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Family caregiving in research and practice: Editorial – PEC innovation 家庭护理的研究与实践:编辑- PEC创新
Pub Date : 2025-04-30 DOI: 10.1016/j.pecinn.2025.100396
Gemme Campbell-Salome
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引用次数: 0
Perceptions of positive and negative clinician communication in obstetrical visits from the perspectives of pregnant patients who use substances 从使用药物的怀孕患者的角度对产科就诊中积极和消极临床医生沟通的看法
Pub Date : 2025-04-22 DOI: 10.1016/j.pecinn.2025.100394
Abisola Olaniyan , Mary Hawk , Dara D. Mendez , Steven M. Albert , Natalie Stern , Sneha Patnaik , Judy C. Chang

Objectives

To explore the perceptions of pregnant patients who use substances regarding positive or negative clinician communication during obstetrical care.

Methods

We analyzed qualitative data from 85 semi-structured interviews with pregnant patients who reported or tested positive for substance use, which explored their interaction with obstetric providers during their first prenatal visit. This analysis focuses on patients' perceptions of negative versus positive clinician communication behaviors.

Results

Eighty-five participants described clinician communication behaviors they felt affected their feelings about the clinician and their willingness to talk about prenatal substance use and other sensitive topics. Negative behaviors included clinicians (1) expressing judgment, (2) rushing through the consultation and providing limited information to patients, and (3) using statements or behaviors that made patients feel dehumanized. Positive behaviors included clinicians (1) explicitly expressing care for the patient, (2) creating rapport by soliciting patient stories and building relationships, and (3) demonstrating attentive listening.

Innovation

To our knowledge, our study is the first to explore clinician communication behavior with a focus on prenatal substance use from the perspective of pregnant people using substances.

Conclusion

Our findings highlight pregnant patients' perspectives on communication patterns that could improve patient-clinician interactions and, in turn, maternal health care and outcomes.
目的探讨妊娠用药患者在产科护理中对临床医师积极沟通或消极沟通的认知。方法我们分析了85例半结构化访谈的定性数据,这些访谈的孕妇报告或检测出药物使用呈阳性,探讨了她们在第一次产前就诊时与产科医生的互动。本分析侧重于患者对消极与积极临床医生沟通行为的看法。结果85名参与者描述了他们认为临床医生的沟通行为影响了他们对临床医生的感觉以及他们谈论产前药物使用和其他敏感话题的意愿。消极行为包括临床医生(1)表达判断,(2)匆忙完成咨询,向患者提供有限的信息,(3)使用使患者感到失去人性的言论或行为。积极的行为包括临床医生(1)明确表达对病人的关心,(2)通过询问病人的故事和建立关系来建立融洽的关系,以及(3)表现出专注的倾听。据我们所知,我们的研究首次从孕妇使用药物的角度探讨临床医生的沟通行为,重点关注产前药物使用。结论:我们的研究结果突出了孕妇对沟通模式的看法,这些模式可以改善医患互动,进而改善孕产妇保健和结局。
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引用次数: 0
Knowledge and confidence regarding pressure ulcer prevention among caregivers of high-risk individuals: A pre- and post-education assessment in a single-center 高危人群护理人员对压疮预防的知识和信心:单中心教育前后评估
Pub Date : 2025-04-21 DOI: 10.1016/j.pecinn.2025.100393
Maram T. Alkhatieb , Rahaf W. Shigdar , Zainab A. Alkhalifah , Hussain A. Alkhalifah , Hanan F. Alsabri , Lama W. Attar , Hana Z. Fatani , Haifa M. Alnahdi

Objective

We aimed to measure the effect of implementing a pressure ulcer (PU) educational program on the knowledge and confidence of caregivers taking care of bedridden patients or patients with limited mobility.

Methods

This study included caregivers of immobile or bedridden patients in our center from 23 April 2023 to 13 May 2023. A pre-assessment questionnaire to assess knowledge about PUs was provided. After this, an educational session was implemented. Thereafter, a post-assessment questionnaire was provided to measure the education outcomes.

