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Midwives' and registered nurses' role and scope of practice in acute early pregnancy care services: a scoping review. 助产士和注册护士在急性早孕护理服务中的角色和执业范围:范围界定审查。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.11124/JBIES-23-00483
Nicole Freeman, Jane Warland, Kate Cheney, Zoe Bradfield
<p><strong>Objective: </strong>The objective of this scoping review was to investigate and describe what is reported on the role and scope of practice of midwives and registered nurses providing care for women with pregnancy complications prior to 20 weeks' gestation in acute clinical settings in Australia.</p><p><strong>Introduction: </strong>In many high-income countries, women experiencing unexpected complications in early pregnancy attend an acute care service, such as an emergency department, rather than a maternity or obstetric unit. This service structure can impact the care women receive and determine who provides it. Women and their partners, who are often experiencing emotional distress, have reported difficult experiences when accessing acute services, particularly emergency departments, which are not traditionally staffed by midwives. The role and scope of practice of both midwives and registered nurses providing acute early pregnancy care in most high-income countries, including Australia, is poorly reported. Documenting this area of practice is an important first step in facilitating ongoing research in this important aspect of pregnancy care.</p><p><strong>Inclusion criteria: </strong>Published and gray literature that described the role and scope of practice of midwives and/or registered nurses providing care in acute early pregnancy settings in Australia were considered for this review.</p><p><strong>Methods: </strong>A scoping review of the literature was conducted following JBI methodological guidance and reported using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR). A 3-step search strategy was conducted to explore evidence from databases and search engines, gray literature sources, and selected reference lists. The search was limited to sources published from 2005 until October 2023. The databases searched included MEDLINE (Ovid), MIDIRS (Ovid), JBI Evidence-based Practice Database (Ovid), CINAHL Ultimate (EBSCOhost), ProQuest Central, Web of Science Core Collection, Scopus, and Cochrane Library. Google and Google Scholar were also used to identify published studies. After screening, data were extracted from records selected for the final review, mapped, and analyzed using content analysis.</p><p><strong>Results: </strong>A total of 23 sources were selected for inclusion in the review, and these included primary research studies, conference abstracts, and gray literature, such as clinical guidance documents, academic theses, and websites, from January 2008 to October 2023. The most common setting for care provision was the emergency department. Midwives' and registered nurses' role and scope of practice in acute early pregnancy care in Australia can be categorized into 4 areas: physical care, psychosocial support, care coordination, and communication. Women's access to midwifery care at this time in pregnancy appears to be limited. Registered nurses, usually e
目标:本范围界定综述旨在调查和描述有关澳大利亚助产士和注册护士在急诊临床环境中为妊娠 20 周以下妊娠并发症妇女提供护理的角色和执业范围的报道:在许多高收入国家,妊娠早期出现意外并发症的妇女会去急诊科等急症护理机构就诊,而不是去产科或产科病房。这种服务结构会影响妇女接受的护理,并决定由谁来提供护理。妇女及其伴侣通常会受到情绪上的困扰,她们在接受急诊服务时,尤其是在传统上不配备助产士的急诊科,会遇到很多困难。在包括澳大利亚在内的大多数高收入国家,助产士和注册护士在提供孕早期急症护理方面的作用和工作范围鲜有报道。记录这一领域的实践是促进孕期护理这一重要方面持续研究的重要第一步:纳入标准:本综述将考虑描述澳大利亚助产士和/或注册护士在急性早孕期护理中的角色和实践范围的已发表文献和灰色文献:方法:按照 JBI 方法指南对文献进行了范围界定综述,并使用范围界定综述的系统综述和 Meta 分析扩展首选报告项目(PRISMA-ScR)清单进行报告。该研究采用了三步检索策略,从数据库和搜索引擎、灰色文献来源以及选定的参考文献列表中寻找证据。经过筛选后,从最终评审所选的记录中提取数据,绘制图表,并使用内容分析法进行分析:回顾的证据(n=23)包括2008年1月至2023年10月期间的主要研究、会议摘要和灰色文献,如临床指导文件、学术论文和网站。最常见的护理提供场所是急诊科。在澳大利亚,助产士和注册护士在孕早期急性期护理中的角色和工作范围可归纳为四个方面:身体护理、社会心理支持、护理协调和沟通。妇女在怀孕期间获得助产护理的机会似乎很有限。通常受雇于急诊科的注册护士在为患有妊娠早期急性并发症的妇女提供护理方面发挥着最重要的作用和范围。对助产士工作的描述更多地侧重于社会心理支持和后续护理,尤其是在孕早期评估服务模式中:本综述强调了澳大利亚助产士和注册护士在急性早孕中的角色和范围不一致,这一发现与其他国际环境相关。这两种职业都可以进一步发挥其作用和范围,为接受一系列急性早孕服务的妇女和家庭提供支持性、个性化和及时的护理。急诊科是注册护士通常的执业领域,她们为患有早孕并发症的妇女提供的护理范围可能有限。助产士行业的领导者应进一步研究创新服务模式,让助产士在所有为孕妇提供护理的环境中发挥作用,无论其妊娠情况如何:开放科学框架 osf.io/7zchu。
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引用次数: 0
Transformative engagement with community music-making for older adults: a scoping review protocol. 老年人参与社区音乐创作的转变:范围界定审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.11124/JBIES-23-00208
Helen Jane English, Suzanne Lewis, Jane W Davidson, Nicholas Goodwin

Objective: This scoping review has 3 objectives: to identify the literature on older adults' engagement with community music-making in which an experience of transformative change is noted, to explore the different ways transformation is described, and to identify the factors that enable this experience.

