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Evaluating Decision-Making Capacity: Challenges Faced by Clinicians in Switzerland 评估决策能力:瑞士临床医生面临的挑战
IF 1 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2018-05-23 DOI: 10.1024/1662-9647/a000186
L. M. Iseli, T. Wangmo, Helena Hermann, M. Trachsel, B. Elger
The study identified factors that make an evaluation of decision-making capacity (DMC) difficult for clinicians in their daily work. Semistructured interviews were carried out with 24 healthcare professionals from Switzerland and subsequently thematically analyzed. The challenges they faced when evaluating DMC stemmed from three main concerns: patient characteristics that impede DMC evaluation; differing opinions and consequences of DMC evaluation; and familial and legal situations that complicate such evaluations. Physicians must be adequately trained to evaluate DMC as it is closely related to basic ethical principles of respect for patients’ autonomy and beneficence. Extensive training on DMC evaluation and the legal concept of capacity should be part of pre- and postgraduate education.
该研究确定了临床医生在日常工作中难以评估决策能力(DMC)的因素。对来自瑞士的24名医疗保健专业人员进行了半结构化访谈,随后进行了主题分析。他们在评估DMC时面临的挑战主要来自三个方面:阻碍DMC评估的患者特征;DMC评价的不同意见和后果;以及家庭和法律情况使这种评估复杂化。医生必须经过充分的培训来评估DMC,因为它与尊重患者自主和慈善的基本伦理原则密切相关。在学前教育和研究生教育中,应广泛培训DMC评价和法律能力概念。
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引用次数: 5
Medical Decision-Making Capacity: Knowledge, Attitudes, and Clinical Evaluation Practices of Primary-Care Physicians and Psychiatrists in Croatia 医疗决策能力:克罗地亚初级保健医生和精神病学家的知识、态度和临床评估实践
IF 1 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2018-05-23 DOI: 10.1024/1662-9647/a000185
Dragutin Novosel, Stjepan Ljudevit Maru šić, N. Biller-Andorno, M. Trachsel
Decision-making capacity (DMC) is a prerequisite for informed consent to medical treatments. However, little is known about the knowledge, attitudes, and evaluation of DMC among physicians in Croatia. A survey was conducted among 180 general practitioners and psychiatrists in Croatia. Although from a legal perspective DMC is a dichotomous concept, about 90% of physicians indicated that they understand DMC to be a gradual concept. A majority of physicians considered themselves responsible and qualified to conduct DMC evaluations, though some physicians considered themselves insufficiently qualified. General practitioners considered themselves less responsible and less qualified than psychiatrists. Almost all participants indicated that they would welcome official guidelines and training.
决策能力是知情同意医疗的先决条件。然而,克罗地亚医生对DMC的知识、态度和评估知之甚少。对克罗地亚180名全科医生和精神病学家进行了一项调查。尽管从法律角度来看,DMC是一个二分法的概念,但约90%的医生表示,他们认为DMC是个渐进的概念。大多数医生认为自己有责任并有资格进行DMC评估,尽管一些医生认为自己不够合格。全科医生认为自己没有精神科医生那么负责任,也没有那么合格。几乎所有与会者都表示欢迎官方指导方针和培训。
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引用次数: 1
Advance Care Planning for Persons with Intellectual Disabilities 智障人士预先护理计划
IF 1 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2018-05-23 DOI: 10.1024/1662-9647/a000187
M. Wicki
As people live longer, they become more likely to die from prolonged, incurable, chronic illnesses occurring more frequently in old age. This study explores the usefulness, quality, and reliability of documented advance care planning interviews to determine the decision-making capacity of persons with intellectual disabilities (IDs). A volunteer sample of 60 persons rated the capacity to consent to treatment of four persons deciding on two end-of-life decisions. Sensitivity, specificity, and percent agreement were calculated. Interrater reliability was assessed using Fleiss’ &kgr; and Krippendorff’s &agr;. A Yates’ corrected &khgr;2 was used to analyze differences in ratings between groups of raters. The sensitivity value was 62%; the specificity value was 95%. The percent agreement for all participants was 70%, Fleiss’ &kgr; was 0.396, and Krippendorff’s &agr; was 0.395. Of the participants, 72 found documented advance care planning discussions useful for diagnosing the decision-making capacity of people with IDs. The documented interviews helped to identify those persons with IDs who had the decision-making capacity. Documented interviews on end-of-life decisions could make a valuable contribution to fostering their self-determination in end-of-life issues.
