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Paradigmatic perspectives of research on the self-regulated learning of non-western learners in health professions education: a scoping review protocol. 从范式角度看非西方学习者在卫生专业教育中的自我调节学习研究:范围审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-24 DOI: 10.11124/JBIES-24-00144
Farah Yoosoof, Fathima Rizka Ihsan, Steven Agius, Neil Coulson, Kate Freeman, Nicola Cooper

Objective: The objective of this review will be to explore the paradigmatic perspectives of research on self-regulated learning in non-western learners in health professions education.

Introduction: Studies show that there are significant cultural differences in self-regulated learning. However, a predominantly positivistic research paradigm, attempting to fit cross-cultural populations into pre-defined western conceptualizations of self-regulated learning, has led to the disregard of these differences. Viewed from a critical realist paradigm, emerging evidence suggests the need for generalizable, yet culturally sensitive models. Given the relevance of self-regulated learning to success in an increasingly diverse health professions setting, the first step towards achieving this is to gain a systematic understanding of the paradigms of research on self-regulated learning in non-western learners in this context.

Inclusion criteria: Primary research on the self-regulated learning of non-western learners in health professions education will be included. Participants will include learners in the Global South, including learners from Japan and South Korea, based on study setting. Studies on self-regulation and self-directed learning will not be included.

Methods: This review will be conducted in accordance with the JBI methodology for scoping reviews. The following databases will be searched: MEDLINE (Ovid), CINAHL (EBSCOhost), ASSIA, PsycINFO (Ovid), ERIC (EBSCOhost), Web of Science Core Collection, CKNI, Epistemonikos, and LILACS. Gray literature will be searched for in Google Scholar, ProQuest Dissertations and Theses, and DART-Europe. There will be no date or language restrictions. Following independent title and abstract screening by 2 reviewers, data will be extracted into a piloted data extraction tool, which will be iteratively revised as needed. Analyzed data will be presented in graphs and tables, accompanied by a narrative summary.

Details of the review project available at open science framework: https://osf.io/gf2ez.

目的本综述旨在从范式的角度探讨健康专业教育中非西方学习者自我调节学习的研究:研究表明,在自我调节学习方面存在着显著的文化差异。然而,以实证主义为主导的研究范式,试图将跨文化人群纳入预先定义的西方自我调节学习概念中,导致了对这些差异的忽视。从批判现实主义范式的角度来看,新出现的证据表明,我们需要可推广的、但对文化敏感的模式。鉴于自我调节学习与在日益多样化的卫生专业环境中取得成功息息相关,实现这一目标的第一步就是系统地了解在此背景下非西方学习者自我调节学习的研究范式:纳入标准:将纳入有关非西方学习者在卫生专业教育中自我调节学习的初步研究。根据研究环境,参与者将包括全球南部的学习者,包括来自日本和韩国的学习者。有关自我调节和自主学习的研究将不包括在内:本综述将按照 JBI 的范围界定综述方法进行。将检索以下数据库:MEDLINE(Ovid)、CINAHL(EBSCOhost)、ASSIA、PsycINFO(Ovid)、ERIC(EBSCOhost)、Web of Science Core Collection、CKNI、Epistemonikos 和 LILACS。灰色文献将在 Google Scholar、ProQuest Dissertations and Theses 和 DART-Europe 中检索。没有日期或语言限制。在两名审稿人对标题和摘要进行独立筛选后,数据将被提取到一个试用的数据提取工具中,并根据需要对该工具进行反复修改。分析后的数据将以图表形式呈现,并附有叙述性摘要。审查项目的详细信息请访问开放科学框架:https://osf.io/gf2ez。
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引用次数: 0
Immune biomarkers and secondary hemophagocytic lymphohistiocytosis: a scoping review protocol. 免疫生物标志物与继发性嗜血细胞淋巴组织细胞增多症:范围界定审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-19 DOI: 10.11124/JBIES-24-00133
Alice Terrett, Magalie Van Loo, Krishnaswamy Sundararajan, David Brealey, Mervyn Singer, Jessica Manson, Eamon Patrick Raith

Objective: To identify immunological pathways and markers of severity of illness associated with clinical outcomes that may represent potential therapeutic targets in the management of secondary hemophagocytic lymphohistiocytosis.

Introduction: A broad range of immunomodulatory therapies is used to manage hemophagocytic lymphohistiocytosis, however the supporting evidence for these therapies is scarce. Identifying patients likely to experience more severe disease, or die, is currently extremely difficult, if not impossible. The identification of implicated cytokines in secondary disease can provide further support for the identification of high-risk patients and the development of targeted therapies.

Inclusion criteria: Studies reporting immune biomarker and cytokine measurement in adult patients (age >18 years) with secondary hemophagocytic lymphohistiocytosis.

