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Cross cultural adaptation and validation of audiovisual educational material for use in indigenous patients with rheumatoid arthritis 类风湿关节炎土著患者使用的视听教育材料的跨文化适应和验证。
Pub Date : 2025-06-01 Epub Date: 2024-12-18 DOI: 10.1016/j.pecinn.2024.100363
Joana Aguilar-Castillo , Ingris Peláez-Ballestas , José-Luis Montiel-Hernández , Cairo Toledano-Jaimes , Mario-Alberto Garza-Elizondo , David Zepeda-González , Diana-Lizbeth Gómez-Galicia

Background

Culturally appropriate educational materials are necessary to improve health literacy among Indigenous populations. However, practically no such materials have been cross-culturally adapted and validated for Indigenous peoples based on compliance with efficacy components.

Objective

To perform a cross-cultural adaptation and validation of audiovisual educational materials for adult patients with rheumatoid arthritis belonging to Indigenous communities in Chiapas, Mexico.

Methods

Mixed-methods study consisting of three phases: 1) Spanish–Tzotzil translation and cross-cultural adaptation of seven previously designed and validated audiovisual educational materials; 2) qualitative validation; and 3) quantitative validation based on the efficacy components (attraction, understanding, induction to action, involvement, and acceptance). The information collected during the validation phases was recorded and transcribed for content analysis.

Results

A total of 31 patients with rheumatoid arthritis participated in the study. Patients had a mean age of 49 years, ≥5 years since disease onset, low adherence to pharmacological treatment (<20%), and a high level of illiteracy (>80%). After three versions of the educational material, where elements of cultural identification were added, the efficacy components increased significantly to reach scores higher than 90%. This suggests that culturally-adapted materials could promote greater patient participation in treatment.

Conclusion

This study shows the importance of cross-cultural adaptation in the design and validation of audiovisual educational materials for Indigenous populations; this aspect should be considered when implementing educational strategies for patients with chronic diseases.

Innovation

First educational audiovisual material translated and adapted from Spanish to Tzotzil, with a cultural sensitivity approach to achieve educational goals and improve therapeutic adherence.
背景为提高土著居民的健康素养,有必要编写适合其文化背景的教育材料。然而,几乎没有任何此类材料在符合功效成分的基础上针对原住民进行过跨文化改编和验证:针对墨西哥恰帕斯州土著社区的类风湿关节炎成年患者,对视听教材进行跨文化改编和验证:混合方法研究,包括三个阶段:1)对之前设计和验证过的七种视听教材进行西班牙语-Tzotzil 语翻译和跨文化改编;2)定性验证;3)根据疗效成分(吸引、理解、诱导行动、参与和接受)进行定量验证。对验证阶段收集的信息进行了记录和转录,以便进行内容分析:共有 31 名类风湿性关节炎患者参与了研究。患者平均年龄 49 岁,发病时间≥5 年,药物治疗依从性低(80%)。在三个版本的教材中加入了文化认同元素后,疗效成分显著增加,得分率超过 90%。这表明,适应不同文化背景的材料可以促进患者更多地参与治疗:这项研究表明,在为土著居民设计和验证视听教材时,跨文化适应非常重要;在为慢性病患者实施教育策略时,应考虑到这一点:首次将视听教材从西班牙语翻译和改编成特佐齐尔语,以文化敏感性方法实现教育目标并提高治疗依从性。
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引用次数: 0
Safe sleep crib clinics: Promoting risk reduction strategies for sudden unexpected infant death 安全睡眠婴儿床诊所:促进降低婴儿意外猝死风险的策略。
Pub Date : 2025-06-01 Epub Date: 2024-12-25 DOI: 10.1016/j.pecinn.2024.100370
Carolyn R. Ahlers-Schmidt , Christy Schunn , Ashley M. Hervey , Maria Torres

Objectives

Safe Sleep Community Baby Showers (CBS) provide group education to reduce risk factors of sudden unexpected infant death (SUID). Based on CBS success, Safe Sleep Crib Clinics were developed to provide individual education. This study assessed Crib Clinic outcomes and differences in Crib Clinics compared to CBSs.

