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From chaos to clarity: how COVID-19 exposed the urgent need for better evidence synthesis. 从混乱到清晰:COVID-19 如何揭示了对更好的证据综合的迫切需求。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.11124/JBIES-24-00431
Amy E L Stone, Sherli Koshy-Chenthittayil, Megan DeArmond
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引用次数: 0
Midwives' and registered nurses' role and scope of practice in acute early pregnancy care services: a scoping review. 助产士和注册护士在急性早孕护理服务中的角色和执业范围:范围界定审查。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.11124/JBIES-23-00483
Nicole Freeman, Jane Warland, Kate Cheney, Zoe Bradfield
<p><strong>Objective: </strong>The objective of this scoping review was to investigate and describe what is reported on the role and scope of practice of midwives and registered nurses providing care for women with pregnancy complications prior to 20 weeks' gestation in acute clinical settings in Australia.</p><p><strong>Introduction: </strong>In many high-income countries, women experiencing unexpected complications in early pregnancy attend an acute care service, such as an emergency department, rather than a maternity or obstetric unit. This service structure can impact the care women receive and determine who provides it. Women and their partners, who are often experiencing emotional distress, have reported difficult experiences when accessing acute services, particularly emergency departments, which are not traditionally staffed by midwives. The role and scope of practice of both midwives and registered nurses providing acute early pregnancy care in most high-income countries, including Australia, is poorly reported. Documenting this area of practice is an important first step in facilitating ongoing research in this important aspect of pregnancy care.</p><p><strong>Inclusion criteria: </strong>Published and gray literature that described the role and scope of practice of midwives and/or registered nurses providing care in acute early pregnancy settings in Australia were considered for this review.</p><p><strong>Methods: </strong>A scoping review of the literature was conducted following JBI methodological guidance and reported using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR). A 3-step search strategy was conducted to explore evidence from databases and search engines, gray literature sources, and selected reference lists. The search was limited to sources published from 2005 until October 2023. The databases searched included MEDLINE (Ovid), MIDIRS (Ovid), JBI Evidence-based Practice Database (Ovid), CINAHL Ultimate (EBSCOhost), ProQuest Central, Web of Science Core Collection, Scopus, and Cochrane Library. Google and Google Scholar were also used to identify published studies. After screening, data were extracted from records selected for the final review, mapped, and analyzed using content analysis.</p><p><strong>Results: </strong>A total of 23 sources were selected for inclusion in the review, and these included primary research studies, conference abstracts, and gray literature, such as clinical guidance documents, academic theses, and websites, from January 2008 to October 2023. The most common setting for care provision was the emergency department. Midwives' and registered nurses' role and scope of practice in acute early pregnancy care in Australia can be categorized into 4 areas: physical care, psychosocial support, care coordination, and communication. Women's access to midwifery care at this time in pregnancy appears to be limited. Registered nurses, usually e
目标:本范围界定综述旨在调查和描述有关澳大利亚助产士和注册护士在急诊临床环境中为妊娠 20 周以下妊娠并发症妇女提供护理的角色和执业范围的报道:在许多高收入国家,妊娠早期出现意外并发症的妇女会去急诊科等急症护理机构就诊,而不是去产科或产科病房。这种服务结构会影响妇女接受的护理,并决定由谁来提供护理。妇女及其伴侣通常会受到情绪上的困扰,她们在接受急诊服务时,尤其是在传统上不配备助产士的急诊科,会遇到很多困难。在包括澳大利亚在内的大多数高收入国家,助产士和注册护士在提供孕早期急症护理方面的作用和工作范围鲜有报道。记录这一领域的实践是促进孕期护理这一重要方面持续研究的重要第一步:纳入标准:本综述将考虑描述澳大利亚助产士和/或注册护士在急性早孕期护理中的角色和实践范围的已发表文献和灰色文献:方法:按照 JBI 方法指南对文献进行了范围界定综述,并使用范围界定综述的系统综述和 Meta 分析扩展首选报告项目(PRISMA-ScR)清单进行报告。该研究采用了三步检索策略,从数据库和搜索引擎、灰色文献来源以及选定的参考文献列表中寻找证据。经过筛选后,从最终评审所选的记录中提取数据,绘制图表,并使用内容分析法进行分析:回顾的证据(n=23)包括2008年1月至2023年10月期间的主要研究、会议摘要和灰色文献,如临床指导文件、学术论文和网站。最常见的护理提供场所是急诊科。在澳大利亚,助产士和注册护士在孕早期急性期护理中的角色和工作范围可归纳为四个方面:身体护理、社会心理支持、护理协调和沟通。妇女在怀孕期间获得助产护理的机会似乎很有限。通常受雇于急诊科的注册护士在为患有妊娠早期急性并发症的妇女提供护理方面发挥着最重要的作用和范围。对助产士工作的描述更多地侧重于社会心理支持和后续护理,尤其是在孕早期评估服务模式中:本综述强调了澳大利亚助产士和注册护士在急性早孕中的角色和范围不一致,这一发现与其他国际环境相关。这两种职业都可以进一步发挥其作用和范围,为接受一系列急性早孕服务的妇女和家庭提供支持性、个性化和及时的护理。急诊科是注册护士通常的执业领域,她们为患有早孕并发症的妇女提供的护理范围可能有限。助产士行业的领导者应进一步研究创新服务模式,让助产士在所有为孕妇提供护理的环境中发挥作用,无论其妊娠情况如何:开放科学框架 osf.io/7zchu。
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引用次数: 0
eHealth early intervention programs to support premature parents transitioning from NICU to home on parental and infant outcomes: a systematic review protocol. 支持早产父母从新生儿重症监护室过渡到家庭的电子健康早期干预计划对父母和婴儿结果的影响:系统综述方案。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.11124/JBIES-23-00422
Liliana Ferraz, Maria Raul Xavier, Manuel Gameiro, Ana Filipa Cardoso, Daniela Cardoso, Lúcia Paradela, Daniela Dinis, Estela Coutinho, Ananda Fernandes