Methods: The proposed review will be conducted in line with the JBI methodology for scoping reviews. The MEDLINE (Ovid) and Embase (Ovid) databases will be searched, without date limitations. Data will be extracted using a data extraction tool developed by the reviewers. Relevant sources will be retrieved, and their citation details imported into the JBI System for the Unified Management, Assessment and Review of Information.

目的确定与临床结果相关的免疫学途径和病情严重程度标记物,这些标记物可能是治疗继发性嗜血细胞淋巴组织细胞增多症的潜在治疗目标:目前有多种免疫调节疗法用于治疗嗜血细胞淋巴组织细胞增多症,但支持这些疗法的证据却很少。目前,鉴别可能出现更严重疾病或死亡的患者非常困难,甚至是不可能的。识别继发性疾病中的相关细胞因子可为识别高危患者和开发靶向疗法提供进一步支持:报告继发性嗜血细胞淋巴组织细胞增多症成年患者(年龄大于 18 岁)免疫生物标志物和细胞因子测量结果的研究:拟议的综述将按照 JBI 的范围界定综述方法进行。将检索 MEDLINE(Ovid)和 Embase(Ovid)数据库,无日期限制。将使用评审员开发的数据提取工具提取数据。检索相关资料来源,并将其引文详细信息导入 JBI 信息统一管理、评估和审查系统。
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引用次数: 0
Characteristics of natural environment use by occupational therapists working in mental health care: a scoping review. 从事心理健康护理工作的职业治疗师使用自然环境的特点:范围界定综述。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-19 DOI: 10.11124/JBIES-23-00437
Ruth Bishop, Frazer Underwood, Fiona Fraser, Lisa Burrows, Jill Shawe
<p><strong>Objective: </strong>The objective of this review was to identify and characterize the use of the natural environment/outdoor space by occupational therapists working in mental health care. This included consideration of the characteristics of the environment used, interventions, mental health conditions being treated, and the outcomes being used.</p><p><strong>Introduction: </strong>Research has demonstrated the link between human health and the environment. The benefits appear to be particularly relevant to people with mental health conditions. Occupational therapists already consider the environment when assessing and developing interventions, and therefore are well placed to consider and use the natural environment in mental health practice. However, the use of the natural environment by occupational therapists working in mental health is unclear.</p><p><strong>Inclusion criteria: </strong>The scoping review included any publication relating to the use of the natural environment/outdoor space in mental health occupational therapy practice. All forms of the natural environment or outdoor space were included, such as hospital gardens and local parks. There were no geographical, gender, or age restrictions. All mental health diagnoses were eligible for inclusion.</p><p><strong>Methods: </strong>Seven databases were searched: Embase (Ovid), Emcare (Ovid), MEDLINE (Ovid), PsycINFO (ProQuest), AMED (Ovid), Trip Database, and CINAHL (EBSCOhost). Gray literature was also searched using a selection of websites and digital repositories. Papers written in English were searched, with no time limit set on publication. Titles and abstracts were screened by 2 independent reviewers for assessment against the inclusion criteria, followed by a full-text review and data extraction. Data were extracted using the data extraction tool developed by the authors. Findings were presented in a tabular format, accompanied by a narrative summary describing how the results relate to the review objectives and question.</p><p><strong>Results: </strong>Of peer-reviewed publications, 7 papers used qualitative methods and 7 used mixed methodology. The remaining sources included conference abstracts, unpublished works, a book chapter, and a website article. The environments used included forests, beaches, gardens, and parks. A variety of interventions were delivered in these environments, including gardening and nature-based activities, physical activities, and animal-assisted interventions. Such activity-focused interventions are largely delivered in a group context, thus providing a social element. A diverse range of mental health conditions were treated. Several methods were used to consider the outcomes on the individual, including both qualitative measures and quantitative outcome measurement tools.</p><p><strong>Conclusions: </strong>The review highlights many characteristics of how the natural environment is being used across mental health services by occupatio
目的:本综述旨在确定和描述从事心理健康护理工作的职业治疗师对自然环境/户外空间的使用情况。这包括考虑所使用环境的特点、干预措施、所治疗的精神健康状况以及所使用的结果:研究表明,人类健康与环境息息相关。这些益处似乎与精神疾病患者尤为相关。职业治疗师在评估和制定干预措施时已经考虑到了环境问题,因此他们完全有能力在心理健康实践中考虑和利用自然环境。然而,从事心理健康工作的职业治疗师对自然环境的使用情况尚不清楚:范围界定审查包括与在心理健康职业治疗实践中使用自然环境/户外空间有关的任何出版物。所有形式的自然环境或户外空间都包括在内,如医院花园和当地公园。没有地域、性别或年龄限制。所有精神健康诊断均符合纳入条件:搜索了七个数据库:Embase(Ovid)、Emcare(Ovid)、MEDLINE(Ovid)、PsycINFO(ProQuest)、AMED(Ovid)、Trip Database 和 CINAHL(EBSCOhost)。此外,还利用部分网站和数字资料库对灰色文献进行了检索。检索的论文以英文撰写,出版时间不受限制。标题和摘要由两名独立审稿人根据纳入标准进行筛选,然后进行全文审阅和数据提取。数据提取使用作者开发的数据提取工具。研究结果以表格形式呈现,并附有叙述性摘要,说明研究结果与综述目标和问题的关系:在经同行评审的出版物中,7 篇论文使用了定性方法,7 篇使用了混合方法。其余来源包括会议摘要、未发表的作品、一本书的章节和一篇网站文章。使用的环境包括森林、海滩、花园和公园。在这些环境中提供了各种干预措施,包括园艺和自然活动、体育活动和动物辅助干预措施。这些以活动为重点的干预措施大多是在集体环境中进行的,因此提供了社交元素。治疗的精神健康状况多种多样。采用了多种方法来考虑对个人的影响,包括定性测量和定量结果测量工具:综述强调了职业治疗师在心理健康服务中使用自然环境的许多特点。这些干预措施针对的病症多种多样,并使用了多种结果测量工具来了解其影响。本综述可为心理健康职业疗法中基于自然的方法的进一步发展和实施提供支持。
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引用次数: 0
Return on investment of tobacco control measures: a systematic review protocol. 烟草控制措施的投资回报:系统性审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-17 DOI: 10.11124/JBIES-23-00371
Paramita Bhattacharya, Sajda Khatoon, Suraya Roy, Nirmalya Mukherjee, Amit Yadav, Pranay Lal, Subhash Pokhrel, Denny John

