Wikipedia has been the poster child for large-scale online open collaboration while few other online open collaboration initiatives have achieved similar success. How did Wikipedians do it? Besides the technical infrastructure, what social dynamics and processes are critical to its success? This essay reviews 217 articles that examined aspects of the behaviors of Wikipedia editors and the processes through which they coordinate and collaborate. Using the Input-Mediator-Output-Input model (IMOI) as the organizing framework, we summarized the key insights in an integrative review. The input factors include editors, their motivations, and the tools they use to support their work. The mediating factors include coordination, governance, leadership, conflict, newcomer socialization, and roles. The outcome focuses on measuring and predicting contribution quantity and quality. We hope our work serves as a road map for researchers who are interested in Wikipedia to learn about prior research and identify future research directions.
{"title":"How Did They Build the Free Encyclopedia? A Literature Review of Collaboration and Coordination among Wikipedia Editors","authors":"Yuqing Ren, Haifeng Zhang, Robert E. Kraut","doi":"10.1145/3617369","DOIUrl":"https://doi.org/10.1145/3617369","url":null,"abstract":"Wikipedia has been the poster child for large-scale online open collaboration while few other online open collaboration initiatives have achieved similar success. How did Wikipedians do it? Besides the technical infrastructure, what social dynamics and processes are critical to its success? This essay reviews 217 articles that examined aspects of the behaviors of Wikipedia editors and the processes through which they coordinate and collaborate. Using the Input-Mediator-Output-Input model (IMOI) as the organizing framework, we summarized the key insights in an integrative review. The input factors include editors, their motivations, and the tools they use to support their work. The mediating factors include coordination, governance, leadership, conflict, newcomer socialization, and roles. The outcome focuses on measuring and predicting contribution quantity and quality. We hope our work serves as a road map for researchers who are interested in Wikipedia to learn about prior research and identify future research directions.","PeriodicalId":50917,"journal":{"name":"ACM Transactions on Computer-Human Interaction","volume":" ","pages":""},"PeriodicalIF":3.7,"publicationDate":"2023-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43324434","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"计算机科学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Camille Nadal, Caroline Earley, Ángel Enrique, C. Sas, D. Richards, Gavin Doherty
Self-monitoring of mood and lifestyle habits is the cornerstone of many therapies, but it is still hindered by persistent issues including inaccurate records, gaps in the monitoring, patient burden, and perceived stigma. Smartwatches have potential to deliver enhanced self-reports, but their acceptance in clinical mental health settings is unexplored and rendered difficult by a complex theoretical landscape and need for a longitudinal perspective. We present the Mood Monitor smartwatch application for mood and lifestyle habits self-monitoring. We investigated patient acceptance of the app within a routine 8-week digital therapy. We recruited 35 patients of the UK’s National Health Service and evaluated their acceptance through three online questionnaires and a post-study interview. We assessed the clinical feasibility of the Mood Monitor by comparing clinical, usage, and acceptance metrics obtained from the 35 patients with smartwatch with those from an additional 34 patients without smartwatch (digital treatment as usual). Findings showed that the smartwatch app was highly accepted by patients, revealed which factors facilitated and impeded this acceptance, and supported clinical feasibility. We provide guidelines for the design of self-monitoring on smartwatch and reflect on the conduct of HCI research evaluating user acceptance of mental health technologies.
{"title":"Patient Acceptance of Self-Monitoring on Smartwatch in a Routine Digital Therapy: a Mixed-Methods Study","authors":"Camille Nadal, Caroline Earley, Ángel Enrique, C. Sas, D. Richards, Gavin Doherty","doi":"10.1145/3617361","DOIUrl":"https://doi.org/10.1145/3617361","url":null,"abstract":"Self-monitoring of mood and lifestyle habits is the cornerstone of many therapies, but it is still hindered by persistent issues including inaccurate records, gaps in the monitoring, patient burden, and perceived stigma. Smartwatches have potential to deliver enhanced self-reports, but their acceptance in clinical mental health settings is unexplored and rendered difficult by a complex theoretical landscape and need for a longitudinal perspective. We present the Mood Monitor smartwatch application for mood and lifestyle habits self-monitoring. We investigated patient acceptance of the app within a routine 8-week digital therapy. We recruited 35 patients of the UK’s National Health Service and evaluated their acceptance through three online questionnaires and a post-study interview. We assessed the clinical feasibility of the Mood Monitor by comparing clinical, usage, and acceptance metrics obtained from the 35 patients with smartwatch with those from an additional 34 patients without smartwatch (digital treatment as usual). Findings showed that the smartwatch app was highly accepted by patients, revealed which factors facilitated and impeded this acceptance, and supported clinical feasibility. We provide guidelines for the design of self-monitoring on smartwatch and reflect on the conduct of HCI research evaluating user acceptance of mental health technologies.","PeriodicalId":50917,"journal":{"name":"ACM Transactions on Computer-Human Interaction","volume":" ","pages":""},"PeriodicalIF":3.7,"publicationDate":"2023-08-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44822284","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"计算机科学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This study explores how gaze visualization in virtual spaces facilitates the initiation of informal communication. Three styles of gaze cue visualization (arrow, bubbles, and miniature avatar) with two types of gaze behavior (one-sided gaze and joint gaze) were evaluated. 96 participants used either a non-visualized gaze cue or one of the three visualized gaze cues. The results showed that all visualized gaze cues facilitated the initiation of informal communication more effectively than the non-visualized gaze cue. For one-sided gaze, overall, bubbles had more positive effects on the gaze receiver's behaviors and experiences than the other two visualized gaze cues, although the only statistically significant difference was in the verbal reaction rates. For joint gaze, all three visualized gaze cues had positive effects on the receiver's behaviors and experiences. The design implications of the gaze visualization and the confederate-based evaluation method contribute to research on informal communication and social virtual reality.