Objective: This review will assess the effectiveness of eHealth early intervention programs in supporting premature infants and their parents transition from neonatal intensive care units (NICUs) to home and the impact of such programs on parental and infant outcomes.

Introduction: The literature has shown the benefits of eHealth early intervention programs to support premature infants and their parents after discharge from NICUs. Parents have reported benefits such as enhanced user-friendliness, increased confidence in infant care, satisfaction, and knowledge acquisition. However, the effectiveness of these programs on parental and infant outcomes remains unclear.

Inclusion criteria: This review will consider studies that assess any early intervention program using eHealth to support premature infants and their parents after discharge from NICU. The programs may be initiated during hospitalization or within the first month of discharge. The programs will include interventions that use eHealth components (eg, teleconsultation), either alone or in combination with face-to-face interventions (eg, home visits). This review will consider parental outcomes, including stress, anxiety, competence, and satisfaction, as well as infant outcomes, including health service utilization and cognitive, motor, and social development.

Methods: This review will follow the JBI methodology for systematic reviews of effectiveness. The search strategy will aim to find both published and unpublished quantitative studies in English, Spanish, and Portuguese, without any geographical or cultural limitations. Two reviewers will independently perform study selection, critical appraisal, and data extraction. The results will be accompanied by a narrative synthesis. If possible, a meta-analysis will be conducted and the Summary of Findings will be presented using the GRADE (Grading of Recommendations Assessment, Development and Evaluation) approach.

Review registration: PROSPERO CRD42023444721.

目的:本综述旨在评估电子健康早期干预项目在支持早产儿及其父母从新生儿重症监护室(NICU)过渡到家庭生活方面的有效性,以及此类项目对父母和婴儿结果的影响:文献显示,电子健康早期干预项目可为从新生儿重症监护室出院后的早产儿及其父母提供支持。据家长们反映,他们受益匪浅,如提高了用户友好度、增强了对婴儿护理的信心、提高了满意度并获得了知识。然而,这些项目对父母和婴儿结果的影响仍不明确:本综述将考虑对任何使用电子保健来支持从新生儿重症监护室出院后的早产儿及其父母的早期干预项目进行评估的研究。这些项目可在住院期间或出院后的第一个月内启动。这些项目将包括单独使用或与面对面干预(如家访)相结合使用电子健康组件(如远程咨询)的干预措施。本综述将考虑父母的结果,包括压力、焦虑、能力和满意度,以及婴儿的结果,包括医疗服务利用率以及认知、运动和社交能力的发展:方法:本综述将遵循 JBI 的有效性系统综述方法。搜索策略旨在找到已发表和未发表的英语、西班牙语和葡萄牙语定量研究,不受任何地域或文化限制。两名审稿人将独立完成研究选择、批判性评估和数据提取。研究结果将附有叙述性综述。如有可能,将进行荟萃分析,并采用 GRADE(建议评估、发展和评价分级)方法提交研究结果摘要:系统综述注册编号:PROCROPERO:CRD42023444721。
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引用次数: 0
Transformative engagement with community music-making for older adults: a scoping review protocol. 老年人参与社区音乐创作的转变:范围界定审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.11124/JBIES-23-00208
Helen Jane English, Suzanne Lewis, Jane W Davidson, Nicholas Goodwin

Objective: This scoping review has 3 objectives: to identify the literature on older adults' engagement with community music-making in which an experience of transformative change is noted, to explore the different ways transformation is described, and to identify the factors that enable this experience.

Introduction: Music has been shown to stimulate transformation (positive change) in individuals. Documented experiences of transformation fall into 3 broad areas: self-perception, quality of life, and personal growth. Yet the specific elements of musical experience that enable such effects remain little understood. Identifying the literature on this topic will enable deeper understanding and identify gaps in knowledge.

Inclusion criteria: The review will include peer-reviewed publications, systematic and scoping reviews, and gray literature, including theses and reports. Studies will focus on older community-dwelling adults (60 years or over) engaged in group music-making in community settings. The studies must include enquiry into transformative effects. Music used therapeutically in health settings, individual music-making, and listening (rather than active music-making) will be excluded. Any empirical methodology will be accepted.

