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Subjective Successful Aging in the Presence of Mobility Disability. 行动不便时的主观成功老龄化。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-27 DOI: 10.1093/geront/gnae087
Madina Khamzina, Wendy A Rogers

Background and objectives: Researchers often define successful aging as freedom from disability and disease, yet the perceptions of older adults living with disability challenge this conception, demonstrating that they can indeed age successfully. This paper adapts a framework of successful aging with disability, basing it on the subjective assessment of key components contributing to success among older adults living with mobility disability due to multiple sclerosis.

Research design and methods: Employing a qualitative, theory-grounded methodology, we conducted semi-structured interviews with 20 individuals aged 60-75 who live with mobility disability attributed to multiple sclerosis. The open-ended questions explored their perspectives on the aging process, their definition of successful aging, and the coping strategies they employ in navigating challenges associated with age and their condition.

Results: Despite facing mobility disabilities, the majority (16 out of 20) expressed a sense of successful aging, identifying five key themes: accepting reality, maintaining a positive attitude, fostering independence, nurturing a social life, and preserving cognitive abilities. They achieved successful aging by focusing on alternatives, relying on external support, having a good attitude and faith, and accepting their challenges.

Discussion and implications: The themes identified in this research contribute to redefining successful aging in future studies and facilitating the development of interventions aimed at improving the quality of life for older adults coping with mobility disability.

背景和目的:研究人员通常将成功老龄化定义为摆脱残疾和疾病,然而,残疾老年人的看法挑战了这一概念,表明他们确实可以成功老龄化。本文根据多发性硬化症导致行动不便的老年人对成功关键因素的主观评价,调整了残疾老年人成功老龄化的框架:我们采用了一种定性的、以理论为基础的方法,对 20 名年龄在 60-75 岁之间、因多发性硬化症而行动不便的老年人进行了半结构化访谈。这些开放式问题探讨了他们对衰老过程的看法、他们对成功衰老的定义,以及他们在应对与年龄和病情相关的挑战时所采用的应对策略:尽管面临行动不便的问题,大多数人(20 人中有 16 人)还是表达了对成功老龄化的看法,并确定了五个关键主题:接受现实、保持积极态度、培养独立性、培养社交生活以及保持认知能力。他们通过关注其他选择、依靠外部支持、保持良好的心态和信念以及接受挑战来实现成功老龄化:本研究确定的主题有助于在未来的研究中重新定义成功老龄化,并促进旨在改善行动不便老年人生活质量的干预措施的发展。
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引用次数: 0
Music Engagement as Part of Everyday Life in Dementia Caregiving Relationships at Home. 音乐参与是痴呆症家庭护理关系中日常生活的一部分。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnad174
Theresa A Allison, Jennie M Gubner, Krista L Harrison, Alexander K Smith, Deborah E Barnes, Kenneth E Covinsky, Kristine Yaffe, Julene K Johnson

Background and objectives: Emerging evidence suggests music-based interventions can improve the well-being of people living with dementia, but little is known about the ways in which music might support dementia caregiving relationships as part of everyday life at home. This study examined music engagement in the context of daily life to identify patterns of music engagement and potential targets for the design of music-based interventions to support well-being.

Research design and methods: This ethnographic, in-home study of people living with dementia and their family and professional care partners used methods from ethnomusicology, including semistructured interviews and in-home participant observation with a focus on music engagement.

Results: A total of 21 dyads were purposively recruited for diversity in terms of gender, ethnicity/race/heritage, caregiving relationship, and music experiences. Despite participants' diverse music preferences, 3 distinct music engagement patterns emerged. (a) Professional care partners intentionally integrated music listening and singing into daily life as part of providing direct care. (b) Family care partners, who had prior dementia care nursing experience or family music traditions, integrated music into daily life in ways that supported their personal relationships. (c) In contrast, family care partners, who lacked dementia care experience and had high levels of caregiver burden, disengaged from prior music-making.

Discussion and implications: The distinct music engagement patterns reflect different needs on the part of dyads. It is important to continue to support dyads who engage in music daily and to consider developing music-based interventions to support well-being among dyads who have become disengaged from music.

