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Justice and Intellectual Disability In A Pandemic 大流行中的正义与智障
IF 1.4 4区 哲学 Q3 ETHICS Pub Date : 2020-11-14 DOI: 10.1353/ken.2020.0017
Ryan H. Nelson, L. Francis
ABSTRACT:Much of the discussion of care prioritization during the COVID-19 pandemic has focused on access to high-technology, intensive care under crisis conditions. This is understandable in light of initial fears that widespread triage and rationing measures would become necessary. However, as observations about the interplay between social determinants of health and COVID-19 infection rates and outcomes have become increasingly clear, attention has also been directed to inequalities in health and healthcare in the US. In this paper, we address another less-discussed set of issues: problems of discrimination and injustice involving people with intellectual disabilities confronted by COVID-19 that go beyond those seen in policies governing triage and rationing. After discussing the proper role of quality of life judgments in healthcare, we consider a range of issues relevant to people with intellectual disabilities, including staffing and structures in group-home facilities, the need for adaptive communication, and the role of support persons during care. Addressing some of these issues will require policy changes that may be widely beneficial; adjustments particular to individuals will also need to be evaluated from the perspective of whether they create undue risks. To address these issues, we draw insights from disability anti-discrimination law as it interfaces with the ethics of patient care, especially the distinction between accommodations for individual patients and modifications of policies addressing access to services and healthcare.
摘要:在COVID-19大流行期间,关于护理优先级的讨论大多集中在危机条件下获得高科技重症监护的问题上。这是可以理解的,因为人们最初担心有必要采取广泛的分诊和配给措施。然而,随着对健康社会决定因素与COVID-19感染率和结果之间相互作用的观察越来越清晰,人们也将注意力转向了美国健康和医疗保健方面的不平等。在本文中,我们讨论了另一组较少讨论的问题:涉及2019冠状病毒病所面临的智障人士的歧视和不公正问题,这些问题超出了分诊和配给政策中所看到的问题。在讨论了生活质量判断在医疗保健中的适当作用之后,我们考虑了一系列与智障人士相关的问题,包括集体家庭设施的人员配备和结构、适应性沟通的需求以及护理期间支持人员的角色。解决其中一些问题需要改变政策,这可能会带来广泛的好处;还需要从是否会造成不当风险的角度来评估针对个人的调整。为了解决这些问题,我们从残疾人反歧视法中获得见解,因为它与患者护理的道德规范有关,特别是对个别患者的住宿和解决获得服务和医疗保健的政策修改之间的区别。
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引用次数: 1
Should I Do as I’m Told? Trust, Experts, and COVID-19 我应该照别人说的做吗?信托、专家和新冠肺炎
IF 1.4 4区 哲学 Q3 ETHICS Pub Date : 2020-11-14 DOI: 10.1353/ken.2020.0014
M. Bennett
ABSTRACT:The success of public health responses to the COVID-19 pandemic is sensitive to public trust in experts. Despite a great deal of attention to attitudes towards experts in the context of such crises, one significant feature of public trust remains underexamined. When public policy claims to follow the science, citizens are asked not just to believe what they are told by experts, but to follow expert recommendations. I argue that this requires a more demanding form of trust, which I call recommendation trust. I argue for three claims about recommendation trust: recommendation trust is different from both epistemic and practical trust; the conditions for well-placed recommendation trust are more demanding than the conditions for well-placed epistemic trust; and many measures that have been proposed to cultivate trust in experts do not give the public good reasons to trust in expert-led policy.
摘要:COVID-19大流行公共卫生应对的成功与公众对专家的信任息息相关。尽管在这种危机背景下对专家的态度引起了大量关注,但公众信任的一个重要特征仍未得到充分研究。当公共政策声称遵循科学时,公民不仅要相信专家告诉他们的,而且要遵循专家的建议。我认为这需要一种更严格的信任形式,我称之为推荐信任。笔者对推荐信任提出了三点主张:推荐信任既不同于认知信任,也不同于实践信任;推荐信任的条件比认知信任的条件要求高;而且,许多旨在培养对专家信任的措施,并没有给公众充分的理由去信任专家主导的政策。
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引用次数: 30
The Predictable Inequities of COVID-19 in the US: Fundamental Causes and Broken Institutions 2019冠状病毒病在美国的可预见不平等:根本原因和破碎的制度
IF 1.4 4区 哲学 Q3 ETHICS Pub Date : 2020-11-14 DOI: 10.1353/ken.2020.0012
S. Valles
ABSTRACT:The COVID-19 pandemic in the US has inspired conversations about which features of the pandemic’s impacts were(n’t) unexpected, as well as why and how. Looming in the background of these discussions are political questions about the blameworthiness of particular institutions and leaders therein, and what COVID-19 disasters within US institutions mean for future discussions about how to reform those institutions. This paper will argue that the inequitable harms of the COVID-19 pandemic in four especially hard-hit US institutions—jails and prisons, meat processing plants, hospitals, and eldercare facilities—were: (1) not so unpredictable as claimed by some commentators, (2) traceable to institutional flaws known prior to the pandemic, and (3) can be fruitfully understood through the lens of “fundamental cause theory,” which offers a model for why and how social resources and deprivations create predictable patterns of harms from health hazards, even when the hazards are new.