Methods: The review will follow the JBI methodology for scoping reviews. Databases to be searched will include MEDLINE (Ovid), CINAHL (EBSCOhost), PsycINFO (Ovid), Scopus, Embase (Ovid), Informit, Cochrane Library, Campbell Collaboration, JBI Evidence-based Practice Database, Web of Science, JSTOR, Academic Search Ultimate (EBSCOhost), ProQuest Dissertations and Theses Global, and Google Scholar. Studies must be published in English, from 2000 until the present. Retrieved studies will be independently screened by at least 2 reviewers. Data will be extracted using a data extraction tool developed by the research team. The findings will be presented in tabular format, supported by a narrative summary.

Review registration: Open Science Framework https://osf.io/ftuhx.

目的:本范围界定综述有三个目标:确定老年人参与社区音乐创作的文献,其中指出了转型变化的体验;探索描述转型的不同方式;确定促成这种体验的因素:导言:音乐已被证明能够激发个人的转变(积极变化)。有文献记载的转变体验可分为三大领域:自我感知、生活质量和个人成长。然而,人们对音乐体验中能产生这种效果的具体因素仍然知之甚少。确定有关这一主题的文献将有助于加深理解并找出知识空白:综述将包括同行评审出版物、系统性综述和范围界定综述以及灰色文献,包括论文和报告。研究将侧重于在社区环境中参与集体音乐创作的社区老年人(60 岁或以上)。研究必须包括对转化效果的调查。在健康环境中使用的治疗性音乐、个人音乐创作和聆听(而非积极的音乐创作)将被排除在外。方法:综述将遵循 JBI 的范围界定综述指南。将检索的数据库包括 MEDLINE (Ovid)、CINAHL (EBSCOhost)、PsycINFO (Ovid)、Scopus、Embase (Ovid)、Informit、Cochrane Library、Campbell Collaboration、JBI EBP、Web of Science、JSTOR、Academic Search Ultimate (EBSCOhost)、ProQuest Dissertations & Theses Global 和 Google Scholar。研究必须是 2000 年至今用英语发表的。检索到的研究将由至少两名审稿人独立筛选。将使用研究小组开发的数据提取工具提取数据。研究结果将以表格形式呈现,并辅以叙述性摘要。有关综述的详细信息,请访问开放科学框架:https://osf.io/ftuhx。
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引用次数: 0
Views of general practice staff on sharing general practice data for research: a scoping review protocol. 全科医生对共享全科数据用于研究的看法:范围界定审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.11124/JBIES-23-00317
Heidi Green, Belinda Fabrianesi, Lucy Carolan, Annette Braunack-Mayer

Objective: The objective of this scoping review is to understand the range and types of evidence in relation to the views of general practitioner and other general practice staff on sharing general practice data for research purposes.

Introduction: The use of general practice data for research has the potential to drive transformative improvements in health care. The vast amount of patient data collected in general practice is valuable and provides researchers with data to conduct large-scale studies and generate evidence that can inform policy decisions, support the development of personalized medicine, and enhance patient outcomes. However, despite there being clear benefits to using general practice data for research, there are also potential harms, such as data misuse, loss of trust between the general practitioner and patient, and data breaches.

Inclusion criteria: This scoping review will focus on the views of general practice staff, including general practitioners, practice nurses, and practice managers, about sharing general practice data for the purposes of research. This scoping review will exclude sources of evidence that are conducted outside of the general practice setting, and papers that report on public, patient, or community views on data sharing.

Methods: This scoping review will be conducted in accordance with JBI methodology for scoping reviews. A 3-step search strategy will be used to acquire both published and unpublished sources of evidence. Two reviewers will independently select sources of evidence in line with the inclusion and exclusion criteria. No limits on the date of the search or language will be applied. Data will be extracted and the results will be summarized descriptively and presented in a tabular format.

Review registration: Open Science Framework https://osf.io/49yw5.

