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Childhood cancer survivors' perceptions of the barriers and facilitators to physical activity: a systematic review and thematic synthesis of qualitative evidence using the theoretical domains framework. 儿童癌症幸存者对身体活动障碍和促进因素的看法:使用理论领域框架对定性证据进行系统审查和专题综合。
IF 9.8 1区 心理学 Q1 PSYCHOLOGY, CLINICAL Pub Date : 2023-06-01 DOI: 10.1080/17437199.2022.2032795
Morven C Brown, Mary Podmore, Vera Araújo-Soares, Roderick Skinner, Linda Sharp

Physical activity (PA) is recommended for childhood cancer survivors (CCSs). However, many CCSs have low levels of activity. This review aimed to systematically identify, appraise and synthesise qualitative research evidence on the barriers and facilitators to PA from the perspective of CCSs. Six databases (MEDLINE, Embase, PsycINFO, CINAHL, SPORTDiscus, and Scopus) were searched to identify qualitative data on PA gathered from CCSs diagnosed ≤18 years of age and who had completed active treatment. An inductive thematic synthesis was undertaken to identify descriptive themes relating to barriers and facilitators to PA, before mapping these onto the Theoretical Domains Framework (TDF). Methodological quality was assessed using CASP, and confidence in review findings was assessed using the GRADE-CERQual approach. Eight original studies were eligible. A total of 45 descriptive themes (29 facilitators and 16 barriers) were mapped onto nine domains of the TDF; they were most commonly mapped onto the Environmental Context and Resources (n = 13 descriptive themes) and the Social Influences (n = 13) domains. Study quality was variable and overall confidence in review findings was low. Conclusive/strong evidence for the barriers and facilitators to PA is lacking, highlighting the need for further research on the perceived influences on PA in CCSs. PROSPERO Registration: CRD42019147829.

建议儿童癌症幸存者(CCSs)进行身体活动(PA)。然而,许多CCSs的活动水平很低。本综述旨在系统地识别、评价和综合有关cccs视角下PA障碍和促进因素的定性研究证据。我们检索了六个数据库(MEDLINE, Embase, PsycINFO, CINAHL, SPORTDiscus和Scopus),以确定从诊断为≤18岁并完成积极治疗的CCSs收集的PA定性数据。在将这些主题映射到理论领域框架(TDF)之前,进行了归纳主题综合,以确定与PA障碍和促进因素相关的描述性主题。使用CASP评估方法学质量,使用GRADE-CERQual方法评估综述结果的可信度。8项原始研究符合条件。共有45个描述性主题(29个促进因素和16个障碍)被映射到TDF的9个领域;它们最常被映射到环境背景和资源(n = 13个描述性主题)和社会影响(n = 13)领域。研究质量是可变的,综述结果的总体可信度很低。缺乏关于PA障碍和促进因素的结论性/强有力的证据,这突出表明需要进一步研究CCSs中对PA的感知影响。普洛斯彼罗注册号:CRD42019147829。
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引用次数: 11
Cultural and societal motivations for being informal caregivers: a qualitative systematic review and meta-synthesis. 成为非正式照顾者的文化和社会动机:定性系统回顾和综合。
IF 9.8 1区 心理学 Q1 PSYCHOLOGY, CLINICAL Pub Date : 2023-06-01 DOI: 10.1080/17437199.2022.2032259
Mikołaj Zarzycki, Val Morrison, Eva Bei, Diane Seddon

ABSTRACTInformal caregiving constitutes the mainstay of a society's care supply. Motivations for caring and continuing to provide care are crucial to understanding the nature of caregiver experiences and their relationship with the person/people they support. This systematic review of qualitative evidence examines determinants of motivations and willingness to provide informal care. One hundred and five qualitative studies published before August 2019 and fitting the inclusion criteria were identified, 84 of them pertaining to cultural and societal motivations for caregiving. Grounded theory-based, thematic synthesis was conducted. Cultural and societal factors strongly underpinned motivations and willingness for informal caregiving. The main cultural motives for caregiving were cultural values and beliefs encompassing the ethnocultural context of the caregiving role, culture-specific norms, cultural and spiritual beliefs, illness beliefs and socialisation. Societal norms and perceived expectations, such as gendered roles, norms and expectations of caregiving, and perceptions of health and social care services further shaped caregiver motivations and willingness to provide care. These meta-synthesis findings contribute towards novel understandings about the cultural and societal aspects shaping informal care provision. These findings bear important implications for theory, research, policy and practice; all of which contributing to the issue of the sustainability of informal care from a 'macro' perspective.