Introduction: Music has been shown to stimulate transformation (positive change) in individuals. Documented experiences of transformation fall into 3 broad areas: self-perception, quality of life, and personal growth. Yet the specific elements of musical experience that enable such effects remain little understood. Identifying the literature on this topic will enable deeper understanding and identify gaps in knowledge.

Inclusion criteria: The review will include peer-reviewed publications, systematic and scoping reviews, and gray literature, including theses and reports. Studies will focus on older community-dwelling adults (60 years or over) engaged in group music-making in community settings. The studies must include enquiry into transformative effects. Music used therapeutically in health settings, individual music-making, and listening (rather than active music-making) will be excluded. Any empirical methodology will be accepted.

Methods: The review will follow the JBI methodology for scoping reviews. Databases to be searched will include MEDLINE (Ovid), CINAHL (EBSCOhost), PsycINFO (Ovid), Scopus, Embase (Ovid), Informit, Cochrane Library, Campbell Collaboration, JBI Evidence-based Practice Database, Web of Science, JSTOR, Academic Search Ultimate (EBSCOhost), ProQuest Dissertations and Theses Global, and Google Scholar. Studies must be published in English, from 2000 until the present. Retrieved studies will be independently screened by at least 2 reviewers. Data will be extracted using a data extraction tool developed by the research team. The findings will be presented in tabular format, supported by a narrative summary.

Review registration: Open Science Framework https://osf.io/ftuhx.

目的:本范围界定综述有三个目标:确定老年人参与社区音乐创作的文献,其中指出了转型变化的体验;探索描述转型的不同方式;确定促成这种体验的因素:导言:音乐已被证明能够激发个人的转变(积极变化)。有文献记载的转变体验可分为三大领域:自我感知、生活质量和个人成长。然而,人们对音乐体验中能产生这种效果的具体因素仍然知之甚少。确定有关这一主题的文献将有助于加深理解并找出知识空白:综述将包括同行评审出版物、系统性综述和范围界定综述以及灰色文献,包括论文和报告。研究将侧重于在社区环境中参与集体音乐创作的社区老年人(60 岁或以上)。研究必须包括对转化效果的调查。在健康环境中使用的治疗性音乐、个人音乐创作和聆听(而非积极的音乐创作)将被排除在外。方法:综述将遵循 JBI 的范围界定综述指南。将检索的数据库包括 MEDLINE (Ovid)、CINAHL (EBSCOhost)、PsycINFO (Ovid)、Scopus、Embase (Ovid)、Informit、Cochrane Library、Campbell Collaboration、JBI EBP、Web of Science、JSTOR、Academic Search Ultimate (EBSCOhost)、ProQuest Dissertations & Theses Global 和 Google Scholar。研究必须是 2000 年至今用英语发表的。检索到的研究将由至少两名审稿人独立筛选。将使用研究小组开发的数据提取工具提取数据。研究结果将以表格形式呈现,并辅以叙述性摘要。有关综述的详细信息,请访问开放科学框架:https://osf.io/ftuhx。
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引用次数: 0
Views of general practice staff on sharing general practice data for research: a scoping review protocol. 全科医生对共享全科数据用于研究的看法:范围界定审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.11124/JBIES-23-00317
Heidi Green, Belinda Fabrianesi, Lucy Carolan, Annette Braunack-Mayer

Objective: The objective of this scoping review is to understand the range and types of evidence in relation to the views of general practitioner and other general practice staff on sharing general practice data for research purposes.

Introduction: The use of general practice data for research has the potential to drive transformative improvements in health care. The vast amount of patient data collected in general practice is valuable and provides researchers with data to conduct large-scale studies and generate evidence that can inform policy decisions, support the development of personalized medicine, and enhance patient outcomes. However, despite there being clear benefits to using general practice data for research, there are also potential harms, such as data misuse, loss of trust between the general practitioner and patient, and data breaches.

Inclusion criteria: This scoping review will focus on the views of general practice staff, including general practitioners, practice nurses, and practice managers, about sharing general practice data for the purposes of research. This scoping review will exclude sources of evidence that are conducted outside of the general practice setting, and papers that report on public, patient, or community views on data sharing.

Methods: This scoping review will be conducted in accordance with JBI methodology for scoping reviews. A 3-step search strategy will be used to acquire both published and unpublished sources of evidence. Two reviewers will independently select sources of evidence in line with the inclusion and exclusion criteria. No limits on the date of the search or language will be applied. Data will be extracted and the results will be summarized descriptively and presented in a tabular format.

Review registration: Open Science Framework https://osf.io/49yw5.

