Journal of Pediatric Nursing-Nursing Care of Children & Families最新文献

{"title":"Comparison of nutritional screening tools in pediatric oncology patients receiving chemotherapy treatment","authors":"Buket Meral ,&nbsp;Melda Kangalgil ,&nbsp;Erol Erduran","doi":"10.1016/j.pedn.2024.11.009","DOIUrl":"10.1016/j.pedn.2024.11.009","url":null,"abstract":"<div><h3>Background</h3><div>Malnutrition in pediatric oncology patients is a complex and multifactorial process, and the most appropriate screening tool to determine the risk of malnutrition is not clear. The study aimed to compare the Screening Tool for Risk on Nutritional Status and Growth (StrongKids), Pediatric Yorkhill Malnutrition Score (PYMS), Screening Tool for the Assessment of Malnutrition in Pediatrics (STAMP), which are commonly used in the general pediatric population, with the Nutrition Screening Tool for Childhood Cancer (SCAN), which was specifically validated for pediatric cancer, in determining the risk of malnutrition.</div></div><div><h3>Methods</h3><div>This cross-sectional study included 92 children aged 2–18 years who were admitted to the hematology-oncology unit and were receiving chemotherapy. The prevalence of nutritional risk was determined using the SCAN, StrongKids, PYMS, STAMP, and anthropometric assessments were performed. Sensitivity and specificity values, and the degree of agreement between screening tools were calculated.</div></div><div><h3>Result</h3><div>The SCAN identified nutritional risk in 69.6 % of the children. According to StrongKids, PYMS and STAMP, the high nutritional risk in children was 43.5 %, 56.5 % and 64.1 %, respectively. The sensitivity of STAMP (81.2 %) was higher than that of StrongKids (60.9 %) and PYMS (79.7 %). The specificity of StrongKids, PYMS and STAMP was 96.4 %, 96.4 %, and 75.0 %, respectively. There was substantial agreement between SCAN and PYMS.</div></div><div><h3>Conclusion</h3><div>PYMS has the best specificity and sensitivity in identifying patients at risk of malnutrition as determined by SCAN.</div></div><div><h3>Implications for practice</h3><div>In addition to anthropometric measurements, population-specific or highly sensitive nutritional screening tools should be used to determine the risk of malnutrition.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages 154-160"},"PeriodicalIF":2.1,"publicationDate":"2024-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142743856","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“She deserves the best. So how can I feed her the best?” Complementary food introduction practices among young mothers with a history of child maltreatment","authors":"Amara Channell Doig PhD MPH ,&nbsp;Leena Moses MSPH ,&nbsp;Michelle Jasczynski PhD, EdM ,&nbsp;Francia Ximena Marin Gutierrez MSW ,&nbsp;Kayla Bae BS ,&nbsp;Stefany Zeyala BS ,&nbsp;Chloe Bernardi MSW, LCSW-C ,&nbsp;Elizabeth M. Aparicio PhD, MSW, LCSW-C","doi":"10.1016/j.pedn.2024.11.022","DOIUrl":"10.1016/j.pedn.2024.11.022","url":null,"abstract":"<div><h3>Purpose</h3><div>To explore the practices, experiences, and needs of young mothers with a history of maltreatment who are introducing their children to complementary foods.</div></div><div><h3>Design and methods</h3><div>In-depth interviews (<em>n</em> = 9) were conducted with young mothers (19–23 yrs) who had childhood histories of abuse and neglect (maltreatment). Interviews were transcribed verbatim and analyzed using a five-step thematic analysis approach.</div></div><div><h3>Results</h3><div>Thematic analysis resulted in three themes: (1) Practices and sources of information, (2) Providing the best, and (3) Feeding challenges. Participants' primary sources of nutrition information were family or foster parents and Special Supplemental Nutrition Program for Women, Infants, and Children (WIC) educators. Participants expressed wanting to give their children healthy food and to change the cycle by not repeating some of their own childhood food experiences. Finally, participants sometimes struggled with food affordability.</div></div><div><h3>Conclusions</h3><div>The study highlights the need for additional support for young maltreated mothers, including access to healthy foods and education about infant feeding.</div></div><div><h3>Practice implications</h3><div>Young maltreated mothers are in need of trauma-informed and strengths-based complementary feeding information and support with basic needs. Universal trauma-informed care has the potential to prevent re-traumatization and improve patient care and nutrition education.