Results

A total of 98 caregivers were included in the study; the majority were females (n = 69, 70.4 %) and were family members of the patient (n = 89, 90.8 %). Most have never received education on PUs and their prevention (n = 63, 64.3 %). The education sessions significantly affected the level of knowledge, as the scores were significantly higher post-education compared to pre-education (16.96 ± 2.73 vs. 11.06 ± 3.71, p < 0.001).

Conclusion

Overall, we found that education sessions on PUs using different visual and audio aids could significantly increase caregivers' knowledge of PU prevention.

Innovation

We adopted a multi-faceted approach by developing original educational materials tailored to non-professional caregivers, including videos, booklets, and brochures in Arabic and English. This helped ensure accessibility and enhance the potential for widespread applicability in diverse home settings.
目的探讨实施压疮(PU)教育计划对护理卧床病人和行动不便病人的护理人员知识和信心的影响。方法研究对象为2023年4月23日至2023年5月13日在我中心住院治疗的卧床或行动不便患者的护理人员。提供了一份预评估问卷来评估对pu的了解。在此之后,实施了一次教育会议。随后,提供了一份评估后问卷来衡量教育成果。结果共纳入护理人员98人;以女性(n = 69, 70.4%)和患者家属(n = 89, 90.8%)居多。大多数患者从未接受过脓包及其预防教育(n = 63, 64.3%)。教育课程对知识水平有显著影响,教育后得分显著高于教育前得分(16.96±2.73比11.06±3.71,p <;0.001)。结论总体而言,我们发现使用不同视听辅助工具的脓肿教育课程可以显著提高护理人员预防脓肿的知识。创新我们采用多方面的方法,为非专业护理人员量身定制原创教育材料,包括阿拉伯语和英语的视频、小册子和小册子。这有助于确保可及性并增强在不同家庭环境中广泛适用的潜力。
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引用次数: 0
Development and evaluation of the patient engagement questionnaire (PEQ) 制定和评估患者参与问卷(PEQ)
Pub Date : 2025-04-14 DOI: 10.1016/j.pecinn.2025.100392
Stephanie Batio, Laura M. Curtis, Julia Yoshino Benavente, Stacy C. Bailey, Michael S. Wolf

Objective

We sought to develop and evaluate the Patient Engagement Questionnaire (PEQ); a brief, remote assessment that captures both measures of health literacy and patient activation in the context of engagement in healthcare.

Methods

Participants in the COVID-19 & Chronic Conditions cohort study completed a survey that included PEQ items, demographics, Newest Vital Sign, Consumer Health Activation Index, and patient-reported outcomes. Exploratory and Confirmatory Factor Analysis were used to conduct an item reduction process and assess fit. Spearman correlations and generalized linear regression models were performed to assess convergent and predictive validity. Stratum-specific likelihood ratios were used to determine cutoffs.

Results

630 participants completed the survey. PEQ had 6 items loading onto one single factor, with good reliability (α = 0.76), and convergent validity with the NVS (r = 0.30, p < 0.001) and CHAI (r = 0.41, p < 0.001). Higher PEQ scores were significantly associated with lower depression (r = −0.30, p < 0.001) and better physical function (r = 0.31, p < 0.01). Two categories emerged: limited (6–26, SSLR: 3.15) and adequate (26–30, SSLR: 0.53).

Conclusion

The PEQ is a brief and easily administered tool designed to capture the intersect between health literacy and activation.

Practice implications

The PEQ will help identify patients struggling with care engagement, aiding resource allocation to those most in need.
方法 COVID-19 & 慢性病队列研究的参与者完成了一项调查,其中包括 PEQ 项目、人口统计学、最新生命体征、消费者健康激活指数和患者报告结果。采用探索性因子分析和确认性因子分析对项目进行缩减并评估拟合度。斯皮尔曼相关性和广义线性回归模型用于评估收敛性和预测有效性。结果 630 名参与者完成了调查。PEQ 有 6 个项目,负载在一个因子上,具有良好的可靠性 (α = 0.76),与 NVS (r = 0.30, p < 0.001) 和 CHAI (r = 0.41, p < 0.001) 具有会聚有效性。PEQ 分数越高,抑郁程度越低(r = -0.30,p < 0.001),身体功能越好(r = 0.31,p < 0.01)。结论PEQ是一种简短且易于管理的工具,旨在捕捉健康素养与激活之间的交叉点。
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引用次数: 0
Content and quality of smartphone applications for bariatric surgery: A review and content analysis 减肥手术智能手机应用程序的内容和质量:回顾和内容分析
Pub Date : 2025-04-08 DOI: 10.1016/j.pecinn.2025.100391
Irma Hellbrecht , Nadja Könsgen , Alina Weise , Fabian Schlumberger , Dawid Pieper , Jessica Breuing