Objective: The objective of this systematic review will be to estimate the return on investment (ROI) and social return on investment (SROI) on tobacco control measures.

Introduction: Tobacco consumption has been proven to be associated with a huge epidemiological, humanistic, and economic burden. National and international organizations are making concerted efforts to control tobacco use. However, currently, there are no conclusive estimates of the ROI and SROI of such programs and policies.

Inclusion criteria: This review will include all studies that evaluate the ROI or SROI on tobacco control programs and policies on tobacco users and probable tobacco users globally.

Methods: This review will follow the JBI methodology for systematic reviews of economic evidence. Databases to be searched will include Embase (Ovid), MEDLINE (PubMed), Cochrane Central Register of Controlled Trials (CENTRAL), Health Economic Evaluation Database (HEED), National Health Service Economic Evaluation Database (NHS EED), CEA Registry, LILACS, Science Direct, Web of Science, EconLit, and Google Advanced Search. Gray literature will also be searched for in non-academic databases, including the websites of various civil societies and non-governmental organizations involved in tobacco control. Two independent reviewers will screen titles/abstracts, and later full-text studies. Critical appraisal will be conducted using the JBI checklist for economic evaluations and the SROI Quality Framework. Data will be extracted and synthesized using JBI data extraction forms and synthesis tools. The MPOWER framework will be considered for data synthesis across all selected studies using narrative synthesis, tables, and figures.

Systematic review registration number: PROSPERO CRD42023391591.