【摘要】正规护理是社会护理供给的主体。照顾和继续提供照顾的动机对于理解照顾者经历的本质以及他们与他们所支持的人/人的关系至关重要。本文对定性证据进行了系统回顾,探讨了提供非正式护理的动机和意愿的决定因素。确定了2019年8月之前发表的105项符合纳入标准的定性研究,其中84项与护理的文化和社会动机有关。以理论为基础,进行专题综合。文化和社会因素有力地支持了非正式照料的动机和意愿。照顾的主要文化动机是文化价值观和信仰,包括照顾角色的民族文化背景、特定文化规范、文化和精神信仰、疾病信仰和社会化。社会规范和感知的期望,如性别角色、照护的规范和期望,以及对保健和社会照护服务的看法,进一步塑造了照护者提供照护的动机和意愿。这些综合研究结果有助于对形成非正式护理提供的文化和社会方面的新理解。这些发现对理论、研究、政策和实践具有重要意义;从“宏观”角度来看,所有这些都有助于非正式护理的可持续性问题。
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引用次数: 25
How and why could smiling influence physical health? A conceptual review. 微笑如何以及为什么会影响身体健康?概念回顾。
IF 9.8 1区 心理学 Q1 PSYCHOLOGY, CLINICAL Pub Date : 2023-06-01 DOI: 10.1080/17437199.2022.2052740
Marie P Cross, Amanda M Acevedo, Kate A Leger, Sarah D Pressman

ABSTRACTSmiling has been a topic of interest to psychologists for decades, with a myriad of studies tying this behavior to well-being. Despite this, we know surprisingly little about the nature of the connections between smiling and physical health. We review the literature connecting both naturally occurring smiles and experimentally manipulated smiles to physical health and health-relevant outcomes. This work is discussed in the context of existing affect and health-relevant theoretical models that help explain the connection between smiling and physical health including the facial feedback hypothesis, the undoing hypothesis, the generalized unsafety theory of stress, and polyvagal theory. We also describe a number of plausible pathways, some new and relatively untested, through which smiling may influence physical health such as trait or state positive affect, social relationships, stress buffering, and the oculocardiac reflex. Finally, we provide a discussion of possible future directions, including the importance of cultural variation and replication. Although this field is still in its infancy, the findings from both naturally occurring smile studies and experimentally manipulated smile studies consistently suggest that smiling may have a number of health-relevant benefits including beneficially impacting our physiology during acute stress, improved stress recovery, and reduced illness over time.

几十年来,微笑一直是心理学家感兴趣的话题,无数的研究将这种行为与幸福联系起来。尽管如此,我们对微笑和身体健康之间联系的本质知之甚少。我们回顾了将自然微笑和实验操纵的微笑与身体健康和健康相关结果联系起来的文献。本研究在现有的情感和健康相关理论模型的背景下进行了讨论,这些理论模型有助于解释微笑与身体健康之间的联系,包括面部反馈假说、撤消假说、压力的广义不安全理论和多迷走神经理论。我们还描述了一些看似合理的途径,其中一些是新的和相对未经测试的,通过这些途径,微笑可能会影响身体健康,如性格或状态的积极影响、社会关系、压力缓冲和心眼反射。最后,我们提供了一个可能的未来方向的讨论,包括文化变异和复制的重要性。尽管这一领域仍处于起步阶段,但自然发生的微笑研究和实验操纵的微笑研究的结果一致表明,微笑可能有许多与健康相关的好处,包括在急性压力下对我们的生理产生有益的影响,改善压力恢复,随着时间的推移减少疾病。
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引用次数: 1
Fear of progression in chronic illnesses other than cancer: a systematic review and meta-analysis of a transdiagnostic construct. 对癌症以外的慢性疾病进展的恐惧:一项跨诊断结构的系统回顾和荟萃分析。
IF 9.8 1区 心理学 Q1 PSYCHOLOGY, CLINICAL Pub Date : 2023-06-01 DOI: 10.1080/17437199.2022.2039744
Louise Sharpe, M Michalowski, B Richmond, R E Menzies, J Shaw