{"title":"How Gaze Visualization Facilitates Initiation of Informal Communication in 3D Virtual Spaces","authors":"Junko Ichino, Masahiro Ide, Takehito Yoshiki, Hitomi Yokoyama, Hirotoshi Asano, Hideo Miyachi, Daisuke Okabe","doi":"10.1145/3617368","DOIUrl":"https://doi.org/10.1145/3617368","url":null,"abstract":"This study explores how gaze visualization in virtual spaces facilitates the initiation of informal communication. Three styles of gaze cue visualization (arrow, bubbles, and miniature avatar) with two types of gaze behavior (one-sided gaze and joint gaze) were evaluated. 96 participants used either a non-visualized gaze cue or one of the three visualized gaze cues. The results showed that all visualized gaze cues facilitated the initiation of informal communication more effectively than the non-visualized gaze cue. For one-sided gaze, overall, bubbles had more positive effects on the gaze receiver's behaviors and experiences than the other two visualized gaze cues, although the only statistically significant difference was in the verbal reaction rates. For joint gaze, all three visualized gaze cues had positive effects on the receiver's behaviors and experiences. The design implications of the gaze visualization and the confederate-based evaluation method contribute to research on informal communication and social virtual reality.","PeriodicalId":50917,"journal":{"name":"ACM Transactions on Computer-Human Interaction","volume":" ","pages":""},"PeriodicalIF":3.7,"publicationDate":"2023-08-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45286912","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"计算机科学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
E. Hornecker, T. Hogan, Uta Hinrichs, Rosa Van Koningsbruggen
Although physical artifacts that represent data have been used for centuries, the research field –known as data physicalization– has only recently gained traction. Compared to data visualization, there is no established vocabulary for analysing and discussing the properties of physicalizations. Through a grounded analysis of examples and literature, we propose a comprehensive design vocabulary, which consist of three separate, but connected parts: ‘explicit variables’, ‘implicit properties’, and ‘consequential aspects’. Explicit variables build on visual variables known from visualization and extend it to account for physicalization’s multi-modal nature. Implicit properties concern elements which are central to the design intention and user experience of physicalizations, yet are not a result of ‘explicit’ encoding strategies. Finally, consequential aspects refer to unintentional effects of design decisions, that influence how a physicalization is experienced. Our work illustrates how physicalizations incorporate opportunities and challenges that are not afforded in other data representations, such as embodiment and ‘imagined touch’. With this, we contribute to generating theory on physicalization. Our design vocabulary can support (1) creators through informing their design processes and highlighting design strategies, (2) educators, and (3) academics and practitioners to analyse existing physicalizations, and reflect on the impact of design decisions on interpretation and experience.