Objective

Our aim was to provide a descriptive analysis of the content and quality of bariatric apps available in Germany.

Methods

From November 2022 to February 2023, apps available in German used in pre- or postoperative care were searched in the Google Play, the Apple App Store, and the Register for Digital Health Applications (DHA). One author reviewed titles and summary pages. Relevant apps were downloaded and two authors assessed their eligibility. Additionally, the authors independently screened records indexed in Medline/Embase. Besides a summary of the app content, a quality assessment was performed using two checklists (the Action Alliance for Patient Safety Checklist (APS); the Mobile App Rating Scale (MARS).

Results

38 potentially relevant apps were identified, n = 3 were included. Functionality was good (MARS score 13–18/20). Content quality was variable (MARS score 7–19/35). Moreover, the apps' content lacked references and varied in scope.

Conclusion

There are few apps in the field of BS available and the quality of their content is moderate to low. The evidence base remains unclear due to a lack of sources.

Innovation

This is the first structured assessment of bariatric apps in Germany using validated checklists. The results provide a foundation for evidence-based, patient-centered app development in bariatric care and thus represent an important digital innovation in this field.
我们的目的是对德国可用的减肥应用程序的内容和质量进行描述性分析。方法:从2022年11月至2023年2月,在b谷歌Play、苹果应用商店和数字健康应用程序注册(DHA)中搜索用于术前或术后护理的德语应用程序。一位作者审查了标题和摘要页。下载了相关的应用程序,两位作者评估了他们的资格。此外,作者独立筛选了Medline/Embase索引的记录。除了对应用程序内容进行总结外,还使用两个检查表(患者安全检查表行动联盟(APS);移动应用评级量表(MARS)。结果共识别出38个可能相关的应用程序,其中n = 3个。功能良好(MARS评分13-18/20)。内容质量是可变的(MARS评分7-19/35)。此外,这些应用程序的内容缺乏参考,范围也各不相同。结论BS领域的应用程序较少,内容质量中低。由于缺乏来源,证据基础仍然不清楚。这是德国第一个使用有效清单对减肥应用程序进行结构化评估。研究结果为基于证据、以患者为中心的减肥护理应用程序开发奠定了基础,因此代表了该领域的重要数字创新。
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引用次数: 0
Leveraging artificial intelligence chatbots for anemia prevention: A comparative study of ChatGPT-3.5, copilot, and Gemini outputs against Google Search results 利用人工智能聊天机器人预防贫血:ChatGPT-3.5、copilot和Gemini输出与谷歌搜索结果的比较研究
Pub Date : 2025-04-01 DOI: 10.1016/j.pecinn.2025.100390
Shinya Ito , Emi Furukawa , Tsuyoshi Okuhara , Hiroko Okada , Takahiro Kiuchi

Aim

This study evaluated the understandability, actionability, and readability of text on anemia generated by artificial intelligence (AI) chatbots.

Methods

This cross-sectional study compared texts generated by ChatGPT-3.5, Microsoft Copilot, and Google Gemini at three levels: “normal,” “6th grade,” and “PEMAT-P version.” Additionally, texts retrieved from the top eight Google Search results for relevant keywords were included for comparison. All texts were written in Japanese. The Japanese version of the PEMAT-P was used to assess understandability and actionability, while jReadability was used for readability. A systematic comparison was conducted to identify the strengths and weaknesses of each source.

