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Hospital 4Ms: Documentation and association with patient characteristics 医院 4Ms:记录及与患者特征的关联。
IF 4.3 2区 医学 Q1 GERIATRICS & GERONTOLOGY Pub Date : 2024-10-07 DOI: 10.1111/jgs.19205
Sarah A. Welch DO, MPH, Kristin R. Archer PhD, DPT, Alicia M. Hymel MS, Jacquelyn S. Pennings PhD, Andrea Wershof Schwartz MD, MPH, AGSF, Christy Kang BS, Edward T. Qian MD, MS, Maria C. Duggan MD, MPH, Christianne L. Roumie MD, MPH

Background

For the thousands of health systems recognized as Age-Friendly, considerable progress has been made to integrate 4Ms into clinical care. This study evaluated associations between 4Ms documentation and patient characteristics in an inpatient setting.

Methods

In this prospective cohort, hospitalizations included were from patients in an Acute Care for Elders (ACE) unit where the 4Ms were adopted and implemented. Each M (What Matters, Medication, Mentation, and Mobility) was stratified into three categories (not documented, partly documented, and fully documented) reflecting “assessment” and “action” clinical care processes. Electronic health records were reviewed for patient and hospitalization characteristics. Descriptive statistics evaluated these characteristics across categories of each M.

Results

There were 620 hospital encounters (573 patients) included in the cohort. Patients had a median age of 80 years [IQR 76, 86] and 85% were White. Of all 4Ms, What Matters had the lowest documentation with 413 (67%) of encounters falling into the not documented group. Medication had the highest documentation with 453 (73%) of encounters in the fully documented group. Significant differences in documentation were associated with age and partly versus fully documented Mobility (80 [76, 86] and 82 [77, 88] (p = 0.019)). Hospital length of stay was differentially associated with documentation of all 4M categories. Initial mobility scores were associated with not versus partly documented Medication (6 [2, 7] and 2 [2, 6] (p = 0.041)).

Conclusions

We developed a structured way to categorize “assessment” and “action” 4Ms care processes reflective of three documentation categories in the hospital (not, partly, and fully) and identified important patient and hospital characteristics associated with each. These results offer opportunities for future improvement efforts and insight to which characteristics may be important to measure with wider 4Ms adoption and uptake.

背景:对于数以千计被认定为 "老年友好型 "的医疗系统而言,在将 4Ms 纳入临床护理方面已经取得了相当大的进展。本研究评估了 4Ms 文件与住院患者特征之间的关联:在这项前瞻性队列研究中,住院患者均来自于采用并实施 4Ms 的老年急症护理(ACE)病房。每个 M(重要事项、用药、指导和行动)被分为三类(未记录、部分记录和完全记录),反映了 "评估 "和 "行动 "临床护理流程。对电子健康记录中的患者和住院特征进行了审查。描述性统计评估了每个 M 类别的这些特征:共有 620 次住院(573 名患者)被纳入队列。患者的中位年龄为 80 岁 [IQR:76-86],85% 为白人。在所有 4Ms 中,"重要事项 "的记录最少,有 413 例(67%)病例属于无记录组。药物治疗记录最多,有 453 次(73%)属于完全记录组。记录的显著差异与年龄和部分记录与完全记录流动性有关(80 [76, 86] 和 82 [77, 88] (p = 0.019))。住院时间与所有 4M 类别的记录相关性不同。最初的活动能力评分与未记录用药和部分记录用药有关(6 [2, 7] 和 2 [2, 6] (p = 0.041)):我们开发了一种结构化方法,用于对 "评估 "和 "行动 "4Ms 护理流程进行分类,反映了医院的三种记录类别(未记录、部分记录和完全记录),并确定了与每种类别相关的重要患者和医院特征。这些结果为今后的改进工作提供了机会,并使我们深入了解了在更广泛地采用和吸收 4Ms 的过程中,哪些特征可能需要加以衡量。
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引用次数: 0
Assessing older adult physical activity levels in clinical settings: The modified PAVS for older adults 在临床环境中评估老年人的体育活动水平:针对老年人的改良版 PAVS。
IF 4.3 2区 医学 Q1 GERIATRICS & GERONTOLOGY Pub Date : 2024-10-03 DOI: 10.1111/jgs.19202
Mark Stoutenberg PhD, MSPH, Michael Rogers PhD, Paige Denison BS, Jeff Schlicht PhD, Kelsey Weitzel MS, Marcia Ory PhD, Garrett Kellar EdD, Louisa Summers PhD, Mariana Wingood PT, DPT, PhD, MPH

Background

Participating in recommended levels of physical activity (PA) is critical for preventing functional decline, falls, and frailty, making it essential to identify older adults not meeting national PA guidelines. However, guidance on assessing older adult PA levels, particularly in clinical settings, is lacking. This article presents an overview of clinically feasible PA assessment tools for older adults, identifies gaps in current tools, and provides recommendations on addressing these gaps.

Methods

We conducted a literature review on clinically feasible PA assessment tools, suggested modifications to an existing PA assessment for older adult patients, and highlighted opportunities for integrating the modified PA assessment tool in clinical settings.

Results

We identified 16 PA assessment tools used in clinical settings. The most widely used tool is the Physical Activity Vital Sign (PAVS), which has been successfully integrated into several electronic health records (EHR) and clinical practices. Most tools, including the PAVS, primarily focus on aerobic activities, with limited consideration for strength and balance. We recommend the use of a Modified PAVS for Older Adults that includes items on muscle-strengthening and balance activities to better align with national PA guidelines. We then identified several existing opportunities for broad implementation of the Modified PAVS for Older Adults within clinical settings.

Conclusions

Widespread integration of the Modified PAVS for Older Adults will better support healthcare providers in identifying individuals not meeting national PA recommendations, assisting them in prescribing tailored PA prescriptions and better connecting their patients to appropriate resources and professionals for further support.

背景:参加推荐水平的体育锻炼(PA)对于预防功能衰退、跌倒和虚弱至关重要,因此,识别未达到国家体育锻炼指南要求的老年人至关重要。然而,目前还缺乏评估老年人体育锻炼水平的指导,尤其是在临床环境中。本文概述了临床上可行的老年人体力活动评估工具,指出了当前工具中存在的不足,并就如何弥补这些不足提出了建议:方法:我们对临床上可行的 PA 评估工具进行了文献综述,对现有的针对老年患者的 PA 评估工具提出了修改建议,并强调了将修改后的 PA 评估工具整合到临床环境中的机会:结果:我们发现了 16 种在临床环境中使用的 PA 评估工具。使用最广泛的工具是体力活动生命体征 (PAVS),该工具已成功整合到多个电子健康记录 (EHR) 和临床实践中。包括 PAVS 在内的大多数工具主要侧重于有氧活动,对力量和平衡的考虑有限。我们建议使用 "改良版老年人有氧体力活动调查表",其中包括肌肉强化和平衡活动项目,以便更好地与国家有氧体力活动指南保持一致。然后,我们确定了在临床环境中广泛实施 "改良版老年人肌肉力量和平衡测试 "的几个现有机会:结论:广泛整合 "改良版老年人户外活动能力评估表 "将更好地帮助医疗服务提供者识别不符合国家户外活动建议的个人,协助他们开具量身定制的户外活动处方,并更好地将患者与适当的资源和专业人士联系起来,以提供进一步的支持。
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引用次数: 0
The prevalence of lifetime trauma and association with physical and psychosocial health among adults at the end of life 临终成年人一生中创伤的发生率及其与身体和社会心理健康的关系。
IF 4.3 2区 医学 Q1 GERIATRICS & GERONTOLOGY Pub Date : 2024-10-01 DOI: 10.1111/jgs.19209
Kate A. Duchowny PhD, MPH, Alexander K. Smith MD, MS, MPH, Irena Cenzer PhD, Chelsea Brown LCSW, Grace Noppert PhD, MPH, Kristine Yaffe MD, Amy L. Byers PhD, MPH, Carla Perissinotto MD, MHS, Ashwin A. Kotwal MD, MS

Background

National guidelines recognize lifetime trauma as relevant to clinical care for adults nearing the end of life. We determined the prevalence of early life and cumulative trauma among persons at the end of life by gender and birth cohort, and the association of lifetime trauma with end-of-life physical, mental, and social well-being.