目标:本系统综述旨在估算烟草控制措施的投资回报率(ROI)和社会投资回报率(SROI):烟草消费已被证明与巨大的流行病学、人文和经济负担有关。国家和国际组织正在共同努力控制烟草使用。然而,目前还没有对这些计划和政策的投资回报率(ROI)和社会投资回报率(SROI)进行确凿的估算:本综述将包括所有评估烟草控制项目和政策对全球烟草使用者和可能的烟草使用者的投资回报率或社会收益回报率的研究:本综述将采用 JBI 方法对经济证据进行系统综述。将检索的数据库包括:Embase (Ovid)、MEDLINE (PubMed)、Cochrane对照试验中央登记册(CENTRAL)、卫生经济评价数据库(HEED)、国家卫生服务经济评价数据库(NHS EED)、CEA Registry、LILACS、Science Direct、Web of Science、EconLit和Google高级搜索。还将在非学术数据库中搜索灰色文献,包括参与烟草控制的各种民间团体和非政府组织的网站。两名独立审稿人将筛选标题/摘要,之后再筛选研究报告全文。将使用 JBI 经济评估核对表和 SROI 质量框架进行严格评估。将使用 JBI 数据提取表和综合工具提取和综合数据。在对所有选定的研究进行数据综合时,将考虑使用 MPOWER 框架,并使用叙述性综合、表格和图表:系统综述注册编号:PREMCORD42023391591。
{"title":"Return on investment of tobacco control measures: a systematic review protocol.","authors":"Paramita Bhattacharya, Sajda Khatoon, Suraya Roy, Nirmalya Mukherjee, Amit Yadav, Pranay Lal, Subhash Pokhrel, Denny John","doi":"10.11124/JBIES-23-00371","DOIUrl":"https://doi.org/10.11124/JBIES-23-00371","url":null,"abstract":"<p><strong>Objective: </strong>The objective of this systematic review will be to estimate the return on investment (ROI) and social return on investment (SROI) on tobacco control measures.</p><p><strong>Introduction: </strong>Tobacco consumption has been proven to be associated with a huge epidemiological, humanistic, and economic burden. National and international organizations are making concerted efforts to control tobacco use. However, currently, there are no conclusive estimates of the ROI and SROI of such programs and policies.</p><p><strong>Inclusion criteria: </strong>This review will include all studies that evaluate the ROI or SROI on tobacco control programs and policies on tobacco users and probable tobacco users globally.</p><p><strong>Methods: </strong>This review will follow the JBI methodology for systematic reviews of economic evidence. Databases to be searched will include Embase (Ovid), MEDLINE (PubMed), Cochrane Central Register of Controlled Trials (CENTRAL), Health Economic Evaluation Database (HEED), National Health Service Economic Evaluation Database (NHS EED), CEA Registry, LILACS, Science Direct, Web of Science, EconLit, and Google Advanced Search. Gray literature will also be searched for in non-academic databases, including the websites of various civil societies and non-governmental organizations involved in tobacco control. Two independent reviewers will screen titles/abstracts, and later full-text studies. Critical appraisal will be conducted using the JBI checklist for economic evaluations and the SROI Quality Framework. Data will be extracted and synthesized using JBI data extraction forms and synthesis tools. The MPOWER framework will be considered for data synthesis across all selected studies using narrative synthesis, tables, and figures.</p><p><strong>Systematic review registration number: </strong>PROSPERO CRD42023391591.</p>","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":""},"PeriodicalIF":1.5,"publicationDate":"2024-09-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142297429","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Integrated care for adults with chronic musculoskeletal disorders: a scoping review protocol. 为患有慢性肌肉骨骼疾病的成年人提供综合护理:范围界定审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-17 DOI: 10.11124/JBIES-23-00534
Mulugeta Bayisa Chala, Jacobi Elliott, G Ross Baker, David M Walton, Micheline Steele, Siobhan Schabrun

Objective: The objective of this scoping review is to describe the current evidence exploring integrated care for people with chronic musculoskeletal disorders.

Introduction: The integrated model of care is an emerging approach to delivering person-centered care. Integrated care supports the management of people with major chronic health conditions; however, the evidence behind its use to support people with chronic musculoskeletal disorders is scant. This scoping review will synthesize how integrated care is conceptualized, delivered, and evaluated for people with chronic musculoskeletal disorders. The review will also synthesize the attributes, components, elements, goals, frequently evaluated outcomes, theories/frameworks, and facilitators and barriers to delivering this model among people with musculoskeletal disorders.

Inclusion criteria: Studies conducted on the delivery and/or evaluation of integrated care for people with chronic musculoskeletal disorders in any health care setting (eg, primary, secondary, tertiary) and/or geographical location (countries, cultures) will be considered.

Methods: The review will follow the JBI scoping review methodology. Databases such as MEDLINE (Ovid), CINAHL (EBSCOhost), Scopus, Embase (Ovid), PsycINFO (Ovid), the JBI EBP Database, PEDRO, Cochrane Central Register of Controlled Trials (CENTRAL), Google Scholar, and Web of Science, as well as sources of gray literature will be thoroughly searched. Papers published in all languages will be considered. Two reviewers will independently review the selected articles and extract data using a data extraction tool developed for this scoping review. The analysis will involve numerical and descriptive summaries of the selected articles and will be presented using graphs and tables, in line with Preferred Reported Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR).

