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Experiences of empathy of caregivers caring for persons with dementia: a qualitative systematic review protocol. 照顾痴呆症患者的护理人员的移情体验:定性系统性审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-10 DOI: 10.11124/JBIES-24-00010
Meiling Han, Hunsa Sethabouppha, Nonglak Chaloumsuk, Patraporn Bhatarasakoon

Objective: The aim of this systematic review will be to explore the experiences of empathy in informal caregivers caring for persons with dementia.

Introduction: Positive caregiving experiences of informal caregivers caring for persons with dementia have many beneficial outcomes, such as improved well-being of both caregivers and care receivers and a higher quality of care for the persons with dementia. Empathy is a factor associated with positive caregiving experiences and is strongly correlated with reduced depression and reduced anxiety in informal caregivers of persons with dementia. Therefore, it is essential to understand the experiences of empathy, especially the caregiver characteristics such as their caring behaviors, relationship with the patient, and cultural beliefs.

Inclusion criteria: This review will include studies on the empathy experiences of informal caregivers caring for persons with any type of dementia. It will consider qualitative studies, including, but not limited to, designs such as phenomenology, grounded theory, ethnography, action research, and feminist research.

Methods: This study will follow the JBI guidance for systematic reviews of qualitative evidence and will use the meta-aggregation approach to synthesise qualitative studies. The search strategy will aim to locate both published and unpublished studies in English, Chinese, and Thai, with no date restrictions. Methodological quality will be evaluated using the standard JBI critical appraisal checklist for qualitative research. The findings will be pooled using the meta-aggregation approach or will be presented in narrative format.

Systematic review registration number: PROSPERO CRD42023490472.

目的本系统综述旨在探讨非正规照护者在照护痴呆症患者时的移情体验:非正规照护者在照护痴呆症患者过程中的积极照护体验会产生许多有益的结果,例如改善照护者和受照护者的福祉,提高对痴呆症患者的照护质量。移情是与积极护理体验相关的一个因素,与痴呆症患者非正式护理者抑郁和焦虑的减少密切相关。因此,了解移情体验至关重要,尤其是护理者的特征,如他们的护理行为、与患者的关系以及文化信仰:本综述将包括有关非正规照护者在照护任何类型痴呆症患者时的移情体验的研究。研究将考虑定性研究,包括但不限于现象学、基础理论、人种学、行动研究和女性主义研究等设计:本研究将遵循 JBI 关于定性证据系统性综述的指南,并将使用元聚合法来综合定性研究。搜索策略旨在查找已发表和未发表的英文、中文和泰文研究,没有日期限制。将使用标准的 JBI 定性研究批判性评估清单对方法学质量进行评估。研究结果将采用元汇总法进行汇总,或以叙述的形式呈现:系统综述注册编号:PREMCORD42023490472。
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引用次数: 0
Tools, techniques, methods, and processes for the detection and mitigation of fraudulent or erroneous data in evidence synthesis: a scoping review protocol. 在证据综述中检测和减少欺诈性或错误数据的工具、技术、方法和流程:范围审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-10 DOI: 10.11124/JBIES-24-00167
Timothy Hugh Barker, Grace McKenzie McBride, Amanda Ross-White, Danielle Pollock, Cindy Stern, Sabira Hasanoff, Raju Kanukula, Mafalda Dias, Anna Scott, Edoardo Aromataris, Ashley Whitehorn, Jennifer Stone, Larissa Shamseer, Patrick Palmieri, Miloslav Klugar, Zachary Munn

Objective: This scoping review aims to identify, catalogue, and characterize previously reported tools, techniques, methods, and processes that have been recommended or used by evidence synthesizers to detect fraudulent or erroneous data and mitigate its impact.

Introduction: Decision-making for policy and practice should always be underpinned by the best available evidence-typically peer-reviewed scientific literature. Evidence synthesis literature should be collated and organized using the appropriate evidence synthesis methodology, best exemplified by the role systematic reviews play in evidence-based health care. However, with the rise of "predatory journals," fraudulent or erroneous data may be invading this literature, which may negatively affect evidence syntheses that use this data. This, in turn, may compromise decision-making processes.

Inclusion criteria: This review will include peer-reviewed articles, commentaries, books, and editorials that describe at least 1 tool, technique, method, or process with the explicit purpose of identifying or mitigating the impact of fraudulent or erroneous data for any evidence synthesis, in any topic area. Manuals, handbooks, and guidance from major organizations, universities, and libraries will also be considered.

