JBI evidence synthesis最新文献

Objective: This review aims to assess the effectiveness of receiving cardiovascular disease (CVD) genetic risk information on individual health behaviors, psychological responses, and risk factor modification.

Introduction: Advancements in genomics have identified strong genetic predispositions for CVD, leading to the development of CVD genetic risk information. Integrating genetic risk information into clinical practice shows promise in predicting CVD risk and facilitating multifactorial management.

Inclusion criteria: This review will focus on randomized controlled trials assessing individual responses to CVD genetic risk information. Participants will be adults aged 18 or older, either with or without CVD. The review will compare the effectiveness of receiving genetic risk information with receiving traditional risk information or no risk information, assessing outcomes such as health behaviors, psychological responses, and risk factor modification.

Methods: Cochrane CENTRAL, MEDLINE, Embase, and Emcare will be searched for relevant studies. Current or unpublished trials will be searched for in ClinicalTrials.gov and World Health Organization International Clinical Trials Registry Platform. Articles will be screened and assessed for inclusion by 2 independent reviewers. Methodological quality will be assessed using the standardized instrument from JBI. Data will be extracted and synthesized according to the objectives of the review. If data are sufficient, a meta-analysis will be conducted; otherwise, the findings will be presented in narrative format, including tables and figures. The certainty of evidence will be assessed using the Grading of Recommendations, Assessment, Development and Evaluations (GRADE) approach.

Review registration: PROSPERO CRD42023390876.

Objective: The aim of this systematic review will be to explore the experiences of empathy in informal caregivers providing care for persons with dementia.

Introduction: Positive caregiving experiences of informal caregivers providing care for persons with dementia have many beneficial outcomes, such as improved well-being of both caregivers and care receivers and a higher quality of care for the persons with dementia. Empathy is a factor associated with positive caregiving experiences and is strongly correlated with reduced depression and reduced anxiety in informal caregivers of persons with dementia. Therefore, it is essential to understand the experiences of empathy, especially the caregiver characteristics such as their caring behaviors, relationship with the patient, and cultural beliefs.

Inclusion criteria: This review will include studies on the empathy experiences of informal caregivers providing care for persons with any type of dementia. It will consider qualitative studies, including, but not limited to, designs such as phenomenology, grounded theory, ethnography, action research, and feminist research.

Methods: This study will follow the JBI guidance for systematic reviews of qualitative evidence and will use the meta-aggregation approach to synthesise qualitative studies. The search strategy will aim to locate both published and unpublished studies in English, Chinese, and Thai, with no date restrictions. Methodological quality will be evaluated using the standard JBI critical appraisal checklist for qualitative research. The findings will be pooled using the meta-aggregation approach or will be presented in narrative format.

Review registration: PROSPERO CRD42023490472.

Objective: The objective of this scoping review is to identify and map methods used to incorporate patient preferences into medical algorithms and models as well as to report on their quantification, balancing, and evaluation in the literature. The review will focus on computational methods for incorporating patient preferences into algorithms and models at an individual level as well as the types of medical algorithms and models in which these methods have been applied.

Introduction: Medical algorithms and models are increasingly being used to support clinical and shared decision-making; however, their effectiveness, accuracy, acceptance, and comprehension may be limited if patients' preferences are not considered. To address this issue, it is important to explore methods integrating patient preferences.

Inclusion criteria: This review will investigate patient preferences and their integration into medical algorithms and models for individual-level clinical decision-making. The scoping review will include diverse sources, such as peer-reviewed articles, clinical practice guidelines, gray literature, government reports, guidelines, and expert opinions for a comprehensive investigation of the subject.

Methods: This scoping review will follow JBI methodology. A comprehensive search will be conducted in PubMed, Web of Science, ACM Digital Library, IEEE Xplore, the Cochrane Library, OpenGrey, the National Technical Reports Library, and the first 20 pages of Google Scholar. The search strategy will include keywords related to patient preferences, medical algorithms and models, decision-making, and software tools and frameworks. Data extraction and analysis will be guided by the JBI framework, which includes an explorative and qualitative analysis.

Review registration: Open Science Framework https://osf.io/qg3b5.

Objective: The objective of this systematic review is to explore the experiences of siblings of children with profound intellectual and multiple disabilities.

Introduction: With improved life expectancy of children with profound intellectual and multiple disabilities, the research focus is on care at home and in the community. Although parents are the primary caregivers, siblings often assume the role of young caregivers, bearing the weight of caregiving responsibilities. Thus, a synthesis of qualitative findings is required regarding their experiences to facilitate the development of effective support strategies.

Inclusion criteria: Siblings of children with profound intellectual and multiple disabilities will be included, defined as children with an IQ of ≤40 or mental development below a 2-year-old's level, coupled with an inability to walk independently. Disabled children aged <20 years will be included. There will be no restrictions on the siblings' age or type of relationship. Qualitative studies on experiences, caregiving burdens, challenges, difficulties, and frustration in daily life will be considered, covering home, community, school, and hospital settings for children with disabilities.

Methods: We will follow the JBI methodology for systematic reviews of qualitative evidence. The search strategy will be conducted in 3 phases: initial limited search, comprehensive database search, and reference list search of the included articles. The MEDLINE, CINAHL Plus, PsycINFO, Scopus, Ichushi-Web, and CiNii databases will be searched, with no restrictions on language or publication date. Study selection, critical appraisal, data extraction, and data synthesis will be conducted by 2 independent reviewers. We will evaluate the final synthesized findings using the ConQual approach.

Review registration: PROSPERO CRD42024499042.

Objective: This scoping review aims to map the strategies used during the communication of bad news to families of unexpected and sudden death victims from the perspective of those receiving the news.

Introduction: The strategies used in communicating a person's death to their family, especially in unexpected and sudden situations, can have a profound impact on the grief management process. This communication is often carried out by a health professional (doctor, nurse, or paramedic), but may also be carried out by a police officer, depending on the context in which the situation has occurred (in or out of hospital).

Inclusion criteria: This scoping review will include studies on families of victims of unexpected and sudden death. All studies focusing on the strategies used to communicate bad news of unexpected and sudden death face to face, implemented by any professional in an intra-hospital or extra-hospital context, from the perspective of those who received the news, will be considered.

Methods: This review will follow the JBI methodology for scoping reviews. An initial search will be conducted, followed by a second search for published and unpublished studies in major health-related electronic databases. Studies published in English, Spanish, French, and Portuguese will be included, with no geographical, cultural, or time limits. Data selection, extraction, and synthesis will be performed independently by 2 reviewers and will include details of populations, study methods, and strategies used. A narrative synthesis will accompany the results and describe how they relate to the objectives of the review.

Review registration: Open Science Framework https://osf.io/4rhw3.