随着人们寿命的延长,他们更有可能死于长期的、无法治愈的、在老年时更常见的慢性疾病。本研究旨在探讨预先照护计划访谈的有效性、品质与可靠性,以确定智障人士(id)的决策能力。一个由60人组成的志愿者样本对四个人决定两种临终决定的同意治疗能力进行了评分。计算敏感性、特异性和一致性百分比。采用Fleiss ' s &kgr;和克里彭多夫的。我们使用了耶茨修正的&khgr;2来分析两组评分者之间的评分差异。灵敏度值为62%;特异性值为95%。所有参与者的同意率为70%,Fleiss的&kgr;为0.396,Krippendorff 's &agr;是0.395。在参与者中,72人发现记录在案的预先护理计划讨论有助于诊断身份证患者的决策能力。记录在案的访谈有助于确定具有决策能力的身份证件人员。关于临终决定的记录访谈可以对培养他们在临终问题上的自决作出宝贵贡献。
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引用次数: 3
Perceptions of Cognitive Aging Among Older Veterans 老年退伍军人对认知衰老的认知
IF 1 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2018-04-13 DOI: 10.1024/1662-9647/a000188
Brett C. Bundy, Ryan T. Daley, Erika L. Clark, K. Indorewalla, Maureen K. o’Connor
Background and objectives: To understand the perceptions, knowledge, and understanding of memory, cognition, and aging among older veterans. Research design and methods: Twelve male, Caucasian, community-dwelling veterans from a suburban New England demographic area, aged 62 to 83 years, participated in qualitative interviews. The interviews were audio recorded, transcribed verbatim, and subsequently coded by three independent reviewers. The responses were calculated and analyzed for major themes. Results: Veterans equated healthy aging to be both of a physical and cognitive nature, although a significant subset viewed especially intact cognitive faculties to be a sign of successful aging despite physical limitations. Two of the most widely cited concerns about aging were loss of functional independence and the progression of cognitive decline into dementia, although most of the participants were unable to accurately describe dementia or Alzheimer’s disease. Military service was associated with both positive (e.g., social support) and negative (e.g., trauma) associations with aging. Most of the participants noted the importance of a healthy diet and exercise in aging but were unable to accurately describe a healthy diet or exercise regimen or the effect of these activities on the brain. Discussion and implications: Aging veterans represent a unique population among older adults, and more information is required to understand their specific needs. Older male veterans are less likely to engage in healthcare; for some, education alone may be enough to improve engagement, whereas for others an estimate of current cognitive function would provide the extra motivation required.
