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Caring at Home for Children with Medical Complexity: A study on Family Caregivers' Burden, Fatigue, and Musculoskeletal Pain 医疗复杂性儿童的居家照护:家庭照护者负担、疲劳与肌肉骨骼疼痛的研究
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2025-11-19 DOI: 10.1016/j.pedn.2025.10.031
Gokcen Akyurek Ph.D. (Assoc. Prof.), Vera Tekin OT, Ezginur Gündoğmuş M.Sc., OT

Background

Children with medical complexity (CMC) require intensive, long-term care involving multiple systems, medical technologies, and frequent hospitalizations. This shift of care responsibilities from hospitals to families has increased the physical and psychological burden on caregivers, particularly parents. While literature reports on psychological impacts, fewer studies have simultaneously addressed physical factors such as fatigue and musculoskeletal pain.

Methods

In this cross-sectional, descriptive comparative study based on self-report instruments, participants were divided into two groups: caregivers of children with special needs and medical complexity (Group 1, n = 62) and caregivers of children with special needs but without medical complexity (Group 2, n = 73). Participants were recruited through social media platforms targeting caregivers of children with special needs. Data were collected using a sociodemographic form, the BAKAS Care Impact Scale, the Fatigue Severity Scale (FSS), and the Extended Scandinavian Musculoskeletal System Questionnaire. Independent t-tests were used for intergroup comparisons (p < 0.05).

Results

Caregivers of children with medical complexity had significantly higher caregiver burden (p = 0.001) and fatigue levels (p = 0.029) compared to the other group. In both groups, the most common musculoskeletal complaint was low back pain, with a higher frequency and severity in Group 1. These results suggest that caregivers of medically complex children experience higher reported burden and fatigue.

Conclusion

The study highlights the multifaceted burden experienced by caregivers of CMC children, emphasizing the need for integrated support addressing both physical and emotional health. Ergonomic interventions, respite care access, and psychosocial supports are critical to reducing caregiver strain and ensuring sustainable caregiving.
背景:患有医疗复杂性(CMC)的儿童需要涉及多个系统、医疗技术和频繁住院的重症长期护理。这种护理责任从医院向家庭的转移增加了照顾者,特别是父母的身心负担。虽然文献报道了心理影响,但很少有研究同时涉及疲劳和肌肉骨骼疼痛等身体因素。方法:采用基于自我报告工具的横断面描述性比较研究,将参与者分为两组:有特殊需要和医疗复杂性儿童的照顾者(1组,n = 62)和有特殊需要但没有医疗复杂性儿童的照顾者(2组,n = 73)。参与者是通过社交媒体平台招募的,目标是有特殊需要的儿童的照顾者。使用社会人口统计表格、BAKAS护理影响量表、疲劳严重程度量表(FSS)和扩展斯堪的纳维亚肌肉骨骼系统问卷收集数据。使用独立t检验进行组间比较(p)结果:与其他组相比,医疗复杂性儿童的照顾者负担(p = 0.001)和疲劳水平(p = 0.029)显著高于其他组。在两组中,最常见的肌肉骨骼疾病是腰痛,第一组的频率和严重程度更高。这些结果表明,医疗复杂儿童的照顾者报告的负担和疲劳更高。结论:本研究突出了CMC儿童照顾者所经历的多方面负担,强调了对身心健康综合支持的需求。人体工程学干预措施、临时护理机会和社会心理支持对于减少护理人员压力和确保可持续护理至关重要。
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引用次数: 0
Comparing the effectiveness of cooling and vibrational cooling for pain and fear reduction during insulin injection in children with type 1 diabetes mellitus: A randomized controlled trial 比较冷却和振动冷却对1型糖尿病儿童胰岛素注射过程中疼痛和恐惧减少的效果:一项随机对照试验。
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2025-11-19 DOI: 10.1016/j.pedn.2025.11.021
Mine Nur Temuçin , Evrim Kızıler , Mehmet Boyraz

Purpose

This study compared the effectiveness of cooling (CoolSense) and vibrating cooling (Buzzy) in reducing pain and fear during insulin injections in children with type 1 diabetes mellitus (T1DM).

Method

This randomized controlled study was conducted in Türkiye from July 2023 to February 2024. Ninety children aged 6–10 years with newly diagnosed T1DM (≤2 weeks) receiving subcutaneous insulin were randomly assigned to Buzzy (n = 30), CoolSense (n = 30), or Control (n = 30) groups. Data were collected using the Child-Parent Information Form, Wong-Baker FACES (WBF), and Children's Fear Scale (CFS).

Results

The sample consisted of 53.3 % girls and 46.7 % boys, with a mean age of 8.01 ± 1.45 years. There were no significant differences in demographic or clinical characteristics between the groups prior to the intervention (p > .05). During insulin administration, pain and fear scores reported by children, parents, and observers were significantly lower in the CoolSense and Buzzy groups compared with the control group (p < .001). Post-hoc analyses revealed no statistically significant differences between the CoolSense and Buzzy groups in either pain or fear scores.