Fear of cancer recurrence (FCR) is the most common psychosocial issue amongst cancer survivors. However, fear of progression (FoP) has rarely been studied outside of the cancer context. This review aimed to: (1) meta-synthesise qualitative studies of FoP in illnesses other than cancer; and (2) quantify the relationship between FoP and anxiety, depression, and quality of life (QoL) in non-cancer chronic illnesses. We identified 25 qualitative and 11 quantitative studies in a range of chronic illnesses. Participants described fears of progression and recurrence of their illness, including fears of dying, and fears of becoming a burden to family. Fears were often triggered by downward comparison (i.e., seeing people worse off than themselves). Participants coped in different ways, including by accepting the illness or seeking knowledge. Those for whom these fears caused distress reported hypervigilance to physical symptoms and avoidance. Distress, and seeking information, were associated with adherence. In quantitative analyses, FoP was moderately associated with QoL, and strongly associated with anxiety and depression. These results suggest that FoP in illnesses other than cancer is similar to FCR. FoP appears to be an important transdiagnostic construct associated with distress. Evidence-based FCR interventions could be adapted to better manage FoP in other illnesses.

癌症复发恐惧(FCR)是癌症幸存者最常见的心理问题。然而,进展恐惧(FoP)很少在癌症背景之外进行研究。本综述旨在:(1)对肿瘤以外疾病中FoP的meta综合定性研究;(2)量化非癌症慢性疾病患者的FoP与焦虑、抑郁和生活质量(QoL)的关系。我们在一系列慢性疾病中确定了25项定性研究和11项定量研究。参与者描述了对疾病进展和复发的恐惧,包括对死亡的恐惧,以及对成为家庭负担的恐惧。恐惧通常是由向下的比较引发的(例如,看到别人比自己差)。参与者以不同的方式应对,包括接受疾病或寻求知识。那些对这些恐惧造成痛苦的人报告了对身体症状的高度警惕和回避。痛苦和寻求信息与依从性有关。在定量分析中,FoP与生活质量中度相关,与焦虑和抑郁密切相关。这些结果表明,在癌症以外的疾病中,FoP与FCR相似。FoP似乎是一个与痛苦相关的重要的跨诊断结构。基于证据的FCR干预措施可以适应于更好地管理其他疾病的FoP。
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引用次数: 13
The (over)use of SMART goals for physical activity promotion: A narrative review and critique. (过度)使用SMART目标促进体育活动:一个叙述性的回顾和批评。
IF 9.8 1区 心理学 Q1 PSYCHOLOGY, CLINICAL Pub Date : 2023-06-01 DOI: 10.1080/17437199.2021.2023608
Christian Swann, Patricia C Jackman, Alex Lawrence, Rebecca M Hawkins, Scott G Goddard, Ollie Williamson, Matthew J Schweickle, Stewart A Vella, Simon Rosenbaum, Panteleimon Ekkekakis

The SMART acronym (e.g., Specific, Measurable, Achievable, Realistic, Timebound) is a highly prominent strategy for setting physical activity goals. While it is intuitive, and its practical value has been recognised, the scientific underpinnings of the SMART acronym are less clear. Therefore, we aimed to narratively review and critically examine the scientific underpinnings of the SMART acronym and its application in physical activity promotion. Specifically, our review suggests that the SMART acronym: is not based on scientific theory; is not consistent with empirical evidence; does not consider what type of goal is set; is not applied consistently; is lacking detailed guidance; has redundancy in its criteria; is not being used as originally intended; and has a risk of potentially harmful effects. These issues are likely leading to sub-optimal outcomes, confusion, and inconsistency. Recommendations are provided to guide the field towards better practice and, ultimately, more effective goal setting interventions to help individuals become physically active.