Results

Texts generated by Gemini at the 6th-grade level (n = 26, 86.7 %) and PEMAT-P version (n = 27, 90.0 %), as well as ChatGPT-3.5 at the normal level (n = 21, 80.8 %), achieved significantly higher scores (≥70 %) for understandability and actionability compared to Google Search results (n = 17, 25.4 %, p < 0.001). For readability, Copilot and Gemini texts demonstrated significantly higher percentages of “very readable” to “somewhat difficult” levels than texts retrieved from Google Search (p = 0.000–0.007).

Innovation

This study is the first to objectively and quantitatively evaluate the understandability and actionability of educational materials on anemia prevention. By utilizing PEMAT-P and jReadability, the study demonstrated the superiority of Gemini in terms of understandability and readability through measurable data. This innovative approach highlights the potential of AI chatbots as a novel method for providing public health information and addressing health disparities.

Conclusion

AI-generated texts on anemia were found to be more readable and easier to understand than traditional web-based texts, with Gemini demonstrating the highest level of understandability. Moving forward, improvements in prompts will be necessary to enhance the integration of visual elements that encourage actionable responses in AI chatbots.
目的评价人工智能(AI)聊天机器人生成的贫血文本的可理解性、可操作性和可读性。方法:本横断面研究比较了ChatGPT-3.5、Microsoft Copilot和谷歌Gemini在“正常”、“六年级”和“PEMAT-P版本”三个级别上生成的文本。此外,从谷歌搜索结果的前8个相关关键词中检索到的文本也被包括进来进行比较。所有的课文都是用日文写的。PEMAT-P的日文版本用于评估可理解性和可操作性,而jReadability用于可读性。进行了系统的比较,以确定每个来源的优点和缺点。结果Gemini在六年级水平(n = 26, 86.7%)和PEMAT-P版本(n = 27, 90.0%)以及ChatGPT-3.5在正常水平(n = 21, 80.8%)生成的文本在可理解性和可操作性方面的得分(≥70%)明显高于谷歌搜索结果(n = 17, 25.4%, p <;0.001)。在可读性方面,与从谷歌搜索中检索到的文本相比,Copilot和Gemini文本显示出明显更高的“非常可读”到“有些困难”级别的百分比(p = 0.000-0.007)。本研究首次客观定量地评价了预防贫血教材的可理解性和可操作性。本研究利用PEMAT-P和jReadability,通过可测量的数据证明了Gemini在可理解性和可读性方面的优势。这一创新方法凸显了人工智能聊天机器人作为提供公共卫生信息和解决健康差距的新方法的潜力。结论人工智能生成的关于贫血的文本比传统的基于网络的文本更具可读性,更容易理解,其中Gemini的可理解性最高。展望未来,提示的改进将是必要的,以增强视觉元素的集成,从而鼓励人工智能聊天机器人做出可操作的响应。
{"title":"Leveraging artificial intelligence chatbots for anemia prevention: A comparative study of ChatGPT-3.5, copilot, and Gemini outputs against Google Search results","authors":"Shinya Ito ,&nbsp;Emi Furukawa ,&nbsp;Tsuyoshi Okuhara ,&nbsp;Hiroko Okada ,&nbsp;Takahiro Kiuchi","doi":"10.1016/j.pecinn.2025.100390","DOIUrl":"10.1016/j.pecinn.2025.100390","url":null,"abstract":"<div><h3>Aim</h3><div>This study evaluated the understandability, actionability, and readability of text on anemia generated by artificial intelligence (AI) chatbots.