背景和目标:新的证据表明,基于音乐的干预措施可以提高痴呆症患者的幸福感,但人们对音乐作为家庭日常生活的一部分如何支持痴呆症护理关系却知之甚少。本研究考察了日常生活中的音乐参与情况,以确定音乐参与的模式以及设计基于音乐的干预措施以支持幸福感的潜在目标:这项针对痴呆症患者及其家人和专业护理伙伴的居家人种学研究采用了人种音乐学的方法,包括半结构式访谈和居家参与者观察,重点关注音乐参与度。结果:我们有目的性地招募了 21 对伴侣,他们在性别、民族/种族/遗产、护理关系和音乐体验方面都具有多样性。尽管参与者对音乐的喜好各不相同,但还是出现了三种截然不同的音乐参与模式。1) 专业护理伙伴有意将听音乐和唱歌融入日常生活,作为提供直接护理的一部分。2) 曾有过痴呆症护理经验或家庭音乐传统的家庭护理伙伴将音乐融入日常生活,以支持他们的人际关系。3)与此相反,缺乏痴呆症护理经验且护理负担较重的家庭护理伙伴则不再参与之前的音乐创作:讨论与启示:不同的音乐参与模式反映了二人组的不同需求。重要的是要继续支持每天都参与音乐活动的伴侣,并考虑开发基于音乐的干预措施,以支持已脱离音乐活动的伴侣的福祉。
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引用次数: 0
Explicating Ageism in the Productive Aging Framework. 在生产老龄化框架中解释年龄歧视。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnad156
Nancy Morrow-Howell, Ernest Gonzales

This essay argues for a fuller integration of ageism and age discrimination into the productive aging framework. We briefly review the productive aging scholarship and the extent to which ageism has been considered in regard to working, volunteering, education, and caregiving. We suggest that ageism has not been adequately considered, and we identify how it permeates productive engagement in later life. We introduce modifications to the productive aging framework to more directly capture the roles of ageism and age discrimination in activity engagement and the outcomes achieved. We argue for the integration of key concepts from minority stress theory and critical race theory that may yield important insights for an increasingly diverse older population. We conclude with research directions that will guide intervention development to reduce ageism at the societal, organizational, and individual level.

本文主张将年龄歧视和年龄歧视更全面地纳入生产性老龄化框架。我们简要回顾了生产性老龄化学术以及在工作,志愿服务,教育和护理方面考虑的年龄歧视程度。我们认为年龄歧视没有得到充分的考虑,我们确定了它是如何渗透到以后生活的生产性参与的。我们对生产性老龄化框架进行了修改,以更直接地捕捉年龄歧视和年龄歧视在活动参与和取得的成果中的作用。我们主张整合少数民族压力理论和批判种族理论的关键概念,这可能为日益多样化的老年人口提供重要的见解。最后,我们提出研究方向,以指导干预发展,以减少社会、组织和个人层面的年龄歧视。
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引用次数: 0
"Stronger Than I Thought I Was": Older Adults' Coping Across Two Years of the COVID-19 Pandemic. "比我想象的更坚强":跨越 COVID-19 大流行两年的老年人应对之道。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnad164
Heather R Fuller, Andrea Huseth-Zosel, Emily Kinkade, Bryce Van Vleet, Melisa Hajdar

Background and objectives: Throughout the coronavirus disease 2019 (COVID-19) pandemic, older adults developed coping strategies to adapt to the necessary social distancing precautions; however, over time, especially as vaccines became available, their need and ability to adapt and cope shifted. This longitudinal, mixed-methods study investigates changes in older adults' perceptions of coping across the first 2 years of the pandemic.

Research design and methods: Between April 2020 and June 2022, 5 waves of interviews were conducted with 76 Midwestern older adults aged 70-97. At each timepoint, participants rated their level of perceived coping. They also answered a series of open-ended questions about their current daily life, experiences, and perceptions during the pandemic.

Results: Repeated-measure ANOVA indicated participants' perceived coping significantly increased over 2 years and qualitative explanations contextualized these shifts. Thematic coding of interview transcripts identified themes of: (1) taking problem-focused approaches and (2) cultivating emotional resiliency, with multiple subthemes nested within each. Subtheme meanings shifted once vaccines were available, as participants adapted to a "new normal" lifestyle and appreciated their own resilience.