Conclusions

Both CoolSense and Buzzy effectively reduced pain and fear during insulin injections in children with T1DM, with no statistically significant difference between the two methods.
Implications to Practice: Given their proven effectiveness and child-friendly nature, pediatric nurses can incorporate either CoolSense or Buzzy into routine insulin administration to enhance children's comfort and minimize needle-related distress. Choice of method may depend on cost, accessibility, and patient preference.
目的:比较冷却(CoolSense)和振动冷却(Buzzy)在减轻1型糖尿病(T1DM)患儿胰岛素注射过程中的疼痛和恐惧的效果。方法:该随机对照研究于2023年7月至2024年2月在日本进行。90例6-10岁新诊断T1DM(≤2周)接受皮下胰岛素治疗的儿童随机分为Buzzy组(n = 30)、CoolSense组(n = 30)和Control组(n = 30)。采用亲子信息表、Wong-Baker FACES (WBF)和儿童恐惧量表(CFS)收集数据。结果:本组患者中女生占53.3%,男生占46.7%,平均年龄8.01±1.45岁。干预前两组患者的人口学和临床特征无显著差异(p < 0.05)。在胰岛素注射期间,CoolSense和Buzzy组儿童、家长和观察员报告的疼痛和恐惧评分均显著低于对照组(p)。结论:CoolSense和Buzzy均能有效减轻T1DM儿童胰岛素注射期间的疼痛和恐惧,两种方法之间无统计学差异。对实践的启示:鉴于其已证实的有效性和儿童友好的性质,儿科护士可以将CoolSense或Buzzy纳入常规胰岛素给药,以提高儿童的舒适度,并尽量减少针相关的痛苦。方法的选择可能取决于成本、可及性和患者偏好。
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引用次数: 0
Knowledge and attitudes among primary care pediatric nurse practitioners regarding the care of transgender patients 初级保健儿科护士从业人员对跨性别患者护理的知识和态度。
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2025-11-19 DOI: 10.1016/j.pedn.2025.11.003
Deborah Tuffield DNP, APRN, FNP-C, Natasha Smith-Holmquist DNP, APRN, CPNP-PC, Sherry J. McCormick DNP, APRN, FNP-BC, Melissa J. Benton PhD, RN

Purpose

Transgender patients report barriers to accessing care including lack of provider knowledge. This study assessed knowledge and attitudes regarding care of transgender patients among pediatric nurse practitioners.

Design and methods

This cross-sectional study recruited primary care pediatric nurse practitioners (N = 244) to answer an online survey between September 2024 and May 2025. Knowledge (5 items) and attitudes (10 items) were measured on a 5-point Likert scale. Higher scores indicated better knowledge and more positive attitudes.

Results

Mean scores reflected adequate knowledge (3.9 ± 0.61) and an overall positive attitude (3.59 ± 0.62). The majority of participants (74–91 %) demonstrated understanding of barriers to healthcare access and problems with discrimination, but less than half (33 %) were knowledgeable about health insurance problems. Sixty-nine percent were comfortable treating transgender patients, but only 36 % felt confident treating them. Additionally, 63 % were willing to be listed as transgender-friendly. Seventy-four percent were interested in education about transgender care and 58 % felt it should be mandatory. Age was negatively related to both knowledge and attitudes; years since licensure was negatively related only to attitudes; and highest degree earned was not related to either knowledge or attitudes. Older age predicted less comfort and confidence in treating transgender patients, less willingness to be listed as transgender-friendly, and less interest in education.

Conclusion

Pediatric nurse practitioners are generally knowledgeable and have positive attitudes, but report less confidence than expected, indicating the need for education.

Practice implications

Assessment of sexual orientation and gender identity should be routinely included on clinic intake forms.
目的:跨性别患者报告获得护理的障碍,包括缺乏提供者知识。本研究评估儿科执业护士对跨性别病人护理的知识和态度。设计和方法:本横断面研究招募了初级保健儿科护士从业人员(N = 244),在2024年9月至2025年5月期间接受了一项在线调查。知识(5项)和态度(10项)采用李克特5分制进行测量。分数越高,表明知识越丰富,态度越积极。结果:平均得分反映了充分的知识(3.9±0.61)和总体积极的态度(3.59±0.62)。大多数参与者(74- 91%)表示了解获得医疗保健的障碍和歧视问题,但不到一半(33%)了解健康保险问题。69%的人对治疗变性患者感到放心,但只有36%的人对治疗他们有信心。此外,63%的人愿意被列为跨性别友好者。74%的人对变性人护理教育感兴趣,58%的人认为这应该是强制性的。年龄与知识和态度均呈负相关;获得执照的年数仅与态度负相关;获得的最高学位与知识和态度无关。年龄越大,治疗跨性别患者的舒适度和信心就越低,被列为对跨性别者友好的意愿也越低,对教育的兴趣也越低。结论:儿科护士从业人员普遍知识渊博,态度积极,但报告的信心低于预期,表明需要进行教育。实践意义:性取向和性别认同的评估应该常规地包括在诊所的摄入表格中。
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引用次数: 0
Touch-based treatments and infantile colic - Parental perceptions of treatment outcomes related to infants' crying and sleeping 触摸治疗与婴儿绞痛——父母对婴儿哭泣和睡眠相关治疗结果的看法。
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2025-11-19 DOI: 10.1016/j.pedn.2025.11.014
Leena Hannula , Sandra Rinne , Tiina Väänänen , Pauliina Aarva , Juulia Suvilehto , Teemu Kemppainen

Purpose

This study aimed to demonstrate whether touch-based treatments decreased crying and improved sleep among infants suffering infantile colic symptoms. Parent-reported outcomes related to infant crying and sleep were analyzed for two touch-based treatment groups (osteopathy and reflexology), and an affective touch group, receiving three treatments sessions each, compared with a conventional care group.