SMART首字母缩略词(例如,具体的,可测量的,可实现的,现实的,有时限的)是制定体育活动目标的一个非常重要的策略。虽然它是直观的,其实用价值已得到认可,但SMART首字母缩略词的科学基础尚不清楚。因此,我们旨在叙述性地回顾和批判性地研究SMART首字母缩略词的科学基础及其在体育活动促进中的应用。具体来说,我们的综述表明,SMART的首字母缩略词:不是基于科学理论;不符合经验证据的;不考虑设定什么样的目标;不一致地应用;缺乏详细的指导;在它的标准中有冗余;未按原计划使用;并且有潜在有害影响的风险。这些问题很可能导致次优结果、混乱和不一致。提出了建议,以指导该领域采取更好的做法,并最终采取更有效的目标设定干预措施,帮助个人进行身体活动。
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引用次数: 22
Insulin restriction or omission in Type 1 Diabetes Mellitus: a meta-synthesis of individuals' experiences of diabulimia. 1型糖尿病胰岛素限制或遗漏:个体糖尿病经历的综合研究
IF 9.8 1区 心理学 Q1 PSYCHOLOGY, CLINICAL Pub Date : 2023-06-01 DOI: 10.1080/17437199.2021.2025133
Georgia Goddard, Melissa Oxlad

Objective: Unique to individuals with insulin-dependent diabetes mellitus is a disordered eating behaviour whereby insulin is deliberately restricted or omitted. Despite growing research in this area, experiential perspectives of individuals remain understudied. Therefore, this meta-synthesis sought to explore the experiences of individuals with Type 1 Diabetes Mellitus by identifying, analysing and synthesising existing knowledge concerning this misuse of insulin.

Design: Meta-aggregative techniques were employed to generate synthesised findings related to individuals' understanding and experience, physical and psychological impacts, support and treatment-related needs, noted in twelve studies.

Results: A multifaceted relationship with insulin misuse, beyond weight control was identified. Many individuals experienced diabetes-related complications alongside increased distress, loss of control and feelings of regret, guilt, and shame. Almost all individuals valued support from those who shared a 'diabulimic' identity; peer support appeared more conducive to recovery than support from others including formal support services.

Conclusions: This meta-synthesis highlights the need for empathic, collaborative care, and proactive prevention and intervention. The findings highlight the value of peer support, the need for increased knowledge among informal supports, training among multidisciplinary teams and support services, and crucially the development of evidence-based treatments informed by the behaviour as a unique distinct construct.