目的:本范围界定综述旨在了解与全科医生和其他全科医务人员对为研究目的共享全科数据的看法有关的证据范围和类型:将全科数据用于研究有可能推动医疗保健的变革性改善。全科医生收集的大量患者数据非常宝贵,可为研究人员开展大规模研究提供数据,并生成可为政策决策提供依据的证据,支持个性化医疗的发展,提高患者的治疗效果。然而,尽管将全科数据用于研究有明显的好处,但也存在潜在的危害,如数据滥用、全科医生与患者之间失去信任以及数据泄露等:本范围界定综述将重点关注全科医生、执业护士和执业经理等全科医务人员对为研究目的共享全科数据的看法。本范围界定综述将排除在全科医学环境之外进行的证据来源,以及报告公众、患者或社区对数据共享看法的论文:本次范围界定综述将按照 JBI 范围界定综述方法进行。我们将采用三步检索策略来获取已发表和未发表的证据来源。两名独立审查员将根据纳入和排除标准选择证据来源。检索日期和语言不限。将对数据进行提取,并对结果进行描述性总结,以表格形式呈现:开放科学框架 https://osf.io/49yw5。
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引用次数: 0
Economic burden and economic impact associated with non-communicable diseases among countries of the World Health Organization South-East Asia Region: a systematic review protocol. 世界卫生组织东南亚地区国家与非传染性疾病相关的经济负担和经济影响--系统审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.11124/JBIES-23-00340
Geetha R Menon, Sheuli Misra, Vishal Deo, Jeetendra Yadav, Pradeep Joshi, Cherian Varghese, Denny John

Objective: The objective of this systematic review is to synthesize studies on the economic burden and economic impact of non-communicable diseases in the World Health Organization South-East Asia Region (WHO SEAR) countries.

Introduction: WHO SEAR countries represent 8.6% of the world's population, and 75% of all deaths in this region are attributable to non-communicable diseases. In addition, there is a pattern of low government spending on health in SEAR countries, leading to a high proportion of health financing by patients, risking impoverishment for households.

Inclusion criteria: We will consider observational (cross-sectional, cohort, and case-control) and interventional (either single arm or comparative) studies that report the economic burden (direct and indirect costs, out-of-pocket expenditure) and economic impact (catastrophic health expenditure, hardship financing, impoverishment, and gross domestic product impact) at the individual, household, and/or country levels. This includes government surveys, surveillance, and secondary data analyses for one or more non-communicable diseases prevalent in the WHO SEAR.

Methods: We will conduct a comprehensive search for relevant studies in databases, including MEDLINE (PubMed), Embase (Ovid), Scopus, Web of Science, Google Scholar, and gray literature, with no date limits. Two reviewers will independently screen titles and abstracts, followed by full-text screening. Included studies will be critically appraised for quality. Data will be extracted accordingly and, if possible, random effects meta-analyses will be conducted on the pooled data for resource utilization and costs (including burden and impact), presenting the degree of variation between studies. The characteristics and results of the included studies will be narratively summarized with accompanying tables.

Review registration: PROSPERO CRD42023421302.

目标:本系统综述旨在对世界卫生组织东南亚地区(WHO SEAR)国家非传染性疾病(NCDs)的经济负担和经济影响进行综合研究:世界卫生组织东南亚地区国家占世界人口的 8.6%,该地区 75% 的死亡可归因于非传染性疾病。此外,东南亚地区国家的政府卫生支出较低,导致患者的卫生筹资比例较高,有可能造成家庭贫困:我们将考虑报告经济负担(直接和间接成本、自付支出)和经济影响(个人、家庭和/或国家层面的灾难性医疗支出、困难筹资、贫困化和国内生产总值影响)的观察性(横断面、队列和病例对照)和干预性(单臂或比较)研究。这包括针对世卫组织东南亚区域流行的一种或多种非传染性疾病的政府调查、监测和二手数据分析:我们将全面检索数据库中的相关研究,包括 PubMed (MEDLINE)、Embase (Ovid)、Scopus、Web of Science、Google Scholar 和无日期限制的灰色文献。两名独立审稿人将筛选标题和摘要,然后进行全文筛选。将对纳入的研究进行严格的质量评估。在可能的情况下,将对资源利用率和成本(包括负担和影响)的汇总数据进行随机效应荟萃分析,以显示研究之间的差异程度。纳入研究的特点和结果将通过附带的表格进行叙述性总结:综述注册:prospero crd42023421302。
{"title":"Economic burden and economic impact associated with non-communicable diseases among countries of the World Health Organization South-East Asia Region: a systematic review protocol.","authors":"Geetha R Menon, Sheuli Misra, Vishal Deo, Jeetendra Yadav, Pradeep Joshi, Cherian Varghese, Denny John","doi":"10.11124/JBIES-23-00340","DOIUrl":"10.11124/JBIES-23-00340","url":null,"abstract":"<p><strong>Objective: </strong>The objective of this systematic review is to synthesize studies on the economic burden and economic impact of non-communicable diseases in the World Health Organization South-East Asia Region (WHO SEAR) countries.</p><p><strong>Introduction: </strong>WHO SEAR countries represent 8.6% of the world's population, and 75% of all deaths in this region are attributable to non-communicable diseases. In addition, there is a pattern of low government spending on health in SEAR countries, leading to a high proportion of health financing by patients, risking impoverishment for households.</p><p><strong>Inclusion criteria: </strong>We will consider observational (cross-sectional, cohort, and case-control) and interventional (either single arm or comparative) studies that report the economic burden (direct and indirect costs, out-of-pocket expenditure) and economic impact (catastrophic health expenditure, hardship financing, impoverishment, and gross domestic product impact) at the individual, household, and/or country levels. This includes government surveys, surveillance, and secondary data analyses for one or more non-communicable diseases prevalent in the WHO SEAR.</p><p><strong>Methods: </strong>We will conduct a comprehensive search for relevant studies in databases, including MEDLINE (PubMed), Embase (Ovid), Scopus, Web of Science, Google Scholar, and gray literature, with no date limits. Two reviewers will independently screen titles and abstracts, followed by full-text screening. Included studies will be critically appraised for quality. Data will be extracted accordingly and, if possible, random effects meta-analyses will be conducted on the pooled data for resource utilization and costs (including burden and impact), presenting the degree of variation between studies. The characteristics and results of the included studies will be narratively summarized with accompanying tables.</p><p><strong>Review registration: </strong>PROSPERO CRD42023421302.</p>","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":"2130-2138"},"PeriodicalIF":1.5,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141238338","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Experiences of accessing mental health services for women living on a low income in Canada: a qualitative systematic review protocol. 加拿大低收入妇女获得心理健康服务的经历:定性系统审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.11124/JBIES-23-00505
Emma Vanderlee, Addisu Taye Abate, Christina Godfrey, Lenora Duhn, Pilar Camargo-Plazas