Design and methods

A total of 177 infants diagnosed with colic enrolled, of whom 144 infants, 3–10 weeks old, participated in the study. Parents completed questionnaires before treatments, after the first session, one week after the third session, and three weeks following the third, final session. Primary outcomes were daily crying and sleep duration (in hours), reported for both the preceding 24 h and the preceding week. Mixed model regression analysis was used to compare outcome variations across groups. Secondary outcomes included parent-perceived effectiveness of the treatments on infant crying and sleep quality, measured using Likert scales.

Results

No statistically significant reductions in crying hours or increases in sleep hours were detected. However, parents perceived osteopathy and reflexology to be effective in reducing crying and improving sleep quality. All treatments were reported as safe, with no serious adverse events noted.

Conclusions

The results rely on parental recall, limiting detection of treatment effects. The discrepancy between the non-significant reduction in IC symptoms and the high perceived effectiveness highlights the value of family-centered approaches. Future research should use more precise measures of infant crying and sleep (e.g., diaries, mobile applications, actigraphy) and apply mixed-methods to explore effectiveness.
Registration: ISRCTN registry (ISRCTN15640779).
目的:本研究旨在证明基于触摸的治疗是否能减少婴儿绞痛症状的哭泣和改善睡眠。与传统护理组相比,父母报告的与婴儿哭泣和睡眠相关的结果被分析为两个基于触摸的治疗组(整骨疗法和反射疗法)和一个情感触摸组,每个组接受三次治疗。设计与方法:共纳入177例诊断为绞痛的婴儿,其中144例3-10周大的婴儿参与了研究。父母在治疗前、第一次治疗后、第三次治疗后一周、第三次治疗后三周完成问卷调查。主要结局是报告前24小时和前一周的每日哭泣和睡眠时间(以小时为单位)。采用混合模型回归分析比较各组间的结果差异。次要结果包括父母对婴儿哭泣和睡眠质量治疗的感知效果,使用李克特量表测量。结果:没有发现哭泣时间减少或睡眠时间增加的统计学意义。然而,家长认为整骨疗法和反射疗法在减少哭泣和改善睡眠质量方面是有效的。所有的治疗都是安全的,没有严重的不良事件。结论:结果依赖于家长回忆,限制了对治疗效果的检测。IC症状的无显著减少与高感知有效性之间的差异突出了以家庭为中心的方法的价值。未来的研究应该使用更精确的婴儿哭泣和睡眠测量(如日记、移动应用程序、活动记录仪),并采用混合方法来探索有效性。注册:ISRCTN注册表(ISRCTN15640779)。
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引用次数: 0
AI-enhanced, digital psychosocial interventions for pediatric developmental disabilities: A scoping review 儿童发育障碍人工智能增强的数字社会心理干预:范围审查。
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2025-11-18 DOI: 10.1016/j.pedn.2025.11.016
Shima Salahshoor RN, PhD Student, Kalyn M. Renbarger RN, PhD

Background

A variety of challenges exist to the well-being of children and adolescents with developmental disabilities (DDs). Barriers exist to traditional, in-person psychosocial services for many children and adolescents with DDs. Pediatric nurses often have limited time to provide psychosocial support to this population in the clinical setting. Artificial Intelligence (AI)-enhanced, digital psychosocial interventions can help fill this gap by providing tools that support emotional and mental health outside of brief clinical encounters.

Objective

This paper mapped the existing literature on the experiences of children and adolescents with DDs with AI-enhanced, digital psychosocial interventions, highlighting intervention types, psychosocial outcomes, challenges, and implications for pediatric nursing.

Methods

Using Arksey and O’Malley's scoping review framework, we searched APA PsycINFO, CINAHL, Embase, and PubMed (January 2015–July 2025) for peer-reviewed, English-language studies evaluating AI-enhanced digital psychosocial interventions for children/adolescents with DDs. Eligible interventions included chatbots, neurofeedback, serious games, and apps with adaptive algorithms.

Results

Seven studies met inclusion criteria, underscoring an early evidence base at the intersection of pediatric DDs, psychosocial care, and AI. Interventions improved quality of life, emotion regulation, language, and social communication, but challenges included participant dropouts, vocabulary mismatches, and technical issues (e.g., network failures).