Discussion and implications: Findings suggest older adults had nuanced and shifting coping experiences throughout the initial 2 years of the pandemic, but overall coped by drawing on life experiences. Our discussion highlights variability in older adults' coping over time and directions for future study and practice.

背景和目的:在 COVID-19 大流行期间,老年人制定了应对策略,以适应必要的社会隔离预防措施;然而,随着时间的推移,特别是随着疫苗的上市,他们适应和应对的需求和能力发生了变化。这项纵向混合方法研究调查了大流行头两年中老年人对应对策略看法的变化:在 2020 年 4 月至 2022 年 6 月期间,对 76 名年龄在 70-97 岁之间的中西部老年人进行了五波访谈。在每个时间点,参与者都会对其感知到的应对水平进行评分。他们还回答了一系列开放式问题,内容涉及他们当前的日常生活、经历以及对大流行病的看法:结果:重复测量方差分析表明,参与者的认知应对能力在两年内显著提高,定性解释说明了这些转变的背景。访谈记录的主题编码确定了以下主题:1) 采取以问题为中心的方法;2) 培养情绪恢复能力,每个主题中又包含多个子主题。疫苗上市后,随着参与者适应 "新常态 "生活方式并认识到自身的恢复能力,次主题的含义也发生了变化:研究结果表明,在大流行病发生的最初两年中,老年人的应对经验存在细微差别且不断变化,但总体而言,他们是通过利用生活经验来应对大流行病的。我们的讨论强调了老年人应对方式随时间的变化以及未来研究和实践的方向。
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引用次数: 0
Social Isolation, Loneliness, and Depressive Symptoms Among Older Adults: The Moderating Effect of Resilience. 老年人的社会隔离、孤独感和抑郁症状:复原力的调节作用
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnae056
Ke Li, Fengyan Tang, Steven M Albert, Mary E Rauktis, Mary L Ohmer

Background and objectives: Social isolation has been recognized as a social problem with negative health consequences. Using data from 3 waves of the Health and Retirement Study, this study aimed to examine the long-term impact of social isolation on loneliness and depressive symptoms and to explore the moderating effect of resilience.

Research design and methods: This study comprised 3,681 U.S. adults aged 60 and older at the baseline wave. Social isolation index was constructed using 5 indicators, including not married or cohabitating with a partner, no social participation, and less than monthly contacts with children, family members, or friends. Loneliness was measured by the University of California Los Angeles (UCLA) Loneliness Scale and depressive symptoms were measured by the Center for Epidemiological Studies-Depression scale. The moderator of resilience was assessed by the simplified resilience score. Latent growth curve models with robust standard errors were estimated.

Results: The results of latent growth curve models showed that social isolation was significantly associated with more initial loneliness and depressive symptoms. However, social isolation was associated with a slower increasing rate of loneliness, but no significant relationship with the change rate of depressive symptoms. Furthermore, resilience significantly buffered the negative effect of social isolation on the initial level of depressive symptoms.

Discussion and implications: The findings underscore the importance of enacting strategies and interventions targeting resilience to address social isolation and its negative consequences among older adults.

背景和目的:社会隔离已被认为是一个会对健康产生负面影响的社会问题。本研究利用健康与退休研究(Health and Retirement Study)三个波次的数据,旨在研究社会隔离对孤独感和抑郁症状的长期影响,并探讨复原力的调节作用:这项研究包括 3,681 名 60 岁及以上的美国成年人。社会隔离指数由五项指标构成,包括未结婚或未与伴侣同居、未参与社会活动以及与子女、家人或朋友的联系少于每月一次。孤独感由加州大学洛杉矶分校孤独感量表测量,抑郁症状由流行病学研究中心抑郁量表(CES-D)测量。复原力的调节因素通过简化复原力评分(SRS)进行评估。对带有稳健标准误差的潜在增长曲线模型进行了估计:潜在成长曲线模型的结果表明,社会隔离与更多的初始孤独感和抑郁症状明显相关。然而,社会隔离与孤独感的增加速度较慢有关,但与抑郁症状的变化速度没有显著关系。此外,复原力能明显缓冲社会隔离对抑郁症状初始水平的负面影响:研究结果强调了针对老年人的社会隔离及其负面影响制定策略和干预措施的重要性。
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引用次数: 0
"It's like crystal gazing": The Lived Experience of Anticipating End-of-Life Choices in Older Adults and Their Close Ones. 就像凝视水晶一样":老年人及其亲友预测临终选择的生活体验。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnae061
Marte Fleur Antonides, Els van Wijngaarden