目的:本范围界定综述旨在了解与全科医生和其他全科医务人员对为研究目的共享全科数据的看法有关的证据范围和类型:将全科数据用于研究有可能推动医疗保健的变革性改善。全科医生收集的大量患者数据非常宝贵,可为研究人员开展大规模研究提供数据,并生成可为政策决策提供依据的证据,支持个性化医疗的发展,提高患者的治疗效果。然而,尽管将全科数据用于研究有明显的好处,但也存在潜在的危害,如数据滥用、全科医生与患者之间失去信任以及数据泄露等:本范围界定综述将重点关注全科医生、执业护士和执业经理等全科医务人员对为研究目的共享全科数据的看法。本范围界定综述将排除在全科医学环境之外进行的证据来源,以及报告公众、患者或社区对数据共享看法的论文:本次范围界定综述将按照 JBI 范围界定综述方法进行。我们将采用三步检索策略来获取已发表和未发表的证据来源。两名独立审查员将根据纳入和排除标准选择证据来源。检索日期和语言不限。将对数据进行提取,并对结果进行描述性总结,以表格形式呈现:开放科学框架 https://osf.io/49yw5。
{"title":"Views of general practice staff on sharing general practice data for research: a scoping review protocol.","authors":"Heidi Green, Belinda Fabrianesi, Lucy Carolan, Annette Braunack-Mayer","doi":"10.11124/JBIES-23-00317","DOIUrl":"10.11124/JBIES-23-00317","url":null,"abstract":"<p><strong>Objective: </strong>The objective of this scoping review is to understand the range and types of evidence in relation to the views of general practitioner and other general practice staff on sharing general practice data for research purposes.</p><p><strong>Introduction: </strong>The use of general practice data for research has the potential to drive transformative improvements in health care. The vast amount of patient data collected in general practice is valuable and provides researchers with data to conduct large-scale studies and generate evidence that can inform policy decisions, support the development of personalized medicine, and enhance patient outcomes. However, despite there being clear benefits to using general practice data for research, there are also potential harms, such as data misuse, loss of trust between the general practitioner and patient, and data breaches.</p><p><strong>Inclusion criteria: </strong>This scoping review will focus on the views of general practice staff, including general practitioners, practice nurses, and practice managers, about sharing general practice data for the purposes of research. This scoping review will exclude sources of evidence that are conducted outside of the general practice setting, and papers that report on public, patient, or community views on data sharing.</p><p><strong>Methods: </strong>This scoping review will be conducted in accordance with JBI methodology for scoping reviews. A 3-step search strategy will be used to acquire both published and unpublished sources of evidence. Two reviewers will independently select sources of evidence in line with the inclusion and exclusion criteria. No limits on the date of the search or language will be applied. Data will be extracted and the results will be summarized descriptively and presented in a tabular format.</p><p><strong>Review registration: </strong>Open Science Framework https://osf.io/49yw5.</p>","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":"2185-2191"},"PeriodicalIF":1.5,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140913186","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Experiences of accessing mental health services for women living on a low income in Canada: a qualitative systematic review protocol. 加拿大低收入妇女获得心理健康服务的经历:定性系统审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.11124/JBIES-23-00505
Emma Vanderlee, Addisu Taye Abate, Christina Godfrey, Lenora Duhn, Pilar Camargo-Plazas

Objective: The objective of this review is to comprehensively analyze qualitative evidence on the experiences of Canadian women aged 18 years or older living on a low income. The review will examine the intersectionality of their identities and privileges when accessing mental health services, with the aim of informing targeted interventions and policy improvements.

Introduction: Despite the growing body of research on mental health disparities and a call for improved mental health care, both globally and in Canada, there is a need to identify recommendations for system enhancement and to improve gender equality by understanding the nuanced experiences of accessing mental health care for Canadian women living on a low income.

Inclusion criteria: This review will include qualitative studies conducted within the past decade about women of diverse backgrounds aged 18 years or older who identify as living on a low income and who have resided in Canada for 6 months or longer. Studies using any qualitative methodology will be included.

Methods: The following databases will be searched for published studies: MEDLINE and PsycINFO (Ovid), CINAHL and Pre-CINAHL (EBSCOhost), LiSSa, and Google Scholar. Searches for unpublished studies will include the Primo Central Index, ProQuest Dissertations and Theses Global, and the Canadian Women's Foundation Studies. The review will include studies published in English and French in Canada, from 2013 to the present. The JBI methodology for systematic reviews of qualitative evidence will be followed, informing study selection, critical appraisal, extraction, synthesis, and assessment of confidence, which will be conducted by 2 reviewers independently.

Review registration: PROSPERO CRD42023430100.

目的:本综述旨在全面分析有关 18 岁或以上加拿大低收入女性经历的定性证据。综述将研究她们在获得心理健康服务时的身份和特权的交叉性,旨在为有针对性的干预措施和政策改进提供信息:尽管有关心理健康差异的研究越来越多,而且全球和加拿大都在呼吁改善心理健康护理,但仍有必要通过了解加拿大低收入女性在获得心理健康护理时的细微体验来确定系统改进建议和改善性别平等:本综述将包括在过去十年中进行的定性研究,研究对象为年龄在 18 岁或 18 岁以上、被认定为生活在加拿大的低收入女性,且在加拿大居住 6 个月或更长时间。采用任何定性方法的研究都将包括在内:将在以下数据库中搜索已发表的研究:MEDLINE和PsycINFO(Ovid);CINAHL和Pre-CINAHL(EBSCOhost);LiSSa;以及Google Scholar。未发表研究的检索包括 Primo Central Index、ProQuest Dissertations and Theses Global 和 Canadian Women's Foundation Studies。综述将包括 2013 年至今在加拿大以英语和法语发表的研究。将遵循 JBI 定性证据系统性综述的方法,对研究进行选择、评估、提取、综合和置信度评估:综述注册:PREMCORD42023430100。
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引用次数: 0
Economic burden and economic impact associated with non-communicable diseases among countries of the World Health Organization South-East Asia Region: a systematic review protocol. 世界卫生组织东南亚地区国家与非传染性疾病相关的经济负担和经济影响--系统审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.11124/JBIES-23-00340
Geetha R Menon, Sheuli Misra, Vishal Deo, Jeetendra Yadav, Pradeep Joshi, Cherian Varghese, Denny John

Objective: The objective of this systematic review is to synthesize studies on the economic burden and economic impact of non-communicable diseases in the World Health Organization South-East Asia Region (WHO SEAR) countries.

Introduction: WHO SEAR countries represent 8.6% of the world's population, and 75% of all deaths in this region are attributable to non-communicable diseases. In addition, there is a pattern of low government spending on health in SEAR countries, leading to a high proportion of health financing by patients, risking impoverishment for households.