背景和目的:了解老年退伍军人对记忆、认知和衰老的感知、知识和理解。研究设计和方法:来自新英格兰郊区人口区的12名白人社区退伍军人,年龄在62至83岁之间,参加了定性访谈。访谈录音,逐字逐句转录,随后由三名独立审查员编码。对主要主题的回答进行了计算和分析。结果:退伍军人将健康的衰老等同于身体和认知两种性质,尽管有相当一部分人认为,尽管身体有局限性,但认知能力特别完整是成功衰老的标志。尽管大多数参与者无法准确描述痴呆症或阿尔茨海默病,但人们对衰老最普遍关注的两个问题是功能独立性的丧失和认知能力下降发展为痴呆症。服兵役与老龄化的积极(如社会支持)和消极(如创伤)相关。大多数参与者注意到健康饮食和锻炼对衰老的重要性,但无法准确描述健康饮食或锻炼方案或这些活动对大脑的影响。讨论和启示:老龄退伍军人在老年人中代表着一个独特的群体,需要更多的信息来了解他们的具体需求。年长的男性退伍军人不太可能参与医疗保健;对一些人来说,光靠教育可能就足以提高参与度,而对另一些人而言,对当前认知功能的估计将提供所需的额外动力。
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引用次数: 0
“Music First”: An Alternative or Adjunct to Psychotropic Medications for the Behavioral and Psychological Symptoms of Dementia “音乐优先”:治疗痴呆行为和心理症状的精神药物的替代或辅助药物
IF 1 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2018-03-01 DOI: 10.1024/1662-9647/a000180
Dane L. Shiltz, T. Lineweaver, T. Brimmer, Alex C. Cairns, Danielle S. Halcomb, Jacqueline Juett, Laura Beer, D. Hay, J. Plewes
Existing research has primarily evaluated music therapy (MT) as a means of reducing the negative affect, behavioral, and/or cognitive symptoms of dementia. Music listening (ML), on the other hand, offers a less-explored, potentially equivalent alternative to MT and may further reduce exposure to potentially harmful psychotropic medications traditionally used to manage negative behavioral and psychological symptoms of dementia (BPSD). This 5-month prospective, naturalistic, interprofessional, single-center extended care facility study compared usual care (45 residents) and usual care combined with at least thrice weekly personalized ML sessions (47 residents) to determine the influence of ML. Agitation decreased for all participants (p < .001), and the ML residents receiving antipsychotic medications at baseline experienced agitation levels similar to both the usual care group and the ML patients who were not prescribed antipsychotics (p < .05 for medication × ML interaction). No significant changes in psychotropic medication exposure occurred. This experimental study supports ML as an adjunct to pharmacological approaches to treating agitation in older adults with dementia living in long-term care facilities. It also highlights the need for additional research focused on how individualized music programs affect doses and frequencies of antipsychotic medications and their associated risk of death and cerebrovascular events in this population.
现有研究主要评估了音乐疗法(MT)作为减少痴呆症负面影响、行为和/或认知症状的一种手段。另一方面,听音乐(ML)提供了一种探索较少、潜在等效的MT替代品,并可能进一步减少接触传统上用于治疗痴呆症(BPSD)负面行为和心理症状的潜在有害精神药物。这项为期5个月的前瞻性、自然主义、跨专业、单中心扩展护理机构研究比较了常规护理(45名居民)和常规护理与每周至少三次的个性化ML会议(47名居民),以确定ML的影响。所有参与者的兴奋感都降低了(p<.001),在基线接受抗精神病药物治疗的ML患者经历了与常规护理组和未服用抗精神病药的ML患者相似的激动水平(药物×ML相互作用p<0.05)。精神药物暴露量没有发生显著变化。这项实验研究支持ML作为治疗长期护理机构中老年痴呆症患者躁动的药理学方法的辅助手段。它还强调了对个性化音乐节目如何影响抗精神病药物的剂量和频率及其相关的死亡和脑血管事件风险进行额外研究的必要性。
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引用次数: 13
Willingness of Older Adults to Share Mobile Health Data with Researchers 老年人与研究人员分享移动健康数据的意愿
IF 1 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2018-02-06 DOI: 10.1024/1662-9647/a000181
A. Seifert, M. Christen, Mike Martin
This study explored the use of wearable devices to track self-recorded health data and the willingness to share this data with researchers. Participants aged ≥ 50 years (n = 1,013) were interviewed in a representative telephone survey. Results indicated that 43.3% of all participants used one or more mobile devices (activity tracker, smartwatch, smartphone, or tablet), and that 27.6% used those devices for the purposes of recording health data. Additionally, 57.2% of the participants who tracked their health data were willing to share it with researchers. Income significantly contributed to predicting this willingness, whereas other independent variables were not significant predictors. This study indicates a relatively positive overall willingness to share self-recorded mobile health data with the science community.