Background and objectives: Nowadays people increasingly try to take control over the end of their lives by anticipating end-of-life choices. Explication of these choices is encouraged using advance care planning (ACP). We aim to deepen our understanding of how choice-making processes are lived in real life, exploring the experience of community-dwelling older adults and their close ones over time.

Research design and methods: A multiperspective and longitudinal approach grounded in phenomenology was chosen. Ten triads consisting of an older adult (75+) and 2 close ones (n = 30) were interviewed, twice individually and once as a group, over 20 months (=70 interviews). Data were thematically analyzed both longitudinally and from all 3 perspectives.

Results: The essential meaning of anticipatory choice-making processes was described as a dynamic and relationally entangled decisional process, to navigate between paradoxical choices for an opaque future. Three fields of tension were created due to ambivalence in these choice-making processes: navigation between having and losing control, between taking away and burdening with responsibility, and between expressing and holding back oneself.

Discussion and implications: Anticipation of choices for hypothetical end-of-life scenarios turned out to be complex and ambivalent. Most older adults resisted ambivalence and ignored complexity in an attempt to stay in control over their end of life. The burdening impact of choices on close ones illuminated the relationality of choice-making processes. These aspects of end-of-life choice-making processes should be integrated into ACP in order to better understand and care for people and their close ones faced with these choices.

背景和目的:如今,人们越来越多地通过预测生命末期的选择来控制自己的生命。预先护理规划(ACP)鼓励人们对这些选择进行阐述。我们的目标是加深对现实生活中如何进行选择的理解,探索居住在社区的老年人及其近亲在不同时期的经历:我们选择了一种以现象学为基础的多视角纵向研究方法。在 20 个月的时间里(=70 次访谈),对由一位老年人(75 岁以上)和两位亲近者(人数=30)组成的 10 个三人小组进行了两次单独访谈和一次小组访谈。从纵向和三个角度对数据进行了主题分析:结果:预测选择过程的基本含义被描述为一个动态的、关系纠缠的决策过程,在矛盾的选择之间为不透明的未来导航。由于在这些选择过程中存在矛盾,因此产生了三个紧张领域:在拥有和失去控制之间、在剥夺和承担责任之间、在表达和保留自我之间进行导航:对假想临终情景的选择预期是复杂和矛盾的。大多数老年人抵制矛盾心理,忽视复杂性,试图继续控制自己的临终。选择对亲近的人造成的负担性影响揭示了选择过程的关系性。生命末期选择过程的这些方面应纳入 ACP,以便更好地理解和照顾面临这些选择的人及其近亲。
{"title":"\"It's like crystal gazing\": The Lived Experience of Anticipating End-of-Life Choices in Older Adults and Their Close Ones.","authors":"Marte Fleur Antonides, Els van Wijngaarden","doi":"10.1093/geront/gnae061","DOIUrl":"10.1093/geront/gnae061","url":null,"abstract":"<p><strong>Background and objectives: </strong>Nowadays people increasingly try to take control over the end of their lives by anticipating end-of-life choices. Explication of these choices is encouraged using advance care planning (ACP). We aim to deepen our understanding of how choice-making processes are lived in real life, exploring the experience of community-dwelling older adults and their close ones over time.</p><p><strong>Research design and methods: </strong>A multiperspective and longitudinal approach grounded in phenomenology was chosen. Ten triads consisting of an older adult (75+) and 2 close ones (n = 30) were interviewed, twice individually and once as a group, over 20 months (=70 interviews). Data were thematically analyzed both longitudinally and from all 3 perspectives.</p><p><strong>Results: </strong>The essential meaning of anticipatory choice-making processes was described as a dynamic and relationally entangled decisional process, to navigate between paradoxical choices for an opaque future. Three fields of tension were created due to ambivalence in these choice-making processes: navigation between having and losing control, between taking away and burdening with responsibility, and between expressing and holding back oneself.</p><p><strong>Discussion and implications: </strong>Anticipation of choices for hypothetical end-of-life scenarios turned out to be complex and ambivalent. Most older adults resisted ambivalence and ignored complexity in an attempt to stay in control over their end of life. The burdening impact of choices on close ones illuminated the relationality of choice-making processes. These aspects of end-of-life choice-making processes should be integrated into ACP in order to better understand and care for people and their close ones faced with these choices.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":""},"PeriodicalIF":4.6,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11192859/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141238683","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Paying a Heavy Price: Costs of Care for People With Severe Obesity in Nursing Homes. 付出沉重的代价:疗养院护理重度肥胖患者的费用。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnad150
Luisa Fernandez, Bianca Shieu, Alison Trinkoff, Nicholas Castle, David G Wolf, Steven Handler, John A Harris