Inclusion criteria: We will consider observational (cross-sectional, cohort, and case-control) and interventional (either single arm or comparative) studies that report the economic burden (direct and indirect costs, out-of-pocket expenditure) and economic impact (catastrophic health expenditure, hardship financing, impoverishment, and gross domestic product impact) at the individual, household, and/or country levels. This includes government surveys, surveillance, and secondary data analyses for one or more non-communicable diseases prevalent in the WHO SEAR.

Methods: We will conduct a comprehensive search for relevant studies in databases, including MEDLINE (PubMed), Embase (Ovid), Scopus, Web of Science, Google Scholar, and gray literature, with no date limits. Two reviewers will independently screen titles and abstracts, followed by full-text screening. Included studies will be critically appraised for quality. Data will be extracted accordingly and, if possible, random effects meta-analyses will be conducted on the pooled data for resource utilization and costs (including burden and impact), presenting the degree of variation between studies. The characteristics and results of the included studies will be narratively summarized with accompanying tables.

Review registration: PROSPERO CRD42023421302.

目标:本系统综述旨在对世界卫生组织东南亚地区(WHO SEAR)国家非传染性疾病(NCDs)的经济负担和经济影响进行综合研究:世界卫生组织东南亚地区国家占世界人口的 8.6%,该地区 75% 的死亡可归因于非传染性疾病。此外,东南亚地区国家的政府卫生支出较低,导致患者的卫生筹资比例较高,有可能造成家庭贫困:我们将考虑报告经济负担(直接和间接成本、自付支出)和经济影响(个人、家庭和/或国家层面的灾难性医疗支出、困难筹资、贫困化和国内生产总值影响)的观察性(横断面、队列和病例对照)和干预性(单臂或比较)研究。这包括针对世卫组织东南亚区域流行的一种或多种非传染性疾病的政府调查、监测和二手数据分析:我们将全面检索数据库中的相关研究,包括 PubMed (MEDLINE)、Embase (Ovid)、Scopus、Web of Science、Google Scholar 和无日期限制的灰色文献。两名独立审稿人将筛选标题和摘要,然后进行全文筛选。将对纳入的研究进行严格的质量评估。在可能的情况下,将对资源利用率和成本(包括负担和影响)的汇总数据进行随机效应荟萃分析,以显示研究之间的差异程度。纳入研究的特点和结果将通过附带的表格进行叙述性总结:综述注册:prospero crd42023421302。
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引用次数: 0
Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review. 围产期丧子后医疗机构使用的丧亲护理指南:范围综述。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.11124/JBIES-23-00149
Lisa R Roberts, Jan M Nick, Nancy L Sarpy, Judith Peters, Shanalee Tamares
<p><strong>Objective: </strong>The objective of the scoping review was to explore the evidence and describe what is known about perinatal bereavement care guidelines provided within health care facilities prior to discharge. Additionally, the review sought to identify what is known about parents' mental health outcomes, and map these outcomes to the characteristics of the bereavement care guidelines.</p><p><strong>Introduction: </strong>Perinatal loss poses a serious risk of emotional trauma and mental health sequelae. Conflicting evidence for international bereavement care guidelines and inconsistent implementation, a lack of experimental studies, and older syntheses with a limited focus or population made synthesis complex. Therefore, a scoping review was undertaken to determine the breadth and depth of the existing literature on this topic.</p><p><strong>Inclusion criteria: </strong>Sources pertaining to bereavement care guidelines used in health care facilities immediately after perinatal loss (miscarriage, stillbirth, or neonatal death) and parents' mental health outcomes were included. Sources pertaining to family members other than parents, perinatal loss occurring outside of a health care facility, and physical care guidelines were excluded.</p><p><strong>Methods: </strong>The review was conducted using JBI methodology for scoping reviews. The team considered quantitative and qualitative studies, practice guidelines, case reports, expert opinions, systematic reviews, professional organization websites, and gray literature. CINAHL (EBSCOhost), PsycINFO (EBSCOhost), SocINDEX (EBSCOhost), Cochrane Library, JBI Evidence-based Practice Database (Ovid), Embase, PubMed, ProQuest Dissertations and Theses A&I (ProQuest), Web of Science Core Collection, and Epistemonikos were the major databases searched. OpenGrey, Google Scholar, and organizational websites were also searched. The earliest empirical study publication found (1976) served as the starting date limit. After pilot-testing the screening process, data were extracted, collated, and presented in narrative format as well as in tables and figures. The search was first conducted in September and October 2021, and an updated search was performed on February 9, 2023.</p><p><strong>Results: </strong>The results provide a broad view of bereavement care guidelines to support grieving parents' mental health. The included sources (n=195) were comprised of 28 syntheses, 96 primary studies, and 71 literature review/text and opinion. From the studies that specified the number of participants, 47,598 participants were included. Key characteristics of bereavement care guidelines were categorized as i) making meaning/memories, ii) good communication, iii) shared decision-making, iv) effective emotional and social support, and v) organizational response. Parents' reported mental health outcomes included both negative outcomes, such as depression, anxiety, anger, and helplessness, and positive outcomes, inc