Conclusion

Artificial intelligence-enhanced, digital psychosocial interventions show promise, but evidence is limited, fragmented, and focused mainly on autism spectrum disorder. Multicenter and cost-effectiveness studies are needed. Pediatric nurses can guide families in selecting and integrating these tools.
背景:发育性残疾儿童和青少年的福祉面临着各种各样的挑战。许多患有发育障碍的儿童和青少年在获得传统的、面对面的社会心理服务方面存在障碍。儿科护士通常在临床环境中为这一人群提供社会心理支持的时间有限。人工智能(AI)增强的数字社会心理干预措施可以通过提供在短暂临床接触之外支持情感和心理健康的工具,帮助填补这一空白。目的:本文对现有文献中关于儿童和青少年多动症患者使用人工智能增强的数字社会心理干预的经验进行了梳理,重点介绍了干预类型、社会心理结果、挑战和对儿科护理的影响。方法:使用Arksey和O'Malley的范围审查框架,我们检索了APA PsycINFO, CINAHL, Embase和PubMed(2015年1月- 2025年7月),以获得同行评议的英语研究,评估ai增强的数字社会心理干预对患有dd的儿童/青少年的影响。合格的干预措施包括聊天机器人、神经反馈、严肃游戏和带有自适应算法的应用程序。结果:7项研究符合纳入标准,强调了儿科dd、社会心理护理和人工智能交叉的早期证据基础。干预措施改善了生活质量、情绪调节、语言和社会沟通,但挑战包括参与者退出、词汇不匹配和技术问题(如网络故障)。结论:人工智能增强的数字社会心理干预显示出希望,但证据有限,支离破碎,并且主要集中在自闭症谱系障碍上。需要进行多中心和成本效益研究。儿科护士可以指导家庭选择和整合这些工具。
{"title":"AI-enhanced, digital psychosocial interventions for pediatric developmental disabilities: A scoping review","authors":"Shima Salahshoor RN, PhD Student,&nbsp;Kalyn M. Renbarger RN, PhD","doi":"10.1016/j.pedn.2025.11.016","DOIUrl":"10.1016/j.pedn.2025.11.016","url":null,"abstract":"<div><h3>Background</h3><div>A variety of challenges exist to the well-being of children and adolescents with developmental disabilities (DDs). Barriers exist to traditional, in-person psychosocial services for many children and adolescents with DDs. Pediatric nurses often have limited time to provide psychosocial support to this population in the clinical setting. Artificial Intelligence (AI)-enhanced, digital psychosocial interventions can help fill this gap by providing tools that support emotional and mental health outside of brief clinical encounters.</div></div><div><h3>Objective</h3><div>This paper mapped the existing literature on the experiences of children and adolescents with DDs with AI-enhanced, digital psychosocial interventions, highlighting intervention types, psychosocial outcomes, challenges, and implications for pediatric nursing.</div></div><div><h3>Methods</h3><div>Using Arksey and O’Malley's scoping review framework, we searched APA PsycINFO, CINAHL, Embase, and PubMed (January 2015–July 2025) for peer-reviewed, English-language studies evaluating AI-enhanced digital psychosocial interventions for children/adolescents with DDs. Eligible interventions included chatbots, neurofeedback, serious games, and apps with adaptive algorithms.</div></div><div><h3>Results</h3><div>Seven studies met inclusion criteria, underscoring an early evidence base at the intersection of pediatric DDs, psychosocial care, and AI. Interventions improved quality of life, emotion regulation, language, and social communication, but challenges included participant dropouts, vocabulary mismatches, and technical issues (e.g., network failures).</div></div><div><h3>Conclusion</h3><div>Artificial intelligence-enhanced, digital psychosocial interventions show promise, but evidence is limited, fragmented, and focused mainly on autism spectrum disorder. Multicenter and cost-effectiveness studies are needed. Pediatric nurses can guide families in selecting and integrating these tools.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"86 ","pages":"Pages 199-206"},"PeriodicalIF":2.3,"publicationDate":"2025-11-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145558135","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Self-compassion and secondary traumatic stress in pediatric oncology/hematology nurses 小儿肿瘤科/血液科护士的自我同情和继发性创伤应激。
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2025-11-17 DOI: 10.1016/j.pedn.2025.11.015
Tuğba Şahin Tokatlıoğlu , Perihan Güner

Background

Pediatric oncology/hematology nurses frequently witness the suffering and death of children, placing them at high risk for secondary traumatic stress. Self-compassion has emerged as a protective factor against psychological distress in healthcare professionals.

Methods

This descriptive correlational study included 115 nurses in pediatric oncology/hematology units at six hospitals in three major cities. Data were collected using a Personal Information Form, the Self-Compassion Scale, and the Secondary Traumatic Stress Scale. Data were analyzed using descriptive and multiple inferential statistical methods.

Results

Nurses reported moderate levels of secondary traumatic stress and self-compassion. A significant negative correlation was found between the total self-compassion scale and secondary traumatic stress scale scores (r = −0.46, indicating a moderate negative correlation, p < 0.01). Subscales of self-kindness, mindfulness, and common humanity were negatively associated with secondary traumatic stress. At the same time, self-judgment and isolation were positively correlated. Multiple regression analysis showed that self-compassion explained a significant portion of variance in secondary traumatic stress scores (R2 = 0.31, indicating that 31 % of the variance was explained, p < 0.001).