Objective: The objective of this review is to comprehensively analyze qualitative evidence on the experiences of Canadian women aged 18 years or older living on a low income. The review will examine the intersectionality of their identities and privileges when accessing mental health services, with the aim of informing targeted interventions and policy improvements.

Introduction: Despite the growing body of research on mental health disparities and a call for improved mental health care, both globally and in Canada, there is a need to identify recommendations for system enhancement and to improve gender equality by understanding the nuanced experiences of accessing mental health care for Canadian women living on a low income.

Inclusion criteria: This review will include qualitative studies conducted within the past decade about women of diverse backgrounds aged 18 years or older who identify as living on a low income and who have resided in Canada for 6 months or longer. Studies using any qualitative methodology will be included.

Methods: The following databases will be searched for published studies: MEDLINE and PsycINFO (Ovid), CINAHL and Pre-CINAHL (EBSCOhost), LiSSa, and Google Scholar. Searches for unpublished studies will include the Primo Central Index, ProQuest Dissertations and Theses Global, and the Canadian Women's Foundation Studies. The review will include studies published in English and French in Canada, from 2013 to the present. The JBI methodology for systematic reviews of qualitative evidence will be followed, informing study selection, critical appraisal, extraction, synthesis, and assessment of confidence, which will be conducted by 2 reviewers independently.

Review registration: PROSPERO CRD42023430100.