目的:胰岛素依赖型糖尿病患者特有的一种饮食紊乱行为是故意限制或省略胰岛素。尽管这一领域的研究越来越多,但个人的经验观点仍未得到充分研究。因此,本综合研究试图通过识别、分析和综合有关胰岛素滥用的现有知识来探索1型糖尿病患者的经历。设计:meta - aggregate技术被用来产生综合的发现,这些发现与12项研究中提到的个人的理解和经验、身体和心理影响、支持和治疗相关的需求有关。结果:胰岛素滥用与体重控制之外的多方面关系被确定。许多人经历了与糖尿病相关的并发症,同时增加了痛苦,失去控制,感到后悔,内疚和羞耻。几乎所有的人都重视那些拥有“糖尿病”身份的人的支持;同伴的支持似乎比他人的支持(包括正式的支持服务)更有利于康复。结论:这一荟萃综合强调了移情、协作护理和主动预防和干预的必要性。研究结果强调了同伴支持的价值,需要在非正式支持中增加知识,需要在多学科团队和支持服务中进行培训,至关重要的是,需要发展基于证据的治疗方法,将行为作为一种独特的结构。
{"title":"Insulin restriction or omission in Type 1 Diabetes Mellitus: a meta-synthesis of individuals' experiences of diabulimia.","authors":"Georgia Goddard,&nbsp;Melissa Oxlad","doi":"10.1080/17437199.2021.2025133","DOIUrl":"https://doi.org/10.1080/17437199.2021.2025133","url":null,"abstract":"<p><strong>Objective: </strong>Unique to individuals with insulin-dependent diabetes mellitus is a disordered eating behaviour whereby insulin is deliberately restricted or omitted. Despite growing research in this area, experiential perspectives of individuals remain understudied. Therefore, this meta-synthesis sought to explore the experiences of individuals with Type 1 Diabetes Mellitus by identifying, analysing and synthesising existing knowledge concerning this misuse of insulin.</p><p><strong>Design: </strong>Meta-aggregative techniques were employed to generate synthesised findings related to individuals' understanding and experience, physical and psychological impacts, support and treatment-related needs, noted in twelve studies.</p><p><strong>Results: </strong>A multifaceted relationship with insulin misuse, beyond weight control was identified. Many individuals experienced diabetes-related complications alongside increased distress, loss of control and feelings of regret, guilt, and shame. Almost all individuals valued support from those who shared a 'diabulimic' identity; peer support appeared more conducive to recovery than support from others including formal support services.</p><p><strong>Conclusions: </strong>This meta-synthesis highlights the need for empathic, collaborative care, and proactive prevention and intervention. The findings highlight the value of peer support, the need for increased knowledge among informal supports, training among multidisciplinary teams and support services, and crucially the development of evidence-based treatments informed by the behaviour as a unique distinct construct.</p>","PeriodicalId":48034,"journal":{"name":"Health Psychology Review","volume":"17 2","pages":"227-246"},"PeriodicalIF":9.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9941643","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 4
A meta-analysis of loneliness and use of primary health care. 孤独感与初级卫生保健使用的meta分析。
IF 9.8 1区 心理学 Q1 PSYCHOLOGY, CLINICAL Pub Date : 2023-06-01 DOI: 10.1080/17437199.2021.1986417
Fuschia M Sirois, Janine Owens

Loneliness is a growing public health concern that is associated with a range of negative health outcomes. The extent to which loneliness may also be associated with greater use of primary health care remains unclear. The present meta-analysis aimed to address this gap by quantifying research on the association of loneliness to primary health care use. The database searches yielded 23 eligible studies with 25 effects, total N = 113,639. A random effects meta-analysis revealed a small positive average effect size (ravg = .094; 95% CI [.07, .12])between loneliness and the use of primary care that increased in magnitude as the proportion of females in the samples increased. Studies that used objective measures of primary care use yielded effects that were significantly larger than those using self-report measures. The effects were robust to differences in age and type of health-care systems, and the type of loneliness scale (single versus multi-item). The findings from this first comprehensive meta-analysis of the association of loneliness with use of primary care indicate that people who experience loneliness make a greater number of visits to primary-care practitioners. This evidence highlights the practical impact of loneliness on health-care use when viewed at the population level.

孤独是一个日益严重的公共卫生问题,与一系列负面健康结果有关。目前尚不清楚孤独感在多大程度上也可能与更多地使用初级卫生保健有关。本荟萃分析旨在通过量化孤独感与初级卫生保健使用的关联研究来解决这一差距。数据库检索得到23项符合条件的研究,共25项效应,总N = 113,639。随机效应荟萃分析显示,小的正平均效应大小(ravg = 0.094;95% ci[。[07, .12])孤独感与初级保健的使用之间的关系随着样本中女性比例的增加而增加。使用初级保健使用客观测量的研究产生的效果明显大于使用自我报告测量的研究。这些影响对年龄和医疗保健系统类型以及孤独感量表类型(单项与多项)的差异具有很强的影响。这是第一次对孤独感与初级保健使用之间关系的综合荟萃分析,结果表明,经历过孤独感的人去初级保健医生那里的次数更多。从人口层面来看,这一证据突出了孤独感对医疗保健使用的实际影响。
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引用次数: 9
Why do they care? A qualitative systematic review and meta-synthesis of personal and relational motivations for providing informal care. 他们为什么要关心?提供非正式护理的个人和关系动机的定性系统回顾和元综合。
IF 9.8 1区 心理学 Q1 PSYCHOLOGY, CLINICAL Pub Date : 2023-06-01 DOI: 10.1080/17437199.2022.2058581
Mikołaj Zarzycki, Diane Seddon, Eva Bei, Val Morrison