Methods

We used nationally representative Health and Retirement Study data (2006–2020), including adults age > 50 who died while enrolled (N = 6495). Early life and cumulative traumatic events were measured using an 11-item traumatic events scale (cumulative trauma: 0–5+ events over the lifespan). We included six birth cohorts (born <1924; children of depression [1924–1930]; HRS cohort [1931–1941]; war babies [1942–1947]; early baby-boomers [1948–1953]; mid-baby boomers [1954–1959]). End-of-life outcomes included validated measures of physical (pain, fatigue, dyspnea), mental (depression, life satisfaction), and social (loneliness, social isolation) needs. We report the prevalence of lifetime trauma by gender and birth cohort and the adjusted probability of each end-of-life outcome by trauma using multivariable logistic regression.

Results

The mean age at death was 78 years (SD = 11.1) and 52% were female. Lifetime trauma was common (0 events: 19%; 1–2: 47%; 3–4: 25%; 5+: 9%), with variation in individual events (e.g., death of a child, weapons in combat) by gender and birth cohort. After adjustment, increasing cumulative trauma was significantly associated (p-value<0.001) with higher reports of end-of-life moderate-to-severe pain (0 events: 46%; 1–2 events: 50%; 3–4 events: 57%; 5+ events: 60%), fatigue (58%; 60%; 66%; 69%), dyspnea (46%; 51%; 56%; 58%), depression (24%; 33%; 37%; 40%), loneliness (12%; 17%; 19%; 22%), and lower life satisfaction (73%; 63%; 58%; 54%).

Conclusion

Older adults in the last years of life report a high prevalence of lifetime traumatic events which are associated with worse end-of-life physical and psychosocial health. A trauma-informed approach to end-of-life care and management of physical and psychosocial needs may improve a patient's quality of life.

背景:国家指南认为,终生创伤与临终成人的临床护理相关。我们按性别和出生队列确定了临终者早期生活创伤和累积创伤的发生率,以及终生创伤与临终者身体、精神和社会福祉的关联:我们使用了具有全国代表性的健康与退休研究数据(2006-2020 年),其中包括年龄在 50 岁以上、在注册期间死亡的成年人(N = 6495)。早年创伤事件和累积创伤事件采用 11 个项目的创伤事件量表进行测量(累积创伤:在整个生命周期中发生过 0-5 次以上的创伤事件)。我们纳入了六个出生组群(出生结果、出生日期和出生地点):死亡时的平均年龄为 78 岁(SD = 11.1),52% 为女性。终生创伤很常见(0 次:19%;1-2 次:47%;3-4 次:25%;5 次以上:9%),不同性别和出生组群的个体事件(如孩子死亡、战斗中的武器)存在差异。经调整后,累积创伤的增加与此有显著相关性(p-value):处于生命最后几年的老年人报告称,一生中创伤事件的发生率很高,这与他们生命末期身体和心理健康状况不佳有关。在临终关怀和身体及心理需求管理中采用创伤知情方法可提高患者的生活质量。
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引用次数: 0
Barriers to accessing home and community-based services among family caregivers of Veterans 退伍军人家庭照顾者获得家庭和社区服务的障碍。
IF 4.3 2区 医学 Q1 GERIATRICS & GERONTOLOGY Pub Date : 2024-09-25 DOI: 10.1111/jgs.19051
Ranak Trivedi PhD, Victoria Ngo PhD, Trevor Lee BS, Marika Blair Humber PhD, Rashmi Risbud MA, Josephine C. Jacobs PhD, Karl Lorenz MD, MSHS, Steven M. Asch MD, MPH, Dolores Gallagher-Thompson PhD, Luci K. Leykum MD, MBA, MSc, the Elizabeth Dole Center of Excellence for Veteran and Caregiver Research

Background

The Department of Veterans Affairs (VA) has long recognized the importance of having a rich complement of home and community-based resources for the Veteran population. For Veterans experiencing disability-related impairments, home- and community-based services (HCBS) facilitate aging in place and alleviate family caregivers' burden. However, even in the enriched VA context, HCBS are underutilized. Our objective was to understand unmet needs and barriers to accessing HCBS from the perspectives of Veterans' family caregivers.

Methods

This multi-method study recruited family caregivers of Veterans seen within a major VA Health Care System. Eligible caregivers provided care for at least 8 h/week in the prior 6 months, to a Veteran with 1+ impairments in instrumental activities of daily living. Recruitment was conducted via flyers, physician referrals, registries, and chart reviews. Participants completed 1-h semi-structured interviews to assess unmet psychosocial needs and barriers to accessing VA and non-VA HCBS. Interviews were analyzed using a thematic analysis approach.

Results

A total of 23 caregivers (62.9 + 13.5 years; 74% women; 52.2% White; 26.1% Black; 95.2% pre-9/11) provided 8.4 ± 6.3 h of daily care. Most had provided care for more than 1 year; nine had cared for their Veteran for 5+ years. The following themes were identified: (1) need for clear, accurate, timely information about HCBS; (2) lack of time, amplified by COVID-19 restrictions; (3) need for respite to manage their own health and other caregiving responsibilities; and (4) perceived difference in care needs that can strain caregivers' relationship with the care recipient.

Conclusions

In addition to known barriers including lack of timely knowledge, service delays, and caregiver stress, Veteran–caregiver disagreements emerged as a novel barrier to using HCBS. A multi-pronged approach that addresses these barriers may increase timely access to HCBS.