Methods

Certified Safe Sleep Instructors facilitated CBSs and/or Crib Clinics in their communities and collected participant data related to safe sleep, tobacco avoidance and breastfeeding. Crib Clinic data was compared pre- to post-test; post-test results were compared between Crib Clinics and CBSs.

Results

Crib Clinic attendees exhibited significant increases in intention to have infant follow safe sleep recommendations, avoid secondhand smoke and breastfeed (all p < 0.001). Significant differences between Crib Clinic and CBS participants related to marital status, language, tobacco, education and insurance (all p < 0.01). CBS and Crib Clinic participants differed on items related to sleep environment, breastfeeding and tobacco (all p = 0.05).

Conclusions

Overall Crib Clinics appear to be effective in increasing knowledge, intentions and confidence related to safe sleep, tobacco avoidance and breastfeeding. Crib Clinics may offer flexibility (e.g., time, format) that increases accessibility to safe sleep education for families.

Innovation

Results suggest the ability to shift education delivery method based on group size was important in both rural and urban settings.
目的:安全睡眠社区婴儿淋浴(CBS)提供群体教育,以减少婴儿猝死(SUID)的危险因素。在CBS成功的基础上,安全婴儿床诊所得以发展,提供个人教育。本研究评估了婴儿床诊所的结果和婴儿床诊所与cbs的差异。方法:经过认证的安全睡眠指导员在其所在社区促进cbs和/或婴儿床诊所,并收集有关安全睡眠、避免吸烟和母乳喂养的参与者数据。将婴儿床诊所的数据与测试前后进行比较;比较婴儿床诊所和cbs的测试后结果。结果:婴儿床诊所的参与者表现出让婴儿遵循安全睡眠建议、避免二手烟和母乳喂养的意愿显著增加(均p p p = 0.05)。结论:整体婴儿床诊所似乎有效地提高了与安全睡眠,避免吸烟和母乳喂养有关的知识,意图和信心。婴儿床诊所可以提供灵活性(如时间、形式),增加家庭安全睡眠教育的可及性。创新:结果表明,在农村和城市环境中,根据群体规模改变教育提供方法的能力都很重要。
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引用次数: 0
Leveraging human centered design to enhance clinician communication during pregnancy care: Overcoming language barriers with Spanish-speaking patients 利用以人为本的设计来加强临床医生在妊娠护理中的沟通:克服与西班牙语患者的语言障碍。
Pub Date : 2025-06-01 Epub Date: 2024-12-25 DOI: 10.1016/j.pecinn.2024.100366
Rose L. Molina , Kasey Bellegarde , Meghan Long , Maria Bazan , Rachel Moyal-Smith , Ami Karlage , Karen Schoenherr , Lauren Spigel , Amanda DiMeo , Yessamin Pazos Herencia , Saugata Chakraborty , Jeanne-Marie Guise , Asaf Bitton

Background

Engaging patients in quality improvement and innovation projects is increasingly important, yet challenges persist with involving patients who speak languages other than English. This article presents design activities our team used to engage Spanish-speaking patients and cultural brokers.

Objective

To develop a clinician communication tool to enhance patient trust in pregnancy care clinicians, especially among minoritized populations who face language and cultural barriers, using human-centered design (HCD).

Patient involvement and innovation

We centered end-user experiences, including clinicians, Spanish-speaking patients, and Spanish-speaking cultural brokers, in our design process through multiple feedback sessions and modalities.

Methods

We used a HCD process to understand the problem, co-design a tool, and prepare for testing of a clinician tool. Design activities included a critical literature review, user interviews, design principles, solution sketching, rapid cycle feedback with subject matter experts, and field experience with pregnancy clinicians.

Results

We innovated on a widely used clinical communication tool, the Four Habits Model, and developed the Five Habits for Pregnancy Care to support pregnancy care clinicians in building trust by bridging cultural and language differences. We added an equity-focused habit “Pause and Reflect” to bookend the Four Habits. We refined the tool to meet different needs across pregnancy care visits based on feedback from 7 clinicians.

Discussion

We applied equity principles in a HCD process to understand a problem, co-design a tool, and prepare for testing by engaging with patients and cultural brokers in Spanish. Balancing the differing approaches for designers and researchers yielded important insights for enhancing equitable processes and outcomes in healthcare improvement.

