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Allergic Intimacies: Food, Disability, Desire, and Risk by Michael Gill (review) 过敏性亲密关系:食物、残疾、欲望和风险》,迈克尔-吉尔著(评论)
IF 1.4 4区 哲学 Q3 ETHICS Pub Date : 2024-07-02 DOI: 10.1353/ken.2023.a931055
Megan A. Dean
In lieu of an abstract, here is a brief excerpt of the content:

Reviewed by:

  • Allergic Intimacies: Food, Disability, Desire, and Risk by Michael Gill
  • Megan A. Dean (bio)
Review of Michael Gill, Allergic Intimacies: Food, Disability, Desire, and Risk (Fordham University Press, 2023)

In the early days of the COVID-19 pandemic, the mundane activity of eating with or near others became physically hazardous and normatively fraught. Nourishing oneself outside one's home could raise serious risks to one's health and wellbeing, and was suddenly subject to new policies and prohibitions aimed at minimizing harm and liability. The decision to eat out demanded personal calculations of risk and benefit, as well as interpersonal negotiation, sometimes prompting contentious conversations about the realities of disease transmission and our moral responsibilities. For many people, coming to think about eating outside the home as a pressing and significant threat to health and life was a radical shift. Yet, as Michael Gill's Allergic Intimacies: Food, Disability, Desire, and Risk details, the experience of eating meals as risking lethal consequences, demanding active personal risk management (including knowledge and negotiation of laws and policies), and straining important interpersonal relationships, is quite familiar to those living with food allergies.

Allergic Intimacies offers a rich and generative exploration of the challenges of living with food allergies in the United States. A disability studies scholar, Gill frames the book as an examination of the "meanings" of food allergy from an intersectional perspective that centers both disability and race (ix). The book analyses various cultural representations of and narratives about food allergy, and traces the health effects of social and institutional structures, policies, and practices, while interweaving these findings with Gill's personal experiences with nut allergies. The focus throughout is on IgE-mediated food allergies, the sort which can cause anaphylaxis and which are exemplified by peanut allergies. The book's central claim is that common individualistic approaches to food allergy—approaches that emphasize personal and familial responsibility for allergy management—are inadequate, failing to address the systemic and structural issues that significantly disadvantage food-allergic people in marginalized groups in the U.S., especially Black people. These structural [End Page 421] issues include barriers to accessing not only food and medicine, but also the social and economic resources necessary to advocate for food allergy needs.

The book contains a preface, introduction, and brief conclusion, along with four main chapters. The introduction presents a medical and epidemiological overview of food allergies, including va

