitation psychologist necessarily seeks to incorporate a working knowledge of its historical anchors while simultaneously seeking changes sensitive to honoring and advocating for the rights of the individuals whom they serve. The contributions of the disability rights movement have been immeasurable in ensuring that those most impacted with potential challenges to their right to self-determine their choices across a wide range of psycholegal issues are safeguarded. As rehabilitation psychologists, we must remain steadfast stewards and constructive supporters of those under our care through protecting and advocating for their rights. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.7,"publicationDate":"2025-01-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142972779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chelsea G Ratcliff, Shrasti Lohiya, Susan Robinson-Whelen, Heather Taylor, Alice Ahn, Radha Korupolu
Purpose: Chronic pain is common among people with spinal cord injury (PwSCI) and impacts mental health (MH). Mindfulness may buffer the association of pain with MH, but few studies have examined this among PwSCI. This study examines the extent to which mindfulness moderates the association of pain intensity with MH among PwSCI.
Method: PwSCI (N = 64) and chronic pain provided demographic and disability information, ratings of pain intensity (0-10 Numeric Rating Scale), pain interference, depression (eight-item Patient Health Questionnaire [PHQ-8]), anxiety (Generalized Anxiety Disorder-7 [GAD-7]), positive affect/wellbeing (SCI-QOL Positive Affect and Well-Being Short Form [PAWB-SF]), stress (Perceived Stress Scale-4 [PSS-4]), and mindfulness (15-item Five Facet Mindfulness Questionnaire [FFMQ-15]) at the time of their enrollment in a randomized controlled trial of a mindfulness intervention. The present, cross-sectional study used baseline data. Pain intensity, pain interference, mindfulness (FFMQ-15), the Pain Intensity × FFMQ-15 interaction, and relevant covariates were regressed on the four outcome measures (PHQ-8, GAD-7, PAWB-SF, and PSS-4).
Results: There was a significant Pain Intensity × FFMQ-15 interaction effect on PHQ-8 (p = .008) and GAD-7 (p = .021), such that mindfulness buffered the positive relation of pain intensity with depression and anxiety. Additionally, there was a significant Pain Intensity × FFMQ-15 interaction effect on PAWB-SF (p = .032), but contrary to the hypothesis, mindfulness intensified a positive relation between pain intensity and positive affect/well-being.
Conclusion: Dispositional mindfulness may buffer the association of pain intensity with depression and anxiety. Examining interventions to enhance mindfulness among PwSCI is warranted. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Mindfulness buffers the association of pain with depression and anxiety among people with spinal cord injury: A cross-sectional study.","authors":"Chelsea G Ratcliff, Shrasti Lohiya, Susan Robinson-Whelen, Heather Taylor, Alice Ahn, Radha Korupolu","doi":"10.1037/rep0000593","DOIUrl":"10.1037/rep0000593","url":null,"abstract":"<p><strong>Purpose: </strong>Chronic pain is common among people with spinal cord injury (PwSCI) and impacts mental health (MH). Mindfulness may buffer the association of pain with MH, but few studies have examined this among PwSCI. This study examines the extent to which mindfulness moderates the association of pain intensity with MH among PwSCI.</p><p><strong>Method: </strong>PwSCI (<i>N</i> = 64) and chronic pain provided demographic and disability information, ratings of pain intensity (0-10 Numeric Rating Scale), pain interference, depression (eight-item Patient Health Questionnaire [PHQ-8]), anxiety (Generalized Anxiety Disorder-7 [GAD-7]), positive affect/wellbeing (SCI-QOL Positive Affect and Well-Being Short Form [PAWB-SF]), stress (Perceived Stress Scale-4 [PSS-4]), and mindfulness (15-item Five Facet Mindfulness Questionnaire [FFMQ-15]) at the time of their enrollment in a randomized controlled trial of a mindfulness intervention. The present, cross-sectional study used baseline data. Pain intensity, pain interference, mindfulness (FFMQ-15), the Pain Intensity × FFMQ-15 interaction, and relevant covariates were regressed on the four outcome measures (PHQ-8, GAD-7, PAWB-SF, and PSS-4).</p><p><strong>Results: </strong>There was a significant Pain Intensity × FFMQ-15 interaction effect on PHQ-8 (<i>p</i> = .008) and GAD-7 (<i>p</i> = .021), such that mindfulness buffered the positive relation of pain intensity with depression and anxiety. Additionally, there was a significant Pain Intensity × FFMQ-15 interaction effect on PAWB-SF (<i>p</i> = .032), but contrary to the hypothesis, mindfulness intensified a positive relation between pain intensity and positive affect/well-being.</p><p><strong>Conclusion: </strong>Dispositional mindfulness may buffer the association of pain intensity with depression and anxiety. Examining interventions to enhance mindfulness among PwSCI is warranted. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.7,"publicationDate":"2024-11-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12065925/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142630565","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-06-20DOI: 10.1037/rep0000554
Jesús Privado, Elena Sanchis Sanchis, David Sancho-Cantus, Laura Cubero-Plazas, Esther Navarro-Illana, José Enrique de la Rubia Ortí
Purpose/objective: To propose a predictive model for caregivers' psychological distress (including anxiety, depression, and cognitive overload) based on different data gathered from amyotrophic lateral sclerosis (ALS) patients (cognitive level, psychological distress, type of ALS, and sex).