{"title":"A Design Vocabulary for Data Physicalization","authors":"E. Hornecker, T. Hogan, Uta Hinrichs, Rosa Van Koningsbruggen","doi":"10.1145/3617366","DOIUrl":"https://doi.org/10.1145/3617366","url":null,"abstract":"Although physical artifacts that represent data have been used for centuries, the research field –known as data physicalization– has only recently gained traction. Compared to data visualization, there is no established vocabulary for analysing and discussing the properties of physicalizations. Through a grounded analysis of examples and literature, we propose a comprehensive design vocabulary, which consist of three separate, but connected parts: ‘explicit variables’, ‘implicit properties’, and ‘consequential aspects’. Explicit variables build on visual variables known from visualization and extend it to account for physicalization’s multi-modal nature. Implicit properties concern elements which are central to the design intention and user experience of physicalizations, yet are not a result of ‘explicit’ encoding strategies. Finally, consequential aspects refer to unintentional effects of design decisions, that influence how a physicalization is experienced. Our work illustrates how physicalizations incorporate opportunities and challenges that are not afforded in other data representations, such as embodiment and ‘imagined touch’. With this, we contribute to generating theory on physicalization. Our design vocabulary can support (1) creators through informing their design processes and highlighting design strategies, (2) educators, and (3) academics and practitioners to analyse existing physicalizations, and reflect on the impact of design decisions on interpretation and experience.","PeriodicalId":50917,"journal":{"name":"ACM Transactions on Computer-Human Interaction","volume":" ","pages":""},"PeriodicalIF":3.7,"publicationDate":"2023-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41744624","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"计算机科学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
N. Gerber, Alina Stöver, Justin Peschke, Verena Zimmermann
Legal frameworks rely on users to make an informed decision about data collection, e.g., by accepting or declining the use of tracking technologies. In practice, however, users hardly interact with tracking consent notices on a deliberate website per website level, but usually accept or decline optional tracking technologies altogether in a habituated behavior. We explored the potential of three different nudge types (color highlighting, social cue, timer) and default settings to interrupt this auto-response in an experimental between-subject design with 167 participants. We did not find statistically significant differences regarding the buttons clicked. Our results showed that opt-in default settings significantly decrease tracking technology use acceptance rates. These results are a first step towards understanding the effects of different nudging concepts on users’ interaction with tracking consent notices.
{"title":"Don’t accept all and continue: Exploring nudges for more deliberate interaction with tracking consent notices","authors":"N. Gerber, Alina Stöver, Justin Peschke, Verena Zimmermann","doi":"10.1145/3617363","DOIUrl":"https://doi.org/10.1145/3617363","url":null,"abstract":"Legal frameworks rely on users to make an informed decision about data collection, e.g., by accepting or declining the use of tracking technologies. In practice, however, users hardly interact with tracking consent notices on a deliberate website per website level, but usually accept or decline optional tracking technologies altogether in a habituated behavior. We explored the potential of three different nudge types (color highlighting, social cue, timer) and default settings to interrupt this auto-response in an experimental between-subject design with 167 participants. We did not find statistically significant differences regarding the buttons clicked. Our results showed that opt-in default settings significantly decrease tracking technology use acceptance rates. These results are a first step towards understanding the effects of different nudging concepts on users’ interaction with tracking consent notices.","PeriodicalId":50917,"journal":{"name":"ACM Transactions on Computer-Human Interaction","volume":" ","pages":""},"PeriodicalIF":3.7,"publicationDate":"2023-08-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44424107","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"计算机科学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-07-25DOI: https://dl.acm.org/doi/10.1145/3610366
Bart P. Knijnenburg, Burcu Bulgurcu
Modern Web browsers provide users with tools to reduce the burden of filling out forms. Despite the widespread adoption of these tools, little is known about how they affect users’ privacy decision-making. This research compares traditional form autocompletion tools with two alternative tools designed for elaboration for this study (“add” and “remove” tools). The results show that the use of traditional form autocompletion tools significantly diminishes users’ deliberate privacy decision-making, while the proposed tools can mitigate these adverse effects, such that users (1) disclose significantly less information and (2) are more likely to assess the alignment between the type of the data requested and the goal of the entity requesting that data (i.e., context specificity). While both proposed tools help users become more deliberate in their disclosure behavior, they prefer the “add” tool over the “remove” tool. Our results show that tools designed for elaboration can nudge users towards protecting their privacy.