Practical value

Communication tools designed with and for minoritized populations are critical for improving trust in all patient-clinician dyads during pregnancy care.
背景:让患者参与质量改进和创新项目越来越重要,然而,让非英语语言的患者参与进来仍然存在挑战。这篇文章介绍了我们的团队用来吸引讲西班牙语的病人和文化经纪人的设计活动。目的:利用以人为中心的设计(HCD),开发一种临床医生沟通工具,提高患者对妊娠护理临床医生的信任,特别是在面临语言和文化障碍的少数民族人群中。患者参与和创新:在我们的设计过程中,通过多次反馈会议和模式,我们以终端用户体验为中心,包括临床医生、讲西班牙语的患者和讲西班牙语的文化经纪人。方法:我们使用HCD流程来了解问题,共同设计工具,并为临床医生工具的测试做准备。设计活动包括重要的文献回顾、用户访谈、设计原则、解决方案草图、与主题专家的快速循环反馈,以及与妊娠临床医生的现场经验。结果:我们创新了一种广泛使用的临床沟通工具“四习惯模型”,并开发了妊娠护理的五种习惯,以支持妊娠护理临床医生通过弥合文化和语言差异来建立信任。我们在“四大习惯”的末尾添加了一个关注股票的习惯“暂停和反思”。根据7位临床医生的反馈,我们对该工具进行了改进,以满足孕期护理访问的不同需求。讨论:我们在HCD过程中应用公平原则来理解问题,共同设计工具,并通过西班牙语与患者和文化经纪人进行接触,为测试做准备。平衡设计人员和研究人员的不同方法,为增强医疗保健改进中的公平过程和结果提供了重要的见解。实用价值:为少数群体设计的沟通工具对于提高妊娠护理期间所有患者-临床医生对患者的信任至关重要。
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引用次数: 0
Perceptions of positive and negative clinician communication in obstetrical visits from the perspectives of pregnant patients who use substances 从使用药物的怀孕患者的角度对产科就诊中积极和消极临床医生沟通的看法
Pub Date : 2025-06-01 Epub Date: 2025-04-22 DOI: 10.1016/j.pecinn.2025.100394
Abisola Olaniyan , Mary Hawk , Dara D. Mendez , Steven M. Albert , Natalie Stern , Sneha Patnaik , Judy C. Chang

Objectives

To explore the perceptions of pregnant patients who use substances regarding positive or negative clinician communication during obstetrical care.

Methods

We analyzed qualitative data from 85 semi-structured interviews with pregnant patients who reported or tested positive for substance use, which explored their interaction with obstetric providers during their first prenatal visit. This analysis focuses on patients' perceptions of negative versus positive clinician communication behaviors.

Results

Eighty-five participants described clinician communication behaviors they felt affected their feelings about the clinician and their willingness to talk about prenatal substance use and other sensitive topics. Negative behaviors included clinicians (1) expressing judgment, (2) rushing through the consultation and providing limited information to patients, and (3) using statements or behaviors that made patients feel dehumanized. Positive behaviors included clinicians (1) explicitly expressing care for the patient, (2) creating rapport by soliciting patient stories and building relationships, and (3) demonstrating attentive listening.

Innovation

To our knowledge, our study is the first to explore clinician communication behavior with a focus on prenatal substance use from the perspective of pregnant people using substances.