Research method/design: A cross-sectional study with a sample of 51 ALS patients and their respective main carers. Various instruments were used such as the Beck Anxiety Inventory, ALS Depression Inventory-12, and the Edinburgh Cognitive and Behavioral ALS Screen, Zarit Burden Interview, Self-Rating Depression Scale, and Self-Rating Anxiety Scale for caregivers.
Results: ALS type, sex, and cognition were predictive variables for caregiver distress, with the main explanatory variable being the distress of the patients themselves. Spinal ALS led to higher psychological distress in caregivers (β = .38), as did male patients with ALS and preserved cognition.
Conclusions/implications: The proposed confirmatory model demonstrates that patients' psychological distress is the best predictor of psychological distress in their caregivers. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
目的/目标:根据从肌萎缩性脊髓侧索硬化症(ALS)患者处收集的不同数据(认知水平、心理压力、ALS类型和性别),提出护理者心理压力(包括焦虑、抑郁和认知超负荷)的预测模型:研究方法/设计:横断面研究,样本为 51 名 ALS 患者及其主要照顾者。研究使用了多种工具,如贝克焦虑量表、ALS抑郁量表-12、爱丁堡认知和行为ALS筛查、Zarit负担访谈、抑郁自评量表和照顾者焦虑自评量表:ALS类型、性别和认知能力是预测照顾者痛苦的变量,而主要的解释变量是患者本身的痛苦。脊髓性脊髓侧索硬化症(ALS)会导致护理人员产生更高的心理压力(β = .38),男性 ALS 患者和认知能力受损的患者也会产生更高的心理压力:所提出的确认模型表明,患者的心理困扰是护理人员心理困扰的最佳预测指标。(PsycInfo Database Record (c) 2024 APA,版权所有)。
{"title":"Prediction of caregiver psychological distress in amyotrophic lateral sclerosis: A cross-sectional study.","authors":"Jesús Privado, Elena Sanchis Sanchis, David Sancho-Cantus, Laura Cubero-Plazas, Esther Navarro-Illana, José Enrique de la Rubia Ortí","doi":"10.1037/rep0000554","DOIUrl":"10.1037/rep0000554","url":null,"abstract":"<p><strong>Purpose/objective: </strong>To propose a predictive model for caregivers' psychological distress (including anxiety, depression, and cognitive overload) based on different data gathered from amyotrophic lateral sclerosis (ALS) patients (cognitive level, psychological distress, type of ALS, and sex).</p><p><strong>Research method/design: </strong>A cross-sectional study with a sample of 51 ALS patients and their respective main carers. Various instruments were used such as the Beck Anxiety Inventory, ALS Depression Inventory-12, and the Edinburgh Cognitive and Behavioral ALS Screen, Zarit Burden Interview, Self-Rating Depression Scale, and Self-Rating Anxiety Scale for caregivers.</p><p><strong>Results: </strong>ALS type, sex, and cognition were predictive variables for caregiver distress, with the main explanatory variable being the distress of the patients themselves. Spinal ALS led to higher psychological distress in caregivers (β = .38), as did male patients with ALS and preserved cognition.</p><p><strong>Conclusions/implications: </strong>The proposed confirmatory model demonstrates that patients' psychological distress is the best predictor of psychological distress in their caregivers. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"364-374"},"PeriodicalIF":1.7,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141427964","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}