Motricite Cerebrale最新文献

After recalling the factors that make complex the assessment of visual skills in people with profound intellectual and multiple disabilities, this article presents the results of a survey conducted among several expert services in Europe, as well as those of a systematic review of the literature aimed at identifying the tools and procedures that can be used and are used with that population. The consultation of fifteen centers, as well as a systematic review of the scientific literature carried out in six databases, made it possible to highlight a set of procedures, tests and clinical material, most of which have been validated and of great clinical interest. Two links are available in the article, one leads to the recommendations for optimal assessment conditions provided by the centers, the other to a more detailed description of the procedures, tests and clinical materials identified. It should be noted, however, that much of the material identified is not yet available in French and that a translation effort could be considered in order to enrich the French toolbox in the field.

Introduction

“Polyhandicap” is a French term used since the 1960s originally in the context of medico-social institutions. Its closest english translation is “Profound Intellectual and Multiple Disabilities” but these terms may reflect a slightly different approach. Recent recommendations were issued by the French “Haute Autorité de santé”. The objective of this study is to explore the representations of different french stakeholders associated with “polyhandicap”, in order to better define the concept and facilitate international publications.

Methods

This study is based on 33 semi-structured interviews conducted from January to April 2021 with medical doctors, rehabilitation workers, caregivers, and administrative staff involved with such patients. The interview explored the respondents’ opinion regarding the definition, assessment and management of “polyhandicap”.

Results

Forty-five percent of the respondents include profound intellectual disability in the core-definition of “polyhandicap”. Other respondents highlight the variability of the importance of mental retardation and some associate this item to the difficulties encountered in communication. Coexisting disabilities are more or less extensively listed. Fifty-eight percent of the respondents state that the term of “polyhandicap” should not be restricted to injuries taking place during early brain development. Fifty-five percent consider that the needs of such patients are not adequately met.

Discussion

These multiple representations, source of confusion, can be detrimental to people with “polyhandicap”. This French concept, comprising three levels of analysis (medical, functional and social), and imperfectly covering other terms used abroad, is difficult to transpose internationally.

Introduction

The quality of life of parents with a cerebral palsy child comprehensively encompasses their physical, psychological, and environmental health. The objective of this work was to determine the psychological and socio-professional repercussions of this pathology on the parents of children with cerebral palsy.

Patients and methods

Our study took place in the Neurology and Paediatrics departments of the Ignace Deen National Hospital. The study is prospective of a descriptive type with an analytical aim, lasting six (6) months, from April 1 to September 30, 2020. Our study variables were quantitative and qualitative. Pearson's correlation test was used to identify factors associated with the dimensions of the PAR-QOL and the results were considered significant if (P < 0.05).

Results

We collected 27 children with cerebral palsy with 35 parents, 77.1 % of whom were mothers and 22.9 % were fathers. The proportion of unemployed parents was 37.4 %. The average age of children with cerebral palsy was 19.4 ± 13.4 months, with an M/F sex ratio of 2. Descriptive analysis of the parents’ responses to the 17 items of the PAR-QOL shows that mothers estimate a severe impact of cerebral palsy on their emotional, daily (adaptive) and general quality of life with a response score of 3.7. Our study did not find a significant association between working time and parental education level and the dimensions of PAR-QOL.

Conclusion

The present study reveals that parents of children with cerebral palsy experience a difficult and negative emotionally and adaptively, and those more pronounced among mothers.

Art is a powerful means to promote the values of respect and tolerance and a culture of acceptance of disability in a society, on the one hand, art could be used as a therapeutic means of neurological disorders, on the other hand. Disability has become a multidimensional subject, in fact, human technical and cultural development has changed our conception of disability. All the fields interfere, the socio-political field, the economy, the sport, the medicine, the art... etc. The artist, like the thinkers in a society, has a privileged place in this multicultural world. Through this manuscript, we report on the unique experience in the Arab and African world of an artistic event that addresses the issue of disability. The topics are multiple: learning disabilities, visual disorders, motor disorders... etc. Through these topics, the organizers raise awareness of the general public and civil servants in particular, in order to change their view on disability. This policy would allow the development of public policies to improve the participation of people with disabilities in the development of society. The audience is constantly evolving at the national and international level. It promotes a positive and constructive culture among the youth of today, who will be the socio-political actors of tomorrow. Other countries and OMS s’impliquent d’avantage dans ce domaine en prônant ces initiatives.