Discussion

The findings suggest that higher self-compassion, particularly self-kindness and mindfulness, may buffer nurses against the adverse effects of secondary trauma. Conversely, self-critical attitudes may heighten vulnerability. These results highlight pediatric oncology nurses' emotional burden and underscore the importance of psychological support.

Conclusion

Promoting self-compassion may help reduce secondary traumatic stress and improve well-being among pediatric oncology/hematology nurses. Interventions focused on self-compassion training could serve as a sustainable strategy to support nurses' mental health and care quality.
背景:儿科肿瘤学/血液学护士经常目睹儿童的痛苦和死亡,使他们处于继发性创伤应激的高风险中。自我同情已经成为医疗保健专业人员防止心理困扰的保护因素。方法:对3个主要城市6家医院儿科肿瘤科/血液科的115名护士进行描述性相关研究。数据采用个人信息表、自我同情量表和二次创伤压力量表收集。数据分析采用描述性和多重推理统计方法。结果:护士报告中等程度的继发性创伤应激和自我同情。总自我同情量表与继发性创伤应激量表得分呈显著负相关(r = -0.46,表明存在中度负相关,p 2 = 0.31,表明31%的方差被解释,p讨论:研究结果表明,较高的自我同情,特别是自我善良和正念,可以缓冲护士对继发性创伤的不良影响。相反,自我批评的态度可能会增加脆弱性。这些结果突出了儿科肿瘤护士的情感负担,强调了心理支持的重要性。结论:促进自我同情有助于减少小儿肿瘤科/血液科护士的继发性创伤应激,提高他们的幸福感。以自我同情训练为重点的干预措施可以作为支持护士心理健康和护理质量的可持续战略。
{"title":"Self-compassion and secondary traumatic stress in pediatric oncology/hematology nurses","authors":"Tuğba Şahin Tokatlıoğlu ,&nbsp;Perihan Güner","doi":"10.1016/j.pedn.2025.11.015","DOIUrl":"10.1016/j.pedn.2025.11.015","url":null,"abstract":"<div><h3>Background</h3><div>Pediatric oncology/hematology nurses frequently witness the suffering and death of children, placing them at high risk for secondary traumatic stress. Self-compassion has emerged as a protective factor against psychological distress in healthcare professionals.</div></div><div><h3>Methods</h3><div>This descriptive correlational study included 115 nurses in pediatric oncology/hematology units at six hospitals in three major cities. Data were collected using a Personal Information Form, the Self-Compassion Scale, and the Secondary Traumatic Stress Scale. Data were analyzed using descriptive and multiple inferential statistical methods.</div></div><div><h3>Results</h3><div>Nurses reported moderate levels of secondary traumatic stress and self-compassion. A significant negative correlation was found between the total self-compassion scale and secondary traumatic stress scale scores (<em>r</em> = −0.46, indicating a moderate negative correlation, <em>p</em> &lt; 0.01). Subscales of self-kindness, mindfulness, and common humanity were negatively associated with secondary traumatic stress. At the same time, self-judgment and isolation were positively correlated. Multiple regression analysis showed that self-compassion explained a significant portion of variance in secondary traumatic stress scores (R<sup>2</sup> = 0.31, indicating that 31 % of the variance was explained, <em>p</em> &lt; 0.001).</div></div><div><h3>Discussion</h3><div>The findings suggest that higher self-compassion, particularly self-kindness and mindfulness, may buffer nurses against the adverse effects of secondary trauma. Conversely, self-critical attitudes may heighten vulnerability. These results highlight pediatric oncology nurses' emotional burden and underscore the importance of psychological support.</div></div><div><h3>Conclusion</h3><div>Promoting self-compassion may help reduce secondary traumatic stress and improve well-being among pediatric oncology/hematology nurses. Interventions focused on self-compassion training could serve as a sustainable strategy to support nurses' mental health and care quality.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"86 ","pages":"Pages 191-198"},"PeriodicalIF":2.3,"publicationDate":"2025-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145551386","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Turkish adaptation and psychometric properties of caring ability of mother with preterm infant scale (CAMPIS) 用早产儿量表(CAMPIS)对母亲照顾能力的土耳其适应和心理测量特征进行研究。
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2025-11-17 DOI: 10.1016/j.pedn.2025.11.013
Ozge Karakaya Suzan , Murat Bektaş , Nursan Cinar , Hülya Karataş , Saleheh Tajalli

Background

This study aimed to adapt the Caring Ability of Mother with Preterm Infant Scale (CAMPIS) into Turkish and evaluate its psychometric properties.

Methods

This methodological and cross-sectional study was conducted with 210 mothers of premature infants in a NICU in Southeastern Türkiye between June and July 2025. Data were collected using a demographic form and the original CAMPIS. Translation procedures followed standard forward–backward techniques, with content validity evaluated by seven experts. Construct validity was examined via exploratory and confirmatory factor analyses (EFA and CFA). Reliability was assessed using Cronbach's alpha, McDonald's omega, item–total correlations, and split-half reliability.