Informal caregiving is crucial to the sustainability of health and social care systems globally. With ageing populations and a rising prevalence of acute and chronic health conditions, the need for informal care is growing, making it important to understand what motivates individuals to care and to continue caring. This paper reports findings of a systematic review which examined determinants of motivations and willingness to provide informal care. A systematic search was conducted using six electronic databases and a wide range of additional sources. 105 qualitative studies published before August 2019 were included with 103 of them reporting on personal and relational motivations, and the contextual factors underpinning these. Grounded theory-based, thematic synthesis was applied to synthesise the literature. This meta-synthesis reports on findings from across the world spanning three decades, with data from over 2500 caregivers across a range of health conditions. This paper presents the relational, personal and contextual themes. It highlights the significance of reciprocity, affection, family values and caregiving obligations. Personal characteristics, finding meaning, illness perceptions, situational and temporal aspects of caregiving are also identified as important in shaping motivations and willingness to care and to continue caring. Implications for theory, research, policy and practice are discussed.

非正式照护对全球卫生和社会照护系统的可持续性至关重要。随着人口老龄化和急性和慢性健康状况的日益流行,对非正式护理的需求正在增加,因此了解个人护理和继续护理的动机非常重要。本文报告了一项系统综述的发现,该综述研究了提供非正式护理的动机和意愿的决定因素。利用六个电子数据库和广泛的其他来源进行了系统的检索。纳入了2019年8月之前发表的105项定性研究,其中103项报告了个人和关系动机,以及支撑这些动机的背景因素。以理论为基础,运用主题综合法对文献进行综合。这项综合研究报告了三十年来世界各地的调查结果,其中包括来自各种健康状况下2500多名护理人员的数据。本文提出了关系主题、个人主题和语境主题。它强调了互惠、情感、家庭价值观和照顾义务的重要性。个人特征、寻找意义、疾病感知、护理的情境和时间方面也被认为是塑造护理动机和意愿并继续护理的重要因素。讨论了对理论、研究、政策和实践的启示。
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引用次数: 10
The relationship between sleep quality and quality of life in aging: a systematic review and meta-analysis. 老年人睡眠质量与生活质量的关系:系统回顾与荟萃分析。
IF 9.8 1区 心理学 Q1 PSYCHOLOGY, CLINICAL Pub Date : 2023-03-01 DOI: 10.1080/17437199.2021.1974309
Enrico Sella, Laura Miola, Enrico Toffalini, Erika Borella

This study examined the available literature concerning the association between sleep quality and quality of life (QoL) in autonomous older people with no sleep disorders. A systematic review and meta-analysis were conducted on studies identified in the PsycInfo, PubMed and Scopus databases that examined the associations between QoL and sleep quality in older adults. Our systematic literature search identified 23 studies concerning a total of 21,092 participants (range of mean ages: 58-79 years). The results showed that self-reported sleep quality, but not objective sleep quality, correlated positively with QoL with a moderate effect size (for self-reported sleep quality, the overall estimate of the average effect size was a Pearson's r = .28 [95% CI: .34, .23]; for objective sleep quality, it was r = .01 [.12, -.09]). This also applied to the main domains of QoL concerning physical and psychological health, social relationships and environmental aspects (the estimated average effect sizes ranged from Pearson's r = .13 to r = .35). These findings highlight the influence of sleep quality, and particularly of self-reported sleep quality, on QoL (as a whole and in its specific domains) in older adults with normal aging and no insomnia. This influence should therefore be investigated systematically when examining QoL.