目的:本综述旨在全面分析有关 18 岁或以上加拿大低收入女性经历的定性证据。综述将研究她们在获得心理健康服务时的身份和特权的交叉性,旨在为有针对性的干预措施和政策改进提供信息:尽管有关心理健康差异的研究越来越多,而且全球和加拿大都在呼吁改善心理健康护理,但仍有必要通过了解加拿大低收入女性在获得心理健康护理时的细微体验来确定系统改进建议和改善性别平等:本综述将包括在过去十年中进行的定性研究,研究对象为年龄在 18 岁或 18 岁以上、被认定为生活在加拿大的低收入女性,且在加拿大居住 6 个月或更长时间。采用任何定性方法的研究都将包括在内:将在以下数据库中搜索已发表的研究:MEDLINE和PsycINFO(Ovid);CINAHL和Pre-CINAHL(EBSCOhost);LiSSa;以及Google Scholar。未发表研究的检索包括 Primo Central Index、ProQuest Dissertations and Theses Global 和 Canadian Women's Foundation Studies。综述将包括 2013 年至今在加拿大以英语和法语发表的研究。将遵循 JBI 定性证据系统性综述的方法,对研究进行选择、评估、提取、综合和置信度评估:综述注册:PREMCORD42023430100。
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引用次数: 0
Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review. 围产期丧子后医疗机构使用的丧亲护理指南:范围综述。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.11124/JBIES-23-00149
Lisa R Roberts, Jan M Nick, Nancy L Sarpy, Judith Peters, Shanalee Tamares
<p><strong>Objective: </strong>The objective of the scoping review was to explore the evidence and describe what is known about perinatal bereavement care guidelines provided within health care facilities prior to discharge. Additionally, the review sought to identify what is known about parents' mental health outcomes, and map these outcomes to the characteristics of the bereavement care guidelines.</p><p><strong>Introduction: </strong>Perinatal loss poses a serious risk of emotional trauma and mental health sequelae. Conflicting evidence for international bereavement care guidelines and inconsistent implementation, a lack of experimental studies, and older syntheses with a limited focus or population made synthesis complex. Therefore, a scoping review was undertaken to determine the breadth and depth of the existing literature on this topic.</p><p><strong>Inclusion criteria: </strong>Sources pertaining to bereavement care guidelines used in health care facilities immediately after perinatal loss (miscarriage, stillbirth, or neonatal death) and parents' mental health outcomes were included. Sources pertaining to family members other than parents, perinatal loss occurring outside of a health care facility, and physical care guidelines were excluded.</p><p><strong>Methods: </strong>The review was conducted using JBI methodology for scoping reviews. The team considered quantitative and qualitative studies, practice guidelines, case reports, expert opinions, systematic reviews, professional organization websites, and gray literature. CINAHL (EBSCOhost), PsycINFO (EBSCOhost), SocINDEX (EBSCOhost), Cochrane Library, JBI Evidence-based Practice Database (Ovid), Embase, PubMed, ProQuest Dissertations and Theses A&I (ProQuest), Web of Science Core Collection, and Epistemonikos were the major databases searched. OpenGrey, Google Scholar, and organizational websites were also searched. The earliest empirical study publication found (1976) served as the starting date limit. After pilot-testing the screening process, data were extracted, collated, and presented in narrative format as well as in tables and figures. The search was first conducted in September and October 2021, and an updated search was performed on February 9, 2023.</p><p><strong>Results: </strong>The results provide a broad view of bereavement care guidelines to support grieving parents' mental health. The included sources (n=195) were comprised of 28 syntheses, 96 primary studies, and 71 literature review/text and opinion. From the studies that specified the number of participants, 47,598 participants were included. Key characteristics of bereavement care guidelines were categorized as i) making meaning/memories, ii) good communication, iii) shared decision-making, iv) effective emotional and social support, and v) organizational response. Parents' reported mental health outcomes included both negative outcomes, such as depression, anxiety, anger, and helplessness, and positive outcomes, inc
目的此次范围界定综述的目的是探索证据并描述医疗机构在出院前提供的围产期丧亲护理指南的相关情况。此外,该综述还试图确定有关父母心理健康结果的已知信息,并将这些结果与丧亲护理指南的特点相联系:导言:围产期丧亲带来了严重的精神创伤和心理健康后遗症风险。国际丧亲护理指南的证据相互矛盾,执行情况也不一致,缺乏实验性研究,而且较早的综述关注的重点或人群有限,这些都使得综述工作变得复杂。因此,我们进行了一次范围界定综述,以确定有关该主题的现有文献的广度和深度:包括与围产期丧亲(流产、死产或新生儿死亡)后医疗机构立即使用的丧亲护理指南以及父母的心理健康结果有关的资料。与父母以外的家庭成员、在医疗机构以外发生的围产期丧亲以及身体护理指南有关的资料则不包括在内:综述采用 JBI 方法进行范围界定综述。研究小组考虑了定量和定性研究、实践指南、病例报告、专家意见、系统综述、专业组织网站和灰色文献。检索的主要数据库包括 CINAHL (EBSCOhost)、PsycINFO (EBSCOhost)、SocINDEX (EBSCOhost)、Cochrane Library、JBI 循证实践数据库 (Ovid)、Embase、PubMed (NLM)、ProQuest Dissertations and Theses A&I (ProQuest)、Web of Science Core Collection 和 Epistemonikos。此外,还搜索了 OpenGrey、Google Scholar 和机构网站。搜索到的最早实证研究出版物(1976 年)作为起始日期限制。在对筛选过程进行试点测试后,对数据进行了提取、整理,并以叙述以及表格和图表的形式呈现。搜索工作于 2021 年 9 月和 10 月首次进行,并于 2023 年 2 月 9 日进行了更新:结果:研究结果提供了有关丧亲护理指南的广泛视角,以支持悲伤父母的心理健康。纳入的资料来源(n = 195)包括 28 项综述、96 项主要研究和 71 项文献综述/文本和观点。在注明参与者人数的研究中,共纳入了 33,834 名参与者。丧亲护理指南的主要特征分为 i) 意义/记忆;ii) 良好沟通;iii) 共同决策;iv) 有效的情感和社会支持;v) 组织响应。家长们报告的心理健康结果既包括消极结果,如抑郁、焦虑、愤怒和无助,也包括积极结果,包括应对、愈合、恢复和幸福:从概念上讲,已发布的指南在不同环境下具有相当一致的特点,但在指南的具体内容上存在文化差异。尽管有关围产期丧亲护理的研究呈指数级增长,但有关丧亲护理指南的某些特征的研究仍存在空白,而这些特征已被公认为支持父母心理健康结果的最佳实践。鉴于围产期丧亲所带来的创伤和心理健康风险,本综述为今后的研究提供了支持。确保一致和适当实施丧亲护理指南的政策对于改善父母的心理健康结果至关重要。
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引用次数: 0
Experiences of parents of teenagers with life-threatening food allergies: a qualitative systematic review protocol. 患有危及生命的食物过敏症的青少年家长的经历:定性系统性审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.11124/JBIES-23-00380
Karen Dobbin-Williams, Renee Crossman, Michelle Swab

Objective: The objective of this review is to synthesize the experiences of parents of teenagers with life-threatening food allergies.

Introduction: Life-threatening food allergies are increasing globally, with a significant effect on families, particularly parents. The teenage years are a time of increasing autonomy for young people; however, for parents living with and caring for a teenager with a life-threatening food allergy, this responsibility can have a considerable impact.