背景:退伍军人事务部(VA)早已认识到为退伍军人提供丰富的家庭和社区资源的重要性。对于有残疾相关损伤的退伍军人来说,家庭和社区服务(HCBS)有助于居家养老,减轻家庭照顾者的负担。然而,即使在退伍军人事务部的丰富环境中,家庭和社区服务也未得到充分利用。我们的目标是从退伍军人家庭照护者的角度来了解未得到满足的需求和获得 HCBS 的障碍:这项多方法研究招募了在退伍军人医疗保健系统内就诊的退伍军人的家庭护理人员。符合条件的照顾者在过去 6 个月中每周至少为一名在日常生活工具性活动方面有 1+ 缺陷的退伍军人提供 8 小时的照顾。招募通过传单、医生转介、登记和病历审查等方式进行。参与者完成了 1 小时的半结构式访谈,以评估未满足的社会心理需求以及获得退伍军人和非退伍军人 HCBS 的障碍。访谈采用主题分析法进行分析:共有 23 名护理人员(62.9 + 13.5 岁;74% 为女性;52.2% 为白人;26.1% 为黑人;95.2% 在 9/11 事件之前)提供了 8.4 ± 6.3 小时的日常护理。大多数人提供护理的时间超过 1 年;9 人护理退伍军人的时间超过 5 年。确定了以下主题:(1) 需要清晰、准确、及时的 HCBS 信息;(2) 缺乏时间,COVID-19 的限制更加剧了这一点;(3) 需要喘息的时间来管理自己的健康和其他护理责任;(4) 认为护理需求的差异会使护理者与接受护理者的关系紧张:除了已知的障碍(包括缺乏及时了解、服务延迟和护理者压力)外,退伍军人与护理者之间的分歧也成为使用 HCBS 的新障碍。采取多管齐下的方法来解决这些障碍可能会增加及时使用 HCBS 的机会。
{"title":"Barriers to accessing home and community-based services among family caregivers of Veterans","authors":"Ranak Trivedi PhD,&nbsp;Victoria Ngo PhD,&nbsp;Trevor Lee BS,&nbsp;Marika Blair Humber PhD,&nbsp;Rashmi Risbud MA,&nbsp;Josephine C. Jacobs PhD,&nbsp;Karl Lorenz MD, MSHS,&nbsp;Steven M. Asch MD, MPH,&nbsp;Dolores Gallagher-Thompson PhD,&nbsp;Luci K. Leykum MD, MBA, MSc,&nbsp;the Elizabeth Dole Center of Excellence for Veteran and Caregiver Research","doi":"10.1111/jgs.19051","DOIUrl":"10.1111/jgs.19051","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The Department of Veterans Affairs (VA) has long recognized the importance of having a rich complement of home and community-based resources for the Veteran population. For Veterans experiencing disability-related impairments, home- and community-based services (HCBS) facilitate aging in place and alleviate family caregivers' burden. However, even in the enriched VA context, HCBS are underutilized. Our objective was to understand unmet needs and barriers to accessing HCBS from the perspectives of Veterans' family caregivers.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This multi-method study recruited family caregivers of Veterans seen within a major VA Health Care System. Eligible caregivers provided care for at least 8 h/week in the prior 6 months, to a Veteran with 1+ impairments in instrumental activities of daily living. Recruitment was conducted via flyers, physician referrals, registries, and chart reviews. Participants completed 1-h semi-structured interviews to assess unmet psychosocial needs and barriers to accessing VA and non-VA HCBS. Interviews were analyzed using a thematic analysis approach.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A total of 23 caregivers (62.9 + 13.5 years; 74% women; 52.2% White; 26.1% Black; 95.2% pre-9/11) provided 8.4 ± 6.3 h of daily care. Most had provided care for more than 1 year; nine had cared for their Veteran for 5+ years. The following themes were identified: (1) need for clear, accurate, timely information about HCBS; (2) lack of time, amplified by COVID-19 restrictions; (3) need for respite to manage their own health and other caregiving responsibilities; and (4) perceived difference in care needs that can strain caregivers' relationship with the care recipient.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>In addition to known barriers including lack of timely knowledge, service delays, and caregiver stress, Veteran–caregiver disagreements emerged as a novel barrier to using HCBS. A multi-pronged approach that addresses these barriers may increase timely access to HCBS.</p>\u0000 </section>\u0000 </div>","PeriodicalId":17240,"journal":{"name":"Journal of the American Geriatrics Society","volume":"72 11","pages":"3541-3550"},"PeriodicalIF":4.3,"publicationDate":"2024-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142335359","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family caregiver lived experience matters in home- and community-based services 家庭照护者的生活经验对家庭和社区服务至关重要。
IF 4.3 2区 医学 Q1 GERIATRICS & GERONTOLOGY Pub Date : 2024-09-25 DOI: 10.1111/jgs.19120
Nathan A. Boucher DrPH, PA, MS, MPA, CPHQ
<p>In this issue of the Journal, Trivedi et al. (<i>not sure about final citation</i>) use in-depth interviews with family caregivers of Veterans to identify novel intervention targets to help the field improve awareness, access, and use of home- and community-based services (HCBS) among family caregivers. The authors now help me make a clarion call for the importance of engaging family caregivers—those family (sometimes friends/neighbors) bearing the joys and burdens of community-based care and support. Optimal support for aging adults and those living with disabilities in our community pivots on the awareness, willingness, skills, and time of family caregivers.</p><p>Inquiries such as this from Trivedi et al. are both timely and important. Their work reflects adherence to tenets of person-centeredness and community engagement trumpeted by recent reports such as the U.S. Department of Health and Human Services' Interagency Coordinating Committee on Healthy Aging and Age-Friendly Communities in May 2024, which explicitly calls out the role of family caregivers in community-based care.<span><sup>1</sup></span> The voices of family caregivers in the provision of HCBS need to be amplified as US health care and payment for that care are rebalanced toward community-based solutions and away from facility-based care.<span><sup>2</sup></span></p><p>The authors studied a critical context: family caregivers supporting Veterans served by the largest comprehensive healthcare system in the United States, the Veterans Administration (VA). Importantly, the VA pushes innovations in health systems research attuned to aging, disability, and caregiver inclusion,<span><sup>3-6</sup></span> but, as Trivedi et al. note, HCBS continue to be underutilized by Veterans and others. Complicating this, HCBS are under-resourced in many areas including direct care workers<span><sup>7</sup></span> who often work in tandem with family caregivers cobbling together ongoing services for the aging and those living with disabilities.<span><sup>1</sup></span> Well-supported family caregivers are crucial to the intended expansion in HCBS across populations.<span><sup>8, 9</sup></span></p><p>The authors bring to the readers of the Journal insights on barriers to optimal use of HCBS. They accomplish this by focusing not just on logistical issues—challenges known and persistent—but, more uniquely, psychosocial and interpersonal barriers to accessing VA and non-VA HCBS alike using two complementary research methods.</p><p>First, the authors conducted semi-structured interviews with caregivers. This was elegantly guided by Andersen's Behavioral Model of Health Services Use.<span><sup>10</sup></span> The first three resulting themes are not necessarily new but help bolster findings in the Veteran caregiver population where fewer studies reside. The authors found that caregivers experience gaps in accurate and timely information from the VA and community organizations; they lack time and expe
在本期期刊中,Trivedi 等人(不确定最终引文)通过对退伍军人家庭照护者的深入访谈,确定了新的干预目标,以帮助该领域提高家庭照护者对家庭和社区服务 (HCBS) 的认识、获取和使用。作者现在帮我大声呼吁,让家庭照顾者--那些承担着社区照顾和支持的快乐和负担的家人(有时是朋友/邻居)--参与进来非常重要。为社区中的老年人和残障人士提供最佳支持的关键在于家庭照顾者的意识、意愿、技能和时间。他们的工作体现了以人为本和社区参与的原则,这些原则在最近的报告中得到了大力弘扬,例如美国卫生与公众服务部的健康老龄化和老龄友好社区机构间协调委员会在 2024 年 5 月的报告中明确提出了家庭照护者在社区照护中的作用。2 作者研究了一个重要的背景:由美国最大的综合医疗系统退伍军人管理局(VA)提供服务的退伍军人家庭照护者。重要的是,退伍军人管理局推动了医疗系统研究的创新,以适应老龄化、残疾和照顾者的融入,3-6 但正如 Trivedi 等人所指出的,退伍军人和其他人对 HCBS 的利用仍然不足。1 得到良好支持的家庭照顾者对于在不同人群中推广 HCBS 至关重要。8, 9 作者为本刊读者带来了有关最佳使用 HCBS 的障碍的见解。为了实现这一目标,他们不仅关注了后勤问题--众所周知且长期存在的挑战--更独特的是,他们采用了两种互补的研究方法,同时关注了使用退伍军人和非退伍军人家庭护理服务的社会心理和人际障碍。首先,作者对护理人员进行了半结构式访谈,访谈以安德森的健康服务使用行为模型为指导。10 访谈得出的前三个主题并不一定是新的,但有助于支持退伍军人护理人员群体的研究结果,因为该群体的研究较少。作者发现,护理人员在退伍军人事务部和社区组织提供的准确及时的信息方面存在差距;他们缺乏时间并付出了机会成本;他们渴望得到喘息的机会,这使他们能够从护理工作中抽身出来,并为自己留出时间。第四个主题--人际关系的压力进一步阻碍了对 HCBS 的使用--是一个新颖的发现,在与退伍军人及其家人合作多年之后,我对此深有感触。个人自尊和自立在退伍军人的生活中扮演着重要角色,11 当然在退伍军人社区中与我有联系的人的生活中也是如此。当自尊心表现为拒绝寻求帮助,并且在作者的研究结果中,在接受护理者和护理者共同做出决定的方式上产生裂痕时,会发生什么呢?这种障碍并不小,可能会减少对所需服务和支持的参与。根据我的经验,始终以肯定他们迄今为止所取得的成就为引导,似乎是吸引这类人群参与的更好方法。此外,发掘军队文化中根深蒂固的团队合作理念也是另一个有用的策略--承认我们在广阔的人生道路上都需要帮助。其次,在访谈中,作者团队让参与者填写了一份通常属于 HCBS 的服务和支持清单。重要的是,参与者可以表示不知道该服务或支持,知道但没有使用,或者现在或过去使用过。虽然没有经过验证,但在我看来,这种测量方法是明确和有用的,并且与定性访谈很好地结合在一起。在这个样本中,对退伍军人护理者支持服务和其他社区服务缺乏了解是显而易见的,这与我们自己在重病护理者和退伍军人样本中的发现如出一辙12 。
{"title":"Family caregiver lived experience matters in home- and community-based services","authors":"Nathan A. Boucher DrPH, PA, MS, MPA, CPHQ","doi":"10.1111/jgs.19120","DOIUrl":"10.1111/jgs.19120","url":null,"abstract":"&lt;p&gt;In this issue of the Journal, Trivedi et al. (&lt;i&gt;not sure about final citation&lt;/i&gt;) use in-depth interviews with family caregivers of Veterans to identify novel intervention targets to help the field improve awareness, access, and use of home- and community-based services (HCBS) among family caregivers. The authors now help me make a clarion call for the importance of engaging family caregivers—those family (sometimes friends/neighbors) bearing the joys and burdens of community-based care and support. Optimal support for aging adults and those living with disabilities in our community pivots on the awareness, willingness, skills, and time of family caregivers.&lt;/p&gt;&lt;p&gt;Inquiries such as this from Trivedi et al. are both timely and important. Their work reflects adherence to tenets of person-centeredness and community engagement trumpeted by recent reports such as the U.S. Department of Health and Human Services' Interagency Coordinating Committee on Healthy Aging and Age-Friendly Communities in May 2024, which explicitly calls out the role of family caregivers in community-based care.&lt;span&gt;&lt;sup&gt;1&lt;/sup&gt;&lt;/span&gt; The voices of family caregivers in the provision of HCBS need to be amplified as US health care and payment for that care are rebalanced toward community-based solutions and away from facility-based care.