目的本范围综述旨在描述目前探索针对慢性肌肉骨骼疾病患者的综合护理的证据:综合护理模式是一种新兴的以人为本的护理方式。综合护理支持对患有主要慢性疾病的患者进行管理;然而,将其用于支持慢性肌肉骨骼疾病患者的证据却很少。本范围界定综述将对综合护理的概念化、实施以及对慢性肌肉骨骼疾病患者的评估进行综述。综述还将综合归纳综合护理的属性、组成部分、要素、目标、经常评估的结果、理论/框架,以及为肌肉骨骼疾病患者提供这种模式的促进因素和障碍:纳入标准:有关在任何医疗环境(如初级、二级、三级)和/或地理位置(国家、文化)为慢性肌肉骨骼疾病患者提供和/或评估综合护理的研究均可考虑:综述将遵循 JBI 的范围综述方法。将对 MEDLINE (Ovid)、CINAHL (EBSCOhost)、Scopus、Embase (Ovid)、PsycINFO (Ovid)、JBI EBP 数据库、PEDRO、Cochrane Central Register of Controlled Trials (CENTRAL)、Google Scholar 和 Web of Science 等数据库以及灰色文献来源进行全面检索。以所有语言发表的论文都将被考虑。两名审稿人将独立审阅所选文章,并使用为此次范围界定综述开发的数据提取工具提取数据。分析将包括对所选文章的数字和描述性总结,并将根据《系统综述和元分析首选报告项目》(Preferred Reported Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews,PRISMA-ScR)使用图表进行展示。
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引用次数: 0
Informal caregivers' feeding experiences for children with cancer: a qualitative systematic review protocol. 非正规照护者喂养癌症患儿的经验:定性系统综述方案。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-16 DOI: 10.11124/JBIES-24-00081
Donruedee Kamkhoad, Tippawan Srichalerm, Porawan Witwaranukool

Objective: The objective of this review is to synthesize the experiences of informal caregivers' feeding practices for children with cancer.

Introduction: Changes in eating among children with cancer impact their nutritional status, leading to several negative outcomes. In addition to interventions given by health care providers, informal caregivers' experiences in feeding these children are worth exploring.

Inclusion criteria: This review will include qualitative studies or the qualitative component of mixed method studies examining informal caregivers' experiences of feeding children with cancer under 18 years old, published in English or Thai in any year up to the present.

Methods: This review will follow the JBI approach for qualitative systematic reviews. A full search strategy for MEDLINE (PubMed) was developed from an initial limited search of MEDLINE (PubMed) and CINAHL (EBSCOhost) to identify articles on the topic. The search strategy will be adapted for each database, including Embase (Ovid), MEDLINE (PubMed), CINAHL (EBSCOhost), Cochrane Library (CENTRAL), LILACS (BVS), PsycINFO (Ovid), Web of Science, Scopus, and ThaiJO (TCI). The reference lists of studies included in the review will be hand-searched for additional studies. Sources of unpublished studies and gray literature will also be searched. Two reviewers will separately screen for eligible studies, perform the critical appraisal, and extract data. They will then synthesize via meta-aggregation and summarize the data. The final synthesized findings will be graded using the ConQual approach to establish confidence in the qualitative research synthesis.

Review registration: PROSPERO CRD42024501382.

目的本综述旨在总结非正规照顾者对癌症儿童喂养方式的经验:癌症儿童的饮食变化会影响他们的营养状况,从而导致多种不良后果。除了医护人员的干预措施外,非正规护理人员在喂养这些儿童方面的经验也值得探讨:本综述将包括定性研究或混合方法研究中的定性部分,这些研究探讨了非正规护理人员在喂养 18 岁以下癌症患儿方面的经验:本综述将采用 JBI 的定性系统综述方法。在最初对 MEDLINE (PubMed) 和 CINAHL (EBSCOhost) 进行有限检索的基础上,制定了 MEDLINE (PubMed) 的全面检索策略,以确定与该主题相关的文章。该检索策略将针对每个数据库进行调整,包括 Embase (Ovid)、MEDLINE (PubMed)、CINAHL (EBSCOhost)、Cochrane Library (CENTRAL)、LILACS (BVS)、PsycINFO (Ovid)、Web of Science、Scopus 和 ThaiJO (TCI)。此外,我们还将对纳入综述的研究的参考文献目录进行人工检索,以查找更多的研究。还将搜索未发表的研究和灰色文献。两名审稿人将分别筛选符合条件的研究、进行严格评估并提取数据。然后,他们将通过元聚合对数据进行综合和总结。最终的综合结果将采用 ConQual 方法进行分级,以建立对定性研究综合结果的信心:综述注册:prospero crd42024501382。
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引用次数: 0
Epidemiological burden of inborn errors of metabolism in low- and middle-income countries: a systematic review protocol. 中低收入国家先天性代谢错误的流行病学负担:系统审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-13 DOI: 10.11124/JBIES-23-00540
Kavita Kachroo, Annie NithiyaVathani Johnson, S A K Moinudeen, Jitendra Sharma, Cheryl Holly

Objective: This systematic review examines the evidence on the incidence and prevalence of inborn errors of metabolism (IEMs) in low- and middle-income countries (LMICs).

Introduction: IEMs are a set of conditions that can either be inherited or result from spontaneous mutations. Although each condition is rare in isolation, various specific disorders within the IEM group have an estimated global prevalence of 50.9 per 100,000 live births. A precise estimate of the prevalence and incidence of IEM in LMICs can help determine the necessity for extensive newborn screening programs.

