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Le point de vue des familles contribue àla richesse du projet ENSEMBLE 家庭的观点有助于项目的丰富性
Q4 Medicine Pub Date : 2022-12-01 DOI: 10.1016/j.motcer.2022.10.003
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引用次数: 0
Q4 Medicine Pub Date : 2022-12-01 DOI: 10.1016/j.motcer.2022.11.002
La Rédaction
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引用次数: 0
Quelle utilisation du relaxateur de pression chez la personne polyhandicapée ? Un cas clinique 压力放松器对多残疾人士有什么用途?临床病例
Q4 Medicine Pub Date : 2022-12-01 DOI: 10.1016/j.motcer.2022.10.006
H. Pétremant

This case study follows the literature review entitled “What use of intermittent positive-pressure breathing in severe cerebral palsy?” published in Revue Motricité Cérébrale 434 (2022) 45–50. It aims to confront the results of literature and clinic on the impact of the use of intermittent positive-pressure breathing in severe cerebral palsy. The literature review didn’t allow clear-cut conclusions. However, it let us think that, in severe cerebral palsy, the use of intermittent positive-pressure breathing at suitable pressure levels could improve and maintain over time lung compliance, mobilize the patient's rib cage, ventilate poorly ventilated lung areas and remove atelectasis. It could also facilitate bronchial drainage by increasing the volume of air mobilized when using chest physiotherapy technics. Therefore, this clinical case study seeks to assess the impact of intermittent positive-pressure breathing in a patient with severe cerebral palsy, on his chronic bronchial congestion, his respiratory volumes, his ability to cope with an increase in the respiratory load and his quality of life as well than that of his parents.

本病例研究遵循题为“间歇性正压呼吸在重度脑瘫中的作用?”发表于《Revue motricit》(2016,34),第45-50期。它的目的是面对文献和临床结果对使用间歇正压呼吸在严重脑瘫的影响。文献综述没有给出明确的结论。然而,它让我们认为,在严重脑瘫中,在适当的压力水平下使用间歇性正压呼吸可以改善和长期维持肺顺应性,活动患者的胸腔,通气不良的肺区域并去除肺不张。采用胸腔物理治疗技术时,可通过增加空气的动员量来促进支气管引流。因此,本临床病例研究旨在评估重度脑瘫患者间歇性正压呼吸对慢性支气管充血、呼吸量、呼吸负荷增加的应对能力和生活质量的影响,以及其父母的影响。
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引用次数: 0
Verticalisation ou mise en charge adaptée : réflexions et perspectives dans la Paralysie Cérébrale - Étude de cas 垂直或适应性负荷:脑瘫的思考和前景-案例研究
Q4 Medicine Pub Date : 2022-12-01 DOI: 10.1016/j.motcer.2022.10.004
K. Taher

Gravity has captured the attention of thinkers since Aristote. Scientists are always trying to more understand the physical mechanisms and their impacts on terrestrial and extraterrestrial life. Despite all the progress in scientific and clinical research, we still don’t know certain mechanisms of functions and the extraordinary powers of this gravity. Moreover, man is one of the living beings that is directly linked to this gravity. Scientific studies prove the impact of this gravity on height and weight development, the functions of vital organs due to inactivity, and the socio-cultural behavior of human beings. From the neurophysiological point of view, the biomechanics of man in connection with the sensory-motor vectors are intimately linked to the vector of the vertical. This vector is in perpetual change during the passage of the man from the lying position to the standing one and obviously during the walk-in order to build a trajectory and a direction to the movement. However, little scientific and clinical evidence has been revealed on the effect of gravity in the field of Cerebral Palsy and in particular that of multiple disabilities. The complex and heterogeneous clinical picture raises the limits of research in the field of multiple disabilities. However, international consensus and studies are gradually emerging trying to better understand the importance of this severity on the health of people with multiple disabilities. This case study of a child with multiple disabilities highlights the news in the literature review. The Physiotherapist evokes this clinical and scientific problem of the device and its link with gravity by proposing an installation which he calls “MOBIVERT” to put the child in charge in a course of listening, observation and sharing. of experience with the medical, paramedical, psycho-educational and social fields.