以下是内容的简要摘录,以代替摘要:评论者: 过敏性亲密关系:Megan A. Dean (bio) Review of Michael Gill, Allergic Intimacies:食物、残疾、欲望与风险》(福特汉姆大学出版社,2023 年)在 COVID-19 大流行的早期,与他人一起或靠近他人进食这一平凡的活动变得既危险又充满规范性。外出就餐可能会给个人的健康和福祉带来严重风险,并突然受到旨在尽量减少伤害和责任的新政策和禁令的约束。外出就餐的决定需要个人对风险和利益进行计算,还需要进行人际谈判,有时会引发关于疾病传播的现实和我们的道德责任的争议性对话。对许多人来说,将外出就餐视为对健康和生命的紧迫而重大的威胁是一种彻底的转变。然而,正如迈克尔-吉尔(Michael Gill)的《过敏性亲密关系》(Allergic Intimacies)一书所言:食物、残疾、欲望和风险》一书中详细描述的那样,对于食物过敏症患者来说,进餐有可能造成致命后果,需要积极的个人风险管理(包括了解和协商法律和政策),并使重要的人际关系变得紧张。过敏性亲密关系》对美国食物过敏患者的生活挑战进行了丰富而有启发性的探讨。作为一名残疾研究学者,吉尔从交叉视角出发,以残疾和种族为中心,对食物过敏的 "意义 "进行了研究(ix)。该书分析了有关食物过敏的各种文化表述和叙事,追溯了社会和制度结构、政策和实践对健康的影响,同时将这些发现与吉尔个人的坚果过敏经历交织在一起。全书的重点是 IgE 介导的食物过敏,这种过敏可导致过敏性休克,以花生过敏为例。该书的核心主张是,针对食物过敏的常见个人主义方法--强调个人和家庭对过敏控制的责任的方法--是不充分的,未能解决系统性和结构性问题,这些问题使美国边缘群体中的食物过敏者,尤其是黑人处于非常不利的地位。这些结构性 [尾页 421]问题不仅包括获得食物和药物的障碍,还包括倡导食物过敏需求所需的社会和经济资源。本书包括序言、导言和简短的结论,以及四个主要章节。导言介绍了食物过敏的医学和流行病学概况,包括近几十年来食物过敏发病率明显上升的各种假设。该书还讨论了四种 "情景",以激发对食物过敏进行超越个人主义、"单轴"(即非交叉)分析的必要性:肾上腺素注射器的使用(8-14)、食品工业过敏原标签做法(14-16)、航空公司食物过敏原政策(16-18)以及《英国烘焙大赛》对食物过敏的处理(18-23)。第一章 "食物过敏、免疫和环境的关系 "探讨了对食物过敏者和其他饮食限制者的责任,讨论了风险管理、身份以及无过敏原空间的伦理和政治等主题,包括共餐、学校和飞机。第二章是 "无坚果松鼠和花生过敏公主":第二章 "无坚果松鼠和花生过敏公主:食物过敏、身份和儿童读物 "对有关食物过敏的儿童读物进行了批判性分析,指出大多数英语儿童读物都以患有花生过敏症的白人男孩为中心,他们的经历反映了经济和社会特权。这些儿童读物在很大程度上忽视了许多边缘化家庭所经历的挑战,例如需要努力争取学校承认和照顾食物过敏,社区成员对提供此类照顾的抵制,以及难以获得不含过敏原的食物。第三章 "液体交换引起的过敏反应 "提出了食物过敏者接吻和性行为的伦理问题。由于过敏原可以通过体液传递,因此食物过敏使 "安全 "的亲密身体接触变得更加复杂(57-58)。吉尔借鉴了米娅-明格斯(Mia Mingus)的 "获取亲密关系 "概念(2011 年),提出了一种相互依存的伦理观,即以沟通和同意为中心,同时为愉悦和自发性留出空间。最后一章 "你吃了什么? 故意、意外和死亡 "探讨了与那些故意...
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引用次数: 0
Understanding sovereignty through meteorology: China, Japan, and the dispute over the Qingdao Observatory, 1918-1931. 通过气象了解主权:中国、日本与青岛观象台之争,1918-1931 年。
IF 0.3 3区 哲学 Q3 Arts and Humanities Pub Date : 2024-07-01 Epub Date: 2023-07-09 DOI: 10.1080/00033790.2023.2231465
Xiao Liu

Concentrating on the Qingdao Observatory, this paper will explore the role of scientific facility in asserting China's sovereignty during the first half of the twentieth century. Although scholars have explained the efforts of China's internationalization in diplomacy through the perspectives of politics, economics and culture, they have not paid attention to science. Therefore, this paper aims to shed some light on how scientific issues were solved via diplomacy during the Republic of China, while further asserting that the focus in negotiations was not confined to science itself, but rather to sovereignty within a scientific context. In this process, the meaning of sovereignty has also been expanded basing on the improvement of nation's scientific capability. Besides, the participation of different actors involved in sovereignty assertion is investigated by this paper. Although the diplomatic negotiation was held at the international level, the local government and scientific community were main promoters in this case, which calls for attention on the various subjects in sovereignty issue. Consequently, this paper argues that Asian countries, such as Republic of China, could also employ science as a means to negotiate with foreign powers and claim their due rights.