Background and objectives: The prevalence of resident obesity in nursing homes has increased dramatically from 22% to 28% between 2005 and 2015. To provide care for people with obesity, nursing homes have changed their admissions, staffing, and equipment, but underlying these changes are increased resources and financial costs of care. The purpose of this study is to describe nursing home organizational aspects of caring for older adults with obesity, with a focus on economic factors, from the perspective of nursing home staff and leadership.

Research design and methods: This qualitative study used descriptive approaches; data were collected through semistructured telephone interviews. Of 77 nursing home staff and leaders identified as potential study participants, 6 were ineligible, and 71 participated in the study through interviews conducted from 2019 to 2022.

Results: A total of 4 primary themes described the issues surrounding the cost of care for obesity in nursing homes: inefficient and risky use of staff time in a setting of persistent staff shortage, expensive and unique equipment needs, inadequate general reimbursement with an absence of obesity-specific reimbursement supplements, and competing short- and long-term management solutions.

Discussion and implications: This qualitative study of nursing home staff and leadership underscores a need for improved approaches to funding obesity care within existing nursing payment models. The increasing prevalence of obesity and the burden of the costs of obesity care for nursing homes will escalate this need over the coming decade.

背景和目标:2005年至2015年间,养老院居民肥胖的患病率从22%急剧上升到28%。为了为肥胖者提供护理,养老院改变了入院人数、人员配备和设备,但这些变化的背后是护理资源和财务成本的增加。本研究的目的是从养老院工作人员和领导层的角度,描述养老院照顾肥胖老年人的组织方面,重点是经济因素。研究设计和方法:本研究采用描述性方法进行定性研究;数据是通过半结构化的电话访谈收集的。在77名被确定为潜在研究参与者的养老院工作人员和领导中,6人不符合资格,71人通过2019年至2022年的访谈参与了这项研究,昂贵而独特的设备需求,缺乏针对肥胖的报销补充的一般报销不足,以及相互竞争的短期和长期管理解决方案。讨论和影响:这项针对养老院工作人员和领导层的定性研究强调,在现有的护理支付模式下,需要改进资助肥胖护理的方法。在未来十年中,肥胖的日益流行和养老院肥胖护理费用的负担将加剧这一需求。
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引用次数: 0
Care Partner Confidence and Experiences in Legal Planning for People Living With Dementia: A Mixed-Methods Study. 痴呆症患者法律规划中护理伙伴的信心和经验:一项混合方法研究。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnad153
Anna Jolliff, Beth Fields, Justin Boutilier, Alex Dudek, Christian Elliott, Matthew Zuraw, Nicole E Werner

Background and objectives: Care partners of persons living with dementia perform complex legal planning tasks. The purpose of this study was to survey care partners in the United States to understand their confidence and experience in performing legal planning tasks.

Research design and methods: This study used a parallel mixed-methods research design. We administered a web-based survey to 318 adults who self-identified as care partners of persons living with dementia. The survey contained Likert scale questions and open-ended questions about legal planning tasks. Multivariate linear regression was used to analyze quantitative data and inductive thematic analysis was used to analyze qualitative data.