Inclusion criteria: This review will include qualitative studies on the experiences of parents of teenagers with life-threatening food allergies, including, but not limited to, caregiving, parenting, and psychosocial experiences; any day-to-day activities, happenings, thoughts, or feelings related to parenting a teenager with life-threatening food allergies; and the handing over of responsibility for the allergy to the teenager. The review will include studies on participants in the community and in health care settings such as inpatient hospitalizations, outpatient visits, school and sports events, family dinners, restaurants, and travel. Participants from all cultural backgrounds, socio-economic backgrounds, and countries will be included.

Methods: The review will follow the JBI methodology for systematic reviews of qualitative evidence. The search for published studies will include CINAHL, MEDLINE, and PsycINFO (EBSCOhost); Embase (Ovid); LILACS, IBSS, and Sociological Abstracts (ProQuest). The search for unpublished studies will include ProQuest Dissertations and Theses, Open Access Theses and Dissertations (OATD), Bielefeld Academic Search Engine (BASE), Google, and Google Scholar. Databases will be searched from inception until the present. JBI tools and guidelines will be used to conduct critical appraisal, data extraction, data synthesis, and assessment of confidence in the findings.

Review registration: PROSPERO CRD42024503698.

目的本综述旨在总结患有危及生命的食物过敏症的青少年家长的经验:在全球范围内,危及生命的食物过敏现象日益增多,对家庭,尤其是父母造成了重大影响。青少年时期是年轻人自主性不断增强的时期;然而,对于与患有危及生命的食物过敏症的青少年共同生活并照顾他们的父母来说,这种责任可能会产生相当大的影响:本综述将包括有关患有危及生命的食物过敏症的青少年父母的经历的定性研究,包括但不限于照顾、养育和社会心理经历;与养育患有危及生命的食物过敏症的青少年有关的任何日常活动、事件、想法或感受;以及将过敏责任移交给青少年。审查将包括在社区和医疗保健环境中对参与者进行的研究,如住院、门诊、学校和体育活动、家庭聚餐、餐馆和旅行。研究方法:审查将遵循 JBI 定性证据系统审查方法。对已发表研究的检索包括:CINAHL、MEDLINE 和 PsycINFO(EBSCOhost);Embase(Ovid);LILACS、IBSS 和 Sociological Abstracts(ProQuest)。未发表研究的检索将包括 ProQuest Dissertations and Theses、Open Access Theses and Dissertations (OATD)、Bielefeld Academic Search Engine (BASE)、Google 和 Google Scholar。数据库的检索时间从开始到现在。将使用 JBI 工具和指南进行批判性评估、数据提取、数据综合以及对研究结果可信度的评估:PROCERGO:CRD42024503698。
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引用次数: 0
Nursing strategies to address health disparities in genomics-informed care: a scoping review. 在基因组学知情护理中解决健康差异的护理策略:范围界定综述。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-11 DOI: 10.11124/JBIES-24-00009
Jacqueline Limoges, Patrick Chiu, Dzifa Dordunoo, Rebecca Puddester, April Pike, Tessa Wonsiak, Bernadette Zakher, Lindsay Carlsson, Jessica K Mussell
<p><strong>Objective: </strong>The objective of this review was to map the available global evidence on strategies that nurses can use to facilitate genomics-informed health care to address health disparities to inform the development of a research and action agenda.</p><p><strong>Introduction: </strong>The integration of genomics into health care is improving patient outcomes through better prevention, diagnostics, and treatment; however, scholars have noted concerns with widening health disparities. Nurses work across the health system and can address health disparities from a clinical, research, education, policy, and leadership perspective. To do this, a comprehensive understanding of existing genomics-informed strategies is required.</p><p><strong>Inclusion criteria: </strong>Published (qualitative, quantitative, mixed methods studies, systematic and literature reviews and text and opinion papers) and unpublished (gray) literature that focuses on genomics-informed nursing strategies to address health disparities over the last 10 years were included. No limitations were placed on language.</p><p><strong>Methods: </strong>The review was conducted in accordance with the JBI methodology for scoping reviews. A search was undertaken on May 25, 2023, across 5 databases: MEDLINE (Ovid), Embase, Cochrane Library (Ovid), APA PsycINFO (EBSCOhost), and CINAHL (EBSCOhost). Gray literature was searched through websites, including the International Society of Nurses in Genetics and the Global Genomics Nursing Alliance. Abstracts, titles, and full texts were screened by 2 or more independent reviewers. Data were extracted using a data extraction tool. The coded data were analyzed by 2 or more independent reviewers using conventional content analysis and the summarized results are presented using descriptive statistics and evidence tables.