Conclusion

Our findings highlight pregnant patients' perspectives on communication patterns that could improve patient-clinician interactions and, in turn, maternal health care and outcomes.
目的探讨妊娠用药患者在产科护理中对临床医师积极沟通或消极沟通的认知。方法我们分析了85例半结构化访谈的定性数据,这些访谈的孕妇报告或检测出药物使用呈阳性,探讨了她们在第一次产前就诊时与产科医生的互动。本分析侧重于患者对消极与积极临床医生沟通行为的看法。结果85名参与者描述了他们认为临床医生的沟通行为影响了他们对临床医生的感觉以及他们谈论产前药物使用和其他敏感话题的意愿。消极行为包括临床医生(1)表达判断,(2)匆忙完成咨询,向患者提供有限的信息,(3)使用使患者感到失去人性的言论或行为。积极的行为包括临床医生(1)明确表达对病人的关心,(2)通过询问病人的故事和建立关系来建立融洽的关系,以及(3)表现出专注的倾听。据我们所知,我们的研究首次从孕妇使用药物的角度探讨临床医生的沟通行为,重点关注产前药物使用。结论:我们的研究结果突出了孕妇对沟通模式的看法,这些模式可以改善医患互动,进而改善孕产妇保健和结局。
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引用次数: 0
A lifestyle educational course as an adjunct to biologic administration in patients with severe asthma: A feasibility study 生活方式教育课程作为严重哮喘患者生物给药的辅助:可行性研究。
Pub Date : 2025-06-01 Epub Date: 2024-12-18 DOI: 10.1016/j.pecinn.2024.100364
Joseph W. Lanario , Drew Davies , Lucy Cartwright , Michael E. Hyland , Matthew Masoli

Objective

To assess the feasibility and acceptability of adapting a psychoeducation course (Body Reprogramming) for severe asthma and finding suggestions for improvement.

Methods

Severe asthma patients were recruited from a single centre and enrolled in an online group-based course. Each course consisted of four sessions: introduction to BR, stress, exercise, and diet. Participants were asked to complete questionnaires assessing HRQoL, mood, asthma and extra-pulmonary symptoms, pre/post course. Those who attended two or more sessions were invited to provide feedback in interviews.

Results

Twenty-eight participants took part in one of the five courses. Thirteen (46 %) attended all four sessions and were sent post-course questionnaires, eight participants (62 %) returned them. Twelve participants provided post course feedback, Themes included: The course as a time to reflect, Appreciation of the group-format, Impact of pre-existing knowledge on enjoyment of the course and Areas of improvement. Maintaining course size, clarification of the course aims and methods were identified as areas of improvement by participants.

Conclusion

An educational course focused on managing extra-pulmonary symptoms is feasible and of perceived benefit to patients with severe asthma.

Innovation

BR could be incorporated into a rehab programme for patients with severe asthma with significant extrapulmonary symptoms.
目的:探讨重症哮喘患者采用“身体重编程”心理教育课程的可行性和可接受性,并提出改进建议。方法:从单一中心招募严重哮喘患者,并参加在线小组课程。每门课程包括四个部分:BR介绍、压力、运动和饮食。参与者被要求完成评估HRQoL、情绪、哮喘和肺外症状、疗程前后的问卷调查。那些参加了两次或两次以上会议的人被邀请在采访中提供反馈。结果:28名参与者参加了5个课程中的一个。13名参与者(46%)参加了所有四次课程,并发送了课程后问卷,8名参与者(62%)返回了问卷。12位参与者提供了课程后的反馈,主题包括:课程作为反思的时间、对小组形式的欣赏、已有知识对课程享受的影响以及需要改进的地方。保持课程规模,澄清课程目标和方法被参与者确定为改进的领域。结论:对严重哮喘患者开展以管理肺外症状为重点的教育课程是可行的,并且可被认为有益。创新:BR可纳入有明显肺外症状的严重哮喘患者的康复方案。
{"title":"A lifestyle educational course as an adjunct to biologic administration in patients with severe asthma: A feasibility study","authors":"Joseph W. Lanario ,&nbsp;Drew Davies ,&nbsp;Lucy Cartwright ,&nbsp;Michael E. Hyland ,&nbsp;Matthew Masoli","doi":"10.1016/j.pecinn.2024.100364","DOIUrl":"10.1016/j.pecinn.2024.100364","url":null,"abstract":"<div><h3>Objective</h3><div>To assess the feasibility and acceptability of adapting a psychoeducation course (Body Reprogramming) for severe asthma and finding suggestions for improvement.</div></div><div><h3>Methods</h3><div>Severe asthma patients were recruited from a single centre and enrolled in an online group-based course. Each course consisted of four sessions: introduction to BR, stress, exercise, and diet. Participants were asked to complete questionnaires assessing HRQoL, mood, asthma and extra-pulmonary symptoms, pre/post course. Those who attended two or more sessions were invited to provide feedback in interviews.</div></div><div><h3>Results</h3><div>Twenty-eight participants took part in one of the five courses. Thirteen (46 %) attended all four sessions and were sent post-course questionnaires, eight participants (62 %) returned them. Twelve participants provided post course feedback, Themes included: The course as a time to reflect, Appreciation of the group-format, Impact of pre-existing knowledge on enjoyment of the course and Areas of improvement. Maintaining course size, clarification of the course aims and methods were identified as areas of improvement by participants.</div></div><div><h3>Conclusion</h3><div>An educational course focused on managing extra-pulmonary symptoms is feasible and of perceived benefit to patients with severe asthma.</div></div><div><h3>Innovation</h3><div>BR could be incorporated into a rehab programme for patients with severe asthma with significant extrapulmonary symptoms.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100364"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11733048/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143017461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Supporting healthier food choices through AI-tailored advice: A research agenda 通过人工智能量身定制的建议支持更健康的食物选择:一项研究议程。
Pub Date : 2025-06-01 Epub Date: 2025-01-10 DOI: 10.1016/j.pecinn.2025.100372
Alain D. Starke , Jutta Dierkes , Gülen Arslan Lied , Gloria A.B. Kasangu , Christoph Trattner