Methods: This review will be conducted using the JBI methodology for scoping reviews and reported according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR). Databases and relevant organizational websites will be searched for eligible studies. Title and abstract, and subsequently full-text screening will be conducted in duplicate using Covidence. Data from identified full texts will be extracted using a pre-determined checklist, while the findings will be summarized descriptively and presented in tables.

This scoping review protocol was registered in open science framework: https://osf.io/u8yrn.

目标:本范围综述旨在识别、编目和描述以前报道过的工具、技术、方法和流程,这些工具、技术、方法和流程已被证据合成者推荐或使用,以检测欺诈或错误数据并减轻其影响:政策和实践决策应始终以现有的最佳证据--通常是经同行评审的科学文献--为基础。证据综合文献应使用适当的证据综合方法进行整理和组织,系统综述在循证医疗保健中发挥的作用就是最好的例证。然而,随着 "掠夺性期刊 "的兴起,虚假或错误的数据可能会侵入这些文献,从而对使用这些数据的证据综合产生负面影响。纳入标准:本综述将包括经同行评审的文章、评论、书籍和社论,这些文章、评论、书籍和社论至少描述了一种工具、技术、方法或流程,其明确目的是在任何主题领域的任何证据综述中识别或减轻欺诈性或错误数据的影响。来自主要组织、大学和图书馆的手册、指南也在考虑之列:本综述将采用 JBI 的方法进行范围界定综述,并根据范围界定综述的《系统综述和元分析首选报告项目》(PRISMA-ScR)进行报告。将在数据库和相关组织网站上搜索符合条件的研究。标题和摘要以及随后的全文筛选将使用 Covidence 一式两份进行。将使用预先确定的核对表从已确定的全文中提取数据,同时对研究结果进行描述性总结并以表格形式呈现。本范围界定综述协议已在开放科学框架中注册:https://osf.io/u8yrn。
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引用次数: 0
Care partner engagement in patient safety at the direct care level in hospital: a qualitative systematic review protocol. 护理伙伴参与医院直接护理层面的患者安全:定性系统回顾协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-10 DOI: 10.11124/JBIES-24-00066
Kayley Perfetto, Laura Pozzobon, Kim Sears, Jane O'Hara, Amanda Ross-White, Lenora Duhn

Objective: The objective of this systematic review is to understand the experiences of care partner engagement in patient safety at the direct care level from the perspective of care partners, patients, and health care professionals.

Introduction: Care partner engagement is a strategy for promoting patient safety in hospitals at the direct care level (ie, at the point where patient care is delivered). When present, care partners can increase safety by watching, listening, and taking action to protect admitted patients. To improve care partner presence policies and safety engagement strategies within hospitals, a comprehensive understanding of the current qualitative evidence about the breadth of experiences of care partner engagement in patient safety is required.

Inclusion criteria: This review will include qualitative studies that consider the experiences of care partners, adult patients, and health care professionals. The engagement of care partners in patient safety within pediatric hospital settings will not be considered.

Methods: This review will follow the JBI methodology for systematic reviews of qualitative evidence. A preliminary literature search was conducted in MEDLINE and a full search strategy was developed for MEDLINE, Embase, CINAHL, and PsycINFO (all via Ovid), as well as the Cochrane Database of Systematic Reviews and JBI Evidence Synthesis. The JBI approach to study selection, critical appraisal, data extraction, data synthesis, and assessment of confidence will be followed. Two reviewers will test the screening criteria and data extraction protocol.

Systematic review registration number: PROSPERO CRD42023476286.

目标:本系统性综述旨在从护理合作伙伴、患者和医护人员的角度,了解护理合作伙伴在直接护理层面参与患者安全的经验:护理合作伙伴的参与是医院在直接护理层面(即在为患者提供护理服务时)促进患者安全的一种策略。护理伙伴在场时,可以通过观察、倾听和采取行动来保护入院患者,从而提高安全性。为了改进医院内的护理伙伴在场政策和安全参与策略,需要全面了解目前有关护理伙伴参与患者安全的广泛经验的定性证据:本综述将包括考虑护理合作伙伴、成年患者和医护人员经验的定性研究。不考虑儿科医院环境中护理合作伙伴参与患者安全的情况:本综述将采用 JBI 方法对定性证据进行系统综述。在 MEDLINE 中进行了初步文献检索,并为 MEDLINE、Embase、CINAHL 和 PsycINFO(均通过 Ovid)以及 Cochrane 系统性综述数据库和 JBI 证据综合制定了完整的检索策略。我们将采用 JBI 方法进行研究选择、批判性评估、数据提取、数据综合和置信度评估。两名审稿人将测试筛选标准和数据提取协议:系统综述注册号:PROCERCO CRD42023476286。
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引用次数: 0
Experiences of breastfeeding among mothers of preterm infants during their infants' hospital stays: a qualitative systematic review protocol. 早产儿母亲在婴儿住院期间的母乳喂养经历:定性系统性审查方案。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-09 DOI: 10.11124/JBIES-24-00078
Tippawan Srichalerm, Donruedee Kamkhoad, Ratchanok Phonyiam

Objective: The objective of this review is to synthesize the existing qualitative evidence on the breastfeeding experiences of mothers with hospitalized preterm infants.