&lt;span&gt;&lt;sup&gt;2&lt;/sup&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;The authors studied a critical context: family caregivers supporting Veterans served by the largest comprehensive healthcare system in the United States, the Veterans Administration (VA). Importantly, the VA pushes innovations in health systems research attuned to aging, disability, and caregiver inclusion,&lt;span&gt;&lt;sup&gt;3-6&lt;/sup&gt;&lt;/span&gt; but, as Trivedi et al. note, HCBS continue to be underutilized by Veterans and others. Complicating this, HCBS are under-resourced in many areas including direct care workers&lt;span&gt;&lt;sup&gt;7&lt;/sup&gt;&lt;/span&gt; who often work in tandem with family caregivers cobbling together ongoing services for the aging and those living with disabilities.&lt;span&gt;&lt;sup&gt;1&lt;/sup&gt;&lt;/span&gt; Well-supported family caregivers are crucial to the intended expansion in HCBS across populations.&lt;span&gt;&lt;sup&gt;8, 9&lt;/sup&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;The authors bring to the readers of the Journal insights on barriers to optimal use of HCBS. They accomplish this by focusing not just on logistical issues—challenges known and persistent—but, more uniquely, psychosocial and interpersonal barriers to accessing VA and non-VA HCBS alike using two complementary research methods.&lt;/p&gt;&lt;p&gt;First, the authors conducted semi-structured interviews with caregivers. This was elegantly guided by Andersen's Behavioral Model of Health Services Use.&lt;span&gt;&lt;sup&gt;10&lt;/sup&gt;&lt;/span&gt; The first three resulting themes are not necessarily new but help bolster findings in the Veteran caregiver population where fewer studies reside. The authors found that caregivers experience gaps in accurate and timely information from the VA and community organizations; they lack time and expe","PeriodicalId":17240,"journal":{"name":"Journal of the American Geriatrics Society","volume":"72 11","pages":"3296-3298"},"PeriodicalIF":4.3,"publicationDate":"2024-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jgs.19120","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142335360","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Should doctors prescribe death? Resisting the expansion of assisted suicide 医生是否应该开处方处死?抵制协助自杀的扩张。
IF 4.3 2区 医学 Q1 GERIATRICS & GERONTOLOGY Pub Date : 2024-09-24 DOI: 10.1111/jgs.19195
Peter Jaggard MD, Richard Sams MD
<p>In a recent article in this Journal, Pope and Brodoff advocate using voluntarily stopping eating and drinking (VSED) in patients with mild cognitive impairment (MCI) or early dementia as a “bridge to MAID” (medical aid in dying).<span><sup>1</sup></span> VSED allows the physician to declare a patient terminal due to dehydration, thus eligible to receive a lethal prescription. According to Pope and Brodoff, the lack of access to MAID for patients with MCI or early dementia “vexes a growing population who zealously want to avoid living with late-stage dementia.” They cite the track record in Canada of using VSED as a bridge to MAID. They call upon MAID clinicians in the United States to “develop guidelines to identify which patients may combine VSED and MAID.”<span><sup>1</sup></span></p><p>As clinicians who care for people with dementia, we oppose the proposal of Pope and Brodoff. We believe this is another among many other strategies to expand medicalized suicide. Pope has previously published his own list of needed expansions of MAID laws in the United States. Included in his list are removal of the terminal condition requirement, shortening of waiting times for obtaining lethal prescriptions, inclusion of mid-level practitioners as authorized prescribers of lethal agents, and allowing death by intravenous administration of the lethal agent.<span><sup>2</sup></span></p><p>Expansions of existing laws are already occurring, often at the expense of what were originally considered necessary safeguards. In New Mexico and Washington, nurse practitioners and physician assistants may now write lethal prescriptions. State residency requirements have been rescinded in Oregon and Vermont. In 2023, both Oregon and Washington rescinded the waiting period for those whose death is deemed “imminent” (WA) or within 15 days (OR), so lethal prescriptions can be written the same day as the initial evaluation for these patients.<span><sup>3</sup></span></p><p>In Canada, MAID is already “expanded” since its inception in 2016 by including active euthanasia—death by provider injection or infusion rather than oral prescription. Initially natural death had to be “reasonably foreseeable.” In 2021 that safeguard was removed.<span><sup>4</sup></span> Deaths by MAID rose from 7595 in 2021 to 10,064 in 2022.<span><sup>5</sup></span> MAID deaths now include an increasing number of patients with a variety of chronic nonterminal conditions.<span><sup>4</sup></span> Some describe MAID for those simply tired of living.<span><sup>6</sup></span></p><p>Regarding this expansion of MAID in Canada, David Brooks writes, “The lines between assisted suicide for medical reasons, as defined by the original MAID criteria, and straight-up suicide are blurring.. .. Suddenly debates arise over which lives are worth living.. .. Suddenly people who are ill or infirm are implicitly encouraged to feel guilty for wanting to live.”<span><sup>4</sup></span> With ethical lines being blurred, many who
{"title":"Should doctors prescribe death? Resisting the expansion of assisted suicide","authors":"Peter Jaggard MD,&nbsp;Richard Sams MD","doi":"10.1111/jgs.19195","DOIUrl":"10.1111/jgs.19195","url":null,"abstract":"&lt;p&gt;In a recent article in this Journal, Pope and Brodoff advocate using voluntarily stopping eating and drinking (VSED) in patients with mild cognitive impairment (MCI) or early dementia as a “bridge to MAID” (medical aid in dying).&lt;span&gt;&lt;sup&gt;1&lt;/sup&gt;&lt;/span&gt; VSED allows the physician to declare a patient terminal due to dehydration, thus eligible to receive a lethal prescription. According to Pope and Brodoff, the lack of access to MAID for patients with MCI or early dementia “vexes a growing population who zealously want to avoid living with late-stage dementia.” They cite the track record in Canada of using VSED as a bridge to MAID. They call upon MAID clinicians in the United States to “develop guidelines to identify which patients may combine VSED and MAID.”&lt;span&gt;&lt;sup&gt;1&lt;/sup&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;As clinicians who care for people with dementia, we oppose the proposal of Pope and Brodoff. We believe this is another among many other strategies to expand medicalized suicide. Pope has previously published his own list of needed expansions of MAID laws in the United States. Included in his list are removal of the terminal condition requirement, shortening of waiting times for obtaining lethal prescriptions, inclusion of mid-level practitioners as authorized prescribers of lethal agents, and allowing death by intravenous administration of the lethal agent.&lt;span&gt;&lt;sup&gt;2&lt;/sup&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;Expansions of existing laws are already occurring, often at the expense of what were originally considered necessary safeguards. In New Mexico and Washington, nurse practitioners and physician assistants may now write lethal prescriptions. State residency requirements have been rescinded in Oregon and Vermont. In 2023, both Oregon and Washington rescinded the waiting period for those whose death is deemed “imminent” (WA) or within 15 days (OR), so lethal prescriptions can be written the same day as the initial evaluation for these patients.&lt;span&gt;&lt;sup&gt;3&lt;/sup&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;In Canada, MAID is already “expanded” since its inception in 2016 by including active euthanasia—death by provider injection or infusion rather than oral prescription. Initially natural death had to be “reasonably foreseeable.” In 2021 that safeguard was removed.&lt;span&gt;&lt;sup&gt;4&lt;/sup&gt;&lt;/span&gt; Deaths by MAID rose from 7595 in 2021 to 10,064 in 2022.&lt;span&gt;&lt;sup&gt;5&lt;/sup&gt;&lt;/span&gt; MAID deaths now include an increasing number of patients with a variety of chronic nonterminal conditions.&lt;span&gt;&lt;sup&gt;4&lt;/sup&gt;&lt;/span&gt; Some describe MAID for those simply tired of living.&lt;span&gt;&lt;sup&gt;6&lt;/sup&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;Regarding this expansion of MAID in Canada, David Brooks writes, “The lines between assisted suicide for medical reasons, as defined by the original MAID criteria, and straight-up suicide are blurring.. .. Suddenly debates arise over which lives are worth living.. .. Suddenly people who are ill or infirm are implicitly encouraged to feel guilty for wanting to live.”&lt;span&gt;&lt;sup&gt;4&lt;/sup&gt;&lt;/span&gt; With ethical lines being blurred, many who","PeriodicalId":17240,"journal":{"name":"Journal of the American Geriatrics Society","volume":"73 1","pages":"312-313"},"PeriodicalIF":4.3,"publicationDate":"2024-09-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jgs.19195","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142335364","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Caring for dementia caregivers: How well does social risk screening reflect unmet needs? 关爱痴呆症护理人员:社会风险筛查在多大程度上反映了未满足的需求?
IF 4.3 2区 医学 Q1 GERIATRICS & GERONTOLOGY Pub Date : 2024-09-24 DOI: 10.1111/jgs.19200
Victoria A. Winslow MPH, Stacy Tessler Lindau MD, Elbert S. Huang MD, Spencer Asay BS, Amber E. Johnson MD, Soo Borson MD, Katherine Thompson MD, Jennifer A. Makelarski PhD