</div></div><div><h3>Methods</h3><div>This cross-sectional study compared texts generated by ChatGPT-3.5, Microsoft Copilot, and Google Gemini at three levels: “normal,” “6th grade,” and “PEMAT-P version.” Additionally, texts retrieved from the top eight Google Search results for relevant keywords were included for comparison. All texts were written in Japanese. The Japanese version of the PEMAT-P was used to assess understandability and actionability, while jReadability was used for readability. A systematic comparison was conducted to identify the strengths and weaknesses of each source.</div></div><div><h3>Results</h3><div>Texts generated by Gemini at the 6th-grade level (<em>n</em> = 26, 86.7 %) and PEMAT-P version (<em>n</em> = 27, 90.0 %), as well as ChatGPT-3.5 at the normal level (<em>n</em> = 21, 80.8 %), achieved significantly higher scores (≥70 %) for understandability and actionability compared to Google Search results (<em>n</em> = 17, 25.4 %, <em>p</em> &lt; 0.001). For readability, Copilot and Gemini texts demonstrated significantly higher percentages of “very readable” to “somewhat difficult” levels than texts retrieved from Google Search (<em>p</em> = 0.000–0.007).</div></div><div><h3>Innovation</h3><div>This study is the first to objectively and quantitatively evaluate the understandability and actionability of educational materials on anemia prevention. By utilizing PEMAT-P and jReadability, the study demonstrated the superiority of Gemini in terms of understandability and readability through measurable data. This innovative approach highlights the potential of AI chatbots as a novel method for providing public health information and addressing health disparities.</div></div><div><h3>Conclusion</h3><div>AI-generated texts on anemia were found to be more readable and easier to understand than traditional web-based texts, with Gemini demonstrating the highest level of understandability. Moving forward, improvements in prompts will be necessary to enhance the integration of visual elements that encourage actionable responses in AI chatbots.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100390"},"PeriodicalIF":0.0,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143835081","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A qualitative exploration of service users' experiences of weight management conversations in a mental health setting 心理健康环境下服务用户体重管理对话体验的定性探索
Pub Date : 2025-03-22 DOI: 10.1016/j.pecinn.2025.100389
Emma Kemp , Catherine Haighton , Sally Faulkner , Kate McBride , Maria Raisa Jessica Aquino , Rob Wilson , Milica Vasiljevic , Craig Robson , Mish Loraine , Jill Harland , Angela M. Rodrigues