Introduction: Breastfeeding is crucial for the well-being and development of preterm infants born before 37 weeks' gestation. Mothers of preterm infants often face challenges that make breastfeeding particularly complex. Understanding their breastfeeding experience is important for health care professionals as it enables them to provide appropriate support and assistance. The qualitative evidence synthesis regarding the breastfeeding experiences of mothers with preterm infants in hospital settings is a valuable area of research that has not been documented.

Inclusion criteria: This review will consider all qualitative studies that explore the experiences of mothers with preterm infants with breastfeeding and mother's own milk management for their hospitalized infants. All mothers of preterm infants who provide their own milk to their infants will be considered, regardless of their health and social status.

Methods: This review will follow the JBI approach for qualitative systematic review. The search strategy aims to find both published and unpublished studies with no date limit. A search of PubMed, CINAHL (EBSCOhost), and Embase (EBSCOhost) will be undertaken to identify articles on the topic. Studies published in English will be considered for inclusion in this review. Two independent reviewers will evaluate the methodological validity of the selected papers before incorporating them into the review. Data synthesis will be conducted using the meta-aggregation approach, and synthesized findings will be assessed using the ConQual approach.

Review registration: PROSPERO CRD42024501454.

目的本综述旨在综合现有的定性证据,了解住院早产儿母亲的母乳喂养经历:母乳喂养对妊娠 37 周前出生的早产儿的健康和发育至关重要。早产儿的母亲往往面临各种挑战,这使得母乳喂养变得尤为复杂。了解她们的母乳喂养经历对医护人员来说非常重要,因为这能让他们提供适当的支持和帮助。有关医院环境中早产儿母亲母乳喂养经验的定性证据综述是一个宝贵的研究领域,但尚未被记录在案:本综述将考虑所有探讨早产儿母亲为住院婴儿进行母乳喂养和母乳管理经验的定性研究。所有为婴儿提供母乳的早产儿母亲,无论其健康状况和社会地位如何,都将被考虑在内:本综述将采用 JBI 方法进行定性系统综述。搜索策略旨在查找已发表和未发表的研究,没有日期限制。将在 PubMed、CINAHL (EBSCOhost) 和 Embase (EBSCOhost) 中进行检索,以确定与该主题相关的文章。本综述将考虑纳入以英语发表的研究。在将所选论文纳入综述之前,两名独立审稿人将对其方法的有效性进行评估。将使用元聚合法进行数据综合,并使用 ConQual 法评估综合结果:综述注册:prospero crd42024501454。
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引用次数: 0
Experiences of adult patients living with depression-related insomnia: a qualitative systematic review. 抑郁症相关失眠症成年患者的经历:定性系统综述。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-09 DOI: 10.11124/JBIES-23-00499
Sanne T Kristiansen, Cecilie N Lyhne, Mette Kragh, Karen R Sigaard, Poul Videbech, Erik R Larsen, Merete B Bjerrum
<p><strong>Objective: </strong>The objective of this review was to identify and synthesize the best available evidence on how adult patients experience living with depression-related insomnia, and their experiences related to pharmacological and non-pharmacological interventions aimed at improving sleep.</p><p><strong>Introduction: </strong>Insomnia affects 80% to 90% of patients with depression. The costs of insomnia are considerable for the individual and society alike. To understand the role and consequences of insomnia for an individual with depression and to optimize sleep interventions, an in-depth understanding of patients' experiences is needed. Therefore, this review addresses how adult patients experience living with depression-related insomnia, along with the experiences of pharmacological and non-pharmacological sleep interventions among patients with depression-related insomnia.</p><p><strong>Inclusion criteria: </strong>Studies focusing on adult patients aged 18 years and older with a diagnosis of depression who had experiences with insomnia and pharmacological and/or non-pharmacological sleep interventions were included. All studies with qualitative research findings from inpatient and outpatient populations were considered.