目的此次范围界定综述的目的是探索证据并描述医疗机构在出院前提供的围产期丧亲护理指南的相关情况。此外,该综述还试图确定有关父母心理健康结果的已知信息,并将这些结果与丧亲护理指南的特点相联系:导言:围产期丧亲带来了严重的精神创伤和心理健康后遗症风险。国际丧亲护理指南的证据相互矛盾,执行情况也不一致,缺乏实验性研究,而且较早的综述关注的重点或人群有限,这些都使得综述工作变得复杂。因此,我们进行了一次范围界定综述,以确定有关该主题的现有文献的广度和深度:包括与围产期丧亲(流产、死产或新生儿死亡)后医疗机构立即使用的丧亲护理指南以及父母的心理健康结果有关的资料。与父母以外的家庭成员、在医疗机构以外发生的围产期丧亲以及身体护理指南有关的资料则不包括在内:综述采用 JBI 方法进行范围界定综述。研究小组考虑了定量和定性研究、实践指南、病例报告、专家意见、系统综述、专业组织网站和灰色文献。检索的主要数据库包括 CINAHL (EBSCOhost)、PsycINFO (EBSCOhost)、SocINDEX (EBSCOhost)、Cochrane Library、JBI 循证实践数据库 (Ovid)、Embase、PubMed (NLM)、ProQuest Dissertations and Theses A&I (ProQuest)、Web of Science Core Collection 和 Epistemonikos。此外,还搜索了 OpenGrey、Google Scholar 和机构网站。搜索到的最早实证研究出版物(1976 年)作为起始日期限制。在对筛选过程进行试点测试后,对数据进行了提取、整理,并以叙述以及表格和图表的形式呈现。搜索工作于 2021 年 9 月和 10 月首次进行,并于 2023 年 2 月 9 日进行了更新:结果:研究结果提供了有关丧亲护理指南的广泛视角,以支持悲伤父母的心理健康。纳入的资料来源(n = 195)包括 28 项综述、96 项主要研究和 71 项文献综述/文本和观点。在注明参与者人数的研究中,共纳入了 33,834 名参与者。丧亲护理指南的主要特征分为 i) 意义/记忆;ii) 良好沟通;iii) 共同决策;iv) 有效的情感和社会支持;v) 组织响应。家长们报告的心理健康结果既包括消极结果,如抑郁、焦虑、愤怒和无助,也包括积极结果,包括应对、愈合、恢复和幸福:从概念上讲,已发布的指南在不同环境下具有相当一致的特点,但在指南的具体内容上存在文化差异。尽管有关围产期丧亲护理的研究呈指数级增长,但有关丧亲护理指南的某些特征的研究仍存在空白,而这些特征已被公认为支持父母心理健康结果的最佳实践。鉴于围产期丧亲所带来的创伤和心理健康风险,本综述为今后的研究提供了支持。确保一致和适当实施丧亲护理指南的政策对于改善父母的心理健康结果至关重要。
{"title":"Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review.","authors":"Lisa R Roberts, Jan M Nick, Nancy L Sarpy, Judith Peters, Shanalee Tamares","doi":"10.11124/JBIES-23-00149","DOIUrl":"10.11124/JBIES-23-00149","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;The objective of the scoping review was to explore the evidence and describe what is known about perinatal bereavement care guidelines provided within health care facilities prior to discharge. Additionally, the review sought to identify what is known about parents' mental health outcomes, and map these outcomes to the characteristics of the bereavement care guidelines.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Introduction: &lt;/strong&gt;Perinatal loss poses a serious risk of emotional trauma and mental health sequelae. Conflicting evidence for international bereavement care guidelines and inconsistent implementation, a lack of experimental studies, and older syntheses with a limited focus or population made synthesis complex. Therefore, a scoping review was undertaken to determine the breadth and depth of the existing literature on this topic.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Inclusion criteria: &lt;/strong&gt;Sources pertaining to bereavement care guidelines used in health care facilities immediately after perinatal loss (miscarriage, stillbirth, or neonatal death) and parents' mental health outcomes were included. Sources pertaining to family members other than parents, perinatal loss occurring outside of a health care facility, and physical care guidelines were excluded.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;The review was conducted using JBI methodology for scoping reviews. The team considered quantitative and qualitative studies, practice guidelines, case reports, expert opinions, systematic reviews, professional organization websites, and gray literature. CINAHL (EBSCOhost), PsycINFO (EBSCOhost), SocINDEX (EBSCOhost), Cochrane Library, JBI Evidence-based Practice Database (Ovid), Embase, PubMed, ProQuest Dissertations and Theses A&I (ProQuest), Web of Science Core Collection, and Epistemonikos were the major databases searched. OpenGrey, Google Scholar, and organizational websites were also searched. The earliest empirical study publication found (1976) served as the starting date limit. After pilot-testing the screening process, data were extracted, collated, and presented in narrative format as well as in tables and figures. The search was first conducted in September and October 2021, and an updated search was performed on February 9, 2023.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;The results provide a broad view of bereavement care guidelines to support grieving parents' mental health. The included sources (n=195) were comprised of 28 syntheses, 96 primary studies, and 71 literature review/text and opinion. From the studies that specified the number of participants, 47,598 participants were included. Key characteristics of bereavement care guidelines were categorized as i) making meaning/memories, ii) good communication, iii) shared decision-making, iv) effective emotional and social support, and v) organizational response. Parents' reported mental health outcomes included both negative outcomes, such as depression, anxiety, anger, and helplessness, and positive outcomes, inc","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":"2003-2089"},"PeriodicalIF":1.5,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11462878/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141459753","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Experiences of parents of teenagers with life-threatening food allergies: a qualitative systematic review protocol. 患有危及生命的食物过敏症的青少年家长的经历:定性系统性审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.11124/JBIES-23-00380
Karen Dobbin-Williams, Renee Crossman, Michelle Swab

Objective: The objective of this review is to synthesize the experiences of parents of teenagers with life-threatening food allergies.