Results: Care partners were, on average, 53 years of age and 78% female. The three topics in which participants were least confident were: protecting oneself legally as a care partner; options when legal documents are not in place and a family member is not legally competent; and circumstances when legal documents should be updated or renewed. We observed significant differences in legal planning confidence between newer and more experienced care partners (p < .001); lower- and higher-income care partners (p = .01); and adult child versus spousal care partners (p < .001). Thematic analysis revealed that legal planning challenges include initiating a conversation with the person living with dementia, understanding and using legal materials, and accessing materials that accommodate individual differences.

Discussion and implications: It is vital to develop legal planning interventions that are tailored to specific subgroups of care partners, and to maximize the clarity, comprehensiveness, and accessibility of available legal planning education.

背景和目标:痴呆症患者的护理伙伴执行复杂的法律规划任务。本研究的目的是调查美国的护理伙伴,以了解他们在执行法律规划任务方面的信心和经验。研究设计与方法:本研究采用平行混合的方法进行研究设计。我们对318名自称为痴呆症患者护理伙伴的成年人进行了一项基于网络的调查。这项调查包含了Likert量表问题和关于法律规划任务的开放式问题。定量数据采用多元线性回归分析,定性数据采用归纳专题分析。结果:护理伙伴平均年龄为53岁,78%为女性。参与者最不自信的三个主题是:作为护理伙伴合法保护自己;法律文件不到位且家庭成员不具备法律资格时的选择;以及应更新或更新法律文件的情况。我们观察到,新的护理伙伴和更有经验的护理伙伴在法律规划信心方面存在显著差异(p讨论和影响:制定针对特定护理伙伴群体的法律规划干预措施,并最大限度地提高现有法律规划教育的清晰度、全面性和可及性,这一点至关重要。
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引用次数: 0
Addressing Equity and Justice in Age-Friendly Communities: Considerations for LGBTQ+ Older Adults of Color. 解决老年友好社区中的公平与公正问题:为有色人种中的 LGBTQ+ 老年人考虑。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnae050
Austin G Oswald, Lujira Cooper

Background and objectives: This research critically examined the concept of age-friendliness from the perspectives of older Black lesbian women living in New York City (NYC). The primary aim was to extend existing age-friendly frameworks to more inclusively meet the needs of older lesbian, gay, bisexual, transgender, and queer adults of color, promoting greater equity and justice.

Research design and methods: Applying principles from critical participatory action research, we collected and analyzed data from 5 focus groups consisting of 5 older Black lesbian women. Participants shared their daily experiences living in NYC and proposed ideas to enhance the age-friendliness of the city to better accommodate their unique needs and experiences.

Results: Participants called for greater attention to the interaction between identities and structures in relation to age-friendly communities. Historic and contemporary experiences of violence and discrimination, as well as the ever-shifting political context were identified as a key factor shaping their aging experiences. The need for affirming spaces with positive representation of their layered identities was emphasized in the context of age-friendly interventions.

Discussion and implications: While dominant age-friendly frameworks are universally accepted for improving the health and wellbeing of older adults, the specific challenges of aging with multiple intersecting marginalized identities necessitate a critical perspective. Gerontology needs to take seriously how privilege and oppression operate within society, shaping health and aging trajectories of vulnerable and underserved populations.