</p><p><strong>Methods: </strong>The following databases were searched: MEDLINE (PubMed), Embase (Elsevier), CINAHL (EBSCOhost), PsycINFO (ProQuest), Cochrane CENTRAL, SveMed+, Scopus, and Web of Science Core Collection. Google Scholar and ProQuest Dissertations and Theses were searched for eligible dissertations and theses. The searches were conducted on May 3-5, 2022, and updated on June 13-19, 2023. Studies published in English, Danish, German, Norwegian, and Swedish were considered. Databases were searched from their inception to the search date. All studies were screened against the inclusion criteria and critically and independently appraised by 2 reviewers for methodological quality. Findings were pooled using meta-aggregation, and a ConQual Summary of Findings was created.</p><p><strong>Results: </strong>Ten qualitative studies were included. The studies were conducted in 6 countries and counted a total of 176 participants. In all, 127 findings were extracted and aggregated into 11 categories. From the 11 categories, 3 synthesized findings were developed: 1) Disruption of sleep challenges coping with everyday life by depleting both physical and mental resources; 2) Sleep is an escape and a protective factor against suicide; and 3) Choices, support, and personalized interventions from non-pharmacological approaches addressing depression-related insomnia are valued.</p><p><strong>Conclusions: </strong>This review underlined the relationship between depression-related insomnia, its profound impact on individuals' lives, and the value of non-pharmacological sleep interventions to address these issues. Specifically, the study revealed the physical and emotional consequences of insomnia while emphasizing how w
目的:本综述旨在确定和综合现有的最佳证据,以了解成年患者如何经历与抑郁症相关的失眠,以及他们与旨在改善睡眠的药物和非药物干预措施相关的经历:失眠影响着 80% 至 90% 的抑郁症患者。失眠对个人和社会造成的代价都是巨大的。要了解失眠对抑郁症患者的作用和后果,并优化睡眠干预措施,就需要深入了解患者的经历。因此,本综述探讨了成年患者如何体验与抑郁相关的失眠,以及抑郁相关失眠患者接受药物和非药物睡眠干预的经历:纳入标准:以年龄在 18 岁及以上、诊断为抑郁症的成年患者为研究对象,这些患者有失眠和药物及/或非药物睡眠干预的经历。所有从住院病人和门诊病人中得出定性研究结果的研究均在考虑之列:检索了以下数据库:MEDLINE(PubMed)、Embase(Elsevier)、CINAHL(EBSCOhost)、PsycINFO(ProQuest)、Cochrane CENTRAL、SveMed+、Scopus 和 Web of Science Core Collection。在 Google Scholar 和 ProQuest Dissertations and Theses 中检索了符合条件的论文。搜索时间为 2022 年 5 月 3-5 日,更新时间为 2023 年 6 月 13-19 日。以英语、丹麦语、德语、挪威语和瑞典语发表的研究均在考虑之列。数据库的检索时间为数据库建立至检索日期。所有研究均按照纳入标准进行筛选,并由两名评审员独立对研究的方法学质量进行严格评审。使用元聚合法对研究结果进行汇总,并创建了 ConQual 研究结果摘要:结果:共纳入 10 项定性研究。这些研究在 6 个国家进行,共有 176 人参与。总共提取了 127 项研究结果,并将其归纳为 11 个类别。从这 11 个类别中,得出了 3 个综合结论:1)睡眠中断会耗尽身体和精神资源,从而给应对日常生活带来挑战;2)睡眠是一种逃避,也是防止自杀的保护因素;3)通过非药物方法解决抑郁症相关失眠问题的选择、支持和个性化干预措施很有价值:本综述强调了抑郁症相关失眠症之间的关系、其对个人生活的深远影响以及非药物睡眠干预对解决这些问题的价值。具体而言,该研究揭示了失眠对身体和情感造成的后果,同时强调了夜间易醒可能会加剧孤独感以及产生消极想法和自杀的可能性。此外,该研究还概述了患者采用非药物方法治疗抑郁症相关失眠症的经验,并强调了他们不同的治疗经验和偏好:本综述的丹麦语摘要可作为补充数字内容[http://links.lww.com/SRX/A64]获取。系统综述注册号:系统综述注册号:PROCROPERCO CRD42021276048。
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引用次数: 0
Artificial intelligence applied in human health technology assessment: a scoping review protocol. 人工智能在人类健康技术评估中的应用:范围审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-03 DOI: 10.11124/JBIES-23-00377
Denis Satoshi Komoda, Marilia Mastrocolla de Almeida Cardoso, Brígida Dias Fernandes, Marília Berlofa Visacri, Carlos Roberto Silveira Correa

Objective: This scoping review aims to map studies that applied artificial intelligence (AI) tools to perform health technology assessment tasks in human health care. The review also aims to understand specific processes in which the AI tools were applied and to comprehend the technical characteristics of these tools.