本文将以青岛观象台为中心,探讨二十世纪上半叶科学设施在维护中国主权方面的作用。尽管学者们从政治、经济和文化的角度阐释了中国外交国际化的努力,但他们并未关注科学。因此,本文旨在揭示民国时期如何通过外交解决科学问题,同时进一步论证谈判的焦点并不局限于科学本身,而是科学背景下的主权问题。在此过程中,主权的内涵也在国家科学能力提高的基础上得到了扩展。此外,本文还研究了主权主张中不同参与者的参与情况。虽然外交谈判是在国际层面上进行的,但地方政府和科学界是这一事件的主要推动者,这就要求关注主权问题中的各个主体。因此,本文认为以中华民国为代表的亚洲国家也可以利用科学作为与外国势力谈判的手段,主张自己应有的权利。
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引用次数: 0
Rationing, Responsibility, and Vaccination during COVID-19: A Conceptual Map. COVID-19 期间的配给、责任和疫苗接种:概念图。
IF 17 1区 哲学 Q1 Nursing Pub Date : 2024-07-01 Epub Date: 2023-04-27 DOI: 10.1080/15265161.2023.2201188
Jin K Park, Ben Davies

Throughout the COVID-19 pandemic, shortages of scarce healthcare resources consistently presented significant moral and practical challenges. While the importance of vaccines as a key pharmaceutical intervention to stem pandemic scarcity was widely publicized, a sizable proportion of the population chose not to vaccinate. In response, some have defended the use of vaccination status as a criterion for the allocation of scarce medical resources. In this paper, we critically interpret this burgeoning literature, and describe a framework for thinking about vaccine-sensitive resource allocation using the values of responsibility, reciprocity, and justice. Although our aim here is not to defend a single view of vaccine-sensitive resource allocation, we believe that attending critically with the diversity of arguments in favor (and against) vaccine-sensitivity reveals a number of questions that a vaccine-sensitive approach to allocation should answer in future pandemics.

在 COVID-19 大流行的整个过程中,稀缺医疗资源的短缺一直是重大的道德和实际挑战。尽管疫苗作为阻止大流行病匮乏的关键药物干预措施的重要性得到了广泛宣传,但仍有相当一部分人选择不接种疫苗。对此,有人为将疫苗接种情况作为分配稀缺医疗资源的标准进行辩护。在本文中,我们对这一新兴文献进行了批判性解读,并描述了一个框架,以责任、互惠和公正的价值观来思考疫苗敏感性资源分配问题。尽管我们的目的并不是为疫苗敏感性资源分配的单一观点辩护,但我们相信,批判性地审视支持(或反对)疫苗敏感性的各种论点,可以揭示疫苗敏感性分配方法在未来大流行中应该回答的一些问题。
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引用次数: 0
Can P4 Support Family Involvement and Best Interests in Surrogate Decision-Making? P4 能否支持代理决策中的家庭参与和最佳利益?
IF 17 1区 哲学 Q1 Nursing Pub Date : 2024-07-01 Epub Date: 2024-06-24 DOI: 10.1080/15265161.2024.2353817
Angela Ballantyne, Rochelle Style
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引用次数: 0
On the Differing Role of Counterexamples in Philosophical Theory and Health Policy. 论反例在哲学理论和卫生政策中的不同作用。
IF 17 1区 哲学 Q1 Nursing Pub Date : 2024-07-01 Epub Date: 2024-06-24 DOI: 10.1080/15265161.2024.2353835
Gerard Vong
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引用次数: 0
Machine Learning Algorithms in the Personalized Modeling of Incapacitated Patients' Decision Making-Is It a Viable Concept? 机器学习算法在无行为能力患者决策个性化建模中的应用--这是一个可行的概念吗?
IF 17 1区 哲学 Q1 Nursing Pub Date : 2024-07-01 Epub Date: 2024-06-24 DOI: 10.1080/15265161.2024.2353026
Tomasz Rzepiński, Ewa Deskur-Śmielecka, Michał Chojnicki
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引用次数: 0
Potentially Perilous Preference Parrots: Why Digital Twins Do Not Respect Patient Autonomy. 潜在危险的偏好鹦鹉:数字双胞胎为何不尊重患者自主权?
IF 17 1区 哲学 Q1 Nursing Pub Date : 2024-07-01 Epub Date: 2024-06-24 DOI: 10.1080/15265161.2024.2353810
Georg Starke, Ralf J Jox
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引用次数: 0
Artificial Intelligence, Digital Self, and the "Best Interests" Problem. 人工智能、数字自我和 "最佳利益 "问题。
IF 17 1区 哲学 Q1 ETHICS Pub Date : 2024-07-01 Epub Date: 2024-06-24 DOI: 10.1080/15265161.2024.2353028
Jeffrey Todd Berger
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引用次数: 0
Who are the publics engaging in AI? 谁是参与人工智能的公众?
IF 3.5 2区 文学 Q1 COMMUNICATION Pub Date : 2024-07-01 Epub Date: 2024-01-28 DOI: 10.1177/09636625231219853
Renée Sieber, Ana Brandusescu, Abigail Adu-Daako, Suthee Sangiambut