这项研究探索了使用可穿戴设备来跟踪自我记录的健康数据,以及与研究人员分享这些数据的意愿。年龄≥50岁的参与者(n = 1013)通过代表性电话调查进行访谈。结果表明,43.3%的参与者使用一个或多个移动设备(活动跟踪器、智能手表、智能手机或平板电脑),27.6%的人使用这些设备记录健康数据。此外,57.2%的跟踪健康数据的参与者愿意与研究人员分享。收入显著有助于预测这种意愿,而其他自变量不是显著的预测因素。这项研究表明,与科学界分享自行记录的移动医疗数据的总体意愿相对积极。
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引用次数: 24
Optimism and Well-Being Among Institutionalized Older Adults 制度化老年人的乐观与幸福
IF 1 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2018-02-06 DOI: 10.1024/1662-9647/a000182
H. Espirito Santo, F. Daniel
Institutionalization is often related to the psychologically negative outcomes of old age. Optimism could alleviate suffering, but little is known about its role in institutionalized settings. We sought to explore optimism correlates and to determine whether it predicts emotional well-being variables, after controlling for potential covariates, by assessing 66 institutionalized elderlies. Optimism was low and associated with failure to do physical exercise, urinary incontinence, increased anxiety, depressive symptoms and feelings of loneliness, and reduced satisfaction with life and positive affect. Optimism predicted emotional well-being, albeit not over and above some covariates. Given the low optimism levels and the correlates, we suggest that intrapersonal resources could be intervention targets. It is our hope that our findings will inspire research to analyze interventions promoting optimism-beneficial combinations of well-being among institutionalized older adults.
机构化通常与老年心理上的负面结果有关。乐观可以减轻痛苦,但人们对它在制度化环境中的作用知之甚少。在控制了潜在的协变量后,我们通过评估66名制度化的老年人,试图探索乐观的相关性,并确定它是否预测情绪健康变量。乐观情绪较低,与缺乏体育锻炼、尿失禁、焦虑增加、抑郁症状和孤独感以及对生活和积极影响的满意度降低有关。乐观预测情绪健康,尽管没有超过一些协变量。鉴于低乐观水平和相关因素,我们建议将个人资源作为干预目标。我们希望我们的研究结果能够启发研究,分析在机构老年人中促进乐观-有益的幸福组合的干预措施。
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引用次数: 13
Leisure Activities and the Subjective Well-Being of Older Adults in Croatia 休闲活动与克罗地亚老年人的主观幸福感
IF 1 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2018-02-06 DOI: 10.1024/1662-9647/a000179
Ljiljana Kaliterna Lipovčan, Tihana Brkljačić, Zvjezdana Prizmić Larsen, A. Brajša-žganec, Renata Franc
Research shows that engagement in leisure activities promotes well-being among older adults. The objective of the current study was to examine the relationship between subjective well-being (flourishing) and leisure activities (total number of different activities in the previous year) in a sample of older adults in Croatia, thereby considering the variables of sex, marital status, financial status, and self-perceived health. The differences in the examined variables between the groups of older adults who reported to be engaged in new activities with those who did not were also examined. The sample of N = 169 older adults aged 60 years and above was drawn from a convenience sample of adult internet users in Croatia. Participants reported their self-perceived health and the number of leisure activities they engaged in over the previous year as well as completing the Flourishing Scale. Hierarchical regression analyses indicated that older adults who were engaged in more various leisure activities, who perceived better financial status, and who were married reported higher levels of flourishing. A comparison of the two groups of older adults with and without engagement in leisure activities showed that those engaged in at least one leisure activity were more likely to be women, reported higher levels of flourishing, and perceived their own financial status as better. This study indicated that engaging in leisure activities in later life might provide beneficial effects for the well-being of older adults.