本研究调查了关于无睡眠障碍的自主老年人睡眠质量与生活质量(QoL)之间关系的现有文献。对PsycInfo、PubMed和Scopus数据库中发现的研究进行了系统回顾和荟萃分析,这些研究调查了老年人生活质量和睡眠质量之间的关系。我们系统地检索了23项研究,共涉及21,092名参与者(平均年龄范围:58-79岁)。结果显示,自我报告的睡眠质量(而非客观睡眠质量)与生活质量呈正相关,且具有中等效应量(对于自我报告的睡眠质量,平均效应量的总体估计为Pearson’s r =)。28 [95% ci: .34, .23];客观睡眠质量r =。01(。12日,.09点)。这也适用于生活质量的主要领域,涉及身心健康、社会关系和环境方面(估计的平均效应大小从皮尔逊的r =。13至r = .35)。这些发现强调了睡眠质量,特别是自我报告的睡眠质量,对正常衰老且没有失眠的老年人的生活质量(整体及其特定领域)的影响。因此,在检查生活质量时,应系统地调查这种影响。
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引用次数: 19
The mode of delivery and content of communication strategies used in mandatory and non-mandatory biosimilar transitions: a systematic review with meta-analysis. 强制性和非强制性生物仿制药转换中使用的传播策略的传递模式和内容:一项带有荟萃分析的系统综述。
IF 9.8 1区 心理学 Q1 PSYCHOLOGY, CLINICAL Pub Date : 2023-03-01 DOI: 10.1080/17437199.2021.1970610
Chiara Gasteiger, Alfons A den Broeder, Sarah Stewart, Norina Gasteiger, Urte Scholz, Nicola Dalbeth, Keith J Petrie

Effective patient-provider communication is crucial to promote shared decision-making. However, it is unclear how to explain treatment changes to ensure patient acceptance, such as when transitioning from a bio-originator to a biosimilar. This review investigates communication strategies used to educate patients on transitioning to biosimilars and explores whether the willingness to transition and treatment persistence differs for the delivery (verbal or written) and the amount of information provided. MEDLINE, Embase, Scopus, and relevant conference databases were systematically searched. Communication strategies from 33 studies (88% observational cohort studies) published from 2012 to 2020 were synthesized and willingness to transition, persistence, and subjective adverse events explored. Patients only received information verbally in 11 studies. The remaining 22 studies also provided written information. Cost-saving was the main reason provided for the transition. Patients were most willing to transition when receiving written and verbal information (χ2 = 5.83, p = .02) or written information that only addressed a few (3-5) concerns (χ2 = 16.08, p < .001). There was no significant difference for persistence or subjective adverse events (p's > .05). Few randomized controlled trials have been conducted. Available data shows more willingness to transition when patients received written and verbal information. Initial documents should contain basic information and consultations or telephone calls used to address concerns.

有效的医患沟通对于促进共同决策至关重要。然而,目前尚不清楚如何解释治疗变化以确保患者接受,例如当从生物原创制药过渡到生物仿制药时。本综述调查了用于教育患者过渡到生物仿制药的沟通策略,并探讨了过渡的意愿和治疗持久性是否因传递(口头或书面)和提供的信息量而不同。系统检索MEDLINE、Embase、Scopus及相关会议数据库。我们综合了2012年至2020年发表的33项研究(88%为观察性队列研究)的沟通策略,并探讨了过渡意愿、持久性和主观不良事件。在11项研究中,患者仅获得口头信息。其余22项研究也提供了书面资料。节省费用是进行过渡的主要原因。当接受书面和口头信息(χ2 = 5.83, p = 0.02)或书面信息仅涉及少数(3-5)个问题时(χ2 = 16.08, p > 0.05),患者最愿意转换。很少进行随机对照试验。现有数据显示,当患者收到书面和口头信息时,他们更愿意转变。初始文件应包含基本信息和用于解决问题的咨询或电话。
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引用次数: 5
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