</p><p><strong>Results: </strong>In total, we screened 818 records and 31 were included in the review. The majority of papers were published in either 2019 (n=5, 16%), 2020 (n=5, 16%), or 2021 (n=5, 16%). Most papers came from the United States (n=25, 81%) followed by the Netherlands (n=3, 10%), United Kingdom (n=1, 3%), Tanzania (n=1, 3%) and written from a global perspective (n=1, 3%). Nearly half the papers discussed cancer-related conditions (n=14, 45%) and most of the others did not specify a disease or condition (n=12, 30%). In terms of population, nurse clinicians were mentioned the most frequently (n=16, 52%) followed by nurse researchers, scholars, or scientists (n=8, 26%). The patient population varied, with African American patients or communities (n=7, 23%) and racial or ethnic minorities (n=6, 19%) discussed most frequently. The majority of equity issues focused on inequitable access to genetic and genomics health services amongst ethnic and racial groups (n=14, 45%), individuals with lower educational attainment or health literacy (n=6, 19%), individuals with lower socioeconomic status (n=3, 10%), migrants (n=
目标:本综述的目的是对护士可用于促进以基因组学为依据的医疗保健以解决健康差距问题的策略的现有全球证据进行摸底,为制定研究和行动议程提供信息:将基因组学融入医疗保健,通过更好的预防、诊断和治疗改善了患者的预后;然而,学者们也注意到了健康差距扩大的问题。护士的工作涉及整个医疗系统,可以从临床、研究、教育、政策和领导力的角度解决健康差异问题。为此,需要全面了解现有的基因组学知情策略:包括已发表的(定性、定量、混合方法研究、系统和文献综述以及文本和观点论文)和未发表的(灰色)文献,这些文献关注的是过去 10 年中以基因组学为依据的护理策略来解决健康差异问题。对语言没有限制:综述按照 JBI 的范围综述方法进行。2023 年 5 月 25 日,在 5 个数据库中进行了检索:MEDLINE(Ovid)、Embase、Cochrane Library(Ovid)、APA PsycINFO(EBSCOhost)和CINAHL(EBSCOhost)。灰色文献通过网站进行搜索,包括国际遗传学护士协会和全球基因组学护理联盟。摘要、标题和全文由两名或两名以上独立审稿人进行筛选。使用数据提取工具提取数据。两名或两名以上的独立审稿人使用传统的内容分析法对编码数据进行分析,并使用描述性统计和证据表对结果进行汇总:我们共筛选了 818 条记录,其中 31 条被纳入综述。大部分论文发表于2019年(5篇,占16%)、2020年(5篇,占16%)或2021年(5篇,占16%)。大多数论文来自美国(n=25,81%),其次是荷兰(n=3,10%)、英国(n=1,3%)、坦桑尼亚(n=1,3%)以及从全球角度撰写的论文(n=1,3%)。近一半的论文讨论了与癌症相关的病症(14 篇,占 45%),其他大多数论文没有具体说明疾病或病症(12 篇,占 30%)。就人群而言,临床护士被提及的频率最高(16 人,占 52%),其次是护士研究人员、学者或科学家(8 人,占 26%)。病人群体各不相同,非裔美国病人或社区(7 人,占 23%)以及少数种族或族裔(6 人,占 19%)最常被讨论。大多数公平问题都集中在以下人群中:少数民族和种族群体(14 人,占 45%)、教育程度或健康知识水平较低者(6 人,占 19%)、社会经济地位较低者(3 人,占 10%)、移民(3 人,占 10%)、缺乏保险者(2 人,占 6%)、农村或偏远地区居民(1 人,占 3%)、老年人(1 人,占 3%)。造成健康差异问题的根本原因在患者、提供者和系统层面各不相同。我们将策略分为两类:为护理人员做好准备的策略和护士可在实践中实施的策略。我们还根据实践领域对策略进行了进一步分类,包括临床实践、教育、研究、政策倡导和领导力。提及培养护理人员的策略的论文主要与教育领域有关(16 篇,占 52%),而提及护士可以实施的策略的论文主要与临床实践有关(19 篇,占 61%):结论:所有实践领域的护士都可以借鉴已确定的策略,解决医疗保健中与基因组学相关的健康差异问题。我们发现,探索对健康和公平结果的影响的干预和评估研究明显不足。我们需要开展更多基于实施科学的研究,并对健康结果进行测量,以确定最佳实践:本综述的法文版摘要作为补充数字内容[ http://links.lww.com/SRX/A65 ]提供。
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引用次数: 0
Defining the exit meta-analysis. 定义退出荟萃分析。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-10 DOI: 10.11124/JBIES-24-00155
Jazeel Abdulmajeed, Luis Furuya-Kanamori, Tawanda Chivese, Chang Xu, Lukman Thalib, Suhail A R Doi

Introduction: In recent decades, clinical research has seen significant advancements, both in the generation and synthesis of evidence through meta-analyses. Despite these methodological advancements, there is a growing concern about the accumulation of repetitive and redundant literature, potentially contributing to research waste. This highlights the necessity for a mechanism to determine when a meta-analysis has conclusively addressed a research question, signaling no further need for additional studies-a concept we term an "exit" meta-analysis.

Methods: We introduced a convergence index, the Doi-Abdulmajeed Trial Stability (DAts) index, and a convergence plot to determine the exit status of a meta-analysis. The performance of DAts was examined through simulation and applied to two real-world meta-analyses.

Results: The DAts index and convergence plot demonstrate highly effective discriminative ability across varying study scenarios. This represents the first attempt to define an exit meta-analysis using a quantitative measurement of stability (as opposed to sufficiency) and its corresponding plot. The application to real-world scenarios further validated the utility of DAts and the convergence plot in identifying a conclusive (exit) meta-analyses.