Background

Unmet social and caregiving needs can make caregiving for a person with dementia more difficult. Although national policy encourages adoption of systematic screening for health-related social risks (HRSRs) in clinical settings, the accuracy of these risk-based screening tools for detecting unmet social needs is unknown.

Methods

We used baseline data from dementia caregivers (N = 343) enrolled in a randomized controlled trial evaluating CommunityRx-Dementia, a social care intervention conducted on Chicago's South Side. We assessed caregivers' (1) unmet social and caregiving needs by querying need for 14 resource types and (2) HRSRs using the Center for Medicare & Medicaid Services (CMS) Accountable Health Communities (AHC) screening tool. Using unmet social needs as the reference, we examined the sensitivity of the AHC tool to detect food, housing, and transportation needs. Analyses were stratified by gender.

Results

Most caregivers were women (78%), non-Hispanic (96%), Black (81%), partnered (58%) and had an annual household income ≥$50K (64%). Unmet social and caregiving needs were similarly prevalent among women and men caregivers (87% had ≥1 need, 43% had ≥5 needs). HRSRs were also prevalent. The most common HRSR was lack of social support (45%). Housing instability, difficulty with utilities and having any HRSRs were significantly more prevalent among women (all p < 0.05). The AHC screener had low sensitivity for detecting unmet food (39%, 95% confidence interval [CI]: 27%–53%), housing (42%, 95% CI: 31%–53%), and transportation (22%, 95% CI: 14%–31%) needs. Sensitivity did not differ by gender for food (41% for women and 30% for men, p = 0.72) or housing (44% for women and 29% for men, p = 0.37) needs. For transportation needs, sensitivity was 27% for women versus 0% for men (p = 0.01).