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages 147-153"},"PeriodicalIF":2.1,"publicationDate":"2024-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142743855","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A qualitative study on the experiences of caregivers of children undergoing surgery for congenital heart diseases","authors":"Eda Ayten Kankaya ,&nbsp;Nazife Gamze Özer Özlü ,&nbsp;Nihal Müezzinler Evsine","doi":"10.1016/j.pedn.2024.11.016","DOIUrl":"10.1016/j.pedn.2024.11.016","url":null,"abstract":"<div><h3>Objective</h3><div>This study explores the experiences of caregivers of pediatric cardiac surgery patients, aiming to deepen understanding of their role and improve the caregiving process.</div></div><div><h3>Methods</h3><div>A qualitative, phenomenological approach was employed using individual, semi-structured interviews with a heterogeneous sample of caregivers (both mothers and fathers) of children who had undergone surgery for congenital heart disease. Interviews were conducted face-to-face from June 2023 to May 2024, following Creswell's interview techniques. Data collection and analysis were performed simultaneously using MAXQDA software.</div></div><div><h3>Results</h3><div>Participants included caregivers of children aged 2 months to 17 years, with caregivers themselves aged 25 to 50 years. Most children had undergone surgery for congenital heart valve disease, with surgeries ranging from one to three. Three main themes and nine sub-themes were identified: (1) “Comprehensive health journey” described caregivers' experiences from diagnosis through treatment and their interactions with healthcare professionals; (2) “Challenges” encompassed social isolation, financial strain, work-life balance issues, and the impact on the education process; and (3) “Uncertainty” captured caregivers' anxiety about the future and concerns regarding home care.</div></div><div><h3>Conclusion</h3><div>The findings offer valuable insights into the challenges and needs of caregivers in the pediatric cardiac surgery context, highlighting areas where support services and interventions could be beneficial.</div></div><div><h3>Implications to practice</h3><div>The study emphasizes the importance of healthcare professionals providing caregivers with clear information and empathetic support, which can enhance both caregiver well-being and patient outcomes.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages 137-146"},"PeriodicalIF":2.1,"publicationDate":"2024-11-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142743854","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Performance analysis and science mapping of family resilience research in the context of children and adolescents: A bibliometric study","authors":"Haktan Demircioğlu PhD ,&nbsp;Emin Demir PhD","doi":"10.1016/j.pedn.2024.11.014","DOIUrl":"10.1016/j.pedn.2024.11.014","url":null,"abstract":"<div><h3>Problem</h3><div>The present study explores research on family resilience in the context of children and adolescents, as well as studies covering all family members, and examines the conceptual, intellectual, and social structures of the research through bibliometric analysis.</div></div><div><h3>Materials and methods</h3><div>We carried out the search procedure on the abstracts of papers indexed to Social Science Citation Index (SSCI), Science Citation Index Expanded (SCI-E), Emerging Sources Citation Index (ESCI), and Arts &amp; Humanities Citation Index (AHCI) within the Web of Science (WoS) database.</div></div><div><h3>Results</h3><div>We could access 407 papers since 1994 pertaining to the topic of family resilience in the context of children and adolescents. These records are distributed across 245 sources, and we calculated the annual growth rate of the research to be 14.49. The United States of America seems to lead the research field, followed by China and Canada. Moreover, we present findings regarding the conceptual, intellectual, and social structures of the selected research.</div></div><div><h3>Conclusion</h3><div>We conclude that family resilience is an important issue in the context of children and adolescents. In this sense, our findings would provide a foundation for further investigation into family resilience in the mentioned context. Finally, we anticipate that our results will contribute to evidence-based policies concerning family resilience in the context of children and adolescents.</div></div><div><h3>Practical implications</h3><div>The study offers a comprehensive view of family resilience in the context of children and adolescents, particularly in the domain of health. Furthermore, it provides insights into bibliometric analysis.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages 100-107"},"PeriodicalIF":2.1,"publicationDate":"2024-11-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142743853","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Identification of risk factors for emergence delirium in children undergoing magnetic resonance imaging","authors":"Lydia Merkel BSN, RN, CPN ,&nbsp;Mary Drouillard BSN, RN, CCRN, CPN, CRN ,&nbsp;Shirley Wiggins PhD, RN ,&nbsp;Leeza Struwe PhD, MSN, RN ,&nbsp;Kaeli Samson MA, MPH","doi":"10.1016/j.pedn.2024.11.011","DOIUrl":"10.1016/j.pedn.2024.11.011","url":null,"abstract":"<div><h3>Purpose</h3><div>Emergence delirium (ED) remains an ongoing concern for children undergoing sedation/anesthesia. The purpose of this study was to identify risk factors for ED in a population of children from two to seven years of age undergoing sedation/anesthesia for magnetic resonance imaging.