Introduction: Health technology assessment is a complex, time-consuming, and labor-intensive endeavor. The development of automation techniques using AI has opened up new avenues for accelerating such assessments in human health settings. This could potentially aid health technology assessment researchers and decision-makers to deliver higher quality evidence.

Inclusion criteria: This review will consider studies that assesses the use of AI tools in any process of health technology assessment in human health. However, publications in which AI is a means of clinical aid, such as diagnostics or surgery will be excluded.

Methods: A search for relevant articles will be conducted in databases such as CINAHL (EBSCOhost), Embase (Ovid), MEDLINE (PubMed), Science Direct, Computer and Applied Sciences Complete (EBSCOhost), LILACS, Scopus, and Web of Science Core Collection. A search for gray literature will be conducted in GreyLit.Org, ProQuest Dissertations and Theses, Google Scholar, and the Google search engine. No language filters will be applied. Screening, selection, and data extraction will be performed by 2 independent reviewers. The results will be presented in graphic and tabular format, accompanied by a narrative summary.

Details of this review can be found in open science framework: osf.io/3rm8g.

目的:本范围综述旨在对应用人工智能(AI)工具执行人类医疗保健领域健康技术评估任务的研究进行梳理。综述还旨在了解应用人工智能工具的具体过程,并理解这些工具的技术特点:医疗技术评估是一项复杂、耗时且劳动密集型的工作。人工智能自动化技术的发展为加速人类健康环境中的此类评估开辟了新途径。这有可能帮助卫生技术评估研究人员和决策者提供更高质量的证据:本综述将考虑评估人工智能工具在人类健康的任何健康技术评估过程中使用情况的研究。但是,人工智能作为临床辅助手段(如诊断或手术)的出版物将被排除在外:将在 CINAHL (EBSCOhost)、Embase (Ovid)、MEDLINE (PubMed)、Science Direct、Computer and Applied Sciences Complete (EBSCOhost)、LILACS、Scopus 和 Web of Science Core Collection 等数据库中搜索相关文章。将在 GreyLit.Org、ProQuest Dissertations and Theses、Google Scholar 和 Google 搜索引擎中搜索灰色文献。不使用语言过滤器。筛选、选择和数据提取将由两名独立审稿人完成。结果将以图形和表格的形式呈现,并附有叙述性摘要。本综述的详细信息可在开放科学框架中找到:osf.io/3rm8g。
{"title":"Artificial intelligence applied in human health technology assessment: a scoping review protocol.","authors":"Denis Satoshi Komoda, Marilia Mastrocolla de Almeida Cardoso, Brígida Dias Fernandes, Marília Berlofa Visacri, Carlos Roberto Silveira Correa","doi":"10.11124/JBIES-23-00377","DOIUrl":"https://doi.org/10.11124/JBIES-23-00377","url":null,"abstract":"<p><strong>Objective: </strong>This scoping review aims to map studies that applied artificial intelligence (AI) tools to perform health technology assessment tasks in human health care. The review also aims to understand specific processes in which the AI tools were applied and to comprehend the technical characteristics of these tools.</p><p><strong>Introduction: </strong>Health technology assessment is a complex, time-consuming, and labor-intensive endeavor. The development of automation techniques using AI has opened up new avenues for accelerating such assessments in human health settings. This could potentially aid health technology assessment researchers and decision-makers to deliver higher quality evidence.</p><p><strong>Inclusion criteria: </strong>This review will consider studies that assesses the use of AI tools in any process of health technology assessment in human health. However, publications in which AI is a means of clinical aid, such as diagnostics or surgery will be excluded.</p><p><strong>Methods: </strong>A search for relevant articles will be conducted in databases such as CINAHL (EBSCOhost), Embase (Ovid), MEDLINE (PubMed), Science Direct, Computer and Applied Sciences Complete (EBSCOhost), LILACS, Scopus, and Web of Science Core Collection. A search for gray literature will be conducted in GreyLit.Org, ProQuest Dissertations and Theses, Google Scholar, and the Google search engine. No language filters will be applied. Screening, selection, and data extraction will be performed by 2 independent reviewers. The results will be presented in graphic and tabular format, accompanied by a narrative summary.</p><p><strong>Details of this review can be found in open science framework: </strong>osf.io/3rm8g.</p>","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":""},"PeriodicalIF":1.5,"publicationDate":"2024-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142120792","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Addressing equity, diversity, and inclusion in JBI qualitative systematic reviews: a methodological scoping review. 在 JBI 定性系统性综述中解决公平、多样性和包容性问题:方法论范围综述。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-03 DOI: 10.11124/JBIES-24-00025