摘要:2019冠状病毒病(COVID-19)在美国的流行引发了人们对疫情影响的哪些特征是(或不是)出乎意料的,以及为什么和如何出人意料的讨论。在这些讨论的背景下,隐现着有关特定机构及其领导人应受指责的政治问题,以及美国机构内的COVID-19灾难对未来如何改革这些机构的讨论意味着什么。本文将论证2019冠状病毒病大流行对美国四个受影响特别严重的机构(监狱和监狱、肉类加工厂、医院和老年护理机构)造成的不公平伤害:(1)不像一些评论家所说的那样不可预测;(2)可以追溯到大流行之前已知的制度缺陷;(3)可以通过“根本原因理论”的视角得到有效理解。“根本原因理论”提供了一个模型,说明社会资源和匮乏为什么以及如何造成健康危害的可预测模式,即使危害是新的。
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引用次数: 1
Anarchist Responses to a Pandemic: The COVID-19 Crisis as a Case Study in Mutual Aid 无政府主义者对大流行的反应:以互助为例研究COVID-19危机
IF 1.4 4区 哲学 Q3 ETHICS Pub Date : 2020-11-14 DOI: 10.1353/ken.2020.0019
N. Jun, M. Lance
ABSTRACT:When central authority fails in socially crucial tasks, mutual aid, solidarity, and grassroots organization frequently arise as people take up slack on the basis of informal networks and civil society organizations. We can learn something important about the possibility of horizontal organization by studying such experiments. In this paper we focus on the rationality, care, and effectiveness of grassroots measures to respond to the pandemic and show how they illustrate core elements of anarchist thought. We do not argue for the correctness of any version of anarchist politics, nor claim that the bulk of this grassroots work was done with anarchist ideas explicitly in mind. Nonetheless, the current pandemic, like many social crises before it, serves as a sort experiment in political implementation.
摘要:当中央权力机构在社会关键任务上失败时,随着人们在非正式网络和民间社会组织的基础上放松下来,互助、团结和基层组织经常出现。通过研究这样的实验,我们可以了解到关于横向组织的可能性的一些重要信息。在本文中,我们关注基层应对疫情措施的合理性、关怀和有效性,并展示它们如何说明无政府主义思想的核心要素。我们并不主张任何版本的无政府主义政治的正确性,也不声称大部分基层工作都是在明确考虑无政府主义思想的情况下完成的。尽管如此,与之前的许多社会危机一样,当前的疫情是政治实施的一次试验。
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引用次数: 11
From the Issue Co-Editors 来自期刊联合编辑
IF 1.4 4区 哲学 Q3 ETHICS Pub Date : 2020-11-14 DOI: 10.1353/ken.2020.0011
Quill R Kukla, Travis N. Rieder
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引用次数: 0
Surging Solidarity: Reorienting Ethics for Pandemics 高涨的团结:重新定位流行病的伦理
IF 1.4 4区 哲学 Q3 ETHICS Pub Date : 2020-11-14 DOI: 10.1353/ken.2020.0022
Jordan Pascoe, Mitch Stripling
ABSTRACT:Public discourse about ethics in the COVID-19 pandemic has tended to focus on scarcity of resources and the protection of civil liberties. We show how these preoccupations reflect an established disaster imaginary that orients the ethics of response. In this paper, we argue that pandemic ethics should instead be oriented through a relational account of persons as vulnerable vectors embedded in existing networks of care. We argue for the creation of a new disaster imaginary to shape our own understandings of the interrelated social, political, and economic hardships under conditions of social distancing. We develop a pandemic ethics framework rooted in uBuntu and care ethics that makes visible the underlying multidimensional structural inequities of the pandemic, attending to the problems of resource scarcity and inequities in mortality while insisting on a response that surges existing and emergent forms of solidarity.