Objective

Healthcare professionals often use opportunistic weight management conversations, aligned with the Making Every Contact Count (MECC) approach, to provide motivational support to service users. While research supports this practice from the professionals' perspective, the views of service users on these interactions remain understudied. The aim of this study was to explore the experiences of service users with serious mental illness regarding weight management conversations with healthcare professionals.

Methods

Thirteen service users with serious mental illness (Nine inpatient, four community-based) participated in semi-structured 1–1 interviews exploring weight management support experiences. Transcript data was analysed using thematic analysis.

Results

Five key themes were developed: service users' experience of weight management conversations, developing therapeutic relationships, support for physical activity and weight management, deliverer characteristic preferences, and user descriptions of MECC.

Conclusions

Service users reported a lack of information about medication-related weight gain and suggested further staff training to improve therapeutic relationships and weight management support for service users with serious mental illness.

Innovation

This study uniquely explores service users' perspectives on weight management conversations within mental health care, applying MECC in a novel context. It highlights the perspective of individuals with serious mental illness on weight-related issues, challenging existing practices, and proposing strategies for integrating physical health support in mental health settings.
目标医疗保健专业人员经常利用与 "让每次接触都有价值"(MECC)方法相一致的机会性体重管理谈话,为服务使用者提供动力支持。虽然从专业人员的角度来看,研究支持这种做法,但服务使用者对这些互动的看法仍未得到充分研究。本研究旨在探讨患有严重精神疾病的服务使用者与医护人员进行体重管理谈话的经验。方法13 名患有严重精神疾病的服务使用者(9 名住院病人,4 名社区病人)参加了半结构化的 1-1 访谈,探讨体重管理支持经验。结果提出了五个关键主题:服务使用者对体重管理谈话的体验、治疗关系的发展、对体育锻炼和体重管理的支持、提供者的特征偏好以及使用者对 MECC 的描述。创新点这项研究独特地探讨了服务使用者对精神健康护理中体重管理谈话的看法,将 MECC 应用到了一个新颖的环境中。它强调了患有严重精神疾病的个人对体重相关问题的看法,对现有的做法提出了质疑,并提出了在精神健康环境中整合身体健康支持的策略。
{"title":"A qualitative exploration of service users' experiences of weight management conversations in a mental health setting","authors":"Emma Kemp ,&nbsp;Catherine Haighton ,&nbsp;Sally Faulkner ,&nbsp;Kate McBride ,&nbsp;Maria Raisa Jessica Aquino ,&nbsp;Rob Wilson ,&nbsp;Milica Vasiljevic ,&nbsp;Craig Robson ,&nbsp;Mish Loraine ,&nbsp;Jill Harland ,&nbsp;Angela M. Rodrigues","doi":"10.1016/j.pecinn.2025.100389","DOIUrl":"10.1016/j.pecinn.2025.100389","url":null,"abstract":"<div><h3>Objective</h3><div>Healthcare professionals often use opportunistic weight management conversations, aligned with the Making Every Contact Count (MECC) approach, to provide motivational support to service users. While research supports this practice from the professionals' perspective, the views of service users on these interactions remain understudied. The aim of this study was to explore the experiences of service users with serious mental illness regarding weight management conversations with healthcare professionals.</div></div><div><h3>Methods</h3><div>Thirteen service users with serious mental illness (Nine inpatient, four community-based) participated in semi-structured 1–1 interviews exploring weight management support experiences. Transcript data was analysed using thematic analysis.</div></div><div><h3>Results</h3><div>Five key themes were developed: service users' experience of weight management conversations, developing therapeutic relationships, support for physical activity and weight management, deliverer characteristic preferences, and user descriptions of MECC.</div></div><div><h3>Conclusions</h3><div>Service users reported a lack of information about medication-related weight gain and suggested further staff training to improve therapeutic relationships and weight management support for service users with serious mental illness.</div></div><div><h3>Innovation</h3><div>This study uniquely explores service users' perspectives on weight management conversations within mental health care, applying MECC in a novel context. It highlights the perspective of individuals with serious mental illness on weight-related issues, challenging existing practices, and proposing strategies for integrating physical health support in mental health settings.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100389"},"PeriodicalIF":0.0,"publicationDate":"2025-03-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143705471","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Developing a digital video to support lung cancer screening in diverse populations 开发数字视频以支持不同人群的肺癌筛查
Pub Date : 2025-03-17 DOI: 10.1016/j.pecinn.2025.100388
Meghan Lindsay , Iyanuoluwa P. Odole , Olivia Belliveau , Fuad Abujarad , Cary P. Gross , Ilana B. Richman

Objective

Lung cancer screening (LCS) with low dose computed tomography can reduce lung cancer mortality. However, awareness and knowledge of LCS are low. We developed and tested a video to support informed decision-making about LCS for use in diverse populations, including adults with low educational attainment.

Methods

We conducted a prospective pre-post pilot study of adults eligible for LCS at three primary care clinics in the USA from 08/2022–07/2023. We developed a brief digital video, incorporating iterative modifications using participant feedback. We assessed knowledge of LCS before and after viewing the video and solicited open-ended feedback on video format and content.

Results

The study included 29 adults (median [range] age, 62 [50–77] years; 52 % male). In interviews, participants commented on informational content, effect of the video on screening behaviors and intent, video style and appearance, and video features. After viewing the video, participant knowledge scores increased from baseline of 43 % correct to 59 %, p < 0.001. Knowledge scores increased across all levels of educational attainment.

Conclusions

A brief digital video about LCS, developed with feedback from end users, was motivating, clear, and effective in increasing knowledge across levels of educational attainment.