Catrin Evans, Zeinab M Hassanein, Manpreet Bains, Clare Bennett, Merete Bjerrum, Alison Edgley, Deborah Edwards, Kylie Porritt, Susan Salmond
<p><strong>Objective: </strong>The objective of this methodological scoping review was to investigate ways in which qualitative review teams are addressing equity, diversity, and inclusion (EDI) in the process of conducting and reporting qualitative systematic reviews that use JBI guidelines.</p><p><strong>Introduction: </strong>To promote health equity, there is a need for evidence synthesis processes and practices to develop approaches that incorporate EDI. Some guidance is available to guide equity-focused review methods and reporting, but this is primarily oriented to quantitative systematic reviews. There is currently limited knowledge about how review teams are addressing EDI within qualitative evidence syntheses.</p><p><strong>Inclusion criteria: </strong>This review included English-language qualitative systematic reviews, published in 2022, that used all the steps outlined in JBI guidance for qualitative reviews.</p><p><strong>Methods: </strong>A 1-year sample of published reviews was identified from a search undertaken on March 17, 2023, of 2 health care databases: MEDLINE (Ovid) and CINAHL (EBSCOhost). Data extraction followed a framework approach, using an adapted preexisting equity template. This included attention to i) the reporting of a range of characteristics associated with EDI, ii) search approaches, and iii) analytical approaches (including reflexivity, intersectionality, and knowledge user engagement). Data were analyzed using descriptive statistics and narrative summary.</p><p><strong>Results: </strong>Forty-three reviews met the inclusion criteria. The majority of reviews (n=30) framed their questions and aims in a generic/universal (rather than EDI-focused) way. Six reviews justified their population focus in terms of an EDI-related issue. Only one review included a knowledge user. The sociodemographic and other key characteristics of the samples in underpinning studies were poorly reported, making it hard to discern EDI-related issues or to undertake EDI-related analyses. Thirteen of the reviews included non-English-language evidence sources, and 31 reviews included gray literature sources. Ten reviews demonstrated an element of intersectional or otherwise critical approaches within their analyses of categories and synthesized findings (whereby issues of power and/or representation were explicitly considered). Only 8 reviews included discussions of review team composition and reflexivity within the review process.</p><p><strong>Conclusions: </strong>This EDI-focused methodological enquiry has highlighted some limitations within current qualitative evidence synthesis practice. Without closer attention to EDI, there is a danger that systematic reviews may simply serve to amplify, rather than illuminate, existing gaps, silences, and inequitable knowledge claims based on dominant representations. This review sets out a range of suggestions to help qualitative evidence synthesis teams to more systematically embed EDI within t
目标:本方法学范围界定综述的目的是调查定性综述团队在使用 JBI 指南开展和报告定性系统综述的过程中解决公平、多样性和包容性(EDI)问题的方法:为了促进健康公平,有必要在证据合成过程和实践中制定纳入公平、多样性和包容性(EDI)的方法。目前已有一些指南来指导以公平为重点的综述方法和报告,但这些指南主要针对定量系统综述。目前,关于综述团队如何在定性证据综述中处理平等数据交换的知识还很有限:本综述包括2022年发表的英文定性系统综述,这些综述使用了JBI定性综述指南中列出的所有步骤:方法:通过 2023 年 3 月 17 日对 2 个医疗保健数据库的检索,确定了 1 年内发表的综述样本:MEDLINE(Ovid)和CINAHL(EBSCOhost)。数据提取采用框架方法,使用经过改编的现有公平模板。这包括关注 i) 与电子数据交换相关的一系列特征的报告;ii) 搜索方法;iii) 分析方法(包括反身性、交叉性和知识用户参与)。采用描述性统计和叙述性总结对数据进行了分析:有 43 篇综述符合纳入标准。大多数综述(n=30)以通用/普遍(而不是以电子数据交换为重点)的方式提出问题和目标。六篇综述从与电子数据交换相关的问题出发,说明了其关注人群的合理性。只有一篇综述包括了知识用户。基础研究中样本的社会人口学特征和其他关键特征的报告较少,因此很难辨别与电子数据交换相关的问题或进行与电子数据交换相关的分析。13篇综述包含非英语证据来源,31篇综述包含灰色文献来源。有 10 篇综述在分析类别和综合研究结果时采用了交叉或其他批判性方法(明确考虑了权力和/或代表性问题)。只有 8 篇综述在综述过程中讨论了综述团队的组成和反思性:这项以电子数据交换为重点的方法学调查凸显了当前定性证据综合实践中的一些局限性。如果不对电子数据交换给予更密切的关注,系统性综述就有可能只会扩大而不是阐明现有的差距、沉默以及基于主流表述的不公平知识主张。本综述提出了一系列建议,以帮助定性证据综述团队更系统地将EDI纳入其方法和实践中:开放科学框架 https://osf.io/wy5kv/。
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引用次数: 0
Effectiveness of receiving genetic risk information for cardiovascular disease on health behaviors, psychological responses, and associated risk factor modification in individuals: a systematic review protocol. 接受心血管疾病遗传风险信息对个人健康行为、心理反应和相关风险因素调整的影响:系统性综述方案。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-03 DOI: 10.11124/JBIES-23-00313
Ruofei Trophy Chen, Vincent Pearson, Orathai Suebkinorn, Lemma N Bulto, Alice Anderson, Adam J Nelson, Sophia Zoungas, Stephen J Nicholls, Robyn A Clark