</div></div><div><h3>Design and methods</h3><div>This was a descriptive, observational study taking place in a free-standing midwestern pediatric hospital. The Child Induction Behavioral assessment (CIBA) and the Amsterdam Preoperative Anxiety and Information Scale (APAIS) were used to assess child/parent anxiety. The presence of ED was documented using the Pediatric Anesthesia Emergence Delirium (PAED) scale. Associations between ED demographic and clinical characteristics were assessed using Chi-square and Wilcoxon Rank Sum tests.</div></div><div><h3>Results</h3><div>Of the 136 children who underwent sedation/anesthesia for MRI, 23 (16.9 %) experienced ED. Although not significant, children who received the pre-medication midazolam experienced an increased incidence of ED (25.6 %) compared to those who did not (13.4 %, <em>p</em> = 0.09). Children who experienced ED took a significantly shorter time to arouse from sedation/anesthesia (median = 8 min) compared to those who did not experience ED (median = 15 min, <em>p</em> &lt; 0.0001).</div></div><div><h3>Conclusions</h3><div>A shorter post-procedural arousal time was a significant risk factor associated with ED in this sample of children undergoing MRI.</div></div><div><h3>Implications</h3><div>It is unclear which pre-procedural factors predict children who will experience ED. There is a need for interdisciplinary research to identify interventions to decrease the incidence of pediatric ED. More research is needed to support the development of interventions to best support the safety of the child experiencing ED.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages 129-136"},"PeriodicalIF":2.1,"publicationDate":"2024-11-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142724034","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Identifying missed care in pediatric nursing: A scoping review","authors":"Marina Maffeo RN, MSN ,&nbsp;Eustachio Parente RN, MSN ,&nbsp;Daniele Ciofi RN, MSN, PhD","doi":"10.1016/j.pedn.2024.11.017","DOIUrl":"10.1016/j.pedn.2024.11.017","url":null,"abstract":"<div><h3>Problem</h3><div>Missed nursing care (MNC) refers to required patient care that is omitted or delayed. Commonly missed elements include ambulation, turning, feeding, patient education, discharge planning, emotional support, hygiene, documentation, and patient surveillance. Key reasons for MNC are insufficient staffing, poor resource utilization, time constraints, lack of teamwork, ineffective delegation, habitual practices, and denial. MNC links inadequate work environments and staffing to poor clinical outcomes, especially affecting efficiency in pediatric settings.</div></div><div><h3>Objective</h3><div>To describe missed nursing care in pediatrics and to identify the most frequently missed categories of nursing care and summarize the reasons for this.</div></div><div><h3>Eligibility criteria</h3><div>Any quantitative study which reported on any combination of categories, reason and factors associated with missed nursing care within pediatric settings and which was published in English, full-text available and studies that collected variables on the structure and process of missed nursing care in pediatrics.</div></div><div><h3>Sample</h3><div>The following databases were searched: PubMed, Embase, CINAHL and Scopus with no time limits.</div></div><div><h3>Results</h3><div>Missed nursing care (MNC) is influenced by workload, work environment, and staffing levels. A higher patient-to-nurse ratios significantly increase MNC. Better work environments correlate with fewer missed care activities, but frequent interruptions and unexpected patient volume spikes remain major issues. Commonly missed activities include oral care, routine bathing, and adherence to infection protocols.</div></div><div><h3>Conclusion</h3><div>Addressing MNC requires strategic staffing, improved work environments, targeted interventions, and continuous education to enhance care quality. The studies collectively highlight the complexity of missed nursing care and its dependence on various factors including workload, work environment, and nurse characteristics.</div></div><div><h3>Implication</h3><div>Developing and validating pediatric-specific assessment tools and studying factors like workload, staff training, and work environment are crucial for addressing MNC in these settings. More research is needed to understand MNC in pediatric settings, focusing on specific challenges and needs.