摘要:在新冠肺炎疫情中,公众对道德的讨论往往集中在资源稀缺和公民自由保护上。我们展示了这些关注如何反映出一种既定的灾难想象,这种想象引导了应对的伦理。在这篇论文中,我们认为,流行病伦理应该通过将人作为弱势媒介嵌入现有护理网络的关系描述来引导。我们主张创造一种新的灾难想象,以塑造我们自己对社交距离条件下相互关联的社会、政治和经济困难的理解。我们制定了一个植根于uBuntu的流行病伦理框架和护理伦理,使人们看到了流行病潜在的多层面结构不平等,关注资源短缺和死亡率不平等的问题,同时坚持采取应对措施,加强现有和新出现的团结形式。
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引用次数: 9
How Soviet Legacies Shape Russia’s Response to the Pandemic: Ethical Consequences of a Culture of Non-Disclosure 苏联遗产如何影响俄罗斯应对疫情:保密文化的伦理后果
IF 1.4 4区 哲学 Q3 ETHICS Pub Date : 2020-11-14 DOI: 10.1353/ken.2020.0020
Nataliya Shok, Nataliya Nadezhda Beliakova
ABSTRACT:The COVID-19 pandemic required strong state responsibility for the health of its citizens and the effective allocation of healthcare resources. In Russia, extreme circumstances reveal hidden Soviet patterns of public health. This article illuminates how Russia has implemented some changes within its health insurance structures but also has maintained the paternalistic style of state governing within public health practices. The authors examine key neo-Soviet trends in Russian society revealed during the pandemic: the ethics of silence, a culture of non-disclosure, and doublethinking. Additionally, we argue that both modern Russian medicine and healthcare demonstrate gaps in implementing robust bioethical frameworks compared with the United States. Using a robust analysis of healthcare and state practice during the COVID-19 pandemic within the framework of global bioethics, this article aims to respond to Russian history and culture in order to advance the development of bioethics.
摘要:新冠肺炎疫情要求国家对公民的健康和医疗资源的有效分配承担强有力的责任。在俄罗斯,极端情况暴露了苏联隐藏的公共卫生模式。本文阐述了俄罗斯如何在其医疗保险结构中实施一些改革,但在公共卫生实践中也保持了国家治理的家长式风格。作者研究了疫情期间俄罗斯社会中新苏联的主要趋势:沉默的道德、不公开的文化和双重思维。此外,我们认为,与美国相比,现代俄罗斯医学和医疗保健在实施强有力的生物伦理框架方面都存在差距。本文在全球生物伦理学的框架内,对新冠肺炎大流行期间的医疗保健和国家实践进行了有力的分析,旨在回应俄罗斯的历史和文化,以推动生物伦理学的发展。
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引用次数: 6
Incarceration, COVID-19, and Emergency Release: Reimagining How and When to Punish 监禁、新冠肺炎和紧急释放:重新想象如何以及何时惩罚
IF 1.4 4区 哲学 Q3 ETHICS Pub Date : 2020-11-14 DOI: 10.1353/ken.2020.0016
Lauren Lyons
ABSTRACT:The wide-ranging effects of the COVID-19 pandemic have amplified social inequalities and revealed vulnerabilities in public systems. These dual effects are especially salient in the context of criminal justice systems, and activists and policymakers have called for reconfiguring justice system practices in response. This paper discusses and defends one of these proposals: rapidly reducing the number of people currently incarcerated by releasing people from jails and prisons. Drawing on moral and political philosophy and criminal law theory, I provide a rigorous case for why it is morally unjustified to continue to incarcerate people as usual under present circumstances—this position is intuitive to many and already reflected in emergency policies in jurisdictions worldwide. The paper proceeds by way of two arguments. First, I argue that we ought to release people from jails and prisons to prevent meting out disproportionately severe punishments, which are unjustified on standard theories of punishment. The second argument appeals to what I call the public interest constraint on criminal law policy: defending the idea that we ought not make use of the instruments of the criminal law if the downstream consequences of doing so run contrary to public welfare and wellbeing or undermine the provision of substantive common goods. I argue that circumstances related to the coronavirus pandemic trigger the constraint. Though the idea that we ought to take broad social costs into account in designing criminal justice policy may seem intuitive, it has radical implications for thinking about decarceration and the ethics of justice system practices during the coronavirus pandemic and beyond. In the last part of the paper, I propose and discuss three concrete policies that work to mitigate some of the potential negative consequences of emergency release.