Conclusions

Men and women caregivers have high rates of unmet social needs that are often missed by the CMS-recommended risk-based screening method. Findings indicate a role for need-based screening in implementing social care.

背景:未满足的社会和护理需求会使痴呆症患者的护理工作变得更加困难。尽管国家政策鼓励在临床环境中采用与健康相关的社会风险(HRSR)系统筛查,但这些基于风险的筛查工具在检测未满足的社会需求方面的准确性尚不清楚:我们使用了痴呆症照护者(N = 343)的基线数据,这些照护者参加了一项随机对照试验,对芝加哥南区的一项社会照护干预措施--CommunityRx-Dementia 进行了评估。我们通过查询 14 种资源类型的需求,评估了护理人员的(1)未满足的社会和护理需求,以及(2)使用医疗保险和医疗补助服务中心(CMS)负责任健康社区(AHC)筛查工具的 HRSR。以未满足的社会需求为参照,我们检查了 AHC 工具检测食物、住房和交通需求的灵敏度。分析按性别分层:大多数照顾者为女性(78%)、非西班牙裔(96%)、黑人(81%)、有伴侣者(58%),家庭年收入≥5 万美元(64%)。在女性和男性护理人员中,未满足的社会和护理需求同样普遍(87% 的护理人员≥1 项需求,43% 的护理人员≥5 项需求)。HRSR 也很普遍。最常见的 HRSR 是缺乏社会支持(45%)。住房不稳定、水电供应困难和任何 HRSR 在女性中的发生率都明显更高(均为 p):男性和女性护理人员未满足社会需求的比例都很高,而 CMS 推荐的基于风险的筛查方法往往会忽略这些需求。研究结果表明,基于需求的筛查在实施社会护理方面可以发挥作用。
{"title":"Caring for dementia caregivers: How well does social risk screening reflect unmet needs?","authors":"Victoria A. Winslow MPH,&nbsp;Stacy Tessler Lindau MD,&nbsp;Elbert S. Huang MD,&nbsp;Spencer Asay BS,&nbsp;Amber E. Johnson MD,&nbsp;Soo Borson MD,&nbsp;Katherine Thompson MD,&nbsp;Jennifer A. Makelarski PhD","doi":"10.1111/jgs.19200","DOIUrl":"10.1111/jgs.19200","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Unmet social and caregiving needs can make caregiving for a person with dementia more difficult. Although national policy encourages adoption of systematic screening for health-related social risks (HRSRs) in clinical settings, the accuracy of these risk-based screening tools for detecting unmet social needs is unknown.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We used baseline data from dementia caregivers (<i>N</i> = 343) enrolled in a randomized controlled trial evaluating CommunityRx-Dementia, a social care intervention conducted on Chicago's South Side. We assessed caregivers' (1) unmet social and caregiving needs by querying need for 14 resource types and (2) HRSRs using the Center for Medicare &amp; Medicaid Services (CMS) Accountable Health Communities (AHC) screening tool. Using unmet social needs as the reference, we examined the sensitivity of the AHC tool to detect food, housing, and transportation needs. Analyses were stratified by gender.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Most caregivers were women (78%), non-Hispanic (96%), Black (81%), partnered (58%) and had an annual household income ≥$50K (64%). Unmet social and caregiving needs were similarly prevalent among women and men caregivers (87% had ≥1 need, 43% had ≥5 needs). HRSRs were also prevalent. The most common HRSR was lack of social support (45%). Housing instability, difficulty with utilities and having any HRSRs were significantly more prevalent among women (all <i>p</i> &lt; 0.05). The AHC screener had low sensitivity for detecting unmet food (39%, 95% confidence interval [CI]: 27%–53%), housing (42%, 95% CI: 31%–53%), and transportation (22%, 95% CI: 14%–31%) needs. Sensitivity did not differ by gender for food (41% for women and 30% for men, <i>p</i> = 0.72) or housing (44% for women and 29% for men, <i>p</i> = 0.37) needs. For transportation needs, sensitivity was 27% for women versus 0% for men (<i>p</i> = 0.01).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Men and women caregivers have high rates of unmet social needs that are often missed by the CMS-recommended risk-based screening method. Findings indicate a role for need-based screening in implementing social care.</p>\u0000 </section>\u0000 </div>","PeriodicalId":17240,"journal":{"name":"Journal of the American Geriatrics Society","volume":"73 1","pages":"63-73"},"PeriodicalIF":4.3,"publicationDate":"2024-09-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11734105/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142309529","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
VSED bridge to MAID: Spotlighting better end-of-life options VSED 通往 MAID 的桥梁:聚焦更好的报废选择。
IF 4.3 2区 医学 Q1 GERIATRICS & GERONTOLOGY Pub Date : 2024-09-24 DOI: 10.1111/jgs.19197
Thaddeus M. Pope JD, PhD, Lisa Brodoff JD
<p>We thank Jaggard and Sams for their thoughtful comments on our article and on increasing patient access to person-centered palliative and hospice care.<span><sup>1, 2</sup></span> Here, we respond to their critiques of Medical Aid in Dying (MAID) and we expand our analysis of when voluntarily stopping eating and drinking (VSED) could be used as a bridge to MAID.</p><p>In our article, we explained that patients with dementia are not eligible for MAID based solely on their dementia diagnosis.<span><sup>2</sup></span> Because of their dementia, these patients would no longer have decision-making capacity by the time they were determined to have a terminal illness, defined as six months from death. Yet, because many of these patients want access to MAID, we defended a path to eligibility by bridging VSED to speed the diagnosis to a less-than-six-month terminal condition.<span><sup>2</sup></span> Jaggard and Sams oppose not only this combination but also other expansions of MAID and even MAID itself. We now address all three of their opposition points.</p><p>Jaggard and Sams are correct that access to MAID has been expanding. MAID states have: (1) shortened or permitted waiver of waiting periods, (2) authorized APRNs and PAs as prescribers, and (3) eliminated residency requirements.<span><sup>3, 4</sup></span> Jaggard and Sams describe these advances as “harmful expansions.”<span><sup>2</sup></span> But they cite no evidence, nor is any available, that any of these changes adversely impact patient safety. Instead, Jaggard and Sams commit the is/ought fallacy by abruptly moving from statements of fact to statements of value without explanation. The bare fact that MAID numbers are increasing cannot tell us whether those increases should be celebrated or avoided.</p><p>We celebrate expanded access to MAID because it promotes value-concordant care. Recent changes in most MAID states were carefully vetted through the state legislative process.<span><sup>3</sup></span> They were enacted in response both to robust evidence of impediments and to demand by constituents for broader availability. For example, because many patients do not explore MAID until late in their illness trajectory, they cannot survive the original 15-day waiting period. That led six MAID states to shorten or waive the waiting period.<span><sup>3, 4</sup></span></p><p>The basis of Jaggard and Sams's opposition to expanded access is not patient safety but value-based opposition to MAID itself. They argue we “should not legalize this practice in the first place” and “doctors should not prescribe death.”<span><sup>2</sup></span> While we respect that minority position, we note that all MAID laws permit both individual clinicians and entities to opt out of participation.<span><sup>3</sup></span> Most religiously affiliated facilities have declined to offer MAID.</p><p>Jaggard and Sams confuse matters when they state that “there are alternatives” to MAID and that patients “need” hospice. Th
{"title":"VSED bridge to MAID: Spotlighting better end-of-life options","authors":"Thaddeus M. Pope JD, PhD,&nbsp;Lisa Brodoff JD","doi":"10.1111/jgs.19197","DOIUrl":"10.1111/jgs.19197","url":null,"abstract":"&lt;p&gt;We thank Jaggard and Sams for their thoughtful comments on our article and on increasing patient access to person-centered palliative and hospice care.&lt;span&gt;&lt;sup&gt;1, 2&lt;/sup&gt;&lt;/span&gt; Here, we respond to their critiques of Medical Aid in Dying (MAID) and we expand our analysis of when voluntarily stopping eating and drinking (VSED) could be used as a bridge to MAID.&lt;/p&gt;&lt;p&gt;In our article, we explained that patients with dementia are not eligible for MAID based solely on their dementia diagnosis.&lt;span&gt;&lt;sup&gt;2&lt;/sup&gt;&lt;/span&gt; Because of their dementia, these patients would no longer have decision-making capacity by the time they were determined to have a terminal illness, defined as six months from death. Yet, because many of these patients want access to MAID, we defended a path to eligibility by bridging VSED to speed the diagnosis to a less-than-six-month terminal condition.&lt;span&gt;&lt;sup&gt;2&lt;/sup&gt;&lt;/span&gt; Jaggard and Sams oppose not only this combination but also other expansions of MAID and even MAID itself. We now address all three of their opposition points.&lt;/p&gt;&lt;p&gt;Jaggard and Sams are correct that access to MAID has been expanding. MAID states have: (1) shortened or permitted waiver of waiting periods, (2) authorized APRNs and PAs as prescribers, and (3) eliminated residency requirements.&lt;span&gt;&lt;sup&gt;3, 4&lt;/sup&gt;&lt;/span&gt; Jaggard and Sams describe these advances as “harmful expansions.”&lt;span&gt;&lt;sup&gt;2&lt;/sup&gt;&lt;/span&gt; But they cite no evidence, nor is any available, that any of these changes adversely impact patient safety. Instead, Jaggard and Sams commit the is/ought fallacy by abruptly moving from statements of fact to statements of value without explanation. The bare fact that MAID numbers are increasing cannot tell us whether those increases should be celebrated or avoided.&lt;/p&gt;&lt;p&gt;We celebrate expanded access to MAID because it promotes value-concordant care. Recent changes in most MAID states were carefully vetted through the state legislative process.&lt;span&gt;&lt;sup&gt;3&lt;/sup&gt;&lt;/span&gt; They were enacted in response both to robust evidence of impediments and to demand by constituents for broader availability. For example, because many patients do not explore MAID until late in their illness trajectory, they cannot survive the original 15-day waiting period. That led six MAID states to shorten or waive the waiting period.&lt;span&gt;&lt;sup&gt;3, 4&lt;/sup&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;The basis of Jaggard and Sams's opposition to expanded access is not patient safety but value-based opposition to MAID itself. They argue we “should not legalize this practice in the first place” and “doctors should not prescribe death.”&lt;span&gt;&lt;sup&gt;2&lt;/sup&gt;&lt;/span&gt; While we respect that minority position, we note that all MAID laws permit both individual clinicians and entities to opt out of participation.&lt;span&gt;&lt;sup&gt;3&lt;/sup&gt;&lt;/span&gt; Most religiously affiliated facilities have declined to offer MAID.&lt;/p&gt;&lt;p&gt;Jaggard and Sams confuse matters when they state that “there are alternatives” to MAID and that patients “need” hospice. Th","PeriodicalId":17240,"journal":{"name":"Journal of the American Geriatrics Society","volume":"73 1","pages":"314-315"},"PeriodicalIF":4.3,"publicationDate":"2024-09-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jgs.19197","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142335365","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
End-of-life emergency department use and healthcare expenditures among older adults: A nationally representative study 老年人临终前使用急诊科和医疗支出:一项具有全国代表性的研究。
IF 4.3 2区 医学 Q1 GERIATRICS & GERONTOLOGY Pub Date : 2024-09-23 DOI: 10.1111/jgs.19199
Cameron J. Gettel MD, MHS, Courtney Kitchen BA, Craig Rothenberg MPH, Yuxiao Song MS, Susan N. Hastings MD, MHSc, Maura Kennedy MD, MPH, Kei Ouchi MD, MPH, Adrian D. Haimovich MD, PhD, Ula Hwang MD, MPH, Arjun K. Venkatesh MD, MBA, MHS