Inclusion criteria: This review will cover studies conducted in LMICs, reporting on IEMs in infants and children under the age of 5 years. Studies that calculate birth prevalence and incidence of IEM will be included. Studies that provide information on the causes, clinical characteristics, treatment, case fatality rates, mortality rates, and other outcomes will also be considered.

Methods: The databases to be searched include PubMed, MEDLINE (Ovid), Embase (Ovid), CINAHL (EBSCOhost), Scopus, and gray literature sources. No date or language restrictions will be applied. Our search will encompass analytical and descriptive observational studies, which will be critically appraised by 2 independent reviewers. Data will be extracted using JBI data extraction tools. If sufficient data are available, a meta-analysis will be performed. Alternatively, if data are limited, we will present our findings in narrative format using tables and figures.

Review registration: PROSPERO CRD42023457421.

摘要本系统综述研究了中低收入国家(LMICs)先天性代谢异常(IEMs)发病率和流行率的相关证据:导言:先天性代谢异常是一系列可遗传或由自发突变引起的疾病。虽然每种疾病单独来看都很罕见,但 IEM 组中的各种特定疾病在全球的发病率估计为每 10 万名活产婴儿中有 50.9 例。准确估计 IEM 在低收入和中等收入国家的流行率和发病率有助于确定是否有必要开展广泛的新生儿筛查计划:本综述将涵盖在低收入和中等收入国家进行的、报告 5 岁以下婴儿和儿童中 IEMs 的研究。将包括计算新生儿肠道疾病出生率和发病率的研究。提供病因、临床特征、治疗、病死率、死亡率和其他结果信息的研究也在考虑之列:检索的数据库包括 PubMed、MEDLINE (Ovid)、Embase (Ovid)、CINAHL (EBSCOhost)、Scopus 和灰色文献来源。没有日期或语言限制。我们的检索将包括分析性和描述性观察研究,这些研究将由两名独立审稿人进行严格评估。将使用 JBI 数据提取工具提取数据。如果有足够的数据,将进行荟萃分析。或者,如果数据有限,我们将使用表格和图表以叙述的形式呈现我们的研究结果:PREMCORD42023457421。
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引用次数: 0
Nursing strategies to address health disparities in genomics-informed care: a scoping review. 在基因组学知情护理中解决健康差异的护理策略:范围界定综述。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-11 DOI: 10.11124/JBIES-24-00009
Jacqueline Limoges, Patrick Chiu, Dzifa Dordunoo, Rebecca Puddester, April Pike, Tessa Wonsiak, Bernadette Zakher, Lindsay Carlsson, Jessica K Mussell
<p><strong>Objective: </strong>The objective of this review was to map the available global evidence on strategies that nurses can use to facilitate genomics-informed health care to address health disparities to inform the development of a research and action agenda.</p><p><strong>Introduction: </strong>The integration of genomics into health care is improving patient outcomes through better prevention, diagnostics, and treatment; however, scholars have noted concerns with widening health disparities. Nurses work across the health system and can address health disparities from a clinical, research, education, policy, and leadership perspective. To do this, a comprehensive understanding of existing genomics-informed strategies is required.</p><p><strong>Inclusion criteria: </strong>Published (qualitative, quantitative, mixed methods studies, systematic and literature reviews and text and opinion papers) and unpublished (gray) literature that focuses on genomics-informed nursing strategies to address health disparities over the last 10 years were included. No limitations were placed on language.</p><p><strong>Methods: </strong>The review was conducted in accordance with the JBI methodology for scoping reviews. A search was undertaken on May 25, 2023, across 5 databases: MEDLINE (Ovid), Embase, Cochrane Library (Ovid), APA PsycINFO (EBSCOhost), and CINAHL (EBSCOhost). Gray literature was searched through websites, including the International Society of Nurses in Genetics and the Global Genomics Nursing Alliance. Abstracts, titles, and full texts were screened by 2 or more independent reviewers. Data were extracted using a data extraction tool. The coded data were analyzed by 2 or more independent reviewers using conventional content analysis and the summarized results are presented using descriptive statistics and evidence tables.