自亚里士多德以来,万有引力就引起了思想家们的注意。科学家们一直试图更多地了解物理机制及其对地球和地外生命的影响。尽管科学和临床研究取得了很大的进展,但我们仍然不知道重力的某些功能机制和它的非凡力量。而且,人类是与重力直接相关的生物之一。科学研究证明,这种重力对身高和体重的发展、由于不活动而导致的重要器官的功能以及人类的社会文化行为的影响。从神经生理学的角度来看,人的生物力学与感觉运动矢量密切相关,与垂直矢量密切相关。这个矢量在人从躺着的位置到站着的位置的过程中不断变化,显然在行走的过程中,为了建立一个运动的轨迹和方向。然而,很少有科学和临床证据显示重力在脑瘫领域的影响,特别是在多重残疾。复杂和异质性的临床情况提出了在多重残疾领域的研究的局限性。然而,国际共识和研究正在逐渐出现,试图更好地理解这种严重程度对多重残疾人健康的重要性。这是一个多重残疾儿童的案例研究,突出了文献综述中的新闻。物理治疗师通过提出一个他称之为“MOBIVERT”的装置,唤起了这个设备的临床和科学问题,以及它与重力的联系,让孩子在一个倾听、观察和分享的过程中负责。具有医学、辅助医学、心理教育和社会领域的经验。
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引用次数: 0
Éditorial 编辑
Q4 Medicine Pub Date : 2022-12-01 DOI: 10.1016/j.motcer.2022.11.001
P. Toullet
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引用次数: 0
Comment proposer une thérapie précoce pour l’enfant de moins de douze mois à risque de développer une paralysie cérébrale unilatérale dans le but de favoriser l’utilisation de son membre supérieur à l’aide d’un outil de type Constraint Induced Movement Therapy ? 如何为12个月以下有发展单侧脑瘫风险的儿童提供早期治疗,以促进其上肢使用约束诱导运动疗法?
Q4 Medicine Pub Date : 2022-12-01 DOI: 10.1016/j.motcer.2022.10.005
A. d’Eimar de Jabrun

Aim

This article is a case study of an early rehabilitation of the upper limb of children under twelve months of age at risk of unilateral cerebral palsy. The aim is to propose a constraint-induced movement therapy in a private practice, to analyze its benefits and to confront it with the existing literature on the subject.

Method

After a selection of articles from the scientific literature, it is introduced the case of a child who has had a stroke at the second day of life, and the early rehabilitation established with the Baby-CIMT tool in private practice and the family support in the home rehabilitation.

Results

This technique, adaptated to the private practice, allowed to promote the activity and participation of the child and her family, it also promoted the use of the affected upper limb.

Discussion and conclusions

It seems that despite the contributions allowed by the Baby-CIMT, the transfer of competences toward bimanual activities is not really effective. This could be achieved by coupling this therapy with daily life activities or bimanual therapy. However, the involvement of the family seems to be directly related to the functional outcome of the child.

目的本文是对12个月以下单侧脑瘫患儿上肢早期康复的案例研究。目的是在私人实践中提出一种约束诱导运动疗法,分析其益处,并将其与有关该主题的现有文献进行比较。方法选取科学文献中的文章,介绍1例出生第2天发生脑卒中的患儿,在私人诊所采用Baby-CIMT工具进行早期康复,在家庭康复中采用家庭支持。结果该方法适合于私人执业,可以促进患儿及其家人的活动和参与,也可以促进患肢的使用。讨论与结论:尽管婴儿- cimt允许做出贡献,但将能力转移到双手活动并不是真正有效的。这可以通过将这种疗法与日常生活活动或双手疗法相结合来实现。然而,家庭的参与似乎与儿童的功能结果直接相关。
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引用次数: 0
Mise en place d’un home-programme numérique et mesure de son observance dans le cadre de la prise en charge kinésithérapique d’un patient atteint de paralysie cérébrale — Étude de cas 实施数字家庭项目并测量其依从性作为脑瘫患者物理治疗管理的一部分-案例研究
Q4 Medicine Pub Date : 2022-12-01 DOI: 10.1016/j.motcer.2022.10.007
C. Kinet

Introduction

Internships in a professional environment, school holidays, lockdowns… As a physiotherapist, ensuring care continuity of teenagers and young adults with Cerebral Palsy (CP), within medico-social structures, requires permanent adaptability to avoid any lasting period with no activities of physical therapy.

Method

This work is a case study using a digital home program (smartphone app) of goal-oriented exercises and carried out during a transitional downtime of an eight-week physiotherapy care.

Results

The compliance achieved by the subject is equal to 75% over the entire period.

Conclusion

Home-program, with specific environmental factors associated with personally favoring factors, was a way for the therapist to ensure continuity during a period of transitional interruption of physiotherapy management.