Objective: This review aims to assess the effectiveness of receiving genetic risk information for cardiovascular disease (CVD) on individual health behaviors, psychological responses, and risk factor modification.

Introduction: Advancements in genomics have identified strong genetic predispositions for CVD, leading to the development of CVD genetic risk information. Integrating genetic risk information into clinical practice shows promise in predicting CVD risk and facilitating multifactorial management.

Inclusion criteria: This review will focus on randomized controlled trials assessing individual responses to CVD genetic risk information. Participants will be adults aged 18 and older, both with and without CVD. The review will compare the effectiveness of receiving genetic risk information with receiving traditional risk information or no risk information, assessing outcomes such as health behaviors, psychological responses, and risk factor modification.

Methods: Cochrane CENTRAL, MEDLINE, Embase and Emcare will be searched for relevant studies. Current or unpublished trials will be searched for in Clinical-Trials.gov and World Health Organization International Clinical Trials Registry Platform. Articles will be screened and assessed for inclusion by 2 independent reviewers. Methodological quality will be assessed using the standardized instrument from JBI. Data will be extracted and synthesized for the objectives of the study. If data are sufficient, a meta-analysis will be conducted; otherwise, the findings will be presented in narrative format, including tables and figures to aid in presentation. The certainty of evidence will be assessed using the Grading of Recommendations, Assessment, Development, and Evaluations (GRADE) approach.

Review registration: PROSPERO CRD42023390876.

目的:本综述旨在评估接受心血管疾病(CVD)遗传风险信息对个人健康行为、心理反应和风险因素调整的影响:本综述旨在评估接受心血管疾病(CVD)遗传风险信息对个人健康行为、心理反应和风险因素改变的影响:基因组学的进步发现了心血管疾病的强遗传倾向,从而开发了心血管疾病遗传风险信息。将遗传风险信息纳入临床实践有望预测心血管疾病风险并促进多因素管理:本综述将侧重于评估个人对心血管疾病遗传风险信息反应的随机对照试验。参与者将是 18 岁及以上的成年人,既包括心血管疾病患者,也包括非心血管疾病患者。综述将比较接受遗传风险信息与接受传统风险信息或不接受风险信息的效果,评估健康行为、心理反应和风险因素改变等结果:方法:将在 Cochrane CENTRAL、MEDLINE、Embase 和 Emcare 中检索相关研究。将在 Clinical-Trials.gov 和世界卫生组织国际临床试验注册平台上搜索当前或未发表的试验。文章将由两名独立审稿人筛选和评估是否纳入。方法学质量将使用 JBI 的标准化工具进行评估。将根据研究目标提取和综合数据。如果数据充足,将进行荟萃分析;否则,研究结果将以叙述的形式呈现,包括有助于呈现的表格和图表。证据的确定性将采用建议、评估、发展和评价分级法(GRADE)进行评估:综述注册:prospero crd42023390876。
{"title":"Effectiveness of receiving genetic risk information for cardiovascular disease on health behaviors, psychological responses, and associated risk factor modification in individuals: a systematic review protocol.","authors":"Ruofei Trophy Chen, Vincent Pearson, Orathai Suebkinorn, Lemma N Bulto, Alice Anderson, Adam J Nelson, Sophia Zoungas, Stephen J Nicholls, Robyn A Clark","doi":"10.11124/JBIES-23-00313","DOIUrl":"https://doi.org/10.11124/JBIES-23-00313","url":null,"abstract":"<p><strong>Objective: </strong>This review aims to assess the effectiveness of receiving genetic risk information for cardiovascular disease (CVD) on individual health behaviors, psychological responses, and risk factor modification.</p><p><strong>Introduction: </strong>Advancements in genomics have identified strong genetic predispositions for CVD, leading to the development of CVD genetic risk information. Integrating genetic risk information into clinical practice shows promise in predicting CVD risk and facilitating multifactorial management.</p><p><strong>Inclusion criteria: </strong>This review will focus on randomized controlled trials assessing individual responses to CVD genetic risk information. Participants will be adults aged 18 and older, both with and without CVD. The review will compare the effectiveness of receiving genetic risk information with receiving traditional risk information or no risk information, assessing outcomes such as health behaviors, psychological responses, and risk factor modification.</p><p><strong>Methods: </strong>Cochrane CENTRAL, MEDLINE, Embase and Emcare will be searched for relevant studies. Current or unpublished trials will be searched for in Clinical-Trials.gov and World Health Organization International Clinical Trials Registry Platform. Articles will be screened and assessed for inclusion by 2 independent reviewers. Methodological quality will be assessed using the standardized instrument from JBI. Data will be extracted and synthesized for the objectives of the study. If data are sufficient, a meta-analysis will be conducted; otherwise, the findings will be presented in narrative format, including tables and figures to aid in presentation. The certainty of evidence will be assessed using the Grading of Recommendations, Assessment, Development, and Evaluations (GRADE) approach.</p><p><strong>Review registration: </strong>PROSPERO CRD42023390876.</p>","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":""},"PeriodicalIF":1.5,"publicationDate":"2024-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142120793","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Experiences of siblings of children with profound intellectual and multiple disabilities: a qualitative systematic review protocol. 极重度智力和多重残疾儿童兄弟姐妹的经历:定性系统审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-03 DOI: 10.11124/JBIES-24-00043
Yuta Koto, Masami Tanaka, Shingo Ueki, Kazuteru Niinomi