</p><p><strong>Results: </strong>In total, we screened 818 records and 31 were included in the review. The majority of papers were published in either 2019 (n=5, 16%), 2020 (n=5, 16%), or 2021 (n=5, 16%). Most papers came from the United States (n=25, 81%) followed by the Netherlands (n=3, 10%), United Kingdom (n=1, 3%), Tanzania (n=1, 3%) and written from a global perspective (n=1, 3%). Nearly half the papers discussed cancer-related conditions (n=14, 45%) and most of the others did not specify a disease or condition (n=12, 30%). In terms of population, nurse clinicians were mentioned the most frequently (n=16, 52%) followed by nurse researchers, scholars, or scientists (n=8, 26%). The patient population varied, with African American patients or communities (n=7, 23%) and racial or ethnic minorities (n=6, 19%) discussed most frequently. The majority of equity issues focused on inequitable access to genetic and genomics health services amongst ethnic and racial groups (n=14, 45%), individuals with lower educational attainment or health literacy (n=6, 19%), individuals with lower socioeconomic status (n=3, 10%), migrants (n=
目标:本综述的目的是对护士可用于促进以基因组学为依据的医疗保健以解决健康差距问题的策略的现有全球证据进行摸底,为制定研究和行动议程提供信息:将基因组学融入医疗保健,通过更好的预防、诊断和治疗改善了患者的预后;然而,学者们也注意到了健康差距扩大的问题。护士的工作涉及整个医疗系统,可以从临床、研究、教育、政策和领导力的角度解决健康差异问题。为此,需要全面了解现有的基因组学知情策略:包括已发表的(定性、定量、混合方法研究、系统和文献综述以及文本和观点论文)和未发表的(灰色)文献,这些文献关注的是过去 10 年中以基因组学为依据的护理策略来解决健康差异问题。对语言没有限制:综述按照 JBI 的范围综述方法进行。2023 年 5 月 25 日,在 5 个数据库中进行了检索:MEDLINE(Ovid)、Embase、Cochrane Library(Ovid)、APA PsycINFO(EBSCOhost)和CINAHL(EBSCOhost)。灰色文献通过网站进行搜索,包括国际遗传学护士协会和全球基因组学护理联盟。摘要、标题和全文由两名或两名以上独立审稿人进行筛选。使用数据提取工具提取数据。两名或两名以上的独立审稿人使用传统的内容分析法对编码数据进行分析,并使用描述性统计和证据表对结果进行汇总:我们共筛选了 818 条记录,其中 31 条被纳入综述。大部分论文发表于2019年(5篇,占16%)、2020年(5篇,占16%)或2021年(5篇,占16%)。大多数论文来自美国(n=25,81%),其次是荷兰(n=3,10%)、英国(n=1,3%)、坦桑尼亚(n=1,3%)以及从全球角度撰写的论文(n=1,3%)。近一半的论文讨论了与癌症相关的病症(14 篇,占 45%),其他大多数论文没有具体说明疾病或病症(12 篇,占 30%)。就人群而言,临床护士被提及的频率最高(16 人,占 52%),其次是护士研究人员、学者或科学家(8 人,占 26%)。病人群体各不相同,非裔美国病人或社区(7 人,占 23%)以及少数种族或族裔(6 人,占 19%)最常被讨论。大多数公平问题都集中在以下人群中:少数民族和种族群体(14 人,占 45%)、教育程度或健康知识水平较低者(6 人,占 19%)、社会经济地位较低者(3 人,占 10%)、移民(3 人,占 10%)、缺乏保险者(2 人,占 6%)、农村或偏远地区居民(1 人,占 3%)、老年人(1 人,占 3%)。造成健康差异问题的根本原因在患者、提供者和系统层面各不相同。我们将策略分为两类:为护理人员做好准备的策略和护士可在实践中实施的策略。我们还根据实践领域对策略进行了进一步分类,包括临床实践、教育、研究、政策倡导和领导力。提及培养护理人员的策略的论文主要与教育领域有关(16 篇,占 52%),而提及护士可以实施的策略的论文主要与临床实践有关(19 篇,占 61%):结论:所有实践领域的护士都可以借鉴已确定的策略,解决医疗保健中与基因组学相关的健康差异问题。我们发现,探索对健康和公平结果的影响的干预和评估研究明显不足。我们需要开展更多基于实施科学的研究,并对健康结果进行测量,以确定最佳实践:本综述的法文版摘要作为补充数字内容[ http://links.lww.com/SRX/A65 ]提供。
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引用次数: 0
Strategies to increase accessibility for students with disabilities in health professional programs: a scoping review protocol. 提高卫生专业课程中残疾学生无障碍环境的策略:范围审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-10 DOI: 10.11124/JBIES-23-00484
Shaminder Dhillon, Michelle Ira Roque, Dina Brooks, Sarah Wojkowski

Objective: The objective of this scoping review will be to identify strategies in the literature that may increase the accessibility of health professional programs for students with disabilities.

Introduction: The number of students with disabilities in health professional programs is increasing. However, since students with disabilities experience barriers to education, their retention rates are potentially lower, and their attrition rates are potentially higher compared with their non-disabled peers.

Inclusion criteria: Academic and gray literature that identifies strategies intended to increase accessibility to health professional programs for students with disabilities will be included. Only articles published from 2000 onward will be considered for inclusion.