{"title":"Designing Alternative Form-Autocompletion Tools to Enhance Privacy Decision Making and Prevent Unintended Disclosure","authors":"Bart P. Knijnenburg, Burcu Bulgurcu","doi":"https://dl.acm.org/doi/10.1145/3610366","DOIUrl":"https://doi.org/https://dl.acm.org/doi/10.1145/3610366","url":null,"abstract":"<p>Modern Web browsers provide users with tools to reduce the burden of filling out forms. Despite the widespread adoption of these tools, little is known about how they affect users’ privacy decision-making. This research compares traditional form autocompletion tools with two alternative tools designed for elaboration for this study (“add” and “remove” tools). The results show that the use of traditional form autocompletion tools significantly diminishes users’ deliberate privacy decision-making, while the proposed tools can mitigate these adverse effects, such that users (1) disclose significantly less information and (2) are more likely to assess the alignment between the type of the data requested and the goal of the entity requesting that data (i.e., <i>context specificity</i>). While both proposed tools help users become more deliberate in their disclosure behavior, they prefer the “add” tool over the “remove” tool. Our results show that tools designed for elaboration can nudge users towards protecting their privacy.</p>","PeriodicalId":50917,"journal":{"name":"ACM Transactions on Computer-Human Interaction","volume":"74 1","pages":""},"PeriodicalIF":3.7,"publicationDate":"2023-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138529328","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"计算机科学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Modern Web browsers provide users with tools to reduce the burden of filling out forms. Despite the widespread adoption of these tools, little is known about how they affect users’ privacy decision-making. This research compares traditional form autocompletion tools with two alternative tools designed for elaboration for this study (“add” and “remove” tools). The results show that the use of traditional form autocompletion tools significantly diminishes users’ deliberate privacy decision-making, while the proposed tools can mitigate these adverse effects, such that users (1) disclose significantly less information and (2) are more likely to assess the alignment between the type of the data requested and the goal of the entity requesting that data (i.e., context specificity). While both proposed tools help users become more deliberate in their disclosure behavior, they prefer the “add” tool over the “remove” tool. Our results show that tools designed for elaboration can nudge users towards protecting their privacy.
{"title":"Designing Alternative Form-Autocompletion Tools to Enhance Privacy Decision Making and Prevent Unintended Disclosure","authors":"Bart P. Knijnenburg, Burcu Bulgurcu","doi":"10.1145/3610366","DOIUrl":"https://doi.org/10.1145/3610366","url":null,"abstract":"Modern Web browsers provide users with tools to reduce the burden of filling out forms. Despite the widespread adoption of these tools, little is known about how they affect users’ privacy decision-making. This research compares traditional form autocompletion tools with two alternative tools designed for elaboration for this study (“add” and “remove” tools). The results show that the use of traditional form autocompletion tools significantly diminishes users’ deliberate privacy decision-making, while the proposed tools can mitigate these adverse effects, such that users (1) disclose significantly less information and (2) are more likely to assess the alignment between the type of the data requested and the goal of the entity requesting that data (i.e., context specificity). While both proposed tools help users become more deliberate in their disclosure behavior, they prefer the “add” tool over the “remove” tool. Our results show that tools designed for elaboration can nudge users towards protecting their privacy.","PeriodicalId":50917,"journal":{"name":"ACM Transactions on Computer-Human Interaction","volume":" ","pages":""},"PeriodicalIF":3.7,"publicationDate":"2023-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48187283","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"计算机科学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kevin Chow, Thomas Fritz, L. Holsti, S. Barbic, Joanna McGrenere
Today’s knowledge workers face cognitively demanding tasks and blurred work-life boundaries amidst rising stress and burnout in the workplace. Holistic approaches to supporting workers, which consider both productivity and well-being, are increasingly important. Taking this holistic approach, we designed an intervention inspired by cognitive behavioural therapy that consists of: (1) using the term “Time Well Spent” (TWS) in place of “productivity”, (2) a mobile self-logging tool for logging activities, feelings, and thoughts at work, and (3) a visualization that guides users to reflect on their data. We ran a 4-week exploratory qualitative comparison in the field with 24 graduate students to examine our Therapy-inspired intervention alongside a classic Baseline intervention. Participants who used our intervention often shifted towards a holistic perspective of their primary working hours, which included an increased consideration of breaks and emotions. No such change was seen by those who used the Baseline intervention.
{"title":"Feeling Stressed and Unproductive? A Field Evaluation of a Therapy-Inspired Digital Intervention for Knowledge Workers","authors":"Kevin Chow, Thomas Fritz, L. Holsti, S. Barbic, Joanna McGrenere","doi":"10.1145/3609330","DOIUrl":"https://doi.org/10.1145/3609330","url":null,"abstract":"Today’s knowledge workers face cognitively demanding tasks and blurred work-life boundaries amidst rising stress and burnout in the workplace. Holistic approaches to supporting workers, which consider both productivity and well-being, are increasingly important. Taking this holistic approach, we designed an intervention inspired by cognitive behavioural therapy that consists of: (1) using the term “Time Well Spent” (TWS) in place of “productivity”, (2) a mobile self-logging tool for logging activities, feelings, and thoughts at work, and (3) a visualization that guides users to reflect on their data. We ran a 4-week exploratory qualitative comparison in the field with 24 graduate students to examine our Therapy-inspired intervention alongside a classic Baseline intervention. Participants who used our intervention often shifted towards a holistic perspective of their primary working hours, which included an increased consideration of breaks and emotions. No such change was seen by those who used the Baseline intervention.","PeriodicalId":50917,"journal":{"name":"ACM Transactions on Computer-Human Interaction","volume":" ","pages":""},"PeriodicalIF":3.7,"publicationDate":"2023-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45684748","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"计算机科学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mare Hirsch, Gabrielle Benabdallah, Jennifer Jacobs, Nadya Peek
Understanding how professionals use digital fabrication in production workflows is critical for future research in digital fabrication technologies. We interviewed thirteen professionals who use digital fabrication for the low-volume manufacturing of commercial products. From these interviews, we describe the workflows used for nine products created with a variety of materials and manufacturing methods. We show how digital fabrication professionals use software development to support physical production, how they rely on multiple partial representations in development, how they develop manufacturing processes, and how machine control is its own design space. We build from these findings to argue that future digital fabrication systems should support the exploration of material and machine behavior alongside geometry, that simulation is insufficient for understanding the design space, and that material constraints and resource management are meaningful design dimensions to support. By observing how professionals learn, we suggest ways digital fabrication systems can scaffold the mastery of new fabrication techniques.