Objective

To develop a research agenda to investigate the effectiveness of AI-tailored advice to support healthier home cooking. It aims to support healthier food choice in the context of hypertension, allergies, and sustainable diets.

Methods

We describe an agenda that has been formed between 2019 and 2022, through multiple rejected grant applications to the Research Council of Norway. We focus on the case of tailored recipe advice for individuals, formulating research questions and methods for three topics: “Acceptance of Personalized Food Advice”, “Algorithm and Interface AI: App Development”, and “Nutrition Modeling & Clinical Trials”. The overall methodology focuses on mitigating health issues among individuals with hypertension.

Conclusion

The design of AI to support healthier home cooking should tap into computational principles, as well as (psychological) theories of behavioral change. The effectiveness of an AI-driven home cooking app can be evaluated in a clinical trial akin to ‘regular’ dietary intervention studies.

Innovation

The development of a research agenda requires an integrated effort between scientists from different domains, during both the development and writeup of ideas. The proposed project is innovative, as most food technology and AI approaches have yet to be tested in proper trials on changes in eating habits.
目的:制定一项研究议程,调查人工智能量身定制的建议对支持更健康的家庭烹饪的有效性。它旨在支持在高血压、过敏和可持续饮食的背景下选择更健康的食物。方法:我们描述了2019年至2022年之间形成的议程,通过向挪威研究委员会提交的多项被拒绝的拨款申请。我们以个性化食谱建议为案例,针对“个性化饮食建议的接受”、“算法与界面AI: App开发”、“营养建模与临床试验”三个主题,制定研究问题与方法。总体方法侧重于减轻高血压患者的健康问题。结论:支持健康家庭烹饪的人工智能设计应该利用计算原理,以及行为改变的(心理学)理论。人工智能驱动的家庭烹饪应用程序的有效性可以在类似于“常规”饮食干预研究的临床试验中进行评估。创新:研究议程的制定需要来自不同领域的科学家在想法的发展和撰写过程中共同努力。拟议中的项目具有创新性,因为大多数食品技术和人工智能方法尚未在饮食习惯变化的适当试验中得到检验。
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引用次数: 0
Patients' emotional expressions and clinicians' responses in oncology – From recognition to exploration of concerns 肿瘤患者的情绪表达和临床医生的反应——从认识到关注的探索
Pub Date : 2025-06-01 Epub Date: 2025-01-17 DOI: 10.1016/j.pecinn.2025.100374
Fernanda Bittencourt Romeiro , Vanessa Garrido Pais , Gerry Humphris , Margarida Figueiredo-Braga

Objectives

The objective of this study was to analyze patient's emotional expressions during the consultations and the responses of their oncologists to these expressions.

Methods

The study employed a mixed-method, observational, descriptive, and explanatory design. A total of 31 adult patients at different clinical stages, undergoing cancer treatment and 8 oncologists were included. Thirty-one routine outpatient oncology consultations were analyzed, after being transcribed and coded, using the Portuguese version of the Verona Coding Definitions of Emotional Sequences (VR-CoDES).