Conclusion: The new development of DAts and the convergence plot provide a promising tool for investigating the conclusiveness of meta-analyses. By identifying an exit status for meta-analysis, the scientific community may be equipped to make better-informed decisions on the continuation of research on a specific topic, thereby preventing research waste and focusing efforts on areas with unresolved questions.

导言:近几十年来,临床研究在通过荟萃分析生成和综合证据方面都取得了重大进展。尽管在方法上取得了这些进步,但人们越来越担心重复和冗余文献的积累可能会造成研究浪费。这就凸显出有必要建立一种机制,以确定荟萃分析何时已最终解决了研究问题,表明不再需要额外的研究--我们称之为 "退出 "荟萃分析:我们引入了一个收敛指数--Doi-Abdulmajeed 试验稳定性(DAts)指数和一个收敛图来确定荟萃分析的退出状态。通过模拟检查了 DAts 的性能,并将其应用于两个真实世界的荟萃分析:结果:DAts 指数和收敛图在不同的研究方案中表现出了高效的判别能力。这是首次尝试使用稳定性(而非充分性)的定量测量及其相应的图谱来定义退出荟萃分析。在现实世界中的应用进一步验证了DAts和收敛图在确定结论性(退出)荟萃分析中的实用性:DAts和收敛图的新发展为研究荟萃分析的确证性提供了一种很有前途的工具。通过确定荟萃分析的退出状态,科学界可以就是否继续开展特定主题的研究做出更明智的决定,从而防止研究浪费,并将精力集中在尚未解决问题的领域。
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引用次数: 0
Tools, techniques, methods, and processes for the detection and mitigation of fraudulent or erroneous data in evidence synthesis: a scoping review protocol. 在证据综述中检测和减少欺诈性或错误数据的工具、技术、方法和流程:范围审查协议。
IF 1.5 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-10 DOI: 10.11124/JBIES-24-00167
Timothy Hugh Barker, Grace McKenzie McBride, Amanda Ross-White, Danielle Pollock, Cindy Stern, Sabira Hasanoff, Raju Kanukula, Mafalda Dias, Anna Scott, Edoardo Aromataris, Ashley Whitehorn, Jennifer Stone, Larissa Shamseer, Patrick Palmieri, Miloslav Klugar, Zachary Munn

Objective: This scoping review aims to identify, catalogue, and characterize previously reported tools, techniques, methods, and processes that have been recommended or used by evidence synthesizers to detect fraudulent or erroneous data and mitigate its impact.

Introduction: Decision-making for policy and practice should always be underpinned by the best available evidence-typically peer-reviewed scientific literature. Evidence synthesis literature should be collated and organized using the appropriate evidence synthesis methodology, best exemplified by the role systematic reviews play in evidence-based health care. However, with the rise of "predatory journals," fraudulent or erroneous data may be invading this literature, which may negatively affect evidence syntheses that use this data. This, in turn, may compromise decision-making processes.

Inclusion criteria: This review will include peer-reviewed articles, commentaries, books, and editorials that describe at least 1 tool, technique, method, or process with the explicit purpose of identifying or mitigating the impact of fraudulent or erroneous data for any evidence synthesis, in any topic area. Manuals, handbooks, and guidance from major organizations, universities, and libraries will also be considered.

Methods: This review will be conducted using the JBI methodology for scoping reviews and reported according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR). Databases and relevant organizational websites will be searched for eligible studies. Title and abstract, and subsequently full-text screening will be conducted in duplicate using Covidence. Data from identified full texts will be extracted using a pre-determined checklist, while the findings will be summarized descriptively and presented in tables.

This scoping review protocol was registered in open science framework: https://osf.io/u8yrn.

目标:本范围综述旨在识别、编目和描述以前报道过的工具、技术、方法和流程,这些工具、技术、方法和流程已被证据合成者推荐或使用,以检测欺诈或错误数据并减轻其影响:政策和实践决策应始终以现有的最佳证据--通常是经同行评审的科学文献--为基础。证据综合文献应使用适当的证据综合方法进行整理和组织,系统综述在循证医疗保健中发挥的作用就是最好的例证。然而,随着 "掠夺性期刊 "的兴起,虚假或错误的数据可能会侵入这些文献,从而对使用这些数据的证据综合产生负面影响。纳入标准:本综述将包括经同行评审的文章、评论、书籍和社论,这些文章、评论、书籍和社论至少描述了一种工具、技术、方法或流程,其明确目的是在任何主题领域的任何证据综述中识别或减轻欺诈性或错误数据的影响。来自主要组织、大学和图书馆的手册、指南也在考虑之列:本综述将采用 JBI 的方法进行范围界定综述,并根据范围界定综述的《系统综述和元分析首选报告项目》(PRISMA-ScR)进行报告。将在数据库和相关组织网站上搜索符合条件的研究。标题和摘要以及随后的全文筛选将使用 Covidence 一式两份进行。将使用预先确定的核对表从已确定的全文中提取数据,同时对研究结果进行描述性总结并以表格形式呈现。本范围界定综述协议已在开放科学框架中注册:https://osf.io/u8yrn。
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引用次数: 0
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