Background

Emergency department (ED) visits at end-of-life may cause financial strain and serve as a marker of inadequate access to community services and health care. We sought to examine end-of-life ED use, total healthcare spending, and out-of-pocket spending in a nationally representative sample.

Methods

Using Medicare Current Beneficiary Survey data, we conducted a pooled cross-sectional analysis of Medicare beneficiaries aged 65+ years with a date of death between July 1, 2015 and December 31, 2021. Our primary outcomes were ED visits, total healthcare spending, and out-of-pocket spending in the 7, 30, 90, and 180 days preceding death. We estimated a series of zero-inflated negative binomial models identifying patient characteristics associated with the primary outcomes.

Results

Among 3812 older adult decedents, 610 (16%), 1207 (31.7%), 1582 (41.5%), and 1787 (46.9%) Medicare beneficiaries had ED visits in the final 7, 30, 90, and 180 days, respectively, of life. For Medicare beneficiaries with at least one ED visit in the final 30 days of life, the median total and out-of-pocket costs were, respectively, $12,500 and $308, compared, respectively, with $278 and $94 for those without any ED visits (p < 0.001 for both comparisons). Having a diagnosis of dementia (odds ratio [OR] 0.71; 95% confidence interval [CI] 0.51–0.99; p = 0.04) and being on hospice status during the year of death (OR 0.56; 95% CI 0.48–0.66; p = <0.001) were associated with a decreased likelihood of having an ED visit. Having dementia was associated with a decreased likelihood of having any healthcare spending (OR 0.50; 95% CI 0.36–0.71; p = 0.001) and any out-of-pocket spending (OR 0.51; 95% CI 0.36–0.72; p = <0.001).

Conclusions

One in three older adults visit the ED in the last month of life, and approximately one in two utilize ED services in the last half-year of life, with evidence of associated considerable total and out-of-pocket spending.