Results

The oncologists elicited and recognized patients' emotional concerns but they did not explore them in a way that encouraged patients to continue verbalizing their feelings. Oncologists provided more directive and guidance-oriented responses, focusing on cues related to physical pain and symptoms. Multilevel logistic regression analysis modeled the probability of oncologists' responses showing reduction of space in relation to patients' emotional cues/concerns, controlling for clustering and patients' clinical and socio-demographic variables. The type of cue and treatment influenced the oncologists' responses.

Conclusions

Communication skills training focused on the ability to better explore patients' emotions may help oncologists to provide more explicit and empathetic responses that validate the emotional content expressed during consultations. Practice Implications: Oncologists do not use the same responses as a standard with patients, thus adjusting them individually.
目的本研究的目的是分析患者在会诊时的情绪表达以及肿瘤医生对这些情绪表达的反应。方法采用观察性、描述性和解释性设计相结合的方法。共纳入31名处于不同临床阶段、正在接受癌症治疗的成年患者和8名肿瘤学家。使用葡萄牙语版本的Verona编码定义的情感序列(VR-CoDES)进行转录和编码后,对31例常规门诊肿瘤会诊进行分析。结果肿瘤学家引起并认识到患者的情感担忧,但他们没有以鼓励患者继续用语言表达他们的感受的方式来探讨这些问题。肿瘤学家提供了更多的指导性和指导性的回应,重点关注与身体疼痛和症状相关的线索。在控制聚类和患者临床和社会人口变量的情况下,多水平逻辑回归分析模拟了肿瘤学家反应的概率,显示了与患者情绪线索/关注相关的空间减少。提示和治疗的类型影响肿瘤学家的反应。结论沟通技巧培训侧重于更好地了解患者情绪的能力,可以帮助肿瘤医生提供更明确、更感同身受的回应,从而验证患者在会诊时表达的情绪内容。实践意义:肿瘤学家不使用相同的反应作为患者的标准,因此单独调整它们。
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引用次数: 0
Are we offering palliative care and employing shared decision making in the neonatal intensive care unit? A 10-year retrospective chart review 我们是否提供姑息治疗,并在新生儿重症监护室采用共同决策?10年回顾性图表回顾
Pub Date : 2025-06-01 Epub Date: 2025-01-16 DOI: 10.1016/j.pecinn.2025.100375
Sawyer Karabelas-Pittman , Helen Coo , Hannah Lee , Christine C. Moon , Gillian MacLean

Objective

Perinatal palliative care (PPC) supports families with a fetal diagnosis of a life-limiting condition or who are facing preterm labour at the limits of viability. Shared decision making (SDM) is the gold standard approach in PPC. The objectives of this study were to describe the Neonatal Intensive Care Unit (NICU) team's involvement in PPC and the extent of SDM at an academic hospital in southeastern Ontario, and the frequency with which PPC was offered, accepted and received for live births.

Methods

We retrospectively reviewed charts for births from January 2010–January 2020 where a life-limiting condition (LLC) had been prenatally diagnosed or there was threatened preterm labour (TPTL) at the limits of viability. Frequency distributions were used to summarize the NICU team's involvement, extent of SDM, and data related to PPC provision.

Results

The LLC group included 73 patients. The NICU team was consulted for 26 (36 %). Among the 10 consults that involved decision making, SDM was documented in 9 instances (90 %). PPC was offered to 9 of 60 LLC families (15 %) with a live birth and was accepted by 8 (89 %). The TPTL Group included 112 patients. Seventy (62 %) received a consult with the NICU team. SDM was documented in 34 of 39 consults (87 %) that involved decision making. PPC was offered to 28 of 90 families (31 %) who experienced a live birth and was accepted by 16 (57 %).