Methods: This review will follow the JBI methodology for scoping reviews. Databases to be searched will include Embase (Ovid), MEDLINE (Ovid), PsycINFO (Ovid), CINAHL (EBSCOhost), ERIC (ProQuest), and Web of Science. Gray literature will be searched for using Google. Websites of known disability organizations will also be searched. There will be no language limitations. Paired reviewers will independently screen titles and abstracts, and then full-text articles. Data will be extracted using a tool developed by the reviewers. The extracted data will be synthesized and reported in tabular format, accompanied by a narrative summary connecting the results to the objective of the review.

This scoping review protocol was registered in open science framework: https://doi.org/10.17605/OSF.IO/BSYRT.

目标:本范围综述的目的是在文献中找出可提高残疾学生就读健康专业课程无障碍性的策略:健康专业课程中的残疾学生人数正在增加。然而,由于残疾学生在接受教育时会遇到障碍,因此与非残疾学生相比,他们的保留率可能较低,自然减员率可能较高:纳入标准:纳入学术和灰色文献,这些文献确定了旨在提高残疾学生就读卫生专业课程无障碍性的策略。只有 2000 年以后发表的文章才会被考虑纳入:本综述将采用 JBI 的方法进行范围界定综述。将检索的数据库包括 Embase (Ovid)、MEDLINE (Ovid)、PsycINFO (Ovid)、CINAHL (EBSCOhost)、ERIC (ProQuest) 和 Web of Science。将使用谷歌搜索灰色文献。还将搜索已知残疾组织的网站。没有语言限制。配对审稿人将独立筛选标题和摘要,然后再筛选全文。将使用审稿人开发的工具提取数据。提取的数据将以表格形式进行综合和报告,并附有叙述性摘要,将结果与综述目标联系起来。本范围综述协议已在开放科学框架中注册:https://doi.org/10.17605/OSF.IO/BSYRT。
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引用次数: 0
Defining the exit meta-analysis. 定义退出荟萃分析。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-10 DOI: 10.11124/JBIES-24-00155
Jazeel Abdulmajeed, Luis Furuya-Kanamori, Tawanda Chivese, Chang Xu, Lukman Thalib, Suhail A R Doi

Introduction: In recent decades, clinical research has seen significant advancements, both in the generation and synthesis of evidence through meta-analyses. Despite these methodological advancements, there is a growing concern about the accumulation of repetitive and redundant literature, potentially contributing to research waste. This highlights the necessity for a mechanism to determine when a meta-analysis has conclusively addressed a research question, signaling no further need for additional studies-a concept we term an "exit" meta-analysis.

Methods: We introduced a convergence index, the Doi-Abdulmajeed Trial Stability (DAts) index, and a convergence plot to determine the exit status of a meta-analysis. The performance of DAts was examined through simulation and applied to two real-world meta-analyses.

Results: The DAts index and convergence plot demonstrate highly effective discriminative ability across varying study scenarios. This represents the first attempt to define an exit meta-analysis using a quantitative measurement of stability (as opposed to sufficiency) and its corresponding plot. The application to real-world scenarios further validated the utility of DAts and the convergence plot in identifying a conclusive (exit) meta-analyses.

Conclusion: The new development of DAts and the convergence plot provide a promising tool for investigating the conclusiveness of meta-analyses. By identifying an exit status for meta-analysis, the scientific community may be equipped to make better-informed decisions on the continuation of research on a specific topic, thereby preventing research waste and focusing efforts on areas with unresolved questions.

导言:近几十年来,临床研究在通过荟萃分析生成和综合证据方面都取得了重大进展。尽管在方法上取得了这些进步,但人们越来越担心重复和冗余文献的积累可能会造成研究浪费。这就凸显出有必要建立一种机制,以确定荟萃分析何时已最终解决了研究问题,表明不再需要额外的研究--我们称之为 "退出 "荟萃分析:我们引入了一个收敛指数--Doi-Abdulmajeed 试验稳定性(DAts)指数和一个收敛图来确定荟萃分析的退出状态。通过模拟检查了 DAts 的性能,并将其应用于两个真实世界的荟萃分析:结果:DAts 指数和收敛图在不同的研究方案中表现出了高效的判别能力。这是首次尝试使用稳定性(而非充分性)的定量测量及其相应的图谱来定义退出荟萃分析。在现实世界中的应用进一步验证了DAts和收敛图在确定结论性(退出)荟萃分析中的实用性:DAts和收敛图的新发展为研究荟萃分析的确证性提供了一种很有前途的工具。通过确定荟萃分析的退出状态,科学界可以就是否继续开展特定主题的研究做出更明智的决定,从而防止研究浪费,并将精力集中在尚未解决问题的领域。
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引用次数: 0
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JBI evidence synthesis
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