Results

The content validity index was 0.98. EFA revealed a three-factor structure—cognitive ability, knowledge and skills abilities, and psychological ability—explaining 45.9 % of the variance. CFA confirmed the structure (χ2/df = 2.466, RMSEA = 0.084, GFI = 0.83, CFI = 0.81, IFI = 0.82, NFI = 0.73, TLI = 0.79), indicating acceptable model fit. CFA showed factor loadings ranging from 0.39 to 0.68 for cognitive ability, 0.39–0.75 for knowledge and skills abilities, and 0.25–0.94 for psychological ability. Cronbach's alpha was 0.792; McDonald's omega was 0.723. Split-half coefficients confirmed internal consistency. Item–total correlations ranged from 0.249 to 0.465. Significant differences between upper and lower 27 % groups supported discriminatory power (p < 0.001).

Conclusion

The Turkish version of CAMPIS is a valid and reliable instrument for assessing caregiving ability in mothers of preterm infants.

Implications to practice

The Turkish version of CAMPIS can be used by nurses and healthcare professionals to assess caregiving ability in mothers of preterm infants.
背景:本研究旨在将《早产儿母亲关爱能力量表》(CAMPIS)改编为土耳其语,并评估其心理测量特征。方法:本方法学和横断面研究是在2025年6月至7月期间对 kiye东南部地区NICU的210名早产儿母亲进行的。使用人口统计表格和原始CAMPIS收集数据。翻译程序遵循标准的向前-向后技术,内容有效性由7位专家评估。通过探索性和验证性因素分析(EFA和CFA)检验结构效度。信度评估采用Cronbach's alpha、McDonald's omega、项目-总相关性和二分信度。结果:内容效度指数为0.98。EFA揭示了认知能力、知识技能能力和心理能力的三因素结构,解释了45.9%的方差。CFA证实了该结构(χ2/df = 2.466, RMSEA = 0.084, GFI = 0.83, CFI = 0.81, IFI = 0.82, NFI = 0.73, TLI = 0.79),表明模型拟合可接受。CFA显示,认知能力的因子负荷为0.39 ~ 0.68,知识技能能力为0.39 ~ 0.75,心理能力为0.25 ~ 0.94。Cronbach’s alpha为0.792;麦当劳的omega是0.723。劈裂半系数证实了内部一致性。项目总相关性从0.249到0.465不等。结论:土耳其版本的CAMPIS是评估早产儿母亲照顾能力的有效可靠的工具。对实践的启示:土耳其版的CAMPIS可以被护士和医疗保健专业人员用来评估早产儿母亲的护理能力。
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引用次数: 0
Implementing family-centred rounds in paediatrics: A formative study using normalisation process theory 在儿科实施以家庭为中心的查房:使用正常化过程理论的形成性研究。
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2025-11-17 DOI: 10.1016/j.pedn.2025.11.017
Javier Roberti , Juan Pedro Alonso , Natali Ini , Facundo Jorro-Barón , Nicolás Monteverde , Ana Paula Rodríguez , Michelle Chismechian , Ezequiel García-Elorrio

Purpose

This study aimed to explore acceptability, appropriateness, and feasibility of implementing a nurse-led FCRs model to inform design and adaptation of a pilot intervention.

Methods

We conducted a formative qualitative study in two hospitals in Argentina and Uruguay, involving semi-structured interviews with physicians and nurses and focus groups with parents. Analysis was informed by Normalisation Process Theory. Participants were presented with information about proposed model, Batz paediatric guide drafts and I-PASS communication tool.

Results

Twenty-six professionals and 12 parents participated. Most participants recognised communication problems and valued the model's potential to improve coordination and family engagement. Significant barriers were misalignment between proposed rounds and current routines shaped by time pressures and fragmented handovers, hierarchical cultures that marginalise nursing contributions and logistical challenges, including mismatched nurse-physician schedules. The I-PASS tool was viewed positively for structuring interactions and roles. Parents appreciated the prospect of receiving guidance for participation. Parents expressed concerns that documentation requirements in the guide could feel burdensome, prompting revisions. Participants emphasised that successful implementation would require leadership support, mandatory participation, and cultural change to legitimise nursing leadership and family involvement.

Conclusion

Implementing nurse-led FCRs offers a promising strategy to improve communication and collaboration. Our findings highlight that this requires addressing well-established hierarchies and ensuring organisational commitment.