Introduction: Life-threatening food allergies are increasing globally, with a significant effect on families, particularly parents. The teenage years are a time of increasing autonomy for young people; however, for parents living with and caring for a teenager with a life-threatening food allergy, this responsibility can have a considerable impact.

Inclusion criteria: This review will include qualitative studies on the experiences of parents of teenagers with life-threatening food allergies, including, but not limited to, caregiving, parenting, and psychosocial experiences; any day-to-day activities, happenings, thoughts, or feelings related to parenting a teenager with life-threatening food allergies; and the handing over of responsibility for the allergy to the teenager. The review will include studies on participants in the community and in health care settings such as inpatient hospitalizations, outpatient visits, school and sports events, family dinners, restaurants, and travel. Participants from all cultural backgrounds, socio-economic backgrounds, and countries will be included.

Methods: The review will follow the JBI methodology for systematic reviews of qualitative evidence. The search for published studies will include CINAHL, MEDLINE, and PsycINFO (EBSCOhost); Embase (Ovid); LILACS, IBSS, and Sociological Abstracts (ProQuest). The search for unpublished studies will include ProQuest Dissertations and Theses, Open Access Theses and Dissertations (OATD), Bielefeld Academic Search Engine (BASE), Google, and Google Scholar. Databases will be searched from inception until the present. JBI tools and guidelines will be used to conduct critical appraisal, data extraction, data synthesis, and assessment of confidence in the findings.

Review registration: PROSPERO CRD42024503698.

目的本综述旨在总结患有危及生命的食物过敏症的青少年家长的经验:在全球范围内,危及生命的食物过敏现象日益增多,对家庭,尤其是父母造成了重大影响。青少年时期是年轻人自主性不断增强的时期;然而,对于与患有危及生命的食物过敏症的青少年共同生活并照顾他们的父母来说,这种责任可能会产生相当大的影响:本综述将包括有关患有危及生命的食物过敏症的青少年父母的经历的定性研究,包括但不限于照顾、养育和社会心理经历;与养育患有危及生命的食物过敏症的青少年有关的任何日常活动、事件、想法或感受;以及将过敏责任移交给青少年。审查将包括在社区和医疗保健环境中对参与者进行的研究,如住院、门诊、学校和体育活动、家庭聚餐、餐馆和旅行。研究方法:审查将遵循 JBI 定性证据系统审查方法。对已发表研究的检索包括:CINAHL、MEDLINE 和 PsycINFO(EBSCOhost);Embase(Ovid);LILACS、IBSS 和 Sociological Abstracts(ProQuest)。未发表研究的检索将包括 ProQuest Dissertations and Theses、Open Access Theses and Dissertations (OATD)、Bielefeld Academic Search Engine (BASE)、Google 和 Google Scholar。数据库的检索时间从开始到现在。将使用 JBI 工具和指南进行批判性评估、数据提取、数据综合以及对研究结果可信度的评估:PROCERGO:CRD42024503698。
{"title":"Experiences of parents of teenagers with life-threatening food allergies: a qualitative systematic review protocol.","authors":"Karen Dobbin-Williams, Renee Crossman, Michelle Swab","doi":"10.11124/JBIES-23-00380","DOIUrl":"10.11124/JBIES-23-00380","url":null,"abstract":"<p><strong>Objective: </strong>The objective of this review is to synthesize the experiences of parents of teenagers with life-threatening food allergies.</p><p><strong>Introduction: </strong>Life-threatening food allergies are increasing globally, with a significant effect on families, particularly parents. The teenage years are a time of increasing autonomy for young people; however, for parents living with and caring for a teenager with a life-threatening food allergy, this responsibility can have a considerable impact.</p><p><strong>Inclusion criteria: </strong>This review will include qualitative studies on the experiences of parents of teenagers with life-threatening food allergies, including, but not limited to, caregiving, parenting, and psychosocial experiences; any day-to-day activities, happenings, thoughts, or feelings related to parenting a teenager with life-threatening food allergies; and the handing over of responsibility for the allergy to the teenager. The review will include studies on participants in the community and in health care settings such as inpatient hospitalizations, outpatient visits, school and sports events, family dinners, restaurants, and travel. Participants from all cultural backgrounds, socio-economic backgrounds, and countries will be included.</p><p><strong>Methods: </strong>The review will follow the JBI methodology for systematic reviews of qualitative evidence. The search for published studies will include CINAHL, MEDLINE, and PsycINFO (EBSCOhost); Embase (Ovid); LILACS, IBSS, and Sociological Abstracts (ProQuest). The search for unpublished studies will include ProQuest Dissertations and Theses, Open Access Theses and Dissertations (OATD), Bielefeld Academic Search Engine (BASE), Google, and Google Scholar. Databases will be searched from inception until the present. JBI tools and guidelines will be used to conduct critical appraisal, data extraction, data synthesis, and assessment of confidence in the findings.</p><p><strong>Review registration: </strong>PROSPERO CRD42024503698.</p>","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":"2170-2176"},"PeriodicalIF":1.5,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141749215","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Online peer-to-peer health communities for individuals affected by chronic kidney disease: a scoping review protocol. 针对慢性肾脏病患者的在线点对点健康社区:范围界定审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-30 DOI: 10.11124/JBIES-23-00500
Neil Coulson, Sarah Beach, Heather Buchanan