研究表明,参与休闲活动可以促进老年人的健康。本研究的目的是在克罗地亚老年人样本中考察主观幸福感(繁荣)与休闲活动(前一年不同活动的总数)之间的关系,从而考虑到性别、婚姻状况、财务状况和自我感知健康等变量。研究人员还检查了报告参加新活动的老年人与没有参加新活动的老年人之间被检查变量的差异。N = 169名年龄在60岁及以上的老年人的样本是从克罗地亚成人互联网用户的方便样本中抽取的。参与者报告了他们自我感知的健康状况和他们在过去一年中从事的休闲活动的数量,并完成了繁荣量表。分层回归分析表明,从事各种休闲活动、经济状况较好的老年人和已婚人士报告的幸福程度更高。对两组参加和不参加休闲活动的老年人进行比较表明,至少参加一项休闲活动的老年人更有可能是女性,她们的生活水平更高,并且认为自己的财务状况更好。本研究表明,晚年从事休闲活动可能对老年人的健康有益。
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引用次数: 8
MultiTANDEM: Training the Trainer to Improve Homecare for People with Dementia MultiTANDEM:培训培训师以改善痴呆症患者的家庭护理
IF 1 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2017-12-01 DOI: 10.1024/1662-9647/a000178
Anne Messemaker, A. Schall, J. Haberstroh, J. Pantel
The MultiTANDEM system trains management staff at outpatient nursing facilities to be TANDEM trainers (i.e., multiplicators for social-skills training) of professional and family caregivers for people with dementia. We used a pre-post-1-post-2 follow-up design to evaluate intervention and implementation success. Results showed a significant increase in the communication skills of caregivers and a significant reduction in family caregiver burden. Analyses of the implementation showed high acceptability among multiplicators and a high penetration of TANDEM trainings among their fellow staff members. An evaluation of the sustainability yielded heterogeneous results. Evaluation of impeding factors showed a reluctance among family caregivers to participate. Further studies with larger sample sizes and including all implementation outcomes are recommended.
MultiTANDEM系统对门诊护理机构的管理人员进行培训,使其成为痴呆症患者的专业和家庭护理人员的TANDEM培训师(即社交技能培训乘数师)。我们采用前-后-1-后-2随访设计来评估干预和实施的成功。结果显示,照顾者的沟通技巧显著提高,家庭照顾者负担显著减轻。对执行情况的分析表明,乘数员对TANDEM培训的接受程度很高,其工作人员对TANDEM培训的接受程度也很高。对可持续性的评估产生了不同的结果。对阻碍因素的评估显示家庭照顾者不愿意参与。建议进一步开展更大样本量的研究,并包括所有实施结果。
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引用次数: 2
Reminiscence Therapy for Depression in Dementia: An Observational Study with Matched Pairs 记忆疗法治疗痴呆症抑郁症的配对观察研究
IF 1 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2017-11-13 DOI: 10.1024/1662-9647/a000175
J. Bohlken, S. Weber, A. Siebert, S. Forstmeier, T. Kohlmann, M. Rapp
We investigated the efficacy of reminiscence therapy (RT) on symptoms of depression in patients with mild to moderate dementia. Out of 227 patients with mild to moderate dementia from a specialized physician’s office, 27 pairs (N = 54; mean age 79.04 ± 6.16 years) who had either received treatment as usual (TAU) or TAU combined with RT, were matched retrospectively according to age as well as cognitive and depressive symptom scores. After controlling for age and sex, symptoms of depression significantly decreased over time in the RT group compared to TAU (F1,52 = 4.36; p < .05). RT is a promising option for the treatment of depression in mild to moderate dementia. Larger randomized-controlled trials are needed.
我们研究了回忆疗法(RT)对轻至中度痴呆患者抑郁症状的疗效。来自专业医师办公室的227名轻中度痴呆患者中,27对(N = 54;平均年龄79.04±6.16岁),分别接受常规治疗(TAU)或TAU联合RT,根据年龄、认知和抑郁症状评分进行回顾性匹配。在控制年龄和性别后,与TAU相比,RT组抑郁症状随时间显著减少(F1,52 = 4.36;P < 0.05)。RT是治疗轻度至中度痴呆抑郁症的一个有希望的选择。需要更大规模的随机对照试验。
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引用次数: 7
期刊
GeroPsych-The Journal of Gerontopsychology and Geriatric Psychiatry
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