Implications for practice

Understanding the perspectives of both providers and parents is essential for adapting and implementing this model effectively. Implementation will require addressing work dynamics and ensuring institutional support. Our findings directly informed adaptation for the subsequent implementation.
目的:本研究旨在探讨实施护士主导的fcr模型的可接受性、适当性和可行性,为试点干预的设计和适应提供信息。方法:我们在阿根廷和乌拉圭的两家医院进行了一项形成性质的研究,包括对医生和护士的半结构化访谈以及对家长的焦点小组访谈。分析依据归一化过程理论。参与者被介绍了有关拟议模型、Batz儿科指南草案和I-PASS通信工具的信息。结果:26名专业人员和12名家长参与。大多数参与者认识到沟通问题,并重视该模式在改善协调和家庭参与方面的潜力。重要的障碍是由于时间压力和分散的交接造成的拟议查房和当前例行程序之间的不一致,边缘化护理贡献的等级文化以及后勤挑战,包括不匹配的护士-医生时间表。I-PASS工具在构建交互和角色方面被认为是积极的。家长们对接受参与指导的前景表示赞赏。家长们表示担心,指南中的文件要求可能会让人觉得负担过重,这促使了对指南的修订。与会者强调,成功的实施需要领导层的支持、强制性参与和文化变革,使护理领导和家庭参与合法化。结论:实施护士主导的fcr是一种很有前途的策略,可以改善沟通和协作。我们的研究结果强调,这需要解决既定的等级制度,并确保组织承诺。对实践的启示:理解提供者和家长的观点对于有效地适应和实施这一模式至关重要。实施将需要处理工作动态和确保机构支持。我们的发现直接为后续实施提供了适应信息。
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引用次数: 0
The effect of a mobile application robot developed for Pediatric diabetes management on children's quality of life, diabetes self-management, and physiological parameters 儿童糖尿病管理移动应用机器人对儿童生活质量、糖尿病自我管理和生理参数的影响。
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2025-11-17 DOI: 10.1016/j.pedn.2025.11.012
Merve Aşkın Ceran RN, PhD , Murat Bektaş RN, PhD , Beray Selver Eklioğlu MD, PhD

Purpose

This study aimed to evaluate the effectiveness of a mobile application robot developed to support Type 1 Diabetes Mellitus (T1DM) management in children, by examining its impact on children's quality of life, diabetes self-management, and physiological parameters such as HbA1c and blood glucose levels.

Design and methods

A pretest-posttest experimental design with control and intervention groups was used. The sample consisted of 60 children with T1DM, randomly assigned to intervention (n = 30) and control (n = 30) groups. Data were collected using the Socio-Demographic Data Form, Diabetes Self-Management Scale for Children and Parents, and the Quality of Life Scale in Children with Diabetes Mellitus. The intervention group received educational modules and personalized exercise videos via a mobile application robot. Data were analyzed using repeated measures MANOVA, one-way repeated measures ANOVA, and Bonferroni-corrected paired t-tests.

Results

There was no significant difference in socio-demographic characteristics between groups (p > .05). Significant improvements were found in diabetes self-management scores in children over time and for the group*time interaction (p < .05). While quality of life scores improved significantly over time (p < .05), there was no significant difference between groups or in group*time interaction (p > .05). Parental self-management scores showed significant differences over time, between groups, and in group*time interaction (p < .05). The intervention group also demonstrated significantly lower mean HbA1c and blood glucose levels over time (p < .05).

Conclusion

The mobile application robot positively influenced diabetes self-management and physiological parameters in children with T1DM. The intervention also enhanced parental involvement in diabetes management. These findings highlight the potential of mobile health technologies in pediatric diabetes care.

Practice implications

The integration of mobile application robots into routine diabetes education may enhance both self-management behaviors and metabolic control in children with T1DM. Healthcare professionals, particularly pediatric nurses, should consider incorporating such technologies to support comprehensive diabetes care and family-centered interventions. *: refers to group time interaction.
目的:本研究旨在评估支持儿童1型糖尿病(T1DM)管理的移动应用机器人的有效性,研究其对儿童生活质量、糖尿病自我管理以及HbA1c和血糖水平等生理参数的影响。设计与方法:采用前测后测试验设计,分为对照组和干预组。样本由60名T1DM患儿组成,随机分为干预组(n = 30)和对照组(n = 30)。采用社会人口学数据表、儿童及家长糖尿病自我管理量表和糖尿病儿童生活质量量表收集数据。干预组通过移动应用机器人接收教育模块和个性化锻炼视频。数据分析采用重复测量方差分析、单向重复测量方差分析和bonferroni校正配对t检验。结果:两组间社会人口学特征差异无统计学意义(p < 0.05)。随着时间的推移,儿童糖尿病自我管理得分和小组时间互动得分显著提高(p .05)。结论:移动应用机器人对T1DM儿童糖尿病自我管理和生理参数有积极影响。干预也提高了父母对糖尿病管理的参与。这些发现突出了移动医疗技术在儿科糖尿病护理中的潜力。实践意义:将移动应用机器人整合到常规糖尿病教育中,可以增强T1DM儿童的自我管理行为和代谢控制。医疗保健专业人员,特别是儿科护士,应考虑将这些技术纳入支持全面的糖尿病护理和以家庭为中心的干预措施。*:表示小组时间互动。
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引用次数: 0
Effectiveness of peer-based interventions among adolescents with type 1 diabetes: A systematic review 1型糖尿病青少年同伴干预的有效性:一项系统综述
IF 2.3 4区 医学 Q2 NURSING Pub Date : 2025-11-14 DOI: 10.1016/j.pedn.2025.11.005
Hilda N. Kumoji Ayamsegna, Jill M.G. Bally, Shelley Spurr, Shelley Peacock

Background and purpose

Pediatric type 1 diabetes (T1D) affects adolescents psychologically, socially, and physically necessitating self-management. Stress can arise from difficulties in performing selfcare activities. Peers play an important role in diabetes management and peer-based interventions have shown promise in improving health outcomes. This systematic review (SR) was conducted to assess the effectiveness of peer-based interventions (PBIs) in improving health outcomes among adolescents with T1D and identify future research areas.