Given the importance of public engagement in governments' adoption of artificial intelligence systems, artificial intelligence researchers and practitioners spend little time reflecting on who those publics are. Classifying publics affects assumptions and affordances attributed to the publics' ability to contribute to policy or knowledge production. Further complicating definitions are the publics' role in artificial intelligence production and optimization. Our structured analysis of the corpus used a mixed method, where algorithmic generation of search terms allowed us to examine approximately 2500 articles and provided the foundation to conduct an extensive systematic literature review of approximately 100 documents. Results show the multiplicity of ways publics are framed, by examining and revealing the different semantic nuances, affordances, political and expertise lenses, and, finally, a lack of definitions. We conclude that categorizing publics represents an act of power, politics, and truth-seeking in artificial intelligence.

鉴于公众参与对政府采用人工智能系统的重要性,人工智能研究人员和从业人员很少花时间思考这些公众是谁。对公众进行分类会影响公众对政策或知识生产的贡献能力的假设和承受能力。公众在人工智能生产和优化中的作用也使定义更加复杂。我们采用混合方法对语料库进行了结构化分析,通过算法生成搜索词,我们研究了约 2500 篇文章,并为对约 100 篇文献进行广泛的系统性文献综述奠定了基础。研究结果表明,通过研究和揭示不同的语义细微差别、承受能力、政治和专业知识视角,以及缺乏定义等问题,我们发现了界定公众的多种方式。我们的结论是,对公众进行分类代表了人工智能领域的权力、政治和求真行为。
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引用次数: 0
A systematic literature review of the 'commercialisation effect' on public attitudes towards biobank and genomic data repositories. 关于 "商业化效应 "对公众对生物库和基因组数据储存库的态度的系统性文献综述。
IF 3.5 2区 文学 Q1 COMMUNICATION Pub Date : 2024-07-01 Epub Date: 2024-02-22 DOI: 10.1177/09636625241230864
Jarrod Walshe, Brad Elphinstone, Dianne Nicol, Mark Taylor

Initiatives that collect and share genomic data to advance health research are widespread and accelerating. Commercial interests in these efforts, while vital, may erode public trust and willingness to provide personal genomic data, upon which these initiatives depend. Understanding public attitudes towards providing genomic data for health research in the context of commercial involvement is critical. A PRISMA-guided search of six online academic databases identified 113 quantitative and qualitative studies using primary data pertaining to public attitudes towards commercial actors in the management, collection, access, and use of biobank and genomic data. The presence of commercial interests yields interrelated public concerns around consent, privacy and data security, trust in science and scientists, benefit sharing, and the ownership and control of health data. Carefully considered regulatory and data governance and access policies are therefore required to maintain public trust and support for genomic health initiatives.

为推动健康研究而收集和共享基因组数据的倡议非常普遍,而且正在加速发展。这些工作中的商业利益虽然至关重要,但可能会削弱公众对提供个人基因组数据的信任和意愿,而这些数据正是这些计划所依赖的。在商业参与的背景下,了解公众对为健康研究提供基因组数据的态度至关重要。在 PRISMA 的指导下,我们搜索了六个在线学术数据库,发现了 113 项定量和定性研究,这些研究使用了与公众对生物库和基因组数据的管理、收集、访问和使用中的商业参与者的态度有关的原始数据。商业利益的存在引发了公众对同意、隐私和数据安全、对科学和科学家的信任、利益共享以及健康数据的所有权和控制权等相互关联的问题的关注。因此,要保持公众对基因组健康计划的信任和支持,就必须认真考虑监管和数据治理及访问政策。
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引用次数: 0
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