Objective: The objective of this systematic review is to explore the experiences of siblings of children with profound intellectual and multiple disabilities.

Introduction: With improved life expectancy of children with profound intellectual and multiple disabilities, the research focus is on care at home and in the community. Although parents are the primary caregivers, siblings often assume the role of young caregivers, bearing the weight of caregiving responsibilities. Thus, a synthesis of qualitative findings is required regarding their experiences to facilitate the development of effective support strategies.

Inclusion criteria: Siblings of children with profound intellectual and multiple disabilities will be included, defined as children with an IQ of ≤40 or mental development below a 2-year-old's level, coupled with an inability to walk independently. Disabled children aged <20 years will be included. There will be no restrictions on the siblings' age or type of relationship. Qualitative studies on experiences, caregiving burdens, challenges, difficulties, and frustration in daily life will be considered, covering home, community, school, and hospital settings for children with disabilities.

Methods: We will follow the JBI methodology for systematic reviews of qualitative evidence. The search strategy will be conducted in 3 phases: initial limited search, comprehensive database search, and reference list search of the included articles. The MEDLINE, CINAHL Plus, PsycINFO, Scopus, Ichushi-Web, and CiNii databases will be searched, with no restrictions on language or publication date. Study selection, critical appraisal, data extraction, and data synthesis will be conducted by 2 independent reviewers. We will evaluate the final synthesized findings using the ConQual approach.

Systematic review registration number: PROSPERO CRD42024499042.

目的本系统性综述旨在探讨深度智障和多重残疾儿童兄弟姐妹的经历:随着重度智障和多重残疾儿童预期寿命的延长,研究重点集中在家庭和社区护理方面。虽然父母是主要的照顾者,但兄弟姐妹往往承担着年轻照顾者的角色,承担着照顾责任的重担。因此,需要对他们的经历进行定性研究,以促进制定有效的支持策略:智商≤40或智力发育低于两岁儿童水平,且不能独立行走的儿童。残疾儿童的年龄 方法:我们将按照 JBI 的方法对定性证据进行系统性审查。检索策略将分三个阶段进行:最初的有限检索、全面的数据库检索以及对收录文章的参考文献列表检索。我们将检索 MEDLINE、CINAHL Plus、PsycINFO、Scopus、Ichushi-Web 和 CiNii 数据库,语言和出版日期不限。研究选择、严格评估、数据提取和数据综合将由两名独立审稿人进行。我们将采用 ConQual 方法对最终的综合结果进行评估:系统综述注册编号:PROCERCO CRD42024499042。
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引用次数: 0
Erratum to: Oral hygiene care and the management of oral symptoms in patients with cancer in palliative care: a mixed methods systematic review protocol. 勘误:口腔卫生护理和姑息治疗癌症患者口腔症状的管理:混合方法系统综述协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-01 DOI: 10.11124/JBIES-24-00382
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引用次数: 0
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JBI evidence synthesis
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