背景:临终时去急诊科就诊可能会造成经济压力,并成为无法充分获得社区服务和医疗保健的标志。我们试图在一个具有全国代表性的样本中研究临终时急诊室的使用情况、医疗保健总支出以及自付支出:利用医疗保险当前受益人调查数据,我们对年龄在 65 岁以上、死亡日期在 2015 年 7 月 1 日至 2021 年 12 月 31 日之间的医疗保险受益人进行了汇总横截面分析。我们的主要结果是死亡前 7 天、30 天、90 天和 180 天内的急诊就诊次数、医疗保健总支出和自付支出。我们估算了一系列零膨胀负二叉模型,以确定与主要结果相关的患者特征:在 3812 名老年死者中,分别有 610 人(16%)、1207 人(31.7%)、1582 人(41.5%)和 1787 人(46.9%)的医疗保险受益人在生命的最后 7 天、30 天、90 天和 180 天内到急诊室就诊。对于在生命最后 30 天内至少就诊过一次急诊室的医疗保险受益人,总费用和自付费用的中位数分别为 12,500 美元和 308 美元,而未就诊过急诊室的受益人的总费用和自付费用的中位数分别为 278 美元和 94 美元(P 结论):每三个老年人中就有一人在生命的最后一个月去急诊室就诊,每两个老年人中就有一人在生命的最后半年使用急诊室服务,有证据表明相关的总费用和自付费用相当可观。
{"title":"End-of-life emergency department use and healthcare expenditures among older adults: A nationally representative study","authors":"Cameron J. Gettel MD, MHS,&nbsp;Courtney Kitchen BA,&nbsp;Craig Rothenberg MPH,&nbsp;Yuxiao Song MS,&nbsp;Susan N. Hastings MD, MHSc,&nbsp;Maura Kennedy MD, MPH,&nbsp;Kei Ouchi MD, MPH,&nbsp;Adrian D. Haimovich MD, PhD,&nbsp;Ula Hwang MD, MPH,&nbsp;Arjun K. Venkatesh MD, MBA, MHS","doi":"10.1111/jgs.19199","DOIUrl":"10.1111/jgs.19199","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Emergency department (ED) visits at end-of-life may cause financial strain and serve as a marker of inadequate access to community services and health care. We sought to examine end-of-life ED use, total healthcare spending, and out-of-pocket spending in a nationally representative sample.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Using Medicare Current Beneficiary Survey data, we conducted a pooled cross-sectional analysis of Medicare beneficiaries aged 65+ years with a date of death between July 1, 2015 and December 31, 2021. Our primary outcomes were ED visits, total healthcare spending, and out-of-pocket spending in the 7, 30, 90, and 180 days preceding death. We estimated a series of zero-inflated negative binomial models identifying patient characteristics associated with the primary outcomes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Among 3812 older adult decedents, 610 (16%), 1207 (31.7%), 1582 (41.5%), and 1787 (46.9%) Medicare beneficiaries had ED visits in the final 7, 30, 90, and 180 days, respectively, of life. For Medicare beneficiaries with at least one ED visit in the final 30 days of life, the median total and out-of-pocket costs were, respectively, $12,500 and $308, compared, respectively, with $278 and $94 for those without any ED visits (<i>p</i> &lt; 0.001 for both comparisons). Having a diagnosis of dementia (odds ratio [OR] 0.71; 95% confidence interval [CI] 0.51–0.99; <i>p</i> = 0.04) and being on hospice status during the year of death (OR 0.56; 95% CI 0.48–0.66; <i>p</i> = &lt;0.001) were associated with a decreased likelihood of having an ED visit. Having dementia was associated with a decreased likelihood of having any healthcare spending (OR 0.50; 95% CI 0.36–0.71; <i>p</i> = 0.001) and any out-of-pocket spending (OR 0.51; 95% CI 0.36–0.72; <i>p</i> = &lt;0.001).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>One in three older adults visit the ED in the last month of life, and approximately one in two utilize ED services in the last half-year of life, with evidence of associated considerable total and out-of-pocket spending.</p>\u0000 </section>\u0000 </div>","PeriodicalId":17240,"journal":{"name":"Journal of the American Geriatrics Society","volume":"73 1","pages":"101-111"},"PeriodicalIF":4.3,"publicationDate":"2024-09-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142305005","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Dexmedetomidine for agitation in dementia: Current data and future direction. 右美托咪定治疗痴呆症患者的躁动:当前数据和未来方向。
IF 6.3 2区 医学 Q1 GERIATRICS & GERONTOLOGY Pub Date : 2024-09-19 DOI: 10.1111/jgs.19196
Kayla S Murphy,Julia C Golden,Rajesh R Tampi
BACKGROUNDThe incidence and prevalence of dementia, and thus dementia-related behavioral and psychological symptoms, are increasing significantly. Currently, there are limited safe and efficacious options for treating these symptoms. Dexmedetomidine has been used for agitation related to delirium and showed significant benefit in prior studies. This raises the question whether dexmedetomidine could also provide a safe and effective treatment for BPSD, including agitation related to dementia.METHODSOur team searched PubMed, Cochrane Database, and Ovid with the terms dexmedetomidine and dementia. Only studies published in English language journals, or with official English language translations, and human studies were included. All reports of dexmedetomidine for dementia were included regardless of study type.RESULTSNo completed studies on dexmedetomidine for agitation in dementia were identified. The TRANQUILITY study is in progress, although results are yet to be published.CONCLUSIONDexmedetomidine has shown benefit for hospital delirium and for agitation in schizophrenia and bipolar disorder. However, there are no completed studies published on dexmedetomidine for agitation in dementia. Controlled studies with larger sample sizes are needed to assess the efficacy, safety, and the best route of administration for this drug in managing BPSD including agitation.
背景痴呆症的发病率和流行率以及与痴呆症相关的行为和心理症状正在显著增加。目前,治疗这些症状的安全而有效的方法十分有限。右美托咪定已被用于治疗与谵妄相关的躁动,并在之前的研究中显示出明显的疗效。这就提出了一个问题:右美托咪定是否也能安全有效地治疗BPSD,包括与痴呆症相关的躁动?方法我们的研究小组以右美托咪定和痴呆症为关键词检索了PubMed、Cochrane数据库和Ovid。只有发表在英文期刊上的研究或有官方英文翻译的研究以及人类研究才被纳入。结果未发现有关右美托咪定治疗痴呆症躁动的完整研究。结论右美托咪定对住院谵妄以及精神分裂症和双相情感障碍中的躁动有一定疗效。然而,目前还没有关于右美托咪定治疗痴呆症躁动的完整研究报告。需要进行样本量更大的对照研究,以评估这种药物在治疗包括躁动在内的 BPSD 方面的疗效、安全性和最佳给药途径。
{"title":"Dexmedetomidine for agitation in dementia: Current data and future direction.","authors":"Kayla S Murphy,Julia C Golden,Rajesh R Tampi","doi":"10.1111/jgs.19196","DOIUrl":"https://doi.org/10.1111/jgs.19196","url":null,"abstract":"BACKGROUNDThe incidence and prevalence of dementia, and thus dementia-related behavioral and psychological symptoms, are increasing significantly. Currently, there are limited safe and efficacious options for treating these symptoms. Dexmedetomidine has been used for agitation related to delirium and showed significant benefit in prior studies. This raises the question whether dexmedetomidine could also provide a safe and effective treatment for BPSD, including agitation related to dementia.METHODSOur team searched PubMed, Cochrane Database, and Ovid with the terms dexmedetomidine and dementia. Only studies published in English language journals, or with official English language translations, and human studies were included. All reports of dexmedetomidine for dementia were included regardless of study type.RESULTSNo completed studies on dexmedetomidine for agitation in dementia were identified. The TRANQUILITY study is in progress, although results are yet to be published.CONCLUSIONDexmedetomidine has shown benefit for hospital delirium and for agitation in schizophrenia and bipolar disorder. However, there are no completed studies published on dexmedetomidine for agitation in dementia. Controlled studies with larger sample sizes are needed to assess the efficacy, safety, and the best route of administration for this drug in managing BPSD including agitation.","PeriodicalId":17240,"journal":{"name":"Journal of the American Geriatrics Society","volume":"191 1","pages":""},"PeriodicalIF":6.3,"publicationDate":"2024-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142251927","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Journal of the American Geriatrics Society
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