Conclusion

Our results demonstrate the need for standardized consultation and palliative care referral protocols to advance access to and quality of neonatal end-of-life care.
目的围产期姑息治疗(PPC)支持胎儿诊断为生命受限条件或面临生存能力极限的早产的家庭。共享决策(SDM)是PPC的黄金标准方法。本研究的目的是描述安大略省东南部一家学术医院新生儿重症监护病房(NICU)团队参与PPC和SDM的程度,以及为活产婴儿提供、接受和接受PPC的频率。方法回顾性分析2010年1月至2020年1月产前诊断为生命限制状况(LLC)或生存能力极限时存在威胁性早产(TPTL)的新生儿图表。频率分布用于总结NICU团队的参与、SDM的程度以及与PPC提供相关的数据。结果LLC组73例。NICU小组咨询26例(36%)。在涉及决策制定的10个咨询中,SDM在9个实例中被记录(90%)。60个活产的LLC家庭中有9个(15%)接受了PPC, 8个(89%)接受了PPC。TPTL组包括112例患者。70例(62%)接受了NICU小组的会诊。39例涉及决策的咨询中有34例(87%)记录了SDM。90个活产家庭中有28个(31%)接受了PPC, 16个(57%)接受了PPC。结论我们的研究结果表明,需要标准化的咨询和姑息治疗转诊协议,以提高新生儿临终关怀的可及性和质量。
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引用次数: 0
Learning from brilliant failures 从辉煌的失败中学习
Pub Date : 2025-06-01 Epub Date: 2025-03-02 DOI: 10.1016/j.pecinn.2025.100383
Annemiek J Linn, Nanon Labrie
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引用次数: 0
Dissemination, adaptation, and uptake of patient-facing materials to improve care coordination in primary care 传播、改编和吸收面向患者的材料,以改善初级保健的护理协调
Pub Date : 2025-06-01 Epub Date: 2025-03-02 DOI: 10.1016/j.pecinn.2025.100386
Claire E. O'Hanlon , Jenny M. Barnard , Danielle E. Rose , Susan E. Stockdale , Evelyn T. Chang , Elizabeth M. Yano , David A. Ganz

Objective

We sought to improve patients' experience of care coordination by promoting the uptake of patient-facing tools with evidence of sustained use in Veterans Affairs (VA) primary care clinics. We disseminated tools, adapted and improved tools in response to feedback, and tracked real-world uptake.

Methods

We conducted outreach to leadership and frontline providers at local, regional, and national levels. We collaborated with frontline providers and veteran patients using human-centered design approaches to guide tool adaptation. We assessed dissemination and real-world uptake through website analytics and QR code tracking.

Results

Tools included paper pamphlets that explained care processes, provided contact information, and answered frequently asked questions. Feedback resulted in use of larger fonts; pictures and colors; less dense text; and QR codes. Discussions led to development of new tools addressing current challenges coordinating care with VA-paid community providers. We observed substantial uptake (>2000 tool page views, >3000 QR code accesses).

Conclusion

Simple patient-facing tools are valuable to patients and frontline providers as evidenced by voluntary uptake despite competing demands.

Innovation

Tools with evidence of sustained uptake were adapted to address current challenges with navigating care and care coordination among VA and non-VA providers. QR codes enabled tracking of real-world uptake.
目标我们试图通过促进退伍军人事务(VA)初级保健诊所对有持续使用证据的面向患者的工具的使用,来改善患者的护理协调体验。我们传播了工具,根据反馈意见调整和改进了工具,并跟踪了实际使用情况。方法我们在地方、地区和国家层面对领导层和一线医疗服务提供者进行了宣传。我们与一线医疗服务提供者和退伍军人患者合作,采用以人为本的设计方法来指导工具的改编。我们通过网站分析和 QR 码跟踪评估了传播情况和实际使用情况。结果工具包括纸质小册子,解释了护理流程、提供了联系信息并回答了常见问题。根据反馈意见,使用了较大的字体、图片和颜色、较少的文字密度以及 QR 码。通过讨论,我们开发了新的工具,以解决目前与退伍军人事务部付费的社区医疗服务提供者协调医疗服务所面临的挑战。我们观察到了大量的使用情况(2000 次工具页面浏览,3000 次 QR 代码访问)。结论面向患者的简单工具对患者和一线医疗服务提供者很有价值,尽管存在相互竞争的需求,但自愿使用这些工具的情况证明了这一点。通过 QR 码可以跟踪现实世界中的使用情况。
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引用次数: 0
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