在专业环境中实习,学校假期,封锁…作为一名物理治疗师,确保患有脑瘫(CP)的青少年和年轻人在医疗社会结构中的护理连续性,需要永久的适应性,以避免任何长期没有物理治疗活动。方法本研究采用数字家庭程序(智能手机应用程序)进行目标导向练习,并在为期八周的物理治疗护理的过渡停机时间进行。结果受试者在整个治疗期间的依从率为75%。结论家庭项目是理疗师在物理治疗管理过渡中断期间确保连续性的一种方法,它具有特定的环境因素和个人偏好因素。
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引用次数: 0
Agenda 议程
Q4 Medicine Pub Date : 2022-12-01 DOI: 10.1016/j.motcer.2022.11.003
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引用次数: 0
L’évaluation des habiletés visuelles des personnes polyhandicapées 多残疾人视觉技能评估
Q4 Medicine Pub Date : 2022-10-01 DOI: 10.1016/j.motcer.2022.07.001
G. Petitpierre , J. Dind , D. Domeniconi , C. Diacquenod

After recalling the factors that make complex the assessment of visual skills in people with profound intellectual and multiple disabilities, this article presents the results of a survey conducted among several expert services in Europe, as well as those of a systematic review of the literature aimed at identifying the tools and procedures that can be used and are used with that population. The consultation of fifteen centers, as well as a systematic review of the scientific literature carried out in six databases, made it possible to highlight a set of procedures, tests and clinical material, most of which have been validated and of great clinical interest. Two links are available in the article, one leads to the recommendations for optimal assessment conditions provided by the centers, the other to a more detailed description of the procedures, tests and clinical materials identified. It should be noted, however, that much of the material identified is not yet available in French and that a translation effort could be considered in order to enrich the French toolbox in the field.

在回顾了使深度智力残疾和多重残疾人士的视觉技能评估变得复杂的因素之后,本文介绍了在欧洲几家专家服务机构中进行的一项调查的结果,以及旨在确定可用于和正在用于该人群的工具和程序的文献系统综述的结果。对15个中心的咨询,以及对6个数据库中科学文献的系统审查,使得有可能突出一套程序、测试和临床材料,其中大多数已得到验证,具有很大的临床意义。文章中有两个链接,一个是中心提供的最佳评估条件的建议,另一个是对程序、测试和确定的临床材料的更详细的描述。但是,应当指出,所确定的许多材料尚未有法文版本,因此可以考虑进行翻译工作,以便丰富这一领域的法文工具箱。
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引用次数: 0
Regards croisés sur le polyhandicap : de la création du terme aux représentations actuelles 多重残疾的交叉视角:从术语的创造到当前的表现
Q4 Medicine Pub Date : 2022-10-01 DOI: 10.1016/j.motcer.2022.04.002
M. Tafforeau , M. Pouyfaucon , C. Tessiot , P. Van Bogaert , M. Dinomais , I. Richard

Introduction

“Polyhandicap” is a French term used since the 1960s originally in the context of medico-social institutions. Its closest english translation is “Profound Intellectual and Multiple Disabilities” but these terms may reflect a slightly different approach. Recent recommendations were issued by the French “Haute Autorité de santé”. The objective of this study is to explore the representations of different french stakeholders associated with “polyhandicap”, in order to better define the concept and facilitate international publications.

Methods

This study is based on 33 semi-structured interviews conducted from January to April 2021 with medical doctors, rehabilitation workers, caregivers, and administrative staff involved with such patients. The interview explored the respondents’ opinion regarding the definition, assessment and management of “polyhandicap”.

Results

Forty-five percent of the respondents include profound intellectual disability in the core-definition of “polyhandicap”. Other respondents highlight the variability of the importance of mental retardation and some associate this item to the difficulties encountered in communication. Coexisting disabilities are more or less extensively listed. Fifty-eight percent of the respondents state that the term of “polyhandicap” should not be restricted to injuries taking place during early brain development. Fifty-five percent consider that the needs of such patients are not adequately met.

Discussion

These multiple representations, source of confusion, can be detrimental to people with “polyhandicap”. This French concept, comprising three levels of analysis (medical, functional and social), and imperfectly covering other terms used abroad, is difficult to transpose internationally.

“多残障”是一个法语术语,自20世纪60年代以来最初用于医疗社会机构。它最接近的英文翻译是“深刻的智力和多重残疾”,但这些术语可能反映了一种略有不同的方法。最近的建议是由法国“高级自治机构”(Haute autorit de sant)提出的。本研究的目的是探讨与“多残障”相关的不同法国利益相关者的代表,以便更好地定义这一概念并促进国际出版物。方法采用半结构化访谈法,于2021年1月至4月对涉及此类患者的医生、康复工作者、护理人员和管理人员进行了33次访谈。访谈探讨了受访者对“多面手”的定义、评估和管理的看法。结果45%的受访者将深度智障纳入“多残障”的核心定义。其他答复者强调智力迟钝的重要性各不相同,有些人将这一问题与沟通中遇到的困难联系起来。共存的残疾或多或少被广泛列出。58%的受访者表示,“多残障”一词不应局限于早期大脑发育期间发生的损伤。55%的人认为这类患者的需求没有得到充分满足。这些多重表征是混淆的来源,对“多残障”患者是有害的。这一法国概念包括三个层面的分析(医学、功能和社会),不完全涵盖国外使用的其他术语,很难在国际上进行转换。
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Motricite Cerebrale
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