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages 115-120"},"PeriodicalIF":2.1,"publicationDate":"2024-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142704367","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Can an increase in nursing care complexity raise the risk of intra-hospital and intensive care unit transfers in children? A retrospective observational study","authors":"Manuele Cesare RN, PhD ,&nbsp;Antonello Cocchieri RN, PhD","doi":"10.1016/j.pedn.2024.11.015","DOIUrl":"10.1016/j.pedn.2024.11.015","url":null,"abstract":"<div><h3>Introduction</h3><div>Intra-hospital patient transfers (IPTs) and transfers to intensive care units (ICUs) are high-risk events in pediatric care. Nursing care complexity, reflected by nursing diagnoses (NDs) and nursing actions (NAs), may influence the frequency of these transfers. This study explores the association between nursing care complexity and IPTs, including ICU transfers, in hospitalized children.</div></div><div><h3>Materials and methods</h3><div>A retrospective observational study was conducted at a tertiary care university hospital in Italy. Data from 1013 children aged 2 to 12 years were collected from electronic health records. Sociodemographic, clinical, and nursing data, including NDs and NAs, were analyzed. Latent Class Analysis classified nursing care complexity, while backward elimination regression and binary logistic regression identified predictors of IPTs and ICU transfers.</div></div><div><h3>Results</h3><div>Significant positive correlations were found between IPTs and both NDs (r_s = 0.326, <em>p</em> &lt; 0.001) and NAs (r_s = 0.428, <em>p</em> &lt; 0.001). Key predictors of IPTs included Diagnosis Related Groups (DRG) weight, total comorbidities, surgical DRG, the number of medications used, and high nursing care complexity. ICU-transferred patients had significantly higher nursing care complexity (6.54 vs. 3.46 NDs, <em>p</em> &lt; 0.001; 31 vs. 16 NAs, <em>p</em> &lt; 0.001). High nursing care complexity increased the likelihood of ICU transfer by 18 times (OR = 18.413, p &lt; 0.001).</div></div><div><h3>Conclusion</h3><div>Nursing care complexity strongly influences IPTs and ICU transfers. Close monitoring of patients with high nursing care complexity is essential to anticipate transfers and reduce clinical risks.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages 91-99"},"PeriodicalIF":2.1,"publicationDate":"2024-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142724017","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Digital addiction: Are children in danger? Are parents aware?","authors":"Fatma Yilmaz Kurt RN, PhD,&nbsp;Berivan Öner,&nbsp;Ayfer Bulut","doi":"10.1016/j.pedn.2024.11.018","DOIUrl":"10.1016/j.pedn.2024.11.018","url":null,"abstract":"<div><h3>Purpose</h3><div>To determine the digital game addiction levels of secondary school students and to examine the parental awareness against digital game addiction levels of students.</div></div><div><h3>Design and methods</h3><div>This is a descriptive and correlational study. The population of the study consisted of students in a secondary school and 392 students were included in the study. The data were collected using the “Digital Parenting Awareness Scale (DPAS),” and “Digital Game Addiction Scale for Children (DGAS-child form). In the study, Kurtosis and Skewness coefficients were used for normal distribution; mean, standard deviation, percentage, and frequency were used to evaluate quantitative data; and Pearson chi-square analysis was used to make correlational inferences.</div></div><div><h3>Result</h3><div>The DGAS mean score of the students was 47.31 ± 16.19. The results of the study showed that the parents had high level of digital awareness. It was found that the students' DGAS mean score had a weak positive correlation with RM subscale of DPAS and a moderate positive correlation with DN subscale of DPAS. DGAS mean score had a weak negative correlation with EU and PR subscales of DPAS. Parents-children's age did not affect the levels of DGAS and DPAS.</div></div><div><h3>Conclusion</h3><div>Raising parents' digital awareness reduces digital game addiction in their children.</div></div><div><h3>Practical implications</h3><div>One of the most important roles of nurses is education. Parent trainings for children to use digital devices correctly and efficiently contribute to improving digital awareness of parents and protecting/promoting child health.