背景和目的:本研究从居住在纽约市(NYC)的老年黑人女同性恋者的角度出发,对年龄友好的概念进行了批判性研究。主要目的是扩展现有的年龄友好框架,以更加包容地满足有色人种中的老年女同性恋、男同性恋、双性恋、变性者和同性恋成年人的需求,促进更大的公平和正义:我们运用批判性参与行动研究的原则,收集并分析了由五名老年黑人女同性恋组成的五个焦点小组的数据。参与者分享了她们在纽约市生活的日常经验,并就如何提高纽约市的老年友好度提出了建议,以更好地满足她们的独特需求和经验:结果:参与者呼吁更加关注与老年友好社区相关的身份和结构之间的相互作用。历史和当代的暴力和歧视经历以及不断变化的政治环境被认为是影响他们老龄化经历的关键因素。讨论和影响:虽然主流的老年友好框架在改善老年人的健康和福祉方面得到了普遍认可,但老年人在多重交叉的边缘化身份方面所面临的具体挑战需要一个批判性的视角。老年学需要认真对待特权和压迫如何在社会中运作,如何影响弱势群体和得不到充分服务的人群的健康和老龄化轨迹。
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引用次数: 0
Performance of the Modified Caregiver Strain Index in a Sample of Black and White Persons Living With Dementia and Their Caregivers. 黑人和白人痴呆症患者及其护理人员样本中的 "改良护理人员压力指数"(MCSI)表现。
IF 4.6 2区 医学 Q1 GERONTOLOGY Pub Date : 2024-07-01 DOI: 10.1093/geront/gnae052
Carolina Pereira-Osorio, Emily Brickell, Bern Lee, Beth Arredondo, Robert John Sawyer

Background and objectives: This study examined the performance of the Modified Caregiver Strain Index (MCSI) in a sample of Black and White caregivers of persons living with dementia.

Research design and methods: Data on 153 dyads enrolled in the Care Ecosystem dementia care management program were analyzed, including sociodemographic variables, dementia severity, and caregiver burden and wellbeing. Factor structure, item-response patterns, and concurrent validity were assessed across racial groups.

Results: Differences between Black and White caregivers included gender, dyad relation, and socioeconomic disadvantage. Factor structure and item loadings varied by racial cohort, with parameters supporting a 3-factor model. For Black caregivers, finances and work, emotional and physical strain, and family and personal adjustment items loaded together on individual factors. For White caregivers physical and emotional strain items loaded on separate factors, although personal and family adjustment items loaded with work and financial strain items. Item-level analysis revealed differences between groups, with Black caregivers endorsing physical strain to a greater degree (p = .003). Total MCSI scores were positively correlated with concurrent measures like the PHQ-9 (White: r = 0.67, Black: r = 0.54) and the GAD-2 (White: r = 0.47, Black: r = 0.4), and negatively correlated with self-efficacy ratings (White: r = -0.54, Black: r = -0.55), with a p < .001 for all validity analysis.

Discussion and implications: The MCSI displayed acceptable statistical performance for Black and White caregivers of persons living with dementia and displayed a factor structure sensitive to cultural variations of the construct. Researchers results highlight the inherent complexity and the relevance of selecting inclusive measures to appropriately serve diverse populations.

背景和目的:本研究考察了黑人和白人痴呆症患者护理人员的改良护理人员压力指数(MCSI)表现:本研究考察了黑人和白人痴呆症患者护理者样本中的 "改良护理者压力指数"(MCSI)的表现:研究分析了参加护理生态系统痴呆症护理管理项目的 153 对夫妇的数据,包括社会人口变量、痴呆症严重程度、护理者的负担和幸福感。对不同种族群体的因子结构、项目反应模式和并发有效性进行了评估:黑人和白人照顾者之间的差异包括性别、配对关系和社会经济劣势。因子结构和项目负荷因种族群组而异,参数支持三因子模型。对于黑人照顾者来说,经济和工作、情绪和身体压力以及家庭和个人调整项目共同作用于各个因子。对于白人照顾者来说,身体和情绪压力项目分别加载在不同的因子上,而个人和家庭适应项目则与工作和经济压力项目加载在一起。项目层面的分析表明,不同群体之间存在差异,黑人照顾者对身体压力的认可度更高(p=0.003)。MCSI总分与PHQ-9(白人:r=0.67,黑人:r=0.54)和GAD-2(白人:r=0.47,黑人:r=0.4)等同时进行的测量结果呈正相关,与自我效能感评分呈负相关(白人:r=-0.54,黑人:r=-0.55),p讨论和影响:对于黑人和白人痴呆症患者的照顾者而言,MCSI 显示出了可接受的统计性能,并显示出了对该结构的文化差异敏感的因子结构。我们的研究结果凸显了选择包容性测量方法以适当服务于不同人群的内在复杂性和相关性。
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