Objective: The objective of this scoping review is to identify and describe research exploring online peer-to-peer health communities for individuals affected by chronic kidney disease.

Introduction: The proliferation of online peer-to-peer health communities has created new opportunities for individuals affected by chronic kidney disease to come together for mutual social, emotional, and informational support.

Inclusion criteria: This scoping review will include qualitative, quantitative, mixed methods, and evidence synthesis studies, as well as gray literature relating to online peer-to-peer health communities for individuals affected by chronic kidney disease. The search will not be limited by language, time frame, geographic location, or publication date.

Methods: This review will be undertaken in accordance with JBI methodology for scoping reviews and reported using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) checklist. The following databases will be searched: Cochrane Register of Controlled Trials (CENTRAL), CINAHL (EBSCOhost), Embase (Ovid), MEDLINE (Ovid), PsycINFO (Ovid), and Web of Science. Gray literature will be searched via MedNar, Google Scholar, and ProQuest Dissertations and Theses. After duplicates have been removed, 2 reviewers will independently screen the title, abstract, and full text of the search results. Data will be extracted using a modified data extraction tool as per JBI, and presented in tabular format, accompanied by a narrative summary describing how the findings relate to the scoping review questions.

Registration on open science framework: https://osf.io/kfj9v.

目标:本综述旨在确定并描述针对慢性肾脏病患者的在线点对点健康社区的探索研究:在线点对点健康社区的普及为慢性肾脏病患者创造了新的机会,使他们能够聚集在一起,相互提供社交、情感和信息支持:本次范围界定综述将包括定性、定量、混合方法和证据综合研究,以及与针对慢性肾脏病患者的在线点对点健康社区相关的灰色文献。检索不受语言、时间框架、地理位置或出版日期的限制:本综述将根据 JBI 的范围界定综述方法进行,并使用范围界定综述的系统综述和 Meta 分析首选报告项目(PRISMA-ScR)清单进行报告。将检索以下数据库:Cochrane 对照试验登记册 (CENTRAL)、CINAHL (EBSCOhost)、Embase (Ovid)、MEDLINE (Ovid)、PsycINFO (Ovid) 和 Web of Science。灰色文献将通过 MedNar、Google Scholar 和 ProQuest Dissertations and Theses 进行检索。去除重复内容后,两名审稿人将独立筛选搜索结果的标题、摘要和全文。数据将按照 JBI 的要求使用修改过的数据提取工具进行提取,并以表格的形式呈现,同时附上叙述性摘要,说明研究结果与范围界定综述问题之间的关系。开放科学框架注册:https://osf.io/kfj9v。
{"title":"Online peer-to-peer health communities for individuals affected by chronic kidney disease: a scoping review protocol.","authors":"Neil Coulson, Sarah Beach, Heather Buchanan","doi":"10.11124/JBIES-23-00500","DOIUrl":"https://doi.org/10.11124/JBIES-23-00500","url":null,"abstract":"<p><strong>Objective: </strong>The objective of this scoping review is to identify and describe research exploring online peer-to-peer health communities for individuals affected by chronic kidney disease.</p><p><strong>Introduction: </strong>The proliferation of online peer-to-peer health communities has created new opportunities for individuals affected by chronic kidney disease to come together for mutual social, emotional, and informational support.</p><p><strong>Inclusion criteria: </strong>This scoping review will include qualitative, quantitative, mixed methods, and evidence synthesis studies, as well as gray literature relating to online peer-to-peer health communities for individuals affected by chronic kidney disease. The search will not be limited by language, time frame, geographic location, or publication date.</p><p><strong>Methods: </strong>This review will be undertaken in accordance with JBI methodology for scoping reviews and reported using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) checklist. The following databases will be searched: Cochrane Register of Controlled Trials (CENTRAL), CINAHL (EBSCOhost), Embase (Ovid), MEDLINE (Ovid), PsycINFO (Ovid), and Web of Science. Gray literature will be searched via MedNar, Google Scholar, and ProQuest Dissertations and Theses. After duplicates have been removed, 2 reviewers will independently screen the title, abstract, and full text of the search results. Data will be extracted using a modified data extraction tool as per JBI, and presented in tabular format, accompanied by a narrative summary describing how the findings relate to the scoping review questions.</p><p><strong>Registration on open science framework: </strong>https://osf.io/kfj9v.</p>","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":""},"PeriodicalIF":1.5,"publicationDate":"2024-09-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142355746","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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JBI evidence synthesis
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