Innovation

Using a patient-engaged, theoretically grounded development process, we developed a digital tool specifically to support lung cancer screening in diverse populations, including those with varied educational attainment.
目的低剂量ct肺癌筛查可降低肺癌死亡率。然而,人们对LCS的认识和认识很低。我们开发并测试了一个视频,以支持在不同人群中使用LCS的知情决策,包括受教育程度较低的成年人。方法:我们于2022年8月至2023年7月在美国三家初级保健诊所对符合LCS条件的成年人进行了一项前瞻性前期-后期试点研究。我们制作了一个简短的数字视频,结合了参与者反馈的迭代修改。我们在观看视频之前和之后评估了LCS知识,并就视频格式和内容征求开放式反馈。结果该研究纳入29名成人(年龄中位数[范围]为62岁[50-77]岁;52%男性)。在访谈中,参与者对信息内容、视频对筛选行为和意图的影响、视频风格和外观以及视频特征进行了评论。观看视频后,参与者的知识得分从43%的基线正确率提高到59%。0.001. 所有受教育程度的学生的知识得分都有所提高。结论根据最终用户的反馈制作的关于LCS的简短数字视频,在提高不同教育程度的知识方面具有激励、清晰和有效的作用。创新采用以患者为中心的理论开发过程,我们开发了一个数字工具,专门用于支持不同人群的肺癌筛查,包括那些受教育程度不同的人群。
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引用次数: 0
Perceived acceptability of a prototype toolkit to support patients and informal caregivers to express their perspectives in palliative care conversations 支持患者和非正式照护者在姑息关怀对话中表达观点的原型工具包的可接受性
Pub Date : 2025-03-17 DOI: 10.1016/j.pecinn.2025.100387
Annet Olde Wolsink-van Harlingen (AS) , Jan Jukema (JS) , Kris Vissers (KCP) , Madeleen Uitdehaag (MJ) , Jeroen Hasselaar (J) , Leontine Groen-van de Ven (L)

Background

Patients and informal caregivers experience challenges to express their personal perspectives in conversations with healthcare professionals (HCPs). A prototype toolkit, which consists of a hardcopy version and a website, was developed to address their challenges. The aim of this study is to gain insight into the perceived acceptability of this prototype toolkit.

Method

Patients and informal caregivers end users and HCPs participated in semi-structured individual or group interviews. This resulted in two databases of qualitative data which were thematically analysed.

Results

Twenty-two end users and twelve HCPs participated in this study. There is appreciation for the content and use of the prototype toolkit, with the hardcopy version of the toolkit being valued more than the website. Moreover, the use of the toolkit may strengthen end users' power and control and may support HCPs in tailoring communication and care. End users and HCPs recommendations for implementation are to further develop the prototype toolkit, provide HCPs with information, instruction and support and create facilitating conditions in healthcare.

Conclusion

High appreciation of the hardcopy version and the practical value are positive indicators of end users'and HCPS perceived acceptability of the prototype toolkit. However, the content of the toolkit is experienced as being too extensive, with the hardcopy version experienced as being incomplete without the website and the website is experienced as being too complicated to use. Further development and testing of the prototype toolkit is required to increase its acceptability by end users and HCPs.

Innovation

In this study a Design Thinking approach was used to test study the acceptability of a prototype toolkit by endusers and HCPs. This approach can contribute to a succesfull implementation of the toolkit and its effectiveness.
患者和非正式护理人员在与医疗保健专业人员(HCPs)的对话中表达他们的个人观点时遇到了挑战。开发了一个原型工具包,其中包括一个硬拷贝版本和一个网站,以解决他们的挑战。本研究的目的是深入了解这个原型工具包的可接受性。方法患者、非正式照护者、最终使用者和医护人员参与半结构化的个人或团体访谈。这就产生了两个定性数据数据库,并对其进行了专题分析。结果22名终端用户和12名HCPs参与了本研究。人们对原型工具包的内容和使用表示赞赏,工具包的硬拷贝版本比网站更有价值。此外,该工具包的使用可以加强最终用户的权力和控制,并可能支持hcp定制沟通和护理。最终用户和hcp建议进一步开发原型工具包,为hcp提供信息、指导和支持,并在医疗保健领域创造便利条件。结论精印本的高赞赏度和实用价值是最终用户和HCPS对原型工具包感知接受度的积极指标。然而,该工具包的内容被认为过于广泛,没有网站的硬拷贝版本被认为是不完整的,网站被认为太复杂而无法使用。需要进一步开发和测试原型工具包,以提高最终用户和hcp对其的接受程度。创新在这项研究中,设计思维方法被用于测试研究原型工具包的可接受性,最终用户和HCPs。这种方法有助于工具包的成功实现及其有效性。
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引用次数: 0
Editorial – Advancing family integrated care through health promotion, education, and communication 社论-通过健康促进、教育和交流推进家庭综合护理
Pub Date : 2025-03-02 DOI: 10.1016/j.pecinn.2025.100384
Anne van Kempen, Nicole van Veenendaal, Nanon Labrie
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引用次数: 0
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