摘要:新冠肺炎疫情的广泛影响加剧了社会不平等,暴露了公共系统的脆弱性。这些双重影响在刑事司法系统中尤为突出,活动家和政策制定者呼吁重新配置司法系统的做法。本文讨论并捍卫了其中一项建议:通过释放监狱和监狱中的人,迅速减少目前被监禁的人数。根据道德和政治哲学以及刑法理论,我提供了一个严格的理由来解释为什么在目前的情况下继续照常监禁人们在道德上是不合理的——这一立场对许多人来说是直观的,并且已经反映在世界各地司法管辖区的紧急政策中。本文分两个论点进行论述。首先,我认为,我们应该从监狱和监狱中释放人们,以防止实施不成比例的严厉惩罚,这在标准的惩罚理论上是不合理的。第二个论点呼吁我所说的刑法政策的公共利益约束:捍卫这样一种观点,即如果这样做的下游后果违背了公共福利和福祉,或破坏了实质性共同商品的提供,我们就不应该使用刑法文书。我认为,与冠状病毒大流行相关的情况引发了这种限制。尽管我们在设计刑事司法政策时应该考虑到广泛的社会成本的想法可能看起来很直观,但它对思考新冠疫情期间及以后的监禁和司法系统实践的道德有着根本的影响。在论文的最后一部分,我提出并讨论了三项具体政策,以减轻紧急释放的一些潜在负面后果。
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引用次数: 1
The Ethics of Lockdown: Communication, Consequences, and the Separateness of Persons 封锁的伦理:沟通、后果和人的分离
IF 1.4 4区 哲学 Q3 ETHICS Pub Date : 2020-08-17 DOI: 10.1353/ken.2020.0015
S. John
ABSTRACT:Are lockdown measures ethically justified? This paper outlines some of the key issues relevant to answering that question, paying particular attention to how decisions are framed. Section 1 argues that ethical reasoning about lockdown ought to be guided by a distinction between prudential and ethical reasons, grounded in a concern to respect the separateness of persons, but also that—as public health messaging implies—it can be unclear whether measures are in individuals’ prudential interests or not. Section 2 suggests that a similar set of problems affect attempts to adopt alternative cost-benefit-analysis frameworks for assessing lockdown. Section 3 suggests an answer to these shared problems: we need a process for determining when wellbeing claims and systems of categorization are ethically apt. Section 4 argues that settling the question of aptness is our key ethical task in assessing lockdown.
摘要:封锁措施在道德上合理吗?本文概述了与回答这个问题相关的一些关键问题,特别关注决策是如何制定的。第1节认为,关于封锁的道德推理应该以谨慎和道德原因之间的区别为指导,基于对尊重人的独立性的关注,但正如公共卫生信息所暗示的那样,可能不清楚这些措施是否符合个人的谨慎利益。第2节表明,类似的一系列问题影响了采用替代成本效益分析框架评估封锁的尝试。第3节提出了解决这些共同问题的答案:我们需要一个过程来确定福利声明和分类系统何时在道德上合适。第4节认为,解决合适问题是我们评估封锁的关键道德任务。
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引用次数: 8
How Government Leaders Violated Their Epistemic Duties During the SARS-CoV-2 Crisis 政府领导人如何在严重急性呼吸系统综合征冠状病毒2型危机期间违反其认识义务
IF 1.4 4区 哲学 Q3 ETHICS Pub Date : 2020-05-20 DOI: 10.1353/KEN.2020.0013
Eric Winsberg, J. Brennan, Chris W. Surprenant
ABSTRACT:In spring 2020, in response to the COVID-19 crisis, many world leaders imposed universal lockdowns. We argue that these restrictions have not been accompanied by the epistemic practices morally required for their adoption or continuation. While in theory lockdowns can be justified, governments did not meet and have not yet met their justificatory burdens. We will not argue that less stringent policies were optimal or better justified. Rather, we explain how government leaders failed and have continued to fail to meet their epistemic duties by relying upon data, models, and evidence of insufficiently good quality to justify their actions.
摘要:2020年春季,为应对新冠肺炎危机,许多世界领导人实施了全球封锁。我们认为,这些限制并没有伴随着采用或延续这些限制所需的道德认识实践。虽然理论上封锁是合理的,但各国政府没有开会,也没有承担起合理的负担。我们不会争辩说,不那么严格的政策是最佳的或更有理由的。相反,我们解释了政府领导人是如何通过依赖数据、模型和质量不够好的证据来证明其行为的合理性,从而失败并继续未能履行其认识义务的。
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引用次数: 29
期刊
Kennedy Institute of Ethics Journal
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