{"title":"Nothing Like Compilation: How Professional Digital Fabrication Workflows Go Beyond Extruding, Milling, and Machines","authors":"Mare Hirsch, Gabrielle Benabdallah, Jennifer Jacobs, Nadya Peek","doi":"10.1145/3609328","DOIUrl":"https://doi.org/10.1145/3609328","url":null,"abstract":"Understanding how professionals use digital fabrication in production workflows is critical for future research in digital fabrication technologies. We interviewed thirteen professionals who use digital fabrication for the low-volume manufacturing of commercial products. From these interviews, we describe the workflows used for nine products created with a variety of materials and manufacturing methods. We show how digital fabrication professionals use software development to support physical production, how they rely on multiple partial representations in development, how they develop manufacturing processes, and how machine control is its own design space. We build from these findings to argue that future digital fabrication systems should support the exploration of material and machine behavior alongside geometry, that simulation is insufficient for understanding the design space, and that material constraints and resource management are meaningful design dimensions to support. By observing how professionals learn, we suggest ways digital fabrication systems can scaffold the mastery of new fabrication techniques.","PeriodicalId":50917,"journal":{"name":"ACM Transactions on Computer-Human Interaction","volume":" ","pages":""},"PeriodicalIF":3.7,"publicationDate":"2023-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49461831","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"计算机科学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
While chronic disease afflicts a large Indian population, the technologies used to manage chronic diseases have largely been informed by studies conducted in other sociocultural contexts. To address this gap, we conducted qualitative interviews with 21 patients clinically diagnosed with abnormal blood pressure (BP) living in low-resourced communities of Haryana, Uttarakhand and Uttar Pradesh in India. We found that patients’ trust in the BP ecosystem and social ties plays a significant role in shaping their perceptions of technology and chronic care. Trust in one actor of the ecosystem fosters trust in another, e.g., trust in BP reading depended on the type of device and the person measuring the BP. We also observed nuanced sharing and intermediation of BP devices. Based on our findings, we recommend designs to boost patients’ trust, familiarity, and access to technologies used in BP management and improve their experience of care in low-resource settings in India.
{"title":"”Is it even giving the correct reading or not?”: How Trust and Relationships Mediate Blood Pressure Management in India","authors":"Nimisha Karnatak, Brooke Loughrin, Tiffany Amy Kuo, Odeline Mateu-Silvernail, Indrani Medhi Thies, W. Thies, Mohit Jain","doi":"10.1145/3609327","DOIUrl":"https://doi.org/10.1145/3609327","url":null,"abstract":"While chronic disease afflicts a large Indian population, the technologies used to manage chronic diseases have largely been informed by studies conducted in other sociocultural contexts. To address this gap, we conducted qualitative interviews with 21 patients clinically diagnosed with abnormal blood pressure (BP) living in low-resourced communities of Haryana, Uttarakhand and Uttar Pradesh in India. We found that patients’ trust in the BP ecosystem and social ties plays a significant role in shaping their perceptions of technology and chronic care. Trust in one actor of the ecosystem fosters trust in another, e.g., trust in BP reading depended on the type of device and the person measuring the BP. We also observed nuanced sharing and intermediation of BP devices. Based on our findings, we recommend designs to boost patients’ trust, familiarity, and access to technologies used in BP management and improve their experience of care in low-resource settings in India.","PeriodicalId":50917,"journal":{"name":"ACM Transactions on Computer-Human Interaction","volume":" ","pages":""},"PeriodicalIF":3.7,"publicationDate":"2023-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49258101","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"计算机科学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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