Methods

Joanna Briggs Institute and the PRISMA 2020 checklist for SRs were used as guides to search seven databases, screen, critically appraise, analyze, and synthesize articles.

Results

The primary result was the lack of evidence on the effectiveness of PBIs in adolescents who have T1D. Of the three studies in this SR, two described PBIs that included effective peer interaction and education activities that enhanced learning and retention about diabetes management. These two PBIs resulted in positive clinical (HbA1c control), behavioural (self-care habits), and psychosocial (self-esteem, social support, and knowledge) outcomes. Additionally, a web-based, interactive treatment setting, Sugarsquare, was the only intervention that improved quality of life outcomes. Sugarsquare allowed adolescents with T1D to chat with one another and contact their nurses about everyday T1D management.

Implications and conclusion

Through completion of this SR we investigated a complex topic area and provided a synthesis of data indicated that PBIs are effective in supporting management of T1D and positive health outcomes. These results can be used by pediatric nurses for enhanced clinical practice and as a foundation to continue research to develop PBIs for adolescents living with T1D and their families.
背景和目的儿童1型糖尿病(T1D)影响青少年心理、社会和身体,需要自我管理。压力可能来自自我护理活动的困难。同伴在糖尿病管理中发挥着重要作用,基于同伴的干预措施已显示出改善健康结果的希望。本系统综述(SR)旨在评估基于同伴的干预(PBIs)在改善T1D青少年健康结果方面的有效性,并确定未来的研究领域。方法以joanna Briggs Institute和PRISMA 2020 SRs清单为指南,检索7个数据库,对文章进行筛选、批判性评价、分析和综合。结果主要结果是缺乏证据表明PBIs在青少年T1D患者中的有效性。在本报告的三项研究中,有两项研究描述了PBIs,包括有效的同伴互动和教育活动,以提高对糖尿病管理的学习和记忆。这两个PBIs导致了积极的临床(HbA1c控制)、行为(自我保健习惯)和社会心理(自尊、社会支持和知识)结果。此外,基于网络的交互式治疗设置Sugarsquare是唯一改善生活质量的干预措施。Sugarsquare允许患有T1D的青少年彼此聊天,并与他们的护士联系,讨论T1D的日常管理。意义和结论:通过完成本研究,我们调查了一个复杂的主题领域,并提供了综合数据,表明PBIs在支持T1D管理和积极健康结果方面是有效的。这些结果可以被儿科护士用于加强临床实践,并作为继续研究为患有T1D的青少年及其家庭开发PBIs的基础。
{"title":"Effectiveness of peer-based interventions among adolescents with type 1 diabetes: A systematic review","authors":"Hilda N. Kumoji Ayamsegna,&nbsp;Jill M.G. Bally,&nbsp;Shelley Spurr,&nbsp;Shelley Peacock","doi":"10.1016/j.pedn.2025.11.005","DOIUrl":"10.1016/j.pedn.2025.11.005","url":null,"abstract":"<div><h3>Background and purpose</h3><div>Pediatric type 1 diabetes (T1D) affects adolescents psychologically, socially, and physically necessitating self-management. Stress can arise from difficulties in performing selfcare activities. Peers play an important role in diabetes management and peer-based interventions have shown promise in improving health outcomes. This systematic review (SR) was conducted to assess the effectiveness of peer-based interventions (PBIs) in improving health outcomes among adolescents with T1D and identify future research areas.</div></div><div><h3>Methods</h3><div>Joanna Briggs Institute and the PRISMA 2020 checklist for SRs were used as guides to search seven databases, screen, critically appraise, analyze, and synthesize articles.</div></div><div><h3>Results</h3><div>The primary result was the lack of evidence on the effectiveness of PBIs in adolescents who have T1D. Of the three studies in this SR, two described PBIs that included effective peer interaction and education activities that enhanced learning and retention about diabetes management. These two PBIs resulted in positive clinical (HbA1c control), behavioural (self-care habits), and psychosocial (self-esteem, social support, and knowledge) outcomes. Additionally, a web-based, interactive treatment setting, Sugarsquare, was the only intervention that improved quality of life outcomes. Sugarsquare allowed adolescents with T1D to chat with one another and contact their nurses about everyday T1D management.</div></div><div><h3>Implications and conclusion</h3><div>Through completion of this SR we investigated a complex topic area and provided a synthesis of data indicated that PBIs are effective in supporting management of T1D and positive health outcomes. These results can be used by pediatric nurses for enhanced clinical practice and as a foundation to continue research to develop PBIs for adolescents living with T1D and their families.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"86 ","pages":"Pages 90-104"},"PeriodicalIF":2.3,"publicationDate":"2025-11-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145520778","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Journal of Pediatric Nursing-Nursing Care of Children & Families
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