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages 121-128"},"PeriodicalIF":2.1,"publicationDate":"2024-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142724018","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The development of sudden infant death syndrome awareness scale-mother form and examination of its psychometric properties","authors":"Hamide Zengin ,&nbsp;Büşra Yolcu ,&nbsp;Öznur Tiryaki","doi":"10.1016/j.pedn.2024.11.019","DOIUrl":"10.1016/j.pedn.2024.11.019","url":null,"abstract":"<div><h3>Purpose</h3><div>This study aimed to develop the “Sudden Infant Death Syndrome Awareness Scale-Mother Form” (SIDSAS-MF) and assess its psychometric properties.</div></div><div><h3>Design and methods</h3><div>The methodological study involved mothers (<em>n</em> = 450) with infants aged 0–12 months. Data were collected using a socio-demographic information form and the draft of the SIDSAS-MF. Factor analysis and reliability analyses were conducted to assess the data.</div></div><div><h3>Results</h3><div>Exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) of the scale revealed a structure consisting of six items and two sub-dimensions. The factor loadings of the scale were found to be above 0.30. Fit indices following CFA were achieved at excellent levels. Both McDonald's omega and Cronbach's alpha values for each sub-dimension of the scale exceeded 0.6. Furthermore, the correlation values of the items with the total factor score ranged from 0.661 to 0.839.</div></div><div><h3>Conclusions</h3><div>The study concluded that the six-item form of the SIDSAS-MF is a valid and reliable measurement tool for mothers with infants aged 0–12 months in the Turkish population.</div></div><div><h3>Practical implications</h3><div>Midwives and nurses can use this scale in their clinical training to determine the level of awareness mothers have towards SIDS. It is also recommended that the developed scale should be adapted to different cultures.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages 108-114"},"PeriodicalIF":2.1,"publicationDate":"2024-11-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142705491","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effects of hospital treatment for congenital heart defects on mother-infant bonding, maternal stress, and parenting","authors":"Belinda Besley,&nbsp;Sasha J. Davies,&nbsp;James Donnelly","doi":"10.1016/j.pedn.2024.11.012","DOIUrl":"10.1016/j.pedn.2024.11.012","url":null,"abstract":"<div><h3>Background</h3><div>Infants with a Congenital Heart Defect (CHD) are now surviving longer with more medical treatment available. Many of these infants undergo hospitalisation for life-sustaining procedures in their first seven months. However, barriers to bonding and the psychological burden on parents while caring for an infant during this time can cause issues for the child-parent relationship. This study aimed to assess links among intensive care factors, maternal stress, the Mother-Infant Bond (MIB) and parenting in these mother-infant dyads.</div></div><div><h3>Design and methods</h3><div>A convenience sample of 148 mothers of CHD children was collected via the Heart Kids Facebook page. An anonymous Qualtrics survey of demographic, hospital experience, MIB, maternal stress and parenting variables was completed retrospectively by mothers of infants with CHD.</div></div><div><h3>Findings</h3><div>The results indicated that MIB and maternal stress were positively and strongly correlated. Hospital experiences of breastfeeding, staff support required for handling the infant, and prolonged separation were associated with both maternal stress and poorer quality MIB. Maternal past experiences of being parented with care was negatively correlated with maternal stress and MIB difficulties. Time of diagnosis and current parenting style were unrelated to any other variable. Testing the effects of barriers to infant contact and the effect of cardiac surgery highlighted some challenges in assessing these features of care.</div></div><div><h3>Conclusion</h3><div>Results indicated that postpartum mothers living through the traumatic experience of supporting their infant while they received treatment for CHD need more individualised psychological and social support to promote positive psychological outcomes for the mother-infant dyad.</div></div><div><h3>Practice implications</h3><div>Healthcare providers should prioritise mental health support and create opportunities for mothers of infants with congenital heart disease (CHD) to engage with their babies, even in intensive care settings, to reduce stress and improve mother-child bonding. Given that breastfeeding can unexpectedly increase maternal stress in these environments, flexible feeding alternatives and realistic guidance should be offered. Additionally, reflective parenting education programs should help mothers understand how their own upbringing influences their parenting approaches during this critical period.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages 83-90"},"PeriodicalIF":2.1,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142696042","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}